Need info from parents of children w/ asperger's

[Guest guest]

Hi

My son has moderate to severe autism and so I am not as familiar w/

asperger's. I got a call today from someone at my son's school saying

that her friends 12 yr old son was just diagnosed w/ aspergers. He has

been in the same district for his entire school career and was always

labeled w/ " behavioral problems " and ADHD. The women recently took him

to a new physician who has given him an ASD/Aspergers dianosis. I was

wondering how many parents we have here whose child falls at this end

of the spectrum and has anyone had a similar experience where their

child was so old when he/she was finally diagnosed. Basically they

have pushed him thru as 504 w/ no special ed services all these years.

Can anyone share any experiences w/ this and how to get started on a

good IEP this late in the game? I wanted to maybe give her some similar

stories ( hopefully w/ a positive outcome) Also what systems,

structured schedules, reinforcements etc have helped your child...

Thanks

April

[Guest guest]

My daughter with Asperger Syndrome was not formally diagnosed until she was

almost 10 years old, and that was 9 ½ years ago. We had to go out-of-state

at that time to even get an appropriate diagnosis.

Up to that point, she had been diagnosed with a variety of things (I think I

counted once and she had something like 15 different diagnoses before she

got the correct one).

I battled with my school district for a couple of years before they “got it”

(including mediations and due process), but we did get her a good IEP and

some good support services in her last year of elementary school. It was

still important and still made a tremendous difference that “late in the

game”.

nna

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