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Danni

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I get a full workup of blood series every 2 weeks. I am actually very

fortunate. My Reaumatoligist is actually one of the few in the South East that

has dealt a lot with JRA and Stills Disease. He is actually about 2 hours from

where I live and very hard to get into. My Uncle though is a Doctor and they

happen to be friends. So I was very fortunate to get a Reaumatoligist that has

worked a lot with JRA and Stills, I trust him impecably. He actually listens to

what I have to say and understands. Then I am also fortunate because my mother

is a Family Nurse Practitioner, which is basically the same thing as a Doctor.

They do the same thing. She and My uncle are in practice together. So

medically I have all the backup in the world. They (my uncle and mother) are

having a hard time understanding what is happening to me, but they know it is

not in my head. And they are there for me. So needless to say, I find out

about my meds in debth. And my blood work for my

kidneys, liver and everything else is watched very closely. My primary care

physician has been great too. He also has dealt with a few Stills disease cases

so I did not have to explain to him what it was like I do the ER doctors.

Thanks for the concern. Right now worry about what we can do for you. We want

to see you get through everything. Take Care Danni.

Burr

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  • 9 months later...

Hey Girl,so glad to hear from you. I am sorry about your brother and I hope

your Dad can learn to cope .It sounds like youv'e been through the mill,but as

always have a great attitude.Much happiness for you with your new friend.I hope

you keep in touch,say once a month?

love Elly

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