Re: Janet

[Guest guest]

Janet

Wishing you the best of luck with everything, and be sure to take care

of yourself.

Will keep you in my thoughts and prayers.

Sandie

Des Moines, IA - whose mom's maiden name was s

[Guest guest]

Jan:

I do not know your husband and I don't know how he would react if you

were to do what I'm about to suggest but I'm going to suggest anyway.

I think it's absolutely mandatory for you to get some time for

yourself and send your husband to a day program. You have no help.

Your husband and his toileting keeps you up on a nightly basis.

You've already told us he is becoming increasingly reliant on you to

be there at all times. The way I see it, you don't have a choice.

He may hate it or he may in time come to look at this as just part of

his routine. You can tell him whatever it takes for him to perhaps

be more comfortable with your decision but you must make some time

for yourself before you spontaneously combust. You cannot keep this

pace under these circumstances for very long. Of course you become

frustrated - you are only mortal in spite of the fact that this

illness demands superhuman diligence, love and strength.

Please give yourself a break. Like many others on this site do I'm

sure, I worry about you any time I read posts like the one I just did

wherein you sound so completely overwhelmed.

I promise you you'll be a better caregiver if you remember yourself

from time to time.

Just my two cents,

Abby

[Guest guest]

Jan:

I do not know your husband and I don't know how he would react if you

were to do what I'm about to suggest but I'm going to suggest anyway.

I think it's absolutely mandatory for you to get some time for

yourself and send your husband to a day program. You have no help.

Your husband and his toileting keeps you up on a nightly basis.

You've already told us he is becoming increasingly reliant on you to

be there at all times. The way I see it, you don't have a choice.

He may hate it or he may in time come to look at this as just part of

his routine. You can tell him whatever it takes for him to perhaps

be more comfortable with your decision but you must make some time

for yourself before you spontaneously combust. You cannot keep this

pace under these circumstances for very long. Of course you become

frustrated - you are only mortal in spite of the fact that this

illness demands superhuman diligence, love and strength.

Please give yourself a break. Like many others on this site do I'm

sure, I worry about you any time I read posts like the one I just did

wherein you sound so completely overwhelmed.

I promise you you'll be a better caregiver if you remember yourself

from time to time.

Just my two cents,

Abby

[Guest guest]

I second everything that Abby has said. You are too important to you

husband to burn out. In order to properly care for him, you must first care

for you.

Kath

Re: Janet

> Jan:

>

> I do not know your husband and I don't know how he would react if you

> were to do what I'm about to suggest but I'm going to suggest anyway.

>

> I think it's absolutely mandatory for you to get some time for

> yourself and send your husband to a day program. You have no help.

> Your husband and his toileting keeps you up on a nightly basis.

> You've already told us he is becoming increasingly reliant on you to

> be there at all times. The way I see it, you don't have a choice.

>

> He may hate it or he may in time come to look at this as just part of

> his routine. You can tell him whatever it takes for him to perhaps

> be more comfortable with your decision but you must make some time

> for yourself before you spontaneously combust. You cannot keep this

> pace under these circumstances for very long. Of course you become

> frustrated - you are only mortal in spite of the fact that this

> illness demands superhuman diligence, love and strength.

>

> Please give yourself a break. Like many others on this site do I'm

> sure, I worry about you any time I read posts like the one I just did

> wherein you sound so completely overwhelmed.

>

> I promise you you'll be a better caregiver if you remember yourself

> from time to time.

>

> Just my two cents,

>

> Abby

>

>

> Welcome to LBDcaregivers.

>

>

>

>

>

[Guest guest]

Dear Jan:

I agree with Abby. You need to get your husband to daycare so you can have

some real rest on a daily basis, preferably.

The reason you loose your patience is SLEEP DEPRIVATION. You cannot be

yourself if you are not getting enough sleep. The day care is necessary so that

both of you can continue to have the life you have now. Yes, you will burn out

without enough sleep. Your body cannot take this pace. Your husband will get

used to this place, just insist on it until he adapts.

Take care, love,

Josie

[Guest guest]

Dear Jan:

I agree with Abby. You need to get your husband to daycare so you can have

some real rest on a daily basis, preferably.

The reason you loose your patience is SLEEP DEPRIVATION. You cannot be

yourself if you are not getting enough sleep. The day care is necessary so that

both of you can continue to have the life you have now. Yes, you will burn out

without enough sleep. Your body cannot take this pace. Your husband will get

used to this place, just insist on it until he adapts.

Take care, love,

Josie

[Guest guest]

Thanks for the info on Byetta. Going to see if I can be switched to it. I've

gained weight with the Duetact medication, and any medication that helps with

weight loss will be great.

---- anne wrote:

> If I know our Janet, she'll keep her BG's in such tight control during this

trial, they won't DARE misbehave! And remember those Sundaes can be virtual and

sugar-free!

>

> We're with you every step of the way hon!

>

> Lubs ya!

>

> anne

>

> " You can conquer almost any fear

> if you will only make up your mind to do so.

> Remember, fear doesn't exist anywhere

> except in the mind. "

> [Hepatitis_C_ Central] Quitting Treatment

> To: Hepatitis_C_ Central@yahoogro ups.com

> Date: Thursday, April 2, 2009, 12:56 PM

>

>

> Well, been quite a roller coaster day so far. My PA called

and said that since my viral load isn't clear that they are taking me off of

treatment. I asked if I could at least finish the month of medications that I

already have and then check it again and she said " no, you're done. You're a

nonresponder. "

> O.K...I have been preparing myself mentally for this and

was really kind of giddy at the thought of no more meds! I can get my hair dyed

again. I can get off of the sofa!

> Then...she called back and said that she talked to my GI

doc and she agreed that I could continue until 6 months were up and then if I

haven't cleared it's over. But that I may never clear because they consider me a

nonresponder and I could just be poisoning myself for nothing.

> I asked the GI Doc to call me so I will wait to hear more

from her but was told that it wouldn't be much different than what I already

know.

> So....I need your input. Would any of you quit now or

continue on to the 6 months? I'm at Stage 2 liver damage.

> Thanks for your help...Tricia

>

>

>

>

>

>

>

[Guest guest]

Girl I have found some sugar free ice cream that is the bomb and some sugar free hot fudge.

That with some sugar free whip topping I have it made in the shade.

Love

Janet

"There are souls in this world that have the gift of finding joy everywhere and of leaving it behind them when they go"

Frederick Faber

From: treadle1950 <treadle1950@ comcast.net>Subject: [Hepatitis_C_ Central] Quitting TreatmentTo: Hepatitis_C_ Central@yahoogro ups.comDate: Thursday, April 2, 2009, 12:56 PM

Well, been quite a roller coaster day so far. My PA called and said that since my viral load isn't clear that they are taking me off of treatment. I asked if I could at least finish the month of medications that I already have and then check it again and she said "no, you're done. You're a nonresponder. "O.K...I have been preparing myself mentally for this and was really kind of giddy at the thought of no more meds! I can get my hair dyed again. I can get off of the sofa!Then...she called back and said that she talked to my GI doc and she agreed that I could continue until 6 months were up and then if I haven't cleared it's over. But that I may never clear because they consider me a nonresponder and I could just be poisoning myself for nothing. I asked the GI Doc to call me so I will wait to hear more from her but was told that it wouldn't be much different than what I already know.So....I need your input. Would any of you quit now

or continue on to the 6 months? I'm at Stage 2 liver damage. Thanks for your help...Tricia

[Guest guest]

WAHOO!!! Know this is what you want, so am sure happy for you!

From: Janet <doc_jadeyahoo (DOT) com>Subject: Re: [Hepatitis_C_ Central] my goodbye presentTo: Hepatitis_C_ Central@yahoogro ups.comDate: Friday, September 4, 2009, 2:10 PM

Hon,

There is a number of ways that you can get the virus. Using another persons toothbrush,nail clippers,using his razor.

Plus the ways that the CDC says you can get the virus.

I have been married to the same man for 28 plus years. He does not have the virus, he gets tested every year. We do not use condoms during intimacy. You don't have to worry about getting into a new relationship, you don't have to be a loner. Just your toothbrush is your toothbrush, your nail clippers are yours and so forth. I wouldn't want to share those items anyway. And sharing a razor, no way!!

If you cut yourself and have to clean up a blood spill make sure that you clean it with a bleach solution.

Hope this helps.

Love

Janet

"There are souls in this world that have the gift of finding joy everywhere and of leaving it behind them when they go"

Frederick Faber

From: vkitakat2008 <vkitakat2008@ yahoo.com>To: Hepatitis_C_ Central@yahoogro ups.comSent: Friday, September 4, 2009 1:47:21 PMSubject: [Hepatitis_C_ Central] my goodbye present

i was in a 2 yr relationship with this guy , i had to end it,there was more to him than i wanted to know,as in bipolar disorder, so when i ended the relationship, he gave me the news that he had hep c, i got myself tested, it was confirmed that i had it, in my last relationship, i was also tested, i was negative, what im wondering is how i got it,being that sexual transmission is slim and nil,not sure what the percentage is for that, and what the other possibilities are, also, id like to know how soon via bloodtest can it be confirmed, i want to eventually get in a relationship, but i dont want to present a risk to my partner if i were to,ill live alone if i have to,to prevent that from happening,my genotype is 1a,im at wits end about this. please help me!

[Guest guest]

What a Blessing, to have a partner to help you through!

Take care of you..

Love,

Sheena

Luiz,

I have the same problem going on. And those other problems that you mentioned. LOL

Actually today had lots of muscle aches so much so I spent most of the day in bed.

I am on week 14. I have found that if I keep a been drinking ginger tea and that seems to help in many ways. It helps with the nausea and my throat too. Keep some cough drops available I used them last time and it helped alot. Now I am using sugar free hard candy, I am a diabetic and just watching the sugar levels.

Good Luck Luiz.

Love

Janet

"There are souls in this world that have the gift of finding joy everywhere and of leaving it behind them when they go"

Frederick Faber

From: Luiz C Laba <brazeagleyahoo (DOT) com>To: Hepatitis_C_ Central@yahoogro ups.comSent: Sat, January 2, 2010 2:57:30 PMSubject: [Hepatitis_C_ Central] 11 weeks (2010 update)

Hello everyone, I have started my tx 11 weeks ago, since the 2 week, I have developed cankers (Afta Stomacali) in my throat, sometimes deep inside, went to different doctors (specialists) was given antibiotics, syrups, etc...nothing helped, actually it just made it worse. My liver doctor thinks it is to do with dryness, however I always drink at least 3 litters of water a day and even bought a humidifier to help at night...nothing helped and here I am living with this unsolved problem besides many others that it is not worth mentioning, I guess you all are used to them as well. Anyone could give me information about this issue. Thank you and a happy 2010 to all. Best Luiz Member of "Aircraft Owners & Pilots Association""ISASI - International Society of Air Safety Investigators""Aviation Safety Foundation donor Member""FAA Safety Team"

[Guest guest]

Janet, I'm glad to hear you are half way through; you are a trouper. I think of you because I also went thru a trial with the protease inhibitor and I know you're going to have success this time!Just in case you, or anyone else, is interested, here's an easy smoothy recipe that my son gave me. I don't know what I would have done during tx without a smoothie on most days and it was one of the few things that didn't have a horrible flavor to me. 1 C ice1 and 1/3 C apple juice1 heaping spoonful each: mango sorbet, strawberry sorbet1/2 C frozen strawberries1/2 C frozen peachesAdd to blender and blend 'til smooth. You can tweak it by changing the fruits around. I imagine you could add some protein powder. It's easy and when you're on tx, you need easy.Hugs, Leigh Oh yeah know what you are talking about. I lost 10 lbs in one weeks time. Not that I didn't need to lose it. I have a few extra lbs that I can lose just don't like lossing them that way. Yes, it is the Copegus that cause the nausea. Like one of the other member said, ginger tea or ginger ale help alot. I buy diet ginger ale by the 2 liter bottles, usually enough to last till next payday. Do not like to be without my ginger ale. I sip it slowly when I am sick at my stomach. Someone suggested smoothies, Oh that is a great idea. I got one the other day when I was feeling ill at the grocery store. Kept me from being embrassed by throwing up in the store. I just sat down and slowly sipped it. It helped a lot.Soups,broths and noodles are tolerable to me when nothing elses sounds good. Good luck hon, I am half way though 48 weeks. We will come out of this victorious!!LoveJanet>> I started treatment on Friday, March 12. I made it through the flu-like> symptoms. My appetite is not good due to nausea. Does Copegus cause> nausea? I get a headache and fatigue about an hour after taking Copegus> I know I need to eat to help fight fatigue.> > Do you have suggestions for food besides crackers? I am sick of crackers> already! I am going to the grocery store today. I need something that is> nutritious. Crackers are not!> > > -- > Deborah>

[Guest guest]

Thanks Leigh,

I think those of us in the clinical trial are the lucky ones because like you I think this is the treatment that is going to work for me.

I am going to try that smoothie recipe.

Love

Janet

"There are souls in this world that have the gift of finding joy everywhere and of leaving it behind them when they go"

Frederick Faber

To: Hepatitis_C_Central Sent: Mon, March 15, 2010 5:09:26 PMSubject: Re: Janet

Janet, I'm glad to hear you are half way through; you are a trouper. I think of you because I also went thru a trial with the protease inhibitor and I know you're going to have success this time!

Just in case you, or anyone else, is interested, here's an easy smoothy recipe that my son gave me. I don't know what I would have done during tx without a smoothie on most days and it was one of the few things that didn't have a horrible flavor to me.

1 C ice

1 and 1/3 C apple juice

1 heaping spoonful each: mango sorbet, strawberry sorbet

1/2 C frozen strawberries

1/2 C frozen peaches

Add to blender and blend 'til smooth.

You can tweak it by changing the fruits around. I imagine you could add some protein powder. It's easy and when you're on tx, you need easy.

Hugs, Leigh

Oh yeah know what you are talking about. I lost 10 lbs in one weeks time. Not that I didn't need to lose it. I have a few extra lbs that I can lose just don't like lossing them that way. Yes, it is the Copegus that cause the nausea.

Like one of the other member said, ginger tea or ginger ale help alot. I buy diet ginger ale by the 2 liter bottles, usually enough to last till next payday. Do not like to be without my ginger ale. I sip it slowly when I am sick at my stomach.

Someone suggested smoothies, Oh that is a great idea. I got one the other day when I was feeling ill at the grocery store. Kept me from being embrassed by throwing up in the store. I just sat down and slowly sipped it. It helped a lot.

Soups,broths and noodles are tolerable to me when nothing elses sounds good.

Good luck hon, I am half way though 48 weeks. We will come out of this victorious!!

Love

Janet>> I started treatment on Friday, March 12. I made it through the flu-like> symptoms. My appetite is not good due to nausea. Does Copegus cause> nausea? I get a headache and fatigue about an hour after taking Copegus> I know I need to eat to help fight fatigue.> > Do you have suggestions for food besides crackers? I am sick of crackers> already! I am going to the grocery store today. I need something that is> nutritious. Crackers are not!> > > -- > Deborah>