Guest guest Posted April 15, 2009 Report Share Posted April 15, 2009 well that is getting low but not low enough really to stop tx at this point,, I have heard, but I dont know for sure that wheatgrass juice can raise your rbc's and hemoglobin,, I hear it tastes like 'AWFUL" tho,, I've never tried it.. Im glad once again that you're not taking IRON,, relieved too, lol my wbc's and rbcs were both sitting at 1.0 and my hemoglobin was at 7.0 when I finished tx... hugs jax Subject: Re: Lab Test ResultsTo: Hepatitis_C_Central Date: Wednesday, April 15, 2009, 8:42 PM Thanks, Jackie. My hemoglobin was 8.6, not real low, but lower than when I had my last blood transfusion. My hematocrit was 25, and RBC was 2.49. My wbc was 2.9.Penny > > > From: preciouspenny3 <preciouspenny3@ ...>> Subject: [Hepatitis_C_ Central] Lab Test Results> To: Hepatitis_C_ Central@yahoogro ups.com> Date: Wednesday, April 15, 2009, 8:23 PM> > > > > > > > > I got my lab results from Monday today, and my red blood cell counts have dropped even more. They are now lower than they were when I got the blood transfusion a little over a month ago. I got an increased dosage Friday of the Aranesp (like Procrit) shot to see if that will bring my red blood cell counts back up. They also did iron studies, ferritin and folate. They thought they must be low, and they said the Aranesp wouldn't work if my iron was low, but they are high. The ferritin is very high to me. Normal is 13-150 and mine is 764. The iron is 177 (normal 37-145), and saturation is 56% (normal 0-49%). My folate is just slightly high. I don't know what that means or what they're going to do. I'll have to call my post transplant coordinator tomorrow.> > I'm still undetectable and my AST and ALT are nice and low like I haven't seen in 20+ years.> > Penny> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2009 Report Share Posted April 16, 2009 Gosh, that's a blast from my past. Daryl took wheatgrass along with Aranesp and it did help his levels a little. I guess every little bit helps as they say. Luv anne "You can conquer almost any fear if you will only make up your mind to do so.Remember, fear doesn't exist anywhere except in the mind." [Hepatitis_C_ Central] Lab Test Results> To: Hepatitis_C_ Central@yahoogro ups.com> Date: Wednesday, April 15, 2009, 8:23 PM> > > > > > > > > I got my lab results from Monday today, and my red blood cell counts have dropped even more. They are now lower than they were when I got the blood transfusion a little over a month ago. I got an increased dosage Friday of the Aranesp (like Procrit) shot to see if that will bring my red blood cell counts back up. They also did iron studies, ferritin and folate. They thought they must be low, and they said the Aranesp wouldn't work if my iron was low, but they are high. The ferritin is very high to me. Normal is 13-150 and mine is 764. The iron is 177 (normal 37-145), and saturation is 56% (normal 0-49%). My folate is just slightly high. I don't know what that means or what they're going to do. I'll have to call my post transplant coordinator tomorrow.> > I'm still undetectable and my AST and ALT are nice and low like I haven't seen in 20+ years.> > Penny> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2009 Report Share Posted April 16, 2009 well sometimes even a little bit can help huh? lol,,, From: preciouspenny3 <preciouspenny3@ yahoo.com>Subject: [Hepatitis_C_ Central] Re: Lab Test ResultsTo: Hepatitis_C_ Central@yahoogro ups.comDate: Wednesday, April 15, 2009, 8:42 PM Thanks, Jackie. My hemoglobin was 8.6, not real low, but lower than when I had my last blood transfusion. My hematocrit was 25, and RBC was 2.49. My wbc was 2.9.Penny > > > From: preciouspenny3 <preciouspenny3@ ...>> Subject: [Hepatitis_C_ Central] Lab Test Results> To: Hepatitis_C_ Central@yahoogro ups.com> Date: Wednesday, April 15, 2009, 8:23 PM> > > > > > > > > I got my lab results from Monday today, and my red blood cell counts have dropped even more. They are now lower than they were when I got the blood transfusion a little over a month ago. I got an increased dosage Friday of the Aranesp (like Procrit) shot to see if that will bring my red blood cell counts back up. They also did iron studies, ferritin and folate. They thought they must be low, and they said the Aranesp wouldn't work if my iron was low, but they are high. The ferritin is very high to me. Normal is 13-150 and mine is 764. The iron is 177 (normal 37-145), and saturation is 56% (normal 0-49%). My folate is just slightly high. I don't know what that means or what they're going to do. I'll have to call my post transplant coordinator tomorrow.> > I'm still undetectable and my AST and ALT are nice and low like I haven't seen in 20+ years.> > Penny> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2009 Report Share Posted April 16, 2009 Jackie, do you mean that taking iron will interfere with treatment? I've never heard that, but there's so much I don't know!Thanks,Leigh>> Im soooo glad they checked your FERRITIN level as most of the time they just give you iron and that would make your treatment worthless.. the same thing happened to me and Dr. Cecil told both me and my doc that those levels will go back to normal when Im done with treatment and he was right,, it did go back to normal... they may cut your dose a little for a week or two to see if you can bounce back.. How low was your rbc's hemoglobin and wbc Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2009 Report Share Posted April 16, 2009 Iron is very destructive to our livers and if we are on tx , yes it can interfere with tx and can actually make tx ineffective, especially if you take iron and you dont need it.. My own insurance company told my doc to give me iron if I was anemic because they didnt want to pay for the procrit,, well my ferritin level was 717 which is extremely high and adding more iron would have killed me or make my tx not work! My iron level was that high even tho my rbc's were 1.0 and my hemoglobin was 7.0.... NOT all anemia is from lack of iron,, and in our case while on tx, the anemia is most of the time caused by the treatment meds and has NOTHING to do with low iron.. We used to believe that 'stored iron' was good, remember all those people who took "Geritol"? well they are all dead now and they know that iron that is stored causes heart disease, and organ failure in many other areas... I didnt know this about iron either before doing tx.. Liz, our researcher has hemocromitosis, not sure if I spelled that right but she has too much iron and they wont even start her treatment until they draw off enough blood to lower her stores of iron down to where she is almost 'low' in iron,,otherwise tx wont work... iron is very dangerous,, we need some but most of us do NOT need iron, especially while on tx.. I hope that helps,, jax >> Im soooo glad they checked your FERRITIN level as most of the time they just give you iron and that would make your treatment worthless.. the same thing happened to me and Dr. Cecil told both me and my doc that those levels will go back to normal when Im done with treatment and he was right,, it did go back to normal... they may cut your dose a little for a week or two to see if you can bounce back.. How low was your rbc's hemoglobin and wbc Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2009 Report Share Posted April 17, 2009 Oh absolutely Jackie! EVERY little bit helps! Lots of little bits make up a BIG bit! LMAO Luv anne "You can conquer almost any fear if you will only make up your mind to do so.Remember, fear doesn't exist anywhere except in the mind." [Hepatitis_C_ Central] Lab Test Results> To: Hepatitis_C_ Central@yahoogro ups.com> Date: Wednesday, April 15, 2009, 8:23 PM> > > > > > > > > I got my lab results from Monday today, and my red blood cell counts have dropped even more. They are now lower than they were when I got the blood transfusion a little over a month ago. I got an increased dosage Friday of the Aranesp (like Procrit) shot to see if that will bring my red blood cell counts back up. They also did iron studies, ferritin and folate. They thought they must be low, and they said the Aranesp wouldn't work if my iron was low, but they are high. The ferritin is very high to me. Normal is 13-150 and mine is 764. The iron is 177 (normal 37-145), and saturation is 56% (normal 0-49%). My folate is just slightly high. I don't know what that means or what they're going to do. I'll have to call my post transplant coordinator tomorrow.> > I'm still undetectable and my AST and ALT are nice and low like I haven't seen in 20+ years.> > Penny> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2009 Report Share Posted April 17, 2009 That really does make a lot of sense. When my hemoglobin was down during treatment, what did I do? Ran out and bought a multi vitamin with iron, thinking that would help. It was only 10 mg. of iron (says 56% RDA) and I didn't take it all the time, but I wish I had known. None of my labs during and after tx have measured my ferratin. I did find a lab from Jan. '08 which showed my ferratin level at 220. Well now I'll be more careful! Thanks for the explanation.LeighIron is very destructive to our livers and if we are on tx , yes it can interfere with tx and can actually make tx ineffective, especially if you take iron and you dont need it.. My own insurance company told my doc to give me iron if I was anemic because they didnt want to pay for the procrit,, well my ferritin level was 717 which is extremely high and adding more iron would have killed me or make my tx not work! My iron level was that high even tho my rbc's were 1.0 and my hemoglobin was 7.0.... NOT all anemia is from lack of iron,, and in our case while on tx, the anemia is most of the time caused by the treatment meds and has NOTHING to do with low iron.. We used to believe that 'stored iron' was good, remember all those people who took "Geritol"? well they are all dead now and they know that iron that is stored causes heart disease, and organ failure in many other areas... I didnt know this about iron either before doing tx.. Liz, our researcher has hemocromitosis, not sure if I spelled that right but she has too much iron and they wont even start her treatment until they draw off enough blood to lower her stores of iron down to where she is almost 'low' in iron,,otherwise tx wont work... iron is very dangerous,, we need some but most of us do NOT need iron, especially while on tx..I hope that helps,,jax--- On Thu, 4/16/09, Leigh Sippel <lsippelatt (DOT) net> wrote:From: Leigh Sippel <lsippelatt (DOT) net>Subject: Re: Re: Lab Test ResultsTo: Hepatitis_C_Central Date: Thursday, April 16, 2009, 3:45 PMJackie, do you mean that taking iron will interfere with treatment? I've never heard that, but there's so much I don't know!Thanks,Leigh>> Im soooo glad they checked your FERRITIN level as most of the time they just give you iron and that would make your treatment worthless.. the same thing happened to me and Dr. Cecil told both me and my doc that those levels will go back to normal when Im done with treatment and he was right,, it did go back to normal... they may cut your dose a little for a week or two to see if you can bounce back.. How low was your rbc's hemoglobin and wbc Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2009 Report Share Posted April 17, 2009 you're very welcome hon,, its these little things that can make or break our treatment regimines too... jax >> Im soooo glad they checked your FERRITIN level as most of the time they just give you iron and that would make your treatment worthless.. the same thing happened to me and Dr. Cecil told both me and my doc that those levels will go back to normal when Im done with treatment and he was right,, it did go back to normal... they may cut your dose a little for a week or two to see if you can bounce back.. How low was your rbc's hemoglobin and wbc Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2009 Report Share Posted April 17, 2009 I forgot to ask you, you said you treated,, did you clear? >> Im soooo glad they checked your FERRITIN level as most of the time they just give you iron and that would make your treatment worthless.. the same thing happened to me and Dr. Cecil told both me and my doc that those levels will go back to normal when Im done with treatment and he was right,, it did go back to normal... they may cut your dose a little for a week or two to see if you can bounce back.. How low was your rbc's hemoglobin and wbc Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2009 Report Share Posted April 17, 2009 I did tx, finished in late Jan. I did the Vertex clinical trial and my tests came back undetectable, but the test before last said undetectable under 25, with a footnote 'virus detected, unquantifiable'. Then my last lab said 'undetectable'. So it's a little confusing. I might have a very small amount of virus or I might continue to remain undetectable. I go in for blood work on Monday; we'll see what those results will be. I'm also going to ask my doctor about the Heptimax test. Because the trial doesn't do this particular test, I'd have to do it on my own. I do have insurance, thankfully.So if I didn't clear the virus, I did get it waaaay down and my liver enzymes are down which will hopefully help my liver. It's a wait and see thing.LeighI forgot to ask you, you said you treated,, did you clear?--- On Fri, 4/17/09, Leigh Sippel <lsippelatt (DOT) net> wrote:From: Leigh Sippel <lsippelatt (DOT) net>Subject: Re: Re: Lab Test ResultsTo: Hepatitis_C_Central Date: Friday, April 17, 2009, 8:43 AMThat really does make a lot of sense. When my hemoglobin was down during treatment, what did I do? Ran out and bought a multi vitamin with iron, thinking that would help. It was only 10 mg. of iron (says 56% RDA) and I didn't take it all the time, but I wish I had known. None of my labs during and after tx have measured my ferratin. I did find a lab from Jan. '08 which showed my ferratin level at 220. Well now I'll be more careful! Thanks for the explanation.LeighIron is very destructive to our livers and if we are on tx , yes it can interfere with tx and can actually make tx ineffective, especially if you take iron and you dont need it.. My own insurance company told my doc to give me iron if I was anemic because they didnt want to pay for the procrit,, well my ferritin level was 717 which is extremely high and adding more iron would have killed me or make my tx not work! My iron level was that high even tho my rbc's were 1.0 and my hemoglobin was 7.0.... NOT all anemia is from lack of iron,, and in our case while on tx, the anemia is most of the time caused by the treatment meds and has NOTHING to do with low iron.. We used to believe that 'stored iron' was good, remember all those people who took "Geritol"? well they are all dead now and they know that iron that is stored causes heart disease, and organ failure in many other areas... I didnt know this about iron either before doing tx.. Liz, our researcher has hemocromitosis, not sure if I spelled that right but she has too much iron and they wont even start her treatment until they draw off enough blood to lower her stores of iron down to where she is almost 'low' in iron,,otherwise tx wont work... iron is very dangerous,, we need some but most of us do NOT need iron, especially while on tx..I hope that helps,,jax--- On Thu, 4/16/09, Leigh Sippel <lsippelatt (DOT) net> wrote:From: Leigh Sippel <lsippelatt (DOT) net>Subject: Re: [Hepatitis_C_ Central] Re: Lab Test ResultsTo: Hepatitis_C_ Central@yahoogro ups.comDate: Thursday, April 16, 2009, 3:45 PMJackie, do you mean that taking iron will interfere with treatment? I've never heard that, but there's so much I don't know!Thanks,Leigh>> Im soooo glad they checked your FERRITIN level as most of the time they just give you iron and that would make your treatment worthless.. the same thing happened to me and Dr. Cecil told both me and my doc that those levels will go back to normal when Im done with treatment and he was right,, it did go back to normal... they may cut your dose a little for a week or two to see if you can bounce back.. How low was your rbc's hemoglobin and wbc Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2009 Report Share Posted April 17, 2009 ok hon, I just couldnt remember,, thats one of the left overs I have from treatment.. I hope you'll remain SVR ,,, let us all know what you find out and we'll be 'pulling for you' !!! hugs, jax >> Im soooo glad they checked your FERRITIN level as most of the time they just give you iron and that would make your treatment worthless.. the same thing happened to me and Dr. Cecil told both me and my doc that those levels will go back to normal when Im done with treatment and he was right,, it did go back to normal... they may cut your dose a little for a week or two to see if you can bounce back.. How low was your rbc's hemoglobin and wbc Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2009 Report Share Posted April 17, 2009 Hey, I totally understand. Last night I asked my husband a question about the fence we're putting in . . . I do remember asking the same question a couple of times, but I couldn't remember the answer. LOL Leighok hon, I just couldnt remember,, thats one of the left overs I have from treatment.. I hope you'll remain SVR ,,, let us all know what you find out and we'll be 'pulling for you' !!!hugs,jax--- On Fri, 4/17/09, Leigh Sippel <lsippelatt (DOT) net> wrote:From: Leigh Sippel <lsippelatt (DOT) net>Subject: Re: Re: Lab Test ResultsTo: Hepatitis_C_Central Date: Friday, April 17, 2009, 11:10 AMI did tx, finished in late Jan. I did the Vertex clinical trial and my tests came back undetectable, but the test before last said undetectable under 25, with a footnote 'virus detected, unquantifiable' . Then my last lab said 'undetectable' . So it's a little confusing. I might have a very small amount of virus or I might continue to remain undetectable. I go in for blood work on Monday; we'll see what those results will be. I'm also going to ask my doctor about the Heptimax test. Because the trial doesn't do this particular test, I'd have to do it on my own. I do have insurance, thankfully.So if I didn't clear the virus, I did get it waaaay down and my liver enzymes are down which will hopefully help my liver. It's a wait and see thing.Leigh Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2009 Report Share Posted April 17, 2009 hahaha,, I do the SAME things,, my poor hubby,, he is so patient with me! From: Leigh Sippel <lsippelatt (DOT) net>Subject: Re: [Hepatitis_C_ Central] Re: Lab Test ResultsTo: Hepatitis_C_ Central@yahoogro ups.comDate: Friday, April 17, 2009, 11:10 AM I did tx, finished in late Jan. I did the Vertex clinical trial and my tests came back undetectable, but the test before last said undetectable under 25, with a footnote 'virus detected, unquantifiable' . Then my last lab said 'undetectable' . So it's a little confusing. I might have a very small amount of virus or I might continue to remain undetectable. I go in for blood work on Monday; we'll see what those results will be. I'm also going to ask my doctor about the Heptimax test. Because the trial doesn't do this particular test, I'd have to do it on my own. I do have insurance, thankfully. So if I didn't clear the virus, I did get it waaaay down and my liver enzymes are down which will hopefully help my liver. It's a wait and see thing. Leigh Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2009 Report Share Posted April 17, 2009 Same with my husband; he has showed incredible patience. I was so thankful for his understanding and support during treatment; it meant so much to me and I know if the tables were turned, I probably wouldn't have shown as much patience! I wasn't easy to live with, I'm sure. Not raging, but just a wet rag. I did my share of complaining too It's so important to have that support.Leighhahaha,, I do the SAME things,, my poor hubby,, he is so patient with me!--- On Fri, 4/17/09, Leigh Sippel <lsippelatt (DOT) net> wrote:From: Leigh Sippel <lsippelatt (DOT) net>Subject: Re: Re: Lab Test ResultsTo: Hepatitis_C_Central Date: Friday, April 17, 2009, 11:27 AMHey, I totally understand. Last night I asked my husband a question about the fence we're putting in . . . I do remember asking the same question a couple of times, but I couldn't remember the answer. LOL Leighok hon, I just couldnt remember,, thats one of the left overs I have from treatment.. I hope you'll remain SVR ,,, let us all know what you find out and we'll be 'pulling for you' !!!hugs,jax--- On Fri, 4/17/09, Leigh Sippel <lsippelatt (DOT) net> wrote:From: Leigh Sippel <lsippelatt (DOT) net>Subject: Re: [Hepatitis_C_ Central] Re: Lab Test ResultsTo: Hepatitis_C_ Central@yahoogro ups.comDate: Friday, April 17, 2009, 11:10 AMI did tx, finished in late Jan. I did the Vertex clinical trial and my tests came back undetectable, but the test before last said undetectable under 25, with a footnote 'virus detected, unquantifiable' . Then my last lab said 'undetectable' . So it's a little confusing. I might have a very small amount of virus or I might continue to remain undetectable. I go in for blood work on Monday; we'll see what those results will be. I'm also going to ask my doctor about the Heptimax test. Because the trial doesn't do this particular test, I'd have to do it on my own. I do have insurance, thankfully.So if I didn't clear the virus, I did get it waaaay down and my liver enzymes are down which will hopefully help my liver. It's a wait and see thing.Leigh Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2009 Report Share Posted April 17, 2009 I totally relate to what you're saying,, I also never had any raging but just basically slept the year of tx away,, he did everything,, all the shopping , cooking, cleaning, running me to every doc and lab appt.. he did it all and without him I'd have never been able to finish treatment,, Ill be forever grateful!!! From: Leigh Sippel <lsippelatt (DOT) net>Subject: Re: [Hepatitis_C_ Central] Re: Lab Test ResultsTo: Hepatitis_C_ Central@yahoogro ups.comDate: Friday, April 17, 2009, 11:10 AM I did tx, finished in late Jan. I did the Vertex clinical trial and my tests came back undetectable, but the test before last said undetectable under 25, with a footnote 'virus detected, unquantifiable' . Then my last lab said 'undetectable' . So it's a little confusing. I might have a very small amount of virus or I might continue to remain undetectable. I go in for blood work on Monday; we'll see what those results will be. I'm also going to ask my doctor about the Heptimax test. Because the trial doesn't do this particular test, I'd have to do it on my own. I do have insurance, thankfully. So if I didn't clear the virus, I did get it waaaay down and my liver enzymes are down which will hopefully help my liver. It's a wait and see thing. Leigh Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2009 Report Share Posted April 18, 2009 Normal iron should be <50 and my hepatologist wants me to stay down at 20 which is enemic but much better for my liver . Hi iron can deposit itself into the kidneys , heart , and the liver which can prove fatal . So anyone with hepatitis c should monitor their iron levels before during and after treatment . Re: Re: Lab Test Results Iron is very destructive to our livers and if we are on tx , yes it can interfere with tx and can actually make tx ineffective, especially if you take iron and you dont need it.. My own insurance company told my doc to give me iron if I was anemic because they didnt want to pay for the procrit,, well my ferritin level was 717 which is extremely high and adding more iron would have killed me or make my tx not work! My iron level was that high even tho my rbc's were 1.0 and my hemoglobin was 7.0.... NOT all anemia is from lack of iron,, and in our case while on tx, the anemia is most of the time caused by the treatment meds and has NOTHING to do with low iron.. We used to believe that 'stored iron' was good, remember all those people who took "Geritol"? well they are all dead now and they know that iron that is stored causes heart disease, and organ failure in many other areas... I didnt know this about iron either before doing tx.. Liz, our researcher has hemocromitosis, not sure if I spelled that right but she has too much iron and they wont even start her treatment until they draw off enough blood to lower her stores of iron down to where she is almost 'low' in iron,,otherwise tx wont work... iron is very dangerous,, we need some but most of us do NOT need iron, especially while on tx.. I hope that helps,, jax >> Im soooo glad they checked your FERRITIN level as most of the time they just give you iron and that would make your treatment worthless.. the same thing happened to me and Dr. Cecil told both me and my doc that those levels will go back to normal when Im done with treatment and he was right,, it did go back to normal... they may cut your dose a little for a week or two to see if you can bounce back.. How low was your rbc's hemoglobin and wbc Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2009 Report Share Posted April 18, 2009 Well well well, lookie here! It's !!! Where you been girl????? Luv anne "You can conquer almost any fear if you will only make up your mind to do so.Remember, fear doesn't exist anywhere except in the mind." Re: Re: Lab Test Results Iron is very destructive to our livers and if we are on tx , yes it can interfere with tx and can actually make tx ineffective, especially if you take iron and you dont need it.. My own insurance company told my doc to give me iron if I was anemic because they didnt want to pay for the procrit,, well my ferritin level was 717 which is extremely high and adding more iron would have killed me or make my tx not work! My iron level was that high even tho my rbc's were 1.0 and my hemoglobin was 7.0.... NOT all anemia is from lack of iron,, and in our case while on tx, the anemia is most of the time caused by the treatment meds and has NOTHING to do with low iron.. We used to believe that 'stored iron' was good, remember all those people who took "Geritol"? well they are all dead now and they know that iron that is stored causes heart disease, and organ failure in many other areas... I didnt know this about iron either before doing tx.. Liz, our researcher has hemocromitosis, not sure if I spelled that right but she has too much iron and they wont even start her treatment until they draw off enough blood to lower her stores of iron down to where she is almost 'low' in iron,,otherwise tx wont work... iron is very dangerous,, we need some but most of us do NOT need iron, especially while on tx.. I hope that helps,, jax >> Im soooo glad they checked your FERRITIN level as most of the time they just give you iron and that would make your treatment worthless.. the same thing happened to me and Dr. Cecil told both me and my doc that those levels will go back to normal when Im done with treatment and he was right,, it did go back to normal... they may cut your dose a little for a week or two to see if you can bounce back.. How low was your rbc's hemoglobin and wbc Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2009 Report Share Posted April 18, 2009 Sick , and then dealing with a daughter who joined the military and now wants out lol Plus between last month and this month we have 5 birthdays to deal with so it feels like I am stretched thin with no time but late at nite . Re: Re: Lab Test Results Iron is very destructive to our livers and if we are on tx , yes it can interfere with tx and can actually make tx ineffective, especially if you take iron and you dont need it.. My own insurance company told my doc to give me iron if I was anemic because they didnt want to pay for the procrit,, well my ferritin level was 717 which is extremely high and adding more iron would have killed me or make my tx not work! My iron level was that high even tho my rbc's were 1.0 and my hemoglobin was 7.0.... NOT all anemia is from lack of iron,, and in our case while on tx, the anemia is most of the time caused by the treatment meds and has NOTHING to do with low iron.. We used to believe that 'stored iron' was good, remember all those people who took "Geritol"? well they are all dead now and they know that iron that is stored causes heart disease, and organ failure in many other areas... I didnt know this about iron either before doing tx.. Liz, our researcher has hemocromitosis, not sure if I spelled that right but she has too much iron and they wont even start her treatment until they draw off enough blood to lower her stores of iron down to where she is almost 'low' in iron,,otherwise tx wont work... iron is very dangerous,, we need some but most of us do NOT need iron, especially while on tx.. I hope that helps,, jax >> Im soooo glad they checked your FERRITIN level as most of the time they just give you iron and that would make your treatment worthless.. the same thing happened to me and Dr. Cecil told both me and my doc that those levels will go back to normal when Im done with treatment and he was right,, it did go back to normal... they may cut your dose a little for a week or two to see if you can bounce back.. How low was your rbc's hemoglobin and wbc Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2009 Report Share Posted April 19, 2009 I'm so glad you found a minute to let us know you're here with us. Remember to try to find time just for you hun. Luv anne "You can conquer almost any fear if you will only make up your mind to do so.Remember, fear doesn't exist anywhere except in the mind." Re: Re: Lab Test Results Iron is very destructive to our livers and if we are on tx , yes it can interfere with tx and can actually make tx ineffective, especially if you take iron and you dont need it.. My own insurance company told my doc to give me iron if I was anemic because they didnt want to pay for the procrit,, well my ferritin level was 717 which is extremely high and adding more iron would have killed me or make my tx not work! My iron level was that high even tho my rbc's were 1.0 and my hemoglobin was 7.0.... NOT all anemia is from lack of iron,, and in our case while on tx, the anemia is most of the time caused by the treatment meds and has NOTHING to do with low iron.. We used to believe that 'stored iron' was good, remember all those people who took "Geritol"? well they are all dead now and they know that iron that is stored causes heart disease, and organ failure in many other areas... I didnt know this about iron either before doing tx.. Liz, our researcher has hemocromitosis, not sure if I spelled that right but she has too much iron and they wont even start her treatment until they draw off enough blood to lower her stores of iron down to where she is almost 'low' in iron,,otherwise tx wont work... iron is very dangerous,, we need some but most of us do NOT need iron, especially while on tx.. I hope that helps,, jax >> Im soooo glad they checked your FERRITIN level as most of the time they just give you iron and that would make your treatment worthless.. the same thing happened to me and Dr. Cecil told both me and my doc that those levels will go back to normal when Im done with treatment and he was right,, it did go back to normal... they may cut your dose a little for a week or two to see if you can bounce back.. How low was your rbc's hemoglobin and wbc Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2009 Report Share Posted April 19, 2009 I keep the research stuff posted when I get it and read all posts . I just always respond to them all lol Re: Re: Lab Test Results Iron is very destructive to our livers and if we are on tx , yes it can interfere with tx and can actually make tx ineffective, especially if you take iron and you dont need it.. My own insurance company told my doc to give me iron if I was anemic because they didnt want to pay for the procrit,, well my ferritin level was 717 which is extremely high and adding more iron would have killed me or make my tx not work! My iron level was that high even tho my rbc's were 1.0 and my hemoglobin was 7.0.... NOT all anemia is from lack of iron,, and in our case while on tx, the anemia is most of the time caused by the treatment meds and has NOTHING to do with low iron.. We used to believe that 'stored iron' was good, remember all those people who took "Geritol"? well they are all dead now and they know that iron that is stored causes heart disease, and organ failure in many other areas... I didnt know this about iron either before doing tx.. Liz, our researcher has hemocromitosis, not sure if I spelled that right but she has too much iron and they wont even start her treatment until they draw off enough blood to lower her stores of iron down to where she is almost 'low' in iron,,otherwise tx wont work... iron is very dangerous,, we need some but most of us do NOT need iron, especially while on tx.. I hope that helps,, jax >> Im soooo glad they checked your FERRITIN level as most of the time they just give you iron and that would make your treatment worthless.. the same thing happened to me and Dr. Cecil told both me and my doc that those levels will go back to normal when Im done with treatment and he was right,, it did go back to normal... they may cut your dose a little for a week or two to see if you can bounce back.. How low was your rbc's hemoglobin and wbc Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2009 Report Share Posted April 19, 2009 well you just take care of you honey,, I know how busy you are right now,, I've been there too, but things are finally starting to settle down for me now ,,,,,,,, finally,, lol >> Im soooo glad they checked your FERRITIN level as most of the time they just give you iron and that would make your treatment worthless.. the same thing happened to me and Dr. Cecil told both me and my doc that those levels will go back to normal when Im done with treatment and he was right,, it did go back to normal... they may cut your dose a little for a week or two to see if you can bounce back.. How low was your rbc's hemoglobin and wbc Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2009 Report Share Posted April 19, 2009 Your mothers obituary was beautiful Jackie , I don't remember if I told you that or not . My head would get lost if it wasn't attached lol It doesn't help that my husband is behaving like we are newly weds either hahahaha He takes up allot of my time lately . Re: Re: Lab Test Results well you just take care of you honey,, I know how busy you are right now,, I've been there too, but things are finally starting to settle down for me now ,,,,,,,, finally,, lol >> Im soooo glad they checked your FERRITIN level as most of the time they just give you iron and that would make your treatment worthless.. the same thing happened to me and Dr. Cecil told both me and my doc that those levels will go back to normal when Im done with treatment and he was right,, it did go back to normal... they may cut your dose a little for a week or two to see if you can bounce back.. How low was your rbc's hemoglobin and wbc Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2009 Report Share Posted April 19, 2009 Thank you honey... I can't remember if you told me already or not,, lol,, guess we both have brain drain! lol,,, well Im glad that Daymon is acting like a newliwed,, thats great honey, just enjoy it and dont worry about anything else! love ya hon me >> Im soooo glad they checked your FERRITIN level as most of the time they just give you iron and that would make your treatment worthless.. the same thing happened to me and Dr. Cecil told both me and my doc that those levels will go back to normal when Im done with treatment and he was right,, it did go back to normal... they may cut your dose a little for a week or two to see if you can bounce back.. How low was your rbc's hemoglobin and wbc Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2009 Report Share Posted April 19, 2009 Thank you honey... I can't remember if you told me already or not,, lol,, guess we both have brain drain! lol,,, well Im glad that Daymon is acting like a newliwed,, thats great honey, just enjoy it and dont worry about anything else! love ya hon me Subject: Re: Re: Lab Test ResultsTo: Hepatitis_C_Central Date: Sunday, April 19, 2009, 8:44 PM Your mothers obituary was beautiful Jackie , I don't remember if I told you that or not . My head would get lost if it wasn't attached lol It doesn't help that my husband is behaving like we are newly weds either hahahaha He takes up allot of my time lately . Re: [Hepatitis_C_ Central] Re: La Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2009 Report Share Posted April 21, 2009 Thanks, Janet. Had blood work done yesterday and hoping for good results. My Hepatologist pretty much said the same thing . . . there may be a small amount of virus, but if it's not damaging the liver then that's good. I'm still going thru thru follow up with the trial so I will be checked frequently. My doctor said she will check me every 6 months after that. She also said she had a good feeling about this, encouraging words. I also, by my request, had an iron panel done - thru my insurance. The study/trial doesn't do iron levels (which I think they should!). And my doc also ordered a TMA viral load test for good measure. So I'll have 2 viral load test results! LeighLeigh,We will always be carriers of the Hep C virus.But my best bet is that you are in the class of SVR!!!Good going Girl.LoveJanet"There are souls in this world that have the gift of finding joy everywhere and of leaving it behind them when they go"Frederick Faber Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.