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Re: Tics

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It doesn't sound to me like the school is being very helpful. Just because

he's missing a lot of school, he needs inpatient treatment? That doesn't

really make sense. Since you work full time, it doesn't sound like

homeschooling is feasible, and there must be other options. You mentioned

that he has an IEP. According to that IEP (under federal law) the school

district has to provide him with a free and appropriate education (at their

expense) whatever it takes. I am not knowledgeable about the options, but I

have heard of school districts providing homebound instruction for students

who are unable to come to school due to illness.

If I were in your shoes, I think I would contact the special education

director in your district and insist that this be addressed. If that doesn't

work, he can go higher up the ladder. A good resource for knowing your

rights, as a parent of a child with an IEP, is wrightslaw.com.

Hope this helps a bit. Hugs.

Steph in VA

- age 16 (OCD, anxiety/depression, Asperger's, NVLD)

> Well now my sons chief complaint is the tics. he is throat clearing every

> few seconds constantly.

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It can be very frustrating dealing with schools. They do not all understand OCD.

I went through a hard time last year as they wanted to move my daughter to a

clinical school instread of middle school....I pushed back hard and she adjusted

great to middle school. Do not let the school push you around. We learned the

hard way--its your child and they cannot tell you what is best.

Subject: Tics

To:

Date: Tuesday, May 31, 2011, 5:59 PM

 

Well now my sons chief complaint is the tics. he is throat clearing every few

seconds constantly. It is keeping him up all night long ,he tries to sleep but

cant stop the throat clearing it kept us up all night as well just hearing him

thru the walls it was heartbreaking. His psychiatrist said I need to see a

Neurologist, I made a appointment they cant see him for a week. His school is

giving me a hard time they dont understand all this. I have kept him out due to

lack of sleep with the tics and if I sent him in he would be throat clearing the

whole time. They said maybe he needs inpatient treatment? I told them that his

psychologist and psychiatrist dont think so they think he needs a neurologist

right now as well as seeing them. I asked if he could do his work at home and

they said this isnt a home school, I said I understand that but in a situation

like this you surely must understand. They are pushing the school social worker

on us which is fine they

want us to collaborate with him, said that he is very experienced in these

things, I said I understand but I have a full time job and have been taking off

to get him to psychologist and psychiatrist and now neurologist its not that I

dont want to collaborate its that I am being stretched very thin right now and

they dont get that. I told them I am getting him the help he needs at very

repuatble places but they want in on it I said I gave the doctors permission to

talk with you I call you to let you know whats going on I think they dont get

the anxiety, panic attacks and tics and ocd they dont get that it can be

disabling they jut want him in school.When he said a crisis center I did get

angry because if he did need one it would have to be one that knows OCD and for

adolescent not just a crisis center at a ER I dont think they know about OCD as

they claim because he hides it at school and when I tell them these things they

dont believe it because they

dont see it and if they KNEW about it they would know kid hide it Im very upset

about the whole thing they want him in school which I understand they dont get

it I am reliving his 5th grde iep meeting all over again with the teachers

looking perplexed at the doctors reports and said they were shocked becuse they

dont see this, now this school thats suppoed to know about OCD and such same

thing gain he doesnt project it at school sorry for the vent just frustrated

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I know what your kid is going through as a throat clearer myself.  Mine gets

worse with stress.  I use deep breathing, but then I am an adult, so I can

handle it better.  Silly question I am sure, but has your kid been tested for

allergies?  My throat clearing gets worse when my allergies, seasonal, are bad. 

Junk runs down the back of my throat.  I use nose spray to help ease the issue. 

Just a thought.

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No he hasnt thats something I should look into. But he h the eyeblinking with it

so we know it a tic and the panic attack thank for the reply

>

> I know what your kid is going through as a throat clearer myself.  Mine gets

worse with stress.  I use deep breathing, but then I am an adult, so I can

handle it better.  Silly question I am sure, but has your kid been tested for

allergies?  My throat clearing gets worse when my allergies, seasonal, are bad. 

Junk runs down the back of my throat.  I use nose spray to help ease the issue. 

Just a thought.

>

>

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I can't remember if you said. . But, was he checked for Tourettes? Eye blinking

can be a common symptom of Tourettes. And OCD and Tourettes often go hand in

hand.

Not implying he has it, but maybe something to check into, if you haven't yet.

BJ

>

> No he hasnt thats something I should look into. But he h the eyeblinking with

it so we know it a tic and the panic attack thank for the reply

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