Re: doing things to get Barton's attention- AUTISM TRIP

[Guest guest]

nna,

Here's an idea: Let's create a travel brochure! We can then send it to all

members of Congress, local governments, etc. I'm not joking, and I think it

would be pretty poignant.

It would be a beautiful tri-fold piece on glossy paper with photos of the

luxury accomodations he/they would receive:

Open floorplan: doors off hinges, holes in walls, etc.

Original artwork: feces-smeared walls. Or in our case, blood dotted

everywhere- my daughter has an obsession with blood, so she compulsively picks

at sores and dots the blood everywhere. It's a striking contrast on white

walls...

High security: multiple locks/deadbolts on doors for those of us whose kids

are escapers.

Avant Garde Performances: Constant screaming, self-injury, etc.

Delicious cuisine: GF/CF, anyone? Fistfulls of supplements? Monochromatic

meals?

R & R: Never.

What do you think?

Aliza

nna Bond wrote:

Someone mentioned in another post a day or so ago about how to guide

Barton's attention and the fact that he knows little to nothing about

autism. He has all these special interest groups that have supplied him with

trips all over everywhere to research and highlight their issues.

I think we need (as a special interest group) to invite Mr. Barton on a trip

for autism...how about some folks invite him for a weekend to spend some

time at your home with your family and child with autism so he can see what

exactly we are talking about and what his decisions are affecting? I have a

couple of friends who have kids with lots of self-injurious behavior, who

smear feces, who can't communicate, and whose schools are doing nothing to

help them that I would LOVE for him to visit! I would even be happy to

supply the transportation. The accommodations might not be what he is used

to (this family has holes in most of their doors and they've had to take

many doors off the hinges, like in the bathroom, so it won't be the

Marriott).

Or, maybe he would like to visit some of our lovely group homes here in

Texas that have residents with autism? Again, I have some friends who have

told me wonderful stories about abuse to their children who are

" noncompliant " (even though no one who works there has any training and

heaven forbid they've ever heard of anything like visual supports or a

communication device!) Again, the accommodations may not be the Hilton, but

I think it would pretty much serve the same purpose as his many visits all

over the country to look at power plants and the like.

Should we invite him? Wouldn't you love for him to say " no " at this

particular point in time? Wouldn't THAT look great for him?

nna

[Guest guest]

I LOVE it!!

A hand-delivered invitation would be even better!

[Guest guest]

Neat idea Aliza! My fear is that if DFPS got a hold of it and found out

what family's home the pictures came from it could create problems. We

all know how life can be when a family member is on the spectrum, but

I'm afraid DFPS might not take that into consideration.

Tonya

Re: re: doing things to get Barton's

attention- AUTISM TRIP

nna,

Here's an idea: Let's create a travel brochure! We can then send it

to all members of Congress, local governments, etc. I'm not joking, and

I think it would be pretty poignant.

It would be a beautiful tri-fold piece on glossy paper with photos of

the luxury accomodations he/they would receive:

Open floorplan: doors off hinges, holes in walls, etc.

Original artwork: feces-smeared walls. Or in our case, blood dotted

everywhere- my daughter has an obsession with blood, so she compulsively

picks at sores and dots the blood everywhere. It's a striking contrast

on white walls...

High security: multiple locks/deadbolts on doors for those of us

whose kids are escapers.

Avant Garde Performances: Constant screaming, self-injury, etc.

Delicious cuisine: GF/CF, anyone? Fistfulls of supplements?

Monochromatic meals?

R & R: Never.

What do you think?

Aliza

nna Bond wrote:

Someone mentioned in another post a day or so ago about how to

guide

Barton's attention and the fact that he knows little to nothing about

autism. He has all these special interest groups that have supplied him

with

trips all over everywhere to research and highlight their issues.

I think we need (as a special interest group) to invite Mr. Barton on a

trip

for autism...how about some folks invite him for a weekend to spend some

time at your home with your family and child with autism so he can see

what

exactly we are talking about and what his decisions are affecting? I

have a

couple of friends who have kids with lots of self-injurious behavior,

who

smear feces, who can't communicate, and whose schools are doing nothing

to

help them that I would LOVE for him to visit! I would even be happy to

supply the transportation. The accommodations might not be what he is

used

to (this family has holes in most of their doors and they've had to take

many doors off the hinges, like in the bathroom, so it won't be the

Marriott).

Or, maybe he would like to visit some of our lovely group homes here in

Texas that have residents with autism? Again, I have some friends who

have

told me wonderful stories about abuse to their children who are

" noncompliant " (even though no one who works there has any training and

heaven forbid they've ever heard of anything like visual supports or a

communication device!) Again, the accommodations may not be the Hilton,

but

I think it would pretty much serve the same purpose as his many visits

all

over the country to look at power plants and the like.

Should we invite him? Wouldn't you love for him to say " no " at this

particular point in time? Wouldn't THAT look great for him?

nna

[Guest guest]

Well, we put in a disclaimer that the photos are merely " representations " , or

computer generated images, not actual photos of anybody's house...

We don't have to endanger anybody's family, but I think something like this

would smack you in the face with reality. What could be more eye-opening?

Tonya Hettler wrote:

Neat idea Aliza! My fear is that if DFPS got a hold of it and found

out

what family's home the pictures came from it could create problems. We

all know how life can be when a family member is on the spectrum, but

I'm afraid DFPS might not take that into consideration.

Tonya

Re: re: doing things to get Barton's

attention- AUTISM TRIP

nna,

Here's an idea: Let's create a travel brochure! We can then send it

to all members of Congress, local governments, etc. I'm not joking, and

I think it would be pretty poignant.

It would be a beautiful tri-fold piece on glossy paper with photos of

the luxury accomodations he/they would receive:

Open floorplan: doors off hinges, holes in walls, etc.

Original artwork: feces-smeared walls. Or in our case, blood dotted

everywhere- my daughter has an obsession with blood, so she compulsively

picks at sores and dots the blood everywhere. It's a striking contrast

on white walls...

High security: multiple locks/deadbolts on doors for those of us

whose kids are escapers.

Avant Garde Performances: Constant screaming, self-injury, etc.

Delicious cuisine: GF/CF, anyone? Fistfulls of supplements?

Monochromatic meals?

R & R: Never.

What do you think?

Aliza

nna Bond wrote:

Someone mentioned in another post a day or so ago about how to

guide

Barton's attention and the fact that he knows little to nothing about

autism. He has all these special interest groups that have supplied him

with

trips all over everywhere to research and highlight their issues.

I think we need (as a special interest group) to invite Mr. Barton on a

trip

for autism...how about some folks invite him for a weekend to spend some

time at your home with your family and child with autism so he can see

what

exactly we are talking about and what his decisions are affecting? I

have a

couple of friends who have kids with lots of self-injurious behavior,

who

smear feces, who can't communicate, and whose schools are doing nothing

to

help them that I would LOVE for him to visit! I would even be happy to

supply the transportation. The accommodations might not be what he is

used

to (this family has holes in most of their doors and they've had to take

many doors off the hinges, like in the bathroom, so it won't be the

Marriott).

Or, maybe he would like to visit some of our lovely group homes here in

Texas that have residents with autism? Again, I have some friends who

have

told me wonderful stories about abuse to their children who are

" noncompliant " (even though no one who works there has any training and

heaven forbid they've ever heard of anything like visual supports or a

communication device!) Again, the accommodations may not be the Hilton,

but

I think it would pretty much serve the same purpose as his many visits

all

over the country to look at power plants and the like.

Should we invite him? Wouldn't you love for him to say " no " at this

particular point in time? Wouldn't THAT look great for him?

nna

[Guest guest]

It is a great idea!

Tonya

Re: re: doing things to get Barton's

attention- AUTISM TRIP

nna,

Here's an idea: Let's create a travel brochure! We can then send it

to all members of Congress, local governments, etc. I'm not joking, and

I think it would be pretty poignant.

It would be a beautiful tri-fold piece on glossy paper with photos of

the luxury accomodations he/they would receive:

Open floorplan: doors off hinges, holes in walls, etc.

Original artwork: feces-smeared walls. Or in our case, blood dotted

everywhere- my daughter has an obsession with blood, so she compulsively

picks at sores and dots the blood everywhere. It's a striking contrast

on white walls...

High security: multiple locks/deadbolts on doors for those of us

whose kids are escapers.

Avant Garde Performances: Constant screaming, self-injury, etc.

Delicious cuisine: GF/CF, anyone? Fistfulls of supplements?

Monochromatic meals?

R & R: Never.

What do you think?

Aliza

nna Bond wrote:

Someone mentioned in another post a day or so ago about how to

guide

Barton's attention and the fact that he knows little to nothing about

autism. He has all these special interest groups that have supplied him

with

trips all over everywhere to research and highlight their issues.

I think we need (as a special interest group) to invite Mr. Barton on a

trip

for autism...how about some folks invite him for a weekend to spend some

time at your home with your family and child with autism so he can see

what

exactly we are talking about and what his decisions are affecting? I

have a

couple of friends who have kids with lots of self-injurious behavior,

who

smear feces, who can't communicate, and whose schools are doing nothing

to

help them that I would LOVE for him to visit! I would even be happy to

supply the transportation. The accommodations might not be what he is

used

to (this family has holes in most of their doors and they've had to take

many doors off the hinges, like in the bathroom, so it won't be the

Marriott).

Or, maybe he would like to visit some of our lovely group homes here in

Texas that have residents with autism? Again, I have some friends who

have

told me wonderful stories about abuse to their children who are

" noncompliant " (even though no one who works there has any training and

heaven forbid they've ever heard of anything like visual supports or a

communication device!) Again, the accommodations may not be the Hilton,

but

I think it would pretty much serve the same purpose as his many visits

all

over the country to look at power plants and the like.

Should we invite him? Wouldn't you love for him to say " no " at this

particular point in time? Wouldn't THAT look great for him?

nna

[Guest guest]

I can write copy and so some basic layout, but I would definitely need some

help. if anybody else thinks this is worth investing time and a little bit of

money... please email me.

Tonya Hettler wrote: It is a great idea!

Tonya

Re: re: doing things to get Barton's

attention- AUTISM TRIP

nna,

Here's an idea: Let's create a travel brochure! We can then send it

to all members of Congress, local governments, etc. I'm not joking, and

I think it would be pretty poignant.

It would be a beautiful tri-fold piece on glossy paper with photos of

the luxury accomodations he/they would receive:

Open floorplan: doors off hinges, holes in walls, etc.

Original artwork: feces-smeared walls. Or in our case, blood dotted

everywhere- my daughter has an obsession with blood, so she compulsively

picks at sores and dots the blood everywhere. It's a striking contrast

on white walls...

High security: multiple locks/deadbolts on doors for those of us

whose kids are escapers.

Avant Garde Performances: Constant screaming, self-injury, etc.

Delicious cuisine: GF/CF, anyone? Fistfulls of supplements?

Monochromatic meals?

R & R: Never.

What do you think?

Aliza

nna Bond wrote:

Someone mentioned in another post a day or so ago about how to

guide

Barton's attention and the fact that he knows little to nothing about

autism. He has all these special interest groups that have supplied him

with

trips all over everywhere to research and highlight their issues.

I think we need (as a special interest group) to invite Mr. Barton on a

trip

for autism...how about some folks invite him for a weekend to spend some

time at your home with your family and child with autism so he can see

what

exactly we are talking about and what his decisions are affecting? I

have a

couple of friends who have kids with lots of self-injurious behavior,

who

smear feces, who can't communicate, and whose schools are doing nothing

to

help them that I would LOVE for him to visit! I would even be happy to

supply the transportation. The accommodations might not be what he is

used

to (this family has holes in most of their doors and they've had to take

many doors off the hinges, like in the bathroom, so it won't be the

Marriott).

Or, maybe he would like to visit some of our lovely group homes here in

Texas that have residents with autism? Again, I have some friends who

have

told me wonderful stories about abuse to their children who are

" noncompliant " (even though no one who works there has any training and

heaven forbid they've ever heard of anything like visual supports or a

communication device!) Again, the accommodations may not be the Hilton,

but

I think it would pretty much serve the same purpose as his many visits

all

over the country to look at power plants and the like.

Should we invite him? Wouldn't you love for him to say " no " at this

particular point in time? Wouldn't THAT look great for him?

nna

[Guest guest]

I have spent the last 9 months working on advertising for candidates for

local office here, and I would absolutely LOVE to put together a brochure.

Someone email me some pictures, and I will use Photoshop and put it

together!

Anne

-- Re: re: doing things to get Barton's

attention- AUTISM TRIP

nna,

Here's an idea: Let's create a travel brochure! We can then send it to all

members of Congress, local governments, etc. I'm not joking, and I think it

would be pretty poignant.

It would be a beautiful tri-fold piece on glossy paper with photos of the

luxury accomodations he/they would receive:

Open floorplan: doors off hinges, holes in walls, etc.

Original artwork: feces-smeared walls. Or in our case, blood dotted

everywhere- my daughter has an obsession with blood, so she compulsively

picks at sores and dots the blood everywhere. It's a striking contrast on

white walls...

High security: multiple locks/deadbolts on doors for those of us whose kids

are escapers.

Avant Garde Performances: Constant screaming, self-injury, etc.

Delicious cuisine: GF/CF, anyone? Fistfulls of supplements? Monochromatic

meals?

R & R: Never.

What do you think?

Aliza

nna Bond wrote:

Someone mentioned in another post a day or so ago about how to guide

Barton's attention and the fact that he knows little to nothing about

autism. He has all these special interest groups that have supplied him with

trips all over everywhere to research and highlight their issues.

I think we need (as a special interest group) to invite Mr. Barton on a trip

for autism...how about some folks invite him for a weekend to spend some

time at your home with your family and child with autism so he can see what

exactly we are talking about and what his decisions are affecting? I have a

couple of friends who have kids with lots of self-injurious behavior, who

smear feces, who can't communicate, and whose schools are doing nothing to

help them that I would LOVE for him to visit! I would even be happy to

supply the transportation. The accommodations might not be what he is used

to (this family has holes in most of their doors and they've had to take

many doors off the hinges, like in the bathroom, so it won't be the

Marriott).

Or, maybe he would like to visit some of our lovely group homes here in

Texas that have residents with autism? Again, I have some friends who have

told me wonderful stories about abuse to their children who are

" noncompliant " (even though no one who works there has any training and

heaven forbid they've ever heard of anything like visual supports or a

communication device!) Again, the accommodations may not be the Hilton, but

I think it would pretty much serve the same purpose as his many visits all

over the country to look at power plants and the like.

Should we invite him? Wouldn't you love for him to say " no " at this

particular point in time? Wouldn't THAT look great for him?

nna

[Guest guest]

We can use random pictures from different homes as " examples "

Anne

-- Re: re: doing things to get Barton's

attention- AUTISM TRIP

nna,

Here's an idea: Let's create a travel brochure! We can then send it

to all members of Congress, local governments, etc. I'm not joking, and

I think it would be pretty poignant.

It would be a beautiful tri-fold piece on glossy paper with photos of

the luxury accomodations he/they would receive:

Open floorplan: doors off hinges, holes in walls, etc.

Original artwork: feces-smeared walls. Or in our case, blood dotted

everywhere- my daughter has an obsession with blood, so she compulsively

picks at sores and dots the blood everywhere. It's a striking contrast

on white walls...

High security: multiple locks/deadbolts on doors for those of us

whose kids are escapers.

Avant Garde Performances: Constant screaming, self-injury, etc.

Delicious cuisine: GF/CF, anyone? Fistfulls of supplements?

Monochromatic meals?

R & R: Never.

What do you think?

Aliza

nna Bond wrote:

Someone mentioned in another post a day or so ago about how to

guide

Barton's attention and the fact that he knows little to nothing about

autism. He has all these special interest groups that have supplied him

with

trips all over everywhere to research and highlight their issues.

I think we need (as a special interest group) to invite Mr. Barton on a

trip

for autism...how about some folks invite him for a weekend to spend some

time at your home with your family and child with autism so he can see

what

exactly we are talking about and what his decisions are affecting? I

have a

couple of friends who have kids with lots of self-injurious behavior,

who

smear feces, who can't communicate, and whose schools are doing nothing

to

help them that I would LOVE for him to visit! I would even be happy to

supply the transportation. The accommodations might not be what he is

used

to (this family has holes in most of their doors and they've had to take

many doors off the hinges, like in the bathroom, so it won't be the

Marriott).

Or, maybe he would like to visit some of our lovely group homes here in

Texas that have residents with autism? Again, I have some friends who

have

told me wonderful stories about abuse to their children who are

" noncompliant " (even though no one who works there has any training and

heaven forbid they've ever heard of anything like visual supports or a

communication device!) Again, the accommodations may not be the Hilton,

but

I think it would pretty much serve the same purpose as his many visits

all

over the country to look at power plants and the like.

Should we invite him? Wouldn't you love for him to say " no " at this

particular point in time? Wouldn't THAT look great for him?

nna

[Guest guest]

I would hate to go against the better judgment of our group's " elders " , who are

obviously wiser than I.

We talk about " if they only knew... " . If they only had a glimpse of what

actually goes on in our lives. We can illustrate it for them. The fact that we

can tie this into Barton's penchant for free trips is icing on the cake, as far

as I'm concerned. It can kill several birds with one stone, so to speak.

Anyway, I would like to do this WITH the blessings of the tribe chiefs. I

mean , , Candis, Tonya, nna, Geraldine, et. al. I know I've

left out a lot of important people here, but you get the picture.

Anne wrote:

We can use random pictures from different homes as " examples "

Anne

-- Re: re: doing things to get Barton's

attention- AUTISM TRIP

nna,

Here's an idea: Let's create a travel brochure! We can then send it

to all members of Congress, local governments, etc. I'm not joking, and

I think it would be pretty poignant.

It would be a beautiful tri-fold piece on glossy paper with photos of

the luxury accomodations he/they would receive:

Open floorplan: doors off hinges, holes in walls, etc.

Original artwork: feces-smeared walls. Or in our case, blood dotted

everywhere- my daughter has an obsession with blood, so she compulsively

picks at sores and dots the blood everywhere. It's a striking contrast

on white walls...

High security: multiple locks/deadbolts on doors for those of us

whose kids are escapers.

Avant Garde Performances: Constant screaming, self-injury, etc.

Delicious cuisine: GF/CF, anyone? Fistfulls of supplements?

Monochromatic meals?

R & R: Never.

What do you think?

Aliza

nna Bond wrote:

Someone mentioned in another post a day or so ago about how to

guide

Barton's attention and the fact that he knows little to nothing about

autism. He has all these special interest groups that have supplied him

with

trips all over everywhere to research and highlight their issues.

I think we need (as a special interest group) to invite Mr. Barton on a

trip

for autism...how about some folks invite him for a weekend to spend some

time at your home with your family and child with autism so he can see

what

exactly we are talking about and what his decisions are affecting? I

have a

couple of friends who have kids with lots of self-injurious behavior,

who

smear feces, who can't communicate, and whose schools are doing nothing

to

help them that I would LOVE for him to visit! I would even be happy to

supply the transportation. The accommodations might not be what he is

used

to (this family has holes in most of their doors and they've had to take

many doors off the hinges, like in the bathroom, so it won't be the

Marriott).

Or, maybe he would like to visit some of our lovely group homes here in

Texas that have residents with autism? Again, I have some friends who

have

told me wonderful stories about abuse to their children who are

" noncompliant " (even though no one who works there has any training and

heaven forbid they've ever heard of anything like visual supports or a

communication device!) Again, the accommodations may not be the Hilton,

but

I think it would pretty much serve the same purpose as his many visits

all

over the country to look at power plants and the like.

Should we invite him? Wouldn't you love for him to say " no " at this

particular point in time? Wouldn't THAT look great for him?

nna

[Guest guest]

I can understand what you are saying but they would be in a big mess if they

tried to fool with these parents....there are too many of us, they could

never handle taking care of our kids. It would be good if it could be done

with many different families putting in their own pictures and they wouldn't

know who they belonged to.

Jan

-- Re: re: doing things to get Barton's

attention- AUTISM TRIP

nna,

Here's an idea: Let's create a travel brochure! We can then send it

to all members of Congress, local governments, etc. I'm not joking, and

I think it would be pretty poignant.

It would be a beautiful tri-fold piece on glossy paper with photos of

the luxury accomodations he/they would receive:

Open floorplan: doors off hinges, holes in walls, etc.

Original artwork: feces-smeared walls. Or in our case, blood dotted

everywhere- my daughter has an obsession with blood, so she compulsively

picks at sores and dots the blood everywhere. It's a striking contrast

on white walls...

High security: multiple locks/deadbolts on doors for those of us

whose kids are escapers.

Avant Garde Performances: Constant screaming, self-injury, etc.

Delicious cuisine: GF/CF, anyone? Fistfulls of supplements?

Monochromatic meals?

R & R: Never.

What do you think?

Aliza

nna Bond wrote:

Someone mentioned in another post a day or so ago about how to

guide

Barton's attention and the fact that he knows little to nothing about

autism. He has all these special interest groups that have supplied him

with

trips all over everywhere to research and highlight their issues.

I think we need (as a special interest group) to invite Mr. Barton on a

trip

for autism...how about some folks invite him for a weekend to spend some

time at your home with your family and child with autism so he can see

what

exactly we are talking about and what his decisions are affecting? I

have a

couple of friends who have kids with lots of self-injurious behavior,

who

smear feces, who can't communicate, and whose schools are doing nothing

to

help them that I would LOVE for him to visit! I would even be happy to

supply the transportation. The accommodations might not be what he is

used

to (this family has holes in most of their doors and they've had to take

many doors off the hinges, like in the bathroom, so it won't be the

Marriott).

Or, maybe he would like to visit some of our lovely group homes here in

Texas that have residents with autism? Again, I have some friends who

have

told me wonderful stories about abuse to their children who are

" noncompliant " (even though no one who works there has any training and

heaven forbid they've ever heard of anything like visual supports or a

communication device!) Again, the accommodations may not be the Hilton,

but

I think it would pretty much serve the same purpose as his many visits

all

over the country to look at power plants and the like.

Should we invite him? Wouldn't you love for him to say " no " at this

particular point in time? Wouldn't THAT look great for him?

nna

[Guest guest]

Exactly that is a great idea.....the whole thing.

Jan

-- Re: re: doing things to get Barton's

attention- AUTISM TRIP

nna,

Here's an idea: Let's create a travel brochure! We can then send it

to all members of Congress, local governments, etc. I'm not joking, and

I think it would be pretty poignant.

It would be a beautiful tri-fold piece on glossy paper with photos of

the luxury accomodations he/they would receive:

Open floorplan: doors off hinges, holes in walls, etc.

Original artwork: feces-smeared walls. Or in our case, blood dotted

everywhere- my daughter has an obsession with blood, so she compulsively

picks at sores and dots the blood everywhere. It's a striking contrast

on white walls...

High security: multiple locks/deadbolts on doors for those of us

whose kids are escapers.

Avant Garde Performances: Constant screaming, self-injury, etc.

Delicious cuisine: GF/CF, anyone? Fistfulls of supplements?

Monochromatic meals?

R & R: Never.

What do you think?

Aliza

nna Bond wrote:

Someone mentioned in another post a day or so ago about how to

guide

Barton's attention and the fact that he knows little to nothing about

autism. He has all these special interest groups that have supplied him

with

trips all over everywhere to research and highlight their issues.

I think we need (as a special interest group) to invite Mr. Barton on a

trip

for autism...how about some folks invite him for a weekend to spend some

time at your home with your family and child with autism so he can see

what

exactly we are talking about and what his decisions are affecting? I

have a

couple of friends who have kids with lots of self-injurious behavior,

who

smear feces, who can't communicate, and whose schools are doing nothing

to

help them that I would LOVE for him to visit! I would even be happy to

supply the transportation. The accommodations might not be what he is

used

to (this family has holes in most of their doors and they've had to take

many doors off the hinges, like in the bathroom, so it won't be the

Marriott).

Or, maybe he would like to visit some of our lovely group homes here in

Texas that have residents with autism? Again, I have some friends who

have

told me wonderful stories about abuse to their children who are

" noncompliant " (even though no one who works there has any training and

heaven forbid they've ever heard of anything like visual supports or a

communication device!) Again, the accommodations may not be the Hilton,

but

I think it would pretty much serve the same purpose as his many visits

all

over the country to look at power plants and the like.

Should we invite him? Wouldn't you love for him to say " no " at this

particular point in time? Wouldn't THAT look great for him?

nna

[Guest guest]

Well, I can certainly supply some hole-in-the-door pictures as well as some

blood-smeared walls (my daughter does the same thing as yours, Aliza!)

nna

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5:30 PM

[Guest guest]

Actually, a short explanation of what our lives entail along to some of them

might help too, along with or without pictures and let them see what every

day is like. No one without a disabled child has any idea what it is like.

My husband and his late wife raised her grandson with Down Syndrome. He was

born with a hole in his heart and no rectum. They had to do surgery for a

colostomy and the heart fairly close and then deal with all of that in a

newborn. Even we might not be able to understand what they dealt with daily

Can't you see all of these law makers dealing with any of this? LOL! By

the way, my husband is step father to my son and that isn't easy to find

someone as good as he is to come into this kind of home and be able to deal

with all the issues. In fact he deals with it wonderfully. I thank God for

him everyday. I know divorce is a big thing with our families.

Jan

-- Re: re: doing things to get Barton's

attention- AUTISM TRIP

nna,

Here's an idea: Let's create a travel brochure! We can then send it

to all members of Congress, local governments, etc. I'm not joking, and

I think it would be pretty poignant.

It would be a beautiful tri-fold piece on glossy paper with photos of

the luxury accomodations he/they would receive:

Open floorplan: doors off hinges, holes in walls, etc.

Original artwork: feces-smeared walls. Or in our case, blood dotted

everywhere- my daughter has an obsession with blood, so she compulsively

picks at sores and dots the blood everywhere. It's a striking contrast

on white walls...

High security: multiple locks/deadbolts on doors for those of us

whose kids are escapers.

Avant Garde Performances: Constant screaming, self-injury, etc.

Delicious cuisine: GF/CF, anyone? Fistfulls of supplements?

Monochromatic meals?

R & R: Never.

What do you think?

Aliza

nna Bond wrote:

Someone mentioned in another post a day or so ago about how to

guide

Barton's attention and the fact that he knows little to nothing about

autism. He has all these special interest groups that have supplied him

with

trips all over everywhere to research and highlight their issues.

I think we need (as a special interest group) to invite Mr. Barton on a

trip

for autism...how about some folks invite him for a weekend to spend some

time at your home with your family and child with autism so he can see

what

exactly we are talking about and what his decisions are affecting? I

have a

couple of friends who have kids with lots of self-injurious behavior,

who

smear feces, who can't communicate, and whose schools are doing nothing

to

help them that I would LOVE for him to visit! I would even be happy to

supply the transportation. The accommodations might not be what he is

used

to (this family has holes in most of their doors and they've had to take

many doors off the hinges, like in the bathroom, so it won't be the

Marriott).

Or, maybe he would like to visit some of our lovely group homes here in

Texas that have residents with autism? Again, I have some friends who

have

told me wonderful stories about abuse to their children who are

" noncompliant " (even though no one who works there has any training and

heaven forbid they've ever heard of anything like visual supports or a

communication device!) Again, the accommodations may not be the Hilton,

but

I think it would pretty much serve the same purpose as his many visits

all

over the country to look at power plants and the like.

Should we invite him? Wouldn't you love for him to say " no " at this

particular point in time? Wouldn't THAT look great for him?

nna

[Guest guest]

Shoot, we're just moms too! You've got my blessing as long as we can

protect the families that allow the photographs. I'm attending a

workshop Mon-Tues but will be happy to help after that!

Tonya

Re: re: doing things to get Barton's

attention- AUTISM TRIP

nna,

Here's an idea: Let's create a travel brochure! We can then send it

to all members of Congress, local governments, etc. I'm not joking, and

I think it would be pretty poignant.

It would be a beautiful tri-fold piece on glossy paper with photos of

the luxury accomodations he/they would receive:

Open floorplan: doors off hinges, holes in walls, etc.

Original artwork: feces-smeared walls. Or in our case, blood dotted

everywhere- my daughter has an obsession with blood, so she compulsively

picks at sores and dots the blood everywhere. It's a striking contrast

on white walls...

High security: multiple locks/deadbolts on doors for those of us

whose kids are escapers.

Avant Garde Performances: Constant screaming, self-injury, etc.

Delicious cuisine: GF/CF, anyone? Fistfulls of supplements?

Monochromatic meals?

R & R: Never.

What do you think?

Aliza

nna Bond wrote:

Someone mentioned in another post a day or so ago about how to

guide

Barton's attention and the fact that he knows little to nothing about

autism. He has all these special interest groups that have supplied him

with

trips all over everywhere to research and highlight their issues.

I think we need (as a special interest group) to invite Mr. Barton on a

trip

for autism...how about some folks invite him for a weekend to spend some

time at your home with your family and child with autism so he can see

what

exactly we are talking about and what his decisions are affecting? I

have a

couple of friends who have kids with lots of self-injurious behavior,

who

smear feces, who can't communicate, and whose schools are doing nothing

to

help them that I would LOVE for him to visit! I would even be happy to

supply the transportation. The accommodations might not be what he is

used

to (this family has holes in most of their doors and they've had to take

many doors off the hinges, like in the bathroom, so it won't be the

Marriott).

Or, maybe he would like to visit some of our lovely group homes here in

Texas that have residents with autism? Again, I have some friends who

have

told me wonderful stories about abuse to their children who are

" noncompliant " (even though no one who works there has any training and

heaven forbid they've ever heard of anything like visual supports or a

communication device!) Again, the accommodations may not be the Hilton,

but

I think it would pretty much serve the same purpose as his many visits

all

over the country to look at power plants and the like.

Should we invite him? Wouldn't you love for him to say " no " at this

particular point in time? Wouldn't THAT look great for him?

nna

[Guest guest]

Sometimes they do mess with them. I know a family whose child was

removed because of the shape the home was in. The child was moved 8

times in the 5 months that DFPS had custody and was almost moved to a

town over 100 miles away because none of the local foster homes could

handle the behaviors. The child was also put on some VERY strong

anti-psychotics (at age 5!) with the parents finding out after the fact.

Tonya

Re: re: doing things to get Barton's

attention- AUTISM TRIP

nna,

Here's an idea: Let's create a travel brochure! We can then send it

to all members of Congress, local governments, etc. I'm not joking, and

I think it would be pretty poignant.

It would be a beautiful tri-fold piece on glossy paper with photos of

the luxury accomodations he/they would receive:

Open floorplan: doors off hinges, holes in walls, etc.

Original artwork: feces-smeared walls. Or in our case, blood dotted

everywhere- my daughter has an obsession with blood, so she compulsively

picks at sores and dots the blood everywhere. It's a striking contrast

on white walls...

High security: multiple locks/deadbolts on doors for those of us

whose kids are escapers.

Avant Garde Performances: Constant screaming, self-injury, etc.

Delicious cuisine: GF/CF, anyone? Fistfulls of supplements?

Monochromatic meals?

R & R: Never.

What do you think?

Aliza

nna Bond wrote:

Someone mentioned in another post a day or so ago about how to

guide

Barton's attention and the fact that he knows little to nothing about

autism. He has all these special interest groups that have supplied him

with

trips all over everywhere to research and highlight their issues.

I think we need (as a special interest group) to invite Mr. Barton on a

trip

for autism...how about some folks invite him for a weekend to spend some

time at your home with your family and child with autism so he can see

what

exactly we are talking about and what his decisions are affecting? I

have a

couple of friends who have kids with lots of self-injurious behavior,

who

smear feces, who can't communicate, and whose schools are doing nothing

to

help them that I would LOVE for him to visit! I would even be happy to

supply the transportation. The accommodations might not be what he is

used

to (this family has holes in most of their doors and they've had to take

many doors off the hinges, like in the bathroom, so it won't be the

Marriott).

Or, maybe he would like to visit some of our lovely group homes here in

Texas that have residents with autism? Again, I have some friends who

have

told me wonderful stories about abuse to their children who are

" noncompliant " (even though no one who works there has any training and

heaven forbid they've ever heard of anything like visual supports or a

communication device!) Again, the accommodations may not be the Hilton,

but

I think it would pretty much serve the same purpose as his many visits

all

over the country to look at power plants and the like.

Should we invite him? Wouldn't you love for him to say " no " at this

particular point in time? Wouldn't THAT look great for him?

nna

[Guest guest]

What if you used tapes of children at the beginnning of therapy and then show

there tapes of a year later. I know alot of therapist's tape their first

sessions.

Re: [Texas-Autism- Advocacy] re: doing things to get Barton's

attention- AUTISM TRIP

nna,

Here's an idea: Let's create a travel brochure! We can then send it

to all members of Congress, local governments, etc. I'm not joking, and

I think it would be pretty poignant.

It would be a beautiful tri-fold piece on glossy paper with photos of

the luxury accomodations he/they would receive:

Open floorplan: doors off hinges, holes in walls, etc.

Original artwork: feces-smeared walls. Or in our case, blood dotted

everywhere- my daughter has an obsession with blood, so she compulsively

picks at sores and dots the blood everywhere. It's a striking contrast

on white walls...

High security: multiple locks/deadbolts on doors for those of us

whose kids are escapers.

Avant Garde Performances: Constant screaming, self-injury, etc.

Delicious cuisine: GF/CF, anyone? Fistfulls of supplements?

Monochromatic meals?

R & R: Never.

What do you think?

Aliza

nna Bond <mbond@wareNetw orks.net> wrote:

Someone mentioned in another post a day or so ago about how to

guide

Barton's attention and the fact that he knows little to nothing about

autism. He has all these special interest groups that have supplied him

with

trips all over everywhere to research and highlight their issues.

I think we need (as a special interest group) to invite Mr. Barton on a

trip

for autism...how about some folks invite him for a weekend to spend some

time at your home with your family and child with autism so he can see

what

exactly we are talking about and what his decisions are affecting? I

have a

couple of friends who have kids with lots of self-injurious behavior,

who

smear feces, who can't communicate, and whose schools are doing nothing

to

help them that I would LOVE for him to visit! I would even be happy to

supply the transportation. The accommodations might not be what he is

used

to (this family has holes in most of their doors and they've had to take

many doors off the hinges, like in the bathroom, so it won't be the

Marriott).

Or, maybe he would like to visit some of our lovely group homes here in

Texas that have residents with autism? Again, I have some friends who

have

told me wonderful stories about abuse to their children who are

" noncompliant " (even though no one who works there has any training and

heaven forbid they've ever heard of anything like visual supports or a

communication device!) Again, the accommodations may not be the Hilton,

but

I think it would pretty much serve the same purpose as his many visits

all

over the country to look at power plants and the like.

Should we invite him? Wouldn't you love for him to say " no " at this

particular point in time? Wouldn't THAT look great for him?

nna

[Guest guest]

Years ago when Tristan was diagnosed I joined a number of autism groups. On one

of those groups we had a fun thread about autism blinds (you know like window

blinds). They were joking about selling them. I have never taken a picture of

the many blinds we replaced, but suffice it to say there wasn't much left of

them, lol.

C.

[Guest guest]

>Sometimes they do mess with them. I know a family whose child was

removed because of the shape the home was in. The child was moved 8

times in the 5 months that DFPS had custody and was almost moved to a

town over 100 miles away because none of the local foster homes could

handle the behaviors. The child was also put on some VERY strong

anti-psychotics (at age 5!) with the parents finding out after the fact.<

Don't get me started! We have had this discussion before. Carole Strayhorn

found out a huge majority of foster kids who had no disability were on a

cocktail of drugs just because they cryed to go home! She brought this out in

the media a couple of years ago. The CPS does not have proper training in

autism and they do remove kids and do just as you mentioned in the above post.

Sadly kids with autism end up in lock down facilities, on drugs where they also

do not meet their needs or care about our kids. This is one more area we need

to advocate and educate.

C.

[Guest guest]

I don't think that a brochure would convey enough of what you want to

portray.

I personally have found before and after video clips of children to be the

most powerful.

Perhaps something along the line of short 45 second clip of child out of

control with a caption of the doctors told us XXX would never learn, would

need to be institutionalized. This immediately followed by 1 1/2 minute of

the child after therapy (ABA, or DAN! or whatever) behaving appropriately

with a caption of Child's Name, after $XXX,XXX of therapy, $XX,XXX of which

was not covered by insurance.

Have about 10 of these, and that will begin to get the message across.

Also, I think the big point that needs to be made is that children are being

given a very poor prognosis when, with the right therapy most can make

progress. The majority of doctors just don't know right now and

unfortunately, many don't care to know. We must enlighten this mindset.

There are developmental pediatricians who still in this day and age

recommend against ABA.

S.

Re: re: doing things to get Barton's

attention- AUTISM TRIP

nna,

Here's an idea: Let's create a travel brochure! We can then send it

to all members of Congress, local governments, etc. I'm not joking, and

I think it would be pretty poignant.

It would be a beautiful tri-fold piece on glossy paper with photos of

the luxury accomodations he/they would receive:

Open floorplan: doors off hinges, holes in walls, etc.

Original artwork: feces-smeared walls. Or in our case, blood dotted

everywhere- my daughter has an obsession with blood, so she compulsively

picks at sores and dots the blood everywhere. It's a striking contrast

on white walls...

High security: multiple locks/deadbolts on doors for those of us

whose kids are escapers.

Avant Garde Performances: Constant screaming, self-injury, etc.

Delicious cuisine: GF/CF, anyone? Fistfulls of supplements?

Monochromatic meals?

R & R: Never.

What do you think?

Aliza

nna Bond wrote:

Someone mentioned in another post a day or so ago about how to

guide

Barton's attention and the fact that he knows little to nothing about

autism. He has all these special interest groups that have supplied him

with

trips all over everywhere to research and highlight their issues.

I think we need (as a special interest group) to invite Mr. Barton on a

trip

for autism...how about some folks invite him for a weekend to spend some

time at your home with your family and child with autism so he can see

what

exactly we are talking about and what his decisions are affecting? I

have a

couple of friends who have kids with lots of self-injurious behavior,

who

smear feces, who can't communicate, and whose schools are doing nothing

to

help them that I would LOVE for him to visit! I would even be happy to

supply the transportation. The accommodations might not be what he is

used

to (this family has holes in most of their doors and they've had to take

many doors off the hinges, like in the bathroom, so it won't be the

Marriott).

Or, maybe he would like to visit some of our lovely group homes here in

Texas that have residents with autism? Again, I have some friends who

have

told me wonderful stories about abuse to their children who are

" noncompliant " (even though no one who works there has any training and

heaven forbid they've ever heard of anything like visual supports or a

communication device!) Again, the accommodations may not be the Hilton,

but

I think it would pretty much serve the same purpose as his many visits

all

over the country to look at power plants and the like.

Should we invite him? Wouldn't you love for him to say " no " at this

particular point in time? Wouldn't THAT look great for him?

nna

[Guest guest]

Why don't we direct him to the Autism Speaks website

http://www.autismspeaks.org/be_informed.php

Perhaps we can send Barton a copy of the video " Autism Every Day " (someone could

request a copy from Autism Speaks - I couldn't find it on their website). That

is a true representation of the challenges we face daily.

Maggie

Re: [Texas-Autism- Advocacy] re: doing things to get Barton's

attention- AUTISM TRIP

nna,

Here's an idea: Let's create a travel brochure! We can then send it

to all members of Congress, local governments, etc. I'm not joking, and

I think it would be pretty poignant.

It would be a beautiful tri-fold piece on glossy paper with photos of

the luxury accomodations he/they would receive:

Open floorplan: doors off hinges, holes in walls, etc.

Original artwork: feces-smeared walls. Or in our case, blood dotted

everywhere- my daughter has an obsession with blood, so she compulsively

picks at sores and dots the blood everywhere. It's a striking contrast

on white walls...

High security: multiple locks/deadbolts on doors for those of us

whose kids are escapers.

Avant Garde Performances: Constant screaming, self-injury, etc.

Delicious cuisine: GF/CF, anyone? Fistfulls of supplements?

Monochromatic meals?

R & R: Never.

What do you think?

Aliza

nna Bond <mbond@wareNetw orks.net> wrote:

Someone mentioned in another post a day or so ago about how to

guide

Barton's attention and the fact that he knows little to nothing about

autism. He has all these special interest groups that have supplied him

with

trips all over everywhere to research and highlight their issues.

I think we need (as a special interest group) to invite Mr. Barton on a

trip

for autism...how about some folks invite him for a weekend to spend some

time at your home with your family and child with autism so he can see

what

exactly we are talking about and what his decisions are affecting? I

have a

couple of friends who have kids with lots of self-injurious behavior,

who

smear feces, who can't communicate, and whose schools are doing nothing

to

help them that I would LOVE for him to visit! I would even be happy to

supply the transportation. The accommodations might not be what he is

used

to (this family has holes in most of their doors and they've had to take

many doors off the hinges, like in the bathroom, so it won't be the

Marriott).

Or, maybe he would like to visit some of our lovely group homes here in

Texas that have residents with autism? Again, I have some friends who

have

told me wonderful stories about abuse to their children who are

" noncompliant " (even though no one who works there has any training and

heaven forbid they've ever heard of anything like visual supports or a

communication device!) Again, the accommodations may not be the Hilton,

but

I think it would pretty much serve the same purpose as his many visits

all

over the country to look at power plants and the like.

Should we invite him? Wouldn't you love for him to say " no " at this

particular point in time? Wouldn't THAT look great for him?

nna

[Guest guest]

of Autism Speaks was on the Martha show, and she

said that she other CAA supporters went and spoke to Joe Barton

personally and he told them that he would support the CAA, which as

we all know he is not doing. So he probably already knows about

Autism Speaks and their website. He doesn't have the excuse of

ignorance.

Go to

http://www.marthastewart.com/page.jhtml?type=learn-

cat & id=cat22341 & catID=131 & (the shortcut is

http://tinyurl.com/y4cvvh) to see it for yourself. The autism

segment clip is the fifth one in the list on the right hand side of

the page.

- In Texas-Autism-Advocacy , Maggie Everts

wrote:

> Why don't we direct him to the Autism Speaks website

> http://www.autismspeaks.org/be_informed.php

> Perhaps we can send Barton a copy of the video " Autism Every Day "

(someone could request a copy from Autism Speaks - I couldn't find it

on their website). That is a true representation of the challenges

we face daily.

>

> Maggie

>

>

>

> Re: [Texas-Autism- Advocacy] re: doing things to get

Barton's

> attention- AUTISM TRIP

>

> nna,

>

> Here's an idea: Let's create a travel brochure! We can then send it

> to all members of Congress, local governments, etc. I'm not joking,

and

> I think it would be pretty poignant.

>

> It would be a beautiful tri-fold piece on glossy paper with photos

of

> the luxury accomodations he/they would receive:

>

> Open floorplan: doors off hinges, holes in walls, etc.

> Original artwork: feces-smeared walls. Or in our case, blood dotted

> everywhere- my daughter has an obsession with blood, so she

compulsively

> picks at sores and dots the blood everywhere. It's a striking

contrast

> on white walls...

> High security: multiple locks/deadbolts on doors for those of us

> whose kids are escapers.

> Avant Garde Performances: Constant screaming, self-injury, etc.

> Delicious cuisine: GF/CF, anyone? Fistfulls of supplements?

> Monochromatic meals?

> R & R: Never.

>

> What do you think?

>

> Aliza

>

> nna Bond <mbond@wareNetw orks.net> wrote:

> Someone mentioned in another post a day or so ago about how to

> guide

> Barton's attention and the fact that he knows little to nothing

about

> autism. He has all these special interest groups that have supplied

him

> with

> trips all over everywhere to research and highlight their issues.

>

> I think we need (as a special interest group) to invite Mr. Barton

on a

> trip

> for autism...how about some folks invite him for a weekend to spend

some

> time at your home with your family and child with autism so he can

see

> what

> exactly we are talking about and what his decisions are affecting? I

> have a

> couple of friends who have kids with lots of self-injurious

behavior,

> who

> smear feces, who can't communicate, and whose schools are doing

nothing

> to

> help them that I would LOVE for him to visit! I would even be happy

to

> supply the transportation. The accommodations might not be what he

is

> used

> to (this family has holes in most of their doors and they've had to

take

> many doors off the hinges, like in the bathroom, so it won't be the

> Marriott).

>

> Or, maybe he would like to visit some of our lovely group homes

here in

> Texas that have residents with autism? Again, I have some friends

who

> have

> told me wonderful stories about abuse to their children who are

> " noncompliant " (even though no one who works there has any training

and

> heaven forbid they've ever heard of anything like visual supports

or a

> communication device!) Again, the accommodations may not be the

Hilton,

> but

> I think it would pretty much serve the same purpose as his many

visits

> all

> over the country to look at power plants and the like.

>

> Should we invite him? Wouldn't you love for him to say " no " at this

> particular point in time? Wouldn't THAT look great for him?

>

> nna

>

>

[Guest guest]

I wish that I had taken pictures of all the half eaten video tape holders

that Cameron used to eat.

Anne

-- Re: doing things to get Barton's attention-

AUTISM TRIP

Years ago when Tristan was diagnosed I joined a number of autism groups. On

one of those groups we had a fun thread about autism blinds (you know like

window blinds). They were joking about selling them. I have never taken a

picture of the many blinds we replaced, but suffice it to say there wasn't

much left of them, lol.

C.

[Guest guest]

I also think asking goverment representatives and the press to view

the video Autism Every Day is a good way to get an introduction to

Autism.

You can see the 13 minute video Autism Every Day by going to

http://www.autismspeaks.org and selecting it from the top right

portion of the front page.

I did send an Email to Autism Speaks as follows:

As a parent of two kids with Autism, I would like to direct

government representatives and the press to your web site to watch

the video Autism Every Day. The one problem I have is that those I

send get confronted with the question of watching the Don Imus

introduction. Although Don Imus is a hero to me and the Autism

Community, he is controversial to some in congress and the press.

Maybe move this introduction to a Don Imus highlights page.

Thanks for considering this suggestion.

Hugh Stovall

> Someone mentioned in another post a day or so ago about how to

> guide

> Barton's attention and the fact that he knows little to nothing

about

> autism. He has all these special interest groups that have supplied

him

> with

> trips all over everywhere to research and highlight their issues.

>

> I think we need (as a special interest group) to invite Mr. Barton

on a

> trip

> for autism...how about some folks invite him for a weekend to spend

some

> time at your home with your family and child with autism so he can

see

> what

> exactly we are talking about and what his decisions are affecting? I

> have a

> couple of friends who have kids with lots of self-injurious

behavior,

> who

> smear feces, who can't communicate, and whose schools are doing

nothing

> to

> help them that I would LOVE for him to visit! I would even be happy

to

> supply the transportation. The accommodations might not be what he

is

> used

> to (this family has holes in most of their doors and they've had to

take

> many doors off the hinges, like in the bathroom, so it won't be the

> Marriott).

>

> Or, maybe he would like to visit some of our lovely group homes

here in

> Texas that have residents with autism? Again, I have some friends

who

> have

> told me wonderful stories about abuse to their children who are

> " noncompliant " (even though no one who works there has any training

and

> heaven forbid they've ever heard of anything like visual supports

or a

> communication device!) Again, the accommodations may not be the

Hilton,

> but

> I think it would pretty much serve the same purpose as his many

visits

> all

> over the country to look at power plants and the like.

>

> Should we invite him? Wouldn't you love for him to say " no " at this

> particular point in time? Wouldn't THAT look great for him?

>

> nna

>

>

[Guest guest]

I sent him that link in the very first letter and email I sent him.

Obviously he was far too busy @!#$ people to take a look.

I didn't say that!

nna

--

No virus found in this outgoing message.

Checked by AVG Free Edition.

Version: 7.5.430 / Virus Database: 268.13.28/518 - Release Date: 11/4/2006

5:30 PM

[Guest guest]

Oh no you didn't...you better wash your typing fingers out with soap

nna!/lol/

a

Re: doing things to get Barton's attention-

AUTISM TRIP

I sent him that link in the very first letter and email I sent him.

Obviously he was far too busy @!#$ people to take a look.

I didn't say that!

nna

--

No virus found in this outgoing message.

Checked by AVG Free Edition.

Version: 7.5.430 / Virus Database: 268.13.28/518 - Release Date: 11/4/2006

5:30 PM