Re: Prednisolone's affect on Mood..

[Guest guest]

Mumta my mom was on prednisone for bad asthma/emphysma and she struggled

with the mood thing. We all knew it was the medicine but it was hard on all of

us. Please tell your friend to read this. You both need a hug..it is hard!

Hang in there! Liz NJ

[Guest guest]

Hello All,

just wondering if you guys have had major affects on mood whilst on

prednisolone? are u more emotional? i'm on 20mg at the moment been tapered down

from 80mg had a major flare which affected my lungs and then caused an infection

in my lung too, was horrible. my labs haven't completley returned to normal yet

either and my dr wants me to start on methotrexate soon.

i've been having such an emotional time recently and i'm not coping very well

with certain situations. my partner keeps telling me to 'grow up' i'm 26 years

old but he thinks i'm behaving like a spoilt brat of a kid at times. its

stressing me out and i feel its the steroids affecting my mood and behaviour,

cant wait to come off them and try the methotrxate (am worried about hair loss

though, as i've got fine hair anyway! - its a girl thing!)

let me know if any of you guys are experiencing this!

thanks guys

Mumta

(coventry, UK)

Mumta Bhutta

Send instant messages to your online friends http://uk.messenger.yahoo.com

[Guest guest]

Hi Mumta,

I think the emotional ups and downs you're experiencing can be part of

the prednisone but also just a normal part of having a disease that is

so unpredictable and trying to deal with the stress of that. Pred

makes me quicker to anger--I've definitely noticed that--but I've also

cried more in the past year of having Still's than in the past 20

years combined. Your partner needs to understand that this is a double

whammy. Mine now just double checks with me when I'm behaving in what

he considers an irrational manner... he asks, " Is this the steroids

talking? the Still's talking? or YOU? " When I'm forced to stop for a

moment and consider, sometimes I realize it's really not " me. "

When I added MTX, I did lose some hair--a lot, in fact--and I almost

stopped taking it because of that. But about 4 months into MTX, I

started losing less hair and gaining more. Funny, but the new hair

seems thicker and more curly, so I got a free perm in the process! LOL.

Hope this helps.

in Maine

>

> Hello All,

>

> just wondering if you guys have had major affects on mood whilst

on prednisolone? are u more emotional? i'm on 20mg at the moment been

tapered down from 80mg had a major flare which affected my lungs and

then caused an infection in my lung too, was horrible. my labs haven't

completley returned to normal yet either and my dr wants me to start

on methotrexate soon.

> i've been having such an emotional time recently and i'm not

coping very well with certain situations. my partner keeps telling me

to 'grow up' i'm 26 years old but he thinks i'm behaving like a spoilt

brat of a kid at times. its stressing me out and i feel its the

steroids affecting my mood and behaviour, cant wait to come off them

and try the methotrxate (am worried about hair loss though, as i've

got fine hair anyway! - its a girl thing!)

> let me know if any of you guys are experiencing this!

>

> thanks guys

> Mumta

> (coventry, UK)

>

>

>

>

>

> Mumta Bhutta

>

> Send instant messages to your online friends

http://uk.messenger.yahoo.com

>

>

[Guest guest]

Hi Mumta,

Prednisolone most definitely does affect your moods! When I was on high

doses I could be euphoric one day and suicidal the next. Even now that I'm

on small doses, when I cut I feel down and very irritable for several days

after - ask my other half!

Graham (37)

West Sussex, UK

At 12:24 11/06/2006, you wrote:

>Hello All,

>

>just wondering if you guys have had major affects on mood whilst on

>prednisolone? are u more emotional? i'm on 20mg at the moment been tapered

>down from 80mg had a major flare which affected my lungs and then caused

>an infection in my lung too, was horrible. my labs haven't completley

>returned to normal yet either and my dr wants me to start on methotrexate soon.

>i've been having such an emotional time recently and i'm not coping very

>well with certain situations. my partner keeps telling me to 'grow up' i'm

>26 years old but he thinks i'm behaving like a spoilt brat of a kid at

>times. its stressing me out and i feel its the steroids affecting my mood

>and behaviour, cant wait to come off them and try the methotrxate (am

>worried about hair loss though, as i've got fine hair anyway! - its a girl

>thing!)

>let me know if any of you guys are experiencing this!

>

>thanks guys

>Mumta

>(coventry, UK)

>

>

>

>Mumta Bhutta

[Guest guest]

Mumta;

I was also this way on it ask my ex LOL it is part of the reason she

divorced me as she did not want to try and understand it at all. This is

the reason my doctor also gave me an antidepressant to also take with it

and yes it helped some. But it is normal to be up one day down like mad

the next or even with in hours with prednisone only.

Hugs all

Marty

Re: Prednisolone's affect on Mood..

Hi Mumta,

Prednisolone most definitely does affect your moods! When I was on high

doses I could be euphoric one day and suicidal the next. Even now that

I'm

on small doses, when I cut I feel down and very irritable for several

days

after - ask my other half!

Graham (37)

West Sussex, UK

At 12:24 11/06/2006, you wrote:

>Hello All,

>

>just wondering if you guys have had major affects on mood whilst on

>prednisolone? are u more emotional?

[Guest guest]

I will second this !!!!!!!

Hugs all

Marty

Re: Prednisolone's affect on Mood..

Hi Mumta,

I think the emotional ups and downs you're experiencing can be part of

the prednisone but also just a normal part of having a disease that is

so unpredictable and trying to deal with the stress of that. Pred

makes me quicker to anger--I've definitely noticed that--but I've also

cried more in the past year of having Still's than in the past 20

years combined. Your partner needs to understand that this is a double

whammy. Mine now just double checks with me when I'm behaving in what

he considers an irrational manner... he asks, " Is this the steroids

talking? the Still's talking? or YOU? " When I'm forced to stop for a

moment and consider, sometimes I realize it's really not " me. "

When I added MTX, I did lose some hair--a lot, in fact--and I almost

stopped taking it because of that.

[Guest guest]

Hi Mumta,

I have had the mood swings really bad while I prednisone. It's like another

person is living in my body. Then factor in this dragon on top of that and

we are just " monsters " LOL.

I hope that you can start Methotrexate real soon and drop the prednisone.

This may bring you some relief.

And it is always sad for our loved ones. They don't understand or it's hard

for them to stay supportive when we are snapping at them right and left.

Educating them helps but there will always be the " bad " days for them too.

This is where love really comes into play.

I hope you see better days real soon. Hang in there. This too shall pass.

, Oregon

>

> Hello All,

>

> just wondering if you guys have had major affects on mood whilst on

> prednisolone? are u more emotional? i'm on 20mg at the moment been tapered

> down from 80mg had a major flare which affected my lungs and then caused an

> infection in my lung too, was horrible. my labs haven't completley returned

> to normal yet either and my dr wants me to start on methotrexate soon.

> thanks guys

> Mumta

> (coventry, UK)

>

>

>

> Mumta Bhutta

>

>

--

SPEEDY :-)

Meds:

MTX 15 mg; Prednisone 5mg; Leucovorin 5 mg; Armour Thyroid 60 mg

Supporters:

MSM; DHEA 25 mg; Omega3 fish oil 8 daily; Vit. C; Vit. D; B-Complex; Vit

B-12;

Lithium Ortate; Osteo Comlex; Glucosamine & Chondroitin; and Essential

Minerals, AND cALCIUM 1500 mg

" Love endures all things. "

[Guest guest]

It affects my moods & I am more emotional than before I got ill. I take pred.

..15mg & MTX injecitons as well as Enbrel hoping to get off the pred. ASAP. I

think your partner may have to be patient it may take some time to get

everything in balance. Has he gone to the Dr. with you so he knows what your

dealing with?

Mumta Bhutta wrote: Hello All,

just wondering if you guys have had major affects on mood whilst on

prednisolone? are u more emotional? i'm on 20mg at the moment been tapered down

from 80mg had a major flare which affected my lungs and then caused an infection

in my lung too, was horrible. my labs haven't completley returned to normal yet

either and my dr wants me to start on methotrexate soon.

i've been having such an emotional time recently and i'm not coping very well

with certain situations. my partner keeps telling me to 'grow up' i'm 26 years

old but he thinks i'm behaving like a spoilt brat of a kid at times. its

stressing me out and i feel its the steroids affecting my mood and behaviour,

cant wait to come off them and try the methotrxate (am worried about hair loss

though, as i've got fine hair anyway! - its a girl thing!)

let me know if any of you guys are experiencing this!

thanks guys

Mumta

(coventry, UK)

Mumta Bhutta

Send instant messages to your online friends http://uk.messenger.yahoo.com

[Guest guest]

This is also why I push every one in the house hold getting into

consoling. It affects every one not just the one with stills. The

changes and moods are not always easy to understand on our own so some

times help is needed and most wont get it as there afraid to be labeled

or that they will be known as week or crazy . Well take it from me you

can be labeled even with out it as I was by the ex and courts in Idaho.

In Idaho I was labeled unfit to be a father because of what stills did

to me in the body, what pred and other drugs with there reactions did to

my moods so in the end I even lost any rights to my kids. In Idaho I am

now nothing but a sperm donor and a pay check (child support) to my kids

by the laws and acts of the great state of Idaho. This is also fully

against what there laws in writing say should be done. Kind of say one

thing do another. So from personal experience it is better to get the

help and not need it then need it and not get it. This is also why I do

not and will not trust any thing a government official says or a lawyer.

I now only believe what I see in the end not a single word before.

As some know I was with this person for 26 years and then less then two

with stills she divorced me using my stills against me and the state let

her do that besides a few other unlawful and ethical things

Hugs all

Marty

Re: Prednisolone's affect on Mood..

It affects my moods & I am more emotional than before I got ill. I take

pred. .15mg & MTX injecitons as well as Enbrel hoping to get off the

pred. ASAP. I think your partner may have to be patient it may take some

time to get everything in balance. Has he gone to the Dr. with you so he

knows what your dealing with?

Mumta Bhutta <mumta_bhutta@ <mailto:mumta_bhutta%40yahoo.co.uk>

yahoo.co.uk> wrote: Hello All,

just wondering if you guys have had major affects on mood whilst on

prednisolone? are u more emotional?

[Guest guest]

thank everyone for all your responses I'm not alone in this, Marty i really feel

for you its very sad whats happened to you.

you see my partner and i only started living together the year i was diagnosed

(was diagnosed Feb 05, we got got married and have been living together since

April 05) he says there is only so much he can blame on the medicine because

since we've lived together (for just over a year now) that's how he has known me

to be! (a little unfair) even though before we were married it was was very

different i didn't have the extra hassle of this disease we were carefree and in

love. it is very difficult and maybe your right counselling might be the

solution, or even expressing this point to my doctor then he can explain how

steroids can change your mood and behaviour.

even this yahoo group helps knowing there are people out there going through

what i am, i always read whats going on with everyone, and what i learn here i

will take back and share with my husband!

take care all

Mumta (Coventry, UK)

huntman1958@... wrote:

This is also why I push every one in the house hold getting into

consoling. It affects every one not just the one with stills. The

changes and moods are not always easy to understand on our own so some

times help is needed and most wont get it as there afraid to be labeled

or that they will be known as week or crazy . Well take it from me you

can be labeled even with out it as I was by the ex and courts in Idaho.

In Idaho I was labeled unfit to be a father because of what stills did

to me in the body, what pred and other drugs with there reactions did to

my moods so in the end I even lost any rights to my kids. In Idaho I am

now nothing but a sperm donor and a pay check (child support) to my kids

by the laws and acts of the great state of Idaho. This is also fully

against what there laws in writing say should be done. Kind of say one

thing do another. So from personal experience it is better to get the

help and not need it then need it and not get it. This is also why I do

not and will not trust any thing a government official says or a lawyer.

I now only believe what I see in the end not a single word before.

As some know I was with this person for 26 years and then less then two

with stills she divorced me using my stills against me and the state let

her do that besides a few other unlawful and ethical things

Hugs all

Marty

Re: Prednisolone's affect on Mood..

It affects my moods & I am more emotional than before I got ill. I take

pred. .15mg & MTX injecitons as well as Enbrel hoping to get off the

pred. ASAP. I think your partner may have to be patient it may take some

time to get everything in balance. Has he gone to the Dr. with you so he

knows what your dealing with?

Mumta Bhutta <mumta_bhutta@ <mailto:mumta_bhutta%40yahoo.co.uk>

yahoo.co.uk> wrote: Hello All,

just wondering if you guys have had major affects on mood whilst on

prednisolone? are u more emotional?

[Guest guest]

I fully believe in it now days and to let you also know I am the

happiest I have ever been from child hood with the woman I now share

life with but then again I am not on many drugs just flex and

anti-inflammatory

Hugs all

Marty

RE: Prednisolone's affect on Mood..

Maybe your right counselling might be the solution, or even expressing

this point to my doctor then he can explain how steroids can change your

mood and behaviour.

even this yahoo group helps knowing there are people out there going

through what i am, i always read whats going on with everyone, and what

i learn here i will take back and share with my husband!

take care all

Mumta (Coventry, UK)

[Guest guest]

Dear Mumta;

My family feared for their lives during time on prednisone! In truth,

that's overstating things, but everyone was cautious in my presence. I was very

irritable, had sudden mood swings, cried easily, and tended to be very

unpredictable. This is not at all uncommon. Most patients on steroids for any

period of time are usually on an antidepressant, and often something for sleep.

Prednisone or prednisolone is basically artificial adrenaline. It is produced

by the adrenal glands that sit upon each kidney. Many diseases, like ours,

require us to take this medication in some form and only our body will let us

and our physicians know how much we require.

Among other things, it causes a suppressed immune system, making us more

susceptible to infection, it causes insomnia, weight gain, ulcers, acne, hair

loss on the head, perhaps growth in other unwanted areas, and those awful mood

swings, either the irritable, cranky type or the weepy type. Either way, it is

not your fault, Mumta. One very important thing doctors often don't tell us

that we could share with our family and friends is that we may have these

symptoms. If we could tell them ahead of time, or shortly after beginning the

medication, it may help them understand and learn to cope. If they can't cope

so well, at least they understand it is coming from the drug, and not their

friend/family member!

Flares and infections have had an effect on my lungs, too. I've had

pneumonia so many times! I have terrible asthma, too. After my last round with

pneumonia, my doctor looked at my x-ray after 3 rounds of antibiotics. My lungs

sounded clear. I certainly felt better and could breathe better. What is

evident on x-ray is scarring in my lower lungs from repeated infections. Now I

have a copy of that x-ray that has to be taken to my doctors so I'm not treated

for pneumonia when I don't have pneumonia. It is an x-ray of my lungs with no

infection, looking as healthy as possible. However, if another doctor saw that

x-ray without knowing me or my history, he/she would treat me for pneumonia.

Strange things can happen with this disease and the very best thing we can do is

be our own advocate, learn about our disease and medications.

As for acting like a spoiled brat, I still was a spoiled brat at 26 in many

ways. Some people just happen to be wise beyond their years at 19 or 20, but 26

is still pretty young. It certainly is a young age to be diagnosed with an

autoimmune disease.

Methotrexate is usually the next natural step if things don't resolve with

prednisolone. And yes, hair loss is possible. Actually, I had quite a bit of

hair loss from high doses of prednisone. Being silly, I hoped no one noticed.

I remember getting ready to go out one day and my husband mentioned " maybe you

should wear a hat to protect your scalp since your hair has thinned so much. " I

wanted to cry first, then die of embarrassment! Here I was, hoping no one

noticed and I'm all of 5'0 " tall! Only young children can't see the top of my

head, lol! My hair is very fine, but I am fortunate to have a lot of it.

Still, a lot was lost back then. If it helps, it does grow back. I know that

isn't reassuring right now, but your health is so important. You can make a

fashion statement with hats or scarves. And by the way, it isn't just a " girl

thing. " Men can be very self-conscious about the weight, hair loss, acne, and

become as upset and confused about the mood

swings, too.

Talk to your partner, Mumta. Get him involved in what is going on with

your medications and disease so he understands. I hope this helps and you get

some relief soon.

In Peace,

Barbara Gardner

Ventura, CA

[Guest guest]

Thank u so much Barbara your post is so reassuring and i really appreciate the

information you have shared with me.

Mumta

Barbara Gardner wrote:

Dear Mumta;

My family feared for their lives during time on prednisone! In truth, that's

overstating things, but everyone was cautious in my presence. I was very

irritable, had sudden mood swings, cried easily, and tended to be very

unpredictable. This is not at all uncommon. Most patients on steroids for any

period of time are usually on an antidepressant, and often something for sleep.

Prednisone or prednisolone is basically artificial adrenaline. It is produced by

the adrenal glands that sit upon each kidney. Many diseases, like ours, require

us to take this medication in some form and only our body will let us and our

physicians know how much we require.

Among other things, it causes a suppressed immune system, making us more

susceptible to infection, it causes insomnia, weight gain, ulcers, acne, hair

loss on the head, perhaps growth in other unwanted areas, and those awful mood

swings, either the irritable, cranky type or the weepy type. Either way, it is

not your fault, Mumta. One very important thing doctors often don't tell us that

we could share with our family and friends is that we may have these symptoms.

If we could tell them ahead of time, or shortly after beginning the medication,

it may help them understand and learn to cope. If they can't cope so well, at

least they understand it is coming from the drug, and not their friend/family

member!

Flares and infections have had an effect on my lungs, too. I've had pneumonia so

many times! I have terrible asthma, too. After my last round with pneumonia, my

doctor looked at my x-ray after 3 rounds of antibiotics. My lungs sounded clear.

I certainly felt better and could breathe better. What is evident on x-ray is

scarring in my lower lungs from repeated infections. Now I have a copy of that

x-ray that has to be taken to my doctors so I'm not treated for pneumonia when I

don't have pneumonia. It is an x-ray of my lungs with no infection, looking as

healthy as possible. However, if another doctor saw that x-ray without knowing

me or my history, he/she would treat me for pneumonia. Strange things can happen

with this disease and the very best thing we can do is be our own advocate,

learn about our disease and medications.

As for acting like a spoiled brat, I still was a spoiled brat at 26 in many

ways. Some people just happen to be wise beyond their years at 19 or 20, but 26

is still pretty young. It certainly is a young age to be diagnosed with an

autoimmune disease.

Methotrexate is usually the next natural step if things don't resolve with

prednisolone. And yes, hair loss is possible. Actually, I had quite a bit of

hair loss from high doses of prednisone. Being silly, I hoped no one noticed. I

remember getting ready to go out one day and my husband mentioned " maybe you

should wear a hat to protect your scalp since your hair has thinned so much. " I

wanted to cry first, then die of embarrassment! Here I was, hoping no one

noticed and I'm all of 5'0 " tall! Only young children can't see the top of my

head, lol! My hair is very fine, but I am fortunate to have a lot of it. Still,

a lot was lost back then. If it helps, it does grow back. I know that isn't

reassuring right now, but your health is so important. You can make a fashion

statement with hats or scarves. And by the way, it isn't just a " girl thing. "

Men can be very self-conscious about the weight, hair loss, acne, and become as

upset and confused about the mood

swings, too.

Talk to your partner, Mumta. Get him involved in what is going on with your

medications and disease so he understands. I hope this helps and you get some

relief soon.

In Peace,

Barbara Gardner

Ventura, CA

[Guest guest]

Marty,

I'm sure this was a big contributing factor in my divorce also - still I

must have been hell to live with, I know that even I didn't like me!

Graham (37)

West Sussex, UK

At 19:51 11/06/2006, you wrote:

>Mumta;

>I was also this way on it ask my ex LOL it is part of the reason she

>divorced me as she did not want to try and understand it at all. This is

>the reason my doctor also gave me an antidepressant to also take with it

>and yes it helped some. But it is normal to be up one day down like mad

>the next or even with in hours with prednisone only.

>Hugs all

>Marty

>

> Re: Prednisolone's affect on Mood..

>

>Hi Mumta,

>

>Prednisolone most definitely does affect your moods! When I was on high

>doses I could be euphoric one day and suicidal the next. Even now that

>I'm

>on small doses, when I cut I feel down and very irritable for several

>days

>after - ask my other half!

>

>Graham (37)

>West Sussex, UK

[Guest guest]

Gram:

Ya I was very depressed and hated my self that I know and as you said

most likely hell to live with. In my case I went threw hell with her

when her health was bad and she went off the deep end giving birth to

our son. But the thing that got to me is the better or worse part that I

said but I think that was for gotten. Today I had a reminder of that as

I went and saw my great niece she is also having some health trouble so

she was done here at a children's hospital. She was also a good friend

of my own daughter as they were close in age she is now 14 and looks 17

acts 30. she also can not understand why my daughter has disowned me .

For the last two years not a word any time but I here she remembers he

new step fathers b day and fathers day things like that .well I have my

son we talk all the time and he never forgets and calls me. So in that I

find peace and comfort well sad as it was I can say I am happier then I

ever have been now with she is awesome to the max. Funny thing

along the way to when the ex left me most of my stress left to. Ya think

there may be some thing in that? LOL

Hugs all

Marty

Re: Prednisolone's affect on Mood..

Marty,

I'm sure this was a big contributing factor in my divorce also - still I

must have been hell to live with, I know that even I didn't like me!

[Guest guest]

Hi Marty,

It sure can be hard and I hope that as your daughter grows up she will

realise what she is missing and seek you out again.

I'm very fortunate in that I am on reasonable terms with my ex and get to

have my daughter stay every other weekend, though I wouldn't be able to

manage that without my wonderful partner .

The down side of that is that I still get stress from my ex, though

considerably less now that we don't live together and it is of course worth

it to have my daughter here.

I also find it hard that she calls her stepfather " dad " but I only want

what's best for her so I try not to let it show that it hurts me to think

of him in her life in place of me.

Stay strong Marty, wishing you all the best...

Graham (37)

West Sussex, UK

At 05:09 22/06/2006, you wrote:

>Gram:

>Ya I was very depressed and hated my self that I know and as you said

>most likely hell to live with. In my case I went threw hell with her

>when her health was bad and she went off the deep end giving birth to

>our son. But the thing that got to me is the better or worse part that I

>said but I think that was for gotten. Today I had a reminder of that as

>I went and saw my great niece she is also having some health trouble so

>she was done here at a children's hospital. She was also a good friend

>of my own daughter as they were close in age she is now 14 and looks 17

>acts 30. she also can not understand why my daughter has disowned me .

>For the last two years not a word any time but I here she remembers he

>new step fathers b day and fathers day things like that .well I have my

>son we talk all the time and he never forgets and calls me. So in that I

>find peace and comfort well sad as it was I can say I am happier then I

>ever have been now with she is awesome to the max. Funny thing

>along the way to when the ex left me most of my stress left to. Ya think

>there may be some thing in that? LOL

>Hugs all

>Marty