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I agree with Sara but have some thoughts to throw in....

> 1. Should I use lite or regular Myoplex formula? Or should I use

> lite sometimes in the day and regular other times?

This is from the EAS web site-

Myoplex Regular : 42 gr. of Protein and 24gr of Carbs

Myoplex Lite : 25gr of Protein and 20gr of Carbs

http://www.eas.com/q-a/questions.asp?category=4 & subCatList=4

" .................Most authorities today believe that endurance athletes and

bodybuilders require the most protein, and a very general recommendation now

is that these people should consume between 0.6 grams to 1 gram per pound of

body weight. Consuming a slightly higher amount of protein won't hurt you,

but very often you will see recommendations to consume significantly higher

amounts of protein (up to 2 grams or more per pound of body

weight)......... "

> Sorry about the length. I am 5'9/5/10ish. 202 Not horribly out of

> shape

For your requirements per the quote above: 202lbs/6 is about 36.7gr per

meal.

So, you fall in between the two. You can make upward adjustments with lowfat

milk or protein powder. You can't make downward adjustments but being high

by 5 gr. of protein is probably not a big deal.

The way I would go is to use protein powder and have it with a carb to make

a meal. Grams of carbs should be equal or a little less.

> 3. Once or twice a week, I get stuck in the office until 7-8:30pm.

> If I eat my last meal as soon as I get home how long do I have to

> wait to drink last shake? On these evenings, should I drink the

> last shake at work and then eat when I get home?

The " next " meal is not the problem. It's the time from the last meal. If you

wait to long before the next meal then your blood sugar drops. One of the

goals of eating small frequent meals (SFMs) is to promote steady blood sugar

levels so you don't crave the bad stuff. I would take an extra meal to work

with you.

Can of tuna and an Apple perhaps?

> 5. Should I use additional supplements or wait until I tweak plan

> after first 12 weeks??

I like Creatine.

Hope this helps.

- Albuquerque, NM

Yahoo Messenger: brianinaqb

C1W8D4.8889

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I am no expert on Myoplex vs Myoplex Lite, but if you

like the taste of Myopplex better and you want to lose

fat, then half it and use 1/2 a packet as a meal. I

think 1/2 packet is equivalent to Myoplex lite

> I also

> want to increase lean muscle mass and lose fat. >

> 1. Should I use lite or regular myoplex formula? Or

> should I use

> lite sometimes in the day and regular other times?

>

> Also, try to limit the bars. They have way too much

sugar, for days stuck late at the office, keep cans of

tuna or chicken and eat a piece of fruit.

__________________________________________________

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> Sorry for the repost. Didn't get a response.

Things can get a little " crazy " around here.

> Sorry about the length. I am 5'9/5/10ish. 202 Not horribly out of

> shape. Not defined. Goals for first challenge are to drop from 36

> waist to 34 and get weight from 202 to 180 (college weight). I also

> want to increase lean muscle mass and lose fat. I am fairly

> muscular but not defined. I also work a crazy schedule and travel a

> lot. This is why I have gone to 202.

OK, I'm going to be really blunt. A crazy schedule and travel is NOT

why you've gone to 202. The amount of calories in versus the amount

of calories out is the reason you've gained weight.

> 1. Should I use lite or regular myoplex formula? Or should I use

> lite sometimes in the day and regular other times?

Myoplex lite is designed for women. I suggest you stay away from Myo

lite.

>

> 2. I need to drink the ready made formulas during the day or eat

> the bars. Is this ok? I don't have access to blender at work.

Some bars are full of sugar or have hidden carbs with glycerine.

Stay away from RTD's unless it's an emergency. Why don't you buy a

blender for work? Whole foods are much better for you.

>

> 3. Once or twice a week, I get stuck in the office until 7-8:30pm.

> If I eat my last meal as soon as I get home how long do I have to

> wait to drink last shake? On these evenings, should I drink the

> last shake at work and then eat when I get home?

How soon are you hungry after your last meal? Eat every 2-3 hours.

>

> 4. What is the most effective way to self measure body fat %? Do

> calipers really work???

Calipers do work, but you need to educate yourself on how to use

them.

>

> 5. Should I use additional supplements or wait until I tweak plan

> after first 12 weeks??

What supplements are you using? Tweak? Don't tweak until after your

first challenge. Been there, done that, got burned. Follow the plan

as written.

MP

\^*^*^/

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Excellent. Thanks to all who responded. Some good advice.

particularly the comment about my late work hours and crazy schedule

not being resonsible for my weight gain :) My eating is!!!!

Thanks again all. Looking forward to starting my first challenge

regardless of logistical nightmares with my travel schedule. I am

committed to making it work!!!

> I agree with Sara but have some thoughts to throw in....

>

>

> > 1. Should I use lite or regular Myoplex formula? Or should I use

> > lite sometimes in the day and regular other times?

>

>

> This is from the EAS web site-

>

> Myoplex Regular : 42 gr. of Protein and 24gr of Carbs

> Myoplex Lite : 25gr of Protein and 20gr of Carbs

> http://www.eas.com/q-a/questions.asp?category=4 & subCatList=4

> " .................Most authorities today believe that endurance

athletes and

> bodybuilders require the most protein, and a very general

recommendation now

> is that these people should consume between 0.6 grams to 1 gram

per pound of

> body weight. Consuming a slightly higher amount of protein won't

hurt you,

> but very often you will see recommendations to consume

significantly higher

> amounts of protein (up to 2 grams or more per pound of body

> weight)......... "

>

> > Sorry about the length. I am 5'9/5/10ish. 202 Not horribly out of

> > shape

>

> For your requirements per the quote above: 202lbs/6 is about

36.7gr per

> meal.

> So, you fall in between the two. You can make upward adjustments

with lowfat

> milk or protein powder. You can't make downward adjustments but

being high

> by 5 gr. of protein is probably not a big deal.

> The way I would go is to use protein powder and have it with a

carb to make

> a meal. Grams of carbs should be equal or a little less.

>

> > 3. Once or twice a week, I get stuck in the office until 7-

8:30pm.

> > If I eat my last meal as soon as I get home how long do I have to

> > wait to drink last shake? On these evenings, should I drink the

> > last shake at work and then eat when I get home?

>

> The " next " meal is not the problem. It's the time from the last

meal. If you

> wait to long before the next meal then your blood sugar drops. One

of the

> goals of eating small frequent meals (SFMs) is to promote steady

blood sugar

> levels so you don't crave the bad stuff. I would take an extra

meal to work

> with you.

> Can of tuna and an Apple perhaps?

>

> > 5. Should I use additional supplements or wait until I tweak plan

> > after first 12 weeks??

>

> I like Creatine.

>

> Hope this helps.

>

> - Albuquerque, NM

> Yahoo Messenger: brianinaqb

> C1W8D4.8889

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  • 5 years later...
Guest guest

sorry, what county are you in?

Need HELP

OK, so I took everyone's advice on where to go for help for my severely

autistic out of control and self injurous daughter. I'm at my wits end, I

don't know what to do. I called everyone from MHMR to the austin state

school and hospital...and nobody is willing to or will offer me any advice

as to where I can send her. Everybody is saying that there is no residential

services for an 8 yr old who is not in foster or state care. Is that what I

have to do first? Call CPS on myself and tell them that I'm about to lose

it? Has any other parent been in this situation? Any advice would be greatly

appreciated.

Chris

---------------------------------

Ahhh...imagining that irresistible " new car " smell?

Check outnew cars at Yahoo! Autos.

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Guest guest

,

Bless you for answering...I live in Austin TX, travis county.

>

> sorry, what county are you in?

> Need HELP

>

>

> OK, so I took everyone's advice on where to go for help for my

severely

> autistic out of control and self injurous daughter. I'm at my wits

end, I

> don't know what to do. I called everyone from MHMR to the austin

state

> school and hospital...and nobody is willing to or will offer me

any advice

> as to where I can send her. Everybody is saying that there is no

residential

> services for an 8 yr old who is not in foster or state care. Is

that what I

> have to do first? Call CPS on myself and tell them that I'm about

to lose

> it? Has any other parent been in this situation? Any advice would

be greatly

> appreciated.

> Chris

>

> ---------------------------------

> Ahhh...imagining that irresistible " new car " smell?

> Check outnew cars at Yahoo! Autos.

>

>

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Guest guest

do you know about the San Marcos Treatment Center?

http://www.psysolutions.com/facilities/sanmarcos/

just check out the website, it says they take 11-17 year olds but I

am going to call them at 8am to speak with an Admissions rep about where an

8 year old girl could be placed. I will post again at that time. I am

sorry Advocacy, Inc. wasn't able to help you, that disappoints me too. Hang

on and I will let you know what SMTC says. One of my best friends used them

for her son and they were awesome, he was only there for about 3 weeks and

he was like another person. Who knows? Just hang on girl.

Dena

Need HELP

OK, so I took everyone's advice on where to go for help for my severely

autistic out of control and self injurous daughter. I'm at my wits end, I

don't know what to do. I called everyone from MHMR to the austin state

school and hospital...and nobody is willing to or will offer me any advice

as to where I can send her. Everybody is saying that there is no residential

services for an 8 yr old who is not in foster or state care. Is that what I

have to do first? Call CPS on myself and tell them that I'm about to lose

it? Has any other parent been in this situation? Any advice would be greatly

appreciated.

Chris

---------------------------------

Ahhh...imagining that irresistible " new car " smell?

Check outnew cars at Yahoo! Autos.

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Guest guest

Okay, I am some information from a treatment center that accepts 8

year olds, can you email me offline or call me?

Thanks, Dena

denal@...

Need HELP

OK, so I took everyone's advice on where to go for help for my severely

autistic out of control and self injurous daughter. I'm at my wits end, I

don't know what to do. I called everyone from MHMR to the austin state

school and hospital...and nobody is willing to or will offer me any advice

as to where I can send her. Everybody is saying that there is no residential

services for an 8 yr old who is not in foster or state care. Is that what I

have to do first? Call CPS on myself and tell them that I'm about to lose

it? Has any other parent been in this situation? Any advice would be greatly

appreciated.

Chris

---------------------------------

Ahhh...imagining that irresistible " new car " smell?

Check outnew cars at Yahoo! Autos.

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Guest guest

What about your special ed director? This is exactly the kind of

situation that non-ed funds are for. You could use that to at least

pay for some care to give you a break. Call her tomorrow and

tell her you are on the verge of placing your daughter, you need

the non-ed funds yesterday.

Also, check out the Children's Partnership. They serve children

who are at risk of residential placement due to mental health needs

http://www.childrenspartnership.com/index2.html But they

may have other restrictions.

princess.katana@... is the woman who runs it, and I

would suggest that you e-mail her tonight so that she has it

first thing in the morning. Yes, Princess Katana is her real name.

There is probably no better person in county to answer this

question or help you cut through the red tape.

Try that and let me know if that works or you need another lead.

In the meantime, I'll check with some other connections.

S.

Need HELP

>

>

> OK, so I took everyone's advice on where to go for help for my

severely

> autistic out of control and self injurous daughter. I'm at my wits

end, I

> don't know what to do. I called everyone from MHMR to the austin

state

> school and hospital...and nobody is willing to or will offer me

any advice

> as to where I can send her. Everybody is saying that there is no

residential

> services for an 8 yr old who is not in foster or state care. Is

that what I

> have to do first? Call CPS on myself and tell them that I'm about

to lose

> it? Has any other parent been in this situation? Any advice would

be greatly

> appreciated.

> Chris

>

> ---------------------------------

> Ahhh...imagining that irresistible " new car " smell?

> Check outnew cars at Yahoo! Autos.

>

>

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Guest guest

Michele,

My daughter was told that if she called CPS and gave up her son (15yrs -

PDD, AD/HD, BD & MD ) she would then have a police record and would not be

able to babysit any of the other grandchildren or be around any other

children. Is that true? She is desperately trying to find a place to put

but her insurance won't pay enough to put him anywhere. He has

already slashed up her mattress and she is beginning to be scared for

herself. A lot of people here have responded to my email about places but

they are either inappropriate for a 15 yr old, private pay or her insurance

won't cover it. And to be honest I have the other 15yr old whom is AD/HD,

ODD,

Bi-Polar, BD & MD, and also on probation. I have a kitchen wall w/ a

foot-hole in it, 2 cracked doors, a 3rd door frame cracked and a bathroom

door w/ a foot hole in it. He wouldn't do his school work in ps, kept

getting in trouble there so I took him out to homeschool and he is doing the

same here. Both boys are rude, disrespectful, beligerent, call us dirty

names, scream at us. This morning in the parking lot at the Dr.'s Brant was

screamming at me to shut up. Right in front of the MHMRA building. I was

just telling him he had to get out of the car to go on in or we were going

to be late for our appt. Then he lied to the Dr and told him that he(Brant)

was taking his meds 3 or 4 days a week. He has had that bottle for

3 weeks, it came w/ 45 pills in it and it still has 43. The 2 missing I

gave him the 1st day but he " cheeked " them. He won't do any chores like

take the kitchen trash out or anything that I ask him to do. Instead I get

screamed at and called names,

There are so many, many " lost " children that get no help no matter how hard

we try. what is wrong with our country that we can't get the medical

help our children need? I just don't understand it. Do 8 million of us

have to parade around the White House to even get a glance from

someone? Does every parent, in the U S, of a special needs child , have to

flood the White House w/ email to get someone to read a sentence? Do we

have to " pool " our nickles and pennies and start building our own

residential treatment centers to get noticed? The " Land of the Free " ? So

what do we end up with? Kids with guns, " baby " jails, alternative schools

w/ a pipeline to prison and don't even get started on TYC and that bunch.

My daughter and I are both ready to just give up. I'm getting too old and

have my own health issues not to mention losing my husband last year. I

don't even get time to grieve for my own. My daughter has a life

threatening disease and all the stress is making her sicker. So we die and

2 more mentally disturbed people are left on the streets. They'll end up in

prison, on drugs or both. Actually the one w/ PDD is already on drugs.

I'm actually not trying to say " AWW, poor us " . I'm just stating the obvious

and saying, " Poor them " . What a heartbreak the whole situation is for

everyone.

Dee C

>

> I have to say, that when I worked for CPS, there were a lot of parents

> who had to go with " refusal to accept parental responsibility " and basically

> give their children over to CPS so they could get the treatment they needed,

> not for autism specifically, but more for behavioral and emotional problems.

> Either the parents' insurance was maxed out or they didn't have any. I hope

> to see that Dena has some luck with the treatment center in San Marcos.

>

> Michele

>

> Dena LaRoux <denal@... <denal%40pensar2.com>> wrote:

> do you know about the San Marcos Treatment Center?

> http://www.psysolutions.com/facilities/sanmarcos/

> just check out the website, it says they take 11-17 year olds but I

> am going to call them at 8am to speak with an Admissions rep about where

> an

> 8 year old girl could be placed. I will post again at that time. I am

> sorry Advocacy, Inc. wasn't able to help you, that disappoints me too.

> Hang

> on and I will let you know what SMTC says. One of my best friends used

> them

> for her son and they were awesome, he was only there for about 3 weeks and

> he was like another person. Who knows? Just hang on girl.

> Dena

>

> Need HELP

>

> OK, so I took everyone's advice on where to go for help for my severely

> autistic out of control and self injurous daughter. I'm at my wits end, I

> don't know what to do. I called everyone from MHMR to the austin state

> school and hospital...and nobody is willing to or will offer me any advice

> as to where I can send her. Everybody is saying that there is no

> residential

> services for an 8 yr old who is not in foster or state care. Is that what

> I

> have to do first? Call CPS on myself and tell them that I'm about to lose

> it? Has any other parent been in this situation? Any advice would be

> greatly

> appreciated.

> Chris

>

> ---------------------------------

> Ahhh...imagining that irresistible " new car " smell?

> Check outnew cars at Yahoo! Autos.

>

>

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Guest guest

WHERE DO YOU LIVE AND WHAT FACILITIES ARE YOU REFERING TO????

CORINNE

_____

From: Texas-Autism-Advocacy

[mailto:Texas-Autism-Advocacy ] On Behalf Of Lee

Sent: Tuesday, April 17, 2007 7:44 AM

To: texas-autism-advocacy

Subject: need help

The problem with a lot of facilities is that they only take kids with an IQ

of above at least 50. My daughter is not functioning at that level yet. She

is severely autistic...and no one is willing to take her...I don't know what

to do. I feel so desperate.

Chris

---------------------------------

Ahhh...imagining that irresistible " new car " smell?

Check outnew cars at Yahoo! Autos.

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Guest guest

I don't know if it's possible for you to move, but this school may be

good if you could: http://www.judgerc.org/ I'll be praying for

you.

> > do you know about the San Marcos Treatment Center?

> > http://www.psysolutions.com/facilities/sanmarcos/

> > just check out the website, it says they take 11-17 year

olds but I

> > am going to call them at 8am to speak with an Admissions rep

about where

> > an

> > 8 year old girl could be placed. I will post again at that time.

I am

> > sorry Advocacy, Inc. wasn't able to help you, that disappoints me

too.

> > Hang

> > on and I will let you know what SMTC says. One of my best friends

used

> > them

> > for her son and they were awesome, he was only there for about 3

weeks and

> > he was like another person. Who knows? Just hang on girl.

> > Dena

> >

> > Need HELP

> >

> > OK, so I took everyone's advice on where to go for help for my

severely

> > autistic out of control and self injurous daughter. I'm at my

wits end, I

> > don't know what to do. I called everyone from MHMR to the austin

state

> > school and hospital...and nobody is willing to or will offer me

any advice

> > as to where I can send her. Everybody is saying that there is no

> > residential

> > services for an 8 yr old who is not in foster or state care. Is

that what

> > I

> > have to do first? Call CPS on myself and tell them that I'm about

to lose

> > it? Has any other parent been in this situation? Any advice would

be

> > greatly

> > appreciated.

> > Chris

> >

> > ---------------------------------

> > Ahhh...imagining that irresistible " new car " smell?

> > Check outnew cars at Yahoo! Autos.

> >

> >

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Guest guest

Bayes Achievement Center in Huntsville is another possibility.

> > > do you know about the San Marcos Treatment Center?

> > > http://www.psysolutions.com/facilities/sanmarcos/

> > > just check out the website, it says they take 11-17

year

> olds but I

> > > am going to call them at 8am to speak with an Admissions rep

> about where

> > > an

> > > 8 year old girl could be placed. I will post again at that

time.

> I am

> > > sorry Advocacy, Inc. wasn't able to help you, that disappoints

me

> too.

> > > Hang

> > > on and I will let you know what SMTC says. One of my best

friends

> used

> > > them

> > > for her son and they were awesome, he was only there for about

3

> weeks and

> > > he was like another person. Who knows? Just hang on girl.

> > > Dena

> > >

> > > Need HELP

> > >

> > > OK, so I took everyone's advice on where to go for help for my

> severely

> > > autistic out of control and self injurous daughter. I'm at my

> wits end, I

> > > don't know what to do. I called everyone from MHMR to the

austin

> state

> > > school and hospital...and nobody is willing to or will offer

me

> any advice

> > > as to where I can send her. Everybody is saying that there is

no

> > > residential

> > > services for an 8 yr old who is not in foster or state care.

Is

> that what

> > > I

> > > have to do first? Call CPS on myself and tell them that I'm

about

> to lose

> > > it? Has any other parent been in this situation? Any advice

would

> be

> > > greatly

> > > appreciated.

> > > Chris

> > >

> > > ---------------------------------

> > > Ahhh...imagining that irresistible " new car " smell?

> > > Check outnew cars at Yahoo! Autos.

> > >

> > >

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  • 2 months later...
Guest guest

Hi , I'm sorry you're hurting so much. It may seem trite to say right

now, but it's true....This too shall pass. Sometimes, nothing seems to hurt so

much as a broken heart...and at the time, nothing does. But it's part of

life...and it's part of the journey for you to find the one you're meant to be

with. I'm sure he did love you, maybe still does, but it just wasn't right.

He's probably hurting too, but if he couldn't get past your past, then he's not

the right one for you. The right one will know that no one's perfect (including

himself) and accept you and love you flaws and all. And it will happen.

So for right now, know that you can always vent here...and cry here and we'll

cry with you. And go eat a big bowl of chocolate ice cream. I don't know why,

but it helps. And let yourself cry for a few hours, then pick yourself up and

get back out there with your friends. They love you and don't want you to hurt

either.

Good luck!

Need help

Hello. This is not really about still's but I dont know where else to go. I

have been with my boyfriend for over a year now and we at one point talked about

getting married and everything but then we starting fighting cause he doesnt

like my past. I was his first girlfriend ever at age 21. I love him to death.

Last night we got in a huge fight and he walked out and text me saying its over

and I am now lost and I dont know what to do. I spent A LOT of my time with him

and his friends and now im lost. I feel like I have nothing. I keep trying to

talk to him but he doesnt want to. It hurts cause I thought he loved me but I

dont see how if you love and care for someone how can u just stop talking to

them. I really don't know what to do and I am pretty positive im just going to

go into depression. Its only been a day and I miss him like fucking crazy.

nicole

---------------------------------

You snooze, you lose. Get messages ASAP with AutoCheck

in the all-new Yahoo! Mail Beta.

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Guest guest

,

I am so sorry about how your boyfriend left and that a text was how

he chose to communicate with you. It's totally okay that you are

heart broken and feel lost and lonely - and very, very normal. As

each day passes the pain will deaden a little and you'll be able to

see a little clearer. For now, focus on you and what you need to do

for yourself. It's okay to have a little pity party - eat chocolate

ice cream like someone else said. at the same time, you are a

wonderful, beautiful person who deserves to treat herself right.

Indulge in something for yourself that you know will make you feel

better and focus each day on YOU.

I do know what it's like to have to separate from someone you love

who also loves you deeply. Sometimes things just don't work out -

no matter how much you love each other. And i know just how hard

that is to accept.

Keep writing us, get out of the house with your friends and/or

family. And if you feel like you need to, seek professional help to

just have someone to talk to about all your feelings and emotions.

Thinking of you,

Houston, TX

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Guest guest

((()))

I can really empathise with you on this. I was with my girlfriend/fiancé

for nearly 5 years, we'd had some of the best times together and were

planning our future together, we even had our wedding day booked (would

have been next month) and kids planned.

I loved her to bits (and still do if I'm honest) and she clearly loved me

too, but she said she couldn't deal with my past either - I have an ex-wife

(who is no " trouble " ) and a 10y/o daughter who is a sweetheart. My

daughter and my fiancé got on like a house on fire, but my fiancé said she

couldn't get past the fact that I would not be having my first child with her.

Unfortunately my fiancé didn't have the courage to end things with me (not

even by text) but instead chose to let me discover her having an affair and

so force me to end it with her.

It's now been nearly 6 months since we split up and she says she still

loves me but of course she has burnt her bridges now and is living with the

man she cheated on me with. I can and have forgiven her but I know there is

no future for us anymore (for more reasons than I will go in to here) which

still causes me more pain than I care to admit.

She has caused me so much pain that I was tempted to withdraw and to never

risk exposing myself in such a way again, but then I thought what is life

without love? So I have decided to take the risk and be open to the

possibility of love with someone else again in the future, even though

right now I cannot ever see me loving someone so completely ever again, I

choose to believe that it can happen.

The first few days/weeks without her were hell but it definitely does get

easier. Some days I am so glad to be single and free to do as I wish and I

remember that our relationship was not all roses (who's is?) and of course

some days I am incredibly sad to be without her, but the sad days are fewer

and further apart now.

Unfortunately there is nothing anyone can really say or do to make

things better for you. You have to feel the pain and let your grief and

sense of loss out, it is the only way to heal, but be sure that you can and

will love again.

(((hugs)))

Graham (38)

West Sussex, UK

At 02:37 19/06/2007, you wrote:

>Hello. This is not really about still's but I dont know where else to go.

>I have been with my boyfriend for over a year now and we at one point

>talked about getting married and everything but then we starting fighting

>cause he doesnt like my past. I was his first girlfriend ever at age 21. I

>love him to death. Last night we got in a huge fight and he walked out and

>text me saying its over and I am now lost and I dont know what to do. I

>spent A LOT of my time with him and his friends and now im lost. I feel

>like I have nothing. I keep trying to talk to him but he doesnt want to.

>It hurts cause I thought he loved me but I dont see how if you love and

>care for someone how can u just stop talking to them. I really don't know

>what to do and I am pretty positive im just going to go into depression.

>Its only been a day and I miss him like fucking crazy.

>

>nicole

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Guest guest

Dear ,

I'm sorry about your problem, but it may be for the better. Becaure if he

really loved you, it wouldn't matter. Well my husband was the same way. And he

still holds it against me even after 21 years of marriage. Especially, when I

don't feel like having sex, he brings it all up. Well with depression, fibro,

stills, ibs, fatigue you really don;t have much energy for it. , you will

have to do alot of thinking and praying about this. I know you feel all alone,

but you do have friends here to listen to you. There is probably a better guy

out there for you, You don't want a marriage where your spouse is always hanging

something around. I should know, It really puts a strain and allot of hard

feelings in the marriage. well, I figured I would put my two cents in. I'll

say a prayer for you.

,

Watauga, TX

---------------------------------

Be a better Globetrotter. Get better travel answers from someone who knows.

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Guest guest

:

Wow that is just rude as far as I care and know. I also had it happen to me but

with an e mail. we had been together for 8 months .well now I am glad it did I

met and we are now married and have been together for 3 years now and I

am the happiest I have been with any one in my life. my first wife left me when

I became ill with stills this was after 26 years with her (19 1/2 married) she

did some very evil things including using the police to try and kill me . Stole

every thing from me including my kids. Then left me broke broken and penniless

and as sick as I had ever been in my life both mentally with a broken heart

after all she had me believing it was all me because I was the one that got sick

and could not work any more. And also physically with stills.

the biggest thing I learned on this journey was this " the human heart

is the most fragile and easily broken part of a person yet it is also the most

resilient and healable if you let it heal that is " I live by this and believe

it as tell I let my heart heal from my ex I really could not be with any one let

alone . I will tell you I loved my ex have forgave her but will never

forget what she did .I can be honest and say in some way be it sick or not I

still love her but know now that she never did me or will me . That was hard to

taste yet the sweetness and love of is the greatest I feel like a whole

and good man. And this was the gift she gave me love forgiveness and well just

an all around good old redneck woman who fits me to a tea better then any woman

I could have made for my self if I could have LOL. And unlike my ex every time

she gets upset with me I do not have to here about stuff from over 20 years

before. See my ex could not forgive nor

did she know how to compromise. it had to be her way and only her way and over

the years she got that more and more but divorcing me was the best gift she gave

me as she gave me \

As some say there are others out there some better and some not just keep

fishing tell you find the real keeper the one with heart mind morels and

forgiveness.

Hugs

Marty the old redneck

________________________________________________________________________________\

____

Boardwalk for $500? In 2007? Ha! Play Monopoly Here and Now (it's updated for

today's economy) at Yahoo! Games.

http://get.games.yahoo.com/proddesc?gamekey=monopolyherenow

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  • 1 year later...

When we last contacted them, Kyra was no longer the contact for families.  Here

is the person we spoke with last month.  I got her info from the Walsh Lab

website. 

 

  Barry

3 Blackfan Circle

CLS-14047

Boston, MA 02115

phone:

fax:

email: bbarry@...

 

 Hope this is helpful!

 

Kate Ramsdell

Subject: Need Help

To: polymicrogyria

Date: Wednesday, September 24, 2008, 8:38 AM

My son has bpp and I have been a member of this group for some time now (

haven't posted for a long time). had been seen in Boston back in 2004 and

now I'm trying to get him down there again and I keep calling and trying to get

Kira Apse but with no luck. Does anyone have a number?  started having

seizures around the time he turned 5 which was in November 2007. We started him

on meds in April and we are getting no where with them (he's on 3 different ones

right now). I'm at my wits end and feel so helpless.  I had wanted them under

control before he started kindergarten this fall. So I'm hoping Boston can shed

some light on this.

Thanks,

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We live in Boston and our daughter is 2.5 next month with BPP due to a

vascular malformation called Macrocephaly Capillary Malformation Syndrome (they

think she fits the criteria). She is followed by the Walsh Lab and we meet with

Barry yearly. We also are followed by Genetics there. has not had

seizures (yet), but the fear is always hanging over my head. Let me know if I

can be of any help.

 

, Mom to

 

From: Chrusciel <melissachrusciel@ yahoo.com>

Subject: Need Help

To: polymicrogyria@ yahoogroups. com

Date: Wednesday, September 24, 2008, 8:38 AM

My son has bpp and I have been a member of this group for some time now (

haven't posted for a long time). had been seen in Boston back in 2004 and

now I'm trying to get him down there again and I keep calling and trying to get

Kira Apse but with no luck. Does anyone have a number?  started having

seizures around the time he turned 5 which was in November 2007. We started him

on meds in April and we are getting no where with them (he's on 3 different ones

right now). I'm at my wits end and feel so helpless.  I had wanted them under

control before he started kindergarten this fall. So I'm hoping Boston can shed

some light on this.

Thanks,

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Hi ,

Just to let you know that I feel your pain.  My daughter is on three meds for

seizures right now - topomax, depikote and keppra and there are no results. 

This a.m. we got her a second EEG to see if she's having a new kind of

seizures.  We're just waiting for the results...

You're not alone.

Rochelle

Need Help

My son has bpp and I have been a member of this group for some time now (

haven't posted for a long time).. had been seen in Boston back in 2004

and now I'm trying to get him down there again and I keep calling and trying to

get Kira Apse but with no luck. Does anyone have a number?  started having

seizures around the time he turned 5 which was in November 2007. We started him

on meds in April and we are getting no where with them (he's on 3 different ones

right now). I'm at my wits end and feel so helpless.  I had wanted them under

control before he started kindergarten this fall. So I'm hoping Boston can shed

some light on this.

Thanks,

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Rochelle

 

Thanks for the email.  is also on keppra 7ml 2x daily, topamax 2x daily

and clonazepam 2x daily. We were giving him the depikote but I asked for him to

come off from that because of the risk involving the kidneys. I told our

neurologist he has enough going on now. We have another EEG scheduled for Oct 9.

Lets hope that will shed some light on this already tough matter.

 

Take care

Need Help

My son has bpp and I have been a member of this group for some time now (

haven't posted for a long time).. had been seen in Boston back in 2004

and now I'm trying to get him down there again and I keep calling and trying to

get Kira Apse but with no luck. Does anyone have a number?  started having

seizures around the time he turned 5 which was in November 2007. We started him

on meds in April and we are getting no where with them (he's on 3 different ones

right now). I'm at my wits end and feel so helpless.  I had wanted them under

control before he started kindergarten this fall. So I'm hoping Boston can shed

some light on this.

Thanks,

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My granddaughter (age 8) has band heterotopia, global involvement. The diagnosis

was made by Dr. Dobyns when she was 3. She began having seizures when she was 5

and they are still not completely controlled.

I have 3 questions:

The drs have recommended putting her on topomax in addition to the depacote

and keppra. What are the side effects? I have heard that topomax will impair her

memory and learning.

Anyone know of a " good " neurologist in New Jersey?

Boston has been mentioed. What hospital and doctor?

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My granddaughter (age 8) has band heterotopia, global involvement. The diagnosis

was made by Dr. Dobyns when she was 3. She began having seizures when she was 5

and they are still not completely controlled.

I have 3 questions:

The drs have recommended putting her on topomax in addition to the depacote

and keppra. What are the side effects? I have heard that topomax will impair her

memory and learning.

Anyone know of a " good " neurologist in New Jersey?

Boston has been mentioed. What hospital and doctor?

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  • 1 year later...

To make a long story short here goes. My hubby has Hep C, Cirrohis (stage 4

grade4), and 2 non cancerous cycts on his pancreas. He went thru 48 weeks of

pegasys and interferon. Undetectable at 12 weeks when he finished the treatments

the first test they did they found out the hep c was back. He had quit drinking

alcohol for 2 years. Well in the past several weeks he has starting drinking

again. A beer here a beer there now its everyday like he was 2 years ago. He has

a lot of the symptoms of hep c (sleeps alot, loss of appetite, memory problems,

depression, feels bad all the time, angry all the time) But he also has never

turned yellow or had a fluid problem. What I am looking for is if anyone has any

info or websites I can look at that explains the hep c and cirrohis along with

the alcohol and what will happen?? I'm really just wanting to know what to

expect next and how I can handle it.

I feel like I'm between a rock and a hard place. I have been supportive thru

everything. Been there when he was on treatment took care of everything. I

wanted him better. I still do. We just don't seem to be on the same page

anymore. The more I try to get him help the futher away from me he goes. Any

caregivers have any words of encouragement?? Cause I need it.

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