Re: New Member Introduction

Posted June 1, 2005 · June 1, 2005

Hello Christy and welcome to the group.

Please check out the groups archieve as there is alot

of good information in there.

Hugs

Hello everyone! My name is Christy and I am a new

member so I thought

I'd introduce myself…

I'm a 33yr old WAHM in Oklahoma and I love to spend

time with my

family, learn about new things and get to know new

people. I

personally feel that we all have many choices; we just

need to educate

ourselves in order to make the right ones for us,

individually.

I'm hoping I can find some good information here so I

can better

myself, and the world around me. I'd also like to meet

some like-

minded individuals.

Hope everyone is doing well and I look forward to

getting to know you

all!

Christy Putnam

http://health.groups.yahoo.com/group/AffirmationstoD

e-Stress

A positive thinking, positive affirmations support

group, discussing ways to cope with the stresses of

daily life. Come aboard! PJ and Gang

Posted June 2, 2005 · June 2, 2005

Dear Christy,

Welcome to this wonderful group. I've benefitted so much from the

collective wisdom that appears from all over the world...literally.

Me: 63 yr. old, retired, married a lot of years, two adult children,

live in Portland, Oregon in an almost 100 yr. old house. Love to

junking, antiques, reading, walking/Jazzercise.

Blessings,

Posted June 15, 2005 · June 15, 2005

Christy,

Welcome to affirmations to de-stress! Sorry that it took awhile for me

to write you back! I love your email address! I am one that could use more

" personal balance " in my life!!! Let us know if you need anything, and feel

free to go back and read the older messages in the group on the group site --

they are in the left sided column. Wishing you the best! Hugs, PJ

Christy wrote:

Hello everyone! My name is Christy and I am a new member so I thought

I'd introduce myself…

I'm a 33yr old WAHM in Oklahoma and I love to spend time with my

family, learn about new things and get to know new people. I

personally feel that we all have many choices; we just need to educate

ourselves in order to make the right ones for us, individually.

I'm hoping I can find some good information here so I can better

myself, and the world around me. I'd also like to meet some like-

minded individuals.

Hope everyone is doing well and I look forward to getting to know you

all!

Christy Putnam

http://health.groups.yahoo.com/group/AffirmationstoDe-Stress

A positive thinking, positive affirmations support group, discussing ways to

cope with the stresses of daily life. Come aboard! PJ and Gang

---------------------------------

Posted November 14, 2005 · November 14, 2005

Hi Stacie!

I have thyca, too, and am planning to see two doctors about it. Your husband needs the endo for scans, and other cancer-related treatments. But any doctor can monitor his levels and prescribe hormones, as long as they know his TSH needs to be suppressed. I'm planning to have two, as I want Armour, and almost no endos prescribe it.

Have you suscribed to the thyca.org Yahoo group? They're a fountain of information about cancer-related topics. They're very pro-Synthroid, though - just be warned. I can't remember the address off-hand, but if you go to www.thyca.org, there's a link on their main page, I think.

I hope your husband can get some relief from his symptoms. It just drives me crazy to hear doctors blow people off because their numbers are " normal " , even though they feel like crap!

You might want to post up his current lab values and ranges. TSH, Free T4 and Free T3 are the main ones.

Welcome to the group.

Betsy

Hi All,

I'm new to the group. My husband was diagnosed with papillary thyca in July of 2004. His TT was that August, and his RAI that September.

Here we are, over a year later, and he still feels awful! He's currently on 200mcg of Levoxyl, but has also tried Synthroid. He is also on 3mcg (I think) of Cytomel.

There are two issues going on with him right now...

Feeling Sick: The symptoms he describes are headaches, cramps, stitches in his sides, and most of all (in his words) just feeling "sickly."

Often he is cold to the touch.

Initially, I joined this group to ask about endos in the Houston area that prescribe Armour. My husband has been through 2 endos...first was Dr. B.K. Roy who really did more harm than good. He is now seeing Dr. Lori Shapiro. She seems to be highly regarded, and has been able to get his levels at the right place, but really has not been that great to deal with.

We always feel like she is trying to get us out of her office as quickly as possible, and she's very short with us. The one time I mentioned Armour, she all but rolled her eyes at me.

However, my husband has indicated that he is NOT changing doctors again. He is going to press the Armour issue again and insist to be put on it.

My thought is, "why continue going to a doctor who doesn't want to help you?" but I can see his point. She is supposed to be working for him. We don't necessarily think that Armour is going to be the silver bullet, but why not try?

He's tried everything else that we know of!

I don't have his latest levels with me at the office, but they were very good, so it is unfortunate that he is not FEELING good. I know you all know how much stress dealing with this can add to your life!!!

My husband was diagnosed just 3 months prior to our wedding. As you can imagine, our first year of marriage (first marriage for both of us, we are both 35 years old) has not been ideal.

Second issue: First-year body scan: His yearly body scan was a couple of weeks ago. His scan was clear, but the bloodwork results showed too much thyroglobin (I did not go to this appointment, so I don't know the exact level), indicating that there were still cells present.

He is having an ultrasound of his neck and a PET scan this Wednesday. He said that Shapiro indicated that if these tests show nothing, she'd be at a loss and would have to refer him elsewhere.

I am basically leaving that up to my husband...it's not worth the arguing and stress, and he is still very, very angry.

Now, on the other side of the coin, his primary care doctor (an internal medicine specialist whom we like a lot) has indicated to us that he would prescribe Armour.

My concern is having two different doctors monitoring his thyroid levels. Are there any thoughts on this?

Anyway, I just wanted to introduce myself. I look forward to reading about everyone's experiences here. I am still interested in endos in the Houston area....just in case hubby changes his mind!

Stacie

Posted November 14, 2005 · November 14, 2005

I forgot to add that among his symptom--in addition to being cold to the touch--he is often sweaty and clammy feeling.Stacie Hiscock wrote:

Hi All,

I’m new to the group. My husband was diagnosed with papillary thyca in July of 2004. His TT was that August, and his RAI that September. Here we are, over a year later, and he still feels awful! He’s currently on 200mcg of Levoxyl, but has also tried Synthroid. He is also on 3mcg (I think) of Cytomel. There are two issues going on with him right now...

Feeling Sick: The symptoms he describes are headaches, cramps, stitches in his sides, and most of all (in his words) just feeling “sickly.” Often he is cold to the touch.

Initially, I joined this group to ask about endos in the Houston area that prescribe Armour. My husband has been through 2 endos...first was Dr. B.K. Roy who really did more harm than good. He is now seeing Dr. Lori Shapiro. She seems to be highly regarded, and has been able to get his levels at the right place, but really has not been that great to deal with. We always feel like she is trying to get us out of her office as quickly as possible, and she’s very short with us. The one time I mentioned Armour, she all but rolled her eyes

at me.

However, my husband has indicated that he is NOT changing doctors again. He is going to press the Armour issue again and insist to be put on it. My thought is, “why continue going to a doctor who doesn’t want to help you?” but I can see his point. She is supposed to be working for him. We don’t necessarily think that Armour is going to be the silver bullet, but why not try? He’s tried everything else that we know of!

I don’t have his latest levels with me at the office, but they were very good, so it is unfortunate that he is not FEELING good. I know you all know how much stress dealing with this can add to your life!!! My husband was diagnosed just 3 months prior to our wedding. As you can imagine, our first year of marriage (first marriage for both of us, we are both 35 years old) has not been ideal.

Second issue: First-year body scan: His yearly body scan was a couple of weeks ago. His scan was clear, but the bloodwork results showed too much thyroglobin (I did not go to this appointment, so I don’t know the exact level), indicating that there were still cells present. He is having an ultrasound of his neck and a PET scan this Wednesday. He said that Shapiro indicated that if these tests show nothing, she’d be at a loss and would have to refer him elsewhere. I am basically leaving that up to my husband...it’s not worth the arguing and stress, and he is still very, very angry.

Now, on the other side of the coin, his primary care doctor (an internal medicine specialist whom we like a lot) has indicated to us that he would prescribe Armour. My concern is having two different doctors monitoring his thyroid levels. Are there any thoughts on this?

Anyway, I just wanted to introduce myself. I look forward to reading about everyone’s experiences here. I am still interested in endos in the Houston area....just in case hubby changes his mind!

Stacie

Yahoo! FareChase - Search multiple travel sites in one click.

Posted November 14, 2005 · November 14, 2005

For a thyroidectomized thyca patient, any measurable thyroglobulin is a red flag for cancer. <.9 is generally regarded as negative. That number represents the limitations of the sensitivity of the test.Betsy wrote:

Hi Stacie!

I have thyca, too, and am planning to see two doctors about it. Your husband needs the endo for scans, and other cancer-related treatments. But any doctor can monitor his levels and prescribe hormones, as long as they know his TSH needs to be suppressed. I'm planning to have two, as I want Armour, and almost no endos prescribe it.

Have you suscribed to the thyca.org Yahoo group? They're a fountain of information about cancer-related topics. They're very pro-Synthroid, though - just be warned. I can't remember the address off-hand, but if you go to www.thyca.org, there's a link on their main page, I think.

I hope your husband can get some relief from his symptoms. It just drives me crazy to hear doctors blow people off because their numbers are "normal", even though they feel like crap!

You might want to post up his current lab values and ranges. TSH, Free T4 and Free T3 are the main ones.

Welcome to the group.

Betsy

Hi All,

I'm new to the group. My husband was diagnosed with papillary thyca in July of 2004. His TT was that August, and his RAI that September. Here we are, over a year later, and he still feels awful! He's currently on 200mcg of Levoxyl, but has also tried Synthroid. He is also on 3mcg (I think) of Cytomel. There are two issues going on with him right now...

Feeling Sick: The symptoms he describes are headaches, cramps, stitches in his sides, and most of all (in his words) just feeling "sickly." Often he is cold to the touch.

Initially, I joined this group to ask about endos in the Houston area that prescribe Armour. My husband has been through 2 endos...first was Dr. B.K. Roy who really did more harm than good. He is now seeing Dr. Lori Shapiro. She seems to be highly regarded, and has been able to get his levels at the right place, but really has not been that great to deal with. We always feel like she is trying to get us out of her office as quickly as possible, and she's very short with us. The one time I mentioned Armour, she all but rolled her eyes at me.

However, my husband has indicated that he is NOT changing doctors again. He is going to press the Armour issue again and insist to be put on it. My thought is, "why continue going to a doctor who doesn't want to help you?" but I can see his point. She is supposed to be working for him. We don't necessarily think that Armour is going to be the silver bullet, but why not try? He's tried everything else that we know of!

I don't have his latest levels with me at the office, but they were very good, so it is unfortunate that he is not FEELING good. I know you all know how much stress dealing with this can add to your life!!! My husband was diagnosed just 3 months prior to our wedding. As you can imagine, our first year of marriage (first marriage for both of us, we are both 35 years old) has not been ideal.

Second issue: First-year body scan: His yearly body scan was a couple of weeks ago. His scan was clear, but the bloodwork results showed too much thyroglobin (I did not go to this appointment, so I don't know the exact level), indicating that there were still cells present. He is having an ultrasound of his neck and a PET scan this Wednesday. He said that Shapiro indicated that if these tests show nothing, she'd be at a loss and would have to refer him elsewhere. I am basically leaving that up to my husband...it's not worth the arguing and stress, and he is still very, very angry.

Now, on the other side of the coin, his primary care doctor (an internal medicine specialist whom we like a lot) has indicated to us that he would prescribe Armour. My concern is having two different doctors monitoring his thyroid levels. Are there any thoughts on this?

Anyway, I just wanted to introduce myself. I look forward to reading about everyone's experiences here. I am still interested in endos in the Houston area....just in case hubby changes his mind!

Stacie

Yahoo! FareChase - Search multiple travel sites in one click.

Posted August 23, 2007 · August 23, 2007

A few suggestions;

www.oasisofhope.com <http://www.oasisofhope.com/> for cancer care (I was

there and was cured)

Essiac Tea http://essiac-info.org/

www.Truerife.com <http://www.truerife.com/> for quality affordable Rife

style machine.

Good Luck Larry

On 8/22/2007 3:37:48 PM, Elaine Gallant (elainegallant@...) wrote:

> Hello.

> I'm Elaine. Very interested in Rife. His life, inventions

> the Rife machine and special microscope.

>

> I have read his story, and was already interested in knowing more

> about the man and his accomplishments.

>

> Then I got diagnosed with a late stage cervical cancer. So... now,

> in addition to my natural curiosity about Rife, I am looking to

> supplement my conventional cancer treatment with Rife machine

> therapy.

>

> I'd

> be very happy to hear from anybody who has anything to say to me

> on this subject. Please write.

>

> Particularly any warnings of who to stay away from. I am still

> shopping for my Rife machine.

>

> One particular seller on e-bay seems to know what

> he's talking

> about: Hrh. Anybody know him? I can't seem to find his

> ad now

> on e-bay.

>

Posted August 23, 2007 · August 23, 2007

Hi, Elaine ..

It's hard to find the honest story on Royal Rife. I believe that my

history on Rife, and more especially on Dr. Milbank , who

organized and ran the 1934 " Cancer Clinic " , to be accurate.

I personally know of two clinics using " Rife " technology on cancer, and

both are using machines from Resonant Light in Canada - these are Plasma

Lamp machines. There is one other device which I feel is especially

good, and that is a contact pad machine known as the GB4000 and amplifier.

I have no connections to any of these companies, but I observe lots of

devices over the years. There are others I like - the TrueRife

machines, the Plasma Plus and RifeLabs machines seem to have a

following, and there are some others..

I've seen the devices by HrH - but to be honest, I don't recall

what it is that he sells, whether it's a lower-cost EMEM device, or a

pad machine.

Using " Rife " devices is not a cure - its a tool which must be used along

with other methods to bring about better health - other methods such as

immune system boosters (Del Immune, Transfer Factor 4 Plus, IP6, Beta

Glucan 1-3,6 etc), nutritional assists (the proper vitamins and

minerals, in the right amounts and the correct timing..), anti-parasite

means (such as essiac tea and more...) more exercise, getting rid of bad

influences that pull down the immune system (smoking, drugs, sugars,

most meats,) and so on.

A fellow who sometimes is around has a non-profit clinic in the San

Diego area - Gammill.. The Center for the Study of Natural

Oncology is his shop: See http://www.natural-oncology.org/about.htm It

would be good to talk to him.

My histories should be enlightening.. they're at

http://www.dfe.net/history.html

Healings,

Dave Felt

DFE Research

http://www.dfe.net

Elaine Gallant wrote:

> Hello. I'm Elaine. Very interested in Rife. His life, inventions

> the Rife machine and special microscope.

>

> I have read his story, and was already interested in knowing more

> about the man and his accomplishments.

>

> Then I got diagnosed with a late stage cervical cancer. So... now,

> in addition to my natural curiosity about Rife, I am looking to

> supplement my conventional cancer treatment with Rife machine

> therapy.

>

> I'd be very happy to hear from anybody who has anything to say to me

> on this subject. Please write.

>

> Particularly any warnings of who to stay away from. I am still

> shopping for my Rife machine.

>

> One particular seller on e-bay seems to know what he's talking

> about: Hrh. Anybody know him? I can't seem to find his ad now

> on e-bay.

>

Posted August 23, 2007 · August 23, 2007

--- DosLocos2 wrote:

> A few suggestions;

>

> www.oasisofhope.com <http://www.oasisofhope.com/>

> for cancer care (I was

> there and was cured)

The clinic looks like a really nice place. It says I

can call for free with questions. Maybe I will.

I'm just really overwhelmed right now. Your time and

response are really kind.

> Essiac Tea http://essiac-info.org/

>

> www.Truerife.com <http://www.truerife.com/> for

> quality affordable Rife

> style machine.

>

> Good Luck Larry

>

> On 8/22/2007 3:37:48 PM, Elaine Gallant

> (elainegallant@...) wrote:

> > Hello.

> > I'm Elaine. Very interested in Rife. His life,

> inventions

> > the Rife machine and special microscope.

> >

> > I have read his story, and was already interested

> in knowing more

> > about the man and his accomplishments.

> >

> > Then I got diagnosed with a late stage cervical

> cancer. So... now,

> > in addition to my natural curiosity about Rife, I

> am looking to

> > supplement my conventional cancer treatment with

> Rife machine

> > therapy.

> >

> > I'd

> > be very happy to hear from anybody who has

> anything to say to me

> > on this subject. Please write.

> >

> > Particularly any warnings of who to stay away

> from. I am still

> > shopping for my Rife machine.

> >

> > One particular seller on e-bay seems to know what

> > he's talking

> > about: Hrh. Anybody know him? I can't seem to

> find his

> > ad now

> > on e-bay.

> >

>

________________________________________________________________________________\

____

Be a better Globetrotter. Get better travel answers from someone who knows.

Yahoo! Answers - Check it out.

http://answers.yahoo.com/dir/?link=list & sid=396545469

Posted September 1, 2007 · September 1, 2007

,

I have one person who I worked with, (btw the-is the first time I have

reported this and the whole report would be quite lenghtly so for now, I'll

keep it short) a 81 year woman who had late stage ovarian cancer. her

inital CEA test results were 1795. that was in mid march now her daughter

reports to me that her CEA is normal (<35) and is feeling much better.

I initally used on her then her daughter showed up to help take her back and

forth to her medical appointments and although was initally scepital she

agreed to continue using it in conjuction with chemo-therapy I showed her

how use my unit, a Atelier-robin http://www.atelierrobin.net/p29.htm

frequency

generator with hand cylindlers. After a few weeks her test results showed

rapid and drastic improvement way over and above what could be expected from

just one chemo-therapy appointment. her daughter expressed amazement and

inquired as to what I had been doing and so I turned her on to some royal

Rife websites and lent her my copy of barry lynes book, the cancer cure 50

years of supresson. After some reserch of her own, her daughter began to

relize that my machine was doing something. I consulted with her and gave

her some more suggestions for other things she could combine with the rife

treaments like the budwig diet and transfer Factor immune system booster.

About two weeks later, and after consulting with me, (she is not a real

technical savvy person) I reccomended that she get a F-Scan2.( which I

belive cost her around $ 4,000) I also got her in touch with Dr Loyd

http://www.royalrife.com/

and she also consulted quite a bit with him. After the test results came in

following the second round of chemo-therapy, her remission was so amazing

that even her onoconoligist could not explane it. but, true to form, the doc

tried to scedule her for a third chemo-therapy treatment. even when her GP

doc dertimined that she may not need futher treatments. in a conversation I

had with the daugthter several weeks ago she indicatede she was still using

the F-Scan on her and was also taking her to a holistic ND to get some

chelation therapy to get all the heavy metals and poisons out of her mother

due to the chemo-therapy.

Now, to really answer your question. My Atelier-Robin cost me little over

$ 1,000 but, you have to a little bit computer saavy as you have to manually

program in all the frequency sets in yourself.

hope this helps.

>

> Ho Much do the Beam Ray devices cost and are they cumbersome to use?

>

> Angie

>

> rifebeliever < rifebeliever@... <rifebeliever%40yahoo.com>> wrote:

>

> Hi Elaine,

>

> From experience I can tell you that Beamray machines work very well

> against cancer. I

> know of two people personally who had cancer and don't have it anymore

> after using the

> Beamray. I've also seen it work well for people who had mono, thyroid

> problems and many

> other ailments. I've seen them for sale on ebay. They now have a dual bulb

> plasma tube

> unit making it the most powerful plasma tuble unit available. This is the

> type of machine

> Dr. Rife used. Hope this helps.

>

> Tom

>

> >

> > Hello. I'm Elaine. Very interested in Rife. His life, inventions

> > the Rife machine and special microscope.

> >

> > I have read his story, and was already interested in knowing more

> > about the man and his accomplishments.

> >

> > Then I got diagnosed with a late stage cervical cancer. So... now,

> > in addition to my natural curiosity about Rife, I am looking to

> > supplement my conventional cancer treatment with Rife machine

> > therapy.

> >

> > I'd be very happy to hear from anybody who has anything to say to me

> > on this subject. Please write.

> >

> > Particularly any warnings of who to stay away from. I am still

> > shopping for my Rife machine.

> >

> > One particular seller on e-bay seems to know what he's talking

> > about: Hrh. Anybody know him? I can't seem to find his ad now

> > on e-bay.

> >

>

> ---------------------------------

> Looking for a deal? Find great prices on flights and hotels with Yahoo!

> FareChase.

>

Posted June 7, 2011 · June 7, 2011

Hi....My name is Priscilla. I am also in CT. Who is his pyschiatrist? My 12 year

old daughter has OCD--nice to talk with someone in the area.

Subject: New Member Introduction

To:

Date: Tuesday, June 7, 2011, 12:48 PM

Â

Hi Everyone!

I am glad to have found this group and to know I am not alone. My 9 year old son

suffers from OCD (and something else not yet determined). The handwashing

started last October and progressed exponentially from there. He changes clothes

several times a day, washes constantly, avoids situations, etc. He recently

started licking things to clean them - and will lick anything including my hair

to clean it. Nothing can touch his nose since " boogers " are his promary trigger.

I can't even put into words the things he does for the OCD and the ways it

affects us, but I don't have to. You all get it.

About a month ago, he was so overwhelmed and frustrated with the OCD that he

tried to kill himself and spent 10 days inpatient. He has been in weekly therapy

since January and on medication since March - he is currently on prozac (the 3rd

med we've tried) and still no progress.

I am a single parent and my children (I have a 7 year old daughter as well) and

I moved back in with my parents this past weekend so they can help.

While I am very pleased with his counselor, I am not thrilled with our current

psychiatrist. We're with him by default - I called 20 psychiatrists before

finally finding one that would even take him. He is scheduled for an intial

evaluation at Hartford Hospital's outpatient program in a few weeks but they

have informed me that they won't take him if he's at risk for self-harm.

We live near Springfield, MA. If anyone has suggestions of treatment providers

or programs, please let me know.

Thanks for taking the time to read all of this!

Posted June 7, 2011 · June 7, 2011

Hi , welcome!

Wow, so sorry it's been so rough for you & family, your poor son to teach that

point!

On the 3rd med - did he have bad reactions to the previous? Are they getting

them to a good therapeutic dose, trialing for weeks (if no bad effects) before

switching??

How do you think therapy is going? How does HE think therapy is going,

progress?

I wonder why that program doesn't want to treat if any risk of self-harm....

What's that program do, therapy, meds, both?

Well, you can tell by reading here that you (and son) are definitely not alone

in this! Glad you found our group,

single mom, 3 sons

, 22, with OCD, dysgraphia, Aspergers

finishing up UNC-CH this summer!

>

> Hi Everyone!

> I am glad to have found this group and to know I am not alone. My 9 year old

son suffers from OCD (and something else not yet determined). The handwashing

started last October and progressed exponentially from there. He changes

clothes several times a day, washes constantly, avoids situations, etc. He

recently started licking things to clean them - and will lick anything including

my

Posted June 8, 2011 · June 8, 2011

Hi ,

So sorry to hear everything you are going through. From the sounds of it, the

hand washing started relatively suddenly last October. Did this all come on

rather quickly (either overnight, or over the course of a few months?) Had he

been sick with strep or some other illness around the same time?

Please take some time to look into whether PANDAS or PITAND could be at the

route of the OCD. These two disorders occur when an infection such as strep,

Lyme, Bartonella, Mycoplasma pneumonia, result in a faulty autoimmune reaction.

There are some files you can review in the " Files " section on this site (upper

left hand corner in the blue box).

You an also go to www.pandasresourcenetwork.org for some initial info. There are

several helpful resources, I think many are listed in one of the documents in

the Files section.

Many kids with PANDAS/PITAND end up with suicidal thoughts. PANDAS or PITAND

usually have either OCD and or Tics along with some (not all) of these other

symptoms:

emotional lability (rages, depression, mood swings)

ADHD like behavior

Separation anxiety

Sleep disturbance

Night time bed wetting and/or daytime urinary frequency

Fine/gross motor changes (ie. changes in handwriting)

joint pains

If you want to explore this with a doctor, you are relatively close to one of

the top PANDAS experts in the country (there are really only 4 or 5). Dr. Denis

Bouboulis is in Darien, CT. That's who we see (we live in northeastern

Massachusetts).

The treatment for PANDAS/PITAND from a medical standpoint is much different than

for traditional OCD. Instead of SSRIs like Prozac, you start with antibiotics to

fight the infection. It is important, however, to determine the correct

infection.

This is a relatively new diagnosis, so few regular doctors know enough about it

to truly be helpful. Many dismiss it off the cuff. Some docs haven't even heard

about it or don't believe in it. But you could start by asking your pediatrician

to run some strep tests (throat swab, culture, ASO and Anti DNASE B blod tests).

Please post or email me if you want to discuss this more.

Kara

>

> Subject: New Member Introduction

> To:

> Date: Tuesday, June 7, 2011, 12:48 PM

>

> Â

>

> Hi Everyone!

> I am glad to have found this group and to know I am not alone. My 9 year old

son suffers from OCD (and something else not yet determined). The handwashing

started last October and progressed exponentially from there. He changes clothes

several times a day, washes constantly, avoids situations, etc. He recently

started licking things to clean them - and will lick anything including my hair

to clean it. Nothing can touch his nose since " boogers " are his promary trigger.

I can't even put into words the things he does for the OCD and the ways it

affects us, but I don't have to. You all get it.

> About a month ago, he was so overwhelmed and frustrated with the OCD that he

tried to kill himself and spent 10 days inpatient. He has been in weekly therapy

since January and on medication since March - he is currently on prozac (the 3rd

med we've tried) and still no progress.

> I am a single parent and my children (I have a 7 year old daughter as well)

and I moved back in with my parents this past weekend so they can help.

> While I am very pleased with his counselor, I am not thrilled with our current

psychiatrist. We're with him by default - I called 20 psychiatrists before

finally finding one that would even take him. He is scheduled for an intial

evaluation at Hartford Hospital's outpatient program in a few weeks but they

have informed me that they won't take him if he's at risk for self-harm.

> We live near Springfield, MA. If anyone has suggestions of treatment providers

or programs, please let me know.

> Thanks for taking the time to read all of this!

>

Posted June 8, 2011 · June 8, 2011

Since he is not responding to the medication, that would indicate to me that

this is possibly PANDAS in nature.. Please look into PANDAS.. Good luck!

Misty

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Sent: Tue, June 7, 2011 11:48:54 AM