Re: Need Advice

[Guest guest]

I don't take it but my doctor mentioned Topamax for weight loss. One side

effect is confusion, which I already have with the Celexa.

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need advice

My doctor has given me a new drug. I suffer from fibro .I have more

trust in my BB buddies than I have in the medical field. If anyone

has taken the medicine " Topamax " , let me know how it works. It is

suppose to help

with my pain. I had a bad experience with neurontin which is

similiar to topamax. My body reacts different to chemicals. If

anyone has any knowledge or first hand experience, I would greatly

appreciate it.

Di

[Guest guest]

Di

i've tried them both as well, and had a similar adverse reaction with

each. good luck.

lynnzee

[Guest guest]

My child does similar things. For him, it's OCD and control issues. OCD in that anything that's opened, like a CD case, has to be properly closed. And control-seeking behavior in that *he* wants to be the one to do it. At home, we allow him to remove the DVD as long as he asks nicely with no whining or temper tantrums and is completely supervised doing it. He then has to say "Thank You" for the privilege of touching *our* electronics. The DVD player is ours, not his, and we're firm on that as he needs to have respect for other people's stuff, especially expensive things! At school, he can ask nicely to help take the CD out, but it's not always his turn to be the helper. He loses a Skittle from his "bank" if he melts down, and that seems to be enough at this point. The need for sameness inside a particular activity is strong for him, and his

teachers and OT are working on lessening that. Talk to your son's OT/teachers to see if there's a method to use at home that mirrors what's at school - we've had the best results when we are identical to school. Good luck!

- mom to Bobby, age 7.5, dx "mild" classical autism at age 2, very sensory-seeking, talking lots, and thriving in a specialty classroom!Subject: Need AdviceTo: autism-georgia Date: Sunday, January 30, 2011, 10:17 PM

I wanted to see if I could get some advice from some of you who may have children that have or are experiencing the same type situation that my son (diagnosed with PDD at this point) is having. He is adamant that a DVD or CD MUST be taken out of the radio or DVD player when it is over. He basically stands in front of the TV or sits on the edge of the chair so that he can immediately turn the TV off and take the movie out when it is over. If for some reason someone stops it early or the movie runs past the certain point that he wants it to he has a meltdown that truly looks like fear and not a tantrum. At school this week the teacher has been playing CDs and he is ok if she stand by the radio but as soon as she walks away from the radio he has a meltdown. When we ask why he does this he says "because it will come on again if I don't turn it off". We cant decide it its a closure thing (he is big on closure) and if it comes on again he will

think he has to watch the whole thing again or if he thinks the batteries or power will run out if he doesn't stop it.

Just wondered if anyone had dealt with something similar or had advice for us and the teacher so that he doesn't disrupt the class and so he can break out of this fear. He usually has a quirk or obsession like this that last a few months and he moves on from it to something else.

Thanks-

Suzanne

[Guest guest]

Have you tried ABA? A good therapist might be able to implement a reward system and behavior plan to teach him a better way to respond when things don't go the way he wants / needs them to.

andi

To: autism-georgia Sent: Sun, January 30, 2011 10:17:59 PMSubject: Need Advice

I wanted to see if I could get some advice from some of you who may have children that have or are experiencing the same type situation that my son (diagnosed with PDD at this point) is having. He is adamant that a DVD or CD MUST be taken out of the radio or DVD player when it is over. He basically stands in front of the TV or sits on the edge of the chair so that he can immediately turn the TV off and take the movie out when it is over. If for some reason someone stops it early or the movie runs past the certain point that he wants it to he has a meltdown that truly looks like fear and not a tantrum. At school this week the teacher has been playing CDs and he is ok if she stand by the radio but as soon as she walks away from the radio he has a meltdown. When we ask why he does this he says "because it will come on again if I don't turn it off". We cant decide it its a closure thing (he is big on closure) and if it comes on again he will think he has

to watch the whole thing again or if he thinks the batteries or power will run out if he doesn't stop it.Just wondered if anyone had dealt with something similar or had advice for us and the teacher so that he doesn't disrupt the class and so he can break out of this fear. He usually has a quirk or obsession like this that last a few months and he moves on from it to something else.Thanks-Suzanne

[Guest guest]

Thank you ....I think we may have had a " break thru " tonight. We were

able to get through the entire CD finally.....it took close to 2 hours but we

made it and then he said (as he copied " kevin " from Home Alone the Movie... " I'm

not afraid anymore....did you hear me, I said I'm not afraid anymore " ...it was

cute!

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> Subject: Need Advice

> To: autism-georgia

> Date: Sunday, January 30, 2011, 10:17 PM

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> I wanted to see if I could get some advice from some of you who may have

children that have or are experiencing the same type situation that my son

(diagnosed with PDD at this point) is having. He is adamant that a DVD or CD

MUST be taken out of the radio or DVD player when it is over. He basically

stands in front of the TV or sits on the edge of the chair so that he can

immediately turn the TV off and take the movie out when it is over. If for some

reason someone stops it early or the movie runs past the certain point that he

wants it to he has a meltdown that truly looks like fear and not a tantrum. At

school this week the teacher has been playing CDs and he is ok if she stand by

the radio but as soon as she walks away from the radio he has a meltdown. When

we ask why he does this he says " because it will come on again if I don't turn

it off " . We cant decide it its a closure thing (he is big on closure) and if it

comes on again he will

> think he has to watch the whole thing again or if he thinks the batteries or

power will run out if he doesn't stop it.

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> Just wondered if anyone had dealt with something similar or had advice for us

and the teacher so that he doesn't disrupt the class and so he can break out of

this fear. He usually has a quirk or obsession like this that last a few months

and he moves on from it to something else.

>

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>

> Thanks-

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> Suzanne

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[Guest guest]

Suzanne,

That's great! Always happy to hear good news - mom to Bobby, age 5.5, dx "mild" classical autism at age 2, very sensory-seeking, talking lots, and thriving in a specialty kindergarten!

Subject: Re: Need AdviceTo: autism-georgia Date: Monday, January 31, 2011, 10:34 PM

Thank you ....I think we may have had a "break thru" tonight. We were able to get through the entire CD finally.....it took close to 2 hours but we made it and then he said (as he copied "kevin" from Home Alone the Movie..."I'm not afraid anymore....did you hear me, I said I'm not afraid anymore"...it was cute!> > > Subject: Need Advice> To: autism-georgia > Date: Sunday, January 30, 2011, 10:17 PM> > > > > > > > Â > > > > > > > > > > I wanted to see if I could get some advice from some of you who may have children that have or are experiencing the same type situation that my son (diagnosed with PDD at this point) is having. He is adamant that a DVD or CD MUST be taken out of the radio or DVD player when it is over. He basically stands in front of the TV or sits on the edge of the

chair so that he can immediately turn the TV off and take the movie out when it is over. If for some reason someone stops it early or the movie runs past the certain point that he wants it to he has a meltdown that truly looks like fear and not a tantrum. At school this week the teacher has been playing CDs and he is ok if she stand by the radio but as soon as she walks away from the radio he has a meltdown. When we ask why he does this he says "because it will come on again if I don't turn it off". We cant decide it its a closure thing (he is big on closure) and if it comes on again he will> think he has to watch the whole thing again or if he thinks the batteries or power will run out if he doesn't stop it.> > > > Just wondered if anyone had dealt with something similar or had advice for us and the teacher so that he doesn't disrupt the class and so he can break out of this fear. He usually has a quirk or obsession

like this that last a few months and he moves on from it to something else.> > > > Thanks-> > Suzanne>

[Guest guest]

I think it is very common to feel like you are walking on eggshells and for new

things to pop up all the time. We have had both of those things and I hear it on

the group all the time too. Is he in therapy and if so what kind? CBT/ERP is

the only kind proven to work for OCD. Is he on meds? Is he being treated for

PANS with antibiotics or IVIG? Are you able to find a good OCD therapist for a

young child where you live? If so, I would ask the therapist for suggestions on

how to do ERP on this type of thing. If not, you could do a little research and

begin it yourself. I dont want to get into the whole thing about how you might

do ERP for this if you already know, but I do have some thoughts about it if you

want to hear them- let me know. I would certainly start by getting good books

both for him and you on the subject (what to do when your brain gets stuck, What

to do if your child has OCD, up ad down the worry hill etc- I think there is a

list in the files section) Hang in there- it is a hard road, but many before

have gotten over the mountain and are now living a somewhat peaceful existence (

at least for the moment). Just know you are not alone

>

> My 6 yr old son with autism, OCD, pans, and severe

> Anxiety seems to have a new problem come

> Up everyday. For the past couple of weeks

> He won't watch tv unless he can eat. He is on

> Medication for an ulcer so he can't eat within

> 2 hrs of a dose. If its not time to eat he refuses to watch

> Tv. Normally u would say great my kid doesn't

> Want to watch tv but my son obsesses on the fact

> That he can't eat or watch tv until he can eat. Now...

> Tonite I give him dinner at the tv and 10 minutes

> Later I come in and he isn't eating. Something in his

> Show grossed him out or upset him somehow

> And he couldn't eat. It was pasta one of about

> 5 foods that he eats. He has fear of tasting new things

> And sensory issues. He doesn't have rituals he just

> Gets stuck on thoughts and at times he can't function

> From all the thoughts in his brain ( usually when

> He is sick ( Pans) that the OCD gets so severe.

> I'm living on egg shells and feel she'll shocked most of the

> Time. Was in hospital with him for two days last week

> Due to dehydration and gastritis and he was an anxious

> Mess the Entire time, it was horrible. I just feel

> That I get started with one thing and am waiting

> For the next thing if that makes any sense. I'm babbling.

> Debbie

>