Re: very sad

February 22, 2007

Dearest Sharon;

I am so sorry that your at such a low these days. I really do understand. I

was 19 at onset and it was so very severe. There were many times on and off

that I felt such as you. Sometimes it helps to share with others and sometimes

nothing will help but you just have to battle through, please. None of us know

the reasons, and none of us know when and if it will get better but what I DO

know is that we are never alone!! We are all here and willing to listen and

help in any way we can, even if it's just talking through it every single day

until it gets better. My number is . I am awake for a while longer

or will be home tomorrow if you wish to call and talk. I'm in California so I'm

only at 10:20 here.

Please know we understand and don't be shy about calling.

Many hugs for you,

----- Original Message -----

From: Sharon

February 23, 2007

Hi Sharon,

I so wish I could give you a hug - sending one across the pond. I was diagnosed

with bad Endometriosis at the age of 22 and told it would be doubtful if I could

have kids. I never gave up hope and I now have two lovely little girls. I know

it is soooo hard to remain positive, I couldnt believe after all that, that I

was diagnosed with AOSD after 2nd one was born, but where there is a little

glimmer of hope - hold on to it with both hands and pull!!!

You are so young to be going through a tough time, and friends really dont get

it as they just cant empathise, but we all do so shout all you want!!!

You are in my prayers, and lets hope some improvement happens soon.

Love Ruth x

very sad

Dear Everyone, I have come to the conclusion that I am only going to

get worse as time goes on. I can't handle this snowballing effect of

health problems. The doc wants me to walk around but my ankle hurts

so badly and the fusion is so hard to get used to. I am afraid that

by the time I get a remission, I will have so much damage it wont

matter.

As depressed as I was I am only feeling sadder since this blood clot

thing. I have been hospitalized twice in one month and have nurses

come to my home twice a week for cumadin levels. I cant believe that

my doc misdiagnosed it and I caught it by chance when the hospital

did the CT scan.

I have found out that some of my chest pain is due to

costachondritis. I am only 34 and I am falling apart. I am upset too

because my sis in law is pregnant and I am afraid I wont be able to

carry never mind, raise a baby. On the other hand I am very happy for

her and am excited about a new baby in the family. It just seems to

hurt sometimes to see Moms w/ their babies. I feel really selfish and

mean that I think that way.

I am doing so badly right now. My body, throat and my tongue and

mouth hurts. My temp is jumping up and down. My skin feels so warm to

the touch. I am flaring and my insurance is really giving me the run

around so I am not on any still's meds. Sorry to complain. I just

feel so old at only 34 and trapped in my body. I talk to other

friends about it but they just dont get it! If I hear " I have

Arthritis in my knee " one more time after I tell someone I have

Still's , I will scream. Well I should go... I just cant seem to find

the old Bubbles that I used to be........

ï¿¼

February 23, 2007

Wow, honey, how awful for everything to smack you in the face all at once! And

what's with the insurance company? Do they not realize that without your meds

they will have to spend more? I hate pencil-pushers!!!

Hang in there, we love you and we understand it's not just about your knee...

Kisses & Hugs,

Gail

Sharon wrote: