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Hi,

I have been a little quiet lately. I am flaring with the dragon and fibro.

And battling with a Dr. who is so wishy washy I'm surprised his wife can

stand him!

I have fired him and seeking a new Dr. And I did not take the drug he

prescribed for Fibro--Requip. It is for treating restless leg syndrome.

Hello Dr? I don't have this--yet.

I hope everyone is able to have low pain days and bring moments to make your

heart glow.

How many here have noticed the sun being a factor in feeling worse with this

stuff? I notice I hurt more when I am out in the sun a lot even with sun

screen

on.

Striving for low pain days...

, Oregon

--

SPEEDY :-)

Meds:

MTX 15 mg; Prednisone 5mg; Leucovorin 5 mg; Armour Thyroid 60 mg

Supporters:

MSM; DHEA 25 mg; Omega3 fish oil 8 daily; Vit. C; Vit. D; B-Complex; Vit

B-12;

Lithium Ortate; Osteo Comlex; Glucosamine & Chondroitin; and Essential

Minerals, AND cALCIUM 1500 mg

" Love endures all things. "

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Guest guest

Hiya in OR,

I know what you mean about plodding along. I really hope you find a

new doctor quick - and a good one at that! Keep us posted.

Regarding the sun, I don't notice that I feel particularly worse after

being in the sun, but it would make sense if you do. Don't people

with Lupus have issues with being in the sun, not just for their skin,

but making them feel overall worse?

Hope you get to feeling better soon,

Houston

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Guest guest

Hi ,

I hope your search for a new Dr. goes well!

I can barely tolerate the sun at all. It seems after 10 minutes of being in it

I feel the effects not so much achy but just yucky & right now we are getting

plenty!

Chris

KC wrote:

Hi,

I have been a little quiet lately. I am flaring with the dragon and fibro.

And battling with a Dr. who is so wishy washy I'm surprised his wife can

stand him!

I have fired him and seeking a new Dr. And I did not take the drug he

prescribed for Fibro--Requip. It is for treating restless leg syndrome.

Hello Dr? I don't have this--yet.

I hope everyone is able to have low pain days and bring moments to make your

heart glow.

How many here have noticed the sun being a factor in feeling worse with this

stuff? I notice I hurt more when I am out in the sun a lot even with sun

screen

on.

Striving for low pain days...

, Oregon

--

SPEEDY :-)

Meds:

MTX 15 mg; Prednisone 5mg; Leucovorin 5 mg; Armour Thyroid 60 mg

Supporters:

MSM; DHEA 25 mg; Omega3 fish oil 8 daily; Vit. C; Vit. D; B-Complex; Vit

B-12;

Lithium Ortate; Osteo Comlex; Glucosamine & Chondroitin; and Essential

Minerals, AND cALCIUM 1500 mg

" Love endures all things. "

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  • 1 year later...

Hi Rob,

I am so happy that you are enjoying life to the max - you deserve it!! Lar

will keep you on the right track health wise - trust you to pick a fitness

freak!!!!!

Look forward to seeing you soon.

Elaine

>-- Original Message --

>To: <SydBand >

>

>Date: Tue, 20 Nov 2007 06:49:45 +1100

>Subject: Checking In

>Reply-To: SydBand

>

>

>Hi Everyone

>Just a very quick hello, to let you all know I am still alive and kicking

>and in fact on top of the world lol

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Rob, I'm sooooo glad life is being good to you - finally :-)

Looking forward to seeing you on Sunday.

BIG hug,

>

> Hi Everyone

> Just a very quick hello, to let you all know I am still alive and

kicking and in fact on top of the world lol.... The Meneire's Disease

still gives me issues at times, who needs an amusment park ride when

my balance is as it is................... getting in and out of bed

some days is like a trip on any of the Roller Coasters on Magic

Mountain....

>

> It is lovely listening to people's self esteem growing, such as

's you go get em..... Anne sorry to hear about your Aunty,

just know the thoughts of all of us are here with you. Also welcome

to any new members, I cannot keep up now a days.....

>

> I've not been able to write much of late, been a busy little beaver

this past 2 months, I've had so many Christmas things to go to, plus

I now spend a lot of time with my friend Lar in Swansea. It seems so

funny but I was a Swansea / Blacksmith lad in my childhood, having

gone to Swansea High, but lived oppositite the beach at Blacksmith. I

left the area when my mum died, now I've returned in a sort of a way,

to my roots, so to speak.......... No pun intended...... OK Mel, Nic

and ............... I know what you 3 are like lol......

>

> I slapped myself around the other week and have since been much

more " At One WIth My Band " I am intending to get the last of what I

have to lose finally off, I've also been to the gym just up the road,

it is a quieter gym, than West's Balance ever was, but it is not a

small one it has 2 heated pools, so now I can find out when the quiet

times are, before I was restricted to when I could attend due to work

commitments, plus it is only $14.95 a week for it all, they also deal

in rehabilitation type fitnes and exercises for the

disabled........... Yep that's me... lol........ Lar wants to beat me

at Squash, I'm getting my funeral organised soon lol...... But it is

all being taken slowly..

>

> I have been doing a lot more walking now, regaining a reasonable

level of stamina, trust me to pick up with someone who is " Fit As "

loves things like bush walking, sailing, hiking, squash, tennis, bike

riding, to name but a few.......... It is as if my own personal

trainer or " torturer " fell out of the sky.................. As for my

view on which is which......... The jury is still out on this

one......... God forbid, we are even going to The Nude Beach on

Friday for the day, I'm still debating as to whether ALL the clothes

will come off.......... Eeeeee Ewwww, but I've been told I am nice as

I am, no imporvments needed...... so that is all the encouragment I

need. I just hope the Japanese Whalers are not off the coast of NSW

or I am at risk of being harpooned... That night I'll be spending at

Swansea, then the Saturday I will head home sleep deprived, as it is

my Christmas Party from work..... god grant me the serenity to accept

and so on....

>

> Some of the people I used to work with may now get the other side

of my tongue, so much has happened to me " Mainly Good " since

retiring, I may not be able to hold my tongue anymore, Thank God I do

not drink, or the added inhibitions of alcohol into the equation,

could have dire consequences, No folks, I'm not worried about the

repurcussions for me, I get my pension, so they cannot sack me from

that, so they can kiss my arse..... I just don't want destroy their

egos...... It is the only thing some of them have................

lol....

>

> Then Sunday I'll be off to Sydney to see you lot at Mel's, I am

training it to Woy Woy, then meeting up with Mazz and Kristie, who is

driving us the rest of the way. So as you can see I am a busy little

lad, in between that I do other things as well, once I get the round

of Christmas and New Year engagements out of the way, my weekends are

going to mainly spent out Swansea way, guess it was time something

good happened my way. Of course, you will still see me, mainly for

duck and mid week things, I'll just get a stern look, when I say our

get togethers are on a weekend day, Lar works Monday to Friday, so

the week days are still good for me............ lol.....

>

> Well I am going to get some new curtains for the lounge room today

from Curtain Wonderland, just going to take over the carpet and paint

samples to see they match. Then I'm coming home to clean the pool, do

the lawns, before it gets hot... and maybe watch a movie on the new

TV.............. when it is.

>

> Life Is Good....................... for this old pensioner.

>

> Hugs To All

> Rob

>

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