Guest guest Posted November 14, 2005 Report Share Posted November 14, 2005 Thanks for that reminder, Jan, and I want to repeat... I do not take ANY supplements that haven't been recommended or rx'd by my doctor, and was merely asking for information or experience anyone else may have. I'm in no way recommending supplements, so please guys, let's do the research! Sorry if that conversation headed in the wrong direction! > > My eyes usually glaze over when folks start talking about supplements. But I think I ought to share a few thoughts on that subject. > > Folks who are hypothyroid need, first and foremost, adequate doses of T3 and T4, and possibly other hormones. There are no OTC supplements that will take the place of being adequately medicated. And some of them may interfere with your thyroid meds. > > It is my personal, not medical, opinion that anyone who feels like they need anything beyond a basic multivitamin and multimineral should do the following: > > 1. Do a lot of reading on the vitamins, herbs, nutriceuticals, etc, that they think they need. > > 2. Have any appropriate testing done to determine the need for such supplements. > > 3. Work with a doc who knows what he is doing. > > 4. Do not take anything based on the recommendations of folks on this board or any other. > > The above advice goes double for thyroid cancer survivors. The last thing you need is something that stimulates thyroid tissue. > > > > > --------------------------------- > Yahoo! FareChase - Search multiple travel sites in one click. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2005 Report Share Posted November 15, 2005 I agree with you Jan, wholeheartedly. Supplements are only useful inasmuch as they are used correctly, consistently, and with the partnership of a good doctor. On other boards, I've seen people subscribe to the " magic bullet theory " especially in regard to supplements. Vitamins and herbs go through fashionable movements just like everything else. The research for these items can be paltry, or suspicious. Often, the general public acts as though these things " can't hurt " because they are " natural " -- but even the most natural substances follow the laws of organic chemistry. Hence, they can DO things to you that you might not expect. They can BE equivalent to taking a prescription drug. Equally as dangerous are companies that create pseudo-science around their mysterious supplements. I would hope that all of you are careful about being approached by door-to-door vitamin reps, usually well-meaning friends, who try to sell you hundreds of dollars worth of bullhockey. I love vitamins. I get to enjoy the company of my 92 year old grandmother because she was one of the first people in her town to study, and use, vitamins correctly. However, during the time she started taking vitamins, she had a good doctor, an excellent diet rich in homegrown vegetables, and lots of time to research her choices. Okay, I'm putting my little collapsible soapbox away now. --- Jan wrote: > It is my personal, not medical, opinion that anyone > who feels like they need anything beyond a basic > multivitamin and multimineral should do the > following: > > 1. Do a lot of reading on the vitamins, herbs, > nutriceuticals, etc, that they think they need. > > 2. Have any appropriate testing done to determine > the need for such supplements. > > 3. Work with a doc who knows what he is doing. > > 4. Do not take anything based on the recommendations > of folks on this board or any other. > > The above advice goes double for thyroid cancer > survivors. The last thing you need is something that > stimulates thyroid tissue. > > > > > --------------------------------- > Yahoo! FareChase - Search multiple travel sites in > one click. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 20, 2007 Report Share Posted December 20, 2007 Hello all, I have many supplements that we are no longer using if anyone would like to purchase them. They are all half price and I will mail them you. Kirkman Labs Glutathione Lotion 4 $20.00 each Milk Thistle 4 $7.00 each Colustrom Gold(FLavored 4 oz) 2 $10.00 each Yeast Aid 200 caps 1 $20.00 DMG 020/100 1 $11.00 Vitamin E 250 caps 2 $7.00 each B Complex 200 $9.25 each Calcium powder 036/16 2 $10.00 each VAXA Attend 60 caps 2 $17.50 each Virastop(enzymedica) 1 $17.50 New Beginning MCT oil $7.50 Olive Leaf Extract 4 $6.40 each All new and unopened. Louise Bakley More new features than ever. Check out the new AOL Mail! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2008 Report Share Posted January 28, 2008 Alana wrote: > Are you taking glutamine powder? Not yet, but that's next on the list. > Do you listen to Dr. Hoffman's radio program, too? He is constantly telling people to get their D level checked. Hadn't heard of it. Will check to see if it's offered online. I learned of the Vitamin D deficiency epidemic after I was diagnosed with very low D. I suppose it would be worse among asthma sufferers who avoid spending much time outdoors because of mold and pollen. Carolyn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2008 Report Share Posted January 29, 2008 Carolyn, here is the link - http://wor710.com/pages/48794.php Alana >>>> Hadn't heard of it. Will check to see if it's offered online. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2008 Report Share Posted May 13, 2008 Thanks for the detailed information. You mentioned pro-biotics -- and that issomething I'm starting to hear more and more about. It makes sense to me,but I'm not sure exactly how to go about adding them or how to know which ones to use. Any thoughts on that? , I take a vitamin supplement than is designed to provide optimal cellular nutrition. It is actually a packet of vitamins that you take twice daily or also comes in a powder than can be mixed with water if you don't like swallowing pills. If you google search the words " optimal cellular nutrition " , you will find many sites and articles (the term is generally referring to vitamin supplements well beyond RDAs), along with places on the net that sell supplements. I would also think any health food store would carry similar products. I don't want anyone to think I am selling anything, so I'm not going to name the place where I buy mine online. I like the product I take, but think there are many comparable products out there that are very similar. The idea is that the RDAs are not enough to help the body under stress from chronic illnesses that may be very depleted of key nutrient needs, instead the RDAs were developed to prevent acute deficiency diseases. You can also just google search " vitamins and asthma " , and come up with many sites that give specific recommendations for asthmatics on vitamin supplements if you just want to focus on targeting asthma. I've seen magnesium, vitamin C, and B vitamins mentioned on most sites in conjuction with asthma. In addition to my vitamin packet (which has magnesium 500 mg daily, calcium 1000mg daily, vitamin C 1000mg, along with all the all the other usual vitamins), I take a probiotic pearl with acidphilus and some other good bacteria twice daily, and CoQ10 100 mg (the ubiquinone version) daily. My vitamin packet also has a fish oil capsule and a citrus bioflavinoid capsule to be taken twice daily. It sounds like alot, but basically I swallow a packet of vitamins in the morning with breakfast and one with supper, so it isn't too bad. I kind of think of it as my medicine (along with my regular asthma and allergy meds). I take the sinus/allergy support during the spring and fall only, not all year. My asthma had been difficult to control, and while I will probably always be taking conventional asthma and allergy medication, I feel like my overall asthma control is much better since I started supplementing. I've gone from having frequent episodes of out of control requiring oral steroids to needing prednisone only once last year. Before that, I was having to have prednisone 5 to 6 times a year for flareups, despite being on a full complement of regular asthma meds. I still have to watch the pollen counts carefully, and avoid some activities outside that I would like to do but overall, I feel like my life is more normal and not defined by my asthma and I have more energy. My family has definitely noticed the difference in my health. You need to read lots about supplements and decide what will work the best for your body. Everyone is different. Design your own program, after reading alot. Start slowly and carefully. Be sure to discuss whatever supplements you are going to take with your doctor. You will find most will be very dismissive of any benefit to supplementing, but you must let them know what you are taking, because there can be drug interactions with many supplements. My current doctor would not recommend any supplements except calcium to a patient because he is not convinced of any benefit, but admits he doesn't know that much about it, and has at least been supportive of me trying them. That is probably the best you can expect, although there are some doctors who are very knowledgable. Alana has posted many links to various studies in her posts, and some of those might be helpful to you also. The book I mentioned in my previous post has many very specific vitamin/herb suggesionts for chronic fatigue syndrome. Sorry this turned out so long! Good luck, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2008 Report Share Posted May 13, 2008 For years all CFS and EI friends have told me to take probiotics and I have....bottles and bottles but I never notice they make a difference for me altho I take lots of antibiotics. This all comes from the thought of Dr. Crook I believe concerning candida overgrowth in the gut which causes leaky gut syndrome. About 15 years ago I was in a book store and there must have been 75 books about candida overgrowth, it was all the rage and a fad I thought. I had already been eating yogurt for a few years. If you take steriods, birth control pills and antibiotics it can damage the lining of the small intestine allowing candida overgrowth which allows large particles of food to pass thru supposedly causing food allergy, etc. I think its a good idea to read all this stuff and form your own opinion. I do require lots of supplements in order to feel half way decent. Two years ago ago I had an endoscopy finally and it confirmed the lining of my small intestine is FLAT. This means I cannot absorb much. The gastroenterologist said that I have celiac disease. I have a hard time believing any of this stuff but that is probably just my problem. Today I just took my first dyglycyrrhizinated licorice in order to cure my CFIDS (another theory). I am so sick I try all kinds of stuff to get better. Genetically I do not have celiac disease but apparently all genes have not been discovered yet. Same for my iron overload. A friend who was in the EI clinic told me that other things than celiac can severely damage the lining of the gut. Let me know if probiotics works for you. I am always interested to hear what alternative stuff helped others. Alice Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2008 Report Share Posted May 15, 2008 HI Alice, I would take the dr. seriously,If he says you have celiac Disease. I also have celiac disease and the gluten-free diet is the treatment. It will take a while to get to feeling better.Since it's been flat you need to absorb your food. You can take all the supplements you want but until the gut is healed and the villi in the small intestine grow back you won't be absorbing anything. I'd try it for 3-6 months and see if you see any imporvment? You are at the same place I was 25 yrs. ago. I remember after the first year I felt better. and them after 3 yrs. on gluten free diet I FELT A lot better. Good luck. Becky > > For years all CFS and EI friends have told me to take probiotics and I have....bottles and bottles but I never notice they make a difference for me altho I take lots of antibiotics. This all comes from the thought of Dr. Crook I believe concerning candida overgrowth in the gut which causes leaky gut syndrome. About 15 years ago I was in a book store and there must have been 75 books about candida overgrowth, it was all the rage and a fad I thought. I had already been eating yogurt for a few years. If you take steriods, birth control pills and antibiotics it can damage the lining of the small intestine allowing candida overgrowth which allows large particles of food to pass thru supposedly causing food allergy, etc. I think its a good idea to read all this stuff and form your own opinion. > > I do require lots of supplements in order to feel half way decent. Two years ago ago I had an endoscopy finally and it confirmed the lining of my small intestine is FLAT. This means I cannot absorb much. The gastroenterologist said that I have celiac disease. I have a hard time believing any of this stuff but that is probably just my problem. Today I just took my first dyglycyrrhizinated licorice in order to cure my CFIDS (another theory). I am so sick I try all kinds of stuff to get better. Genetically I do not have celiac disease but apparently all genes have not been discovered yet. Same for my iron overload. A friend who was in the EI clinic told me that other things than celiac can severely damage the lining of the gut. > > Let me know if probiotics works for you. I am always interested to hear what alternative stuff helped others. > Alice > Quote Link to comment Share on other sites More sharing options...
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