New to group

[Guest guest]

Hi ,Thanks for the welcome!  My apologies for the typos in my post.  I was so upset when I was typing.  Anyway, nice to hear from you.  Hope to connect with other parents and learn from their stories as well.

 

Hello my name is and i want to give you the warmest welcome

To: autism-georgia

Sent: Tue, January 18, 2011 11:12:53 AMSubject: New to group 

Hi There,I'm new to the group. I have a 3-1/2 year old son with Aspergers. He was diagnosed in October. To say the least it's been quite overwhelming and an emotional rollercoaster. He used to go to Montessori school but we pulled him out because he said it was too loud and also they were too many kids in the class. Also, the teachers weren't equipped to handle him. Anyway, we live in Cobb County and had the evaluation. We took a tour of the school our son would be assigned.. Riverside Elementary in Mableton. I'm not sure what to think about it. The assistant principal gave us a tour. He couldn't answer any questions and referred everything back to when the IEP is determined. I asked if they learned anything academically and he said well not at this age but when they are 4. I asked about discipline and he couldn't really answer that and said they don't really have any problems like that with the little one. Also, there are not any kids with

Aspergers in the class. I think there's maybe one child with autism. I realize our son needs to work on social skills and behavior like being a better listener, but I'm already questioning if this school is going to work for him. Now, I'm wondering where he belongs and if we'll be able to find the right school for him without spending a fortune.

Our home school Harmony Leland is full so that's why were assigned to this school. If anyone have any suggestions or advice or any info on any of these schools please I'd love to hear from you. Also, any suggestions on preparing for the IEP I'd love to hear as well. When the asst. principal told me he would be there along with 11 other people in the room who don't know my son I thought I was going to have a heart attack. I can't imagine a room full of people who don't know my son determining his academic future.

Thanks for listening!

He

[Guest guest]

Hi , and warmest welcome to you!

My son has Asperger's and Bipolar. He is almost 18 so I have been through years of this.

I was advised, and did, prepare a book with all info about my son including a large photo on the front. It is important in your IEP that everyone sees whom they are working to help. YOUR SON. I was advised early on that I would have to be his strongest advocate and fight for the best possible services for him. Your IEP is a legal document and I strongly suggest that you ask online here to have an advocate contact you. Some work free of charge, some not, but it is money well spent if that is the case.

I also found here in the South that men carry a lot more weight that we women, so my husband always always attended these meetings.

I can't advise on your school system. My son is in South Forsyth High, 11th grade, in special ed, and they have worked miracles with him.

Feel free to contact me at: sherzerbe@....

Subject: Re: New to groupTo: autism-georgia Date: Tuesday, January 18, 2011, 4:32 PM

Hello my name is and i want to give you the warmest welcome

To: autism-georgia Sent: Tue, January 18, 2011 11:12:53 AMSubject: New to group

Hi There,I'm new to the group. I have a 3-1/2 year old son with Aspergers. He was diagnosed in October. To say the least it's been quite overwhelming and an emotional rollercoaster. He used to go to Montessori school but we pulled him out because he said it was too loud and also they were too many kids in the class. Also, the teachers weren't equipped to handle him. Anyway, we live in Cobb County and had the evaluation. We took a tour of the school our son would be assigned.. Riverside Elementary in Mableton. I'm not sure what to think about it. The assistant principal gave us a tour. He couldn't answer any questions and referred everything back to when the IEP is determined. I asked if they learned anything academically and he said well not at this age but when they are 4. I asked about discipline and he couldn't really answer that and said they don't really have any problems like that with the little one. Also, there are not any kids with

Aspergers in the class. I think there's maybe one child with autism. I realize our son needs to work on social skills and behavior like being a better listener, but I'm already questioning if this school is going to work for him. Now, I'm wondering where he belongs and if we'll be able to find the right school for him without spending a fortune. Our home school Harmony Leland is full so that's why were assigned to this school. If anyone have any suggestions or advice or any info on any of these schools please I'd love to hear from you. Also, any suggestions on preparing for the IEP I'd love to hear as well. When the asst. principal told me he would be there along with 11 other people in the room who don't know my son I thought I was going to have a heart attack. I can't imagine a room full of people who don't know my son determining his academic future.Thanks for listening!

He

[Guest guest]

Thanks Sherry.  That is very encouraging to hear.  I truly appreciate the advice.  My husband is definitely involved and ready for battle especially when it comes to our son.  I will definitely be looking for some help as we prepare for the IEP meeting.

Thanks, 

 

Hi , and warmest welcome to you!

My son has Asperger's and Bipolar.  He is almost 18 so I have been through years of this.

I was advised, and did, prepare a book with all info about my son including a large photo on the front.  It is important in your IEP that everyone sees whom they are working to help.  YOUR SON.  I was advised early on that I would have to be his strongest advocate and fight for the best possible services for him.  Your IEP  is a legal document and I strongly suggest that you ask online here to have an advocate contact you.  Some work free of charge, some not, but it is money well spent if that is the case.

I also found here in the South that men carry a lot more weight that we women, so my husband always always attended these meetings.

I can't advise on your school system.  My son is in South Forsyth High, 11th grade, in special ed, and they have worked miracles with him.

Feel free to contact me at:  sherzerbe@....

Subject: Re: New to group

To: autism-georgia Date: Tuesday, January 18, 2011, 4:32 PM

 

Hello my name is and i want to give you the warmest welcome

To: autism-georgia

Sent: Tue, January 18, 2011 11:12:53 AMSubject: New to group 

Hi There,I'm new to the group. I have a 3-1/2 year old son with Aspergers. He was diagnosed in October. To say the least it's been quite overwhelming and an emotional rollercoaster. He used to go to Montessori school but we pulled him out because he said it was too loud and also they were too many kids in the class. Also, the teachers weren't equipped to handle him. Anyway, we live in Cobb County and had the evaluation. We took a tour of the school our son would be assigned.. Riverside Elementary in Mableton. I'm not sure what to think about it. The assistant principal gave us a tour. He couldn't answer any questions and referred everything back to when the IEP is determined. I asked if they learned anything academically and he said well not at this age but when they are 4. I asked about discipline and he couldn't really answer that and said they don't really have any problems like that with the little one. Also, there are not any kids with

Aspergers in the class. I think there's maybe one child with autism. I realize our son needs to work on social skills and behavior like being a better listener, but I'm already questioning if this school is going to work for him. Now, I'm wondering where he belongs and if we'll be able to find the right school for him without spending a fortune.

Our home school Harmony Leland is full so that's why were assigned to this school. If anyone have any suggestions or advice or any info on any of these schools please I'd love to hear from you. Also, any suggestions on preparing for the IEP I'd love to hear as well. When the asst. principal told me he would be there along with 11 other people in the room who don't know my son I thought I was going to have a heart attack. I can't imagine a room full of people who don't know my son determining his academic future.

Thanks for listening!

He

[Guest guest]

Welcome, welcome, welcome! I have a 16 y/o who is diagnosed with autism. He is high functioning in the 10th Grade. If I can help in any way, let me know. Sent from my Verizon Wireless BlackBerrySender: autism-georgia Date: Tue, 18 Jan 2011 18:28:27 -0500To: <autism-georgia >ReplyTo: autism-georgia Subject: Re: New to group Thanks Sherry.  That is very encouraging to hear.  I truly appreciate the advice.  My husband is definitely involved and ready for battle especially when it comes to our son.  I will definitely be looking for some help as we prepare for the IEP meeting.Thanks,  Hi , and warmest welcome to you!My son has Asperger's and Bipolar.  He is almost 18 so I have been through years of this.I was advised, and did, prepare a book with all info about my son including a large photo on the front.  It is important in your IEP that everyone sees whom they are working to help.  YOUR SON.  I was advised early on that I would have to be his strongest advocate and fight for the best possible services for him.  Your IEP  is a legal document and I strongly suggest that you ask online here to have an advocate contact you.  Some work free of charge, some not, but it is money well spent if that is the case.I also found here in the South that men carry a lot more weight that we women, so my husband always always attended these meetings.I can't advise on your school system.  My son is in South Forsyth High, 11th grade, in special ed, and they have worked miracles with him.Feel free to contact me at:  sherzerbe@....Subject: Re: New to groupTo: autism-georgia Date: Tuesday, January 18, 2011, 4:32 PM  Hello my name is and i want to give you the warmest welcomeTo: autism-georgia Sent: Tue, January 18, 2011 11:12:53 AMSubject: New to group  Hi There,I'm new to the group. I have a 3-1/2 year old son with Aspergers. He was diagnosed in October. To say the least it's been quite overwhelming and an emotional rollercoaster. He used to go to Montessori school but we pulled him out because he said it was too loud and also they were too many kids in the class. Also, the teachers weren't equipped to handle him. Anyway, we live in Cobb County and had the evaluation. We took a tour of the school our son would be assigned.. Riverside Elementary in Mableton. I'm not sure what to think about it. The assistant principal gave us a tour. He couldn't answer any questions and referred everything back to when the IEP is determined. I asked if they learned anything academically and he said well not at this age but when they are 4. I asked about discipline and he couldn't really answer that and said they don't really have any problems like that with the little one. Also, there are not any kids withAspergers in the class. I think there's maybe one child with autism. I realize our son needs to work on social skills and behavior like being a better listener, but I'm already questioning if this school is going to work for him. Now, I'm wondering where he belongs and if we'll be able to find the right school for him without spending a fortune. Our home school Harmony Leland is full so that's why were assigned to this school. If anyone have any suggestions or advice or any info on any of these schools please I'd love to hear from you. Also, any suggestions on preparing for the IEP I'd love to hear as well. When the asst. principal told me he would be there along with 11 other people in the room who don't know my son I thought I was going to have a heart attack. I can't imagine a room full of people who don't know my son determining his academic future.Thanks for listening!He

[Guest guest]

A welcome to you and I was in your same boat after we arrived in GA and landed in Macon -- 2 months after arriving in 2004, my son was diagnosed with Autism. We tried numerous schools and the one we wanted to go to the least, was the one that helped the most and worked wonders with him. He went to the preschool special ed at Hubbard in Forsyth (city, not county) GA. He is now 9 and still flourishing . . . when he was going through the IEP process, I read every single document, asked many many questions, and worked to make sure he was given what he needed. Don't ever just sign something (my advise!!!) . . . and read as much as you can on attending IEP's. . . .

Welcome, and know this group is here to help, and to share, and to understand . . . . welcome, and sorry you are here, but know we are a network of people who understand!!!

in Macon, GA

To: autism-georgia Sent: Tue, January 18, 2011 7:07:44 PMSubject: Re: New to group

Welcome, welcome, welcome! I have a 16 y/o who is diagnosed with autism. He is high functioning in the 10th Grade. If I can help in any way, let me know. Sent from my Verizon Wireless BlackBerry

Sender: autism-georgia

Date: Tue, 18 Jan 2011 18:28:27 -0500

To: <autism-georgia >

ReplyTo: autism-georgia

Subject: Re: New to group

Thanks Sherry. That is very encouraging to hear. I truly appreciate the advice. My husband is definitely involved and ready for battle especially when it comes to our son. I will definitely be looking for some help as we prepare for the IEP meeting.

Thanks,

Hi , and warmest welcome to you!

My son has Asperger's and Bipolar. He is almost 18 so I have been through years of this.

I was advised, and did, prepare a book with all info about my son including a large photo on the front. It is important in your IEP that everyone sees whom they are working to help. YOUR SON. I was advised early on that I would have to be his strongest advocate and fight for the best possible services for him. Your IEP is a legal document and I strongly suggest that you ask online here to have an advocate contact you. Some work free of charge, some not, but it is money well spent if that is the case.

I also found here in the South that men carry a lot more weight that we women, so my husband always always attended these meetings.

I can't advise on your school system. My son is in South Forsyth High, 11th grade, in special ed, and they have worked miracles with him.

Feel free to contact me at: sherzerbe@....

Subject: Re: New to group To: autism-georgia Date: Tuesday, January 18, 2011, 4:32 PM

Hello my name is and i want to give you the warmest welcome

To: autism-georgia Sent: Tue, January 18, 2011 11:12:53 AMSubject: New to group

Hi There,I'm new to the group. I have a 3-1/2 year old son with Aspergers. He was diagnosed in October. To say the least it's been quite overwhelming and an emotional rollercoaster. He used to go to Montessori school but we pulled him out because he said it was too loud and also they were too many kids in the class. Also, the teachers weren't equipped to handle him. Anyway, we live in Cobb County and had the evaluation. We took a tour of the school our son would be assigned.. Riverside Elementary in Mableton. I'm not sure what to think about it. The assistant principal gave us a tour. He couldn't answer any questions and referred everything back to when the IEP is determined. I asked if they learned anything academically and he said well not at this age but when they are 4. I asked about discipline and he couldn't really answer that and said they don't really have any problems like that with the little one. Also, there are not any kids with

Aspergers in the class. I think there's maybe one child with autism. I realize our son needs to work on social skills and behavior like being a better listener, but I'm already questioning if this school is going to work for him. Now, I'm wondering where he belongs and if we'll be able to find the right school for him without spending a fortune. Our home school Harmony Leland is full so that's why were assigned to this school. If anyone have any suggestions or advice or any info on any of these schools please I'd love to hear from you. Also, any suggestions on preparing for the IEP I'd love to hear as well. When the asst. principal told me he would be there along with 11 other people in the room who don't know my son I thought I was going to have a heart attack. I can't imagine a room full of people who don't know my son determining his academic future.Thanks for listening!

He

[Guest guest]

Hi, My name is Corrine, and I am new to this group. I am the mother of two

wonderful little boys. My oldest is 5 years old, and showing signs of OCD.

He first exibited ocd type behaviors around the age of 3, we spoke with our

pediatrician and looked into having him officially diagnosed and I just couldn't

do it.

When the behaviors continued I once again thought about having him diagnosed and

at that time he was diagnosed with a food allergy and I decided to just handle

that first and wait.

He is now five. I think that not having him looked at as of now is partially

because I am afraid that they will tell me that he is ocd, and partially because

I don't want him to feel like their is something wrong with him. I just don't

know what to do. He is in kindergarten this year and has friends and behaves

himself. He is just a great kid! At the same time the little things he does are

very concerning. I would love advice, I feel lost.

This is a list of his most frequent behaviors,

Hand washing, tags on clothing, tapping things a certain number of times, not

wanting to be kissed, wiping his bottom a certain number of times after using

the bathroom, not using the restroom in his kindergarten class because other

children have touched it, he is very critical of himself, he is over serious,

very responsible, he is always right on top of me whatever I am doing, won't he

eat certain foods that are sticky, can not stand to be dirty, repeats

directions, asks the same question over and over again, he erases his work in

class over and over again. He will have to start all over again on anything even

if it is just for fun if he makes any mistake.

Are these things considered ocd? Should I have him evaluated? Thanks so much!

[Guest guest]

Thank you so much for your kind responses. They mean so much to me. I will make

an appointment in the morning with our pediatrician and see what steps we need

to take.

 

Misty, he has a wheat and soy allergy. I have always thought that he might have

aspergers if he didn't communicate so well. He is very verbal, was an early

reader and accepts social cues very well. Did your child with aspergers do

these things? I appreciate the feed back so much! Thanks!

Subject: Re: New to group

To:

Date: Tuesday, March 22, 2011, 4:55 PM

 

Sounds like a mixture of OCD, anxiety, rigidity, and sensory issues.  Keep an

eye on how he does socially over the next few years.. You may be dealing with

something more than just OCD..  My kids were later diagnosed with Asperger's

after having a similar presentation as your son around that age..  They were

fairly social at that age and did well aside from the sensory and OCD issues..

As they got older, the social issues became more apparent. 

What are his food allergies?  My kids also have allergies and sometimes it's

all

related.

Misty

________________________________

To:

Sent: Tue, March 22, 2011 4:06:51 PM

Subject: New to group

 

Hi, My name is Corrine, and I am new to this group. I am the mother of two

wonderful little boys. My oldest is 5 years old, and showing signs of OCD.

He first exibited ocd type behaviors around the age of 3, we spoke with our

pediatrician and looked into having him officially diagnosed and I just couldn't

do it.

When the behaviors continued I once again thought about having him diagnosed and

at that time he was diagnosed with a food allergy and I decided to just handle

that first and wait.

He is now five. I think that not having him looked at as of now is partially

because I am afraid that they will tell me that he is ocd, and partially because

I don't want him to feel like their is something wrong with him. I just don't

know what to do. He is in kindergarten this year and has friends and behaves

himself. He is just a great kid! At the same time the little things he does are

very concerning. I would love advice, I feel lost.

This is a list of his most frequent behaviors,

Hand washing, tags on clothing, tapping things a certain number of times, not

wanting to be kissed, wiping his bottom a certain number of times after using

the bathroom, not using the restroom in his kindergarten class because other

children have touched it, he is very critical of himself, he is over serious,

very responsible, he is always right on top of me whatever I am doing, won't he

eat certain foods that are sticky, can not stand to be dirty, repeats

directions, asks the same question over and over again, he erases his work in

class over and over again. He will have to start all over again on anything even

if it is just for fun if he makes any mistake.

Are these things considered ocd? Should I have him evaluated? Thanks so much!

[Guest guest]

Hi Corrine, me again (just finished a reply to you). My son was (is)

very verbal (tho late in talking). He has Aspergers. He was very articulate,

used the " big " words back then too, great reader, great at " book learning. "

Socially - well he was (is) very social but still just didn't fit in. He tried!

Hard to explain but he was just " different. " For him, I think I noticed the

social cue problem more when he was older than when he was in elementary school.

But heck, he's 22 now, can't say for sure.... But at that young age, he was my

little professor, Mr. Spock, really smart, so logical and lacking common sense

was what I would think about him.

>

> Thank you so much for your kind responses. They mean so much to me. I will

make an appointment in the morning with our pediatrician and see what steps we

need to take.

>  

> Misty, he has a wheat and soy allergy. I have always thought that he might

have aspergers if he didn't communicate so well. He is very verbal, was an early

reader and accepts social cues very well. Did your child with aspergers do

these things? I appreciate the feed back so much! Thanks!

[Guest guest]

that sounds just like my son. It almost brings tears to my eyes. Thank

you for sharing it with me. You probably already mentioned it, but what age was

he diagnosed, and what treatment worked best for him?

Subject: Re: New to group

To:

Date: Tuesday, March 22, 2011, 8:31 PM

 

Hi Corrine, me again (just finished a reply to you). My son was (is)

very verbal (tho late in talking). He has Aspergers. He was very articulate,

used the " big " words back then too, great reader, great at " book learning. "

Socially - well he was (is) very social but still just didn't fit in. He tried!

Hard to explain but he was just " different. " For him, I think I noticed the

social cue problem more when he was older than when he was in elementary school.

But heck, he's 22 now, can't say for sure.... But at that young age, he was my

little professor, Mr. Spock, really smart, so logical and lacking common sense

was what I would think about him.

>

> Thank you so much for your kind responses. They mean so much to me. I will

make an appointment in the morning with our pediatrician and see what steps we

need to take.

>  

> Misty, he has a wheat and soy allergy. I have always thought that he might

have aspergers if he didn't communicate so well. He is very verbal, was an early

reader and accepts social cues very well. Did your child with aspergers do

these things? I appreciate the feed back so much! Thanks!

[Guest guest]

Corrine,

Sounds like OCD to me too, but whatever it is or isn't, it's good you have

decided to go to your family doctor. Early diagnosis is always beneficial with

OCD, Autism, Asperger's, etc. If you choose to find a therapist, perhaps

calling him or her " Coach " (as in life coach) might help your son feel more at

ease. Good luck!

Cheri

> >

> > Thank you so much for your kind responses. They mean so much to me. I will

make an appointment in the morning with our pediatrician and see what steps we

need to take.

> >  

> > Misty, he has a wheat and soy allergy. I have always thought that he might

have aspergers if he didn't communicate so well. He is very verbal, was an early

reader and accepts social cues very well. Did your child with aspergers do

these things? I appreciate the feed back so much! Thanks!

>

[Guest guest]

Corrine, well I actually didn't get him evaluated until 8th grade! I always

felt he had some autistic signs/traits when he was real young. I didn't know

then about Aspergers.

I felt he didn't have " enough " traits to be autistic but that he had some

traits. So I just worked with him from that view. He had some black/white

thinking, he learned ALL about sarcasm from me, I tried to guide with social

skill stuff.... Luckily he was doing well in school grade-wise, in regular

classes. (gifted classes too some)

I guess he was in middle school when I first learned about Aspergers. But I

still didn't know where I'd go to see about it at his age. Anyway, finally

learned of a place later, but waited. I had heard of that place, but thought

they only did young kids! Duh! Anyway, what with his standing out even more at

this age and getting ready for high school soon, I decided to pursue it, wanted

it to use if needed for school reasons (social issues and any classroom type

problems with work).

But growing up, I just worked with him on things as they came up, best I could.

We were lucky that he didn't really need school supports due to the Aspergers

(tho could have used some social help if they offered any). When OCD began in

6th grade really bad, it did affect school work (erasing, not being a able to

write, his writing actually changed to illegible - thus that dysgraphia

diagnosis).... That's the short version. So we set up a 504 Plan with the

school (similar to IEPs) and got quite a few accommodations for him regarding

school & work and that really helped us through the tough OCD times.

There are a few other parents here that deal with both OCD and Aspergers, they

can probably offer ideas here too. Our school system was so poorly set up, when

was young, for Aspergers that I don't think he'd have benefitted from

the diagnosis then. School has some along further since then, thankfully!

If you see your son is really struggling with his schoolwork due to his OCD,

then you may want to pursue the diagnosis for that reason also, and then see

about an IEP or 504 Plan for school. It took much longer to get work

done, so we had in his Plan that he could turn in work late with no grade

penalty, I could write for him when needed...things like that.

>

>

[Guest guest]

Yes, most kids with Asperger's are early readers (one of my daughters began at

age 2 -3)..  They are VERY verbal children.. There is usually no speech delay

with Asperger's and they tend to talk too much sometimes, LOL.. I have 3

daughters with Asperger's.. Two of them talk too much and one of them is

selectively mute!  It really varies from child to child, but they generally

talk

quite a bit and they talk early as well as read early (Though my 7yr old is a

struggling learner and was slow learning to read).. It really varies from child

to child.

As for the social cues.. That could change over time.. Just watch

him.. My girls

seemed quite normal (socially) when they were kindergarten age (not much that I

noticed anyway).  The social issues tend to surface more around age 8-9 and

then

they get really bad right around junior high age.  My 13yr old daughter with

Asperger's still does quite well socially.. she has quite a few friends and she

is witty and outgoing..  She speaks like she is 30, writes fabulous fiction,

and

has read more books than probably any kid in the state.. But her emotions are

like a 7yr old when she gets upset, her fine motor skills are like a 9yr old,

and she hyperfocuses on her interests (reading and writing her books) so much

that it's hard to pull her away from them to do anything else (shower, eat,

school, etc.).  She wasn't like this at age 5 though.  The only thing I

noticed

at age 5 was that she had sensory issues, was a picky eater, was very talkative

and outgoing, had a *few* OCD-type issues, a HUGE imagination, and was VERY

smart (gifted, in fact)..

Other signs to watch for (for Asperger's) would be repetitive movements (such as

rubbing hands together over and over or spinning or chewing or tapping, etc.)

and/or hyperfocusing on certain topics of interest such as trains or a certain

animal or even words (hyperlexia, which is what my 13yr old has).. My now 7yr

old daughter played only with dinosaurs from the time she was two years old. 

She played with them appropriately like a normal child would.. But that was

pretty much ALL she was interested in for years.  I swear, we own every

dinosaur

this side of extinction.. And she knows what they are all called, how they eat,

when they lived, etc.  My daughter who is selectively mute never had a

hyperfocus interest as a younger child (though she does now at age 10) but she

did have repetitive OCD-type behaviors that qualified her for Asperger's.  It

really varies with each child.. They are all so different.

Anyway, I'm not saying your son HAS Asperger's.. Just saying to watch for signs

over the years as he could be a young Aspie.

We (all of my kids and me) also have the wheat allergy (celiac) and my 7yr old

can't have casein or soy either.  Her behavior skyrockets if she has ANY of

those.. She is a VERY intense child as it is and when she has any of her

forbidden foods it sends our entire family into a whirlwind of unbelievable

behaviors.. severe OCD, stimming, hyperactivity, etc. is all increased by

1000%..  It's nightmarish for us!  My other Aspies are not so intense and do

not

have these increased behaviors with the foods, but they do have other symptoms

such as headaches, diarrhea, moodiness, etc.

At what age did you discover the allergies and remove the foods?  We removed

gluten when my youngest child (my only boy) was around 2 1/2 and he is my least

affected child.. I would say he doesn't have any OCD or Asperger symptoms..

Maybe some *slight* sensory issues, but that's it.  All three of his older

sisters have OCD and Asperger's.. I wouldn't say that gluten *caused* the

Asperger's and OCD, but I do think that there is some sort of connection.

Misty

 

________________________________

To:

Sent: Tue, March 22, 2011 8:11:51 PM

Subject: Re: New to group

 

Thank you so much for your kind responses. They mean so much to me. I will make

an appointment in the morning with our pediatrician and see what steps we need

to take.

 

Misty, he has a wheat and soy allergy. I have always thought that he might have

aspergers if he didn't communicate so well. He is very verbal, was an early

reader and accepts social cues very well. Did your child with aspergers do

these

things? I appreciate the feed back so much! Thanks!

Subject: Re: New to group

To:

Date: Tuesday, March 22, 2011, 4:55 PM

 

Sounds like a mixture of OCD, anxiety, rigidity, and sensory issues.  Keep an

eye on how he does socially over the next few years.. You may be dealing with

something more than just OCD..  My kids were later diagnosed with Asperger's

after having a similar presentation as your son around that age..  They were

fairly social at that age and did well aside from the sensory and OCD issues..

As they got older, the social issues became more apparent. 

What are his food allergies?  My kids also have allergies and sometimes it's

all

related.

Misty

________________________________

To:

Sent: Tue, March 22, 2011 4:06:51 PM

Subject: New to group

 

Hi, My name is Corrine, and I am new to this group. I am the mother of two

wonderful little boys. My oldest is 5 years old, and showing signs of OCD.

He first exibited ocd type behaviors around the age of 3, we spoke with our

pediatrician and looked into having him officially diagnosed and I just couldn't

do it.

When the behaviors continued I once again thought about having him diagnosed and

at that time he was diagnosed with a food allergy and I decided to just handle

that first and wait.

He is now five. I think that not having him looked at as of now is partially

because I am afraid that they will tell me that he is ocd, and partially because

I don't want him to feel like their is something wrong with him. I just don't

know what to do. He is in kindergarten this year and has friends and behaves

himself. He is just a great kid! At the same time the little things he does are

very concerning. I would love advice, I feel lost.

This is a list of his most frequent behaviors,

Hand washing, tags on clothing, tapping things a certain number of times, not

wanting to be kissed, wiping his bottom a certain number of times after using

the bathroom, not using the restroom in his kindergarten class because other

children have touched it, he is very critical of himself, he is over serious,

very responsible, he is always right on top of me whatever I am doing, won't he

eat certain foods that are sticky, can not stand to be dirty, repeats

directions, asks the same question over and over again, he erases his work in

class over and over again. He will have to start all over again on anything even

if it is just for fun if he makes any mistake.

Are these things considered ocd? Should I have him evaluated? Thanks so much!

[Guest guest]

HI, Corrine~ Welcome to the group! I hope you will find it as helpful as I do!I

don't respond often,.....because most of the time I feel like I am still on the

learningend of ALL OF THIS!! :0)BUT.... your post hit So close to home. My Caleb

wasn't much older than your sonwhen he first began " symptoms " that seemed to be

" ocd-like " . I first tried to convince myself that it was a " phase " that he was

going through...Though,he was myfourth,and every maternal instinct I had

screamed out differently.But his ocd(and we now have an official diagnosis)

would seem to fade and come back stronger and change symptoms-which I now know

is common. One day it dawned on me..as I was having a heart to heart with my

teen-agers re-garding their impatience toward Caleb and his rituals, and I  said

to them, " If you thinkits hard for you guys to deal with, imagine what it must be

like to be him,Think how miserable that must feel! " And as I heard myself say

the words, I

realized I was being unfair to him,by not taking that first terrifying step

into that world of " psychiatry " and what is pandas and what is food allergies and

what is ocd and what is aspergersand God forbid that doesn't even begin the

scary questions of MEDICATIONS???????  BUT...I say all of that to say this.: If

I had it to do all over again, Knowing what I know now, I would hope that I

would gather up the strength and courage to do what I neededdo for my son a lot

sooner than I did the first time around! Of course, WE ALL KNOW..hindsight is

20/20! I just feel like Caleb did a lot of needless suffering and  we will never

know how much easier his therapy may have gone 2-3 years ago!?!Also, I don't

know how all young kids are.. but Caleb ALREADY felt like therewas something

wrong with him..that nobody else did things like him..etc..and seeing his

therapist,and putting a name to ocd and learning about it ,..I thinkactually

gave him some

comfort!Anyway.. Like I said..I still have a lot to learn ....But that was how

it all seemed to unfold for us. The only thing I think I've figured out for

sure...Is that if it is OCD,.....It's definitely not going to just disappear! It

can appear like magic,but ...UNFORTUNATELY, I haven't heard ANY stories of it

leaving the way it comes!

Milissa W. Elliott

Subject: New to group

To:

Date: Tuesday, March 22, 2011, 9:06 PM

Hi, My name is Corrine, and I am new to this group. I am the mother of two

wonderful little boys. My oldest is 5 years old, and showing signs of OCD.

He first exibited ocd type behaviors around the age of 3, we spoke with our

pediatrician and looked into having him officially diagnosed and I just couldn't

do it.

When the behaviors continued I once again thought about having him diagnosed and

at that time he was diagnosed with a food allergy and I decided to just handle

that first and wait.

He is now five. I think that not having him looked at as of now is partially

because I am afraid that they will tell me that he is ocd, and partially because

I don't want him to feel like their is something wrong with him. I just don't

know what to do. He is in kindergarten this year and has friends and behaves

himself. He is just a great kid! At the same time the little things he does are

very concerning. I would love advice, I feel lost.

This is a list of his most frequent behaviors,

Hand washing, tags on clothing, tapping things a certain number of times, not

wanting to be kissed, wiping his bottom a certain number of times after using

the bathroom, not using the restroom in his kindergarten class because other

children have touched it, he is very critical of himself, he is over serious,

very responsible, he is always right on top of me whatever I am doing, won't he

eat certain foods that are sticky, can not stand to be dirty, repeats

directions, asks the same question over and over again, he erases his work in

class over and over again. He will have to start all over again on anything even

if it is just for fun if he makes any mistake.

Are these things considered ocd? Should I have him evaluated? Thanks so much!

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[Guest guest]

Hi, Corrine. Welcome to the group. )

Our son is an only child, and he still " somehow " knew he was different, that

something wasn't right. One day, when he was maybe 8 or 9, he came to me and

started crying. . Telling me he thought he was crazy. It broke my heart. I had

no idea that he felt different from others.

We didn't know it was OCD at the time, but knew he was a quirky child with

anxiety issues.

For him, to put a " name " to it, and to find out that MANY others have it too,

made him feel " less " strange.

Also, I would encourage you to get a diagnosis, and if it is OCD, find someone

who works with young children using CBT/ERP (cognitive behavioral therapy /

exposure and response prevention) therapy.

Young children respond very well, and if they work on OCs, before they become

ingrained, they are easier to overcome.

Glad you found our group.

BJ

>

> Hi, My name is Corrine, and I am new to this group. I am the mother of two

wonderful little boys. My oldest is 5 years old, and showing signs of OCD.

>

> He first exibited ocd type behaviors around the age of 3, we spoke with our

pediatrician and looked into having him officially diagnosed and I just couldn't

do it.

>

> When the behaviors continued I once again thought about having him diagnosed

and at that time he was diagnosed with a food allergy and I decided to just

handle that first and wait.

>

> He is now five. I think that not having him looked at as of now is partially

because I am afraid that they will tell me that he is ocd, and partially because

I don't want him to feel like their is something wrong with him. I just don't

know what to do. He is in kindergarten this year and has friends and behaves

himself. He is just a great kid! At the same time the little things he does are

very concerning. I would love advice, I feel lost.

>

>

> This is a list of his most frequent behaviors,

>

> Hand washing, tags on clothing, tapping things a certain number of times, not

wanting to be kissed, wiping his bottom a certain number of times after using

the bathroom, not using the restroom in his kindergarten class because other

children have touched it, he is very critical of himself, he is over serious,

very responsible, he is always right on top of me whatever I am doing, won't he

eat certain foods that are sticky, can not stand to be dirty, repeats

directions, asks the same question over and over again, he erases his work in

class over and over again. He will have to start all over again on anything even

if it is just for fun if he makes any mistake.

>

> Are these things considered ocd? Should I have him evaluated? Thanks so much!

>

[Guest guest]

hi corrine

im so sorry to hear about your son but i just want to tell you that what have

you described it is ocd, my son does the same things and he is diagnozed with

ocd, im going through hard times, but i wish you wont go through the same

thing...ocd is a monster i think that it is the worst thing that could happen to

a human being...but what i advice you to do is please go and get some help, ur

son is still young and there is hope that with help he will improve,,,,but i

have never heard a case when it is all gone...people who have it , they live but

they suffer during their lives, how bad is this, and how hard is for mothers to

see their children suffer...may GOD help all those children who are suffering

and may GOD help all those mothers who sometimes feel that that they cant cope,

like i do too...wish you all the best...

love ida

To:

From: thecorrineadams@...

Date: Tue, 22 Mar 2011 21:06:51 +0000

Subject: New to group

Hi, My name is Corrine, and I am new to this group. I am the mother of two

wonderful little boys. My oldest is 5 years old, and showing signs of OCD.

He first exibited ocd type behaviors around the age of 3, we spoke with our

pediatrician and looked into having him officially diagnosed and I just couldn't

do it.

When the behaviors continued I once again thought about having him diagnosed and

at that time he was diagnosed with a food allergy and I decided to just handle

that first and wait.

He is now five. I think that not having him looked at as of now is partially

because I am afraid that they will tell me that he is ocd, and partially because

I don't want him to feel like their is something wrong with him. I just don't

know what to do. He is in kindergarten this year and has friends and behaves

himself. He is just a great kid! At the same time the little things he does are

very concerning. I would love advice, I feel lost.

This is a list of his most frequent behaviors,

Hand washing, tags on clothing, tapping things a certain number of times, not

wanting to be kissed, wiping his bottom a certain number of times after using

the bathroom, not using the restroom in his kindergarten class because other

children have touched it, he is very critical of himself, he is over serious,

very responsible, he is always right on top of me whatever I am doing, won't he

eat certain foods that are sticky, can not stand to be dirty, repeats

directions, asks the same question over and over again, he erases his work in

class over and over again. He will have to start all over again on anything even

if it is just for fun if he makes any mistake.

Are these things considered ocd? Should I have him evaluated? Thanks so much!