Guest guest Posted November 19, 2001 Report Share Posted November 19, 2001 We love list newbies! Could you do some of your workouts during your lunch hour or do them before you drive home? What about weekends or do you get any days off? You could try to make sure that the workouts fall on those days. Are you planning on commuting indefintely or is this just temporary. This doesn't sound like something that anyone would do for a long time. Could you stay overnight if you are going to get home that late? Do you have kids or are you married? This would all make a difference in what you can do. With a 3 hour commute and long work hours, something is going to have to slide if you want to continue doing your workouts and get some sleep. This is for life and hopefully your busy time is temporary. Andyman > Hey Guys, > > I am in week 8 of BFL and saw this support group so I decided to join, > but reading your e-mails tonight I am not sure if this group applies to > me. It seems like everyone already knows each other, and I hate coming > into something as a third wheel. > > I guess the reason I actually decided to check for support groups in the > first place was because I've hit a plateau which is starting to get > frustrating, and to top it off I just got transferred from my job that > took me 5 minutes to get to, to one that takes me 1 hour and 30 minutes > each way. Coming into Christmas a busy season to begin with, I am > actually going to end up with far less time than I normally have due to > the commute, and I'm afraid my workouts will start to suffer. > > I do BFL with a friend and the only mutual time we have to go is 5 am > but now I might not be getting home some nights until after midnight. I > don't want to give up working out with my friend, but there is a thing > called sleep that I've kinda grown to love... > > Anyways, hopefully you guys don't mind a newbie. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2001 Report Share Posted November 19, 2001 , Welcome, welcome, and don't be rediculous!! You have to stay now, you hear me?? Ok, now that that's settled, it's great to have you here. We have a couple of people here that have the same commute as you. It's tough, but they are doing it and doing it well. (see , this is where you come in and say that you are doing the same thing, ok?) Glad to have you here. We are a very supportive group and have some very informative people. It's amazing the things you will get from just being here:O) Leigh fl > Hey Guys, > > I am in week 8 of BFL and saw this support group so I decided to join, > but reading your e-mails tonight I am not sure if this group applies to > me. It seems like everyone already knows each other, and I hate coming > into something as a third wheel. > > I guess the reason I actually decided to check for support groups in the > first place was because I've hit a plateau which is starting to get > frustrating, and to top it off I just got transferred from my job that > took me 5 minutes to get to, to one that takes me 1 hour and 30 minutes > each way. Coming into Christmas a busy season to begin with, I am > actually going to end up with far less time than I normally have due to > the commute, and I'm afraid my workouts will start to suffer. > > I do BFL with a friend and the only mutual time we have to go is 5 am > but now I might not be getting home some nights until after midnight. I > don't want to give up working out with my friend, but there is a thing > called sleep that I've kinda grown to love... > > Anyways, hopefully you guys don't mind a newbie. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2001 Report Share Posted November 19, 2001 Welcome , I have been on this e-mail loop for 8 months now and love all the support here. You will barely hear from me much mainly because I'm not a "chatter" in real life or in e-mail. I still find the support and can ask questions when need to and get to hear how other people are doing in BFL. Yes there are some chatting people her but what would my day be without, Jen, Lana Brett, Andy, , Sara, Mp, and Wayne? Pretty dull - and I thank them for sharing their triumphs and struggles (some that I have the same of) I hit a big plateau in week 6 of challenge 1 that didn't go away till week 10 of challenge 2. Just hang in there. That is a tough delema about sleep and workout. I know if I don't get my sleep my whole life suffers. The funny thing is that I don't really see it when I'm living it but I can look back in times of my life that were very stressful and I can say that I wasn't getting much sleep. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2001 Report Share Posted November 20, 2001 Hi and welcome! Please feel free to jump in anytime. Ask questions and I'm sure you'll get a number of responses and support. In my first challenge, the biggest changes in my transformation didn't come until weeks 8-12. C3 --- Stafford wrote: > Hey Guys, > > I am in week 8 of BFL and saw this support group so > I decided to join, __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2003 Report Share Posted May 22, 2003 Margie, What a great name! My mom, Marjory, better known as Marge, or Grandma Marge, 79, has LBD for well over two years, but am still awaiting a diagnosis other than dementia, from a neurologist. Meds seem to be a primary issue with everyone. What works for one does nothing for another, or turns them into complete zombies. My mom was recently taken off Risperdal and Trazodone. The Risperdal did horrible things by making many of the movement symptoms worse. I gave her a minimum dose, 25 mg of Trazodone before bed. She doesn't seem to have any problems without it but perhaps a little more agitated. Too early to tell. Lots of experience here and always someone who may shed light to your confusion. To avoid being repetitive in my welcome, please read my RE: Hello note to kitty purr (Beth from Ohio, I have since discovered). It tells a little on how to navigate our site and what we have available. I know you will find what it is you seek. Together, we will light the way. Love and Prayers Betty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2003 Report Share Posted May 23, 2003 Thanks Betty, It's nice knowing there are people like me out there. My friends ask, " How's your Mom " . I tell them little bits but I don't think they have a frame of reference for something like this. I think LBD is very different from AD, more bizarre. People who don't know, can't relate to it. Thanks again, Margie D & B Margie Casagrande Executive Assistant GMC-San Francisco (phone) (e-fax) Re: New to the group Margie, What a great name! My mom, Marjory, better known as Marge, or Grandma Marge, 79, has LBD for well over two years, but am still awaiting a diagnosis other than dementia, from a neurologist. Meds seem to be a primary issue with everyone. What works for one does nothing for another, or turns them into complete zombies. My mom was recently taken off Risperdal and Trazodone. The Risperdal did horrible things by making many of the movement symptoms worse. I gave her a minimum dose, 25 mg of Trazodone before bed. She doesn't seem to have any problems without it but perhaps a little more agitated. Too early to tell. Lots of experience here and always someone who may shed light to your confusion. To avoid being repetitive in my welcome, please read my RE: Hello note to kitty purr (Beth from Ohio, I have since discovered). It tells a little on how to navigate our site and what we have available. I know you will find what it is you seek. Together, we will light the way. Love and Prayers Betty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2003 Report Share Posted May 23, 2003 It is hard to know what to say when people ask how Mum is. I'm never quite sure what to say. Especially since they don't see the worst of their symptoms. Re: New to the group Margie, What a great name! My mom, Marjory, better known as Marge, or Grandma Marge, 79, has LBD for well over two years, but am still awaiting a diagnosis other than dementia, from a neurologist. Meds seem to be a primary issue with everyone. What works for one does nothing for another, or turns them into complete zombies. My mom was recently taken off Risperdal and Trazodone. The Risperdal did horrible things by making many of the movement symptoms worse. I gave her a minimum dose, 25 mg of Trazodone before bed. She doesn't seem to have any problems without it but perhaps a little more agitated. Too early to tell. Lots of experience here and always someone who may shed light to your confusion. To avoid being repetitive in my welcome, please read my RE: Hello note to kitty purr (Beth from Ohio, I have since discovered). It tells a little on how to navigate our site and what we have available. I know you will find what it is you seek. Together, we will light the way. Love and Prayers Betty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2003 Report Share Posted May 24, 2003 Hi Margie, I could relate to your email and would like to reply. I don't take time to reply often but I learn a lot from the discussion that I " listen " to. My mother was at your LO's point of LBD about a year ago. I thought last May that my mother would not see another birthday or holiday for that matter. My mother is only 10 days away from her 80th birthday. I hope she makes it! We have not weighed my mother for a year and the last weight was around 88 pounds. I would say she is closer to 80 or less. She would have weighed about 120 pounds in her better days. She has not walked for 1 year+ Last April when she was shuffling a little, I would guide her and say sit down now, and she would say " How do you do that? " After her diagnosis in June, those comments and conditions were easier to understand. If she does not think about something, sometimes she can manage the motion. She has not fed herself since last fall. On an occasional day she could manage a piece of bread or something. For the last month she has slowly found swallowing more difficult. She would regress to this level occasionally and then improve but I think it has become more constant now. She is not eating as well. Through this March she continued to eat well. She needs more encouragement to eat now. We lift her to the toilet which gives her some exercise and she will make it to the toilet if we remember to get her there when it is needed. She is like a child that has been prematurely potty trained - otherwords the caregivers are trained to take her every hour or two. If she gets nervous, such as if the phone rings or a visitor comes, she may wet through everything! Her thoughts are less coherent now. She would hallucinate but then turn and say something to you that might make sense. Now she just hallucinates with very little viable communication. She is not interested in anything including her grandchildren. She just sits there and babbles. It is so sad. There is very little quality left to her life. She is only on Airacept, Maripex and baby aspirin. A year ago she would think we were pushing the wheelchair too fast or hush people all of the time and she was in a constant chatter. A year ago she was very ridged and difficult. She still is very stiff but she seems easier to handle. I am not sure why - it is like she has given up and does not try. It seems if she would think about the process that was being done to her such as lifting or dressing, she would react in an opposite way as to do the opposite of what you needed her to do making it more difficult. I am sure we have adjusted as well. A word of advice, when we lift mother it works best if you force your knee between her legs before you lift her. This keeps her feet from tangling and if she starts to go down you can sit her on your knew to keep her from getting down to the floor. I am a weekend caregiver with my sister who lives closer. My 82 year old dad keeps mother through the week with the help of 3 visits from home health for baths and 2 respite caregivers for a couple of hours on two days. My sister goes on Thursday and one weekend day. I drive 1 1/2 hours one way on most Saturdays sometimes Sundays to take my turn. I am a teacher so this summer I will add another day to my caregiver duties. This has been a long year. My dad said he has saved $34,000 dollars keeping her out of the nursing home. I know it has been best from mother but I and my sister are worried that it will take a toll on my dad. His poor hearing I think has helped to keep his sanity. He can shut her out better than my sister and I could. You will learn that with short visits, people do not observe the symptoms and wonder if you know what you are talking about. It is like the LBD patient is on their best behavior around company. It probably stimulates the brain differently. The patient will relax among the more familiar showing their LBD! Mom still knows us - but even this has become more difficult. This is one difference that you can be thankful for compared to AD. Most of the time mom is a happy confused rather than an angry confused. Not everyone is this fortunate! My heart goes out to those that deal with an angry form of confusion most of the time. At night she has more angry confusion and I don't always see it. We took family pictures about two years ago which I am thankful for. She was loosing touch then but we did not know why. Her empty look is evident, but it is nice to have them. We have not taken pictures of mom for a year now. This is not the way she would want to be remembered. All LBD patients are different but this may give you some reflection. Good Luck - Colleen from Missouri New to the group Hello, I am new to the Group and wanted to say hello and tell you a bit about my Mom. She developed LBD about 3 & 1/2 yrs ago.--talking to kids and martians living in her house. Her down fall escalated quickly. All medications made her worse. She was up at all hours stripping her clothes off, stripping the bed as well. We put her into a board and care and now her speech is slurry and a mix of Italian (her native language), English, and ??? My family have become very good actors and are quite clever at answering her questions and comments using her body English and tone rather than even beginning to try to figure out what she's talking about. I am interested in hearing from folks who have been at this a while. I read a lot about diagnosis and early treatment but not about what to expect down the line and towards the end. Currently Mom can barely walk, weights 91 lbs. but eats like a trooper, her speech is affected, she is very stiff. Sometimes she knows me and then sometimes she talks about me, to me! She takes Trazadone to sleep, but that's really it except baby aspirin. Arisept makes her agitated and hallucinate more. None of the traditional Alzheimer drugs work or help her. This is a horrible thing to happen to anyone. God give us all strength. Margie D & B Margie Casagrande Executive Assistant GMC-San Francisco (phone) (e-fax) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2003 Report Share Posted May 24, 2003 Colleen, your post made my heart ache for you. I suppose it's also about what's in store for my mother but there you go. Thinking of you New to the group Hello, I am new to the Group and wanted to say hello and tell you a bit about my Mom. She developed LBD about 3 & 1/2 yrs ago.--talking to kids and martians living in her house. Her down fall escalated quickly. All medications made her worse. She was up at all hours stripping her clothes off, stripping the bed as well. We put her into a board and care and now her speech is slurry and a mix of Italian (her native language), English, and ??? My family have become very good actors and are quite clever at answering her questions and comments using her body English and tone rather than even beginning to try to figure out what she's talking about. I am interested in hearing from folks who have been at this a while. I read a lot about diagnosis and early treatment but not about what to expect down the line and towards the end. Currently Mom can barely walk, weights 91 lbs. but eats like a trooper, her speech is affected, she is very stiff. Sometimes she knows me and then sometimes she talks about me, to me! She takes Trazadone to sleep, but that's really it except baby aspirin. Arisept makes her agitated and hallucinate more. None of the traditional Alzheimer drugs work or help her. This is a horrible thing to happen to anyone. God give us all strength. Margie D & B Margie Casagrande Executive Assistant GMC-San Francisco (phone) (e-fax) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2008 Report Share Posted January 7, 2008 Re: New to the Group <http://groups.yahoo.com/group/Autism_in_Girls/message/34805;_ylc=X3oDMTJxM2 kwZzdlBF9TAzk3MzU5NzE1BGdycElkAzI2MTE5MgRncnBzcElkAzE3MDUwNjE2MTYEbXNnSWQDMz Q4MDUEc2VjA2Rtc2cEc2xrA3Ztc2cEc3RpbWUDMTE5OTcwMzg4Mw--> Posted by: " Marie " marie.adams@... <mailto:marie.adams@...?Subject=%20Re%3A%20New%20to%20the%20Group> marieadams85284 <http://profiles.yahoo.com/marieadams85284> Sun Jan 6, 2008 6:50 pm (PST) Welcome to the group, Lynn. Are you able to get much services living in Novato? I used to live in San & have a vague memory of having visited Novato, but not sure. How far away is Muir Woods from you & Sausalito? I haven't crossed the SF bridge in ages but do remember Sausalito & taking the ferry there. Is there an active ASA or autism groups in the SF area? It seems like there is more activity from the S. CA area but don't know if the N. CA area has much going on? I have a 26yo NT son, Jimmy, daughter in law, Lien & 2 grandkids living in Oakland. My mom & younger brother still live in San . Here in AZ, I have 2 daughters. Becky is 17, NT, senior in high school & is almost 16 (Leap Year) & has moderate autism. This is my favorite group. Marie On 1/3/08, Lynn Shoop < mikeandlynnshoop@... <mailto:mikeandlynnshoop%40aol.com> > wrote: > > Hi everyone! > > I'm so thrilled to have found this group. I often feel like " we " are > the only girl in playgroups or other Autism gatherings. It's nice to > feel like part of a " girl " group! > > I am looking forward to getting to know some of you, and being able to > come here for a great resource! > > Happy New Year everyone! > > Lynn Shoop from Novato California > Mom to Melody (almost 3 and Autistic), Harmony (almost 2 and typical), > Robbie (11 and typical), and (19 and suspected Aspergers > Syndrome) > > Lynn Shoop www.mycmsite.com/lynnshoop Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2008 Report Share Posted January 7, 2008 So sorry, I just hit “send” before typing my message! Oops! We have great services for Melody up here. Marin county is good, but we’re trying to move to a cheaper place to save some money, and Sonoma County (the next county over) has “terrible” services I hear. So, we’re sort of stuck in Marin County, where the rents are more expensive. We’re about ½ hour from Sausalito. I’m still looking for a local support group. There is one in Petaluma, but that’s still a little far for me. I used to live in Phoenix. I loved it there! I love this group too. Right now I’m just sort of “lurking”, but I’m finding it very informative. Sondra, I especially like to read what you have to say. It’s nice to have some insight from someone who is Autistic and is living it herself. I always wonder “what is my daughter thinking”, or “how does she feel about that”…..of course, she’s still very young, will be 3 in March, but she’s mostly non-verbal, and we have a difficult time sometimes trying to figure out what it is she needs or wants sometimes, which leads to frustration for us, and meltdowns for her. Lynn :-) Re: New to the Group <http://groups.yahoo.com/group/Autism_in_Girls/message/34805;_ylc=X3oDMTJxM2 kwZzdlBF9TAzk3MzU5NzE1BGdycElkAzI2MTE5MgRncnBzcElkAzE3MDUwNjE2MTYEbXNnSWQDMz Q4MDUEc2VjA2Rtc2cEc2xrA3Ztc2cEc3RpbWUDMTE5OTcwMzg4Mw--> Posted by: " Marie " marie.adams@... <mailto:marie.adams@...?Subject=%20Re%3A%20New%20to%20the%20Group> marieadams85284 <http://profiles.yahoo.com/marieadams85284> Sun Jan 6, 2008 6:50 pm (PST) Welcome to the group, Lynn. Are you able to get much services living in Novato? I used to live in San & have a vague memory of having visited Novato, but not sure. How far away is Muir Woods from you & Sausalito? I haven't crossed the SF bridge in ages but do remember Sausalito & taking the ferry there. Is there an active ASA or autism groups in the SF area? It seems like there is more activity from the S. CA area but don't know if the N. CA area has much going on? I have a 26yo NT son, Jimmy, daughter in law, Lien & 2 grandkids living in Oakland. My mom & younger brother still live in San . Here in AZ, I have 2 daughters. Becky is 17, NT, senior in high school & is almost 16 (Leap Year) & has moderate autism. This is my favorite group. Marie On 1/3/08, Lynn Shoop < mikeandlynnshoop@... <mailto:mikeandlynnshoop%40aol.com> > wrote: > > Hi everyone! > > I'm so thrilled to have found this group. I often feel like " we " are > the only girl in playgroups or other Autism gatherings. It's nice to > feel like part of a " girl " group! > > I am looking forward to getting to know some of you, and being able to > come here for a great resource! > > Happy New Year everyone! > > Lynn Shoop from Novato California > Mom to Melody (almost 3 and Autistic), Harmony (almost 2 and typical), > Robbie (11 and typical), and (19 and suspected Aspergers > Syndrome) > > Lynn Shoop www.mycmsite.com/lynnshoop Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2010 Report Share Posted February 3, 2010 Hi Kim, welcome to the group ! We're glad you found us and we will try to help you as much as we can. First off, there are NO SILLY questions... NONE... Your friend is very lucky to have you because of your interest in finding out about this disease and not resorting to assuming anything about this disease. The odds of your getting infected from intercourse are very very low. This virus is passed by "blood to blood" contact. So as long as there is no exchange of blood between you during sex, it should be no problem. I was married to my childrens father for 15 years and he is not infected nor is my current husband with whom I've been married for 10 years this Aug. If you are still of the age of menstruating, I would avoid sex during your period. The rates of transmission from sexual contact are so low even tho the CDC says its possible to infect someone via sex, I dont know ANYONE WHO HAS BEEN INFECTED by sex. Sharing of razors, toothbrushes (yuk), clippers nail files etc are more likely a source of infection than sex. I got mine from a blood transfusion when i had my first child who is now 31. Treatment is very difficult and depending upon what genotype he is, treatment times can vary. Some people can work throughout treatment but more that I know were not able to myself included. I was a 911 paramedic and had to stop working at week 12 of treatment because I became so anemic from treatment. Has your friend treated? Is he considering treatment? I highly promote Milk Thistle . I think its one of the things that enable me to finish tx and be successful. I have been in remission now for 7 years after treatment and we're seeing many ppl remain undetectible more than 10 years after treatment . but he must never consume alcohol again if he does. That is like pouring lighter fluid on a fire and will make the virus replicate at twice its normal speed. Anyway, there are lots more questions Im sure you have so please ask away. Also we have a sister group for caregivers of people who have this virus that might be helpful too but please know that you are welcome here and we will try to help you both as you go along. Please tell your friend about us here and maybe he'll join too so we can get to know him too! I am glad you found us Kim! Please keep on learning about this virus. At our website, we have lots of info there too. Knowledge is power!!! hugs and welcome again! jax To: Hepatitis_C_Central Sent: Wed, February 3, 2010 12:33:05 PMSubject: New to the group Hi Everyone. My name is Kim and I just joined the group. Reason being, is that I have been reacquainted with a love from my past, and he has informed me that he has Hep C. I myself, have thyroid issues and have joined other yahoo groups for that, and the knowledge has helped me drastically. So I thought I would join this group, in hoping to educate myself to better care for, help, and understand what my partner is going through. Forgive me at this point as I’m ignorant to a lot so I may be asking silly questions. But, as I’ve learned through my experience with my own issues, I get far more help and knowledge from other people that are actually dealing with the disease first hand, so I’m here asking you all for help, guidance and understanding. I’m still in a bit of shock so I’m trying to sort my thoughts accordingly. I have done a lot of research online of course, and have found a lot of contradicting information. 1st question ~ What are the odds of contracting HCV through unprotected intercourse? 2nd ~ I see that there is a treatment option of Interferon and or Ribaviron. Have any of you been cured with this, and are the side effects really that brutal? 3rd ~ I see that Milk Thistle is recommended for this. I’m looking for any herb or supplement that has helped any of you, or anything at all. I could pour a hundred questions out, sorry to ramble. Any advice or tips would be appreciated. I’m sorry that you all are dealing with this. Thank you in advance for your time…. Kim F. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2010 Report Share Posted February 3, 2010 Hi Jax. Thank you SO much for the reply. My friend, Wes, he lives in Washington, and I’m in Oregon. We were planning on him moving down with me and spending the rest of our lives together. We haven’t had intercourse yet, so I’m just asking for future reference. He told me this just last night, and said that he has sent me a letter explaining everything to me regarding it, and after I read it, if I still want to move forward, then we will go from there. SO… I’m sitting here waiting for the flipping mailman, that I swear is late today! I’m staring out my window as I type this. I don’t know any particulars right now, but I do know that Wes drinks, and is a fan of Excedrin. I’ve gathered as much already that these are both toxic to him. I’m sitting here crying my eyes out because he I killing himself. I understand now why his self esteem is so low and why he is so hesitant some days, etc. Fact of the matter is, he is a wonderful man, and this doesn’t change my heart. However I am angry that he isn’t taking better care of himself. We will sit and talk for hours tonight but I just can’t keep it all in right now. I’m burying myself in data and statistics while he’s working today. He is so ashamed and embarrassed and it makes me feel for him even more. I have a friend with a similar ailment and she uses me as her confidant when she needs to have ‘the talk’ with a new partner. I know there is no perfect time, I know how you can look down on yourself for this. I don’t think any less of either of them, I love them for who they are, not what they have. I am two steps from going to the herb store and making him a care package to overnight to him. LOL. I hate seeing this disease strip him of his self worth. So, I have no idea what stage, etc. yet, as my mailman is M.I.A! When you speak of the treatment you had, what type exactly is that? And is there a type of milk thistle or brand that is better than others? I also read last night about the new drug called SPC3649. Have you read about that? That sounds very promising?! Yes, no? And Wes, using the computer, LOL, don’t hold your breathe. I’m what will have to do at this point. Thank you so much already. It helps talking to someone so so much, as I’m sure you know. Kim From: Hepatitis_C_Central [mailto:Hepatitis_C_Central ] On Behalf Of Jackie on Sent: Wednesday, February 03, 2010 1:23 PM To: Hepatitis_C_Central Subject: Re: New to the group Hi Kim, welcome to the group ! We're glad you found us and we will try to help you as much as we can. First off, there are NO SILLY questions... NONE... Your friend is very lucky to have you because of your interest in finding out about this disease and not resorting to assuming anything about this disease. The odds of your getting infected from intercourse are very very low. This virus is passed by " blood to blood " contact. So as long as there is no exchange of blood between you during sex, it should be no problem. I was married to my childrens father for 15 years and he is not infected nor is my current husband with whom I've been married for 10 years this Aug. If you are still of the age of menstruating, I would avoid sex during your period. The rates of transmission from sexual contact are so low even tho the CDC says its possible to infect someone via sex, I dont know ANYONE WHO HAS BEEN INFECTED by sex. Sharing of razors, toothbrushes (yuk), clippers nail files etc are more likely a source of infection than sex. I got mine from a blood transfusion when i had my first child who is now 31. Treatment is very difficult and depending upon what genotype he is, treatment times can vary. Some people can work throughout treatment but more that I know were not able to myself included. I was a 911 paramedic and had to stop working at week 12 of treatment because I became so anemic from treatment. Has your friend treated? Is he considering treatment? I highly promote Milk Thistle . I think its one of the things that enable me to finish tx and be successful. I have been in remission now for 7 years after treatment and we're seeing many ppl remain undetectible more than 10 years after treatment . but he must never consume alcohol again if he does. That is like pouring lighter fluid on a fire and will make the virus replicate at twice its normal speed. Anyway, there are lots more questions Im sure you have so please ask away. Also we have a sister group for caregivers of people who have this virus that might be helpful too but please know that you are welcome here and we will try to help you both as you go along. Please tell your friend about us here and maybe he'll join too so we can get to know him too! I am glad you found us Kim! Please keep on learning about this virus. At our website, we have lots of info there too. Knowledge is power!!! hugs and welcome again! jax From: Kim Fella To: Hepatitis_C_Central Sent: Wed, February 3, 2010 12:33:05 PM Subject: New to the group Hi Everyone. My name is Kim and I just joined the group. Reason being, is that I have been reacquainted with a love from my past, and he has informed me that he has Hep C. I myself, have thyroid issues and have joined other yahoo groups for that, and the knowledge has helped me drastically. So I thought I would join this group, in hoping to educate myself to better care for, help, and understand what my partner is going through. Forgive me at this point as I’m ignorant to a lot so I may be asking silly questions. But, as I’ve learned through my experience with my own issues, I get far more help and knowledge from other people that are actually dealing with the disease first hand, so I’m here asking you all for help, guidance and understanding. I’m still in a bit of shock so I’m trying to sort my thoughts accordingly. I have done a lot of research online of course, and have found a lot of contradicting information. 1st question ~ What are the odds of contracting HCV through unprotected intercourse? 2nd ~ I see that there is a treatment option of Interferon and or Ribaviron. Have any of you been cured with this, and are the side effects really that brutal? 3rd ~ I see that Milk Thistle is recommended for this. I’m looking for any herb or supplement that has helped any of you, or anything at all. I could pour a hundred questions out, sorry to ramble. Any advice or tips would be appreciated. I’m sorry that you all are dealing with this. Thank you in advance for your time…. Kim F. Internal Virus Database is out of date. Checked by AVG - www.avg.com Version: 8.5.409 / Virus Database: 270.14.3/2415 - Release Date: 10/05/09 06:19:00 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2010 Report Share Posted February 3, 2010 Hi Kim I used to live in Portland and I worked for AMR and Metro West in Hillsboro.. Its a small world huh? Please dont send him herbs or anything yet,, herbs can be really toxic for our livers and we have to be ever so careful with them when our livers are infected with this virus. I would like to ask your permission to email you privately with the rest of what I would like to say regarding the rest of this post, if thats ok? You can email me personally too. jax To: Hepatitis_C_Central Sent: Wed, February 3, 2010 1:39:58 PMSubject: RE: New to the group Hi Jax. Thank you SO much for the reply. My friend, Wes, he lives in Washington, and I’m in Oregon. We were planning on him moving down with me and spending the rest of our lives together. We haven’t had intercourse yet, so I’m just asking for future reference. He told me this just last night, and said that he has sent me a letter explaining everything to me regarding it, and after I read it, if I still want to move forward, then we will go from there. SO… I’m sitting here waiting for the flipping mailman, that I swear is late today! I’m staring out my window as I type this. I don’t know any particulars right now, but I do know that Wes drinks, and is a fan of Excedrin. I’ve gathered as much already that these are both toxic to him. I’m sitting here crying my eyes out because he I killing himself. I understand now why his self esteem is so low and why he is so hesitant some days, etc. Fact of the matter is, he is a wonderful man, and this doesn’t change my heart. However I am angry that he isn’t taking better care of himself. We will sit and talk for hours tonight but I just can’t keep it all in right now. I’m burying myself in data and statistics while he’s working today. He is so ashamed and embarrassed and it makes me feel for him even more. I have a friend with a similar ailment and she uses me as her confidant when she needs to have ‘the talk’ with a new partner. I know there is no perfect time, I know how you can look down on yourself for this. I don’t think any less of either of them, I love them for who they are, not what they have. I am two steps from going to the herb store and making him a care package to overnight to him. LOL. I hate seeing this disease strip him of his self worth. So, I have no idea what stage, etc. yet, as my mailman is M.I.A! When you speak of the treatment you had, what type exactly is that? And is there a type of milk thistle or brand that is better than others? I also read last night about the new drug called SPC3649. Have you read about that? That sounds very promising?! Yes, no? And Wes, using the computer, LOL, don’t hold your breathe. I’m what will have to do at this point. Thank you so much already. It helps talking to someone so so much, as I’m sure you know. Kim From: Hepatitis_C_ Central@yahoogro ups.com [mailto:Hepatitis_ C_Central@ yahoogroups. com] On Behalf Of Jackie onSent: Wednesday, February 03, 2010 1:23 PMTo: Hepatitis_C_ Central@yahoogro ups.comSubject: Re: [Hepatitis_C_ Central] New to the group Hi Kim, welcome to the group ! We're glad you found us and we will try to help you as much as we can. First off, there are NO SILLY questions... NONE... Your friend is very lucky to have you because of your interest in finding out about this disease and not resorting to assuming anything about this disease. The odds of your getting infected from intercourse are very very low. This virus is passed by "blood to blood" contact. So as long as there is no exchange of blood between you during sex, it should be no problem. I was married to my childrens father for 15 years and he is not infected nor is my current husband with whom I've been married for 10 years this Aug. If you are still of the age of menstruating, I would avoid sex during your period. The rates of transmission from sexual contact are so low even tho the CDC says its possible to infect someone via sex, I dont know ANYONE WHO HAS BEEN INFECTED by sex. Sharing of razors, toothbrushes (yuk), clippers nail files etc are more likely a source of infection than sex. I got mine from a blood transfusion when i had my first child who is now 31. Treatment is very difficult and depending upon what genotype he is, treatment times can vary. Some people can work throughout treatment but more that I know were not able to myself included. I was a 911 paramedic and had to stop working at week 12 of treatment because I became so anemic from treatment. Has your friend treated? Is he considering treatment? I highly promote Milk Thistle . I think its one of the things that enable me to finish tx and be successful. I have been in remission now for 7 years after treatment and we're seeing many ppl remain undetectible more than 10 years after treatment . but he must never consume alcohol again if he does. That is like pouring lighter fluid on a fire and will make the virus replicate at twice its normal speed. Anyway, there are lots more questions Im sure you have so please ask away. Also we have a sister group for caregivers of people who have this virus that might be helpful too but please know that you are welcome here and we will try to help you both as you go along. Please tell your friend about us here and maybe he'll join too so we can get to know him too! I am glad you found us Kim! Please keep on learning about this virus. At our website, we have lots of info there too. Knowledge is power!!! hugs and welcome again! jax From: Kim Fella <eightiesgurl@ gmail.com>To: Hepatitis_C_ Central@yahoogro ups.comSent: Wed, February 3, 2010 12:33:05 PMSubject: [Hepatitis_C_ Central] New to the group Hi Everyone. My name is Kim and I just joined the group. Reason being, is that I have been reacquainted with a love from my past, and he has informed me that he has Hep C. I myself, have thyroid issues and have joined other yahoo groups for that, and the knowledge has helped me drastically. So I thought I would join this group, in hoping to educate myself to better care for, help, and understand what my partner is going through. Forgive me at this point as I’m ignorant to a lot so I may be asking silly questions. But, as I’ve learned through my experience with my own issues, I get far more help and knowledge from other people that are actually dealing with the disease first hand, so I’m here asking you all for help, guidance and understanding. I’m still in a bit of shock so I’m trying to sort my thoughts accordingly. I have done a lot of research online of course, and have found a lot of contradicting information. 1st question ~ What are the odds of contracting HCV through unprotected intercourse? 2nd ~ I see that there is a treatment option of Interferon and or Ribaviron. Have any of you been cured with this, and are the side effects really that brutal? 3rd ~ I see that Milk Thistle is recommended for this. I’m looking for any herb or supplement that has helped any of you, or anything at all. I could pour a hundred questions out, sorry to ramble. Any advice or tips would be appreciated. I’m sorry that you all are dealing with this. Thank you in advance for your time…. Kim F. Internal Virus Database is out of date.Checked by AVG - www.avg.comVersion: 8.5.409 / Virus Database: 270.14.3/2415 - Release Date: 10/05/09 06:19:00 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2010 Report Share Posted February 3, 2010 Hello Kim, You might want to check out the links I have at www.ke5asu.com/links.html. I don't have Hep C, but my brother did (he passed away on Dec 11, 2009. He didn't drink. He got hep C from a blood transfusion back in 1977 when he had Leukemia. Back then they did not screen blood, nor was it called hep C...it was hep not a not b until sometime around 1992. My brother already had cirrohsis of the liver stage 4 by the time he found out he had hep c. I suggest asking your friend to stop drinking, and offer him support. Perhaps go to AA meetings with him. From what I've read, they don't do liver transplants unless the person stops drinking. There is a fourmla called MELD that is used to see who is eligible for a liver transplant when. Hi Everyone. My name is Kim and I just joined the group. Reason being, is that I have been reacquainted with a love from my past, and he has informed me that he has Hep C. I myself, have thyroid issues and have joined other yahoo groups for that, and the knowledge has helped me drastically. So I thought I would join this group, in hoping to educate myself to better care for, help, and understand what my partner is going through. Forgive me at this point as I’m ignorant to a lot so I may be asking silly questions. But, as I’ve learned through my experience with my own issues, I get far more help and knowledge from other people that are actually dealing with the disease first hand, so I’m here asking you all for help, guidance and understanding. I’m still in a bit of shock so I’m trying to sort my thoughts accordingly. I have done a lot of research online of course, and have found a lot of contradicting information. 1st question ~ What are the odds of contracting HCV through unprotected intercourse? 2nd ~ I see that there is a treatment option of Interferon and or Ribaviron. Have any of you been cured with this, and are the side effects really that brutal? 3rd ~ I see that Milk Thistle is recommended for this. I’m looking for any herb or supplement that has helped any of you, or anything at all. I could pour a hundred questions out, sorry to ramble. Any advice or tips would be appreciated. I’m sorry that you all are dealing with this. Thank you in advance for your time…. Kim F. No virus found in this incoming message. Checked by AVG - www.avg.com Version: 9.0.733 / Virus Database: 271.1.1/2665 - Release Date: 02/03/10 02:09:00 -- Bill Eastman www.ke5asu.com/links.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2010 Report Share Posted February 3, 2010 Hi Bill. I deeply apologize for your loss. I will absolutely look at your link. Thank you so much. Kim From: Hepatitis_C_Central [mailto:Hepatitis_C_Central ] On Behalf Of Bill Eastman Sent: Wednesday, February 03, 2010 3:55 PM To: Hepatitis_C_Central Subject: Re: New to the group Hello Kim, You might want to check out the links I have at www.ke5asu.com/links.html. I don't have Hep C, but my brother did (he passed away on Dec 11, 2009. He didn't drink. He got hep C from a blood transfusion back in 1977 when he had Leukemia. Back then they did not screen blood, nor was it called hep C...it was hep not a not b until sometime around 1992. My brother already had cirrohsis of the liver stage 4 by the time he found out he had hep c. I suggest asking your friend to stop drinking, and offer him support. Perhaps go to AA meetings with him. From what I've read, they don't do liver transplants unless the person stops drinking. There is a fourmla called MELD that is used to see who is eligible for a liver transplant when. Hi Everyone. My name is Kim and I just joined the group. Reason being, is that I have been reacquainted with a love from my past, and he has informed me that he has Hep C. I myself, have thyroid issues and have joined other yahoo groups for that, and the knowledge has helped me drastically. So I thought I would join this group, in hoping to educate myself to better care for, help, and understand what my partner is going through. Forgive me at this point as I’m ignorant to a lot so I may be asking silly questions. But, as I’ve learned through my experience with my own issues, I get far more help and knowledge from other people that are actually dealing with the disease first hand, so I’m here asking you all for help, guidance and understanding. I’m still in a bit of shock so I’m trying to sort my thoughts accordingly. I have done a lot of research online of course, and have found a lot of contradicting information. 1st question ~ What are the odds of contracting HCV through unprotected intercourse? 2nd ~ I see that there is a treatment option of Interferon and or Ribaviron. Have any of you been cured with this, and are the side effects really that brutal? 3rd ~ I see that Milk Thistle is recommended for this. I’m looking for any herb or supplement that has helped any of you, or anything at all. I could pour a hundred questions out, sorry to ramble. Any advice or tips would be appreciated. I’m sorry that you all are dealing with this. Thank you in advance for your time…. Kim F. No virus found in this incoming message.Checked by AVG - www.avg.com Version: 9.0.733 / Virus Database: 271.1.1/2665 - Release Date: 02/03/10 02:09:00 -- Bill Eastman www.ke5asu.com/links.html Internal Virus Database is out of date. Checked by AVG - www.avg.com Version: 8.5.409 / Virus Database: 270.14.3/2415 - Release Date: 10/05/09 06:19:00 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2010 Report Share Posted February 3, 2010 Thank you Kim. Both my sister and I were thinking Christmas 2009 was going to be his last based on everything we had read on the internet...only he didn't make it. In fact he was in the hospital for Thanksgiving. When we transfered to hospice, it looked like he knew he was being moved, but not to where. I've heard that hearing is the last to go. At the hospice the TV in his room was not receiving all the channels it should have, and I asked them to please check it out, and put the TV on Animal Planet. That was s' favorite channel. Sure enough the next day when we visited him, there was a new TV in the room and it was on Animal Planet...they remembered. What was really strange is a friend that I was in the Navy with Mom passed away on the same day, only 5 years earlier. Hi Bill. I deeply apologize for your loss. I will absolutely look at your link. Thank you so much. Kim From: Hepatitis_C_Central [mailto:Hepatitis_C_Central ] On Behalf Of Bill Eastman Sent: Wednesday, February 03, 2010 3:55 PM To: Hepatitis_C_Central Subject: Re: New to the group Hello Kim, You might want to check out the links I have at www.ke5asu.com/links.html. I don't have Hep C, but my brother did (he passed away on Dec 11, 2009. He didn't drink. He got hep C from a blood transfusion back in 1977 when he had Leukemia. Back then they did not screen blood, nor was it called hep C...it was hep not a not b until sometime around 1992. My brother already had cirrohsis of the liver stage 4 by the time he found out he had hep c. I suggest asking your friend to stop drinking, and offer him support. Perhaps go to AA meetings with him. From what I've read, they don't do liver transplants unless the person stops drinking. There is a fourmla called MELD that is used to see who is eligible for a liver transplant when. Hi Everyone. My name is Kim and I just joined the group. Reason being, is that I have been reacquainted with a love from my past, and he has informed me that he has Hep C. I myself, have thyroid issues and have joined other yahoo groups for that, and the knowledge has helped me drastically. So I thought I would join this group, in hoping to educate myself to better care for, help, and understand what my partner is going through. Forgive me at this point as I’m ignorant to a lot so I may be asking silly questions. But, as I’ve learned through my experience with my own issues, I get far more help and knowledge from other people that are actually dealing with the disease first hand, so I’m here asking you all for help, guidance and understanding. I’m still in a bit of shock so I’m trying to sort my thoughts accordingly. I have done a lot of research online of course, and have found a lot of contradicting information. 1st question ~ What are the odds of contracting HCV through unprotected intercourse? 2nd ~ I see that there is a treatment option of Interferon and or Ribaviron. Have any of you been cured with this, and are the side effects really that brutal? 3rd ~ I see that Milk Thistle is recommended for this. I’m looking for any herb or supplement that has helped any of you, or anything at all. I could pour a hundred questions out, sorry to ramble. Any advice or tips would be appreciated. I’m sorry that you all are dealing with this. Thank you in advance for your time…. Kim F. No virus found in this incoming message. Checked by AVG - www.avg.com Version: 9.0.733 / Virus Database: 271.1.1/2665 - Release Date: 02/03/10 02:09:00 -- Bill Eastman www.ke5asu.com/links.html Internal Virus Database is out of date. Checked by AVG - www.avg.com Version: 8.5.409 / Virus Database: 270.14.3/2415 - Release Date: 10/05/09 06:19:00 No virus found in this incoming message. Checked by AVG - www.avg.com Version: 9.0.733 / Virus Database: 271.1.1/2666 - Release Date: 02/03/10 13:35:00 -- Bill Eastman www.ke5asu.com/links.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2010 Report Share Posted February 4, 2010 Hi Kim, Getting educated is very important and it seems you are doing that. There is an excellent free online book " Choices " on hepcchallenges.com that is very readable and informative. Hep C appears to be only one issue that you may want to look at. If your man has Hep C, knows it, and is continuing to drink and use lots of Excedrin--that is an issue that MUST be addressed before treatment could even be considered. That raises the question of whether he has a drinking problem. Is he willing to change his lifestyle so that he can do what is necessary to treat this disease? There are alternative treatments as well as current and future treatments that will help or treat Hep C BUT ALL REQUIRE GIVING UP ALCOHOL. I'm 75, had Hep C at least 44 years and have not treated in terms of interferon etc. I use Dr Berkson's protocol. Got it either from blood transfusions in 1953 or drug use in the early 60's. In 1966 I was told that I had liver problems and not to use alcohol or drugs or the liver would get worse. In 1999, my liver disease was diagnosed as Hep C. BUT, I DID STOP DRINKING IN 1966. My liver problems have only progressed to early stage 2 in all these years. To my knowledge, no one with whom I was romantically involved over the years has Hep C. My children are fine. It is exciting to re-connect with an old love. I found an old sweetheart about ten years ago. We have lunch and talk often. Glad it did not go farther as he has an evening drinking problem and is not the man he is during the day after 6pm. It is nice to have him as a friend. Take your time and if it is all you hope it is--it will work out. SuziQ > > Hi Jax. Thank you SO much for the reply. > > My friend, Wes, he lives in Washington, and I’m in Oregon. We were planning on him moving down with me and spending the rest of our lives together. We haven’t had intercourse yet, so I’m just asking for future reference. He told me this just last night, and said that he has sent me a letter explaining everything to me regarding it, and after I read it, if I still want to move forward, then we will go from there. SO… I’m sitting here waiting for the flipping mailman, that I swear is late today! I’m staring out my window as I type this. I don’t know any particulars right now, but I do know that Wes drinks, and is a fan of Excedrin. I’ve gathered as much already that these are both toxic to him. I’m sitting here crying my eyes out because he I killing himself. I understand now why his self esteem is so low and why he is so hesitant some days, etc. Fact of the matter is, he is a wonderful man, and this doesn’t change my heart. However I am angry that he isn’t taking better care of himself. We will sit and talk for hours tonight but I just can’t keep it all in right now. I’m burying myself in data and statistics while he’s working today. He is so ashamed and embarrassed and it makes me feel for him even more. I have a friend with a similar ailment and she uses me as her confidant when she needs to have ‘the talk’ with a new partner. I know there is no perfect time, I know how you can look down on yourself for this. I don’t think any less of either of them, I love them for who they are, not what they have. I am two steps from going to the herb store and making him a care package to overnight to him. LOL. I hate seeing this disease strip him of his self worth. So, I have no idea what stage, etc. yet, as my mailman is M.I.A! When you speak of the treatment you had, what type exactly is that? And is there a type of milk thistle or brand that is better than others? I also read last night about the new drug called SPC3649. Have you read about that? That sounds very promising?! Yes, no? And Wes, using the computer, LOL, don’t hold your breathe. I’m what will have to do at this point. > > Thank you so much already. It helps talking to someone so so much, as I’m sure you know. > > Kim > > > > > > > > Internal Virus Database is out of date. > Checked by AVG - www.avg.com > Version: 8.5.409 / Virus Database: 270.14.3/2415 - Release Date: 10/05/09 06:19:00 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2010 Report Share Posted February 5, 2010 Hi Suzi. He drinks very seldom and he said it won’t be a problem at all to quit completely. He did have a biopsy done 2 years ago and they told him his liver was one step under a person who is not infected. I have asked him to get copies of the paperwork. He said he has never had any symptoms. He found out because he went to donate blood. As far as a treatment, I don’t think that will be an option right away due to cost. He will not have a job when he moves here, so insurance will not be available right off the bat. As far as the Excedrin, he said he was under the impression that was okay for him to take. Can you tell me what the best think is to take for headaches, etc, that won’t harm him? Yes its exciting reuniting. I’m enjoying every minute of it. Thank you for all the info. Kim From: Hepatitis_C_Central [mailto:Hepatitis_C_Central ] On Behalf Of SuziQ Sent: Thursday, February 04, 2010 7:40 AM To: Hepatitis_C_Central Subject: Re: New to the group Hi Kim, Getting educated is very important and it seems you are doing that. There is an excellent free online book " Choices " on hepcchallenges.com that is very readable and informative. Hep C appears to be only one issue that you may want to look at. If your man has Hep C, knows it, and is continuing to drink and use lots of Excedrin--that is an issue that MUST be addressed before treatment could even be considered. That raises the question of whether he has a drinking problem. Is he willing to change his lifestyle so that he can do what is necessary to treat this disease? There are alternative treatments as well as current and future treatments that will help or treat Hep C BUT ALL REQUIRE GIVING UP ALCOHOL. I'm 75, had Hep C at least 44 years and have not treated in terms of interferon etc. I use Dr Berkson's protocol. Got it either from blood transfusions in 1953 or drug use in the early 60's. In 1966 I was told that I had liver problems and not to use alcohol or drugs or the liver would get worse. In 1999, my liver disease was diagnosed as Hep C. BUT, I DID STOP DRINKING IN 1966. My liver problems have only progressed to early stage 2 in all these years. To my knowledge, no one with whom I was romantically involved over the years has Hep C. My children are fine. It is exciting to re-connect with an old love. I found an old sweetheart about ten years ago. We have lunch and talk often. Glad it did not go farther as he has an evening drinking problem and is not the man he is during the day after 6pm. It is nice to have him as a friend. Take your time and if it is all you hope it is--it will work out. SuziQ > > Hi Jax. Thank you SO much for the reply. > > My friend, Wes, he lives in Washington, and I’m in Oregon. We were planning on him moving down with me and spending the rest of our lives together. We haven’t had intercourse yet, so I’m just asking for future reference. He told me this just last night, and said that he has sent me a letter explaining everything to me regarding it, and after I read it, if I still want to move forward, then we will go from there. SO… I’m sitting here waiting for the flipping mailman, that I swear is late today! I’m staring out my window as I type this. I don’t know any particulars right now, but I do know that Wes drinks, and is a fan of Excedrin. I’ve gathered as much already that these are both toxic to him. I’m sitting here crying my eyes out because he I killing himself. I understand now why his self esteem is so low and why he is so hesitant some days, etc. Fact of the matter is, he is a wonderful man, and this doesn’t change my heart. However I am angry that he isn’t taking better care of himself. We will sit and talk for hours tonight but I just can’t keep it all in right now. I’m burying myself in data and statistics while he’s working today. He is so ashamed and embarrassed and it makes me feel for him even more. I have a friend with a similar ailment and she uses me as her confidant when she needs to have ‘the talk’ with a new partner. I know there is no perfect time, I know how you can look down on yourself for this. I don’t think any less of either of them, I love them for who they are, not what they have. I am two steps from going to the herb store and making him a care package to overnight to him. LOL. I hate seeing this disease strip him of his self worth. So, I have no idea what stage, etc. yet, as my mailman is M.I.A! When you speak of the treatment you had, what type exactly is that? And is there a type of milk thistle or brand that is better than others? I also read last night about the new drug called SPC3649. Have you read about that? That sounds very promising?! Yes, no? And Wes, using the computer, LOL, don’t hold your breathe. I’m what will have to do at this point. > > Thank you so much already. It helps talking to someone so so much, as I’m sure you know. > > Kim > > > > > > > > Internal Virus Database is out of date. > Checked by AVG - www.avg.com > Version: 8.5.409 / Virus Database: 270.14.3/2415 - Release Date: 10/05/09 06:19:00 > Internal Virus Database is out of date. Checked by AVG - www.avg.com Version: 8.5.409 / Virus Database: 270.14.3/2415 - Release Date: 10/05/09 06:19:00 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2011 Report Share Posted April 14, 2011 my little girl is 9 and was recently diagnoised. she is starting therapy this week, the cbt. i do not really have any support. my husband justdoes not want to make any allowences for her and if it is not his way then she is out of luck, especially with her homework. trying really hard to get the through this. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2011 Report Share Posted April 14, 2011 Glad your daughter will be starting therapy. My son's ocd put a strain on my husband and I. I have asked my son's dtr how we should handle certain situations, and then shared that information with my husband. My 14 yr old son only started therapy 6 weeks ago, but it has already helped him and also helped settle down the household. Things should get better, hang in there. Sue > > my little girl is 9 and was recently diagnoised. she is starting therapy this week, the cbt. i do not really have any support. my husband justdoes not want to make any allowences for her and if it is not his way then she is out of luck, especially with her homework. trying really hard to get the through this. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2011 Report Share Posted May 6, 2011 Welcome . You say that you want to join us as you " go through this journey again " . However, I think you will find that this journey is nothing like the ones you have been on in the past. At least that has been my experience so far. The things I have learned from I have applied to not only my weight loss effort but other areas of my life as well. I do recommend downloading the first podcasts from the website and starting from the beginning. Best Wishes, Beverly ________________________________ To: insideoutweightloss Sent: Fri, May 6, 2011 2:07:50 PM Subject: New to the group  Hello, My name is . I just discovered the IOWL podcasts and started listening this week. I have started what seems like my 10,000th regime, lifestyle change...diet. Whatever you want to call it and when i get the weight off (again) - I want to maintain it, permanently. Last significant weight loss was yrs ago - i lost 40lbs on LA weight loss. Sadly, it has been creeping back on, and I have regained just over 1/2 of it. So i would love to join your group as I go through this journey again. Regards, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2011 Report Share Posted May 7, 2011 Welcome , I too am fairly new, just joined a fortnight ago and what a treasure it has been learning from the group. Unami Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2011 Report Share Posted June 26, 2011 Welcome ! I'd have to agree with Eldred with starting at the beginning as a lot of the messages & methods build on each other. That said, I know a couple of members load up their iPod & put it on shuffle and always seem to hear or get the message that they need by listening that way! either way - I think keeping a notebook (or a page on your computer if you prefer typing!) and writing down the answers to the various questions asks during the episodes really helps to keep you focused & to think about the " why's " and get a little bit more out of each episode and/or message. To: insideoutweightloss Sent: Sunday, June 26, 2011 2:56 AM Subject: New to the Group  Good morning I have been listening to 's podcast off and on for a while now. I just decided to commit time and effort to give her approach a real try. My story is very similar to all the post I have read on this blog. Binge eating etc. the whole bit. I would appreciate advise on how to best get started. The podtcast I have listened to have been in random order - where should I start with them? Thank you! Quote Link to comment Share on other sites More sharing options...
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