RE: Day ten valtrex, want to STOP

[Guest guest]

I don't think you should stop the Valtrex, but I'd start using Flagyl again. Once again our children are very similar... My son's stools have turned into dark green soup as well. He has become aggresive (he has always been as gentle as a lamb) and he suddenly uses his head to hit us with, even being aggressive with his sisters. He is having a yeast flare despite the SCD less casein, and I suspect bacteria overgrowth. I've been asking our doc for Flagyl for two weeks and yesterday she officially refused. She does not approve of Stan's ideas. I will be trying Lauricidin in the short term because I have access to it. But if I was having your gains on the Valtrex-Flagyl-Nizoral trio, I would definitely not stop. The rash sounds to me like good news even if it's not dramatic in appearance. I'm sure others with more experience will give your their takes on this... Hang in there! Stéphanie B.diatplay wrote: When we started valtrex on 12/1 Matt had some gains...it looked promising, but now his stools have gone from semi formed and brown to just blackish green soup - that can't be good. The gains we saw came when he was on flagyl, valtrex, and his supps...now that we are off the flagyl, and just on the valtrex and supps he is throwing things, screaming and zoning out far more frequently and being aggressive with

his sisters. He has also taken to banging his little head on things to make a point. This is a nightmare. Last week we were told he was having his best sessions ever in therapy, now the same therapists are saying he cannot seem to regulate etc.Is anyone doing valtrex and not on the SCD minus casein...that diet is also difficult as all Matt wants to eat is El Pollo Loco drumsticks, raw peeled apples or cooked applesauce, and sometimes a few nibbkes of cooked carrots. How do you know when to stop on Valtrex and how do you know when to push fwd> There is a small red rash on his back above his bum, but that is it so far in terms of rashes and sores etc.

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[Guest guest]

You *need* to be on an antifungal while on Valtrex.  Valtrex stirs up *a lot* of yeast.  Die off can last several weeks and if you aren't on an antifungal, then you will see yeast behavior.  What you are describing to me sounds like yeast...We are not SCD or GFCF.  CherylWhen we started valtrex on 12/1 Matt had some gains...it looked promising, but now his stools have gone from semi formed and brown to just blackish green soup - that can't be good. The gains we saw came when he was on flagyl, valtrex, and his supps...now that we are off the flagyl, and just on the valtrex and supps he is throwing things, screaming and zoning out far more frequently and being aggressive with his sisters. He has also taken to banging his little head on things to make a point. This is a nightmare. Last week we were told he was having his best sessions ever in therapy, now the same therapists are saying he cannot seem to regulate etc.Is anyone doing valtrex and not on the SCD minus casein...that diet is also difficult as all Matt wants to eat is El Pollo Loco drumsticks, raw peeled apples or cooked applesauce, and sometimes a few nibbkes of cooked carrots. How do you know when to stop on Valtrex and how do you know when to push fwd> There is a small red rash on his back above his bum, but that is it so far in terms of rashes and sores etc.

[Guest guest]

My son was on Valtrex before the standard recommendation was to be on an antifungal throughout the entire course of the Valtrex. He did 2 weeks of Diflucan before but no antifungal during. He went from a sweet happy little boy to a miserable kid who spent most of his time kicking, screaming and throwing full body fits. This was not his typical yeasty behavior. He is definitely a very yeasty kid. When he has yeast he is silly, itchy genitals, maniacal nightwakings, distended belly, loose stools, etc. There was no time for lab work. Because of the behavior, our DAN suspected bacteria. We stopped the Valtrex and put him on Berberine Complex. Within 48 hrs., all of the behaviors stopped and he was back to his old self. I haven't tried Valtrex again because the experience was so traumatic. However, if/when we do, we will be sure to be on both an antifungal AND antimicrobial two weeks prior and the entire time during the Valtrex cycle.

Dana

-----Original Message-----From: mb12 valtrex [mailto:mb12 valtrex ]On Behalf Of Cheryl LowranceSent: Thursday, December 13, 2007 11:18 AMTo: mb12 valtrex Subject: Re: Day ten valtrex, want to STOP

You *need* to be on an antifungal while on Valtrex. Valtrex stirs up *a lot* of yeast. Die off can last several weeks and if you aren't on an antifungal, then you will see yeast behavior. What you are describing to me sounds like yeast...

We are not SCD or GFCF.

Cheryl

When we started valtrex on 12/1 Matt had some gains...it looked promising, but now his stools have gone from semi formed and brown to just blackish green soup - that can't be good. The gains we saw came when he was on flagyl, valtrex, and his supps...now that we are off the flagyl, and just on the valtrex and supps he is throwing things, screaming and zoning out far more frequently and being aggressive with his sisters. He has also taken to banging his little head on things to make a point. This is a nightmare. Last week we were told he was having his best sessions ever in therapy, now the same therapists are saying he cannot seem to regulate etc.Is anyone doing valtrex and not on the SCD minus casein...that diet is also difficult as all Matt wants to eat is El Pollo Loco drumsticks, raw peeled apples or cooked applesauce, and sometimes a few nibbkes of cooked carrots. How do you know when to stop on Valtrex and how do you know when to push fwd> There is a small red rash on his back above his bum, but that is it so far in terms of rashes and sores etc.

[Guest guest]

What's berberine complex? rx or otc?

margie in va

> My son was on Valtrex before the standard recommendation was to be on

> an antifungal throughout the entire course of the Valtrex.  He did 2

> weeks of Diflucan before but no antifungal during.  He went from a

> sweet happy little boy to a miserable kid who spent most of his time

> kicking, screaming and throwing full body fits.  This was not his

> typical yeasty behavior.  He is definitely a very yeasty kid.  When he

> has yeast he is silly, itchy genitals, maniacal nightwakings,

> distended belly, loose stools, etc.  There was no time for lab work. 

> Because of the behavior, our DAN suspected bacteria.  We stopped the 

> Valtrex and put him on Berberine Complex.  Within 48 hrs., all of the

> behaviors stopped and he was back to his old self.  I haven't tried

> Valtrex again because the experience was so traumatic.  However,

> if/when we do, we will be sure to be on both an antifungal AND

> antimicrobial two weeks prior and the entire time during the Valtrex

> cycle. 

>  

> Dana

>> Re: Day ten valtrex, want to STOP

>>

>>

>> You *need* to be on an antifungal while on Valtrex.  Valtrex stirs up

>> *a lot* of yeast.  Die off can last several weeks and if you aren't

>> on an antifungal, then you will see yeast behavior.  What you are

>> describing to me sounds like yeast...

>>

>> We are not SCD or GFCF.  

>>

>> Cheryl

>>

>>

>>

>>>

>>> When we started valtrex on 12/1 Matt had some gains...it looked

>>> promising, but now his stools have gone from semi formed and brown to

>>> just blackish green soup - that can't be good. The gains we saw came

>>> when he was on flagyl, valtrex, and his supps...now that we are off

>>> the

>>> flagyl, and just on the valtrex and supps he is throwing things,

>>> screaming and zoning out far more frequently and being aggressive

>>> with

>>> his sisters. He has also taken to banging his little head on things

>>> to

>>> make a point. This is a nightmare. Last week we were told he was

>>> having his best sessions ever in therapy, now the same therapists are

>>> saying he cannot seem to regulate etc.

>>>

>>> Is anyone doing valtrex and not on the SCD minus casein...that diet

>>> is

>>> also difficult as all Matt wants to eat is El Pollo Loco drumsticks,

>>> raw peeled apples or cooked applesauce, and sometimes a few nibbkes

>>> of

>>> cooked carrots. How do you know when to stop on Valtrex and how do

>>> you

>>> know when to push fwd> There is a small red rash on his back above

>>> his

>>> bum, but that is it so far in terms of rashes and sores etc.

>>>

>>

>

>

[Guest guest]

otc...it's used as an antibacterial. Worked great for us...and fast! Angie - in VA too and Margie wrote: What's berberine complex? rx or otc?margie in va> My son was on Valtrex before the standard recommendation was to be on > an antifungal throughout the entire course of the Valtrex. He did 2 > weeks of Diflucan before but no antifungal during. He went from a > sweet happy little boy to a miserable kid who spent most of his time > kicking, screaming and throwing full body fits. This was not his > typical yeasty behavior. He is definitely a very yeasty kid. When he > has yeast he is silly, itchy genitals, maniacal nightwakings, > distended belly,

loose stools, etc. There was no time for lab work. > Because of the behavior, our DAN suspected bacteria. We stopped the > Valtrex and put him on Berberine Complex. Within 48 hrs., all of the > behaviors stopped and he was back to his old self. I haven't tried > Valtrex again because the experience was so traumatic. However, > if/when we do, we will be sure to be on both an antifungal AND > antimicrobial two weeks prior and the entire time during the Valtrex > cycle. > > Dana>> Re: Day ten valtrex, want to STOP>>>>>> You *need* to be

on an antifungal while on Valtrex. Valtrex stirs up >> *a lot* of yeast. Die off can last several weeks and if you aren't >> on an antifungal, then you will see yeast behavior. What you are >> describing to me sounds like yeast...>>>> We are not SCD or GFCF. >>>> Cheryl>>>> >>>>>>>> When we started valtrex on 12/1 Matt had some gains...it looked>>> promising, but now his stools have gone from semi formed and brown to>>> just blackish green soup - that can't be good. The gains we saw came>>> when he was on flagyl, valtrex, and his supps...now that we are off >>> the>>> flagyl, and just on the valtrex and supps he is throwing things,>>> screaming and zoning out far more frequently and being aggressive

>>> with>>> his sisters. He has also taken to banging his little head on things >>> to>>> make a point. This is a nightmare. Last week we were told he was>>> having his best sessions ever in therapy, now the same therapists are>>> saying he cannot seem to regulate etc.>>>>>> Is anyone doing valtrex and not on the SCD minus casein...that diet >>> is>>> also difficult as all Matt wants to eat is El Pollo Loco drumsticks,>>> raw peeled apples or cooked applesauce, and sometimes a few nibbkes >>> of>>> cooked carrots. How do you know when to stop on Valtrex and how do >>> you>>> know when to push fwd> There is a small red rash on his back above >>> his>>> bum, but that is it so far in terms of rashes and sores etc.>>>>>>

>

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[Guest guest]

Is it as strong as biocidin? Where can I get it?

Margie inva

> otc...it's used as an antibacterial. Worked great for us...and fast!

> Angie - in VA too

>

> and Margie wrote:

>> What's berberine complex? rx or otc?

>> margie in va

>>

>>

>> > My son was on Valtrex before the standard recommendation was to be

>> on

>> > an antifungal throughout the entire course of the Valtrex.  He did 2

>> > weeks of Diflucan before but no antifungal during.  He went from a

>> > sweet happy little boy to a miserable kid who spent most of his time

>> > kicking, screaming and throwing full body fits.  This was not his

>> > typical yeasty behavior.  He is definitely a very yeasty kid.  When

>> he

>> > has yeast he is silly, itchy genitals, maniacal nightwakings,

>> > distended belly, loose stools, etc.  There was no time for lab

>> work. 

>> > Because of the behavior, our DAN suspected bacteria.  We stopped

>> the 

>> > Valtrex and put him on Berberine Complex.  Within 48 hrs., all of

>> the

>> > behaviors stopped and he was back to his old self.  I haven't tried

>> > Valtrex again because the experience was so traumatic.  However,

>> > if/when we do, we will be sure to be on both an antifungal AND

>> > antimicrobial two weeks prior and the entire time during the Valtrex

>> > cycle. 

>> >  

>> > Dana

>> >> Re: Day ten valtrex, want to STOP

>> >>

>> >>

>> >! > You *need* to be on an antifungal while on Valtrex.  Valtrex

>> stirs up

>> >> *a lot* of yeast.  Die off can last several weeks and if you aren't

>> >> on an antifungal, then you will see yeast behavior.  What you are

>> >> describing to me sounds like yeast...

>> >>

>> >> We are not SCD or GFCF.  

>> >>

>> >> Cheryl

>> >>

>> >>

>> >>

>> >>>

>> >>> When we started valtrex on 12/1 Matt had some gains...it looked

>> >>> promising, but now his stools have gone from semi formed and

>> brown to

>> >>> just blackish green soup - that can't be good. The gains we saw

>> came

>> >>> when he was on flagyl, valtrex, and his supps...now that we are

>> off

>> >>> the

>> >>> flagyl, and just on the valtrex and supps he is throwing things,

>> >>> screaming and zoning out far more frequently and being aggressive

>> >>> with

>> >>> his sisters. He has also taken to banging his little head on

>> things

>> >>> to

>> >>> make a point. This is a nightmare. Last week we were told he was

>> >>> having his best sessions ever in therapy, now the same therapists

>> are

>> >>> saying he cannot seem to regulate etc.

>> >>>

>> >>> Is anyone doing valtrex and not on the SCD minus casein...that

>> diet

>> >>> is

>> >>> also difficult as all Matt wants to eat is El Pollo Loco

>> drumsticks,

>> >>> raw peeled apples or cooked applesauce, and sometimes a few

>> nibbkes

>> >>> of

>> >>> cooked carrots. How do you know when to stop on Valtrex and how do

>> >>> you

>> >>> know when to push fwd> There is a small red rash on his back above

>> >>> his

>> >>> bum, but that is it so far in terms of rashes and sores etc.

>> >>>

>> >>

>> >

>> >

> Never miss a thing. Make Yahoo your homepage.

>

>

>

[Guest guest]

It sounds like clostridia plus yeast to me. Clostridium difficile is

a very oportunistic bacteria that usually overgrows right after you

stop an antibiotic, the same just happened in our house.

I don´t know how long you´ve been on Flagyl but I bet not long

enough, I´d go back to it and of course have an rx antifungal on

board too.

HTH

>

> > When we started valtrex on 12/1 Matt had some gains...it looked

> > promising, but now his stools have gone from semi formed and

brown to

> > just blackish green soup - that can't be good. The gains we saw

came

> > when he was on flagyl, valtrex, and his supps...now that we are

off

> > the

> > flagyl, and just on the valtrex and supps he is throwing things,

> > screaming and zoning out far more frequently and being

aggressive with

> > his sisters. He has also taken to banging his little head on

things to

> > make a point. This is a nightmare. Last week we were told he was

> > having his best sessions ever in therapy, now the same

therapists are

> > saying he cannot seem to regulate etc.

> >

> > Is anyone doing valtrex and not on the SCD minus casein...that

diet is

> > also difficult as all Matt wants to eat is El Pollo Loco

drumsticks,

> > raw peeled apples or cooked applesauce, and sometimes a few

nibbkes of

> > cooked carrots. How do you know when to stop on Valtrex and how

do you

> > know when to push fwd> There is a small red rash on his back

above his

> > bum, but that is it so far in terms of rashes and sores etc.

> >

> >

> >

>

[Guest guest]

We had massive, huge regression from day 2 and lasted for about 35 days, then it took another month before the regression was over and then we had the gains (social and language and also titers down) If he reacts like that he is probably a responder and you should try to go on. Yeast can be incredibly high with this, so get some Diflucan (seems it’’s the antifungal that works best while on Valtrex) we stayed at 200 mg for more than 2 months and I know our DAN sometimes goes to 400mg with other patients. We did the first month on naturals alone and I consider it a mistake we should have switched to Diflucan after 2 weeks.

Good luck I know it’s such a bad time but it will be over in a few weeks and you will see the gains

Senta

It sounds like clostridia plus yeast to me. Clostridium difficile is

a very oportunistic bacteria that usually overgrows right after you

stop an antibiotic, the same just happened in our house.

I don´t know how long you´ve been on Flagyl but I bet not long

enough, I´d go back to it and of course have an rx antifungal on

board too.

HTH

>

> > When we started valtrex on 12/1 Matt had some gains...it looked

> > promising, but now his stools have gone from semi formed and

brown to

> > just blackish green soup - that can't be good. The gains we saw

came

> > when he was on flagyl, valtrex, and his supps...now that we are

off

> > the

> > flagyl, and just on the valtrex and supps he is throwing things,

> > screaming and zoning out far more frequently and being

aggressive with

> > his sisters. He has also taken to banging his little head on

things to

> > make a point. This is a nightmare. Last week we were told he was

> > having his best sessions ever in therapy, now the same

therapists are

> > saying he cannot seem to regulate etc.

> >

> > Is anyone doing valtrex and not on the SCD minus casein...that

diet is

> > also difficult as all Matt wants to eat is El Pollo Loco

drumsticks,

> > raw peeled apples or cooked applesauce, and sometimes a few

nibbkes of

> > cooked carrots. How do you know when to stop on Valtrex and how

do you

> > know when to push fwd> There is a small red rash on his back

above his

> > bum, but that is it so far in terms of rashes and sores etc.

> >

> >

> >

>