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Re: pediatric neurologists

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Dr Wilfong at the Bluebird Clinic in Houston specializes in epilepsy. He is

a pediatric neurologist who only works with children with seizures. People

come to see him from around the world. We live in Austin but travel to

Houston to see him. We went to several neurologists before finding him.

I would go to no other but the best and I am certain it is him

Levine in Austin

pediatric neurologists

I am looking for someone specialized in seizures and Autism. It would also

be nice if someone is open-minded and does not just think of drugs.

Thanks,

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,

Thank you for your feedback. How do you like his style, manners? Does he

push drugs? Is he open to other treatments?

I am not sure that my son can go through an EEG, especially while awake.

Also, from what I amreading EEGs are not very reliable to detect activities

of seizures any way while they are not active.

Thanks,

pediatric neurologists

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> I am looking for someone specialized in seizures and Autism. It would also

> be nice if someone is open-minded and does not just think of drugs.

>

> Thanks,

>

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I cannot vouch for any other neurologist but Dr Wilfong at the Bluebird

Clinic but in my opinion he is the best.

I would suggest researching the web and see what you find. I am sure there

are others out there as well.

Re: pediatric neurologists

I took my son to Dr. .... He was always OPEN to new treatments,

etc. He read research I gave him, etc.

And also - when my son went through his atonic (drop) seizures - he NEVER

once registered ANY seizure activity on an EEG. In fact, a neurologist at

Blue Bird thought it was all " behavior " and not really seizures.

Bout ripped his head off - yeah - I made up those horrible horrible seizures

and my son just did that " for fun " .

I was not impressed with my experience at Blue Bird and went back to Dr.

. Although I hear now he's at Blue Bird......

ginam <ginamhouston (DOT) <mailto:ginam%40houston.rr.com> rr.com> wrote:

,

Thank you for your feedback. How do you like his style, manners? Does he

push drugs? Is he open to other treatments?

I am not sure that my son can go through an EEG, especially while awake.

Also, from what I amreading EEGs are not very reliable to detect activities

of seizures any way while they are not active.

Thanks,

pediatric neurologists

>

>

>

> I am looking for someone specialized in seizures and Autism. It would also

> be nice if someone is open-minded and does not just think of drugs.

>

> Thanks,

>

>

>

>

>

>

>

>

>

>

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Share on other sites

Thank you . It is important to me though that the doctor is to have a

good bedside manner, to be compassionate, and patient. This should go

with the territory especially when dealing with stressed out families of

children with Autism.

I have also heard about Dr. with Texas Children. Any comments.

pediatric neurologists

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>> I am looking for someone specialized in seizures and Autism. It would

>> also

>> be nice if someone is open-minded and does not just think of drugs.

>>

>> Thanks,

>>

>>

>>

>>

>>

>>

>>

>>

>>

>>

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  • 2 weeks later...

Hi, I have a 6yrs old boy, I would like to get the phone contact for Dr.

Wilfong.

There are times that my son had this moments where he just screem his lungs

out.

or sometimes he start to shake , I talked to his regular Dr. but he said there

is nothing anormal. I just want a second opinion. Could you tell me how to

contact Dr. Wilfong?

Thank you

Rosie

Levine wrote:

I am an RN and have worked with individuals with disabilities for years, as

well as having a 17 year old son with autism and a past history of seizures

which are now contolled, thanks to Dr Wilfong. EEGs are the sure way to

detect seizures. A person does not have to be having an active seizure in

order to detect them. An EEG is critical in order to determine seizures.

And you want to control seizures asap. I never thought me son would

tolerate an EEG either but I was surprised. He has had several over the

years. Now that he is older we do have to hold him closely to make sure he

doesn't move but with holding him and using whatever calming technique

works, such as rubbing his arms, face, etc. he is able to do OK with an EEG.

It does make us sad then he has to have one yet we know it is essential in

the treatment of his seizures. If you suspect seizures, definitley see a

Dr and have an EEG.

Dr Wilfong is rather arrogant, but he probably has reason to be. He does

prescribe medication. He has done extensive research on all types of

epilepsy and knows his stuff. He is blunt. He will tell you how it is.

He will not sugar coat what he sees. You know you are getting the facts.

I personally like that. He is completely honest, and it may not be good

news, but iwe have to face what is real. Anyway, we did vast research on

pedi neuros throughout the country and have been to quite a few and he has

been the one to help our son the most. Don't expect to like him but expect

results. And by all means have the EEG.

Let me know if I can help more

Re: pediatric neurologists

,

Thank you for your feedback. How do you like his style, manners? Does he

push drugs? Is he open to other treatments?

I am not sure that my son can go through an EEG, especially while awake.

Also, from what I amreading EEGs are not very reliable to detect activities

of seizures any way while they are not active.

Thanks,

pediatric neurologists

>

>

>

> I am looking for someone specialized in seizures and Autism. It would also

> be nice if someone is open-minded and does not just think of drugs.

>

> Thanks,

>

>

>

>

>

>

>

>

>

>

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Share on other sites

I have several numbers to reach Dr Wilfong. (832)822-3013 (832)822-0959

(832)822-1750

He is gone until mid March but go ahead and call for an appt. He truly is

the best in my opinion if seizures are a concern

Re: pediatric neurologists

,

Thank you for your feedback. How do you like his style, manners? Does he

push drugs? Is he open to other treatments?

I am not sure that my son can go through an EEG, especially while awake.

Also, from what I amreading EEGs are not very reliable to detect activities

of seizures any way while they are not active.

Thanks,

pediatric neurologists

>

>

>

> I am looking for someone specialized in seizures and Autism. It would also

> be nice if someone is open-minded and does not just think of drugs.

>

> Thanks,

>

>

>

>

>

>

>

>

>

>

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When I called, they said that he is not accepting new patients at this

time....

pediatric neurologists

>>

>>

>>

>> I am looking for someone specialized in seizures and Autism. It would

>> also

>> be nice if someone is open-minded and does not just think of drugs.

>>

>> Thanks,

>>

>>

>>

>>

>>

>>

>>

>>

>>

>>

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