To

[Guest guest]

In a message dated 11/29/01 10:20:42 AM Pacific Standard Time,

bluskies@... writes:

> But

> look into the Milk Thistle - your doctor may even know about it if he/she

> is at all interested in alternative medicine.

>

> -

>

Thanks I will ck in to that I haven't heard of it but I will look in to it.

I hope I haven't done any permanent damage and it wasn't narcotics my Drs.

didn't believe in that for fibro but they sure believed in all the other

junk. I am doing so much better than I was 2 moths ago. Of course with Fibro

we have those up and down days but with my family and friends I think I can

handle it.

I found out today a lot of my sleeping disorders is from sleep anepa and

apponeas which meant that as often as I was having them I did good to have an

hrs sleep that wasn't disruptive and why even Ambien didn't help my sleeping

problems. I have togo on the breathing machine and mask but things could be

worse --right??

God Bless

[Guest guest]

In a message dated 11/29/01 8:22:42 PM Pacific Standard Time,

bluskies@... writes:

> The Cpap machine should help your sleep greatly if you have sleep apnea -

> I've got several friends who sleep with one and they say that their life is

> so much better now that they can finally get a full night's sleep! Good

> luck to you.

>

thanks , I know it will take some getting used too but if it takes the

stress off my heart I am all for it. Yes I know I am very lucky in my

support system, I have a sil and bil and 2 best friends who live right here

near me and we are there for each other because we know what road they are

traveling.

My hubby and kids also have been there for me even when I made their life a

nightmare for awhile. I have a precious little 3 yr old granddaughter who

lives in Ark but she was here last night and they headed back today and

haven't reached Ark yet due to flooding and tornadic weather we have been

having, but she gives me the will to do what I have to do because I am her

only grandma now, I want to be here for her as she grows up, I didn't have

that myself my grandparents died when I was 6 so I don't want her to be

without that special bond.

God Bless in ALA

[Guest guest]

Hi ,

I hope your doc will give you a thumbs up on the Milk Thistle, or will at

least agree to do some research into it for your sake. I've known many

people (and dogs<g>) that it's worked wonders for. Remember that unless you

completely remove all the things that did the damage to your liver in the

first place, that it will never begin to heal - you can explain to your

doctor that the milk thistle will help even if you're still taking some

type of med that is processed through the liver - and that includes a huge

number of them!

Your doctors didn't believe in narcotics for FMS?? That's too bad - I know

for myself, I'd be finding me some new doctors (and did). I'm glad that

you're doing better with it - it's a very difficult thing to live with and

you're very lucky to have the support system that you do. I have a decent

support system, but still wouldn't be out of the bed if it weren't for the

medications!

The Cpap machine should help your sleep greatly if you have sleep apnea -

I've got several friends who sleep with one and they say that their life is

so much better now that they can finally get a full night's sleep! Good

luck to you.

-

At 11:01 PM 11/29/01 EST, you wrote:

>Thanks I will ck in to that I haven't heard of it but I will look in to it.

>I hope I haven't done any permanent damage and it wasn't narcotics my Drs.

>didn't believe in that for fibro but they sure believed in all the other

>junk. I am doing so much better than I was 2 moths ago. Of course with

Fibro

>we have those up and down days but with my family and friends I think I can

>handle it.

>I found out today a lot of my sleeping disorders is from sleep anepa and

>apponeas which meant that as often as I was having them I did good to have

an

>hrs sleep that wasn't disruptive and why even Ambien didn't help my sleeping

>problems. I have togo on the breathing machine and mask but things could be

>worse --right??

>God Bless

[Guest guest]

,

Ditto what Sara said! The definition in you chest and

arms (especially your triceps) was very noticeable -

and only in 4 weeks! Great job!

--- Sara Altmyer wrote:

> ,

>

> I can sure see your progress in just 4 short weeks!

> Your arms and chest are showing so much definition.

> You will bring that quote to life in the book " how

> would you like to look in the mirror in 12 weeks and

> be downright excited by what you see! " (or something

> like that!!).

>

> Sara

__________________________________________________

[Guest guest]

Thanks ,

I going to soak up all your praise and save it when I'm going for

those 10!s

> > ,

> >

> > I can sure see your progress in just 4 short weeks!

> > Your arms and chest are showing so much definition.

> > You will bring that quote to life in the book " how

> > would you like to look in the mirror in 12 weeks and

> > be downright excited by what you see! " (or something

> > like that!!).

> >

> > Sara

>

>

> __________________________________________________

>

[Guest guest]

--Thank you, . I keep poking at the thought of her passing the

way you would poke a bad tooth. It just doesn't seem real. I really

feel for her mom. She buried her husband and a few months later she

will now be burying her youngest daughter. It has really made me

realize that you shouldn't let good friendships slip through the

cracks. I think that my other friend and I will make sure we keep

better in touch. Thanks for the good thoughts.

- In LBDcaregivers , " " <crawf5@a...> wrote:

> ,

>

> My heart goes out to you. A very dear friend of mine died at 39 of

> breast cancer and left a husband and 3 children. She was the

> bravest person I knew besides my dad.

>

> I will say a prayer for you that God may give you peace and her

> family peace and comfort at this time. She is at peace and has no

> pain now. I remember on a card we got after my dad died and it

> talked about stars being openings from heaven for our loved ones

and

> friends to see down.

>

> Love,

> C.

> ADel, IA

[Guest guest]

Thanks for the attention Carol. 'Going inside. . .

To

Dear ,

Since I have a lot of facilitation issues/ego trips, etc. I was interested

in

this paragraph in your note to Leila:

>>I also have made it known to people that I want to practice this work and

learn to facilitate it well. I printed up some business cards on my computer

and some brochures for a group. The group has met 4 times now and gone

really well. One thing I have focused on is having at least a coupe of

people in there who are open to being contributed to. They're willing to

open up and to look. It's like having a couple of ringers in there. These

people make me look good as a facilitator. They keep the meeting from

denigrating into my ineptness at facilitating a breakthrough with someone

who doesn't want to look or budge.<<

I hear a couple of assumptions about what you said here, and yes it's all

totally my work (I'm about to do a workshop on July 13 here in NY and these

are

hot-buttons for me):

1. That if someone doesn't want to look or budge, this points to your

" ineptness " as a facilitator. (I gave myself a huge stomach age yesterday

with this

belief when a client totally blew me off.)

[FB] OK, here's my story about it. I notice that I don't hear tapes of

sitting with someone who's stuck. Of course this could be due to editing. I

haven't been to a live event yet. I discovered the book on Amazon one week

after had been in Tempe, AZ last year.

My story is also that if I am loving enough and clear enough, people will

usually move towards a breakthrough. I have no idea whether that's true. I

suppose I'd like for it to be true and for me to be good enough. Then again

my sentence has been that I'm not good enough so I'm sure that's flavoring

my perception.

So, to answer your question, Yes, it occurs to me that if someone doesn't

want to look or budge it points towards something lacking in me.

Then again, when I've worked with people who want to look and see through

their stories, it doesn't mean I'm a great facilitator. There's a flaw in

the logic here. If who they're being means I'm inept, then it should also

mean that I'm great when it works. OK, I'll be with this.

2. That people who do not want to look or budge now won't look or budge

five

seconds from now. (Hang in there, Carol, ya just never know...)

[FB] Good point. I can't know that.

3. That you can make yourself " look good " to others. (Oy...hopeless.)

[FB] (Soft chuckle) Oh God, but I want it so badly. (sigh)

4. That running a group is about looking good as a facilitator. (Cringe.)

[FB] (Empathetic cringe)

5. That as a facilitator, you are the one who is contributing to the

client.

(Cringe, cringe.)

[FB] Yeah, that's just not true is it? It seems to be sometimes.

6. When someone has a breakthrough, it's because you facilitated them.

(Ah,

Arrogance, my old friend, nice to see you! Thank you for coming to set me

free!)

[FB] You know, I am a little less attached to this one. When someone breaks

through it is because I happened to have some direction that was helpful AND

they happened to be open to where the direction led. " If I appear to have

great vision, it is because I stand on the shoulders of giants. " -Sir Isaac

Newton

7. The client should always have a breakthrough or catharsis. (This was a

*huge* stumbling block for me at my first school.)

[FB] Yeah, I want them to. I could let that go huh?. . . Get back in touch

with reality. . . Give up running the show.

8. Others in the group won't benefit if they don't experience a " model "

facilitation (deep inquiry, breakthroughs, masterful facilitation).

[FB] You know what I've started doing about that is playing a segment of

before we begin, trying to set the tone in the group.

Anything ringing a bell? If so, do you feel like playing?

[FB] Is there another way to play that I missed?

Thanks Carol.

Love,

[Guest guest]

No, Ilse, my fault entirely. I do apologise for not responding. The problem is

I am here in Wanganui, 2 1/2 hrs from Wellington and the events do seem to be in

the main centres, Wellington being the closest. I would like to go to some of

them but am not able to leave Mum here alone. It is entirely circumstantial

that I haven't been to the talks and I apologise for creating the impression you

have.

Please know that I do read your posts and want to go, and will once time and

place match up.

to

Dear ,

Was just reading all these emails between Geri and Russ, sorting things

out and I thought maybe I should mention something that is on my mind.

I emailed to you invites to listen to these Doctors etc over in NZ and

never got a response back from you as to whether you were even

interested. I feel a bit like things that I have been sending maybe

havent gone down too well. I have wondered since if I offended you in

any way? It certainly wasnt intended if that is the case.

regards Ilse

[Guest guest]

,

I am thinking of you and praying for you during this time. When you can, let

us know how you are doing.

Much love,

Piper

[Guest guest]

Hello and welcome to the group.

My name is , I am 23 and I am from Corpus Christi, tx. I was

diagnosed about three to four months ago, but have been suffering

from all of the symptoms for the past three and a half years. It

took the doctors that long to diagnosed me. I had the following, and

still suffer from them: fevers (low grade and sometimes high), my

hair is thinning due to the methotrexate I am on, I have gained alot

of weight because I can't exercise my flair up is still too bad. And

every time I try to exercise I just cause the flair up to come back

on stronger. I suffer from depression, I have this itchy rash that

won't go away. I am keeping my hands busy so I won't scratch.

I sweat excessively, I don't know if that is due to the prednisone I

am on. Right now I am on 20 mg, they are cutting me back by 5 mg

each week, and I am also on remicade infusions. I will be going to

my third one on the 21st of this month. Right before my classes

begin so I should be able to concentrate a little better, hopefully.

I am a full time student as well. Alot of people that I talk too,

ask me how do I do it. How can I go through taking all of this

medication, especially methotrexate which is chemotherapy, and still

manage to go to school. I think if I wasn't going to college and

didn't have this support group I wouldn't given up along time ago. I

am so glad that I found this support group, because when I was first

diagnosed people didn't know and still don't know what Stills

disease is. Well I don't want to talk your ear off, but welcome to

the family. I hope you enjoy this group as much as I do. Everybody

here is so understanding, and everybody's disease is going through

some different progress that we discuss and inform eachother about.

And of course we vent to eachother about how we are feeling some

days. Well I do send hugs and blessings your way.

Corpus Christi