Advice and Help

[Guest guest]

Hello Stills Group. I hope that everyone is doing alright. Can someone help with

meds that may work. I have been going through a very major flare. I have to

believe it is at least partially due to the new injection that my doctor started

me on. It is suppose to help with the total lack of energy. It is once a week.

An intramuscular injection called Glutathione/ATP. I know that I have never

heard of any one else taking this shot. The doctor showed me all kinds of

research that has been done on this amino acid, that is supposed to be in your

cells, that help produce the energy that your body needs. It seems like anything

that I try to do causes a very major flareup. Louise you asked if I would tell

you about this injection if it worked. I don't know if it would cause the same

reaction I feel that it is causing me, but at this point I would not be able to

recommend it. I absolutely do not want to go back on prednisone. This flare is

causing lots of edema and soft-tissue swelling. It has

affected my potassium levels, lots of fever, sweating, chills, and low body

temps. Most all my joints right now are swollen larger and are more painful than

they have ever been before. My whole body is feels like it is on fire inside. I

did go to the doctor about this, but she said this is because my cells are so

depleted. I guess I don't really understand the theory that you have to feel

much worse before you start to get better. It scares me when it starts affecting

my kidneys, lungs and heart even more than it normally does. I have always had

more systemic problems than joint problems. But this flare has got all the

others beat form any that I have had in the past 12 years. I don't really know

what it would be like to not be in a flare, but this is much worse. I am at a

point I do not know what to do anymore. This illness is getting the best of me.

I am in the bed more than anything else. I could use some advice and help. It

would be greatly appreciated. I am miserable. Mandy