anyone dealing with cryoglobulinemia?

[Guest guest]

Hey, long time since I posted. I have had the most miserable 4 - 5 months.

Debilitating fatigue, pain and constant complications. I've lost 53 pounds since

last winter-not trying to. You may, or may not, remember me, I am a non

responder now dealing with chronic, and apparently progressive, Hep C problems.

I was diagnosed with cryoglobulinemia last year-this is like rheumatoid

arthritis and peripheral neuropathy all wrapped up together in a painful

package.Portal hypertension two years ago and then they had me chasing oncology

because of abnormal proteins in the blood-big worry of B Cell Non-Hodgkins

Lymphoma. I have been studying up lately and see a lot of things lining up that

way over the last 5 months. The peer reviewed journals are booming with the

association between HCV, Cryo, and Non-hodgkins lymphoma.

Anyone else dealing with such things? I go to the Univ of MN this week.

Also have been having lots and lots of trouble controlling depressive

symptoms,fuzzy brain fog and so on. A lot of days I feel like a useless bag of

faulty organs!

Wondering if anyone's dealt with cancerous complications from chronic HCV

infection. Do they march you right up to the Interferon window? Eek! that was a

nightmare. If they treat for Lymphoma won't the chemo make the HCV worse?

Oh geez, someone just lie to me and say everything is going to be peachy! I

completely and thoroughly hate this HCV and all these complications!

I lurk, and lurk and it seems like I'm the only one going down this HCV road.

However, I am much thinner and that above everything makes my day!