RE: Medicaid by just diagnosis.

[Guest guest]

,

's name came off the list of CLASS about a couple of months ago. He has

been on it for almost 6 years. The way I understand it is that once he is

eligible for CLASS services, he will also receive Medicaid as well. I can't

remember whether there was a condition for that or not, but apparently he

got on Medicaid as of yesterday. I am still in the process of understanding

the difference between Medicaid and CLASS and how each one works. You might

want to call the 800 number for placing on the CLASS list if he is

not already on it, and ask for more info. If you need I can dig out some

phone numbers for you, but I have seen them being posted several times on

the list

Now for the diapers, ofcourse if someone got more than what they need, it

would be great to pass them along to others, provided it is not against

their policy. However, one of the posts was suggesting to " deliberately "

request more diapers in order to share with others, and in my opinion and in

the eyes of the law that is crossing the line.

Pull-ups co-op.... (off topic)

>

>>I think we all need to start a Goodnites/Pull-Up Co-op! Everyone whose

>>child is medicaid-eligible get as many as you can - and share the extra's

>>you don't need with those of us too " rich " for medicaid, but yet too

>> " poor "

>>to afford that huge weekly expense on our own....

>>

>> I could fund a full-time in-home ABA program with what I've paid, and

>> continue to pay, for pull-up's and toileting supplies!!!!!!

>>

>> ARRRGGGHHHH!!!!!!!

>>

>> ~ Guppy

>>

>>

>> M. Guppy

>> Contact me to order your copy of " The 2007 Autism Awareness Calendar for

>> Texas "

>>

>> Don't tell God how big your storm is ~ tell the storm how big your God

>> is!

>> Listowner & Facilitator of: www.TexasAutismAdvocacy.orgOfficer of

>> NHC-ASA: NorthwestHoustonChapterASA@... -

>>

>>

[Guest guest]

Yes, , you are correct. It certainly DOES depend upon the parents'

income. Not only their income, but their assets. We were denied, even though

my husband had no job, we had no income, and no savings (all gone to ABA

programs). Why? We had too many assets. I guess we have to liquidate our IRA,

sell our cars, and go live in a cardboard box.

Wow, I'm sounding kind of bitter today! Somebody send me some chocolate to

make me feel better!

Aliza

Guppy wrote:

I need clarification on your statement that your son gets medicaid

regardless of parent income. We're middle income like you - and I have been told

by countless agencies that because of my husband's income - does not

qualify for medicaid. Whether he has autism, mental retardation, whatever the

diagnosis.

How do you get medicaid if they are going just by the Autism diagnosis?

If the child is under 18 - I am told the state MUST go by the parent's income.

Unless you get on the medicaid WAIVER program - which WAIVES the parent's

income. Which we've been on that waiting list for nearly a decade.

Yes, I do realize what you are saying - but there are many loopholes that many

people take advantage of. Right or wrong. To just throw away things that others

could use - is stupid. Whether that's how the system is designed or not. And

there are many things parents get extra's of. From the system itself. Some

syringes and things to go with that - are shipped in bulk regardless of if you

need more of one or less than the other. Same with pull-ups, wipes, etc. Many

companies don't adjust. They just ship in bulk. On some things - for some

companies.

There ought to be a place for parents to bring those extra's - for the benefit

of others.

ginam wrote:

Hi ,

I have to tell you that when it comes to Medicaid, my son was qualified

regardless of our income. We are not " rich " nor " poor. My husband has a

decent job, and we are grateful for that. In other words, it has nothing to

do with income. My son was qualified because of his ASD diagnosis.

I know first hand how much it costs for all these pullups. We use up to 2-3

packages per week. Furthermore, I know how much it costs to raise a son

with all the costs of the biomedical interventions of which the insurance

does not cover and the behavioral therapy needed and all the educational

materials i spend since I homeschool him. Not counting the special diet he

is on and all the other gadgets he needs.

I know the system is broken and the wait is long, but i can not condone

cheating the system to get what we want. If everyone does this then system

will eventually " break " and fall apart. Instead, we should work on

improving the system to be more swift, fair and comprehensive.

Pull-ups co-op.... (off topic)

>I think we all need to start a Goodnites/Pull-Up Co-op! Everyone whose

>child is medicaid-eligible get as many as you can - and share the extra's

>you don't need with those of us too " rich " for medicaid, but yet too " poor "

>to afford that huge weekly expense on our own....

>

> I could fund a full-time in-home ABA program with what I've paid, and

> continue to pay, for pull-up's and toileting supplies!!!!!!

>

> ARRRGGGHHHH!!!!!!!

>

> ~ Guppy

>

>

> M. Guppy

> Contact me to order your copy of " The 2007 Autism Awareness Calendar for

> Texas "

>

> Don't tell God how big your storm is ~ tell the storm how big your God is!

> Listowner & Facilitator of: www.TexasAutismAdvocacy.orgOfficer of

> NHC-ASA: NorthwestHoustonChapterASA@... -

>

>

[Guest guest]

I would but I ate it when Medicaid told me the same thing. This year we

had to liquidate our IRA, so we're getting closer to qualifying. Weeeew

heeeeeeeeeewwwww!

S.

PS is talking about the CLASS program (which her son just got accepted

to), which is one of the WAIVER programs, where, for children who have a

disability meeting the CLASS criteria, Medicaid WAIVES the family income

requirement and look at the CHILD'S income.

Re: Medicaid by just diagnosis.

Yes, , you are correct. It certainly DOES depend upon the parents'

income. Not only their income, but their assets. We were denied, even

though my husband had no job, we had no income, and no savings (all gone to

ABA programs). Why? We had too many assets. I guess we have to liquidate

our IRA, sell our cars, and go live in a cardboard box.

Wow, I'm sounding kind of bitter today! Somebody send me some chocolate

to make me feel better!

Aliza

Guppy wrote:

I need clarification on your statement that your son gets medicaid

regardless of parent income. We're middle income like you - and I have been

told by countless agencies that because of my husband's income -

does not qualify for medicaid. Whether he has autism, mental retardation,

whatever the diagnosis.

[Guest guest]

I don't think even chocolate will fix that insanity. Unless you're choking the

idiots who think that policy makes sense. But then, .... why waste good

chocolate...

Oh dear - we all need calgon to take us away!

Singleton wrote:

I would but I ate it when Medicaid told me the same thing. This year

we

had to liquidate our IRA, so we're getting closer to qualifying. Weeeew

heeeeeeeeeewwwww!

S.

PS is talking about the CLASS program (which her son just got accepted

to), which is one of the WAIVER programs, where, for children who have a

disability meeting the CLASS criteria, Medicaid WAIVES the family income

requirement and look at the CHILD'S income.

Re: Medicaid by just diagnosis.

Yes, , you are correct. It certainly DOES depend upon the parents'

income. Not only their income, but their assets. We were denied, even

though my husband had no job, we had no income, and no savings (all gone to

ABA programs). Why? We had too many assets. I guess we have to liquidate

our IRA, sell our cars, and go live in a cardboard box.

Wow, I'm sounding kind of bitter today! Somebody send me some chocolate

to make me feel better!

Aliza

Guppy wrote:

I need clarification on your statement that your son gets medicaid

regardless of parent income. We're middle income like you - and I have been

told by countless agencies that because of my husband's income -

does not qualify for medicaid. Whether he has autism, mental retardation,

whatever the diagnosis.

M. Guppy

Contact me to order your copy of " The 2007 Autism Awareness Calendar for Texas "

Don't tell God how big your storm is ~ tell the storm how big your God is!

Listowner & Facilitator of: www.TexasAutismAdvocacy.orgOfficer of NHC-ASA:

NorthwestHoustonChapterASA@... -

[Guest guest]

,

is referring to the CLASS(Medicaid Waiver) program. That is the only

reason why our sons qualify for Medicaid--because of the CLASS program. Don't

worry, I bet 's name will be coming up on the list real soon--they are

opening slots up like crazy! We waited for 7-8 years before the boys' names

came up. I know MANY slots have opened within the last few months--I believe

due to a lawsuit. Hopefully, you'll also hear something really soon.

a

Pull-ups co-op.... (off topic)

>I think we all need to start a Goodnites/Pull-Up Co-op! Everyone whose

>child is medicaid-eligible get as many as you can - and share the extra's

>you don't need with those of us too " rich " for medicaid, but yet too " poor "

>to afford that huge weekly expense on our own....

>

> I could fund a full-time in-home ABA program with what I've paid, and

> continue to pay, for pull-up's and toileting supplies!!!!!!

>

> ARRRGGGHHHH!!!!!!!

>

> ~ Guppy

>

>

> M. Guppy

> Contact me to order your copy of " The 2007 Autism Awareness Calendar for

> Texas "

>

> Don't tell God how big your storm is ~ tell the storm how big your God is!

> Listowner & Facilitator of: www.TexasAutismAdvocacy.orgOfficer of

> NHC-ASA: NorthwestHoustonChapterASA@... -

>

>

[Guest guest]

Again, I am talking about CLASS and HCS--the medicaid " waiver " programs. They

are not based on income as indicated. At least that is what I thought that

we were talking about.

My best...

Jeff

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

Sent from my BlackBerry. Please excuse typos!

Re: Medicaid by just diagnosis.

Yes, , you are correct. It certainly DOES depend upon the parents'

income. Not only their income, but their assets. We were denied, even though my

husband had no job, we had no income, and no savings (all gone to ABA programs).

Why? We had too many assets. I guess we have to liquidate our IRA, sell our

cars, and go live in a cardboard box.

Wow, I'm sounding kind of bitter today! Somebody send me some chocolate to make

me feel better!

Aliza

Guppy <michellemguppy@: <mailto:michellemguppy%40yahoo.com> yahoo.com>

wrote:

I need clarification on your statement that your son gets medicaid regardless

of parent income. We're middle income like you - and I have been told by

countless agencies that because of my husband's income - does not

qualify for medicaid. Whether he has autism, mental retardation, whatever the

diagnosis.

How do you get medicaid if they are going just by the Autism diagnosis?

If the child is under 18 - I am told the state MUST go by the parent's income.

Unless you get on the medicaid WAIVER program - which WAIVES the parent's

income. Which we've been on that waiting list for nearly a decade.

Yes, I do realize what you are saying - but there are many loopholes that many

people take advantage of. Right or wrong. To just throw away things that others

could use - is stupid. Whether that's how the system is designed or not. And

there are many things parents get extra's of. From the system itself. Some

syringes and things to go with that - are shipped in bulk regardless of if you

need more of one or less than the other. Same with pull-ups, wipes, etc. Many

companies don't adjust. They just ship in bulk. On some things - for some

companies.

There ought to be a place for parents to bring those extra's - for the benefit

of others.

ginam <ginamhouston (DOT) : <mailto:ginam%40houston.rr.com> rr.com> wrote:

Hi ,

I have to tell you that when it comes to Medicaid, my son was qualified

regardless of our income. We are not " rich " nor " poor. My husband has a

decent job, and we are grateful for that. In other words, it has nothing to

do with income. My son was qualified because of his ASD diagnosis.

I know first hand how much it costs for all these pullups. We use up to 2-3

packages per week. Furthermore, I know how much it costs to raise a son

with all the costs of the biomedical interventions of which the insurance

does not cover and the behavioral therapy needed and all the educational

materials i spend since I homeschool him. Not counting the special diet he

is on and all the other gadgets he needs.

I know the system is broken and the wait is long, but i can not condone

cheating the system to get what we want. If everyone does this then system

will eventually " break " and fall apart. Instead, we should work on

improving the system to be more swift, fair and comprehensive.

Pull-ups co-op.... (off topic)

>I think we all need to start a Goodnites/Pull-Up Co-op! Everyone whose

>child is medicaid-eligible get as many as you can - and share the extra's

>you don't need with those of us too " rich " for medicaid, but yet too " poor "

>to afford that huge weekly expense on our own....

>

> I could fund a full-time in-home ABA program with what I've paid, and

> continue to pay, for pull-up's and toileting supplies!!!!!!

>

> ARRRGGGHHHH!!!!!!!

>

> ~ Guppy

>

>

> M. Guppy

> Contact me to order your copy of " The 2007 Autism Awareness Calendar for

> Texas "

>

> Don't tell God how big your storm is ~ tell the storm how big your God is!

> Listowner & Facilitator of: www.TexasAutismAdvocacy.orgOfficer of

> NHC-ASA: NorthwestHoustonCha: <mailto:NorthwestHoustonChapterASA%40yahoo.com>

pterASA@... -

>

>

[Guest guest]

As of today, we are number 10,233. We've been on the list for three years.

Jeff & a Sell wrote: ,

is referring to the CLASS(Medicaid Waiver) program. That is the only reason

why our sons qualify for Medicaid--because of the CLASS program. Don't worry, I

bet 's name will be coming up on the list real soon--they are opening

slots up like crazy! We waited for 7-8 years before the boys' names came up. I

know MANY slots have opened within the last few months--I believe due to a

lawsuit. Hopefully, you'll also hear something really soon.

a

Pull-ups co-op.... (off topic)

>I think we all need to start a Goodnites/Pull-Up Co-op! Everyone whose

>child is medicaid-eligible get as many as you can - and share the extra's

>you don't need with those of us too " rich " for medicaid, but yet too " poor "

>to afford that huge weekly expense on our own....

>

> I could fund a full-time in-home ABA program with what I've paid, and

> continue to pay, for pull-up's and toileting supplies!!!!!!

>

> ARRRGGGHHHH!!!!!!!

>

> ~ Guppy

>

>

> M. Guppy

> Contact me to order your copy of " The 2007 Autism Awareness Calendar for

> Texas "

>

> Don't tell God how big your storm is ~ tell the storm how big your God is!

> Listowner & Facilitator of: www.TexasAutismAdvocacy.orgOfficer of

> NHC-ASA: NorthwestHoustonChapterASA@... -

>

>

[Guest guest]

But , I fear our cardboard boxes will leak if we fill them with water

and Calgon.

Guppy wrote: I don't think even

chocolate will fix that insanity. Unless you're choking the idiots who think

that policy makes sense. But then, .... why waste good chocolate...

Oh dear - we all need calgon to take us away!

Singleton wrote:

I would but I ate it when Medicaid told me the same thing. This year we

had to liquidate our IRA, so we're getting closer to qualifying. Weeeew

heeeeeeeeeewwwww!

S.

PS is talking about the CLASS program (which her son just got accepted

to), which is one of the WAIVER programs, where, for children who have a

disability meeting the CLASS criteria, Medicaid WAIVES the family income

requirement and look at the CHILD'S income.

Re: Medicaid by just diagnosis.

Yes, , you are correct. It certainly DOES depend upon the parents'

income. Not only their income, but their assets. We were denied, even

though my husband had no job, we had no income, and no savings (all gone to

ABA programs). Why? We had too many assets. I guess we have to liquidate

our IRA, sell our cars, and go live in a cardboard box.

Wow, I'm sounding kind of bitter today! Somebody send me some chocolate

to make me feel better!

Aliza

Guppy wrote:

I need clarification on your statement that your son gets medicaid

regardless of parent income. We're middle income like you - and I have been

told by countless agencies that because of my husband's income -

does not qualify for medicaid. Whether he has autism, mental retardation,

whatever the diagnosis.

M. Guppy

Contact me to order your copy of " The 2007 Autism Awareness Calendar for Texas "

Don't tell God how big your storm is ~ tell the storm how big your God is!

Listowner & Facilitator of: www.TexasAutismAdvocacy.orgOfficer of NHC-ASA:

NorthwestHoustonChapterASA@... -

[Guest guest]

Aliza,

I am envious of you.....LOL........we are 14,000 something the last

time I checked.......so you can imagine how I feel when I see your

number ...........LOL.......

Mark

> Hi ,

>

> I have to tell you that when it comes to Medicaid, my son was

qualified

> regardless of our income. We are not " rich " nor " poor. My husband

has a

> decent job, and we are grateful for that. In other words, it has

nothing to

> do with income. My son was qualified because of his ASD diagnosis.

>

> I know first hand how much it costs for all these pullups. We use

up to 2-3

> packages per week. Furthermore, I know how much it costs to raise

a son

> with all the costs of the biomedical interventions of which the

insurance

> does not cover and the behavioral therapy needed and all the

educational

> materials i spend since I homeschool him. Not counting the special

diet he

> is on and all the other gadgets he needs.

>

> I know the system is broken and the wait is long, but i can not

condone

> cheating the system to get what we want. If everyone does this

then system

> will eventually " break " and fall apart. Instead, we should work on

> improving the system to be more swift, fair and comprehensive.

>

>

>

> Pull-ups co-op.... (off topic)

>

> >I think we all need to start a Goodnites/Pull-Up Co-op! Everyone

whose

> >child is medicaid-eligible get as many as you can - and share the

extra's

> >you don't need with those of us too " rich " for medicaid, but yet

too " poor "

> >to afford that huge weekly expense on our own....

> >

> > I could fund a full-time in-home ABA program with what I've

paid, and

> > continue to pay, for pull-up's and toileting supplies!!!!!!

> >

> > ARRRGGGHHHH!!!!!!!

> >

> > ~ Guppy

> >

> >

> > M. Guppy

> > Contact me to order your copy of " The 2007 Autism Awareness

Calendar for

> > Texas "

> >

> > Don't tell God how big your storm is ~ tell the storm how big

your God is!

> > Listowner & Facilitator of: www.TexasAutismAdvocacy.orgOfficer

of

> > NHC-ASA: NorthwestHoustonChapterASA@... -

> >

> >

[Guest guest]

I guess your child has to have an official diagnosis to get on this great list,

right? Anywhere on the spectrum or is it more of a specific diagnosis?

Thanks!

Michele

mark colditz wrote:

Aliza,

I am envious of you.....LOL........we are 14,000 something the last

time I checked.......so you can imagine how I feel when I see your

number ...........LOL.......

Mark

> Hi ,

>

> I have to tell you that when it comes to Medicaid, my son was

qualified

> regardless of our income. We are not " rich " nor " poor. My husband

has a

> decent job, and we are grateful for that. In other words, it has

nothing to

> do with income. My son was qualified because of his ASD diagnosis.

>

> I know first hand how much it costs for all these pullups. We use

up to 2-3

> packages per week. Furthermore, I know how much it costs to raise

a son

> with all the costs of the biomedical interventions of which the

insurance

> does not cover and the behavioral therapy needed and all the

educational

> materials i spend since I homeschool him. Not counting the special

diet he

> is on and all the other gadgets he needs.

>

> I know the system is broken and the wait is long, but i can not

condone

> cheating the system to get what we want. If everyone does this

then system

> will eventually " break " and fall apart. Instead, we should work on

> improving the system to be more swift, fair and comprehensive.

>

>

>

> Pull-ups co-op.... (off topic)

>

> >I think we all need to start a Goodnites/Pull-Up Co-op! Everyone

whose

> >child is medicaid-eligible get as many as you can - and share the

extra's

> >you don't need with those of us too " rich " for medicaid, but yet

too " poor "

> >to afford that huge weekly expense on our own....

> >

> > I could fund a full-time in-home ABA program with what I've

paid, and

> > continue to pay, for pull-up's and toileting supplies!!!!!!

> >

> > ARRRGGGHHHH!!!!!!!

> >

> > ~ Guppy

> >

> >

> > M. Guppy

> > Contact me to order your copy of " The 2007 Autism Awareness

Calendar for

> > Texas "

> >

> > Don't tell God how big your storm is ~ tell the storm how big

your God is!

> > Listowner & Facilitator of: www.TexasAutismAdvocacy.orgOfficer

of

> > NHC-ASA: NorthwestHoustonChapterASA@... -

> >

> >

[Guest guest]

CLASS is the program that allows your son, who otherwise wouldn't qualify

for Medicaid, to qualify for Medicaid. CLASS is the administrator of your

son's Medicaid. Also, through CLASS your son will be able to get services,

like respite or day habilitators, that people who are regular CARD MEDICAID

services can not get. Think of CLASS like a box in which is your son's

Medicaid and other services. Families who qualify for CARD MEDICAID or

TRADITIONAL MEDICAID get their Medicaid out of a different box that doesn't

offer these other services.

S.

Re: Medicaid by just diagnosis.

,

's name came off the list of CLASS about a couple of months ago. He has

been on it for almost 6 years. The way I understand it is that once he is

eligible for CLASS services, he will also receive Medicaid as well. I can't

remember whether there was a condition for that or not, but apparently he

got on Medicaid as of yesterday. I am still in the process of understanding

the difference between Medicaid and CLASS and how each one works. You might

want to call the 800 number for placing on the CLASS list if he is

not already on it, and ask for more info. If you need I can dig out some

phone numbers for you, but I have seen them being posted several times on

the list

Now for the diapers, ofcourse if someone got more than what they need, it

would be great to pass them along to others, provided it is not against

their policy. However, one of the posts was suggesting to " deliberately "

request more diapers in order to share with others, and in my opinion and in

the eyes of the law that is crossing the line.

Pull-ups co-op.... (off topic)

>

>>I think we all need to start a Goodnites/Pull-Up Co-op! Everyone whose

>>child is medicaid-eligible get as many as you can - and share the extra's

>>you don't need with those of us too " rich " for medicaid, but yet too

>> " poor "

>>to afford that huge weekly expense on our own....

>>

>> I could fund a full-time in-home ABA program with what I've paid, and

>> continue to pay, for pull-up's and toileting supplies!!!!!!

>>

>> ARRRGGGHHHH!!!!!!!

>>

>> ~ Guppy

>>

>>

>> M. Guppy

>> Contact me to order your copy of " The 2007 Autism Awareness Calendar for

>> Texas "

>>

>> Don't tell God how big your storm is ~ tell the storm how big your God

>> is!

>> Listowner & Facilitator of: www.TexasAutismAdvocacy.orgOfficer of

>> NHC-ASA: NorthwestHoustonChapterASA@... -

>>

>>

[Guest guest]

hello , my son too is still in pull ups , he is 6 years old , he goes to

school , and during the day he has no problem going to the bath room at

school. when he gets home we put pull ups on , think he holds it until he

gets home. [ BM`S ] , any thoughts , thanks meg

Original

Message-------

From: Jeff & a Sell

Date: 09/21/06 20:18:27

To: Texas-Autism-Advocacy

Subject: Re: Medicaid by just diagnosis.

,

is referring to the CLASS(Medicaid Waiver) program. That is the only

reason why our sons qualify for Medicaid--because of the CLASS program. Don

t worry, I bet 's name will be coming up on the list real soon--they

are opening slots up like crazy! We waited for 7-8 years before the boys'

names came up. I know MANY slots have opened within the last few months--I

believe due to a lawsuit. Hopefully, you'll also hear something really soon.

a

Pull-ups co-op.... (off topic)

>I think we all need to start a Goodnites/Pull-Up Co-op! Everyone whose

>child is medicaid-eligible get as many as you can - and share the extra's

>you don't need with those of us too " rich " for medicaid, but yet too " poor "

>to afford that huge weekly expense on our own....

>

> I could fund a full-time in-home ABA program with what I've paid, and

> continue to pay, for pull-up's and toileting supplies!!!!!!

>

> ARRRGGGHHHH!!!!!!!

>

> ~ Guppy

>

>

> M. Guppy

> Contact me to order your copy of " The 2007 Autism Awareness Calendar for

> Texas "

>

> Don't tell God how big your storm is ~ tell the storm how big your God is!

> Listowner & Facilitator of: www.TexasAutismAdvocacy.orgOfficer of

> NHC-ASA: NorthwestHoustonChapterASA@... -

>

>