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People really dont get this disorder

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Can anyonelse relate to the fact that the majority of people be it educators,

principles, social workers ect, they dont really get OCD or really know much

about it. Its so weird to me it seems like a very small percentage of

psycholgist, psychiatrist and social workers really know how this disease works.

I am learning that for the most part the system is broken.

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Hello,

I wish I could say different, but our experience has been similar to yours. Our

psychiatrist didn't spend much time with us and only gave my son his

medications. Our psychologist didn't use ERP (the standard of OCD therapy; he

used only talk therapy. These professionals didn't help us much so we ended up

using ERP on our own. It was long and difficult but we finally figured it out.

But, I can't help thinking how much easier it would have been for us if we had

had some good help.

Best,

Joni

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Yes. We were lucky to have 1 (ONE!) psychologist in our area who specialized in

treating children with OCD. It took me awhile to find her(OCD Foundation

website), then took awhile to get in to see her, but it was well worth it. My

child saw a psychiatrist before I found the ONE, & that dr. said my child was

depressed & started talking meds with me. DUH, we were all depressed ... because

of the OCD.

I can't imagine trying CBT/ERP with someone who wasn't trained to do it. It

was/is hard enough & would have been so much harder for us if we had to seek

treatment from someone who didn't have a clue.

Dot

>

> Can anyonelse relate to the fact that the majority of people be it educators,

principles, social workers ect, they dont really get OCD or really know much

about it. Its so weird to me it seems like a very small percentage of

psycholgist, psychiatrist and social workers really know how this disease works.

I am learning that for the most part the system is broken.

>

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Yes. And it's sad considering the statistics of OCD. It's more prevalent than

Autism, yet gets very little attention.

BJ

>

> Can anyonelse relate to the fact that the majority of people be it educators,

principles, social workers ect, they dont really get OCD or really know much

about it. Its so weird to me it seems like a very small percentage of

psycholgist, psychiatrist and social workers really know how this disease works.

I am learning that for the most part the system is broken.

>

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hi BJ

to me it looks like no one understands...only us parents seeing our children

suffer so much...and our heart aches so much...i suffer as much as my son

suffer...and im so down...we were so happy before the monster ocd came into our

lives....it changed our lifes...it took away our happyness...it took away

everything we had...but not the love for each other...i love my child to bits

and i hate ocd too bits...i wish i had it instead of my son...i wish i can take

it away from him and me have it...may GOD bless our children and help them

through this path...may GOD help them please....

love alida

To:

From: svdbyhislove@...

Date: Sat, 4 Jun 2011 18:54:18 +0000

Subject: Re: People really dont get this disorder

Yes. And it's sad considering the statistics of OCD. It's more prevalent than

Autism, yet gets very little attention.

BJ

>

> Can anyonelse relate to the fact that the majority of people be it educators,

principles, social workers ect, they dont really get OCD or really know much

about it. Its so weird to me it seems like a very small percentage of

psycholgist, psychiatrist and social workers really know how this disease works.

I am learning that for the most part the system is broken.

>

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I completely understand, Alida. So many times I wished I could take it from our

son and bear it myself.

It's hard when they are going through a rough patch. :o(

Are you able to get some time to yourself, Alida? Sometimes that can help us

cope. OCD has the potential to drag us down so we become depressed too.

Hugs,

BJ

> >

> > Can anyonelse relate to the fact that the majority of people be it

educators, principles, social workers ect, they dont really get OCD or really

know much about it. Its so weird to me it seems like a very small percentage of

psycholgist, psychiatrist and social workers really know how this disease works.

I am learning that for the most part the system is broken.

> >

>

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