hello

[Guest guest]

You have no idea how difficult it is for me to behave myself. I was

being inappropriate today at work, but luckily it was in the doctors'

room and the men were ignoring me. lol

marta

>

> You just need some bangers and mash! :-)

[Guest guest]

Marta,

Well...I may have missed the opportunity to beg, whine and grovel.

But I am available if anyone else gets rude and makes you feel

anything but ABSOLUTELY VITAL around here.

While I'm glad your absence was short-lived, I would rather have seen

it take place during the daylight hours of your pool party. NOW that

the problem appears to have resolved, I have to resume looking for my

knee-length bathing suit. This is distressing. I'd like you to agree

that in the event you feel unloved again and want to take a little

time out, you'll just lock us all out during the daylight hours of the

pool party. That would make my life easier.

Now, this part about the men ignoring you? MWAH HAHAHA HAHAHA HA HA HA

Sue

> >

> > You just need some bangers and mash! :-)

>

[Guest guest]

NOW that the problem appears to have resolved, I have to resume

looking for my knee-length bathing suit. This is distressing. I'd

like you to agree that in the event you feel unloved again and want to

take a little time out, you'll just lock us all out during the

daylight hours of the pool party. That would make my life easier.

Hi Sue,

Just do what I do. I wear a tankini or bikini top and mens board

shorts. It covers my grotesque legs and I get to swim without being

self concious. Lots of young skinny girls do this, ( I see them all

over the place in Hawaii). So this middle aged woman doesnt look out

of place.

Besides at Martas pool party there are all sizes. Pre DS and post DS.

We have all been there, and there is no judgement, or embarrassment

at all.

Just friends.\

hth

Sharon in Onyx

[Guest guest]

Hi Sue!

Sharon is correct, for those of you who are 5'3 " or less. I am 5'8 "

and wearing board shorts does nothing to cover the gross skin

hanging off my legs. I know we're all in the same boat but I will

never EVER be able to expose my legs to anyone except my husband

until I can afford a lift.

Hugs!

Tracey

>

>

> Hi Sue,

> Just do what I do. I wear a tankini or bikini top and mens board

> shorts. It covers my grotesque legs and I get to swim without

being

> self concious. Lots of young skinny girls do this, ( I see them

all

> over the place in Hawaii). So this middle aged woman doesnt look

out

> of place.

> Besides at Martas pool party there are all sizes. Pre DS and post

DS.

> We have all been there, and there is no judgement, or

embarrassment

> at all.

> Just friends.\

>

> hth

> Sharon in Onyx

>

[Guest guest]

HI ,

It sounds like everything is working out really great for you and that makes us all very happy! IM sorry your legs hurt from tx but I will forever remember that pain too,, but remember its not forever!

Keep up the good work hon...

hugs,

jax

Subject: helloTo: Hepatitis_C_Central Date: Thursday, June 11, 2009, 7:07 AM

hello everybody,just getting settled in. i did my shot yesterday, and boy do my legs kill me.i love baton rouge, la.my daughter is coming up this sunday. for a month.but the only thing is a have to go get her. in florida.but thats ok. we are so excited. even myhusband is. and thats really cool. well i will talk to you guys when i get back. wish me lucksarah

[Guest guest]

, you're doing GREAT hon,, IM glad you only have 7 more shots to go and Im very sad about your aunt!

keep up the good work , you've done really well!

hugs,

jax

To: Hepatitis_C_Central Sent: Sat, November 21, 2009 9:19:38 PMSubject: hello

hello everybody,just wanted you all to know that i have 7 more shots left. the doctor said that he did not want me to extend my treatment any longer because of blood work and all.i am still undeteactable, which is very good news.my ant had hepatits c and she did not do treatment. she just passed away from liver failure. she followed a very striked diet. but she was to afraid to do treatment.she had it for 20 some years. she is now resting in a better place. take caresarah

[Guest guest]

Hello Janet,It is hard to tell people. There is a stigma, a feeling they will define everything about you by yourillness. However, I have found that telling those close to me is a necessity. I tell them once andnever talk about it again, so it is not defining trait, just a condition. I have a girlfriend that I had to tell. She was scared. I showed her a study by the Mayo Clinic stating that it is just not transmittedby sex and they do not even advise using condoms. People do need education about it. If theystill respond with fear or negativity, you just have to accept that is your lot in life now. I think that the treatment I took for hep c (I relapsed) was the beginning of the end of my marriage. Theinner, repressed anger and fear was too. Don't let that happen to

you. If you have insurance, maybe a good therapist can keep you both directed and positive. Prayer is an inner strength, a gift, that comesfrom the desperation of hep c. The spouse is hurt deeply by the effects of hep c. Communicate with each other. Let him see how youshare this with him.Good luck and God Bless,MauriceTo: Hepatitis_C_Central Sent: Tue, August 17, 2010 8:19:25 AMSubject: Hello

I just joined yesterday. I don't have Hep C but my husband does. He's a very private person, and strongly requested that I not tell any of my friends about this. We've know for a number of years about it, but it's gotten quite a bit worse lately, and his doctors are talking transplant. Since I can't have my friends as my support system as I support him, I thought there would be a Yahoo group for this, and that's how I found you. I told him I'd have to tell my boss, to arrange for time off suddenly if it comes to a call that a transplant is going through, but I've not discussed it with anyone other than her.

Quite bluntly, I'm getting scared. He looks awful, and due to the ascites, is clumsy and often loses his balance, falling a lot. He's covered in bruises and scabs from these incidents. I work overnights, so he's alone at night, better than if I worked days. They're still discussing setting him up for the evaluation for a transplant, it's that far away.

I don't think I have any specific questions at this time; just introducing myself.

~Jan

[Guest guest]

Hi Janet,

I am a Janet also. I am a owner/moderator here and if you have any questions or concerns feel free to ask. I noticed in a later posting you found the sister group for caregivers, feel free to join that one also.

I can understand your husbands concerns about telling others about his Hep C. When I first found out that I had Hep C, I had a nephew that just had a new baby. He didn't want to bring the baby around me for fear that I would infect the baby. Well being the Hep C advocate that I am, and armed with education and information, I educated him about the disease.

You can't get Hep C from anyway but blood to blood transfer.

Being that both his mother and I were in the health care industry for many years he should have known better. But sometimes we have to educate those around us.

There is no shame in this disease although the uneducated around us think there is.

I wish I was able to talk to your husband. Like I said, I work constantly telling others about this disease.

I am on my 3rd treatment for this disease, this time with pro-tease inhibitors. I feel that I am sucessful this time around. I won't know till the end of the study as I am in a blind study. But I know that I was undectectable for the Hep C by week 12 or I would have been cut from the study. They like to have the best numbers for these studies.

Janet we have several members in this group that have had transplants, and some that are awaiting transplants so they will be able to help you in your research about what is going to happen for your husband.

Let us know if there is anything we can help with.

Love

Janet

"There are souls in this world that have the gift of finding joy everywhere and of leaving it behind them when they go"

Frederick Faber

To: Hepatitis_C_Central Sent: Tue, August 17, 2010 7:19:25 AMSubject: Hello

I just joined yesterday. I don't have Hep C but my husband does. He's a very private person, and strongly requested that I not tell any of my friends about this. We've know for a number of years about it, but it's gotten quite a bit worse lately, and his doctors are talking transplant. Since I can't have my friends as my support system as I support him, I thought there would be a Yahoo group for this, and that's how I found you. I told him I'd have to tell my boss, to arrange for time off suddenly if it comes to a call that a transplant is going through, but I've not discussed it with anyone other than her.Quite bluntly, I'm getting scared. He looks awful, and due to the ascites, is clumsy and often loses his balance, falling a lot. He's covered in bruises and scabs from these incidents. I work overnights, so he's alone at night, better than if I worked days. They're still discussing setting him up for the evaluation for a transplant, it's

that far away.I don't think I have any specific questions at this time; just introducing myself.~Jan

[Guest guest]

Thank you, Maurice and Janet! This marriage will end only one way, but I'm

surely NOT ready for that way yet. He and I have been together for 20 years,

but married only three years ago. We've known about the HCV for over 10. (It

had nothing to do with the delay in getting married, LOL -- completely other

issues.) No, this girl isn't going anywhere.

I signed " Jan " because I knew there was another Janet, so I'll just keep it that

way to avoid confusion. Yes, I'll apply to the other group too, thank you.

If it comes to a transplant, we'll have to board the cats and dogs (several!) in

a hurry, for a week. I'd love to pre-arrange with a friend to come stay at the

house to take care of them, but that would mean telling her. We moved here

several years ago, leaving family behind, and have only a few close friends

here. Who knows, maybe I can persuade him to loosen up, in time. The talk of

transplant only began last week. (Was it really only a week ago? It seems like

I've been through a weird time-tunnel in the past seven days!)

He has an appointment this afternoon, that I intend to drive him to. I am not

inspired to thoughts of his driving safely today; he's been rather fuzzy around

the edges the past few days.

~Jan

>

> Hi Janet,

> I am a Janet also. I am a owner/moderator here and if you have any questions

or

> concerns feel free to ask. I noticed in a later posting you found the sister

> group for caregivers, feel free to join that one also.

>

> I can understand your husbands concerns about telling others about his Hep C.

> When I first found out that I had Hep C, I had a nephew that just had a new

> baby. He didn't want to bring the baby around me for fear that I would infect

> the baby. Well being the Hep C advocate that I am, and armed with education

and

> information, I educated him about the disease.

>

> You can't get Hep C from anyway but blood to blood transfer.

> Being that both his mother and I were in the health care industry for many

years

> he should have known better. But sometimes we have to educate those around us.

> There is no shame in this disease although the uneducated around us think

there

> is.

>

> I wish I was able to talk to your husband. Like I said, I work constantly

> telling others about this disease.

> I am on my 3rd treatment for this disease, this time with pro-tease

inhibitors.

> I feel that I am sucessful this time around. I won't know till the end of the

> study as I am in a blind study. But I know that I was undectectable for the

Hep

> C by week 12 or I would have been cut from the study. They like to have the

best

> numbers for these studies.

> Janet we have several members in this group that have had transplants, and

some

> that are awaiting transplants so they will be able to help you in your

research

> about what is going to happen for your husband.

>

> Let us know if there is anything we can help with.

> Love

> Janet

>

>  

> " There are souls in this world that have the gift of finding joy everywhere

and

> of leaving it behind them when they go "

> Frederick Faber

>

[Guest guest]



Hello Janet. I am Sharon and have had Hep C for over 30 years. I'm one of the fortunates, however and am in remission since my last treatment.

You have found the right group for support. The members of this group are knowledgable and kind and will support you in all you and your husband go through. I'm sorry for your situation, I know how hard it is to live with. I hope you find the support you need here. Don't fear asking any question and reaching out as much as you need. The group is here just for that reason.

Sharon

Hello

I just joined yesterday. I don't have Hep C but my husband does. He's a very private person, and strongly requested that I not tell any of my friends about this. We've know for a number of years about it, but it's gotten quite a bit worse lately, and his doctors are talking transplant. Since I can't have my friends as my support system as I support him, I thought there would be a Yahoo group for this, and that's how I found you. I told him I'd have to tell my boss, to arrange for time off suddenly if it comes to a call that a transplant is going through, but I've not discussed it with anyone other than her.Quite bluntly, I'm getting scared. He looks awful, and due to the ascites, is clumsy and often loses his balance, falling a lot. He's covered in bruises and scabs from these incidents. I work overnights, so he's alone at night, better than if I worked days. They're still discussing setting him up for the evaluation for a transplant, it's that far away.I don't think I have any specific questions at this time; just introducing myself.~Jan

[Guest guest]

Hi and it's nice to meet you , you've found a great place for the support and information you might need . I am sorry to hear about your husband .When the time comes for his evaluation it usually takes a few days because they do so many tests , including psych. evaulations . And where depends on the nearest transplant center to you . It's not a fast process , so your going to have some time to be prepared . Anyway welcome to the group , if you have any questions don't hesitate to ask them .

Subject: HelloTo: Hepatitis_C_Central Date: Tuesday, August 17, 2010, 5:19 AM

I just joined yesterday. I don't have Hep C but my husband does. He's a very private person, and strongly requested that I not tell any of my friends about this. We've know for a number of years about it, but it's gotten quite a bit worse lately, and his doctors are talking transplant. Since I can't have my friends as my support system as I support him, I thought there would be a Yahoo group for this, and that's how I found you. I told him I'd have to tell my boss, to arrange for time off suddenly if it comes to a call that a transplant is going through, but I've not discussed it with anyone other than her.Quite bluntly, I'm getting scared. He looks awful, and due to the ascites, is clumsy and often loses his balance, falling a lot. He's covered in bruises and scabs from these incidents. I work overnights, so he's alone at night, better than if I worked days. They're still discussing setting him up for the evaluation for a transplant, it's

that far away.I don't think I have any specific questions at this time; just introducing myself.~Jan

[Guest guest]

I just joined yesterday. I don't have Hep C but my husband does. He's a very private person, and strongly requested that I not tell any of my friends about this. We've know for a number of years about it, but it's gotten quite a bit worse lately, and his doctors are talking transplant. Since I can't have my friends as my support system as I support him, I thought there would be a Yahoo group for this, and that's how I found you. I told him I'd have to tell my boss, to arrange for time off suddenly if it comes to a call that a transplant is going through, but I've not discussed it with anyone other than her.

Quite bluntly, I'm getting scared. He looks awful, and due to the ascites, is clumsy and often loses his balance, falling a lot. He's covered in bruises and scabs from these incidents. I work overnights, so he's alone at night, better than if I worked days. They're still discussing setting him up for the evaluation for a transplant, it's that far away.

I don't think I have any specific questions at this time; just introducing myself.

~Jan

Hello, Glad you found us. I don't have Hep C either (my brother

did), but he passed away a little over 8 months ago. When my

brother got evaluated for a transplant, they never gave us the

results (or at least what my parents said). Anyway with everything

he had been thru, they must not have thought he would make a good

transplant choice. That could explain why they have the success

rate they do. If there is more than one transplant center where you

live (or close by), I would suggest try going to both. We were in

the process of gettign an evaluation at a second transplant

hospital, only was sick (or in the hospital) on the day of

his appointment and canceled it.

Is your husband getting Social Security Disability? Also eligible

for Medicare after 18 months of being on Social Security. You might

want to check the links under my signature. I found all these while

researching, and have left them up for people to use.

--

Bill Eastman

www.ke5asu.com/links.html

[Guest guest]

Dear " Jan " (And thanks for changing your name!). I am one who has gone through a

transplant (Sept, 2008). I had gone through 3 treatments, but kept drinking

quite a lot of booze. Stupid, stupid, stupid, but I certainly learned that I am

an alcoholic finally! Haven't had a drink or a smoke in 4 years, and feel quite

well. All transplants go differently, but don't worry too much. This has become

a rather routine operation at the better hospitals, and the main problems often

occur after the transplant. Too many patients don't take their anti-rejection

meds on time, or continue drinking. All the prior responses to your post have

been right on the money. Having faith, proper diet and exercise are very

important. You should immediately start saving absolutely ALL of your husband's

test results. You have a legal right to them all. You especially want to keep

track of his " MELD " score (Google, and use the Mayo Clinics site to compute the

number). Start a list of questions, and keep adding to the list. Take this list

with the recent blood test results to every appointment with every Doctor.

Demand answers and stay forceful. His health is in both of your hands. Doctors

today are so preoccupied and overworked that they cannot remember everything. I

keep a computer doc with all my meds, doses and times, as well as all my

Doctors, with addresses, phone numbers and faxes, plus all my emergency contacts

and any allergies. Also include a complete medical history, beginning with

childhood diseases you can both remember, tonsillectomy, etc. The Doc's all love

this printed material. Keep printing a copy to leave at the Doc's office, and

keep a backup for yourself. Change meds and dosages as needed. You're in the

right place for support. Have the big guy with the " Dragon " join us too. We're

here for hugs, tears, laughs and most of all - support. Now you can start asking

particular questions as you both begin the educational process. Where are you

from, and what hospital are you dealing with. How's the insurance? And

definitely follow the prior advice concerning Social Security Disability. I've

been on it for 4 years already. Medicare is very helpful.

>

> I just joined yesterday. I don't have Hep C but my husband does. He's a very

private person, and strongly requested that I not tell any of my friends about

this. We've know for a number of years about it, but it's gotten quite a bit

worse lately, and his doctors are talking transplant. Since I can't have my

friends as my support system as I support him, I thought there would be a Yahoo

group for this, and that's how I found you. I told him I'd have to tell my

boss, to arrange for time off suddenly if it comes to a call that a transplant

is going through, but I've not discussed it with anyone other than her.

>

> Quite bluntly, I'm getting scared. He looks awful, and due to the ascites, is

clumsy and often loses his balance, falling a lot. He's covered in bruises and

scabs from these incidents. I work overnights, so he's alone at night, better

than if I worked days. They're still discussing setting him up for the

evaluation for a transplant, it's that far away.

>

> I don't think I have any specific questions at this time; just introducing

myself.

>

> ~Jan

>

[Guest guest]

It has been a while since I posted...I am still on hep c treatment but I had to

stop ribavrin the past month ....because they wanted to see my hemoglobin

improve. I was on procrit....but I developed a blood clot due to high dose

procrit 40,000 units twice per week and birth control pills. I am at week 51 and

have to do 72 weeks...has anyone else had there problems? and I am scared I have

been on riba for one month......but I am still undetrected. Thank you.

[Guest guest]

Welcome, !

Eldred

> I joined today to decide if this group is right for me. I discovered Inside

Out podcast a few weeks ago and found that components resonated with me. I feel

very strongly that although weight loss can be accomplished through controlled

eating and exercise, the issue is really the relationship with food. Until that

is addressed, the " war " will never end.

>

> I am looking to declare a cease fire and I am hopeful this group will help me

with the negotiations.

>

> Thank you.

>

>

>

>

>

> ------------------------------------

>

> Copyright 2005-2007. A. s. All worldwide rights reserved.Yahoo!

Groups Links

>

>

>

>

--

" Democracy is two wolves and a lamb voting on what to have for lunch.

Liberty is a well-armed lamb contesting the vote. "

[Guest guest]

Welcome !

>________________________________

>

>To: insideoutweightloss

>Sent: Wednesday, July 6, 2011 6:50 AM

>Subject: Re: Hello

>

>

> 

>Welcome, !

>

>Eldred

>

>

>> I joined today to decide if this group is right for me. I discovered Inside

Out podcast a few weeks ago and found that components resonated with me. I feel

very strongly that although weight loss can be accomplished through controlled

eating and exercise, the issue is really the relationship with food. Until that

is addressed, the " war " will never end.

>>

>> I am looking to declare a cease fire and I am hopeful this group will help me

with the negotiations.

>>

>> Thank you.

>>

>>

>>

>>

>>

>> ------------------------------------

>>

>> Copyright 2005-2007. A. s. All worldwide rights reserved.Yahoo!

Groups Links

>>

>>

>>

>>

>

>--

> " Democracy is two wolves and a lamb voting on what to have for lunch.

>Liberty is a well-armed lamb contesting the vote. "

>

>

>

>

[Guest guest]

oh ... this reminds me of the quote " “Victory is sweetest when you’ve known

defeat.â€Â  ~Malcolm S. Forbes

 

________________________________

To: insideoutweightloss

Sent: Friday, August 19, 2011 3:49 AM

Subject: Re: Hello

 

Welcome t.

I wish you well. There is no need to be ashamed of failure. Think of each

attempt as a learning experience. You will gain lots of good things from

belonging to the group - and not all related to weight loss. Don't forget

that wonderful things will happen in their own good time.

AB

> **

>

>

> Welcome, and enjoy!

>

> Eldred

>

>

>

> > Hello all,I've been a member of this group for a little while now, but

> > haven't actually participated as yet. I've been listening to 's

> > amazing podcasts for about a month now. I listen to one or two,

> > sometimes three, every night, and even always replay the last one I

> > listened to the following night in case I started drifting off and

> > missed something.It all seems to make total sense and I'm only up to

> > episode #22 so far.A bit about me:

> > * I'm 41 with two lovely children and a wonderful husband.

> > * I'm from the UK but currently living in a military base in Cyprus

> > until December (been here nearly five years)

> > * I'm chronically overweight right now (at least 100 pounds over a

> > recommended weight - UK size 22/24, BMI 47)

> > * I've ricocheted all over the weight scale, my best success being

> > losing 77lbs with the Slimming World plan. It's all back on and then

> > some now.

> > * I'm currently seeing a dietician who I think is about to discharge

> > me as I can't seem to find the motivation to lose the weight.

> > * I'm seriously considering going back to my Slimming World groups as

> > it was the only thing that really 'worked'. Trouble is, I'm scared and

> > ashamed of failing again.

> > * I need to find something that 'flicks the switch' in my head and I

> > really hope this does the job as I've run out of other options.

> >

> > Well, that's a start, anyway.I'm really looking forward to 'meeting' you

> > all.

> > t x

> >

> >

> >