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The thing tht has helped me the most with this journey is being

able to read and learn all about the meds, stages, and people

that are dealing with much the same problems. I have been on

this trip for about 3 1/2 yrs and am now in the end-stage with

my Mother. The thing I remember the most with Mom in the begining

was I would notice something different, perhaps an action, think

about it, then in few days mention it to my husband and talk

about it, and then the confirmation when realized what I was seeing

was infact what I thought it was. I have to say that on some

days , even after this long a time, I still find it hard to

believe that Mom is in the condition that she is in. Each stage

came on and was noticed most with the need to make med adjustments,

and when she would make adjustment ie. giving up driving, asking

for assistance in getting to and from church (walking) and afraid

she would get lost, writting notes as reminders, etc. Some times

her condition changes were suttle due to the flucation in cognative

ability. That has not changed to this day. Mom is in NH and she

is not able to turn herself, she is no longer able to get up and

get around, and she may sleep in a coma like state for 22 hrs or

more in a day, and then like today, you go in she is looking around

and wants to eat dinner, and is able to help herself with the

spoon with a few bits. She has gone from 130# to 80# and she

has never been able to be rid of the hallucinations from the beginning

to now. The past few days when she does wake up she is very very

cranky, verbal and active, biting and pinching, etc. Her vitals

today stayed around 64/45 and still the normal action when she did

finally wake up. Have wanted to take her off all meds but with

her aggressive behavior she still needs the zyprexa , neurontin,

and remeron. God Bless each of you that are and have been in this

journey. NH concerns, I am so greatfull that there is a place for

Mom and they are much more able to meet her needs than I would be

at home. I did keep her home until the end of March this year, and

it was not something I could have done alone. I had caregivers that

came to her home and helped for about 1 yr. I do not feel bad

about NH now. Just thankful for the extended time she got to stay

at home. Joanne in Oregon

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Joanna, I'm really feeling it for you. I just wish there was something we

could do to help our LO's!!!!!!!!!!! Sending you and your mom strength and

a great big hug.

Courage

RE: New Diagnosis

>The thing tht has helped me the most with this journey is being

>able to read and learn all about the meds, stages, and people

>that are dealing with much the same problems. I have been on

>this trip for about 3 1/2 yrs and am now in the end-stage with

>my Mother. The thing I remember the most with Mom in the begining

>was I would notice something different, perhaps an action, think

>about it, then in few days mention it to my husband and talk

>about it, and then the confirmation when realized what I was seeing

>was infact what I thought it was. I have to say that on some

>days , even after this long a time, I still find it hard to

>believe that Mom is in the condition that she is in. Each stage

>came on and was noticed most with the need to make med adjustments,

>and when she would make adjustment ie. giving up driving, asking

>for assistance in getting to and from church (walking) and afraid

>she would get lost, writting notes as reminders, etc. Some times

>her condition changes were suttle due to the flucation in cognative

>ability. That has not changed to this day. Mom is in NH and she

>is not able to turn herself, she is no longer able to get up and

>get around, and she may sleep in a coma like state for 22 hrs or

>more in a day, and then like today, you go in she is looking around

>and wants to eat dinner, and is able to help herself with the

>spoon with a few bits. She has gone from 130# to 80# and she

>has never been able to be rid of the hallucinations from the beginning

>to now. The past few days when she does wake up she is very very

>cranky, verbal and active, biting and pinching, etc. Her vitals

>today stayed around 64/45 and still the normal action when she did

>finally wake up. Have wanted to take her off all meds but with

>her aggressive behavior she still needs the zyprexa , neurontin,

>and remeron. God Bless each of you that are and have been in this

>journey. NH concerns, I am so greatfull that there is a place for

>Mom and they are much more able to meet her needs than I would be

>at home. I did keep her home until the end of March this year, and

>it was not something I could have done alone. I had caregivers that

>came to her home and helped for about 1 yr. I do not feel bad

>about NH now. Just thankful for the extended time she got to stay

>at home. Joanne in Oregon

>

>

>

>

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  • 2 years later...

Welcome shirley. Where do you live?

nurseshirley2003 wrote:

Hi everyone. I am so glad I came upon this sight. I was feeling

pretty hopeless until I started reading some of the post. I am 48 and

for the past couple of years have felt lousy, have had hair loss

weight gain, fatigue, dry/thin skin, brittle fingernails &

difficulty

sleeping, and felt very hopeless. My Doc put me on an antidepressant

which did not work. Then after me begging finally did a TSH level

which she said was high normal. I finally saw another Doc & she

did a

TSH, T4 & T3 & put me on Syntroid 0.050 which worked for about

a week,

then she upped the dose to 0.075, which also worked for about a week.

My symptoms have returned & I literally had to force myself to get

off

the couch this weekend. Are there any other test(s) that should be

performed for a more thorough elvaluation of my thyroid? I'm also

searching for a Doc that specializes with thyroid disorders. Any

suggestions would be GREATLY appreciated. Thanks & may 2006 be the

best yet! Shirley

-- Carole L. Henning

carole_henning@...

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I live in Friendswood. Do you know where that is? Where do you live?Carole Henning wrote: Welcome shirley. Where do you live? nurseshirley2003 wrote: Hi everyone. I am so glad I came upon this sight. I was feeling pretty hopeless until I started reading some of the post. I am 48 and for the past couple of years have felt lousy, have had hair loss weight gain, fatigue, dry/thin skin, brittle fingernails & difficulty sleeping, and felt very hopeless. My Doc put me on an antidepressant which did not work. Then after me begging finally did a TSH level which she said was high normal. I finally saw another Doc & she did a TSH, T4 & T3 & put me on

Syntroid 0.050 which worked for about a week, then she upped the dose to 0.075, which also worked for about a week. My symptoms have returned & I literally had to force myself to get off the couch this weekend. Are there any other test(s) that should be performed for a more thorough elvaluation of my thyroid? I'm also searching for a Doc that specializes with thyroid disorders. Any suggestions would be GREATLY appreciated. Thanks & may 2006 be the best yet! Shirley-- Carole L. Henning carole_henning@...

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You also need to have Free T3 and Free T4 levels tested, as well as antibodies. Most of us need to have both our Free T3 and Free T4 in the upper half of their ranges to feel well and be free of hypo symptoms. Some folks can get there on a T4 only med such as $ynthroid. Others need some added T3, usually from Armour or Cytomel. What you may need is highly individual. The problem is finding a doc willing to Rx one of the meds with T3. That is why I keep a list of such docs on our site in "files." Welcome to the group! nurseshirley2003 wrote: Hi everyone. I am so glad I came upon this sight. I was feeling pretty hopeless until I started reading some of the post. I am 48 and for the past couple of years have felt lousy, have had hair loss weight gain, fatigue, dry/thin skin, brittle fingernails & difficulty sleeping, and felt very hopeless. My Doc put me on an antidepressant which did not work. Then after me begging finally did a TSH level which she said was high normal. I finally saw another Doc & she did a TSH, T4 & T3 & put me on Syntroid 0.050 which worked for about a week, then she upped the dose to 0.075, which also worked for about a week. My symptoms have returned & I literally had to force myself to get off the

couch this weekend. Are there any other test(s) that should be performed for a more thorough elvaluation of my thyroid? I'm also searching for a Doc that specializes with thyroid disorders. Any suggestions would be GREATLY appreciated. Thanks & may 2006 be the best yet! Shirley

Yahoo! for Good - Make a difference this year.

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Thanks Soooo much for the info!!!Jan wrote: You also need to have Free T3 and Free T4 levels tested, as well as antibodies. Most of us need to have both our Free T3 and Free T4 in the upper half of their ranges to feel well and be free of hypo symptoms. Some folks can get there on a T4 only med such as $ynthroid. Others need some added T3, usually from Armour or Cytomel. What you may need is highly individual. The problem is finding a doc willing to Rx one of the meds with T3. That is why I keep a list

of such docs on our site in "files." Welcome to the group! nurseshirley2003 wrote: Hi everyone. I am so glad I came upon this sight. I was feeling pretty hopeless until I started reading some of the post. I am 48 and for the past couple of years have felt lousy, have had hair loss weight gain, fatigue, dry/thin skin, brittle fingernails & difficulty sleeping, and felt very hopeless. My Doc put me on an antidepressant which did not work. Then after me begging finally did a TSH level which she said was high normal. I finally saw another Doc & she did a TSH, T4 & T3 & put me on

Syntroid 0.050 which worked for about a week, then she upped the dose to 0.075, which also worked for about a week. My symptoms have returned & I literally had to force myself to get off the couch this weekend. Are there any other test(s) that should be performed for a more thorough elvaluation of my thyroid? I'm also searching for a Doc that specializes with thyroid disorders. Any suggestions would be GREATLY appreciated. Thanks & may 2006 be the best yet! Shirley Yahoo! for Good - Make a difference this year.

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Hello...Im new to this site as well. I know your frustration with the

thyroid issue. Mine shows under the new values as high at 3.92 with

my t3's and 4's normal range. No matter what I do I cant lose weight,

and the heart palpitations can be very frightening!

Also, I was wondering if you've ever had your liver checked?

Sometimes in liver disease the thyroids t4's are unable to convert to

t3's because of some type of liver damage.

Just a thought. You might ask the doctor if they have tested you for

hepatitis C. that is not as routine as hepatitis b (both are

different, c is an RNA virus and b is a dna). You have to ask to be

tested, regardless if you are what they call high risk or not. Just a

thought.

hugs,

steph

p.s. my doc still goes by the old values regarding tsh, so i show as

normal. thats very discerning to me, but we will see what my next lab

shows.

>

> Hi everyone. I am so glad I came upon this sight. I was feeling

> pretty hopeless until I started reading some of the post. I am 48

and

> for the past couple of years have felt lousy, have had hair loss

> weight gain, fatigue, dry/thin skin, brittle fingernails &

difficulty

> sleeping, and felt very hopeless. My Doc put me on an

antidepressant

> which did not work. Then after me begging finally did a TSH level

> which she said was high normal. I finally saw another Doc & she

did a

> TSH, T4 & T3 & put me on Syntroid 0.050 which worked for about a

week,

> then she upped the dose to 0.075, which also worked for about a

week.

> My symptoms have returned & I literally had to force myself to get

off

> the couch this weekend. Are there any other test(s) that should be

> performed for a more thorough elvaluation of my thyroid? I'm also

> searching for a Doc that specializes with thyroid disorders. Any

> suggestions would be GREATLY appreciated. Thanks & may 2006 be the

> best yet! Shirley

>

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I live in Clear Lake. I know where Friendswood is. Which doctors did

not work out for you?

Shirley Russo wrote:

I live in Friendswood. Do you know where that

is? Where do you live?

Carole Henning

wrote:

Welcome

shirley. Where do you live?

nurseshirley2003 wrote:

Hi

everyone. I am so glad I came upon this sight. I was feeling

pretty hopeless until I started reading some of the post. I am 48 and

for the past couple of years have felt lousy, have had hair loss

weight gain, fatigue, dry/thin skin, brittle fingernails &

difficulty

sleeping, and felt very hopeless. My Doc put me on an antidepressant

which did not work. Then after me begging finally did a TSH level

which she said was high normal. I finally saw another Doc & she

did a

TSH, T4 & T3 & put me on Syntroid 0.050 which worked for about

a week,

then she upped the dose to 0.075, which also worked for about a week.

My symptoms have returned & I literally had to force myself to get

off

the couch this weekend. Are there any other test(s) that should be

performed for a more thorough elvaluation of my thyroid? I'm also

searching for a Doc that specializes with thyroid disorders. Any

suggestions would be GREATLY appreciated. Thanks & may 2006 be the

best yet! Shirley

-- Carole L. Henning carole_henning@...

Yahoo!

DSL Something to write home about. Just $16.99/mo. or less

-- Carole L. Henning

carole_henning@...

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nurseshirley2003 wrote: Hi everyone. I am so glad I came upon this sight. I was feeling pretty hopeless until I started reading some of the post. I am 48 and for the past couple of years have felt lousy, have had hair loss weight gain, fatigue, dry/thin skin, brittle fingernails & difficulty sleeping, and felt very hopeless. My Doc put me on an antidepressant which did not work. Then after me begging finally did a TSH level which she said was high normal. I finally saw another Doc & she did a TSH, T4 & T3 & put me on Syntroid 0.050 which worked for about a week, then she upped the dose to 0.075, which also worked for about a week. My symptoms have returned & I literally had to force myself to get off the couch this weekend. Are there any other

test(s) that should be performed for a more thorough elvaluation of my thyroid? I'm also searching for a Doc that specializes with thyroid disorders. Any suggestions would be GREATLY appreciated. Thanks & may 2006 be the best yet! Shirley

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Jan, Maybe there should a note on the home page that says "Get tested for TSH, Free T3 & Free T4. Post results, including lab ranges, for us and we will go from there." Also, include paragraphs 2 and 4 below. Just an idea. M.Jan wrote: You also need to have Free T3 and Free T4 levels tested, as well as antibodies. Most of us need to have both our Free T3 and Free T4 in the upper half of their ranges to feel well and be free of hypo symptoms. Some folks can get there on a T4 only med such as $ynthroid. Others need some added T3, usually from Armour or Cytomel. What you may need is highly

individual. The problem is finding a doc willing to Rx one of the meds with T3. That is why I keep a list of such docs on our site in "files." Welcome to the group! nurseshirley2003 wrote: Hi everyone. I am so glad I came upon this sight. I was feeling pretty hopeless until I started reading some of the post. I am 48 and for the past couple of years have felt lousy, have had hair loss weight gain, fatigue, dry/thin skin, brittle fingernails & difficulty sleeping, and felt very

hopeless. My Doc put me on an antidepressant which did not work. Then after me begging finally did a TSH level which she said was high normal. I finally saw another Doc & she did a TSH, T4 & T3 & put me on Syntroid 0.050 which worked for about a week, then she upped the dose to 0.075, which also worked for about a week. My symptoms have returned & I literally had to force myself to get off the couch this weekend. Are there any other test(s) that should be performed for a more thorough elvaluation of my thyroid? I'm also searching for a Doc that specializes with thyroid disorders. Any suggestions would be GREATLY appreciated. Thanks & may 2006 be the best yet! Shirley Yahoo! for Good - Make a

difference this year.

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I really want to be careful what I put on the home page. I may put that info in a file that goes to new members, however.Marilyn wrote: Jan, Maybe there should a note on the home page that says "Get tested for TSH, Free T3 & Free T4. Post results, including lab ranges, for us and we will go from there." Also, include paragraphs 2 and 4 below. Just an idea. M.Jan wrote: You also need to have Free T3 and Free

T4 levels tested, as well as antibodies. Most of us need to have both our Free T3 and Free T4 in the upper half of their ranges to feel well and be free of hypo symptoms. Some folks can get there on a T4 only med such as $ynthroid. Others need some added T3, usually from Armour or Cytomel. What you may need is highly individual. The problem is finding a doc willing to Rx one of the meds with T3. That is why I keep a list of such docs on our site in "files." Welcome to the group! nurseshirley2003 wrote: Hi everyone. I am so glad I came upon this sight. I was feeling pretty hopeless until I started reading some of the post. I am 48 and for the past couple of years have felt lousy, have had hair loss weight gain, fatigue, dry/thin skin, brittle fingernails & difficulty sleeping, and felt very hopeless. My Doc put me on an antidepressant which did not work. Then after me begging finally did a TSH level which she said was high normal. I finally saw another Doc & she did a TSH, T4 & T3 & put me on Syntroid 0.050 which worked for about a week, then she upped the dose to 0.075, which also worked for about a week. My symptoms have returned & I literally had to force myself to get off

the couch this weekend. Are there any other test(s) that should be performed for a more thorough elvaluation of my thyroid? I'm also searching for a Doc that specializes with thyroid disorders. Any suggestions would be GREATLY appreciated. Thanks & may 2006 be the best yet! Shirley

Yahoo! for Good - Make a difference this year.

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I wouldn't worry about TSH now that you are on meds. Ask your doctor for

the labs ranges, each one can be different.

Kate

At 03:15 PM 1/4/2006, you wrote:

>I just got my labs back. I had to go back to my doc yesterday because

>I was feeling so lousey. Originally my TSH level was 5. Since I've

>been on synthroid 75 mcg, yesterday's TSH was 1.2! I asked her to

>check for antibies & FT3 & FT4, which she did. My FT3 came back low

>normal at 2.7. She called me in an order of cytomel which I will pick

>up as soon as it's filled. What is the normal range for FT3? I sure

>hope it makes me feel like a normal human again. Thanks for all of

>your posts. They help the newbie's alot! Shirley

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That's good that your Dr has acknowledged that you have a conversion

problem (from T3 to T4)

How much Cytomel did she prescribe?

My opinion is to slowly start on it. Depending on how much she has

prescribed, you may want to divide the dose. Take part in the morning,

the other part in the afternoon, evening.

Lynn

At 03:15 PM 1/4/2006, you wrote:

>I just got my labs back. I had to go back to my doc yesterday because

>I was feeling so lousey. Originally my TSH level was 5. Since I've

>been on synthroid 75 mcg, yesterday's TSH was 1.2! I asked her to

>check for antibies & FT3 & FT4, which she did. My FT3 came back low

>normal at 2.7. She called me in an order of cytomel which I will pick

>up as soon as it's filled. What is the normal range for FT3? I sure

>hope it makes me feel like a normal human again. Thanks for all of

>your posts. They help the newbie's alot! Shirley

>

>

>

>

>

>

>

>

>

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She has started me on 5mcg of cytomel. I appreciate you responding. Do you know if 2.7 T3 is low. Do you know the normal range? ShirleyLynn wrote: That's good that your Dr has acknowledged that you have a conversionproblem (from T3 to T4)How much Cytomel did she prescribe?My opinion is to slowly start on it. Depending on how much she hasprescribed, you may want to divide the dose. Take part in the morning,the other part in the afternoon, evening.LynnAt 03:15 PM 1/4/2006, you wrote:>I just got my labs back. I had to go back to my doc yesterday because>I was feeling so lousey. Originally my TSH level was 5. Since I've>been on synthroid 75 mcg, yesterday's TSH was 1.2! I asked her

to>check for antibies & FT3 & FT4, which she did. My FT3 came back low>normal at 2.7. She called me in an order of cytomel which I will pick>up as soon as it's filled. What is the normal range for FT3? I sure>hope it makes me feel like a normal human again. Thanks for all of>your posts. They help the newbie's alot! Shirley>>>>>>>>>

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You need to get a hard copy of the lab report. When posting labs for comment on this board include the reference range and the exact name of each test. Every lab has its own reference ranges. Most of us need to have our Free T3 and Free T4 in the upper half of their ranges to feel well and be free of hypo symptoms. Some folks need them to be near the top of their ranges. What you may need is highly individual. Who is the doc that Rxed Cytomel for you? Shirley Russo wrote: She has started me on 5mcg of cytomel. I appreciate you responding. Do you know if 2.7 T3 is low. Do you know the normal range? ShirleyLynn wrote: That's good that your Dr has acknowledged that you have a conversionproblem (from T3 to T4)How much Cytomel did she prescribe?My opinion is to slowly start on it. Depending on how much she hasprescribed, you may want to divide the dose. Take part in the morning,the other part in the afternoon, evening.LynnAt 03:15 PM 1/4/2006, you wrote:>I just got my labs back. I had to go back to my doc yesterday because>I was feeling so lousey. Originally my TSH level was 5. Since I've>been on synthroid 75 mcg, yesterday's TSH was

1.2! I asked her to>check for antibies & FT3 & FT4, which she did. My FT3 came back low>normal at 2.7. She called me in an order of cytomel which I will pick>up as soon as it's filled. What is the normal range for FT3? I sure>hope it makes me feel like a normal human again. Thanks for all of>your posts. They help the newbie's alot! Shirley

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Very important to diagnosing a conversion problem---What was the Free T4

that went with this low Free T3?

new diagnosis

> I just got my labs back. I had to go back to my doc yesterday because

> I was feeling so lousey. Originally my TSH level was 5. Since I've

> been on synthroid 75 mcg, yesterday's TSH was 1.2! I asked her to

> check for antibies & FT3 & FT4, which she did. My FT3 came back low

> normal at 2.7. She called me in an order of cytomel which I will pick

> up as soon as it's filled. What is the normal range for FT3? I sure

> hope it makes me feel like a normal human again. Thanks for all of

> your posts. They help the newbie's alot! Shirley

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The nurse said it was in normal range whatever that means. Shirley wrote: Very important to diagnosing a conversion problem---What was the Free T4that went with this low Free T3? new diagnosis> I just got my labs back. I had to go back to my doc yesterday because> I was feeling so lousey. Originally my TSH level was 5. Since I've> been on synthroid 75 mcg, yesterday's TSH was 1.2! I asked her to> check for antibies & FT3 & FT4, which she did. My FT3 came back low> normal at 2.7.

She called me in an order of cytomel which I will pick> up as soon as it's filled. What is the normal range for FT3? I sure> hope it makes me feel like a normal human again. Thanks for all of> your posts. They help the newbie's alot! Shirley

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Dr V. Hartig at "Your Family Doktor" in Webster. ShirleyJan wrote: You need to get a hard copy of the lab report. When posting labs for comment on this board include the reference range and the exact name of each test. Every lab has its own reference ranges. Most of us need to have our Free T3 and Free T4 in the upper half of their ranges to feel well and be free of hypo symptoms. Some folks need them to be near the top of their ranges. What you may need is highly individual. Who is the doc that Rxed

Cytomel for you? Shirley Russo wrote: She has started me on 5mcg of cytomel. I appreciate you responding. Do you know if 2.7 T3 is low. Do you know the normal range? ShirleyLynn wrote: That's good that your Dr has acknowledged that you have a conversionproblem (from T3 to T4)How much Cytomel did she prescribe?My opinion is to slowly start on it. Depending on how much she hasprescribed, you may want to divide the dose. Take part in the morning,the other part in the afternoon,

evening.LynnAt 03:15 PM 1/4/2006, you wrote:>I just got my labs back. I had to go back to my doc yesterday because>I was feeling so lousey. Originally my TSH level was 5. Since I've>been on synthroid 75 mcg, yesterday's TSH was 1.2! I asked her to>check for antibies & FT3 & FT4, which she did. My FT3 came back low>normal at 2.7. She called me in an order of cytomel which I will pick>up as soon as it's filled. What is the normal range for FT3? I sure>hope it makes me feel like a normal human again. Thanks for all of>your posts. They help the newbie's alot! Shirley Yahoo! DSL Something to write home about. Just $16.99/mo. or less

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" Normal range " means very little when it comes to thyroid levels. You

need to get a hard copy of your labs, which will include the lab ranges.

Very important to diagnosing a

conversion problem---What was the Free T4

> that went with this low Free T3?

>

>

>

> new diagnosis

>

>

> > I just got my labs back. I had to go back to my doc yesterday because

> > I was feeling so lousey. Originally my TSH level was 5. Since I've

> > been on synthroid 75 mcg, yesterday's TSH was 1.2! I asked her to

> > check for antibies & FT3 & FT4, which she did. My FT3 came back low

> > normal at 2.7. She called me in an order of cytomel which I will pick

> > up as soon as it's filled. What is the normal range for FT3? I sure

> > hope it makes me feel like a normal human again. Thanks for all of

> > your posts. They help the newbie's alot! Shirley

>

>

>

>

>

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That's a low enough amount, that you probably wont have a problem with

taking it once a day.

I like to take mine when I start to get tired in the afternoon. (FYI)

It would be a good thing to get copies of your labs, that way you will

always have a reference point.

Lynn

At 07:02 PM 1/4/2006, you wrote:

>She has started me on 5mcg of cytomel. I appreciate you responding. Do

>you know if 2.7 T3 is low. Do you know the normal range? Shirley

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Lynn, thanks so much for the response. ShirleyLynn wrote: That's a low enough amount, that you probably wont have a problem with taking it once a day.I like to take mine when I start to get tired in the afternoon. (FYI)It would be a good thing to get copies of your labs, that way you will always have a reference point.LynnAt 07:02 PM 1/4/2006, you wrote:>She has started me on 5mcg of cytomel. I appreciate you responding. Do >you know if 2.7 T3 is low. Do you know the normal range? Shirley-- No virus found in this outgoing message.Checked by AVG Free Edition.Version: 7.1.371 / Virus Database: 267.14.13/221 - Release Date: 1/4/2006

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Do keep us posted about your care. We may be wanting to add him to our list of Cytomel docs at some point. I do like to see if docs keep folks adequately medicated before I put them on our lists.Shirley Russo wrote: Dr V. Hartig at "Your Family Doktor" in Webster. ShirleyJan wrote: You need to get a hard copy of the lab report. When posting labs for comment on this board include the reference range and the exact name of each test. Every lab has its own reference

ranges. Most of us need to have our Free T3 and Free T4 in the upper half of their ranges to feel well and be free of hypo symptoms. Some folks need them to be near the top of their ranges. What you may need is highly individual. Who is the doc that Rxed Cytomel for you? Shirley Russo wrote: She has started me on 5mcg of cytomel. I appreciate you responding. Do you know if 2.7 T3 is low. Do you know the normal range?

ShirleyLynn wrote: That's good that your Dr has acknowledged that you have a conversionproblem (from T3 to T4)How much Cytomel did she prescribe?My opinion is to slowly start on it. Depending on how much she hasprescribed, you may want to divide the dose. Take part in the morning,the other part in the afternoon, evening.LynnAt 03:15 PM 1/4/2006, you wrote:>I just got my labs back. I had to go back to my doc yesterday because>I was feeling so lousey. Originally my TSH level was 5. Since I've>been on synthroid 75 mcg, yesterday's TSH was 1.2! I asked her to>check for antibies & FT3 & FT4, which she did. My FT3 came back low>normal at 2.7. She called me in an order of

cytomel which I will pick>up as soon as it's filled. What is the normal range for FT3? I sure>hope it makes me feel like a normal human again. Thanks for all of>your posts. They help the newbie's alot! Shirley

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  • 5 years later...
Guest guest

Hi ,

Our daughter was diagnosed when she just turned 5. She suffered from

hoarding, reassurance questioning, and having to have everything be " just

so " . She's now 6, and feeling much more in control of her OCD, although

some months are worse than others. I'd be happy to chat any time, and good

luck with your son's diagnosis.

Best wishes,

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> Good evening,

>

> I am new to this group.   I have an almost four year old son who, although

> not officially diagnosed yet, is well on his way to the OCD diagnosis.  

> We started noticing the behavior right before he turned two and have

> finally started the process of getting professional help over the last

> couple of months.   I'd be interested to hear anything that other parents

> with children who experienced symptoms at this age have to share regarding

> behavior, treatment, etc.    Feel free to email me privately if you

> prefer.  Thank you.  

>

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>

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Guest guest

Our 15 year old son was dx at age 3 and in hindsight had oCD since birth with

first CLEAR compulsions at age 9 months. At 3 he had , touching things, just

right, setting things up, lost of strange clothing obsessions and rules,

repetative questioning and worrying about the weather, wind, rain, snow, fear

that family was dead if they were out of his sight( ie the next room), drawing

obsessions , cleaning, hoarding,licking spots off things, tapping,

straightening, counting, repeating, sleep rituals, and many more. We did some

pretty lame CBT/ ERP with someone who was not that familiar with this age group

( very hard to find someone who is). Prozac was rec at age 3 but we refused. We

did CBT/ERP, diet changes, vitamins, taught him a lot of relaxation techniques,

breathing techniques etc, and he got much better although not totally well over

2 years. Then good for about 3 years then TERRIBLE again at age 8- on meds at 8

due to stopping eating for contamination fears as well as all the other stuff.

We had a rough few years , but by 12 he was pretty good again. Then the summer

between 12 and 13 did some really good CBT/ ERP and he has been really quite

good since. Still on low dose meds after a trial off all meds but asked to go

back on. I STRONGLY recommend STARTING out with someone who is an EXPERT with

OCD in very young children even if it means traveling to an intensive outpatient

experience for the summer and staying in a Mc HOuse or something.

The number of wasted years my kid had due to not being able to find good help is

so sad. If I had anything to do over again, it would be going to the best

person in the world early and doing it intensively for a few months then making

do locally after you know what good help looks like. Happy to talk about it

more if you want.

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