New to group

[Guest guest]

yes, it does have something to do with hep c have the doctor check your ammonia levelit also helps not to eat a lot of meat.NoeLaniTo: Hepatitis_C_Central Sent: Monday, April 27, 2009 11:57:11 AMSubject: Re: new to

group

Jax thanks for the nice reply. I am having my 5th hernia surgery (3rd in 2 yrs) this Friday I quit smoking and lost about 15 lbs hoping this would help me not to have to go through this again so we will see what happens. Speaking of my devil oops I meant my daughter lol she is very grown for 12 yrs she sat with me the other day and asked if had something written down so that if God forbid I died during surgery or while I am down in Mexico after the surgery (visiting my husband) that there was someone to take care of her, I think she is worried because I have no family (well I do but haven't seen them in over 20 yrs. ) so I told her I have a guardian agreement and power of attorney with her best friends mom so I am hoping she isn't so worried about this. My son says he will just live on his own LMAO he would starve to death and be wearing dirty clothes, he is a great kid just very very lazy!

Anyway I wanted to ask if anyone knows if there is any correlation between my memory loss and hep c? I am not treating and I am wondering if maybe all the toxins are effecting my brain. I am talking about forgetting names and words, or just calling things by the wrong name. My son seems to think its funny and it is at times but very frustrating when I am trying hard to remember what the word is. So if anyone can shed some light on this I would appreciate it.

Thanks,

Chiara

Fantasy not only gets you out of reality, it brings you back. Rod McKuen

From: Jackie on <redjaxjmyahoo (DOT) com>To: Hepatitis_C_ Central@yahoogro ups.comSent: Sunday, April 26, 2009 8:39:36 PMSubject: Re: [Hepatitis_C_ Central] new to group

Chiara, that was excellent advice.. I too breast fed my kids( didnt even know I was infected), both of them and neither one of them has this virus. I can't believe that your doc wanted you to abort simply because you tested pos for this virus... grrrrr... there are many ppl in this world that would have done that just because 'the doc said so'... and look at your beautiful daughter, she is fine....

thanks for putting in your story so that everyone can see that you did fine

hugs,

jax

From: Chiara Rosillo <chiara3363yahoo (DOT) com>Subject: Re: [Hepatitis_C_ Central] new to groupTo: Hepatitis_C_ Central@yahoogro ups.comDate: Sunday, April 26, 2009, 8:34 AM

Hi ,

Welcome to the group. I had 2 kids one before I knew I had hep c and one after. Mind you this was back before they really knew much about hep c. When I was pregnant with my last child my daughter Alejandra in 1992 my doctors wanted me to have an abortion they said she would be infected by the virus I told them if God didn't want me to have her I would not be pregnant. I went through a lot that pregnancy the test they normally do came back saying something was wrong (can remember exactly now) they had me scared.. The delivery went well it was after that all hell broke loose my placenta had grown into the wall (there is a name for it but again its been 13 yrs and I have an old brain so I don't remember what they call it) and I ended up in surgery. But I was fine and Alejandra is now 13 and has been tested through the years and is virus free as is my son. I breast fed my son but

again

with Alejandra they told me she would catch the virus if I breast fed her, I have since read info. which says this is not true. So I would say have you sister talk to her doctors they know so much more now than they did back then. I will keep you and her in my thoughts and prayers.

Chiara

Fantasy not only gets you out of reality, it brings you back. Rod McKuen

From: cindy law <northendcindy@ yahoo.com>To: Hepatitis_C_ Central@yahoogro ups..comSent: Sunday, April 26, 2009 6:56:24 AMSubject: [Hepatitis_C_ Central] new to group

Hi, I joined this group to help out my sister. She was diagnosed with hep c 2 years ago. She was able to maintain her levels around 7000 or lower with diet. She is 45 and 8 months pregnant. Her level counts have jumped to over 2 million. She is seeing a midwife for her pregnancy, and a high risk ob, plus a liver special list. No one can give her any answers to what is going on.Here are a few of her questions:How is this pregnancy affecting her liver?Why is her liver counts drastically changing?What are the chances of passing this on to her unborn child?Which carries a lower risk cesarean or vaginally?Thanks for your help!! "Imagine the possibilities - A world respectful of all people"

[Guest guest]

I have 2 children one is 18 who I had vaginally and the other is 12 who I had a C section with. They have both been tested and neither one of them has hep C.

Subject: Re: new to groupTo: Hepatitis_C_Central Date: Sunday, April 26, 2009, 8:34 AM

Hi ,

Welcome to the group. I had 2 kids one before I knew I had hep c and one after. Mind you this was back before they really knew much about hep c. When I was pregnant with my last child my daughter Alejandra in 1992 my doctors wanted me to have an abortion they said she would be infected by the virus I told them if God didn't want me to have her I would not be pregnant. I went through a lot that pregnancy the test they normally do came back saying something was wrong (can remember exactly now) they had me scared. The delivery went well it was after that all hell broke loose my placenta had grown into the wall (there is a name for it but again its been 13 yrs and I have an old brain so I don't remember what they call it) and I ended up in surgery. But I was fine and Alejandra is now 13 and has been tested through the years and is virus free as is my son. I breast fed my son but again

with Alejandra they told me she would catch the virus if I breast fed her, I have since read info. which says this is not true. So I would say have you sister talk to her doctors they know so much more now than they did back then. I will keep you and her in my thoughts and prayers.

Chiara

Fantasy not only gets you out of reality, it brings you back. Rod McKuen

From: cindy law <northendcindy@ yahoo.com>To: Hepatitis_C_ Central@yahoogro ups.comSent: Sunday, April 26, 2009 6:56:24 AMSubject: [Hepatitis_C_ Central] new to group

Hi, I joined this group to help out my sister. She was diagnosed with hep c 2 years ago. She was able to maintain her levels around 7000 or lower with diet. She is 45 and 8 months pregnant. Her level counts have jumped to over 2 million. She is seeing a midwife for her pregnancy, and a high risk ob, plus a liver special list. No one can give her any answers to what is going on.Here are a few of her questions:How is this pregnancy affecting her liver?Why is her liver counts drastically changing?What are the chances of passing this on to her unborn child?Which carries a lower risk cesarean or vaginally?Thanks for your help!! "Imagine the possibilities - A world respectful of all people"

[Guest guest]

Thanks NoeLani I will talk with my doctor

Chiara

Fantasy not only gets you out of reality, it brings you back. Rod McKuen

To: Hepatitis_C_Central Sent: Monday, April 27, 2009 1:57:45 PMSubject: Re: new to group

yes, it does have something to do with hep c have the doctor check your ammonia levelit also helps not to eat a lot of meat.NoeLani

From: Chiara Rosillo <chiara3363yahoo (DOT) . com>To: Hepatitis_C_ Central@yahoogro ups.comSent: Monday, April 27, 2009 11:57:11 AMSubject: Re: [Hepatitis_C_ Central] new to group

Jax thanks for the nice reply. I am having my 5th hernia surgery (3rd in 2 yrs) this Friday I quit smoking and lost about 15 lbs hoping this would help me not to have to go through this again so we will see what happens. Speaking of my devil oops I meant my daughter lol she is very grown for 12 yrs she sat with me the other day and asked if had something written down so that if God forbid I died during surgery or while I am down in Mexico after the surgery (visiting my husband) that there was someone to take care of her, I think she is worried because I have no family (well I do but haven't seen them in over 20 yrs. ) so I told her I have a guardian agreement and power of attorney with her best friends mom so I am hoping she isn't so worried about this. My son says he will just live on his own LMAO he would starve to death and be wearing dirty clothes, he is a great kid just very very lazy!

Anyway I wanted to ask if anyone knows if there is any correlation between my memory loss and hep c? I am not treating and I am wondering if maybe all the toxins are effecting my brain. I am talking about forgetting names and words, or just calling things by the wrong name. My son seems to think its funny and it is at times but very frustrating when I am trying hard to remember what the word is. So if anyone can shed some light on this I would appreciate it.

Thanks,

Chiara

Fantasy not only gets you out of reality, it brings you back. Rod McKuen

From: Jackie on <redjaxjmyahoo (DOT) com>To: Hepatitis_C_ Central@yahoogro ups.comSent: Sunday, April 26, 2009 8:39:36 PMSubject: Re: [Hepatitis_C_ Central] new to group

Chiara, that was excellent advice.. I too breast fed my kids( didnt even know I was infected), both of them and neither one of them has this virus. I can't believe that your doc wanted you to abort simply because you tested pos for this virus... grrrrr... there are many ppl in this world that would have done that just because 'the doc said so'.... and look at your beautiful daughter, she is fine....

thanks for putting in your story so that everyone can see that you did fine

hugs,

jax

From: Chiara Rosillo <chiara3363yahoo (DOT) com>Subject: Re: [Hepatitis_C_ Central] new to groupTo: Hepatitis_C_ Central@yahoogro ups.comDate: Sunday, April 26, 2009, 8:34 AM

Hi ,

Welcome to the group. I had 2 kids one before I knew I had hep c and one after. Mind you this was back before they really knew much about hep c. When I was pregnant with my last child my daughter Alejandra in 1992 my doctors wanted me to have an abortion they said she would be infected by the virus I told them if God didn't want me to have her I would not be pregnant. I went through a lot that pregnancy the test they normally do came back saying something was wrong (can remember exactly now) they had me scared.. The delivery went well it was after that all hell broke loose my placenta had grown into the wall (there is a name for it but again its been 13 yrs and I have an old brain so I don't remember what they call it) and I ended up in surgery. But I was fine and Alejandra is now 13 and has been tested through the years and is virus free as is my son. I breast fed my son but again

with Alejandra they told me she would catch the virus if I breast fed her, I have since read info. which says this is not true. So I would say have you sister talk to her doctors they know so much more now than they did back then. I will keep you and her in my thoughts and prayers.

Chiara

Fantasy not only gets you out of reality, it brings you back. Rod McKuen

From: cindy law <northendcindy@ yahoo.com>To: Hepatitis_C_ Central@yahoogro ups..comSent: Sunday, April 26, 2009 6:56:24 AMSubject: [Hepatitis_C_ Central] new to group

Hi, I joined this group to help out my sister. She was diagnosed with hep c 2 years ago. She was able to maintain her levels around 7000 or lower with diet. She is 45 and 8 months pregnant. Her level counts have jumped to over 2 million. She is seeing a midwife for her pregnancy, and a high risk ob, plus a liver special list. No one can give her any answers to what is going on.Here are a few of her questions:How is this pregnancy affecting her liver?Why is her liver counts drastically changing?What are the chances of passing this on to her unborn child?Which carries a lower risk cesarean or vaginally?Thanks for your help!! "Imagine the possibilities - A world respectful of all people"

[Guest guest]

We (my sister and I) have noticed that 's short term memory is going.

Also he talks extremly slow. We believe it is due to the Hep C. His long term

memory seems to be better than his short term. For example, my parents used to

have a different phone number, but have had the current number for over 10

years. I heard him giving someone the phone number and it was the old one. I

corrected him and he gave the people hte correct number.

My sister and I don't see every day, so we can see the changes.

---- Chiara Rosillo wrote:

> Jax thanks for the nice reply. I am having my 5th hernia surgery (3rd in 2

yrs) this Friday I quit smoking and lost about 15 lbs hoping this would help me

not to have to go through this again so we will see what happens. Speaking of my

devil oops I meant my daughter lol she is very grown for 12 yrs she sat with me

the other day and asked if had something written down so that if God forbid I

died during surgery or while I am down in Mexico after the surgery (visiting

my husband) that there was someone to take care of her, I think she is worried

because I have no family (well I do but haven't seen them in over 20 yrs. ) so

I told her I have a guardian agreement and power of attorney with her best

friends mom so I am hoping she isn't so worried about this. My son says he will

just live on his own LMAO he would starve to death and be wearing dirty

clothes, he is a great kid just very very lazy!

> Anyway I wanted to ask if anyone knows if there is any correlation between my

memory loss and hep c? I am not treating and I am wondering if maybe all the

toxins are effecting my brain. I am talking about forgetting names and words, or

just calling things by the wrong name. My son seems to think its funny and it is

at times but very frustrating when I am trying hard to remember what the word

is. So if anyone can shed some light on this I would appreciate it.

> Thanks,

> Chiara

>  

> Fantasy not only gets you out of reality, it brings you back. Rod McKuen

>

>

>

>

> ________________________________

>

> To: Hepatitis_C_Central

> Sent: Sunday, April 26, 2009 8:39:36 PM

> Subject: Re: new to group

>

>

>

>

>

> Chiara, that was excellent advice.. I too breast fed my kids( didnt even know

I was infected), both of them and neither one of them has this virus.  I can't

believe that your doc wanted you to abort simply because you tested pos for this

virus... grrrrr... there are many ppl in this world that would have done that

just because 'the doc said so'... and look at your beautiful daughter, she is

fine....

> thanks for putting in your story so that everyone can see that you did fine

> hugs,

> jax

>

>

>

>

>

>

> From: Chiara Rosillo <chiara3363yahoo (DOT) com>

> Subject: Re: [Hepatitis_C_ Central] new to group

> To: Hepatitis_C_ Central@yahoogro ups.com

> Date: Sunday, April 26, 2009, 8:34 AM

>

>

> Hi ,

> Welcome to the group. I had 2 kids one before I knew I had hep c and one

after. Mind you this was back before they really knew much about hep c. When I

was pregnant with my last child my daughter Alejandra in 1992 my doctors wanted

me to have an abortion they said she would be infected by the virus I told them

if God didn't want me to have her I would not be pregnant. I went through a

lot that pregnancy the test they normally do came back saying something was

wrong (can remember exactly now) they had me scared. The delivery went well it

was after that all hell broke loose my placenta had grown into the wall (there

is a name for it but again its been 13 yrs and I have an old brain so I don't

remember what they call it) and I ended up in surgery. But I was fine and

Alejandra is now 13 and has been tested through the years and is virus free as

is  my son. I breast fed my son but again with Alejandra they told me she

would catch the virus if I

> breast fed her, I have since read info. which says this is not true. So I

would say have you sister talk to her doctors they know so much more now than

they did back then. I will keep you and her in my thoughts and prayers.

> Chiara

>  

> Fantasy not only gets you out of reality, it brings you back. Rod McKuen

>

>

>

>

> ________________________________

> From: cindy law <northendcindy@ yahoo.com>

> To: Hepatitis_C_ Central@yahoogro ups.com

> Sent: Sunday, April 26, 2009 6:56:24 AM

> Subject: [Hepatitis_C_ Central] new to group

>

>

> Hi, I joined this group to help out my sister.  She was diagnosed with hep c

2 years ago.  She was able to maintain her levels around 7000 or lower with

diet.  She is 45 and 8 months pregnant.  Her level counts have jumped to over

2 million.  She is seeing a midwife for her pregnancy, and a high risk ob, plus

a liver special list.  No one can give her any answers to what is going on.

>

> Here are a few of her questions:

> How is this pregnancy affecting her liver?

> Why is her liver counts drastically changing?

> What are the chances of passing this on to her unborn child?

> Which carries a lower risk cesarean or vaginally?

>

> Thanks for your help!!

>

>

>

> " Imagine the possibilities - A world respectful of all people "

>

>

>

>

>

>

[Guest guest]

but you need to eat adequate protein or the tx wont work,, or so I was told..

From: Chiara Rosillo <chiara3363yahoo (DOT) com>Subject: Re: [Hepatitis_C_ Central] new to groupTo: Hepatitis_C_ Central@yahoogro ups.comDate: Sunday, April 26, 2009, 8:34 AM

Hi ,

Welcome to the group. I had 2 kids one before I knew I had hep c and one after. Mind you this was back before they really knew much about hep c. When I was pregnant with my last child my daughter Alejandra in 1992 my doctors wanted me to have an abortion they said she would be infected by the virus I told them if God didn't want me to have her I would not be pregnant. I went through a lot that pregnancy the test they normally do came back saying something was wrong (can remember exactly now) they had me scared.. The delivery went well it was after that all hell broke loose my placenta had grown into the wall (there is a name for it but again its been 13 yrs and I have an old brain so I don't remember what they call it) and I ended up in surgery. But I was fine and Alejandra is now 13 and has been tested through the years and is virus free as is my son. I breast fed my son but again

with Alejandra they told me she would catch the virus if I breast fed her, I have since read info. which says this is not true. So I would say have you sister talk to her doctors they know so much more now than they did back then. I will keep you and her in my thoughts and prayers.

Chiara

Fantasy not only gets you out of reality, it brings you back. Rod McKuen

From: cindy law <northendcindy@ yahoo.com>To: Hepatitis_C_ Central@yahoogro ups..comSent: Sunday, April 26, 2009 6:56:24 AMSubject: [Hepatitis_C_ Central] new to group

Hi, I joined this group to help out my sister. She was diagnosed with hep c 2 years ago. She was able to maintain her levels around 7000 or lower with diet. She is 45 and 8 months pregnant. Her level counts have jumped to over 2 million. She is seeing a midwife for her pregnancy, and a high risk ob, plus a liver special list. No one can give her any answers to what is going on.Here are a few of her questions:How is this pregnancy affecting her liver?Why is her liver counts drastically changing?What are the chances of passing this on to her unborn child?Which carries a lower risk cesarean or vaginally?Thanks for your help!! "Imagine the possibilities - A world respectful of all people"

[Guest guest]

If you are having problems sleeping, I wonder if you might have Sleep Apnea.

You can talk to your doctor about being tested (you spend a night in the

hospital or sleep lab, with lots of wires on you. Do you snore?

---- Chiara Rosillo wrote:

> Jax,

> I would have never thought of that. I just turned 46 in March. I am having

a hard time sleeping again so I think I will do some reading about it. I was

worried for a while thought I had early onset (omg see just happened can't

remember the word) whew alz. spelling stinks sorry. Oh and about going to Mexico

I am not planning to go until the kids get out of school which is the last day

of May. I spoke to my husband today and his mother broke her hip a week ago

tomorrow and they haven't done anything yet just keeping her in the hosp. with

an I.V waiting on parts but he said today they started making everyone wear a

mask. I figure in a month it will be better or worse and I will then decide to

go or not. It was funny though I had never thought about it but today I asked

him what kind of food do you get in a Mexican hospital and I cracked up he said

they gave her tacos but no chili (hot sauce) I think I would fall off the bed

if I was in the hosp. and

> they gave me tacos. I did speak to my hep doc and he asked the surgeon to do

a liver biopsy the one I had 2 yrs ago showed stage 3 right at 4 cirrhosis and

stage 3 something else something about swelling. My viral load last time checked

6 months was 25,000,000 he said I had lots in me. I know I should pay more

attention when I speak to him but I never know what to ask and by the time I

leave I am only stuck with the bad things he tells me. Are there questions I

should be asking? Ok I am off to do some research my tired brain. Thanks

> Chiara

> Chiara

>  

> Fantasy not only gets you out of reality, it brings you back. Rod McKuen

>

>

>

>

> ________________________________

>

> To: Hepatitis_C_Central

> Sent: Monday, April 27, 2009 11:46:26 PM

> Subject: Re: new to group

>

>

>

>

>

> Chiara, yes memory loss or hepper brain is common.. how old are you too? Is

there any possiblilty that you may be either entering perimemopause or menopause

itself? I had those very symptoms prior to my diagnosis,, my doc fought with me

for more than 2 years to go on HRT, which I did but only with a natural estrogen

(menest, a plant phyoestrogen) and real Progesterone for ONE YEAR only and it

did in fact help.  So while it might be the virus, it might also be

perimenopause. .. just a thought,,,

> jax

>

>

>

>

>

>

> From: Chiara Rosillo <chiara3363yahoo (DOT) com>

> Subject: Re: [Hepatitis_C_ Central] new to group

> To: Hepatitis_C_ Central@yahoogro ups.com

> Date: Sunday, April 26, 2009, 8:34 AM

>

>

> Hi ,

> Welcome to the group. I had 2 kids one before I knew I had hep c and one

after. Mind you this was back before they really knew much about hep c. When I

was pregnant with my last child my daughter Alejandra in 1992 my doctors wanted

me to have an abortion they said she would be infected by the virus I told them

if God didn't want me to have her I would not be pregnant. I went through a

lot that pregnancy the test they normally do came back saying something was

wrong (can remember exactly now) they had me scared.. The delivery went well it

was after that all hell broke loose my placenta had grown into the wall (there

is a name for it but again its been 13 yrs and I have an old brain so I don't

remember what they call it) and I ended up in surgery. But I was fine and

Alejandra is now 13 and has been tested through the years and is virus free as

is  my son. I breast fed my son but again with Alejandra they told me she

would catch the virus if I

> breast fed her, I have since read info. which says this is not true. So I

would say have you sister talk to her doctors they know so much more now than

they did back then. I will keep you and her in my thoughts and prayers.

> Chiara

>  

> Fantasy not only gets you out of reality, it brings you back. Rod McKuen

>

>

>

>

> ________________________________

> From: cindy law <northendcindy@ yahoo.com>

> To: Hepatitis_C_ Central@yahoogro ups..com

> Sent: Sunday, April 26, 2009 6:56:24 AM

> Subject: [Hepatitis_C_ Central] new to group

>

>

> Hi, I joined this group to help out my sister.  She was diagnosed with hep c

2 years ago.  She was able to maintain her levels around 7000 or lower with

diet.  She is 45 and 8 months pregnant.  Her level counts have jumped to over

2 million.  She is seeing a midwife for her pregnancy, and a high risk ob, plus

a liver special list.  No one can give her any answers to what is going on.

>

> Here are a few of her questions:

> How is this pregnancy affecting her liver?

> Why is her liver counts drastically changing?

> What are the chances of passing this on to her unborn child?

> Which carries a lower risk cesarean or vaginally?

>

> Thanks for your help!!

>

>

>

> " Imagine the possibilities - A world respectful of all people "

>

>

>

>

>

>

>

[Guest guest]

My family says I snore like a bear but I think they are hearing things LOL. My non sleeping has been going on for many many years. My old counselor said she thinks it has to do with on of my mental illnesses, I am just crazy so I have been doing this for years. I sleep well when my husband is next to me but when I am alone here with the kids I stay up it has gotten better I use to wait for the sun to come up now my body gets tired around 4-5 am. I sleep only about 5 hrs. a day. I think that is a big reason I always feel worn out. I understand its a lot of mental stress I am going through and it doesn't help my hep that's for sure, but this is as good as it gets for now. They use to give me seraquil (spelling might be wrong) but I stopped taking that way to strong for me.

Thanks,

Chiara

Fantasy not only gets you out of reality, it brings you back. Rod McKuen

To: Hepatitis_C_Central Sent: Wednesday, April 29, 2009 4:33:39 PMSubject: Re: new to group

If you are having problems sleeping, I wonder if you might have Sleep Apnea. You can talk to your doctor about being tested (you spend a night in the hospital or sleep lab, with lots of wires on you. Do you snore?---- Chiara Rosillo <chiara3363yahoo (DOT) com> wrote: > Jax,> I would have never thought of that. I just turned 46 in March. I am having a hard time sleeping again so I think I will do some reading about it. I was worried for a while thought I had early onset (omg see just happened can't remember the word) whew alz. spelling stinks sorry. Oh and about going to Mexico I am not planning to go until the kids get out of school which is the last day of May. I spoke to my husband today and his mother broke her hip a week ago tomorrow and they haven't done anything yet just keeping her in the hosp.

with an I.V waiting on parts but he said today they started making everyone wear a mask. I figure in a month it will be better or worse and I will then decide to go or not. It was funny though I had never thought about it but today I asked him what kind of food do you get in a Mexican hospital and I cracked up he said they gave her tacos but no chili (hot sauce) I think I would fall off the bed if I was in the hosp. and> they gave me tacos. I did speak to my hep doc and he asked the surgeon to do a liver biopsy the one I had 2 yrs ago showed stage 3 right at 4 cirrhosis and stage 3 something else something about swelling. My viral load last time checked 6 months was 25,000,000 he said I had lots in me. I know I should pay more attention when I speak to him but I never know what to ask and by the time I leave I am only stuck with the bad things he tells me. Are there questions I should be asking? Ok I am off to do some research my

tired brain. Thanks> Chiara> Chiara> > Fantasy not only gets you out of reality, it brings you back. Rod McKuen> > > > > ____________ _________ _________ __> From: Jackie on <redjaxjmyahoo (DOT) com>> To: Hepatitis_C_ Central@yahoogro ups.com> Sent: Monday, April 27, 2009 11:46:26 PM> Subject: Re: [Hepatitis_C_ Central] new to group> > > > > > Chiara, yes memory loss or hepper brain is common.. how old are you too? Is there any possiblilty that you may be either entering perimemopause or menopause itself? I had those very symptoms prior to my diagnosis,, my doc

fought with me for more than 2 years to go on HRT, which I did but only with a natural estrogen (menest, a plant phyoestrogen) and real Progesterone for ONE YEAR only and it did in fact help. So while it might be the virus, it might also be perimenopause. .. just a thought,,,> jax> > > > > > > From: Chiara Rosillo <chiara3363@ yahoo. com>> Subject: Re: [Hepatitis_C_ Central] new to group> To: Hepatitis_C_ Central@yahoogro ups.com> Date: Sunday, April 26, 2009, 8:34 AM> > > Hi ,> Welcome to the group. I had 2 kids one before I knew I had hep c and one after. Mind you this was back before they really knew much about hep c. When I was pregnant with my last child my daughter Alejandra in 1992 my doctors wanted me to have an abortion they said she would be infected by the virus I told them if God didn't want me to have her I would not be

pregnant. I went through a lot that pregnancy the test they normally do came back saying something was wrong (can remember exactly now) they had me scared.. The delivery went well it was after that all hell broke loose my placenta had grown into the wall (there is a name for it but again its been 13 yrs and I have an old brain so I don't remember what they call it) and I ended up in surgery. But I was fine and Alejandra is now 13 and has been tested through the years and is virus free as is my son. I breast fed my son but again with Alejandra they told me she would catch the virus if I> breast fed her, I have since read info. which says this is not true. So I would say have you sister talk to her doctors they know so much more now than they did back then. I will keep you and her in my thoughts and prayers. > Chiara> > Fantasy not only gets you out of reality, it brings you back. Rod

McKuen> > > > > ____________ _________ _________ __> From: cindy law <northendcindy@ yahoo.com>> To: Hepatitis_C_ Central@yahoogro ups..com> Sent: Sunday, April 26, 2009 6:56:24 AM> Subject: [Hepatitis_C_ Central] new to group> > > Hi, I joined this group to help out my sister. She was diagnosed with hep c 2 years ago. She was able to maintain her levels around 7000 or lower with diet. She is 45 and 8 months pregnant. Her level counts have jumped to over 2 million. She is seeing a midwife for her pregnancy, and a high risk ob, plus a liver special list. No one can give her any answers to what is going on.> > Here are a few of her questions:> How is this pregnancy affecting her liver?> Why is her liver counts drastically changing?> What are the

chances of passing this on to her unborn child?> Which carries a lower risk cesarean or vaginally?> > Thanks for your help!! > > > > "Imagine the possibilities - A world respectful of all people" > > > > > > >

[Guest guest]

I've used Restoril or Temazepam for sleep for the years around my treatment year and it worked really great for me. you might try asking for that if you need some sleep,

hugs,

jax> > > From: Chiara Rosillo <chiara3363@ yahoo. com>> Subject: Re: [Hepatitis_C_ Central] new to group> To: Hepatitis_C_ Central@yahoogro ups.com> Date: Sunday, April 26, 2009, 8:34 AM> > > Hi ,> Welcome to the group. I had 2 kids one before I knew I had hep c and one after. Mind you this was back before they really knew much about hep c. When I was pregnant with my last child my daughter Alejandra in 1992 my doctors wanted me to have

an abortion they said she would be infected by the virus I told them if God didn't want me to have her I would not be pregnant. I went through a lot that pregnancy the test they normally do came back saying something was wrong (can remember exactly now) they had me scared.. The delivery went well it was after that all hell broke loose my placenta had grown into the wall (there is a name for it but again its been 13 yrs and I have an old brain so I don't remember what they call it) and I ended up in surgery. But I was fine and Alejandra is now 13 and has been tested through the years and is virus free as is my son. I breast fed my son but again with Alejandra they told me she would catch the virus if I> breast fed her, I have since read info. which says this is not true. So I would say have you sister talk to her doctors they know so much more now than they did back then. I will keep you and her in my

thoughts and prayers. > Chiara> > Fantasy not only gets you out of reality, it brings you back. Rod McKuen> > > > > ____________ _________ _________ __> From: cindy law <northendcindy@ yahoo.com>> To: Hepatitis_C_ Central@yahoogro ups..com> Sent: Sunday, April 26, 2009 6:56:24 AM> Subject: [Hepatitis_C_ Central] new to group> > > Hi, I joined this group to help out my sister. She was diagnosed with hep c 2 years ago. She was able to maintain her levels around 7000 or lower with diet. She is 45 and 8 months pregnant. Her level counts have jumped to over 2 million. She is seeing a midwife for her pregnancy, and a high risk ob, plus a liver special list. No one can give her any answers to what is going on.> > Here are a few of her

questions:> How is this pregnancy affecting her liver?> Why is her liver counts drastically changing?> What are the chances of passing this on to her unborn child?> Which carries a lower risk cesarean or vaginally?> > Thanks for your help!! > > > > "Imagine the possibilities - A world respectful of all people" > > > > > > >

[Guest guest]

well you are young for menopause but not perimenopause,, I started through it by my 43rd birthday and it was over when I was 46. so its possible and it does seem that those of us with hep do go through it earlier than those who dont have the virus... you can ask your doc and he can do a simple blood test to see where you are in this..

best of luck,

jax

From: Chiara Rosillo <chiara3363yahoo (DOT) com>Subject: Re: [Hepatitis_C_ Central] new to groupTo: Hepatitis_C_ Central@yahoogro ups.comDate: Sunday, April 26, 2009, 8:34 AM

Hi ,

Welcome to the group. I had 2 kids one before I knew I had hep c and one after. Mind you this was back before they really knew much about hep c. When I was pregnant with my last child my daughter Alejandra in 1992 my doctors wanted me to have an abortion they said she would be infected by the virus I told them if God didn't want me to have her I would not be pregnant. I went through a lot that pregnancy the test they normally do came back saying something was wrong (can remember exactly now) they had me scared.. The delivery went well it was after that all hell broke loose my placenta had grown into the wall (there is a name for it but again its been 13 yrs and I have an old brain so I don't remember what they call it) and I ended up in surgery. But I was fine and Alejandra is now 13 and has been tested through the years and is virus free as is my son. I breast fed my son but again

with Alejandra they told me she would catch the virus if I breast fed her, I have since read info. which says this is not true. So I would say have you sister talk to her doctors they know so much more now than they did back then. I will keep you and her in my thoughts and prayers.

Chiara

Fantasy not only gets you out of reality, it brings you back. Rod McKuen

From: cindy law <northendcindy@ yahoo.com>To: Hepatitis_C_ Central@yahoogro ups..comSent: Sunday, April 26, 2009 6:56:24 AMSubject: [Hepatitis_C_ Central] new to group

Hi, I joined this group to help out my sister. She was diagnosed with hep c 2 years ago. She was able to maintain her levels around 7000 or lower with diet. She is 45 and 8 months pregnant. Her level counts have jumped to over 2 million. She is seeing a midwife for her pregnancy, and a high risk ob, plus a liver special list. No one can give her any answers to what is going on.Here are a few of her questions:How is this pregnancy affecting her liver?Why is her liver counts drastically changing?What are the chances of passing this on to her unborn child?Which carries a lower risk cesarean or vaginally?Thanks for your help!! "Imagine the possibilities - A world respectful of all people"

[Guest guest]

HI JACK!

Welcome to the group! Im glad you found us and I hope we can be of some help in your struggle with this virus that has us all in its grip! I think the symptoms you are enduring are pretty normal but they can be permanent as well.. Im left with serious concentration issues and I've been off tx now for 6 years. Even tho I am SVR, I was badly damaged by the treatment BUT MOST PPL dont end up like me,, its kind of a crap shoot... I've heard many ppl say that after all the tx drugs are out of their systems, that they do feel better... What IM wondering is why your doc continued your tx when were not clear or undetectible at week 12 as the stats show that you will likely relapse or never get fully clear of the virus. You may have to treat more than once as many ppl have had to do that in order to reach SVR. What geno are you? Geno 1 and 4 are both hard to clear but any and all genotypes can relapse or not reach the stage of being

undetectible.. thats why we need more new drugs to help us clear this virus but most of the drug money goes to HIV....

Please feel free to ask us any questions you have or just to blow off steam here as we're here for ya!!

welcome again to the group!

jax

Subject: New to groupTo: Hepatitis_C_Central Date: Thursday, August 13, 2009, 11:02 AM

Hi everyone,I'm new to the group but not Hep C. I contracted the disease in the mid-70's and in 2001 it kicked into high gear. I've been through attempts at Interferon regimens three times but my platelets/and or red cells tanked after 2-3 months. This is my fourth run through and I've made it just about to my fifth month. My viral load in the first 3 1/2 mo dropped from 1.5 million to 35,000. My side effects seem to be getting worse as I progress. The anxiety/mood swings are always present but I can deal with them. Lately though I've had balance and vision issues as well as memory loss and difficulty in concentrating.My question is basically do these issues resolve quickly once therapy is stopped or do they persist for a short/long period of time. Any comments would help.Most people don't get what I'm going through so I'm grateful to reach out to this group.Jack

[Guest guest]

Hi Deborah, I am from Kansas. I just started this group recently and I am in the very beggining of getting ready to treat. I went to the gastro doc yesterday. I have my liver biopsy on first friday of Dec. I am pretty scared and I don't think there is a wrong or right way to how you deal with it. You got to keep as positive as you can to help your through it. That is a major thing that will help you through this and a good support system. I have been working on all this myself. I am trying to get over the why me and my pitty pot. I am going to beat this. I am geno type 1. She told me it was the worst. You can find stuff all over the internet about it all but be careful there is good and bad info. Don't let it scare you the info. Just think how much better you can be when you get it all done.

This seems to be a real friendly and understanding group of people that are going through this or have been or had someone who has or even has a lot of knowledge about it. It sure has been a big help for me.

Check out datagrey's photos and profile!

http://community.webshots.com/user/datagrey

Find me on MySpace and be my friend.

http://www.myspace.com/datagrey

Subject: New to groupTo: Hepatitis_C_Central Date: Tuesday, November 24, 2009, 4:15 PM

Hi everyone,I am new to the group. I was diagnosed with Hepatitis C on October 22. It has been a huge shock to me. I am not sure how or when I contracted it. I have had an ultrasound. I went to the gastro last Tuesday. He ordered tons of blood tests. I know he is checking for genotype, viral load and some other stuff. One of the blood tests is for copper? Why? I am not home to tell you what tests he ordered. Mitochodrial was one of the blood tests. How do you deal with the initial shock? The gastro thought I could have contracted it during my marriage. I have been divorced for 6 years now. I did have a C-section in early 1992. I am worried about my son having it. I did breast feed for a year.I hope this is the correct protocol for

this group. I know I need support from people that have and are going through this. -- Deborah

[Guest guest]

Welcome to the group Deborah . The chances of spreading through

breast milk is 0% , I have 5 and 4 were breast fed after my diagnosis . And

none of my children tested positive . Not sure why your doc would check for

copper , iron is one that should be checked though and it sounds like the other

stuff if spot on correct .

From:

Hepatitis_C_Central

[mailto:Hepatitis_C_Central ] On Behalf Of Deborah

Sent: Tuesday, November 24, 2009 2:16 PM

To: Hepatitis_C_Central

Subject: New to group

Hi everyone,

I am new to the group. I was diagnosed with Hepatitis C on October

22. It has been a huge shock to me. I am not sure how

or when I contracted it.

I have had an ultrasound. I went to the gastro last Tuesday. He

ordered tons of blood tests. I know he is checking for genotype,

viral load and some other stuff. One of the blood tests is for

copper? Why?

I am not home to tell you what tests he ordered.

Mitochodrial was one of the blood tests.

How do you deal with the initial shock? The gastro thought I could

have contracted it during my marriage. I have been divorced for 6 years

now. I did have a C-section in early 1992. I am worried about

my son having it. I did breast feed for a year.

I hope this is the correct protocol for this group. I know I need support

from people that have and are going through this.

--

Deborah

[Guest guest]

Hi Deborah,

I am new to this group as well and have Hep "C". I am getting ready to start treatments as I know God will see me through and he will see you through this disease as well. Have faith and trust in God that all will be ok.

I had a "C' section with my little girl six years ago and she did not have Hep "C", THANK GOD!! so don't worry to much about that, you can always have your child tested just to make sure. Hang in there ok and God bless you!

Subject: New to groupTo: Hepatitis_C_Central Date: Tuesday, November 24, 2009, 2:15 PM

Hi everyone,I am new to the group. I was diagnosed with Hepatitis C on October 22. It has been a huge shock to me. I am not sure how or when I contracted it. I have had an ultrasound. I went to the gastro last Tuesday. He ordered tons of blood tests. I know he is checking for genotype, viral load and some other stuff. One of the blood tests is for copper? Why? I am not home to tell you what tests he ordered. Mitochodrial was one of the blood tests. How do you deal with the initial shock? The gastro thought I could have contracted it during my marriage. I have been divorced for 6 years now. I did have a C-section in early 1992. I am worried about my son having it. I did breast feed for a year.I hope this is the correct protocol for

this group. I know I need support from people that have and are going through this. -- Deborah

[Guest guest]

Hi Deborah,

First off, welcome to the group! You'll find lots of caring folks here who really do want to help you through this just as they were helped! What we typically tell the new folks is to get copies of EVERYTHING from your doc and keep it in a file at home for quick reference as things go along!

Let us know when you get all those results back!

hugs,

jax

To: Hepatitis_C_Central Sent: Tue, November 24, 2009 2:15:57 PMSubject: New to group

Hi everyone,I am new to the group. I was diagnosed with Hepatitis C on October 22. It has been a huge shock to me. I am not sure how or when I contracted it. I have had an ultrasound. I went to the gastro last Tuesday. He ordered tons of blood tests. I know he is checking for genotype, viral load and some other stuff. One of the blood tests is for copper? Why? I am not home to tell you what tests he ordered. Mitochodrial was one of the blood tests. How do you deal with the initial shock? The gastro thought I could have contracted it during my marriage. I have been divorced for 6 years now. I did have a C-section in early 1992. I am worried about my son having it. I did breast feed for a year.I hope this is the correct protocol for

this group. I know I need support from people that have and are going through this. -- Deborah

[Guest guest]

Thank you everyone for the warm welcome.   The nurse called and left a message that all the tests are back.   She made me an appointment for next Wednesday.  I don't know if I can't wait another week.    I did call the nurse back asking if she could at least tell me viral load and genotype.  I doubt she will give me the information.

 

 

What foods should I eat to promote liver health?  I know to stay away from alcohol, tylenol.  What else should I avoid?  I don't drink or smoke.  

 

 

My son is 17.  I had the C-Section in 1992.  

 

I need to run.  I am at work and hoping to have Thanksgiving off.  

 

Deborah

[Guest guest]

Hi, Deborah! I agree with you that waiting for test results is the worst! Most of us have an understanding with our Docs that absolutely ALL test results, whether it be biopsy, ultrasound, MRI, or the frequent blood tests are faxed or mailed to us. I have weekly blood work right now, and I receive the results via fax within 24 hours. And, I save absolutely all results in a file. If you get a prescription for a test at a lab or radiology place, your fax number MUST be on the script, or it will not be forwarded to you. You can get a basic fax for under $30.00 if you don't have one. This will really help keep your stress level down. You have the legal right to all these records, so don't back down! Best of luck, and please post your test results whenever you do receive them.

[Guest guest]

Here is the list of blood tests Gastro ordered.   No results until my visit on December 2nd.  UGGHHHH!HCV RNA, Quantitative Real Time PCR (Plasma)Hepatitis C Viral RNA Genotype, LIPA (Plasma)Alpha-1-Antitrypsin QN (Serum)

ANACHOICE Screen w/refl to titer, IFA (serum)Mitochondrial antibody w/refl titer (serum)Ceruloplasmin (serum)Ferritin (serum)C-Reactive Protein (Serum)Does anyone know what these tests are for?  

Deborah

[Guest guest]

hi deborah,

I know its hard waiting, I know..

Tylenol is only bad for your liver if you use too much, it is still the safest for those of us with hep c to use for pain as long as we do not exceed a daily total of 2000 mg of it. You can also take advil if you dont have a problem with it as long as you dont exceed 1600 mg per 24 hour day. You take take them both in 24 hours as long as you dont exceed the maximum doses.

You just need to eat well, a good balanced diet, lots of fresh fruit and veggies, whole grains, low fat proteins, etc,, you know, a regular diet but yep, NO alcohol.. When and if you do treatment, the treatment nurse will tell you that its important to eat a protein based diet to help the treatment work better.. but first things first hon.. I'd say trying to get used to drinking lots and lots of FILTERED water every day is a good start. it helps to flush out the toxins in your body, especially when you're on treatment. you need to drink half of your weight in pounds, half in ounces,, so if you weigh say 120 pounds, you need to consume at least 60 ounces of filtered water..

hugs,

jax

To: Hepatitis_C_Central Sent: Wed, November 25, 2009 1:47:10 PMSubject: Re: New to group

Thank you everyone for the warm welcome. The nurse called and left a message that all the tests are back. She made me an appointment for next Wednesday. I don't know if I can't wait another week. I did call the nurse back asking if she could at least tell me viral load and genotype. I doubt she will give me the information.

What foods should I eat to promote liver health? I know to stay away from alcohol, tylenol. What else should I avoid? I don't drink or smoke.

My son is 17. I had the C-Section in 1992.

I need to run. I am at work and hoping to have Thanksgiving off.

Deborah

[Guest guest]

The HCV PCR RNA QUANTIVE IS your viral load number which is

reflected as a number and a log number … The genotyping is just to find

out which geno species you are which will tell them how long to treat and also

how hard it will be to reach a sustained viralogical response . The ferritin is

your iron level which with advance hep c will be high and can lead to organ

damage in the liver , heart , and kidneys . The other tests I believe are to

see if you have autoimmune hep . The others could also be what they refer

to as tumor markers but I could be wrong , my head is not right tonight lol

From: Hepatitis_C_Central

[mailto:Hepatitis_C_Central ] On Behalf Of Deborah

Sent: Wednesday, November 25, 2009 9:27 PM

To: Hepatitis_C_Central

Subject: Re: New to group

Here is the list of blood tests Gastro

ordered. No results until my visit on December 2nd. UGGHHHH!

HCV RNA, Quantitative Real Time PCR (Plasma)

Hepatitis C Viral RNA Genotype, LIPA (Plasma)

Alpha-1-Antitrypsin QN (Serum)

ANACHOICE Screen w/refl to titer, IFA (serum)

Mitochondrial antibody w/refl titer (serum)

Ceruloplasmin (serum)

Ferritin (serum)

C-Reactive Protein (Serum)

Does anyone know what these tests are for?

Deborah

[Guest guest]

Thank you ladies for all the information! Have a Happy Thanksgiving!!!!!Deborah

[Guest guest]

Hi Deborah,

I take "milk thistle" everyday and eat fruits, veggies, whole grains, nuts and beans!! Drink alot of water and I also juice organic veggies which are very good for the liver. Hang in there and I will keep you in my prayers. We can do this together as God will see us through this difficult time. I will be starting my treatments very soon myself.

Happy Thanksgiving!!

Subject: Re: New to groupTo: Hepatitis_C_Central Date: Wednesday, November 25, 2009, 1:47 PM

Thank you everyone for the warm welcome. The nurse called and left a message that all the tests are back. She made me an appointment for next Wednesday. I don't know if I can't wait another week. I did call the nurse back asking if she could at least tell me viral load and genotype. I doubt she will give me the information.

What foods should I eat to promote liver health? I know to stay away from alcohol, tylenol. What else should I avoid? I don't drink or smoke.

My son is 17. I had the C-Section in 1992.

I need to run. I am at work and hoping to have Thanksgiving off.

Deborah

[Guest guest]

Happy Thanksgiving to you also

From: Hepatitis_C_Central

[mailto:Hepatitis_C_Central ] On Behalf Of Deborah

Sent: Thursday, November 26, 2009 5:28 AM

To: Hepatitis_C_Central

Subject: Re: Re: New to group

Thank you ladies for all the information!

Have a Happy Thanksgiving!!!!!

Deborah

[Guest guest]

Alpha-1 Antitrypsin is a test to see if you have that deficiency gene that

causes liver disease or emphysema. I am a carrier of that gene.

Penny

>

> Here is the list of blood tests Gastro ordered. No results until my visit

> on December 2nd. UGGHHHH!

>

> HCV RNA, Quantitative Real Time PCR (Plasma)

> Hepatitis C Viral RNA Genotype, LIPA (Plasma)

> Alpha-1-Antitrypsin QN (Serum)

> ANACHOICE Screen w/refl to titer, IFA (serum)

> Mitochondrial antibody w/refl titer (serum)

> Ceruloplasmin (serum)

> Ferritin (serum)

> C-Reactive Protein (Serum)

>

>

> Does anyone know what these tests are for?

>

>

>

> Deborah

>

[Guest guest]

Thank you Penny for explaining that blood test.    I have no clue about some of these tests.  I will find out the results next week.  I am trying not to obsess over them and just relax.  There is nothing I can do about them anyway.  

I hope everyone had a wonderful Thanksgiving.  We are watching the A & M / Texas game.   Deborah

[Guest guest]

Hello my name is and i want to give you the warmest welcome

To: autism-georgia Sent: Tue, January 18, 2011 11:12:53 AMSubject: New to group

Hi There,I'm new to the group. I have a 3-1/2 year old son with Aspergers. He was diagnosed in October. To say the least it's been quite overwhelming and an emotional rollercoaster. He used to go to Montessori school but we pulled him out because he said it was too loud and also they were too many kids in the class. Also, the teachers weren't equipped to handle him. Anyway, we live in Cobb County and had the evaluation. We took a tour of the school our son would be assigned.. Riverside Elementary in Mableton. I'm not sure what to think about it. The assistant principal gave us a tour. He couldn't answer any questions and referred everything back to when the IEP is determined. I asked if they learned anything academically and he said well not at this age but when they are 4. I asked about discipline and he couldn't really answer that and said they don't really have any problems like that with the little one. Also, there are not any kids with

Aspergers in the class. I think there's maybe one child with autism. I realize our son needs to work on social skills and behavior like being a better listener, but I'm already questioning if this school is going to work for him. Now, I'm wondering where he belongs and if we'll be able to find the right school for him without spending a fortune. Our home school Harmony Leland is full so that's why were assigned to this school. If anyone have any suggestions or advice or any info on any of these schools please I'd love to hear from you. Also, any suggestions on preparing for the IEP I'd love to hear as well. When the asst. principal told me he would be there along with 11 other people in the room who don't know my son I thought I was going to have a heart attack. I can't imagine a room full of people who don't know my son determining his academic future.Thanks for listening!

He