Guest guest Posted May 30, 2009 Report Share Posted May 30, 2009 NOPE Bob,, if I were truely cured,, I'd be able to buy life insurance and donate blood.. until I can do those things, I will consider myself in remission and not cured!!! Subject: Re: JUST DIAGNOSEDTo: Hepatitis_C_Central Date: Saturday, May 30, 2009, 4:17 PM c'mon, Jackie. after 6 years in remission you can use the "c" word now. i know it wasn't allowed at one time but say it....sayyyy it. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2009 Report Share Posted May 31, 2009 It is the say way with those with Leukemia. For example after my prother graducated high school, he tried to join the military. They told him he could not. The medical professionals considered him " cured " , since he was off all meds. He had to sign up for the selected service when he turned 18, but the truth is they wouldn't have drafted him. He might have had the Hep C even back then, just not diagnosed yet. He could not buy life insurance because he had had Leukemia. Now he has gotten Hep C diagnosed, along with Cirrosis of the Liver stage 4. ---- Jackie on wrote: > we can ONLY donate organs to others who also have hepc ,, we cannot donate to anyone who does not already have this virus,, so it means that it could pop up anytime and begin to replicate again! so we're not truely cured until they accept our blood for any person who might need it,, > and the insurance companies if they were to insure those of us who have it might find that we're better customers who pay their bills regularly and we can live a long time.. but we're classified like those with cancer,, and we're uninsurable,, money or not,, > > > > > > > > Subject: Re: JUST DIAGNOSED > To: Hepatitis_C_Central > Date: Saturday, May 30, 2009, 6:40 PM > > > > > > > > > i guess i see your point but insurance is a money thing and it is odd we can't donate blood but we can donate organs. does the hep antibody have a negitive effect on a person it is given to? > > congrats on being in remission for all this time. > > > > > > NOPE Bob,, if I were truely cured,, I'd be able to buy life insurance and donate blood.. until I can do those things, I will consider myself in remission and not cured!!! > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2009 Report Share Posted May 31, 2009 Yeah I am with you Bob, she is CURED!!! But she doesn't want to tempt the fates. So she is one of those who have had outstanding SVR!!!!!!!!! Love Janet "There are souls in this world that have the gift of finding joy everywhere and of leaving it behind them when they go" Frederick Faber Subject: Re: JUST DIAGNOSEDTo: Hepatitis_C_Central Date: Saturday, May 30, 2009, 6:17 PM c'mon, Jackie. after 6 years in remission you can use the "c" word now. i know it wasn't allowed at one time but say it....sayyyy it. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2009 Report Share Posted May 31, 2009 well IM NOT GONNA TEMPT FATE,, NO WAY< NO HOW!!! I NEVER want to have to do tx again,, I would if I had to but I hope I never do! lol From: Bob <unclebutchyahoo (DOT) com>Subject: [Hepatitis_C_ Central] Re: JUST DIAGNOSEDTo: Hepatitis_C_ Central@yahoogro ups.comDate: Saturday, May 30, 2009, 6:17 PM c'mon, Jackie. after 6 years in remission you can use the "c" word now. i know it wasn't allowed at one time but say it....sayyyy it. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2009 Report Share Posted May 31, 2009 Hi there welcome to the group, Im glad you are doing so well and are thinking about treating your virus before it gets too bad. There is a great doc in NY and I believe he IS out on long island.. a friend of mine and Liz, one of us will get you the addy of the doc she used and has been in the clear now 9 years!! we'll get back to you and just remember, you have time to think this all through, no need to rush right at the moment.. hugs, jax Subject: Re: JUST DIAGNOSEDTo: Hepatitis_C_Central Date: Sunday, May 31, 2009, 3:58 PM I am new here, I am sorry for the just diagnosed people, I know it is difficult to accept such circumstance.I am also requesting some guidelines, I was diagnosed in 1994, I never really cared about it, I never felt anything, but in 2007 I had a real bad malaria, which affected my liver due to the strong medication I was obliged to take. I am more than fine at 42 yrs of age, however I think I should treat now.I went through a biopsy in 2007, diagnosed Chronic, fibrosis stage 2, and genotype 1AB (together!), but doctor still says, don't worry about it.I need a referal for a doctor in queens or Long Island,NY who I could go see it ASAP.Thank youLCL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2009 Report Share Posted May 31, 2009 You talkin bout Bette ? And have you contacted her or do you want me to Jackie Re: JUST DIAGNOSEDTo: Hepatitis_C_Central Date: Sunday, May 31, 2009, 3:58 PM I am new here, I am sorry for the just diagnosed people, I know it is difficult to accept such circumstance.I am also requesting some guidelines, I was diagnosed in 1994, I never really cared about it, I never felt anything, but in 2007 I had a real bad malaria, which affected my liver due to the strong medication I was obliged to take. I am more than fine at 42 yrs of age, however I think I should treat now.I went through a biopsy in 2007, diagnosed Chronic, fibrosis stage 2, and genotype 1AB (together!), but doctor still says, don't worry about it.I need a referal for a doctor in queens or Long Island,NY who I could go see it ASAP.Thank youLCL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2009 Report Share Posted May 31, 2009 Bronx, NY Philip Schweitzer , MD Gastroenterologist 3184 Grand Concourse #2DBronx, NY 10458 Phone: Comments: Very knowledgable on the subject, keeping up to date with current information and practices. Brooklyn, NY Maurice A. Cerulli, MD Chief Gastroenterologist New York Methodist Hospital506 Sixth StreetBrooklyn, NY 11215 Phone: Comments: I would recommend him to any person w/ Hep C looking for 1st class care. Hulya Levendoglu, MD Gastroenterologist Brookdale University Hospital Center1 Brookdale Plaza, Katz PavillionRoom 337Brooklyn, NY 11212-3198 Physicians who treat Hepatitis C New York, NY Dr. Ning Ma Chinese Medicine 30 East 40th St. Suite 802.New York, NY Phone: Phone: L. Fabry, MD, PhD Gastroenterology Mount Sinai Hospital1080 5th Avenue, Suite 1BNew York, NY 10128 Phone: Phone: Comments: Very Knowledgeable Ira son, MD Hepatologist The Center for the Study of Hepatitis C1230 York AveNew York, NY 10021 Phone: Fax: 866.672.HepC (4372) Comments: Devoted to his patients needs. Highly respected in the HCV field. H. Berman, MD Gastroentrologisist 120 E. 86th StreetNew York, NY 10028 Phone: Phone: Comments: Extremely caring, thinks postive, lots of experience, very high success rate Bruce Oran, DO Internal medicine 333 East 57th StreetNew York, NY 10022 Phone: Phone: Comments: Treats patients who refuse interferon treatment. Will recommend supplements, administer alternative protocols, monitor LFT's, iron and Viral Load. Kind, patient & extremely ethical. Schiano, MD / Friedman, MD Gastroentrologisists Mt. Sinai Medical Center5 E. 98th St., 12th FloorNew York, NY 10029 Phone: Albert Min, MD Gastroentrologisist Mt. Sinai Medical Center5 E. 98th St., 12th FloorNew York, NY 10029 Phone: M. Feldman, MD Gastroenterologist Director of Hepatitis St s Hospital Medical Center36 Seventh Ave.Suite 414New York, NY 10011 Phone: Jaffe, MD Gastroenterologist 5 E. 98th St.11th FloorNew York, NY 10029 Phone: Comments: He is so sweet and patient and thorough. I had no worries about my liver biopsy Bach, MD Gastroentrologisist 5 E 98th StNew York, NY 10029 Phone: Comments: She is an aggressive treater and is coordinating a combo treatment trial for patients w/normal liver chems. Salik, MD Gastroentrologisist 232 East 30th StreetNew York, NY 10016 Phone: Comments: Excellent Dr. Tepperman, MD Transplant Surgeon NYU Medical Center403 East 34th StreetNew York, NY 10016 Phone: A. Bergman, MD Internist 1199 Park Ave.Suite 1FNew York, NY 10128 Phone: Comments: Extremely supportive and resourceful Henry Bodenheimer Jr., MD Gastroenterologist Beth Israel Medical Center1st Ave at 16th StNew York, NY 10003 Phone: Comments: Excellent Dr. Very well informed on HCV Revuelta, MD Infectious Disease Specialist Beth Israel Medical Center1st Ave at 16th StNew York, NY 10003 Phone: Comments: Experience in HCV and HIV Up to speed on HCV Gaglio, MD Internal medicine / Gastroenterology Center for Liver Disease & TransplantPH-14 622 W 168th StNew York, NY 10032 Phone: Dr. lyn Klion Gastroentrologisists 5th AveNew York, NY Comments: Great Doctor. Very knowledgeable and compassionate. . Subject: Re: JUST DIAGNOSEDTo: Hepatitis_C_Central Date: Sunday, May 31, 2009, 5:58 PM I am new here, I am sorry for the just diagnosed people, I know it is difficult to accept such circumstance.I am also requesting some guidelines, I was diagnosed in 1994, I never really cared about it, I never felt anything, but in 2007 I had a real bad malaria, which affected my liver due to the strong medication I was obliged to take. I am more than fine at 42 yrs of age, however I think I should treat now.I went through a biopsy in 2007, diagnosed Chronic, fibrosis stage 2, and genotype 1AB (together!), but doctor still says, don't worry about it.I need a referal for a doctor in queens or Long Island,NY who I could go see it ASAP.Thank youLCL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2009 Report Share Posted June 1, 2009 yes I AM talking about Bette,, I sent her an email via her profile at delphi,, so far I havent heard back tho yet,, so perhaps you can ask her too? thanks hon jax From: Luiz Laba <brazeagleyahoo (DOT) com>Subject: [Hepatitis_C_ Central] Re: JUST DIAGNOSEDTo: Hepatitis_C_ Central@yahoogro ups.comDate: Sunday, May 31, 2009, 3:58 PM I am new here, I am sorry for the just diagnosed people, I know it is difficult to accept such circumstance.I am also requesting some guidelines, I was diagnosed in 1994, I never really cared about it, I never felt anything, but in 2007 I had a real bad malaria, which affected my liver due to the strong medication I was obliged to take. I am more than fine at 42 yrs of age, however I think I should treat now.I went through a biopsy in 2007, diagnosed Chronic, fibrosis stage 2, and genotype 1AB (together!), but doctor still says, don't worry about it.I need a referal for a doctor in queens or Long Island,NY who I could go see it ASAP.Thank youLCL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2009 Report Share Posted June 1, 2009 Will do sweetie , I had a feeling it was miss bette lol [Hepatitis_C_ Central] Re: JUST DIAGNOSEDTo: Hepatitis_C_ Central@yahoogro ups.comDate: Sunday, May 31, 2009, 3:58 PM I am new here, I am sorry for the just diagnosed people, I know it is difficult to accept such circumstance.I am also requesting some guidelines, I was diagnosed in 1994, I never really cared about it, I never felt anything, but in 2007 I had a real bad malaria, which affected my liver due to the strong medication I was obliged to take. I am more than fine at 42 yrs of age, however I think I should treat now.I went through a biopsy in 2007, diagnosed Chronic, fibrosis stage 2, and genotype 1AB (together!), but doctor still says, don't worry about it.I need a referal for a doctor in queens or Long Island,NY who I could go see it ASAP.Thank youLCL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2009 Report Share Posted June 1, 2009 thanks liz, I KNEW I COULD count on you!!! How you doing? From: Luiz Laba <brazeagleyahoo (DOT) com>Subject: [Hepatitis_C_ Central] Re: JUST DIAGNOSEDTo: Hepatitis_C_ Central@yahoogro ups.comDate: Sunday, May 31, 2009, 3:58 PM I am new here, I am sorry for the just diagnosed people, I know it is difficult to accept such circumstance.I am also requesting some guidelines, I was diagnosed in 1994, I never really cared about it, I never felt anything, but in 2007 I had a real bad malaria, which affected my liver due to the strong medication I was obliged to take. I am more than fine at 42 yrs of age, however I think I should treat now.I went through a biopsy in 2007, diagnosed Chronic, fibrosis stage 2, and genotype 1AB (together!), but doctor still says, don't worry about it.I need a referal for a doctor in queens or Long Island,NY who I could go see it ASAP.Thank youLCL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2009 Report Share Posted June 1, 2009 I know,, so UNTIL they allow ME to buy life insurance or donate my blood,, I will NOT consider myself 'cured'.... we're horribly discriminated against even after being in the clear for years..> > > From: Bob <unclebutchyahoo (DOT) com>> Subject: [Hepatitis_C_ Central] Re: JUST DIAGNOSED> To: Hepatitis_C_ Central@yahoogro ups.com> Date: Saturday, May 30, 2009, 6:40 PM> > > > > > > > > i guess i see your point but insurance is a money thing and it is odd we can't donate blood but we can donate organs. does the hep antibody have a negitive effect on a person it is given to?> > congrats on being in remission for all this time. > > > >> > NOPE Bob,, if I were truely cured,, I'd be able to buy life insurance and donate blood.. until I can do those things, I will consider myself in remission and not cured!!!> > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2009 Report Share Posted June 1, 2009 Bob, there are lots of ppl who test undetectible after treatment and they can still find positive virus in their bodies,, in scar tissue and other organs,, so even if you test clear, it does NOT mean that the virus still isnt in your body lying low somewhere! Subject: Re: JUST DIAGNOSEDTo: Hepatitis_C_Central Date: Monday, June 1, 2009, 5:52 PM the way i see it is if they can't detect it, i'm not contagious and it doesn't have any affect on me then i'm cured. i already couldn't give blood to people that were not my blood group but i didn't consider myself sick. now i just have some extra anti-bodies (i hope). the insurance thingy is a financial matter, not a medical one. when the insurance companies catch up with the medical aspects then things will change as long as they can make a profit. i don't think a salesman would take into account my genotype.i'm not too sure how much i agree with the analogy comparing cancer with hep. cancer is living tissue and self occurring. hep is a virus and not a life form and does not spontaneously appear.i may be speaking too soon. tomorrow i get the results of my post treatment labs.http://www.scienced aily.com/ releases/ 2007/05/07052115 5314.htm> > >> > > NOPE Bob,, if I were truely cured,, I'd be able to buy life insurance and donate blood.. until I can do those things, I will consider myself in remission and not cured!!!> > > > > > > > > > > > > > > > > > > > > > > > > > > > > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2009 Report Share Posted June 2, 2009 Anyone who achieves SVR is still at risk for a relapse . They have found HCV cells in the brains of deceased patients who reached SVR but died from other problems . Until the doctors can eradicate the HCV from the cellular level there is a chance of relapse . That 100% number is inaccurate , I believe the number is more like 65% to 70% . That is a guess on my part and I would have to reread some of my research papers . Re: JUST DIAGNOSED i know that not everyone achieves long term SVR but for those that do they stand almost a 100% chance of staying that way. http://hepatitis-central.com/mt/archives/2007/05/a_cure_for_hepa.html .of the less then 1% of the people that did relapse in this study it was unclear if it was done by re-infection. this link also includes other links.http://hepatitis-central.com/mt/archives/2007/05/a_cure_for_hepa.htmli am also aware of studies that show about 1% of people with longterm SVR can show the virus in the liver but not the blood.i do believe it is a disease that can be cured and i hope i can be one of the 1st people to use that phrase.(((hugs)))> > > >> > > > NOPE Bob,, if I were truely cured,, I'd be able to buy life insurance and donate blood.. until I can do those things, I will consider myself in remission and not cured!!!> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2009 Report Share Posted June 2, 2009 mood dampener! Subject: Re: Re: JUST DIAGNOSEDTo: Hepatitis_C_Central Date: Tuesday, June 2, 2009, 12:31 AM Anyone who achieves SVR is still at risk for a relapse . They have found HCV cells in the brains of deceased patients who reached SVR but died from other problems . Until the doctors can eradicate the HCV from the cellular level there is a chance of relapse . That 100% number is inaccurate , I believe the number is more like 65% to 70% . That is a guess on my part and I would have to reread some of my research papers . [Hepatitis_C_ Central] Re: JUST DIAGNOSED i know that not everyone achieves long term SVR but for those that do they stand almost a 100% chance of staying that way. http://hepatitis- central.com/ mt/archives/ 2007/05/a_ cure_for_ hepa.html .of the less then 1% of the people that did relapse in this study it was unclear if it was done by re-infection. this link also includes other links.http://hepatitis- central.com/ mt/archives/ 2007/05/a_ cure_for_ hepa.htmli am also aware of studies that show about 1% of people with longterm SVR can show the virus in the liver but not the blood.i do believe it is a disease that can be cured and i hope i can be one of the 1st people to use that phrase.(((hugs)))> > > >> > > > NOPE Bob,, if I were truely cured,, I'd be able to buy life insurance and donate blood.. until I can do those things, I will consider myself in remission and not cured!!!> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2009 Report Share Posted June 2, 2009 Haha , not a mood dampener just trying to make sure you all have accurate information . There are allot of folks who buy into the cure theory and once they reach SVR start drinking again .....and of course then they relapse . Once ya hit SVR it's important to realize that its always going to be lurking in your body so you need to live a healthy lifestyle to keep it from going active again . [Hepatitis_C_ Central] Re: JUST DIAGNOSED i know that not everyone achieves long term SVR but for those that do they stand almost a 100% chance of staying that way. http://hepatitis- central.com/ mt/archives/ 2007/05/a_ cure_for_ hepa.html .of the less then 1% of the people that did relapse in this study it was unclear if it was done by re-infection. this link also includes other links.http://hepatitis- central.com/ mt/archives/ 2007/05/a_ cure_for_ hepa.htmli am also aware of studies that show about 1% of people with longterm SVR can show the virus in the liver but not the blood.i do believe it is a disease that can be cured and i hope i can be one of the 1st people to use that phrase.(((hugs)))> > > >> > > > NOPE Bob,, if I were truely cured,, I'd be able to buy life insurance and donate blood.. until I can do those things, I will consider myself in remission and not cured!!!> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2009 Report Share Posted June 2, 2009 Very reasonable thinking Liz, and yeah even tho we want to think that after treatment and reaching detectable we still have to take care of our bodies. Love Janet "There are souls in this world that have the gift of finding joy everywhere and of leaving it behind them when they go" Frederick Faber From: elizabethnv1 <elizabethnv1@ earthlink. net>Subject: Re: [Hepatitis_C_ Central] Re: JUST DIAGNOSEDTo: Hepatitis_C_ Central@yahoogro ups.comDate: Tuesday, June 2, 2009, 12:31 AM Anyone who achieves SVR is still at risk for a relapse . They have found HCV cells in the brains of deceased patients who reached SVR but died from other problems . Until the doctors can eradicate the HCV from the cellular level there is a chance of relapse . That 100% number is inaccurate , I believe the number is more like 65% to 70% . That is a guess on my part and I would have to reread some of my research papers . [Hepatitis_C_ Central] Re: JUST DIAGNOSED i know that not everyone achieves long term SVR but for those that do they stand almost a 100% chance of staying that way. http://hepatitis- central.com/ mt/archives/ 2007/05/a_ cure_for_ hepa.html .of the less then 1% of the people that did relapse in this study it was unclear if it was done by re-infection. this link also includes other links.http://hepatitis- central.com/ mt/archives/ 2007/05/a_ cure_for_ hepa.htmli am also aware of studies that show about 1% of people with longterm SVR can show the virus in the liver but not the blood.i do believe it is a disease that can be cured and i hope i can be one of the 1st people to use that phrase.(((hugs)))> > > >> > > > NOPE Bob,, if I were truely cured,, I'd be able to buy life insurance and donate blood.. until I can do those things, I will consider myself in remission and not cured!!!> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2009 Report Share Posted June 2, 2009 Thank you From: elizabethnv1 <elizabethnv1@ earthlink. net>Subject: Re: [Hepatitis_C_ Central] Re: JUST DIAGNOSEDTo: Hepatitis_C_ Central@yahoogro ups.comDate: Tuesday, June 2, 2009, 12:31 AM Anyone who achieves SVR is still at risk for a relapse . They have found HCV cells in the brains of deceased patients who reached SVR but died from other problems . Until the doctors can eradicate the HCV from the cellular level there is a chance of relapse . That 100% number is inaccurate , I believe the number is more like 65% to 70% . That is a guess on my part and I would have to reread some of my research papers . [Hepatitis_C_ Central] Re: JUST DIAGNOSED i know that not everyone achieves long term SVR but for those that do they stand almost a 100% chance of staying that way. http://hepatitis- central.com/ mt/archives/ 2007/05/a_ cure_for_ hepa.html .of the less then 1% of the people that did relapse in this study it was unclear if it was done by re-infection. this link also includes other links.http://hepatitis- central.com/ mt/archives/ 2007/05/a_ cure_for_ hepa.htmli am also aware of studies that show about 1% of people with longterm SVR can show the virus in the liver but not the blood.i do believe it is a disease that can be cured and i hope i can be one of the 1st people to use that phrase.(((hugs)))> > > >> > > > NOPE Bob,, if I were truely cured,, I'd be able to buy life insurance and donate blood.. until I can do those things, I will consider myself in remission and not cured!!!> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2009 Report Share Posted June 2, 2009 Liz, I have read that after 5 years, the relapse rates are only about 1-2% but IF YOU fall in that 1-2 percent, its devastating.. Subject: Re: Re: JUST DIAGNOSEDTo: Hepatitis_C_Central Date: Tuesday, June 2, 2009, 12:31 AM Anyone who achieves SVR is still at risk for a relapse . They have found HCV cells in the brains of deceased patients who reached SVR but died from other problems . Until the doctors can eradicate the HCV from the cellular level there is a chance of relapse . That 100% number is inaccurate , I believe the number is more like 65% to 70% . That is a guess on my part and I would have to reread some of my research papers . [Hepatitis_C_ Central] Re: JUST DIAGNOSED i know that not everyone achieves long term SVR but for those that do they stand almost a 100% chance of staying that way. http://hepatitis- central.com/ mt/archives/ 2007/05/a_ cure_for_ hepa.html .of the less then 1% of the people that did relapse in this study it was unclear if it was done by re-infection. this link also includes other links.http://hepatitis- central.com/ mt/archives/ 2007/05/a_ cure_for_ hepa.htmli am also aware of studies that show about 1% of people with longterm SVR can show the virus in the liver but not the blood.i do believe it is a disease that can be cured and i hope i can be one of the 1st people to use that phrase.(((hugs)))> > > >> > > > NOPE Bob,, if I were truely cured,, I'd be able to buy life insurance and donate blood.. until I can do those things, I will consider myself in remission and not cured!!!> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2009 Report Share Posted June 2, 2009 If you can reach 1 yr and still be clear then the odds of relapse are lower . It's the first yr that is the hurdle to overcome . Cause if someone is gonna relapse it is then . I would think that for anyone who acheives SVR relapsing would be awful . But it does happen unfortunately . [Hepatitis_C_ Central] Re: JUST DIAGNOSED i know that not everyone achieves long term SVR but for those that do they stand almost a 100% chance of staying that way. http://hepatitis- central.com/ mt/archives/ 2007/05/a_ cure_for_ hepa.html .of the less then 1% of the people that did relapse in this study it was unclear if it was done by re-infection. this link also includes other links.http://hepatitis- central.com/ mt/archives/ 2007/05/a_ cure_for_ hepa.htmli am also aware of studies that show about 1% of people with longterm SVR can show the virus in the liver but not the blood.i do believe it is a disease that can be cured and i hope i can be one of the 1st people to use that phrase.(((hugs)))> > > >> > > > NOPE Bob,, if I were truely cured,, I'd be able to buy life insurance and donate blood.. until I can do those things, I will consider myself in remission and not cured!!!> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2009 Report Share Posted June 2, 2009 Yes, I relapsed 4 months after my first tx with geno type 2a. I retreated tho and am SVR for over a year now, in fact, it'll be 2 years this coming August. YAY Sharon in NW Washington Knitting is...time and love made tangible. Alison Hyde If you can reach 1 yr and still be clear then the odds of relapse are lower . It's the first yr that is the hurdle to overcome . Cause if someone is gonna relapse it is then . I would think that for anyone who acheives SVR relapsing would be awful . But it does happen unfortunately . [Hepatitis_C_ Central] Re: JUST DIAGNOSED i know that not everyone achieves long term SVR but for those that do they stand almost a 100% chance of staying that way. http://hepatitis- central.com/ mt/archives/ 2007/05/a_ cure_for_ hepa.html .of the less then 1% of the people that did relapse in this study it was unclear if it was done by re-infection. this link also includes other links.http://hepatitis- central.com/ mt/archives/ 2007/05/a_ cure_for_ hepa.htmli am also aware of studies that show about 1% of people with longterm SVR can show the virus in the liver but not the blood.i do believe it is a disease that can be cured and i hope i can be one of the 1st people to use that phrase.(((hugs)))> > > >> > > > NOPE Bob,, if I were truely cured,, I'd be able to buy life insurance and donate blood.. until I can do those things, I will consider myself in remission and not cured!!!> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2009 Report Share Posted June 2, 2009 That is so awesome Sharon ! I am hoping to be able to treat sometime next yr again , 6th time will be the charm I hope lol [Hepatitis_C_ Central] Re: JUST DIAGNOSED i know that not everyone achieves long term SVR but for those that do they stand almost a 100% chance of staying that way. http://hepatitis- central.com/ mt/archives/ 2007/05/a_ cure_for_ hepa.html .of the less then 1% of the people that did relapse in this study it was unclear if it was done by re-infection. this link also includes other links.http://hepatitis- central.com/ mt/archives/ 2007/05/a_ cure_for_ hepa.htmli am also aware of studies that show about 1% of people with longterm SVR can show the virus in the liver but not the blood.i do believe it is a disease that can be cured and i hope i can be one of the 1st people to use that phrase.(((hugs)))> > > >> > > > NOPE Bob,, if I were truely cured,, I'd be able to buy life insurance and donate blood.. until I can do those things, I will consider myself in remission and not cured!!!> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2009 Report Share Posted June 2, 2009 YES, I'll surely be rooting for you , as will the whole group. Sharon in NW Washington Knitting is...time and love made tangible. Alison Hyde [Hepatitis_C_ Central] Re: JUST DIAGNOSED i know that not everyone achieves long term SVR but for those that do they stand almost a 100% chance of staying that way. http://hepatitis- central.com/ mt/archives/ 2007/05/a_ cure_for_ hepa.html .of the less then 1% of the people that did relapse in this study it was unclear if it was done by re-infection. this link also includes other links.http://hepatitis- central.com/ mt/archives/ 2007/05/a_ cure_for_ hepa.htmli am also aware of studies that show about 1% of people with longterm SVR can show the virus in the liver but not the blood.i do believe it is a disease that can be cured and i hope i can be one of the 1st people to use that phrase.(((hugs)))> > > >> > > > NOPE Bob,, if I were truely cured,, I'd be able to buy life insurance and donate blood.. until I can do those things, I will consider myself in remission and not cured!!!> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2009 Report Share Posted June 2, 2009 Thank you [Hepatitis_C_ Central] Re: JUST DIAGNOSED i know that not everyone achieves long term SVR but for those that do they stand almost a 100% chance of staying that way. http://hepatitis- central.com/ mt/archives/ 2007/05/a_ cure_for_ hepa.html .of the less then 1% of the people that did relapse in this study it was unclear if it was done by re-infection. this link also includes other links.http://hepatitis- central.com/ mt/archives/ 2007/05/a_ cure_for_ hepa.htmli am also aware of studies that show about 1% of people with longterm SVR can show the virus in the liver but not the blood.i do believe it is a disease that can be cured and i hope i can be one of the 1st people to use that phrase.(((hugs)))> > > >> > > > NOPE Bob,, if I were truely cured,, I'd be able to buy life insurance and donate blood.. until I can do those things, I will consider myself in remission and not cured!!!> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2009 Report Share Posted June 3, 2009 Your story is one of encouragement and hope for all Sharon. I like it when a someone has a happy ending like yours. Hugs Love Janet "There are souls in this world that have the gift of finding joy everywhere and of leaving it behind them when they go" Frederick Faber From: elizabethnv1 <elizabethnv1@ earthlink. net>Subject: Re: [Hepatitis_C_ Central] Re: JUST DIAGNOSEDTo: Hepatitis_C_ Central@yahoogro ups.comDate: Tuesday, June 2, 2009, 12:31 AM Anyone who achieves SVR is still at risk for a relapse . They have found HCV cells in the brains of deceased patients who reached SVR but died from other problems . Until the doctors can eradicate the HCV from the cellular level there is a chance of relapse . That 100% number is inaccurate , I believe the number is more like 65% to 70% . That is a guess on my part and I would have to reread some of my research papers . [Hepatitis_C_ Central] Re: JUST DIAGNOSED i know that not everyone achieves long term SVR but for those that do they stand almost a 100% chance of staying that way. http://hepatitis- central.com/ mt/archives/ 2007/05/a_ cure_for_ hepa.html .of the less then 1% of the people that did relapse in this study it was unclear if it was done by re-infection. this link also includes other links.http://hepatitis- central.com/ mt/archives/ 2007/05/a_ cure_for_ hepa.htmli am also aware of studies that show about 1% of people with longterm SVR can show the virus in the liver but not the blood.i do believe it is a disease that can be cured and i hope i can be one of the 1st people to use that phrase.(((hugs)))> > > >> > > > NOPE Bob,, if I were truely cured,, I'd be able to buy life insurance and donate blood.. until I can do those things, I will consider myself in remission and not cured!!!> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2009 Report Share Posted June 3, 2009 Me likes it too, Janet. lol Sharon in NW Washington Knitting is...time and love made tangible. Alison Hyde [Hepatitis_C_ Central] Re: JUST DIAGNOSED i know that not everyone achieves long term SVR but for those that do they stand almost a 100% chance of staying that way. http://hepatitis- central.com/ mt/archives/ 2007/05/a_ cure_for_ hepa.html .of the less then 1% of the people that did relapse in this study it was unclear if it was done by re-infection. this link also includes other links.http://hepatitis- central.com/ mt/archives/ 2007/05/a_ cure_for_ hepa.htmli am also aware of studies that show about 1% of people with longterm SVR can show the virus in the liver but not the blood.i do believe it is a disease that can be cured and i hope i can be one of the 1st people to use that phrase.(((hugs)))> > > >> > > > NOPE Bob,, if I were truely cured,, I'd be able to buy life insurance and donate blood.. until I can do those things, I will consider myself in remission and not cured!!!> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > >> >> Quote Link to comment Share on other sites More sharing options...
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