Re: Re: Medication Assistance

[Guest guest]

Penny,Thanks for the info...I'll have to call them today. I don't know if my insurance will cover my stuff beyond the 48 weeks but i have a good crew of people who submit claims and if THEY can't get it approved, no one can! I will call the Roche people to get an application. I just want to be on the safe side. Now that they're putting a picc line in today, it would be a joke if insurance cut me off now....there would have been no reason for the line in the first place and I'd be PISSED!Anyway, thanks again for your information...I bookmarked it. It's just really confusing cuz there are so many pt assistance programs out there, you don't know who to apply to. As I said, I've been denied because I have medicare part D and medical assistance and again, as i said, they wouldn't accept me

even if my insurance won't pay and it sucks. As for the straightening of hair, I'm sooooooooooo pissed!!! My hair used to be thick as h*ll but now i can't get it curly for nothing. I too, will be happpy when it comes back in curly. Also i had 2 hair stylists tell me how "fine" my hair is last week....that isn't *my* hair, *my* hair is medium fine, not like this. Damn! Anyone else out there had this experience and also how long after tx does it take for it to return to it's original state?Anyway, I'll write again this afternoon when I get home from the hospital after they *install* the picc line... :)Thanks for everything Penny, and for everyone else for their input and support!!!!BarbTo: Hepatitis_C_Central Sent: Thu, September 30, 2010 6:57:09 PMSubject: Re: Medication Assistance

I got the interferon and Ribavirin from Roche. http://www.patientassistance.com/profile/rochepharmaceuticals-286/ I would have went into the donut hole with Medicare Part D if they paid for them, so I qualified with Roche to get them free. The social worker at UW Hospital applied for me. I think her name was . Maybe you could call her or any social worker at UW. (608)263-8667. The Procrit was paid for by Medicare Part D.

I hope you can get help.

Penny

>

> Hi Everyone,

>

> I hope this finds everyone well. This is going to be long..sorry.

>

> Penny said that she got some of her meds through Roche since she had Medicare Part D. So far medicare has paid for all of my IFN, Riba,Nuepogen, and procrit (not that there haven't been many denials and appeals, we always won.) "Protocol" for tx of 1A is 48 weeks. My NP and doc want me to go somewhat beyond that, maybe a couple extra months and that if I relapse on that, to put me immediately on infergen. Annette, my NP seems to think I'm already "cured" but I came back with a "detectable" amt of hepc in my blood....not much, but enough to make me positive after being undetectable since March/April. My next viral load a week later came back undetectable. WHEW! They seem to think it was a lab error but I'm not so convinced. That's why I want to stay on tx for as long as I physically can and for as long as insurance would pay.

>

> That comes to my question: I think Penny told me that her meds were paid for my Roche....what meds do they make? I'm so scared that the ins company is going to cut me off and I'd HAVE to quit tx. I can get sh*tloads of riba as you don't need a prior auth for that, but you do for the IFN....now that doesn't make any sense to me at all!

>

> Back to the question: I've looked into getting help with my meds (and I think I'm gonna have to)as medicare isn't going to go beyond protocol. This I know. I have one month's worth of all meds left and I need to apply at some patient assistance places for when ANTHEM decides not to pay anymore. I've found NOTHING out there, but what i DID find was that i didn't qualify for all the programs i could find because I have medicare and M.A. I told them, "But medicare won't pay for these drugs!" and they still said that I don't qualify because I have insurance!!! I haven't found ONE place that i've found online who could help me out with the cost of meds.

>

> I'm on disability so I don't have tons of thousands of dollars to pay for a few drops on IFN, ya know?

>

> So, could anyone send some links to sites they have used for low cost or free meds? I know that all these meds have different manufacturers and i'd be looking for the IFN, Neupogen, and then the procrit....riba doesn't require a prior auth but all of the other meds do.

>

> I'd like to start applying to some of those patient assistance programs so that I don't just run out and my insurance won't pay anymore.

>

> What sites should i visit? What does it entail? What would happen if I run out of meds, insurance won't pay and I have nothing to fall back on? I'd be screwed!

>

> So if anyone knows of any options for me to get meds, i would REALLY REALLY appreciate it if you can give me some sites that I could look into SOON!

>

> Thanks for everything, you are all the best!!!

>

[Guest guest]

Penny, Thanks for the info....much appreciated! Got my picc line in today...seems like more trouble than it's worth. With my platelets being down to 29,000 you can imagine how bruised I am right now....SH*T!!!! Anyway, I just wanted to check in and say good night. It's gonna be a long day tomorrow, going to the infusion center to get flushed and a dressing change....wish me luck cuz I'm gonna have to learn how to do this myself VERY soon....I don't catch on to these things very well so keep your fingers crossed!!! Take care and again, thanks for the "hair update!" :-)BarbTo: Hepatitis_C_Central Sent: Fri, October 1, 2010 6:28:20 PMSubject: Re: Medication Assistance

Barb,

It's been 10 months since the end of treatment for me, and the curl is coming back. It started coming back about two months ago. It still isn't like it used to be, but the thickness is back again.

Penny

> >

> > Hi Everyone,

> >

> > I hope this finds everyone well. This is going to be long..sorry.

> >

> > Penny said that she got some of her meds through Roche since she had Medicare

> >Part D. So far medicare has paid for all of my IFN, Riba,Nuepogen, and procrit

> >(not that there haven't been many denials and appeals, we always won.)

> >"Protocol" for tx of 1A is 48 weeks. My NP and doc want me to go somewhat beyond

> >that, maybe a couple extra months and that if I relapse on that, to put me

> >immediately on infergen. Annette, my NP seems to think I'm already "cured" but I

> >came back with a "detectable" amt of hepc in my blood....not much, but enough to

> >make me positive after being undetectable since March/April. My next viral load

> >a week later came back undetectable. WHEW! They seem to think it was a lab error

> >but I'm not so convinced. That's why I want to stay on tx for as long as I

> >physically can and for as long as insurance would pay.

> >

> > That comes to my question: I think Penny told me that her meds were paid for my

> >Roche....what meds do they make? I'm so scared that the ins company is going to

> >cut me off and I'd HAVE to quit tx. I can get sh*tloads of riba as you don't

> >need a prior auth for that, but you do for the IFN....now that doesn't make any

> >sense to me at all!

> >

> > Back to the question: I've looked into getting help with my meds (and I think

> >I'm gonna have to)as medicare isn't going to go beyond protocol. This I know. I

> >have one month's worth of all meds left and I need to apply at some patient

> >assistance places for when ANTHEM decides not to pay anymore. I've found NOTHING

> >out there, but what i DID find was that i didn't qualify for all the programs i

> >could find because I have medicare and M.A. I told them, "But medicare won't

> >pay for these drugs!" and they still said that I don't qualify because I have

> >insurance!!! I haven't found ONE place that i've found online who could help me

> >out with the cost of meds.

> >

> > I'm on disability so I don't have tons of thousands of dollars to pay for a few

> >drops on IFN, ya know?

> >

> > So, could anyone send some links to sites they have used for low cost or free

> >meds? I know that all these meds have different manufacturers and i'd be looking

> >for the IFN, Neupogen, and then the procrit....riba doesn't require a prior auth

> >but all of the other meds do.

> >

> > I'd like to start applying to some of those patient assistance programs so that

> >I don't just run out and my insurance won't pay anymore.

> >

> > What sites should i visit? What does it entail? What would happen if I run out

> >of meds, insurance won't pay and I have nothing to fall back on? I'd be screwed!

> >

> > So if anyone knows of any options for me to get meds, i would REALLY REALLY

> >appreciate it if you can give me some sites that I could look into SOON!

> >

> > Thanks for everything, you are all the best!!!

> >

>

[Guest guest]

I remember how bruised was from his pic lines.

I was cleaning my apartment today, and found the last birthday card

sent me (in June 2009). Hard to believe but it is coming up

on the one year anniversary of his last admission to the

hospital...he spent last Thanksgiving in the hospital. Guess in the

end, he had enough. The last thing he told me was he was going to

bring me out to eat for all the help in selecting the medicare

insurance, only it never happened.

Penny,

Thanks for the info....much appreciated! Got my picc line in

today...seems like more trouble than it's worth. With my

platelets being down to 29,000 you can imagine how bruised I am

right now....SH*T!!!! Anyway, I just wanted to check in and say

good night. It's gonna be a long day tomorrow, going to the

infusion center to get flushed and a dressing change....wish me

luck cuz I'm gonna have to learn how to do this myself VERY

soon....I don't catch on to these things very well so keep your

fingers crossed!!! Take care and again, thanks for the "hair

update!" :-)

Barb

From:

Penny

To:

Hepatitis_C_Central

Sent: Fri,

October 1, 2010 6:28:20 PM

Subject:

Re: Medication Assistance

Barb,

It's been 10 months since the end of treatment for me,

and the curl is coming back. It started coming back

about two months ago. It still isn't like it used to be,

but the thickness is back again.

Penny

> >

> > Hi Everyone,

> >

> > I hope this finds everyone well. This is going

to be long..sorry.

> >

> > Penny said that she got some of her meds

through Roche since she had Medicare

> >Part D. So far medicare has paid for all of my

IFN, Riba,Nuepogen, and procrit

> >(not that there haven't been many denials and

appeals, we always won.)

> >"Protocol" for tx of 1A is 48 weeks. My NP and

doc want me to go somewhat beyond

> >that, maybe a couple extra months and that if I

relapse on that, to put me

> >immediately on infergen. Annette, my NP seems

to think I'm already "cured" but I

> >came back with a "detectable" amt of hepc in my

blood....not much, but enough to

> >make me positive after being undetectable since

March/April. My next viral load

> >a week later came back undetectable. WHEW! They

seem to think it was a lab error

> >but I'm not so convinced. That's why I want to

stay on tx for as long as I

> >physically can and for as long as insurance

would pay.

> >

> > That comes to my question: I think Penny told

me that her meds were paid for my

> >Roche....what meds do they make? I'm so scared

that the ins company is going to

> >cut me off and I'd HAVE to quit tx. I can get

sh*tloads of riba as you don't

> >need a prior auth for that, but you do for the

IFN....now that doesn't make any

> >sense to me at all!

> >

> > Back to the question: I've looked into getting

help with my meds (and I think

> >I'm gonna have to)as medicare isn't going to go

beyond protocol. This I know. I

> >have one month's worth of all meds left and I

need to apply at some patient

> >assistance places for when ANTHEM decides not

to pay anymore. I've found NOTHING

> >out there, but what i DID find was that i

didn't qualify for all the programs i

> >could find because I have medicare and M.A. I

told them, "But medicare won't

> >pay for these drugs!" and they still said that

I don't qualify because I have

> >insurance!!! I haven't found ONE place that

i've found online who could help me

> >out with the cost of meds.

> >

> > I'm on disability so I don't have tons of

thousands of dollars to pay for a few

> >drops on IFN, ya know?

> >

> > So, could anyone send some links to sites they

have used for low cost or free

> >meds? I know that all these meds have different

manufacturers and i'd be looking

> >for the IFN, Neupogen, and then the

procrit....riba doesn't require a prior auth

> >but all of the other meds do.

> >

> > I'd like to start applying to some of those

patient assistance programs so that

> >I don't just run out and my insurance won't pay

anymore.

> >

> > What sites should i visit? What does it

entail? What would happen if I run out

> >of meds, insurance won't pay and I have nothing

to fall back on? I'd be screwed!

> >

> > So if anyone knows of any options for me to

get meds, i would REALLY REALLY

> >appreciate it if you can give me some sites

that I could look into SOON!

> >

> > Thanks for everything, you are all the best!!!

> >

>

No virus found in this incoming message.

Checked by AVG - www.avg.com Version: 9.0.856 / Virus Database: 271.1.1/3171 - Release Date: 10/01/10 13:34:00

--

Bill Eastman

www.ke5asu.com/links.html

[Guest guest]

Bill, I'm sorry for the loss of your friend.BarbTo: Hepatitis_C_Central Sent: Fri, October 1, 2010 8:07:09 PMSubject: Re: Re: Medication Assistance

I remember how bruised was from his pic lines.

I was cleaning my apartment today, and found the last birthday card

sent me (in June 2009). Hard to believe but it is coming up

on the one year anniversary of his last admission to the

hospital...he spent last Thanksgiving in the hospital. Guess in the

end, he had enough. The last thing he told me was he was going to

bring me out to eat for all the help in selecting the medicare

insurance, only it never happened.

Penny,

Thanks for the info....much appreciated! Got my picc line in

today...seems like more trouble than it's worth. With my

platelets being down to 29,000 you can imagine how bruised I am

right now....SH*T!!!! Anyway, I just wanted to check in and say

good night. It's gonna be a long day tomorrow, going to the

infusion center to get flushed and a dressing change....wish me

luck cuz I'm gonna have to learn how to do this myself VERY

soon....I don't catch on to these things very well so keep your

fingers crossed!!! Take care and again, thanks for the "hair

update!" :-)

Barb

From:

Penny

To:

Hepatitis_C_Central

Sent: Fri,

October 1, 2010 6:28:20 PM

Subject:

Re: Medication Assistance

Barb,

It's been 10 months since the end of treatment for me,

and the curl is coming back. It started coming back

about two months ago. It still isn't like it used to be,

but the thickness is back again.

Penny

> >

> > Hi Everyone,

> >

> > I hope this finds everyone well. This is going

to be long..sorry.

> >

> > Penny said that she got some of her meds

through Roche since she had Medicare

> >Part D. So far medicare has paid for all of my

IFN, Riba,Nuepogen, and procrit

> >(not that there haven't been many denials and

appeals, we always won.)

> >"Protocol" for tx of 1A is 48 weeks. My NP and

doc want me to go somewhat beyond

> >that, maybe a couple extra months and that if I

relapse on that, to put me

> >immediately on infergen. Annette, my NP seems

to think I'm already "cured" but I

> >came back with a "detectable" amt of hepc in my

blood....not much, but enough to

> >make me positive after being undetectable since

March/April. My next viral load

> >a week later came back undetectable. WHEW! They

seem to think it was a lab error

> >but I'm not so convinced. That's why I want to

stay on tx for as long as I

> >physically can and for as long as insurance

would pay.

> >

> > That comes to my question: I think Penny told

me that her meds were paid for my

> >Roche....what meds do they make? I'm so scared

that the ins company is going to

> >cut me off and I'd HAVE to quit tx. I can get

sh*tloads of riba as you don't

> >need a prior auth for that, but you do for the

IFN....now that doesn't make any

> >sense to me at all!

> >

> > Back to the question: I've looked into getting

help with my meds (and I think

> >I'm gonna have to)as medicare isn't going to go

beyond protocol. This I know. I

> >have one month's worth of all meds left and I

need to apply at some patient

> >assistance places for when ANTHEM decides not

to pay anymore. I've found NOTHING

> >out there, but what i DID find was that i

didn't qualify for all the programs i

> >could find because I have medicare and M.A. I

told them, "But medicare won't

> >pay for these drugs!" and they still said that

I don't qualify because I have

> >insurance!!! I haven't found ONE place that

i've found online who could help me

> >out with the cost of meds.

> >

> > I'm on disability so I don't have tons of

thousands of dollars to pay for a few

> >drops on IFN, ya know?

> >

> > So, could anyone send some links to sites they

have used for low cost or free

> >meds? I know that all these meds have different

manufacturers and i'd be looking

> >for the IFN, Neupogen, and then the

procrit....riba doesn't require a prior auth

> >but all of the other meds do.

> >

> > I'd like to start applying to some of those

patient assistance programs so that

> >I don't just run out and my insurance won't pay

anymore.

> >

> > What sites should i visit? What does it

entail? What would happen if I run out

> >of meds, insurance won't pay and I have nothing

to fall back on? I'd be screwed!

> >

> > So if anyone knows of any options for me to

get meds, i would REALLY REALLY

> >appreciate it if you can give me some sites

that I could look into SOON!

> >

> > Thanks for everything, you are all the best!!!

> >

>

No virus found in this incoming message.

Checked by AVG - www.avg.com

Version: 9.0.856 / Virus Database: 271.1.1/3171 - Release Date: 10/01/10 13:34:00

--

Bill Eastman

www.ke5asu.com/links.html

[Guest guest]

Thanks Barb. was my brother. My sister and I were kind of

expecting last Christmas to be his last, based on everything we read

on the internet. He didn't get tested back when testing first

became available, though he should have. They need to do a public

service announcement telling everyone that if they received a blood

transfusion prior to 1992 that they should be tested for Hep C.

That way if they have it, they can begin treatment instead of

waiting until it is to late. found out he had Hep C and

Cirrosis of the Liver stage 4 at the same time. He got it from a

blood transfusion back in 1977 during treatment for Leukemia. He

had just turned 46 the month before he died. I helped pick a

Medicare supplement policy for him.

Bill, I'm sorry for the loss of your friend.

Barb

From:

Bill Eastman

To:

Hepatitis_C_Central

Sent: Fri,

October 1, 2010 8:07:09 PM

Subject:

Re: Re: Medication Assistance

I remember how bruised was from his pic

lines.

I was cleaning my apartment today, and found the last

birthday card sent me (in June 2009). Hard to

believe but it is coming up on the one year anniversary

of his last admission to the hospital...he spent last

Thanksgiving in the hospital. Guess in the end, he had

enough. The last thing he told me was he was going to

bring me out to eat for all the help in selecting the

medicare insurance, only it never happened.

Penny,

Thanks for the info....much appreciated! Got my picc

line in today...seems like more trouble than it's

worth. With my platelets being down to 29,000 you can

imagine how bruised I am right now....SH*T!!!! Anyway,

I just wanted to check in and say good night. It's

gonna be a long day tomorrow, going to the infusion

center to get flushed and a dressing change....wish me

luck cuz I'm gonna have to learn how to do this myself

VERY soon....I don't catch on to these things very

well so keep your fingers crossed!!! Take care and

again, thanks for the "hair update!" :-)

Barb

From:

Penny

To:

Hepatitis_C_Central

Sent:

Fri, October 1, 2010 6:28:20 PM

Subject:

Re: Medication Assistance

Barb,

It's been 10 months since the end of treatment

for me, and the curl is coming back. It

started coming back about two months ago. It

still isn't like it used to be, but the

thickness is back again.

Penny

> >

> > Hi Everyone,

> >

> > I hope this finds everyone well.

This is going to be long..sorry.

> >

> > Penny said that she got some of her

meds through Roche since she had Medicare

> >Part D. So far medicare has paid for

all of my IFN, Riba,Nuepogen, and procrit

> >(not that there haven't been many

denials and appeals, we always won.)

> >"Protocol" for tx of 1A is 48 weeks.

My NP and doc want me to go somewhat beyond

> >that, maybe a couple extra months and

that if I relapse on that, to put me

> >immediately on infergen. Annette, my

NP seems to think I'm already "cured" but I

> >came back with a "detectable" amt of

hepc in my blood....not much, but enough to

> >make me positive after being

undetectable since March/April. My next viral

load

> >a week later came back undetectable.

WHEW! They seem to think it was a lab error

> >but I'm not so convinced. That's why

I want to stay on tx for as long as I

> >physically can and for as long as

insurance would pay.

> >

> > That comes to my question: I think

Penny told me that her meds were paid for my

> >Roche....what meds do they make? I'm

so scared that the ins company is going to

> >cut me off and I'd HAVE to quit tx. I

can get sh*tloads of riba as you don't

> >need a prior auth for that, but you

do for the IFN....now that doesn't make any

> >sense to me at all!

> >

> > Back to the question: I've looked

into getting help with my meds (and I think

> >I'm gonna have to)as medicare isn't

going to go beyond protocol. This I know. I

> >have one month's worth of all meds

left and I need to apply at some patient

> >assistance places for when ANTHEM

decides not to pay anymore. I've found NOTHING

> >out there, but what i DID find was

that i didn't qualify for all the programs i

> >could find because I have medicare

and M.A. I told them, "But medicare won't

> >pay for these drugs!" and they still

said that I don't qualify because I have

> >insurance!!! I haven't found ONE

place that i've found online who could help me

> >out with the cost of meds.

> >

> > I'm on disability so I don't have

tons of thousands of dollars to pay for a few

> >drops on IFN, ya know?

> >

> > So, could anyone send some links to

sites they have used for low cost or free

> >meds? I know that all these meds have

different manufacturers and i'd be looking

> >for the IFN, Neupogen, and then the

procrit....riba doesn't require a prior auth

> >but all of the other meds do.

> >

> > I'd like to start applying to some

of those patient assistance programs so that

> >I don't just run out and my insurance

won't pay anymore.

> >

> > What sites should i visit? What does

it entail? What would happen if I run out

> >of meds, insurance won't pay and I

have nothing to fall back on? I'd be screwed!

> >

> > So if anyone knows of any options

for me to get meds, i would REALLY REALLY

> >appreciate it if you can give me some

sites that I could look into SOON!

> >

> > Thanks for everything, you are all

the best!!!

> >

>

No virus found in this incoming message.

Checked by AVG - www.avg.com

Version: 9.0.856 / Virus Database: 271.1.1/3171 - Release Date: 10/01/10 13:34:00

--

Bill Eastman

www.ke5asu.com/links.html

No virus found in this incoming message.

Checked by AVG - www.avg.com Version: 9.0.856 / Virus Database: 271.1.1/3171 - Release Date: 10/01/10 13:34:00

--

Bill Eastman

www.ke5asu.com/links.html

[Guest guest]

HI Bill....I'm so sorry you lost your brother to this horrid virus....I can only imagine how you must feel. I lost my sister to cancer last year. She was 49. It more than sucks and my heart goes out to you and your family!!!!Hugs,BarbTo: Hepatitis_C_Central Sent: Sat, October 2, 2010

8:41:37 AMSubject: Re: Re: Medication Assistance

Thanks Barb. was my brother. My sister and I were kind of

expecting last Christmas to be his last, based on everything we read

on the internet. He didn't get tested back when testing first

became available, though he should have. They need to do a public

service announcement telling everyone that if they received a blood

transfusion prior to 1992 that they should be tested for Hep C.

That way if they have it, they can begin treatment instead of

waiting until it is to late. found out he had Hep C and

Cirrosis of the Liver stage 4 at the same time. He got it from a

blood transfusion back in 1977 during treatment for Leukemia. He

had just turned 46 the month before he died. I helped pick a

Medicare supplement policy for him.

Bill, I'm sorry for the loss of your friend.

Barb

From:

Bill Eastman

To:

Hepatitis_C_Central

Sent: Fri,

October 1, 2010 8:07:09 PM

Subject:

Re: Re: Medication Assistance

I remember how bruised was from his pic

lines.

I was cleaning my apartment today, and found the last

birthday card sent me (in June 2009). Hard to

believe but it is coming up on the one year anniversary

of his last admission to the hospital...he spent last

Thanksgiving in the hospital. Guess in the end, he had

enough. The last thing he told me was he was going to

bring me out to eat for all the help in selecting the

medicare insurance, only it never happened.

Penny,

Thanks for the info....much appreciated! Got my picc

line in today...seems like more trouble than it's

worth. With my platelets being down to 29,000 you can

imagine how bruised I am right now....SH*T!!!! Anyway,

I just wanted to check in and say good night. It's

gonna be a long day tomorrow, going to the infusion

center to get flushed and a dressing change....wish me

luck cuz I'm gonna have to learn how to do this myself

VERY soon....I don't catch on to these things very

well so keep your fingers crossed!!! Take care and

again, thanks for the "hair update!" :-)

Barb

From:

Penny

To:

Hepatitis_C_Central

Sent:

Fri, October 1, 2010 6:28:20 PM

Subject:

Re: Medication Assistance

Barb,

It's been 10 months since the end of treatment

for me, and the curl is coming back. It

started coming back about two months ago. It

still isn't like it used to be, but the

thickness is back again.

Penny

> >

> > Hi Everyone,

> >

> > I hope this finds everyone well.

This is going to be long..sorry.

> >

> > Penny said that she got some of her

meds through Roche since she had Medicare

> >Part D. So far medicare has paid for

all of my IFN, Riba,Nuepogen, and procrit

> >(not that there haven't been many

denials and appeals, we always won.)

> >"Protocol" for tx of 1A is 48 weeks.

My NP and doc want me to go somewhat beyond

> >that, maybe a couple extra months and

that if I relapse on that, to put me

> >immediately on infergen. Annette, my

NP seems to think I'm already "cured" but I

> >came back with a "detectable" amt of

hepc in my blood....not much, but enough to

> >make me positive after being

undetectable since March/April. My next viral

load

> >a week later came back undetectable.

WHEW! They seem to think it was a lab error

> >but I'm not so convinced. That's why

I want to stay on tx for as long as I

> >physically can and for as long as

insurance would pay.

> >

> > That comes to my question: I think

Penny told me that her meds were paid for my

> >Roche....what meds do they make? I'm

so scared that the ins company is going to

> >cut me off and I'd HAVE to quit tx. I

can get sh*tloads of riba as you don't

> >need a prior auth for that, but you

do for the IFN....now that doesn't make any

> >sense to me at all!

> >

> > Back to the question: I've looked

into getting help with my meds (and I think

> >I'm gonna have to)as medicare isn't

going to go beyond protocol. This I know. I

> >have one month's worth of all meds

left and I need to apply at some patient

> >assistance places for when ANTHEM

decides not to pay anymore. I've found NOTHING

> >out there, but what i DID find was

that i didn't qualify for all the programs i

> >could find because I have medicare

and M.A. I told them, "But medicare won't

> >pay for these drugs!" and they still

said that I don't qualify because I have

> >insurance!!! I haven't found ONE

place that i've found online who could help me

> >out with the cost of meds.

> >

> > I'm on disability so I don't have

tons of thousands of dollars to pay for a few

> >drops on IFN, ya know?

> >

> > So, could anyone send some links to

sites they have used for low cost or free

> >meds? I know that all these meds have

different manufacturers and i'd be looking

> >for the IFN, Neupogen, and then the

procrit....riba doesn't require a prior auth

> >but all of the other meds do.

> >

> > I'd like to start applying to some

of those patient assistance programs so that

> >I don't just run out and my insurance

won't pay anymore.

> >

> > What sites should i visit? What does

it entail? What would happen if I run out

> >of meds, insurance won't pay and I

have nothing to fall back on? I'd be screwed!

> >

> > So if anyone knows of any options

for me to get meds, i would REALLY REALLY

> >appreciate it if you can give me some

sites that I could look into SOON!

> >

> > Thanks for everything, you are all

the best!!!

> >

>

No virus found in this incoming message.

Checked by AVG - www.avg.com

Version: 9.0.856 / Virus Database: 271.1.1/3171 - Release Date: 10/01/10 13:34:00

--

Bill Eastman

www.ke5asu.com/links.html

No virus found in this incoming message.

Checked by AVG - www.avg.com

Version: 9.0.856 / Virus Database: 271.1.1/3171 - Release Date: 10/01/10 13:34:00

--

Bill Eastman

www.ke5asu.com/links.html

[Guest guest]

Hi Barb...I'm sorry you lost your sister to cancer. I need to find

out from my parents the date he got admitted. Next month will be

the first birthday without him. At least he's not suffering

anymore.

HI Bill....I'm so sorry you lost your brother to this

horrid virus....I can only imagine how you must feel. I lost my

sister to cancer last year. She was 49. It more than sucks and

my heart goes out to you and your family!!!!

Hugs,

Barb

From:

Bill Eastman

To:

Hepatitis_C_Central

Sent: Sat,

October 2, 2010 8:41:37 AM

Subject:

Re: Re: Medication Assistance

Thanks Barb. was my brother. My sister and I

were kind of expecting last Christmas to be his last,

based on everything we read on the internet. He didn't

get tested back when testing first became available,

though he should have. They need to do a public service

announcement telling everyone that if they received a

blood transfusion prior to 1992 that they should be

tested for Hep C. That way if they have it, they can

begin treatment instead of waiting until it is to late.

found out he had Hep C and Cirrosis of the Liver

stage 4 at the same time. He got it from a blood

transfusion back in 1977 during treatment for Leukemia.

He had just turned 46 the month before he died. I

helped pick a Medicare supplement policy for him.

Bill, I'm sorry for the loss of your friend.

Barb

From:

Bill Eastman

To:

Hepatitis_C_Central

Sent:

Fri, October 1, 2010 8:07:09 PM

Subject:

Re: Re: Medication

Assistance

I remember how bruised was from his

pic lines.

I was cleaning my apartment today, and found

the last birthday card sent me (in

June 2009). Hard to believe but it is coming

up on the one year anniversary of his last

admission to the hospital...he spent last

Thanksgiving in the hospital. Guess in the

end, he had enough. The last thing he told me

was he was going to bring me out to eat for

all the help in selecting the medicare

insurance, only it never happened.

Penny,

Thanks for the info....much appreciated! Got

my picc line in today...seems like more

trouble than it's worth. With my platelets

being down to 29,000 you can imagine how

bruised I am right now....SH*T!!!! Anyway, I

just wanted to check in and say good night.

It's gonna be a long day tomorrow, going to

the infusion center to get flushed and a

dressing change....wish me luck cuz I'm

gonna have to learn how to do this myself

VERY soon....I don't catch on to these

things very well so keep your fingers

crossed!!! Take care and again, thanks for

the "hair update!" :-)

Barb

From:

Penny

To:

Hepatitis_C_Central

Sent:

Fri, October 1, 2010 6:28:20 PM

Subject:

Re: Medication

Assistance

Barb,

It's been 10 months since the end of

treatment for me, and the curl is

coming back. It started coming back

about two months ago. It still isn't

like it used to be, but the

thickness is back again.

Penny

> >

> > Hi Everyone,

> >

> > I hope this finds everyone

well. This is going to be

long..sorry.

> >

> > Penny said that she got

some of her meds through Roche since

she had Medicare

> >Part D. So far medicare has

paid for all of my IFN,

Riba,Nuepogen, and procrit

> >(not that there haven't

been many denials and appeals, we

always won.)

> >"Protocol" for tx of 1A is

48 weeks. My NP and doc want me to

go somewhat beyond

> >that, maybe a couple extra

months and that if I relapse on

that, to put me

> >immediately on infergen.

Annette, my NP seems to think I'm

already "cured" but I

> >came back with a

"detectable" amt of hepc in my

blood....not much, but enough to

> >make me positive after

being undetectable since

March/April. My next viral load

> >a week later came back

undetectable. WHEW! They seem to

think it was a lab error

> >but I'm not so convinced.

That's why I want to stay on tx for

as long as I

> >physically can and for as

long as insurance would pay.

> >

> > That comes to my question:

I think Penny told me that her meds

were paid for my

> >Roche....what meds do they

make? I'm so scared that the ins

company is going to

> >cut me off and I'd HAVE to

quit tx. I can get sh*tloads of riba

as you don't

> >need a prior auth for that,

but you do for the IFN....now that

doesn't make any

> >sense to me at all!

> >

> > Back to the question: I've

looked into getting help with my

meds (and I think

> >I'm gonna have to)as

medicare isn't going to go beyond

protocol. This I know. I

> >have one month's worth of

all meds left and I need to apply at

some patient

> >assistance places for when

ANTHEM decides not to pay anymore.

I've found NOTHING

> >out there, but what i DID

find was that i didn't qualify for

all the programs i

> >could find because I have

medicare and M.A. I told them, "But

medicare won't

> >pay for these drugs!" and

they still said that I don't qualify

because I have

> >insurance!!! I haven't

found ONE place that i've found

online who could help me

> >out with the cost of meds.

> >

> > I'm on disability so I

don't have tons of thousands of

dollars to pay for a few

> >drops on IFN, ya know?

> >

> > So, could anyone send some

links to sites they have used for

low cost or free

> >meds? I know that all these

meds have different manufacturers

and i'd be looking

> >for the IFN, Neupogen, and

then the procrit....riba doesn't

require a prior auth

> >but all of the other meds

do.

> >

> > I'd like to start applying

to some of those patient assistance

programs so that

> >I don't just run out and my

insurance won't pay anymore.

> >

> > What sites should i visit?

What does it entail? What would

happen if I run out

> >of meds, insurance won't

pay and I have nothing to fall back

on? I'd be screwed!

> >

> > So if anyone knows of any

options for me to get meds, i would

REALLY REALLY

> >appreciate it if you can

give me some sites that I could look

into SOON!

> >

> > Thanks for everything, you

are all the best!!!

> >

>

No virus found in this incoming message.

Checked by AVG - www.avg.com

Version: 9.0.856 / Virus Database: 271.1.1/3171 - Release Date: 10/01/10 13:34:00

--

Bill Eastman

www.ke5asu.com/links.html

No virus found in this incoming message.

Checked by AVG - www.avg.com

Version: 9.0.856 / Virus Database: 271.1.1/3171 - Release Date: 10/01/10 13:34:00

--

Bill Eastman

www.ke5asu.com/links.html

No virus found in this incoming message.

Checked by AVG - www.avg.com Version: 9.0.856 / Virus Database: 271.1.1/3172 - Release Date: 10/02/10 01:34:00

--

Bill Eastman

www.ke5asu.com/links.html

[Guest guest]

Bill,The first anniversaries are the hardest I've found and you will never ever forget your brother and the little things about him, his jokes, his expressions, his love for you and your love for him. For the first year after my sister's death I cried every day (and still do a lot of the time) but it was especially hard on the day of the month that she died. For example, every 16th of the month (she died on August 16) was pretty unbearable. Holidays without her were agonizing. But she left behind 2 very compassionate, caring and sometimes a little too goofy twin 12 yr old boys and she will live on through them. I see her in them every time I talk with or see them. So I know how "holidays" and birthdays can be. I still miss her very dearly.Know that I'm here for you and you can email me at

any time or IM me on yahoo at bazimme2. I WILL understand and if anything, you can just vent to me....sometimes that's the only thing we can do. I wish you and your family peace.BarbTo: Hepatitis_C_Central Sent: Sat, October 2, 2010 8:06:16 PMSubject: Re: Re: Medication Assistance

Hi Barb...I'm sorry you lost your sister to cancer. I need to find

out from my parents the date he got admitted. Next month will be

the first birthday without him. At least he's not suffering

anymore.

HI Bill....I'm so sorry you lost your brother to this

horrid virus....I can only imagine how you must feel. I lost my

sister to cancer last year. She was 49. It more than sucks and

my heart goes out to you and your family!!!!

Hugs,

Barb

From:

Bill Eastman

To:

Hepatitis_C_Central

Sent: Sat,

October 2, 2010 8:41:37 AM

Subject:

Re: Re: Medication Assistance

Thanks Barb. was my brother. My sister and I

were kind of expecting last Christmas to be his last,

based on everything we read on the internet. He didn't

get tested back when testing first became available,

though he should have. They need to do a public service

announcement telling everyone that if they received a

blood transfusion prior to 1992 that they should be

tested for Hep C. That way if they have it, they can

begin treatment instead of waiting until it is to late.

found out he had Hep C and Cirrosis of the Liver

stage 4 at the same time. He got it from a blood

transfusion back in 1977 during treatment for Leukemia.

He had just turned 46 the month before he died. I

helped pick a Medicare supplement policy for him.

Bill, I'm sorry for the loss of your friend.

Barb

From:

Bill Eastman

To:

Hepatitis_C_Central

Sent:

Fri, October 1, 2010 8:07:09 PM

Subject:

Re: Re: Medication

Assistance

I remember how bruised was from his

pic lines.

I was cleaning my apartment today, and found

the last birthday card sent me (in

June 2009). Hard to believe but it is coming

up on the one year anniversary of his last

admission to the hospital...he spent last

Thanksgiving in the hospital. Guess in the

end, he had enough. The last thing he told me

was he was going to bring me out to eat for

all the help in selecting the medicare

insurance, only it never happened.

Penny,

Thanks for the info....much appreciated! Got

my picc line in today...seems like more

trouble than it's worth. With my platelets

being down to 29,000 you can imagine how

bruised I am right now....SH*T!!!! Anyway, I

just wanted to check in and say good night.

It's gonna be a long day tomorrow, going to

the infusion center to get flushed and a

dressing change....wish me luck cuz I'm

gonna have to learn how to do this myself

VERY soon....I don't catch on to these

things very well so keep your fingers

crossed!!! Take care and again, thanks for

the "hair update!" :-)

Barb

From:

Penny

To:

Hepatitis_C_Central

Sent:

Fri, October 1, 2010 6:28:20 PM

Subject:

Re: Medication

Assistance

Barb,

It's been 10 months since the end of

treatment for me, and the curl is

coming back. It started coming back

about two months ago. It still isn't

like it used to be, but the

thickness is back again.

Penny

> >

> > Hi Everyone,

> >

> > I hope this finds everyone

well. This is going to be

long..sorry.

> >

> > Penny said that she got

some of her meds through Roche since

she had Medicare

> >Part D. So far medicare has

paid for all of my IFN,

Riba,Nuepogen, and procrit

> >(not that there haven't

been many denials and appeals, we

always won.)

> >"Protocol" for tx of 1A is

48 weeks. My NP and doc want me to

go somewhat beyond

> >that, maybe a couple extra

months and that if I relapse on

that, to put me

> >immediately on infergen.

Annette, my NP seems to think I'm

already "cured" but I

> >came back with a

"detectable" amt of hepc in my

blood....not much, but enough to

> >make me positive after

being undetectable since

March/April. My next viral load

> >a week later came back

undetectable. WHEW! They seem to

think it was a lab error

> >but I'm not so convinced.

That's why I want to stay on tx for

as long as I

> >physically can and for as

long as insurance would pay.

> >

> > That comes to my question:

I think Penny told me that her meds

were paid for my

> >Roche....what meds do they

make? I'm so scared that the ins

company is going to

> >cut me off and I'd HAVE to

quit tx. I can get sh*tloads of riba

as you don't

> >need a prior auth for that,

but you do for the IFN....now that

doesn't make any

> >sense to me at all!

> >

> > Back to the question: I've

looked into getting help with my

meds (and I think

> >I'm gonna have to)as

medicare isn't going to go beyond

protocol. This I know. I

> >have one month's worth of

all meds left and I need to apply at

some patient

> >assistance places for when

ANTHEM decides not to pay anymore.

I've found NOTHING

> >out there, but what i DID

find was that i didn't qualify for

all the programs i

> >could find because I have

medicare and M.A. I told them, "But

medicare won't

> >pay for these drugs!" and

they still said that I don't qualify

because I have

> >insurance!!! I haven't

found ONE place that i've found

online who could help me

> >out with the cost of meds.

> >

> > I'm on disability so I

don't have tons of thousands of

dollars to pay for a few

> >drops on IFN, ya know?

> >

> > So, could anyone send some

links to sites they have used for

low cost or free

> >meds? I know that all these

meds have different manufacturers

and i'd be looking

> >for the IFN, Neupogen, and

then the procrit....riba doesn't

require a prior auth

> >but all of the other meds

do.

> >

> > I'd like to start applying

to some of those patient assistance

programs so that

> >I don't just run out and my

insurance won't pay anymore.

> >

> > What sites should i visit?

What does it entail? What would

happen if I run out

> >of meds, insurance won't

pay and I have nothing to fall back

on? I'd be screwed!

> >

> > So if anyone knows of any

options for me to get meds, i would

REALLY REALLY

> >appreciate it if you can

give me some sites that I could look

into SOON!

> >

> > Thanks for everything, you

are all the best!!!

> >

>

No virus found in this incoming message.

Checked by AVG - www.avg.com

Version: 9.0.856 / Virus Database: 271.1.1/3171 - Release Date: 10/01/10 13:34:00

--

Bill Eastman

www.ke5asu.com/links.html

No virus found in this incoming message.

Checked by AVG - www.avg.com

Version: 9.0.856 / Virus Database: 271.1.1/3171 - Release Date: 10/01/10 13:34:00

--

Bill Eastman

www.ke5asu.com/links.html

No virus found in this incoming message.

Checked by AVG - www.avg.com

Version: 9.0.856 / Virus Database: 271.1.1/3172 - Release Date: 10/02/10 01:34:00

--

Bill Eastman

www.ke5asu.com/links.html