for anyone in london/uk

July 13, 2006

Hello everyone

Was just wondering if any of you who live in the uk can recommend a good

rheumy? I'm currently seeing one who is very kind and supportive but know

doesnt know much about stills or have much experience with it.

Thanks!

>

>Reply-To: Stillsdisease

>To: <Stillsdisease >

>Subject: RE: feeling really sad

>Date: Thu, 13 Jul 2006 11:58:51 +0100

>

>Hi Carole

>

>You really do sound sad so I am just posting to give you some support. It

>is hard to keep going when everything is going wrong at once and you may

>possibly be suffering from a bit of depression, I understand steroids can

>affect you that way perhaps a chat with your doctor may help - just a

>suggestion.

>

>I am sorry that you couldn't enjoy your birthday but at the moment you

>probably couldn't enjoy anything. Maybe when you feel better (and you

>will)

>you could have another birthday but still be the same age of course !!!!

>

>I hope you will feel better soon I think as you obviously still have your

>sense of humour you will get through this bad time anyway take care of

>yourself

>

>You are not alone.

>

>Love Joan UK

>

> _____

>

>From: Stillsdisease [mailto:Stillsdisease ]

>On Behalf Of worcspubl@...

>Sent: 13 July 2006 07:16

>To: stillsdisease

>Subject: feeling really sad

>

>Hello everyone,

>

>In the big scheme of things I guess I'm ok. But I'm really really really

>sad. The fight is just getting too darned hard. It takes every ounce of my

>being to take that next right step I need to take every day. And I feel

>like

>doors have been slaming in my face non-stop lately and I feel overwhelmed

>and sad and parts of me want to give up. I know that I've been worrying Al

>considerably and as much as I love him, I don't even care that he's

>worrying. And with all the doors closing, I see none opening up! And I wait

>and wait and wait!

>

>It's been 3 months now that I've upped the steroids and I'm still not 100%

>-

>even for me. And I am so tired of feeling so crappy. I know I've been one

>of

>the lucky ones that I've been able to work and feel relatively good, but

>this sucks.

>

>Plus my birthday was Monday and it really sucked and I've felt sorry for

>myself ever since. And I'm 54! And I hate that too. My job is ending, I

>worry about the money. WE have no phone anymore, we have until the end of

>the month to use the car without driving illegally,

>

>And it's the middle of summer in south Florida and the apt swimming pool

>has

>been closed for 3 weeks now and because we've been late on rent recently, I

>hate to complain and make waves. (oh that's a pun)

>

>Usually I believe that " this too shall pass " but today I'm not quite so

>certain. I sure could use some " there, there Carole, it'll get better " so

>if

>you have a minute.....

>

>feel good everyone - Carole in Hollywood FL

>

July 13, 2006

Dear Nisha

I don’t know what part of London you are hoping to

find a rheaumy and if you want to go privately or not, but I see a Dr. Bourke

under the Nat.Health system and he resides at St. ’s Hospital

Blackshaw Road, London SW 17 OQT but you do have to be referred by your general

practitioner and also I do not know how wide an area the hospt. Covers anyway

hope this this may be of interest – good luck

All the best

Joan UK

From: Stillsdisease [mailto:Stillsdisease ] On Behalf Of Nisha Nathwani

Sent: 13 July 2006 13:44

To: Stillsdisease

Subject: for

anyone in london/uk