Guest guest Posted September 25, 2001 Report Share Posted September 25, 2001 Judy, Do you see a neurologist about your nerve pain? I have Peripheral Neuropathy, actually Sensory Polyneuropathy and my doctor sent me to see a Neurologist ( 3 years ago .) The Neurologist after doing testing put me on Neurontin which is a anti seizure medication, but it works wonderfully for nerve pain... Over the three years I have had to increase the Neurontin and now take 4000mg of it a day...I also get 40mg of Elavil at bedtime which helps me to sleep and gets rid of the burning pain so I can sleep. I also have lower back pain and neck pain, and the x-rays showed Osteoarthritis in both.....The days when I am feeling well, I do a thorough cleaning of the house and clean out the fridge.. Usually the following day I am so tired and hurt I do nothing, but read a book or play games on the computer... ) ... Roy I'm Judy from the Ozarks of Missouri. Welcome aboard. Write and let us know what is the source of your pain and what medications you are using for it. I have a spinal nerve disorder and I'm in pain all the time. I take hydrocodone and muscle relaxers. They help a lot but not completely. I know you don't like it, we didn't ask for this. The hardest part for me is the change in my life, not being able to do the things I want to do. Hang in there friend, and write to us..... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2001 Report Share Posted September 25, 2001 Good morning and Judy, A cautionary note about Neurontin. It worked for me so well that my lower legs almost felt normal; hadn't had a night without the burning pain for years. Unfortunately, something either clashed with the Neurontin or I have a problem yet to be diagnosed but I began to have small seizures. I had the usual routine of examinations but it wasn't until I quit using Neurontin that they went away. Took a few months before the tremors etc. faded. I haven't had an " episode " since but I sure miss my Neurontin. It was a wonder drug for the nerve pain. Yers, --- wendy schmidt wrote: > Judy, Do you see a neurologist about your nerve > pain? I have Peripheral Neuropathy, actually Sensory > Polyneuropathy and my doctor sent me to see a > Neurologist ( 3 years ago .) The Neurologist after > doing testing put me on Neurontin which is a anti > seizure medication, but it works wonderfully for __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2001 Report Share Posted September 25, 2001 hi richard, i was put on neurontin for the past 6 weeks, 1200 mg/day(400 3 / day). my dr. wants to triple that dose, and hopefuly i can wean off narcotic pain meds. however, my fm brain fog got much worse, so i haven't increased the dose. did you have side effects?what dose were you on when the pain subsided? angel Re: Roy Good morning and Judy, A cautionary note about Neurontin. It worked for me so well that my lower legs almost felt normal; hadn't had a night without the burning pain for years. Unfortunately, something either clashed with the Neurontin or I have a problem yet to be diagnosed but I began to have small seizures. I had the usual routine of examinations but it wasn't until I quit using Neurontin that they went away. Took a few months before the tremors etc. faded. I haven't had an " episode " since but I sure miss my Neurontin. It was a wonder drug for the nerve pain. Yers, --- wendy schmidt wrote: > Judy, Do you see a neurologist about your nerve > pain? I have Peripheral Neuropathy, actually Sensory > Polyneuropathy and my doctor sent me to see a > Neurologist ( 3 years ago .) The Neurologist after > doing testing put me on Neurontin which is a anti > seizure medication, but it works wonderfully for __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2001 Report Share Posted September 25, 2001 Good afternoon, If I remember correctly, I was at 400. My doctor doubled the dose and that's when I started to have my problems. However, remember, I was taking some other drugs at the time and everyone's physiology is different. Then too, I might have an underlying condition that hasn't been found yet. Let's hope that isn't the case. Some of my side effects were: tremors in my hands, loss of memory, sweating and some fatigue. On the plus side, I slept better during that time than I had for years or have since. It seems that one problem with Neurontin is that you " become used to it " and you have to increase the dosage. I have alot of pain now but my work absolutely precludes me from suffering brain fog. Let me know how things go with you, ok? I'm about to go back to the clinic to beg for pain meds. I hate that but with winter coming on, I have no choice. It's either beg or not sleep for nights which is another thing I simply can't do. Yers, --- Dianne Hayter wrote: > hi richard, > > i was put on neurontin for the past 6 weeks, 1200 > mg/day(400 3 / day). my dr. wants to triple that > dose, and hopefuly i can wean off narcotic pain > meds. however, my fm brain fog got much worse, so i > haven't increased the dose. did you have side > effects?what dose were you on when the pain > subsided? > angel > Re: Roy > > > Good morning and Judy, > > A cautionary note about Neurontin. It worked for > me > so well that my lower legs almost felt normal; > hadn't > had a night without the burning pain for years. > Unfortunately, something either clashed with the > Neurontin or I have a problem yet to be diagnosed > but > I began to have small seizures. I had the usual > routine of examinations but it wasn't until I quit > using Neurontin that they went away. Took a few > months before the tremors etc. faded. I haven't > had > an " episode " since but I sure miss my Neurontin. > It > was a wonder drug for the nerve pain. > > Yers, > > > --- wendy schmidt wrote: > > Judy, Do you see a neurologist about your nerve > > pain? I have Peripheral Neuropathy, actually > Sensory > > Polyneuropathy and my doctor sent me to see a > > Neurologist ( 3 years ago .) The Neurologist > after > > doing testing put me on Neurontin which is a > anti > > seizure medication, but it works wonderfully for > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2001 Report Share Posted September 25, 2001 what medication do you now take for you nerve pain? Re: Roy Good morning and Judy, A cautionary note about Neurontin. It worked for me so well that my lower legs almost felt normal; hadn't had a night without the burning pain for years. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2001 Report Share Posted September 25, 2001 Good afternoon folks, To be honest, I scrounge whatever I can. I take Ultram but try to scatter it as I build up resistance very quickly. I eat Anacin and to be completely honest, I suffer, alot at times. Not trying to sound like I'm whining but I have some very long nights. I posted earlier that I'm going to see my doctor to go begging for meds; just found out that my appointment has been cancelled. I'm being asked to find another doctor. No explanation. Oh well. Yours, --- wendy schmidt wrote: > what medication do you now take for you > nerve pain? __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2006 Report Share Posted April 9, 2006 WyyyyHooooo!!!!! Just think of what you have done in such a short time....Could have never done it before hu? I LOVE THIS SURGERY!!!! and I will say that over and over....We are so proud of you... God bless, Pat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2010 Report Share Posted January 18, 2010 Welcome, Roy. Glad you found us and it is good that your new doctor feels you can wait until a better treatment comes along. We have been following this since at least 2006. I had not heard that the treatment would definitely be shortened, just that there would be a better chance of remaining clear. Sheena Hello,My name is Roy, I'm glad to join your group. I am however; not Tracey and I can't answer any mail meant for her. I'm a man; over 40 who just recently found out that I have Hep C.I now find out that I have to take medicine for 48 weeks that will make me sick, as if I have the Flu. I went to a second Dr. that informs me that there is new medication coming out, towards the end 2010 that will cut down the time period for taking the medication from 48 weeks to 6 months. I have some questions about my blood tests and which part of it is used to estimate how far along my Hep C is. I'll be glad to be more specific, when I find out what part of the blood test is used to diagnose Hep C and where it is: as far as it's progression is concerned. Thank You all, and I look forward to corresponding with you, in the future. Sincerely,Roy. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2010 Report Share Posted January 18, 2010 Roy, Hey, I am in a clinical trial for the protease inhibitors and the standard HCV treatment with Interferon, and ribaviron. It will still be 48 weeks for those of us that are genotype 1. The thing is that there has been great success with the previous clinical trials with this combination of drugs. I am in one of the final phases of testing and it should be available soon. Here is my way of thinking about treatment. I will do this for my family, because I want to spend every moment I can with them in the best health that I can. I want to grow old with my husband, I want to attend my daughters graduation from college.(She is in the 9th grade). I want to bungee jump at age 105 with my husband by my side. This is the 3rd time I have done treatment. I will endure 48 weeks of treatment again for the chance to live my life to the fullest. Okay that is my share. Love Janet "There are souls in this world that have the gift of finding joy everywhere and of leaving it behind them when they go" Frederick Faber To: Hepatitis_C_Central Sent: Mon, January 18, 2010 8:44:45 PMSubject: Re: Roy Welcome, Roy. Glad you found us and it is good that your new doctor feels you can wait until a better treatment comes along. We have been following this since at least 2006. I had not heard that the treatment would definitely be shortened, just that there would be a better chance of remaining clear. Sheena Hello,My name is Roy, I'm glad to join your group. I am however; not Tracey and I can't answer any mail meant for her. I'm a man; over 40 who just recently found out that I have Hep C.I now find out that I have to take medicine for 48 weeks that will make me sick, as if I have the Flu. I went to a second Dr. that informs me that there is new medication coming out, towards the end 2010 that will cut down the time period for taking the medication from 48 weeks to 6 months. I have some questions about my blood tests and which part of it is used to estimate how far along my Hep C is. I'll be glad to be more specific, when I find out what part of the blood test is used to diagnose Hep C and where it is: as far as it's progression is concerned. Thank You all, and I look forward to corresponding with you, in the future. Sincerely,Roy. Quote Link to comment Share on other sites More sharing options...
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