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Here is some federal law that could help:

It's found in Paragraph 5 of the federal Medicaid law for children

(EPSDT;

http://caselaw.findlaw.com/casecode/uscodes/42/chapters/7/subchapters/xi

x/sections/section_1396d.html):

" (5) Such other necessary health care, diagnostic services, treatment,

and other measures to correct or ameliorate defects and physical and mental

illnesses and conditions discovered by the screening services, whether

or not such services are covered under the State plan. "

+++++++++++++++++++++++++++++++++++++++++++++++++++

Here is what Texas rules say about allowable therapies for kids with

Medicaid. So with these rules, if you can get a doctor to write you a

prescription that says ABA is medically necessary AND you can find an ABA

provider who is approved to bill Medicaid (believe me, this will be the

harder one to find, the only ones I know are at BTTC in Richmond and at the

Bluebird MHMRA in Austin) , you may be able to get ABA paid for.

Good luck,

S.

+++++++++++++++++++++++++++++++++++++++++++++++++++++++++

Acute Care Services

Medicaid consumers under age 21 fall under the Early and Periodic Screening,

Diagnosis and Treatment program (EPSDT), known as Texas Health Steps in

Texas. For this population, Medicaid benefits cover all medically necessary

medical treatment (including psychiatric and psychological care), durable

medical equipment, physical therapy (PT), occupational therapy (OT) and

speech language therapy (SLT) that are identified as stemming from the

child's pervasive developmental disorder (PDD) or autism. Certain benefits

require prior authorization. Investigational and experimental treatments or

services do not qualify for Medicaid federal matching funds and are

prohibited by federal law. Medicaid-eligible children who are enrolled in

Early Childhood Intervention (ECI) services would recieve the same services

covered by EPSDT as well as some additional developmental rehabilitation

services. I've cc:d Keisha Rowe at DARS if you have additional questions

about ECI services.

Unlike children, Medicaid consumers 21 years of age and older are not

EPSDT/THSteps-eligible. However, adults are entitled to the full range of

Medicaid benefits that are defined in medical benefit policy, e.g.,

physician service, hospitalization, and certain home health services. Adult

Medicaid consumers are entitled to medical and OT, PT and SLT services on a

more defined basis, and benefits are subject to certain program limitations.

For example, OT, PT and SLT for adults are only covered for acute problems

(i.e., not a chronic condition such as PDD), and only for limited periods of

time.

Long Term Services and Supports

Texas Medicaid also has a number of programs that provide long term services

and supports, including waiver programs that allow persons who would qualify

for institutional care to instead receive care in the community. Each of

these programs has income, resource, and disability/functional requirements,

and some target those with a diagnosis of mental retardation. For children

in the community, they must meet income and resource tests based either 1)

on their own plus their parents' income and resources if not in an

institution or community care waiver or 2) on their own income and resources

if in a community care waiver, nursing home or Intermediate Care Facility

for the Mentally Retarded (ICF/MR). Long term care services vary for each

waiver and state plan program.

..

Re: SSI benefits

Does Medicade cover ABA or other speech related or OT services? My son's

family should qualify and that will help immensely.

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No they don't. The rule of thumb is MEDICAID usually pays what the

insurance pays. Most private insurances do not pay for ABA, and the reason

is the providers are not licensed.

Re: SSI benefits

>

>

> hrmmm In not sure on that because to my knowledge medicaid wont reimburse

> you cash......but i could be wrong. Id call and ask. One thing I have

> learned though. Call ask, if the answer is no, call again get a different

> person and ask again....repeat. sometimes the answer isnt actually no

> its.........well i dont really no and its just easiest to say no .

>

> i called 6 different medicaid related departs and heard no 6 times trying

> to get a carseat for my son. Teh 7th time i got yes its possible to get

> medicaid to pay . you have to find a provider that will bill medicaid,

> apply, get a preccription for it etc........and we are currently in that

> process.

>

> ---------------------------------

> Finding fabulous fares is fun.

> Let Yahoo! FareChase search your favorite travel sites to find flight and

> hotel bargains.

>

>

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I think you are referring to the CLASS program which is a state-waiver

program that has nothing to do with how much income you make.

http://www.dads.state.tx.us/providers/CLASS/index.cfm

Re: SSI benefits

>

> Well its hard to give an exact amount or cuttoff or whatever. I have a 5

> year old autistic boy who is nonverbal. We are extremely blessed and were

> approved for SSI the first time we applied. they look at the severity,

> your family income and how many dependants you have and what you have in

> assets. In most states, texas included you automaticly receive medicaid if

> you get ssi. Even if you have private insurance this can be a bllessing

> because medicaid will covers things your private insurance dosent like

> co---pays.

>

>

>

> ------------ --------- --------- ---

> The fish are biting.

> Get more visitors on your site using Yahoo! Search Marketing.

>

>

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No, no, there is another one that will help out with copays and deductibles

for people who have private insurance that covers some things.

You told me about it, - Do you know what I'm talking about?

Re: SSI benefits

I think you are referring to the CLASS program which is a state-waiver

program that has nothing to do with how much income you make.

http://www.dads.state.tx.us/providers/CLASS/index.cfm

Re: SSI benefits

>

> Well its hard to give an exact amount or cuttoff or whatever. I have a 5

> year old autistic boy who is nonverbal. We are extremely blessed and were

> approved for SSI the first time we applied. they look at the severity,

> your family income and how many dependants you have and what you have in

> assets. In most states, texas included you automaticly receive medicaid if

> you get ssi. Even if you have private insurance this can be a bllessing

> because medicaid will covers things your private insurance dosent like

> co---pays.

>

>

>

> ------------ --------- --------- ---

> The fish are biting.

> Get more visitors on your site using Yahoo! Search Marketing.

>

>

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Here's the link:

http://www.socialsecurity.gov/applyfordisability/

> >

> > Hello listmates:

> >

> > I've heard differing information from various parents regarding the

> > eligibility of kids with autism for Social Security Disability

> > benefits.

> >

> > I would rather rely on the sage wisdom of my " autism cronies " than to

> > dig into the research myself (lazy? Perhaps :-).

> >

> > So - what's the word? Are our kids (under 18) eligible for SSI

> > benefits? And if so, is there any real benefit to be had there?

> >

> > I'd appreciate any information.

> >

> > As always, I thank Heaven for the very smart, very seasoned

parents on

> > the list!

> >

> > Thank you,

> > A. Weber

> >

>

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Guest guest

HIPP - That's it. I called about it, and you have to already have Medicaid to

use it. If I understand the program correctly, it sounds like something that

could be helpful to people who carry private insurance, cannot afford

deductibles and copays and have a hard time finding providers who accept

Medicaid.

Re: SSI benefits I think you are referring

to the CLASS program which is a state-waiver

program that has nothing to do with how much income you make.

http://www.dads.state.tx.us/providers/CLASS/index.cfm

Re: SSI benefits

>

> Well its hard to give an exact amount or cuttoff or whatever. I have a 5

> year old autistic boy who is nonverbal. We are extremely blessed and were

> approved for SSI the first time we applied. they look at the severity,

> your family income and how many dependants you have and what you have in

> assets. In most states, texas included you automaticly receive medicaid if

> you get ssi. Even if you have private insurance this can be a bllessing

> because medicaid will covers things your private insurance dosent like

> co---pays.

>

>

>

> ------------ --------- --------- ---

> The fish are biting.

> Get more visitors on your site using Yahoo! Search Marketing.

>

>

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Hi Ivy~

Even if you use your private insurance as your primary, if your providers accept

Medicaid, use it! It'll pay your copays and (usually) anything else your

primary

doesn't cover. Also, if you have a $500 deductible and your premiums are

accepted,

Medicaid will reimburse you for your private insurance premiums.

In addition to the $600 SSI benefit, Evan's Medicaid is picking up $100/month in

therapy copays (and $1000 in therapy after we max out his primary for therapy)

plus

$500 in insurance premiums. So, that's about $2000/month that we don't have to

earn.

SSI has definitely been worth the trouble for us!

Love,

Diane.

http://babiesonline.com/babies/e/evankyle

________________________________________________________________________________\

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Which Insurance do you have? Is it private or co-pay?

Chris

Re: SSI benefits

Hi Ivy~

Even if you use your private insurance as your primary, if your providers

accept

Medicaid, use it! It'll pay your copays and (usually) anything else your

primary

doesn't cover. Also, if you have a $500 deductible and your premiums are

accepted,

Medicaid will reimburse you for your private insurance premiums.

In addition to the $600 SSI benefit, Evan's Medicaid is picking up $100/month

in

therapy copays (and $1000 in therapy after we max out his primary for therapy)

plus

$500 in insurance premiums. So, that's about $2000/month that we don't have to

earn.

SSI has definitely been worth the trouble for us!

Love,

Diane.

http://babiesonline.com/babies/e/evankyle

__________________________________________________________

Yahoo! Music Unlimited

Access over 1 million songs.

http://music.yahoo.com/unlimited

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The HIPP (health insurance premium program) pays private insurance premiums if

you

qualify. The number is on the back of the Medicaid card.

Love,

Diane.

http://babiesonline.com/babies/e/evankyle

________________________________________________________________________________\

____

Be a PS3 game guru.

Get your game face on with the latest PS3 news and previews at Yahoo! Games.

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Guest guest

Isn't that funny? When I was in the process of getting the insurance

company to pay for ABA for my son, I was told by an insurance rep that

private insurance bases what they pay on what MEDICAID pays.

You know, I'm just beginning to think that these benefits people will say

whatever will get someone off the phone.

Oh, and Tricare, the insurance for the DoD--what covers all servicemen DOES

pay BCBAs and BCABAs despite them not being licensed.

S.

Re: SSI benefits

No they don't. The rule of thumb is MEDICAID usually pays what the

insurance pays. Most private insurances do not pay for ABA, and the reason

is the providers are not licensed.

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Hi Diane,

How do you get medicaid? I have a PPO and my son has tourettes and

Aspergers among other things. PPos do not cover a lot of the OT

therapy and speech therapy. From my understanding, you have to have

a family income under a certain amount. It kind of discouraged me.

Any advice?? My situation is kind of interseting.

Donna

>

> Hi Ivy~

>

> Even if you use your private insurance as your primary, if your

providers accept

> Medicaid, use it! It'll pay your copays and (usually) anything

else your primary

> doesn't cover. Also, if you have a $500 deductible and your

premiums are accepted,

> Medicaid will reimburse you for your private insurance premiums.

>

> In addition to the $600 SSI benefit, Evan's Medicaid is picking up

$100/month in

> therapy copays (and $1000 in therapy after we max out his primary

for therapy) plus

> $500 in insurance premiums. So, that's about $2000/month that we

don't have to earn.

> SSI has definitely been worth the trouble for us!

>

> Love,

>

> Diane.

> http://babiesonline.com/babies/e/evankyle

>

>

>

>

_____________________________________________________________________

_______________

> Yahoo! Music Unlimited

> Access over 1 million songs.

> http://music.yahoo.com/unlimited

>

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Guest guest

>

> Hi Diane,

>

> How do you get medicaid? I have a PPO and my son has tourettes and

> Aspergers among other things. PPos do not cover a lot of the OT

> therapy and speech therapy. From my understanding, you have to have

> a family income under a certain amount. It kind of discouraged me.

> Any advice?? My situation is kind of interseting.

Hi Donna~

Obiviously, getting SSI is the easiest way to get Medicaid. The

income limits on SSI are more generous than Medicaid's, too, although

you have to be pretty much broke for both. It sounds like with

Asperger's and Tourette's that your son should qualify for SSI.

Another thought is to get on the HCS and CLASS waiting lists. Those

are based on medical need and not income, but you could wait years for

those.

I understand why you're discouraged. The NICU applied for Evan's SSI

and we were notified when he was six months old that he was denied.

My husband was in denial (LOL) and we didn't appeal, but re-applied

when he was almost two and were approved. Nothing about having a

child with special needs is easy!

Love,

Diane.

http://www.babiesonline.com/babies/e/evankyle

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Social Security has an online screening tool at

https://s044a90.ssa.gov/apps7/best/benefits/index.cfm . This does NOT

apply you for benefits.

The actual SSI regulations are at

http://www.ssa.gov/OP_Home/cfr20/416/416-0000.htm

Tonya

Re: SSI benefits

Does anyone know off the top of their heads what the income limit is?

And do

they consider liabilities, or is it strictly income? (picture me rolling

my

eyes, too, that they don’t take into consideration our TWENTY-FOUR

THOUSAND

DOLLARS WORTH OF ANNUAL HEALTH INSURANCE PREMIUMS).

A. Weber

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Guest guest

Social Security has an online screening tool at

https://s044a90.ssa.gov/apps7/best/benefits/index.cfm . This does NOT

apply you for benefits.

The actual SSI regulations are at

http://www.ssa.gov/OP_Home/cfr20/416/416-0000.htm

Tonya

Re: SSI benefits

Does anyone know off the top of their heads what the income limit is?

And do

they consider liabilities, or is it strictly income? (picture me rolling

my

eyes, too, that they don’t take into consideration our TWENTY-FOUR

THOUSAND

DOLLARS WORTH OF ANNUAL HEALTH INSURANCE PREMIUMS).

A. Weber

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Qualify & Apply for SSI at http://www.ssa.gov/d & s1.htm

Tonya

Re: SSI benefits

Where would one find the 3660 form, perchance?

Thanks!

'Don't be humble. You're not that great.'

--- Golda Meir

Re: [Texas-Autism- Advocacy] SSI benefits

>

> Well its hard to give an exact amount or cuttoff or whatever. I have a

5

> year old autistic boy who is nonverbal. We are extremely blessed and

were

> approved for SSI the first time we applied. they look at the severity,

> your family income and how many dependants you have and what you have

in

> assets. In most states, texas included you automaticly receive

medicaid if

> you get ssi. Even if you have private insurance this can be a

bllessing

> because medicaid will covers things your private insurance dosent like

> co---pays.

>

>

>

> ------------ --------- --------- ---

> The fish are biting.

> Get more visitors on your site using Yahoo! Search Marketing.

>

>

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Guest guest

SSI has no generous income limits by me. At one point

for several months (2006), I had no income, no child

support, nothing and they said because I was supposed

to get 600 a monthchild support and because my parents

and I share a house that we do not qualify. Mind you,

we live in a 1400 sq ft wood frame home (25 year s

old) in the middle of the country. My father and

mother are both retired. Tehy have some big medical

needs too.

To date, I have never made even what the beginning

salary is for teachers in the State of Texas. So, we

do not even have a normal income for a family of 5.

I am the only source of income and they would not give

my daughter SSI or medicaid or anything.

A friend of mine in Copperfield and I were talking

about that and we know people who live where she lives

and have two professional incomes and they get it.

If anyone knows the secret, please tell me what it is.

Thanks,

Candis

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Guest guest

Candi,

I know this might cost some money, but have hired an attorney that

specializes in SSI? The attorney can appeal the denial.

Nagla

>

> SSI has no generous income limits by me. At one point

> for several months (2006), I had no income, no child

> support, nothing and they said because I was supposed

> to get 600 a monthchild support and because my parents

> and I share a house that we do not qualify. Mind you,

> we live in a 1400 sq ft wood frame home (25 year s

> old) in the middle of the country. My father and

> mother are both retired. Tehy have some big medical

> needs too.

>

> To date, I have never made even what the beginning

> salary is for teachers in the State of Texas. So, we

> do not even have a normal income for a family of 5.

>

> I am the only source of income and they would not give

> my daughter SSI or medicaid or anything.

>

> A friend of mine in Copperfield and I were talking

> about that and we know people who live where she lives

> and have two professional incomes and they get it.

>

> If anyone knows the secret, please tell me what it is.

>

> Thanks,

> Candis

>

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I heard somewhere (workshop??) that most people get turned down for SSI

on the first try and many times it takes 3 or more applications before

people get approved.

Tonya

Re: SSI benefits

SSI has no generous income limits by me. At one point

for several months (2006), I had no income, no child

support, nothing and they said because I was supposed

to get 600 a monthchild support and because my parents

and I share a house that we do not qualify. Mind you,

we live in a 1400 sq ft wood frame home (25 year s

old) in the middle of the country. My father and

mother are both retired. Tehy have some big medical

needs too.

To date, I have never made even what the beginning

salary is for teachers in the State of Texas. So, we

do not even have a normal income for a family of 5.

I am the only source of income and they would not give

my daughter SSI or medicaid or anything.

A friend of mine in Copperfield and I were talking

about that and we know people who live where she lives

and have two professional incomes and they get it.

If anyone knows the secret, please tell me what it is.

Thanks,

Candis

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Guest guest

Ditto, appeals are fairly straight forward to make on your own. I used to

work for

a group, and my boss had heard of several people get approved on appeal.

The key is that there has to be a documentable, large delay between what you

son can do versus what his same peers can do--that's usually the sticking

point to getting SSI for many applying for younger kiddos.

S.

Re: SSI benefits

SSI has no generous income limits by me. At one point

for several months (2006), I had no income, no child

support, nothing and they said because I was supposed

to get 600 a monthchild support and because my parents

and I share a house that we do not qualify. Mind you,

we live in a 1400 sq ft wood frame home (25 year s

old) in the middle of the country. My father and

mother are both retired. Tehy have some big medical

needs too.

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  • 3 years later...



I have been trying to navigate the SSA website to figure our which forms I will need to fill out. My son will turn 18 in January and I want to have everything lined up for SSI to get started. However, I can not figure out which forms i need to download. FYI, my son has never gotten SSI, so this is all new to us. He does get the Beckett Medicaid waiver. He has moderate to severe Autism. He is non verbal.

We also want to get a rental agreement in place so we may use that when we file. Could someone please help me figure this out?

Thanks very much,

Theree Sauls

ssi benefitsTo: autism-georgia Date: Sunday, September 5, 2010, 3:48 PMmy son's ssi application was approved (he just turned 18) and we received the first check. it is only $449. we expected $674. not sure what is going on. any ideas? can we appeal? how?

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