Migraines

[Guest guest]

Well then I forgot what the name of the nasal spray is. I had taken some

pills but they were only for occasional migraines. I now take Neurontin and

no longer have any migraines.

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RE: migraines

note; imitrex is NOT a nasal spray, at least in the United

States....it is an injectable or a pill form...

--- " Joe D. " wrote:

> Imitrex, but it is only for occasional migraines, and

> isn't for people who have any kind of heart problems. It

can cause a cardiac arrest in those people, from what a

friend told me.

> I was having what are called " sinus migraines " every day.

> I was on a barbiturate, but all it did was make me sleep

all the time, and when I woke up I would have another

headache.

>

> I keep telling my friend about Neurontin for migraines,

> but he insists on sniped

[Guest guest]

My migraines, which are now very rare, include the zigzaggety "neons" or lights, but the first hint that a migraine is coming is going to be that unexplained irritability and that sense that all is not well with me, as a general uneasiness with me and my surroundings. Then come the zigzags and other vision problems. Then, as the headache merges with these, my vision gets much sharper and all the other symptoms go away, that is, everything but the headache. I have found that vigorous aerobics and a cup of coffee SOMEtimes abort the headache, but not always. Back when I was severely hypo, I was having migraines around once a week or so, but now, it's more like once a yr. The Merck describes the irritability, thick tongue, zigzags, and some other prodromal symptoms as classic migraine.

Re: Migraines

I haven't had the kind of migraines I used to have for years now. Sometimes I even had all the feelings but not the headache. I had sensitivity to light & sound, nausea, brain fog and felt ill and needed to sleep it off.

Recently I had headache and woke up in the night and tried to read. There was a zig-zag design accross the page that lasted about 20 minutes. When I closed my eyes, it was still there. My doctor said, "Migraine equavalent." I looked the phrase up and sure enough, it was described there. There are all kinds of variants, including constant vomiting. It just happened that my neuro. found something that worked for mine. It wouldn't necessarily work for everyone else. Maybe it is a neurological glitch like whatever causes my pituitary and thyroid problems.

M.

[Guest guest]

I never had the zig-zags, but I did have the nausea,

the sensitivity to light and sound, and the brain fog.

They stopped somewhere around puberty. I was never

taken to the doctor for it, as they only happened a

couple of times a year. However, they were awful,

awful, awful. My mother would just lay me down in a

dark cold room and turn all the noisy things off.

To this day, I hate headaches of any type.

Once again, I am so glad you have medication for your

condition.

--- Marilyn wrote:

> I haven't had the kind of migraines I used to have

> for years now. Sometimes I even had all the

> feelings but not the headache. I had sensitivity to

> light & sound, nausea, brain fog and felt ill and

> needed to sleep it off.

>

> Recently I had headache and woke up in the night

> and tried to read. There was a zig-zag design

> accross the page that lasted about 20 minutes. When

> I closed my eyes, it was still there. My doctor

> said, " Migraine equavalent. " I looked the phrase up

> and sure enough, it was described there. There are

> all kinds of variants, including constant vomiting.

> It just happened that my neuro. found something that

> worked for mine. It wouldn't necessarily work for

> everyone else. Maybe it is a neurological glitch

> like whatever causes my pituitary and thyroid

> problems.

> M.

>

[Guest guest]

I'm amazed. I didn't know that. I assumed the zigzag line was as rare to everyone as it was to me. I never would have thought of myself as just compliantly doing whatever the doctor said and not educating myself. I suppose I just did all my reading before consulting a doctor and leaving it up to him/her after consulting one. Since you know a lot of stuff, ....I am wondering if my TMJ pain, on the right side of my face, on and off for several weeks now is some type of migraine like pain. It is not worse when I bite down but can be worse as I move my jaw left and right. I even had pain on the outside of my right eye, yesterday. Have you ever had anything like that? Marilyn wrote: My migraines, which are now very rare, include the zigzaggety "neons" or lights, but the first hint that a migraine is coming is going to be that unexplained irritability and that sense that all is not well with me, as a general uneasiness with me and my surroundings. Then come the zigzags and other vision problems. Then, as the headache merges with these, my vision gets much sharper and all the other symptoms go away, that is, everything but the headache. I have found that vigorous aerobics and a cup of coffee SOMEtimes abort the headache, but not always. Back when I was severely hypo, I was having migraines around once a week or so, but now, it's more like once a yr. The Merck describes the irritability, thick tongue, zigzags, and some other prodromal symptoms as classic migraine. Re: Migraines I haven't had the kind of migraines I used to have for years now. Sometimes I even had all the feelings but not the headache. I had sensitivity to light &

sound, nausea, brain fog and felt ill and needed to sleep it off. Recently I had headache and woke up in the night and tried to read. There was a zig-zag design accross the page that lasted about 20 minutes. When I closed my eyes, it was still there. My doctor said, "Migraine equavalent." I looked the phrase up and sure enough, it was described there. There are all kinds of variants, including constant vomiting. It just happened that my neuro. found something that worked for mine. It wouldn't necessarily work for everyone else. Maybe it is a neurological glitch like whatever causes my pituitary and thyroid problems. M.

[Guest guest]

Marilyn - I've called them " visual migraines " and I've had them for

quite awhile. No pain or nausea, they just get triggered once in

awhile. But I'd have to say that, knock on wood, I haven't had any

since on Armour and with new diet.

Mine started in grade school and happened infrequently, but I would

get a headache sometimes and have to go to the nurse's office until

it was over. Then I didn't have any until later in life. They seemed

most frequent when I was on caffeine, stressed, and hadn't eaten in

over 4 hours. Over the last several years, I would get them when I

tried to withdraw from my anti-depressant too fast. Nothing helps to

stop them, and I just lay down for 30 minutes, or distract myself

listening to the news with a cool cloth over my brow.

Mine first appear as a tiny " tear " in my central vision that I just

sort of notice and then I know I'm going to be out of commission for

30 minutes. It pulses and then grows into an arc, getting larger and

larger. The arc is full of zig-zag colors like a prism, and looks

like a kaleidescope (sp?). The arc finally gets very big but softer

and then moves out of my vision, and it's over. It's quite nerve-

wracking to try to relax during those episodes, though, isn't it!

I told my opthamologist about them when I first went to him, and he

said they are fairly common and he had a lot of patients who would

draw representations of their visual migraines and give them to him.

He had a whole gallery of them at home. I thought that was nice that

he at least sympathized with his patients. But he said that nothing

has been found to alleviate them. It's just a trigger in the brain

that occurs.

My gut tells me that the Armour and the new diet have helped a lot

in their decrease in frequency. I'd be really glad to not ever see

one again.

Sara

>

> > I worked with a neurologist, pain specialist, on

> > trying several different medications known to work

> > with migraine. The one that worked is Ultram,

> > non-narcotic, that I take once a day to keep the

> > migraines from starting.

> > M.

> >

>

>

>

>

>

>

[Guest guest]

It's amazing to hear people talk about this very wierd migraine I get, too.

The first one was at high altitude and about a year after my very serious

head injury. I thought I was having a seizure and I was terrified. It

started just as you said, a little tiny blurred point in my sight, then it

looked like a 'tear' in the fabric of my vision. Then it gained shaped and

color. It is beautiful; really, flashing colors inside a black frame;

nothing so much as like Indian jewelry with many very bright inlaid stones

(but flashing!). And it is usually an arc, now that I think of it.

Sometimes there is headache with it but not extreme. It always feels,

afterward, as if I had had a bad headache. I am tired and a little sick

feeling.

I have just been grateful that it was not an epileptic aura; that was my

real fear. My neurologist was sure I would have seizures. Her answer was

to keep me drunk on these awful antiseizure drugs but I removed myself, very

slowly, from the drugs - and her care - and used natural means instead which

seems to have cured me of the auras I was having.

I seem to have recently cured myself of reflux also and of most of a very

uncomfortable feeling in my gut. It is very simple; I drink a teaspoon of

ginger root juice every morning. It took three weeks but the reflux is gone

and almost all the abdominal discomfort with it. Hooray! (And thanks for

the hint from Dr. Stoll.)

Terijo

[Guest guest]

Oh, the wonderful (just kidding) world of migraines. Mine have been

refered to as opthalmic migraines. It starts out as if someone has

just taken my picture with a flash... you know that little spot you can

always see in your vision.? Then it expands until I have tunnel

vision. It is not clear vision either, kind of see through if that

makes sense. I can only see half of my face at a time in the mirror,

and not real clearly. There is no pain at this time, but the visual

effects are slow, last about 30 minutes. When the visual effects clear

up, I will throw up, and then have the most terrible migraine you can

imagine, which will keep me in bed for a day, with a residual headache

lasting another 2 to 3 days.

The neurologist says the visual effects are caused by lack of bloodflow

to the opthalmic nerves? The vessels are contsricting in the area for

some reason. Then the headache comes from the vessels opening back

up. I am up to 200 mg topamax a day right now to prevent migraines,

and with the exception of some mild headaches during my cycle, it's

doing pretty good.

[Guest guest]

Cathryn, I understand better the relationship between that part of the brain close to the occipital lobe and the eyes now. My granddaughter is missing her corpus collusm, had epilepsy (long story) and now wears glasses to keep her eyes focused in the same direction. It seems the neuro glitches are close to the part of the occipital lobe that controls the muscles that make the eyes focus together and the muscles are loose. It doesn't effect vision. But I understand better how pressure could effect any part of the visual equipment. My granddaughter took Topomax, as one of many drugs tried, but she regressed intellectually while on it, so it was stopped. It is hard on your intellect but anything would be better than those headaches, I am sure. Also, the good news, it causes weight loss. I am sure you know all that. M.Cathryn

wrote: Oh, the wonderful (just kidding) world of migraines. Mine have been refered to as opthalmic migraines. It starts out as if someone has just taken my picture with a flash... you know that little spot you can always see in your vision.? Then it expands until I have tunnel vision. It is not clear vision either, kind of see through if that makes sense. I can only see half of my face at a time in the mirror, and not real clearly. There is no pain at this time, but the visual effects are slow, last about 30 minutes. When the visual effects clear up, I will throw up, and then have the most terrible migraine you can imagine, which will keep me in bed for a day, with a residual headache lasting another 2 to 3 days.The neurologist says the visual effects are caused by lack of bloodflow to the opthalmic nerves? The vessels are

contsricting in the area for some reason. Then the headache comes from the vessels opening back up. I am up to 200 mg topamax a day right now to prevent migraines, and with the exception of some mild headaches during my cycle, it's doing pretty good.

[Guest guest]

I had one ophthalmic migraine. It was so weird.

Thank goodness I haven't had one since. I was so scared I

ended up going to the emergency room.

On another note, I was given Topamax for unrelated pain in

my head, but could not take it. I couldn't stand up, I was so dizzy

from taking that medication. I was told to try a smaller dose, but

went to the acupuncturist instead. I am doing much better now.

I take Ultracet for the pain, when it starts to come back.

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[Guest guest]

Doesn't affeect my weight at all... probably the dosage. I did drop 10

lbs. when I first started taking it, but I leveled out, and the 10 lbs.

returned, so it wasn't a weight loss pill for me.

Cat

[Guest guest]

My daughter has terrible migraines, but I only had them for several

months. There was no pain, but the right side of my face felt numb and

it was liking looking through clear jello...would only last for 20-30

minutes. Also had bright half circles of golden lights which I still

see from time to time. The dr. said it was not uncommon for women to

have them when either starting or stopping HRT or birth control pills.

And I had just started on HRT.

Loretta

[Guest guest]

All I can tell you about the TMJ-like symptoms is my own experience. I have it, but I'm suspecting that it may be from over-compensated chewing habits, since I now have a main molar missing on both sides, lower sides. It's my first molar on one side, and the same on the other. My jaw started the popping-pain thing around a yr after the left side was pulled. Other people can even hear it when it does this. My mouth no longer closes evenly either, as evidenced with the dentist's "finger-in-jaws" testing, while opening and closing my mouth, so that's what I think is causing that one. Yes, the zigzags of migraine are so strange, things disappearing to one side, then having that weird tunnel vision. My oldest daughter (also has Hashi's) has the most classic migraine, and sounds and acts like a drunk before the headache comes on, since she has the thick tongue and slurred speech before the headache starts. It's downright frightening in her case, but she hasn't had one for around a couple of yrs now. That was around about the time a Galveston doctor upped her T4 to 200 mcgs, so possibly that had something to do with it, don't know.

Re: Migraines

I'm amazed. I didn't know that. I assumed the zigzag line was as rare to everyone as it was to me. I never would have thought of myself as just compliantly doing whatever the doctor said and not educating myself. I suppose I just did all my reading before consulting a doctor and leaving it up to him/her after consulting one.

Since you know a lot of stuff, ....I am wondering if my TMJ pain, on the right side of my face, on and off for several weeks now is some type of migraine like pain. It is not worse when I bite down but can be worse as I move my jaw left and right. I even had pain on the outside of my right eye, yesterday. Have you ever had anything like that?

Marilyn

[Guest guest]

An add on RBN radio offers www.headachestaygone.com or . They send

you the pills and a bill which you pay after your headache is gone, even

migraines.