I think it's time--rant

[Guest guest]

Warning: This is a rant. If you don't want to read it, use the delete key.

I saw my Dr. today. I am so tired of the back and forth he is doing. Now

the diagnosis is " mild " RA with a strong case of Fibro. GRR! He says since I

am having continues pain even on MTX and Prednisone then it is Fibro. He

also mentioned that my labs are always normal for RA. He fails to see any

" arthritis damage " from the X-rays. Yeah. No kidding. Light reflecting off

bone with no details unless it is so severe. The ultra sound showed bone

erosion's which he dismissed. Then he turns around and says I' m a mystery.

I really don't think he knows what to do besides of priding himself over his

book and his " cure " for Fibro.

I walked away from that appointment with a drug for Parkinson's disease that

he claims will help treat Fibro until we can " cure " it with my mind. I don't

think I want to try it let alone take it for months on end.--This is so

depressing when you know something more than Fibro is at play but I refuse

to let this get the best of me. I plan on seeking other forms of treatment.

I'm tired of dealing with a Dr. who is so wishy washy. I am ready to fire

him.

I refuse to see a Dr. who will not listen to my symptoms nor what I have to

say. I have been telling him about the systemic problems I am having and he

says it is not related. What?!? He presses over over my liver and if I say

it's sore he says right away it's fibro. Or if I complain of pain in the

spleen area, he says it's muscles without examining me.

Has anyone ever been told if you respond to Prednisone then it's RA--a form

of RA? He told me this when I first began to see him. Today he did a 180 and

said that I was seeing results because it was Fibro. So, what am I to

believe?

Thank you for letting me rant. I think it's time to fire this guy and find

another Dr--even if I have to travel over 200 miles to do it.

I hope everyone is having low pain days and finding reasons to smile.

, Oregon

--

SPEEDY :-)

Meds:

MTX 15 mg; Prednisone 5mg; Leucovorin 5 mg; Armour Thyroid 60 mg

Supporters:

MSM; DHEA 25 mg; Omega3 fish oil 8 daily; Vit. C; Vit. D; B-Complex; Vit

B-12;

Lithium Ortate; Osteo Comlex; Glucosamine & Chondroitin; and Essential

Minerals, AND cALCIUM 1500 mg

" Love endures all things. "

[Guest guest]

,

Sure does sound like firing time to me. The wishy-washyness would be

what got me the most. Not that we don't expect some discussion of

what is really going on with us, but he sounds a bit unstable about it

all. Sheesh. And most importantly, you are not feeling comfortable

and we must feel comfortable with our doctors and that they have our

best interest in mind. So don't feel guilty about needing to reach

out to another doctor.

And rant all you need hun...we'll listen!

xoxo,

Houston

[Guest guest]

Thank you to everyone of you. It feels so good to know I am not alone and it

isn't in my head.

I have been such a flare and when I thought it couldn't get much worse, I

woke up to so much pain in my left side. Of course the RD doesn't want to

see me and my PCP is out and there is an on-call Dr. who doesn't know what

to do when he sees me. He gives me any drug I name off. Boy, I'd be like a

kid in a candy store if I had a drug problem. LOL.

I hope all of you are having low pain days and finding that bright moment in

your hearts.

, Oregon

>

> Warning: This is a rant. If you don't want to read it, use the delete key.

>

>

> --

> SPEEDY :-)

> Meds:

> MTX 15 mg; Prednisone 5mg; Leucovorin 5 mg; Armour Thyroid 60 mg

> Supporters:

> MSM; DHEA 25 mg; Omega3 fish oil 8 daily; Vit. C; Vit. D; B-Complex; Vit

> B-12;

> Lithium Ortate; Osteo Comlex; Glucosamine & Chondroitin; and Essential

> Minerals, AND cALCIUM 1500 mg

>

> " Love endures all things. "

>

--

SPEEDY :-)

Meds:

MTX 15 mg; Prednisone 5mg; Leucovorin 5 mg; Armour Thyroid 60 mg

Supporters:

MSM; DHEA 25 mg; Omega3 fish oil 8 daily; Vit. C; Vit. D; B-Complex; Vit

B-12;

Lithium Ortate; Osteo Comlex; Glucosamine & Chondroitin; and Essential

Minerals, AND cALCIUM 1500 mg

" Love endures all things. "

[Guest guest]

what drug for parkinson's disease? My labs are normal these days , at

first they weren't. If you have continues pain even with those toxic drugs, I

would stop them too. Are you able to rest? That is very important. I would

only take a medication if I knew it was helping. The exact name of the disease

to me , is not the point. What relieves it is. Sometimes for me it is time

and rest. Let me know how it goes Liz NJ

[Guest guest]

:

Boys are you walking in my shoes or what?

This is also almost word for word what my docs back in Idaho told me

and did to me along with many many other drugs piled on top of it all .

Then I moved to calif and went three years with out any medical coverage

or drugs of any kind. Now the new docs in calif started to say and do

the same thing .I moved again and new docs again. Now they only call it

fibro and I found out kind of why. For billing proposes on my medical

coverage so they get paid by the insurance and I do not get stuck with

the bill. They also never get to see the blood work got nuts like it did

at first no joint damage on x-ray but it is there I know that from the

past . Now I have a internal doc, a rummy, one for eyes ears and trougt

and soon two new one a cardiologist and a palmary doc. all the same

kinds I had before only this time I demand that they work and talk with

each other and every thing gets cleard with my primary and rummy be fore

I let any one do any thing. I will also say some times I did not

understand why they gave me some drugs but after doing a lot of internet

searching and asking here most of the time I did later understand but

from compactions of a drug mix I will never full and blindly trust any

doc . when I question them as to the way how comes and what dose it do

with this or that meaning drugs they get a little upset so I remind them

of what I told them up front and this is what I said / " I have stills

and you may or may not have heard of it but that's what I have .I do not

trust docs because of a prescription drug mix that was bad for me and

almost killed me. I will question every thing you say or give me if you

can not deal with this scrutiny then let me know now so I do not waste

your time or mine as I will be very active in things " well most did not

believe it including the docs I now have but there getting the point and

now work the closest with me I have ever had and it is now apparent they

really are out to help me function and feel better

Hugs all

Marty

I think it's time--rant

Warning: This is a rant. If you don't want to read it, use the delete

key.

I saw my Dr. today. I am so tired of the back and forth he is doing. Now

the diagnosis is " mild " RA with a strong case of Fibro. GRR! He says

since I

am having continues pain even on MTX and Prednisone then it is Fibro. He

also mentioned that my labs are always normal for RA. He fails to see

any

" arthritis damage " from the X-rays. Yeah. No kidding. Light reflecting

off

bone with no details unless it is so severe. The ultra sound showed bone

erosion's which he dismissed. Then he turns around and says I' m a

mystery.

I really don't think he knows what to do besides of priding himself over

his

book and his " cure " for Fibro.

I walked away from that appointment with a drug for Parkinson's disease

that

he claims will help treat Fibro until we can " cure " it with my mind. I

don't

think I want to try it let alone take it for months on end.--This is so

depressing when you know something more than Fibro is at play but I

refuse

to let this get the best of me.