Barbara

[Guest guest]

I am no fan of cold weather, by a long shot! Too bad it's not

supposed to get cold enough to freeze, or we might get out of

work/school tomorrow for an ice storm since it's also rainy.

> Hey, a punching bag sounds like a good workout!!!

>

> It was 80* here again today. I was telling Phill earlier that I

> went and walked on the beach after the pounding that I put on my

legs

> this morning. It was soooooooo invigorating!! ahhhhhhhhhhhh I

got

> a little sun on my face too.

>

> It did start getting cloudy this afternoon, we're supposed to be

> getting some rain later today and tomorrow, gettng cooler friday

with

> highs in the upper 60's. I say that I want cold, although I really

> don't. I could, however, visit Gayle in Montana if I really wanted

> cold:)

>

> LB

> fl

> ~~Brought to you by the number " 10 " ~~

[Guest guest]

Scuse me!! Where are you located again??

LB

fl

~~Brought to you by the number " 10 " ~~

> > Hey, a punching bag sounds like a good workout!!!

> >

> > It was 80* here again today. I was telling Phill earlier that I

> > went and walked on the beach after the pounding that I put on my

> legs

> > this morning. It was soooooooo invigorating!! ahhhhhhhhhhhh I

> got

> > a little sun on my face too.

> >

> > It did start getting cloudy this afternoon, we're supposed to be

> > getting some rain later today and tomorrow, gettng cooler friday

> with

> > highs in the upper 60's. I say that I want cold, although I

really

> > don't. I could, however, visit Gayle in Montana if I really

wanted

> > cold:)

> >

> > LB

> > fl

> > ~~Brought to you by the number " 10 " ~~

[Guest guest]

Houston TX. Just down I-10 from you on the Gulf, which is why I

thought you might be having some of this cold weather too.

> Scuse me!! Where are you located again??

>

> LB

> fl

> ~~Brought to you by the number " 10 " ~~

[Guest guest]

Oh it was great! Definitely enough to satisfy any sweet tooth for at

least a week, if not all the way to Christmas!

> But wasn't it delicious while you were eating it!!! I'm telling

you - the free day is probably a BIG reason why I could stick to BFL

so well.

>

> Sara

[Guest guest]

Barbara

Only you know what is best for your mom. Please don't feel selfish for

wanting to do what is in your heart. The time may come when you will

need to turn to meds., but for now, if your mom asking for her deceased

mother is the worse it gets, I would feel lucky.

In redirecting, have you tried telling your mom that her mom is on her

way, just to be patient. Or tell her that her mom is busy at the

moment.

I wish I had more help to offer. Please do keep us posted.

My prayers are with you.

Sandie

Des Moines, IA

[Guest guest]

--- Barbara Moroz wrote:

> Hi Everyone,

>

> I just need to vent from frustration here. I am

> having a hard time. My husband and I are not doing

> well. I am still not making any money and just feel

> so down. Like I am in some kind of a rut and can't

> get out of it.

> I feel like I do the same things over and over again

> and cleaning house, washing dishes..all that

> crap...doesn't make me feel like I have much of

> life.

>

> My life revolves around constantly taking care of

> someone or something with absolutely no time to

> myself. I feel like I am just becoming one with the

> walls of my home and have no time or anything to

> myself, nothing for me to have to myself like a

> hobby

> or doing anything that I would enjoy because of my

> taking care of everyone and everything.

> It just gets really hard sometimes. I feel like I

> need some kind of a change but I don't know what. I

> wish I had more help around here, but I know my

> husband won't help. It just gets to be a lot

> between

> the stress of the relationship, worrying and money

> and

> then taking care of everything with no time to take

> care of myself.

> Thanks for listening.

> Barbara

>

>

>

>

>

______________________________________________________

>

> Yahoo! for Good

> Donate to the Hurricane Katrina relief effort.

> http://store.yahoo.com/redcross-donate3/

>

>

[Guest guest]

--- Barbara Moroz wrote:

> Hi Everyone,

>

> I just need to vent from frustration here. I am

> having a hard time. My husband and I are not doing

> well. I am still not making any money and just feel

> so down. Like I am in some kind of a rut and can't

> get out of it.

> I feel like I do the same things over and over again

> and cleaning house, washing dishes..all that

> crap...doesn't make me feel like I have much of

> life.

>

> My life revolves around constantly taking care of

> someone or something with absolutely no time to

> myself. I feel like I am just becoming one with the

> walls of my home and have no time or anything to

> myself, nothing for me to have to myself like a

> hobby

> or doing anything that I would enjoy because of my

> taking care of everyone and everything.

> It just gets really hard sometimes. I feel like I

> need some kind of a change but I don't know what. I

> wish I had more help around here, but I know my

> husband won't help. It just gets to be a lot

> between

> the stress of the relationship, worrying and money

> and

> then taking care of everything with no time to take

> care of myself.

> Thanks for listening.

> Barbara

>

>

>

>

>

______________________________________________________

>

> Yahoo! for Good

> Donate to the Hurricane Katrina relief effort.

> http://store.yahoo.com/redcross-donate3/

>

>

[Guest guest]

I can relate to every word you're saying. My husband

has Alzheimer's. I've found that I have to force

myself to get out and take time for myself. Otherwise

I get so depressed that I feel like life isn't worth

living and I snap at my husband who really can't do

anything about the way he's acting.

Go for a walk. Read a book. Let the house get dirtier.

It can't need cleaning every minute. Believe me, it's

hard to take a break, but I've learned that if I

don't, I can't function and if I can't function,

nothing ever gets done. My husband can't contribute

very much to helping around the house. So " if it's

going to be, it's up to me. " But there's no me unless

I take time out for me.

So what are you going to do for yourself on Saturday

Barbara? And what about Sunday? I think it would

help you if you jotted down a few things that you

enjoy that don't involve money. Reading is free.

Walking is free. Looking at or listening to birds is

free. What about going to the library and taking out

books or tapes from the humor section. I took Mel

annd Carl Reiner's 2,000 year old man CD's out

of the library. Not every joke was funny. But there

were some that did make me smile or laugh. It helped.

Do you have a friend nearby that you could get

together with? Do you knit? I don't know anything

about you. SO I do't know what you like to do. Taking

time for yourself is essential to living. Remember,

you are a human BEING, not a human DOING.

Hope I've convinced you to take care of you. You are

the only one who can do that? How about a bath? That

can be really pampering.

OK, I " m stopping the lecture now. Hope the

combination of venting and taking time for you

tomorrow and Sunday helps you feel better.

Sheila

--- Barbara Moroz wrote:

> Hi Everyone,

>

> I just need to vent from frustration here. I am

> having a hard time. My husband and I are not doing

> well. I am still not making any money and just feel

> so down. Like I am in some kind of a rut and can't

> get out of it.

> I feel like I do the same things over and over again

> and cleaning house, washing dishes..all that

> crap...doesn't make me feel like I have much of

> life.

>

> My life revolves around constantly taking care of

> someone or something with absolutely no time to

> myself. I feel like I am just becoming one with the

> walls of my home and have no time or anything to

> myself, nothing for me to have to myself like a

> hobby

> or doing anything that I would enjoy because of my

> taking care of everyone and everything.

> It just gets really hard sometimes. I feel like I

> need some kind of a change but I don't know what. I

> wish I had more help around here, but I know my

> husband won't help. It just gets to be a lot

> between

> the stress of the relationship, worrying and money

> and

> then taking care of everything with no time to take

> care of myself.

> Thanks for listening.

> Barbara

>

>

>

>

>

______________________________________________________

>

> Yahoo! for Good

> Donate to the Hurricane Katrina relief effort.

> http://store.yahoo.com/redcross-donate3/

>

>

[Guest guest]

Hey Barbara!

Technology is a wonderful thing!!!

My surgery is on Monday: This coming Monday!! Almost there! The pain is

sooooo bad today that my entire lower

extremities are just throbbing.....the right one is, well ,broken as we know

and the left one is tired of picking up all the slack!! I am sure I walk too

much, but, being a Physical Therapist, I am ,one: not very compliant, and, two:

know the importance of movement. AND, being type A, like most of us here, I

don't know when to stop!! I am looking forward to the PT in the hospital...the

therapists are all friends of ours and we have a good time together! The doc

prescribed homehealth PT after my last THA in March. The PT came out twice and

that was that....I guess he figured I knew enogh to rehab on my own....I do, but

the encouragement would have been nice. Anyway, my elbows....how to

explain....an OTR friend of ours coined the term " fallen " elbows. Normally,

there is a straight plane level from the Olecranon

Procees to the wrist (Styloid Process of the Ulna)....My line runs at an

oblique with the Olecranon quite a bit lower....blew my mind first time I saw

this in a mirror! It is apparently common to RA patients......The Decub's have

mostly closed. I've been very careful not to rest on my elbows.....I too have

performed wound care on folks with decub'c to the bone....especially, Sacral.

And, no, i'm not diabetic. I think it's just more of the effects of

Prednisone.....I bruise and " slice " much easier than ever before, and, the

healing takes so much longer. In fact, my surgeon told me that the delayed

healing would be my biggest surgical side effect.

Ah the joys of AOSD and the Meds.!! lol. Anyway, it is so good to hear from

you again!!

I certainly appreciate your prayers and know that you are in mine!!!

God Bless you!

Love ya , my friend!

Larry

__________________________________________________

[Guest guest]

Hi Larry

I am responding to your comments about your MRI. I also recently had an MRI

with some 'small lesions' that could be demyelinating in nature. I've seen

a neurologist and he doesn't think it's MS (thank goodness because I agree

with you I'd rather have Still's any day than MS). Anyway, I'm getting a

referral to another neurologist because he told me he doesn't know what my

problem is.

I didn't think that stroke shows up as demylinating on MRI??? Though I'm

not a neurologist, nor a radiologist so I don't know, but that struck me as

odd. I pray for you that you don't have MS or any other bad neuro

demyelinating disease creeping up. It's scary, I know. Keep me posted ok?

Cammie

_________________________________________________________________

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[Guest guest]

I have been doing a literature review regarding Still's and came

accross two abstracts that discuss lesions associated with Still's. I

have included some of the info in case you want to discuss it further

with your Rheumatologist.

According to Dr. T. Shimohata et. al, " ...Although the precise reason

for the MRI lesions was unclear, we thought they were CNS

manifestations of Still's disease. We suggest that AOSD is one of the

causes of focal CNS involvement in young adults, particularly who has

a history of fever of unknown origin. "

The other refered to Still's possibly being a source of aseptic

meningitis.

Re: Barbara

I also have lesions in my brain ( 9 to be exact ) my neurologist

ruled out

MS after having a lot of tests done. He concluded the lesions are

inflammation caused by stills.

Brett

[Guest guest]

Hiya Barbara

Good to see you pop up - was thinking of you and your newly banded 'friend', hope that is going well.