Guest guest Posted August 2, 2007 Report Share Posted August 2, 2007 Congresswoman Bono's office actually contacted me and asked for info. regarding my dilemma with medicare. Lets see if they help MalaGet a sneak peek of the all-new AOL.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2009 Report Share Posted August 9, 2009 IM glad you found a plan for him but I just get so exasperated when you cannot find a plan d that covers all his meds,, I feel that if you pay your premiums, they should HAVE to pay for all the drugs YOUR doc orders,, I get so angry when they refuse to pay for a drug you need,, its just plain wrong,, lol Subject: MedicareTo: Hepatitis_C_Central Date: Sunday, August 9, 2009, 3:57 PM My sister and I recently selected a Medicare Supplement Plan for our brother, . After all the time it took me to research options, I have started assembling links on a webpage. See http://www.ke5asu. com/medicare. htmlI have links to the official Medicare publications, and some of the states. My Sister used the list from Texas to know what companies to call. We were able to get Medicare Supplement Plan F for . He will be on Medicare starting Oct 1.We have NOT yet selected a Medicare Drug Plac (Medicare Part D). They will put in all his existing drugs and see what plan covers them the best. The way I read the Medicare info, is if he is on Medicare when he gets a liver transplant, the anti-rejection drugs are covered on Medicare Part B. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2009 Report Share Posted August 9, 2009 We got him a Plan F. At first I was looking at Medicare Advantage Plans instead of traditional medicare. The main difference is with traditional medicare YOU can go to a SPECIALIST without having to see a PCP. Also with the supplement, you ONLY pay Part B and Supplement premium. No matter how many doctor appointments, or inpatient trips. No copays. So the regular monthly expense is KNOWN. I might select a medicare advantage plan for myself..it depends on what is happening in 15 years. I do have Type 2 Diabetes. I also can use the VA to supplement Medicare. I'm (actually my doctor) is appealing Aetna's denial of my Pillcam. Basically Aetna wants me to do an EGD instead of Pillcam. I would prefer the Pillcam even with the prep. When I got the colonoscopy (Aetna covered 100%) where the small intesine joins the colin was inflamed. They did a biospy, and it was NOT cancerous. Did a small bowel series and it came back normal, so doc wants to do Pillcam. Might be EGD instead or first). ---- Jackie on wrote: > IM glad you found a plan for him but I just get so exasperated when you cannot find a plan d that covers all his meds,, I feel that if you pay your premiums, they should HAVE to pay for all the drugs YOUR doc orders,, I get so angry when they refuse to pay for a drug you need,, its just plain wrong,, lol > > > > > > > > Subject: Medicare > To: Hepatitis_C_Central > Date: Sunday, August 9, 2009, 3:57 PM > > > Â > > > > My sister and I recently selected a Medicare Supplement Plan for our brother, . After all the time it took me to research options, I have started assembling links on a webpage. See http://www.ke5asu. com/medicare. html > > I have links to the official Medicare publications, and some of the states. > My Sister used the list from Texas to know what companies to call. We were able to get Medicare Supplement Plan F for . He will be on Medicare starting Oct 1. > > We have NOT yet selected a Medicare Drug Plac (Medicare Part D). They will put in all his existing drugs and see what plan covers them the best. The way I read the Medicare info, is if he is on Medicare when he gets a liver transplant, the anti-rejection drugs are covered on Medicare Part B. > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2009 Report Share Posted August 9, 2009 I hope you can get it covered,, it drives me nuts how many things they deny!> > > From: beastmanaustin (DOT) rr.com <beastmanaustin (DOT) rr.com>> Subject: [Hepatitis_C_ Central] Medicare> To: Hepatitis_C_ Central@yahoogro ups.com> Date: Sunday, August 9, 2009, 3:57 PM> > > > > > > My sister and I recently selected a Medicare Supplement Plan for our brother, . After all the time it took me to research options, I have started assembling links on a webpage. See http://www.ke5asu. com/medicare. html> > I have links to the official Medicare publications, and some of the states. > My Sister used the list from Texas to know what companies to call. We were able to get Medicare Supplement Plan F for . He will be on Medicare starting Oct 1.> > We have NOT yet selected a Medicare Drug Plac (Medicare Part D). They will put in all his existing drugs and see what plan covers them the best. The way I read the Medicare info, is if he is on Medicare when he gets a liver transplant, the anti-rejection drugs are covered on Medicare Part B.> > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2009 Report Share Posted August 17, 2009 Yes and you need to research them all separately...I fortunately got Dave on a good plan and only have to pay 4k on his hundreds of thousands of dollars of that I belive I should have had to pay...look at them closely Subject: MedicareTo: hepatitis_C_Central Date: Monday, August 17, 2009, 9:25 PM We found a Medicare Supplement Plan F for that will be effective Oct 1. I just found a Medicare Part D and having a plan description mailed to . Does anyone here use the Part D from AARP, and if so which one is the best? I think the prefeared version with a monthly premium of $38.something to be the best. I know that if gets a liver transplant, that the autoimune drugs will be covered by Medicare Part B. Will he still need to take the Laculose if he gets a transplant? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2009 Report Share Posted August 17, 2009 I dont know about that, the transplant team can tell you that,, I'd sure like to know so let us know when you find out,, it would seem logical that he wouldnt have to take it because with a new liver, he shouldnt have trouble with ammonia as thats what the lactalose is for,, Subject: MedicareTo: hepatitis_C_Central Date: Monday, August 17, 2009, 6:25 PM We found a Medicare Supplement Plan F for that will be effective Oct 1. I just found a Medicare Part D and having a plan description mailed to . Does anyone here use the Part D from AARP, and if so which one is the best? I think the prefeared version with a monthly premium of $38.something to be the best. I know that if gets a liver transplant, that the autoimune drugs will be covered by Medicare Part B. Will he still need to take the Laculose if he gets a transplant? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2009 Report Share Posted August 17, 2009  I use AARP Medicare part D for my prescriptions and most everything I use is covered. My doc gives me samples of the most expensive med I take and that saves me from getting into the medicare gap where I have to pay all med costs for a time. I pay 38 dollars a month. During tx, I had the enhanced version at fifty something a month in order to get those drugs covered. Now I don't need that plan so pay less. Sharon in NW Washington Knitting is...time and love made tangible. Alison Hyde Medicare We found a Medicare Supplement Plan F for that will be effective Oct 1. I just found a Medicare Part D and having a plan description mailed to . Does anyone here use the Part D from AARP, and if so which one is the best? I think the prefeared version with a monthly premium of $38.something to be the best. I know that if gets a liver transplant, that the autoimune drugs will be covered by Medicare Part B. Will he still need to take the Laculose if he gets a transplant?------------------------------------It's a pleasure having you join in our conversations. We hope you have found the support you need with us. If you are using email for your posts, for easy access to our group, just click the link-- http://groups.yahoo.com/group/Hepatitis_C_Central/Happy Posting Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2009 Report Share Posted August 17, 2009 Perhaps it's best to see if the two drugs for treatment of Hep C are in the formulary. I assume if he gets a transplant, he will still have Hep C and need to start treatment. ---- Jackie on wrote: > I dont know about that, the transplant team can tell you that,, I'd sure like to know so let us know when you find out,, it would seem logical that he wouldnt have to take it because with a new liver, he shouldnt have trouble with ammonia as thats what the lactalose is for,, > > > > > > > > Subject: Medicare > To: hepatitis_C_Central > Date: Monday, August 17, 2009, 6:25 PM > > > Â > > > > We found a Medicare Supplement Plan F for that will be effective Oct 1. I just found a Medicare Part D and having a plan description mailed to . Does anyone here use the Part D from AARP, and if so which one is the best? I think the prefeared version with a monthly premium of $38.something to be the best. I know that if gets a liver transplant, that the autoimune drugs will be covered by Medicare Part B. Will he still need to take the Laculose if he gets a transplant? > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2009 Report Share Posted August 17, 2009 that would be a very good thing to do,, to make sure that whatever drug he'll need post transplant is in their formulary... Honestly I believe that they should have to pay for whatever your doc orders post tx,, its just stupid that each company has their own drugs to cover and some they wont,, thats insane!> > > From: beastmanaustin (DOT) rr.com <beastmanaustin (DOT) rr.com>> Subject: [Hepatitis_C_ Central] Medicare> To: hepatitis_C_ Central@yahoogro ups.com> Date: Monday, August 17, 2009, 6:25 PM> > > > > > > We found a Medicare Supplement Plan F for that will be effective Oct 1. I just found a Medicare Part D and having a plan description mailed to . Does anyone here use the Part D from AARP, and if so which one is the best? I think the prefeared version with a monthly premium of $38.something to be the best. I know that if gets a liver transplant, that the autoimune drugs will be covered by Medicare Part B. Will he still need to take the Laculose if he gets a transplant?> > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2009 Report Share Posted August 18, 2009 I have trouble with the ammonia and I am on 4 tablespoons of lactose. I have 6 weeks left guys!!!!!!! I hate the not sleeping. Its my worst side affect. From: beastmanaustin (DOT) rr.com <beastmanaustin (DOT) rr.com>Subject: [Hepatitis_C_ Central] MedicareTo: hepatitis_C_ Central@yahoogro ups.comDate: Monday, August 17, 2009, 6:25 PM We found a Medicare Supplement Plan F for that will be effective Oct 1. I just found a Medicare Part D and having a plan description mailed to . Does anyone here use the Part D from AARP, and if so which one is the best? I think the prefeared version with a monthly premium of $38.something to be the best. I know that if gets a liver transplant, that the autoimune drugs will be covered by Medicare Part B. Will he still need to take the Laculose if he gets a transplant? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2009 Report Share Posted August 18, 2009 OHHH I hated the insomnia too, . Congratulations on making it this far. 6 weeks is a walk in the park now!! Sharon in NW Washington Knitting is...time and love made tangible. Alison Hyde [Hepatitis_C_ Central] MedicareTo: hepatitis_C_ Central@yahoogro ups.comDate: Monday, August 17, 2009, 6:25 PM We found a Medicare Supplement Plan F for that will be effective Oct 1. I just found a Medicare Part D and having a plan description mailed to . Does anyone here use the Part D from AARP, and if so which one is the best? I think the prefeared version with a monthly premium of $38.something to be the best. I know that if gets a liver transplant, that the autoimune drugs will be covered by Medicare Part B. Will he still need to take the Laculose if he gets a transplant? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2009 Report Share Posted August 18, 2009 I can tell you from my own experience with a liver transplant that I didn't take lactulose after my transplant. The only time I took it was for a few days before my transplant while in the hospital. It shouldn't have to be taken after the transplant. It took a little while before the edema and ascites fluid all left my body as the functioning liver cleared it out, so the same should be true with the ammonia. I was told by my transplant coordinator that Medicare Part B pays for the anti rejection drugs for three years after the transplant. I had my transplant 1 year and 7-1/2 months ago. I have 14 weeks of treatment left, and last week had the more advanced test to see if the virus is still there. There is 0 virus in my blood. The test they took before only went down to 50, but now I know it is totally undetectable. Penny > > > > Subject: Medicare > To: hepatitis_C_Central > Date: Monday, August 17, 2009, 6:25 PM > > > > > > > We found a Medicare Supplement Plan F for that will be effective Oct 1. I just found a Medicare Part D and having a plan description mailed to . Does anyone here use the Part D from AARP, and if so which one is the best? I think the prefeared version with a monthly premium of $38.something to be the best. I know that if gets a liver transplant, that the autoimune drugs will be covered by Medicare Part B. Will he still need to take the Laculose if he gets a transplant? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2009 Report Share Posted August 18, 2009 so what happens after that time frame with regards to your antirejection meds,, who pays for it then? you? Subject: Re: MedicareTo: Hepatitis_C_Central Date: Tuesday, August 18, 2009, 8:26 PM I can tell you from my own experience with a liver transplant that I didn't take lactulose after my transplant. The only time I took it was for a few days before my transplant while in the hospital. It shouldn't have to be taken after the transplant. It took a little while before the edema and ascites fluid all left my body as the functioning liver cleared it out, so the same should be true with the ammonia.I was told by my transplant coordinator that Medicare Part B pays for the anti rejection drugs for three years after the transplant. I had my transplant 1 year and 7-1/2 months ago. I have 14 weeks of treatment left, and last week had the more advanced test to see if the virus is still there. There is 0 virus in my blood. The test they took before only went down to 50, but now I know it is totally undetectable.Penny> > > From: beastman@... <beastman@.. .>> Subject: [Hepatitis_C_ Central] Medicare> To: hepatitis_C_ Central@yahoogro ups.com> Date: Monday, August 17, 2009, 6:25 PM> > > > > > > We found a Medicare Supplement Plan F for that will be effective Oct 1. I just found a Medicare Part D and having a plan description mailed to . Does anyone here use the Part D from AARP, and if so which one is the best? I think the prefeared version with a monthly premium of $38.something to be the best. I know that if gets a liver transplant, that the autoimune drugs will be covered by Medicare Part B. Will he still need to take the Laculose if he gets a transplant?> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2009 Report Share Posted August 19, 2009 Since will be on Medicare if he gets a transplant, the antirejection drugs are covered by Medicare Part B. Since he has a Medicare Supplement Policy, he pays nothing except the premium for the Medicare Supplement. ---- Jackie on wrote: > so what happens after that time frame with regards to your antirejection meds,, who pays for it then? you? > > > > > > > > Subject: Re: Medicare > To: Hepatitis_C_Central > Date: Tuesday, August 18, 2009, 8:26 PM > > >  > > > > I can tell you from my own experience with a liver transplant that I didn't take lactulose after my transplant. The only time I took it was for a few days before my transplant while in the hospital. It shouldn't have to be taken after the transplant. It took a little while before the edema and ascites fluid all left my body as the functioning liver cleared it out, so the same should be true with the ammonia. > > I was told by my transplant coordinator that Medicare Part B pays for the anti rejection drugs for three years after the transplant. I had my transplant 1 year and 7-1/2 months ago. > > I have 14 weeks of treatment left, and last week had the more advanced test to see if the virus is still there. There is 0 virus in my blood. The test they took before only went down to 50, but now I know it is totally undetectable. > > Penny > > > > > > > > From: beastman@... <beastman@.. .> > > Subject: [Hepatitis_C_ Central] Medicare > > To: hepatitis_C_ Central@yahoogro ups.com > > Date: Monday, August 17, 2009, 6:25 PM > > > > > >  > > > > > > > > We found a Medicare Supplement Plan F for that will be effective Oct 1. I just found a Medicare Part D and having a plan description mailed to . Does anyone here use the Part D from AARP, and if so which one is the best? I think the prefeared version with a monthly premium of $38.something to be the best. I know that if gets a liver transplant, that the autoimune drugs will be covered by Medicare Part B. Will he still need to take the Laculose if he gets a transplant? > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2009 Report Share Posted August 19, 2009 What happens after the three years? I thought they would cover the anti rejection drugs for the rest of your life, since that is how long you'll need to take them. Does anyone know the longest a person with Hepatitis C and Cirrosis of the Liver stage 4 lives after a liver transplant? is genotype 1. ---- preciouspenny3 wrote: > I can tell you from my own experience with a liver transplant that I didn't take lactulose after my transplant. The only time I took it was for a few days before my transplant while in the hospital. It shouldn't have to be taken after the transplant. It took a little while before the edema and ascites fluid all left my body as the functioning liver cleared it out, so the same should be true with the ammonia. > > I was told by my transplant coordinator that Medicare Part B pays for the anti rejection drugs for three years after the transplant. I had my transplant 1 year and 7-1/2 months ago. > > I have 14 weeks of treatment left, and last week had the more advanced test to see if the virus is still there. There is 0 virus in my blood. The test they took before only went down to 50, but now I know it is totally undetectable. > > Penny > > > > > > > > > > Subject: Medicare > > To: hepatitis_C_Central > > Date: Monday, August 17, 2009, 6:25 PM > > > > > > Â > > > > > > > > We found a Medicare Supplement Plan F for that will be effective Oct 1. I just found a Medicare Part D and having a plan description mailed to . Does anyone here use the Part D from AARP, and if so which one is the best? I think the prefeared version with a monthly premium of $38.something to be the best. I know that if gets a liver transplant, that the autoimune drugs will be covered by Medicare Part B. Will he still need to take the Laculose if he gets a transplant? > > > > > > > ------------------------------------ > > It's a pleasure having you join in our conversations. We hope you have found the support you need with us. > > If you are using email for your posts, for easy access to our group, just click the link-- http://groups.yahoo.com/group/Hepatitis_C_Central/ > > Happy Posting Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2009 Report Share Posted August 19, 2009 Thank you I feel I am right around the corner. I had weight to lose and lost it during treatment. Thats my highlight. I think it was all the days I felt sick so I didnt eat. I could write a book on all the medications I take and the naps. For those of you just starting 48 weeks goes by faster then you think.. It can get nasty at times but everything passes and the next think you know you feel good. Its up and down. My sister who is 1 year older then me (53) just got diagnosed with lung cancer in both lungs and a mass in the brain, water around the heart. I feel so sad but also greatful my sistuation is not hopeless. From: beastmanaustin (DOT) rr.com <beastmanaustin (DOT) rr.com>Subject: [Hepatitis_C_ Central] MedicareTo: hepatitis_C_ Central@yahoogro ups.comDate: Monday, August 17, 2009, 6:25 PM We found a Medicare Supplement Plan F for that will be effective Oct 1. I just found a Medicare Part D and having a plan description mailed to . Does anyone here use the Part D from AARP, and if so which one is the best? I think the prefeared version with a monthly premium of $38.something to be the best. I know that if gets a liver transplant, that the autoimune drugs will be covered by Medicare Part B. Will he still need to take the Laculose if he gets a transplant? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2009 Report Share Posted August 21, 2009 I've been sick the last couple of days and haven't been online. I don't want to think about how long I will live since I had a transplant, but my doctors said I should live a good long time, 20 years, but nobody knows for sure. Of course, the treatment for Hep C must work after the transplant so you stay SVR and not relapse. I was told if I didn't do the treatment for Hep C and clear the virus after the transplant, the new liver would only last 2 to 10 years. I don't know for sure about what happens after the three years with the anti rejection drugs. I need to find more out about that since my three years will be up in a little over a year. There are programs to help pay for the anti rejection drugs too. Penny > > > > > > > > > From: beastman@ <beastman@> > > > Subject: Medicare > > > To: hepatitis_C_Central > > > Date: Monday, August 17, 2009, 6:25 PM > > > > > > > > > Â > > > > > > > > > > > > We found a Medicare Supplement Plan F for that will be effective Oct 1. I just found a Medicare Part D and having a plan description mailed to . Does anyone here use the Part D from AARP, and if so which one is the best? I think the prefeared version with a monthly premium of $38.something to be the best. I know that if gets a liver transplant, that the autoimune drugs will be covered by Medicare Part B. Will he still need to take the Laculose if he gets a transplant? > > > > > > > > > > > > > ------------------------------------ > > > > It's a pleasure having you join in our conversations. We hope you have found the support you need with us. > > > > If you are using email for your posts, for easy access to our group, just click the link-- http://groups.yahoo.com/group/Hepatitis_C_Central/ > > > > Happy Posting Quote Link to comment Share on other sites More sharing options...
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