Exercise

[Guest guest]

I read the posts on exercise,and I must tell you all that doing

something helps me greatly(endorphins and such...)but maybe also

physically.

I do have more swelling,and sometimes fever, the day after.

(coincidence?) Maybe I need to be real and stop doing Karate-(too much

for a stills-zer??) But- I LOVE it,and feel that I do not want

something ELSE taken away from me.

I am good at it,too-I just received my 3rd green stripe on my belt,from

my Sensei,last week. The mind control helps the pain,for a little

while,also. I am hoping to get better at that part and extend my pain

control.

Thoughts?

sincerely;Bram.

[Guest guest]

I know what you mean Bram about not wanting another thing taken

away. When I had to quit kickboxing, it was one of the most

emotional things I've ever gone through. That may sound silly, but

that is the moment I admitted I had lost control over my body.

Years later I have accepted all of this, but I now look back at that

time and can see the emotional pain I went through.

For me, pushing through exercise is not an option. When i push it

too far, I'm not just a little more swollen or have a fever - I am

almost delirious. My brain does not function right, I can't walk

straight, I run into things, forget to lock the door, can't recall

simple words, sometimes feel like I shouldn't be driving, etc. I am

so heavy and can barely open my eyes and during exercise I yawn

constantly. So for me, it's not a mind over pain issue. I really

wish it was and envy you for being able to do your favorite form of

exericse.

Other than talking to a doctor, my next recommendation for those

attempting exericse is to journal. Write down what you did and how

it affected you later. You'll begin to notice the signs of when you

are pushing too far and learn how far you can go.

Again, I am so jealous you can do your karate. Congrats on the new

belt! Keep it up if you can!

Houston

[Guest guest]

>

>

>

> Re: Exercise

>

> I know what you mean Bram about not wanting another thing taken

> away. When I had to quit kickboxing, it was one of the most

> emotional things I've ever gone through. That may sound silly, but

> that is the moment I admitted I had lost control over my body.

> Years later I have accepted all of this, but I now look back at

that

> time and can see the emotional pain I went through.

>

> I also felt like this when I knew my time hunting and fishing were

gone

> they way I used to do them. For me almost any hunting is gone as the

> guns hurt my shoulder and the walking .nope can not walk miles a

day any

> more lucky some times to push it at a mile if that. The fishing I

now

> have changed no more wondering down streams mile after mile but now

do

> more boat and lake shore fishing in one spot.

> It was hard knowing that only a year before all this I was in the

best

> shape of my life

> Hugs all

> Marty

> _____

>

>

>

>

[Guest guest]

>Soccer would be a bit to strenous I would think. Try yoga, or some kind

of stretching, you have to keep your muscles flexible and mobile. The

more I sit, the stiffer I become.

[Guest guest]

Tai Chi or Qi Gong is wonderful for us..

Re: exercise

>Soccer would be a bit to strenous I would think. Try yoga, or some kind

of stretching, you have to keep your muscles flexible and mobile. The

more I sit, the stiffer I become.

[Guest guest]

Hi, not all of us, I persevered for 5 years with Tai Chi and several

varieties of Chi Gong, at a much higher level of functioning than I am at

now and never got the benefit. What I got was a whole lotta hip and leg pain

and a lot of debility from too much standing work. BTW I was also a yoga

enthusiast since I was 18 (got sick @ 30), went on with that as much as I

could for several years after getting ME but it just wrecked my joints and

muscles. Now I just do a bit of stretching every day based on yoga

principles.

I share this only to show that we are at such various levels of disease, and

that works for one does not for another. I wish I were well enough to

practise either of these. Aylwin

[Guest guest]

Hi , Yes, I have heard of sitting tai chi/chi gong, but it doesn't make

too much sense to me! If it is more about how one runs one's energy, well, I

always had difficulty the tai chi way (feels the wrong way around), and am

much more comfortable doing chakra work. It just feels " right " to me. But I

also get acupuncture, which untangles and strengthens the flow of chi as I'm

sure you know! I also suspect that tai chi was designed and works best for

the male body.I have a friend who is very advanced (or however you say it)

who has found some other women adapting it to be more suitable for women.

It's good to be able to talk about this stuff as well as meds, food etc.

Cheers, Aylwin

" Life is about not knowing, having to change, taking the moment and making

the best of it, without knowing what's going to happen next. Delicious

ambiguity. " Gilda Radner

[Guest guest]

Hey,

I am so frustrated. I can not even think of exercising. Every time I try to

exercise by walking on the treadmill or riding a bike for about 20 minutes to

1/2 hour, I end up in bed for about 3 days (sometimes more). I just found out

that I am diabetic and so I know that I must exercise but having CFS. and

Mercury toxicity makes it virtually impossible.

I get so discouraged because before I was diagnosed with this illness I was

98-102 lbs. I was in a singing contract and was doing showcases for Arista and

Atlantic records. Now I am 148 lbs. and I am only 32yrs. old and 5'2 " so that

is a lot of extra weight to be carrying around. I look at what I have resorted

to and I get so sad. I try not to focus on the past and on the whole I am

optimistic however there are days when I just can't help it. I miss me. I

specifically find that I miss being thin. I am now consumed by thoughts of being

overweight. Day and night, I find myself fantasizing about loosing weight but

don't know how to go about it.

I have tried dieting but I think that my metabolism is now so slow from having

CFS. for 8 yrs. I know that I need more than just a diet. I need to exercise. Is

Tai chi stenuous? Has anyone tried Yoga or water aerobics? I would love to hear

from you guys if you have any suggestions for me. Please let me know anything

that you have found works for you all.

Thank you!

Tina

Aylwin wrote: Hi ,

Yes, I have heard of sitting tai chi/chi gong, but it doesn't make

too much sense to me! If it is more about how one runs one's energy, well, I

always had difficulty the tai chi way (feels the wrong way around), and am

much more comfortable doing chakra work. It just feels " right " to me.

[Guest guest]

There is research that has found that fifteen minute spurts of exercise is

better for you and burns more calories than long workouts. I also have a

treadmill, but no way could i do 20 minutes, I would be in bed also. I walk for

5 minutes four times a day. This is the max I can do without it really getting

me down. Have a bike too but find it hard to do because i have lost a lot of

strength in my legs. Maybe do smaller sessions more times. maybe you could

handle that better.

Have you seen a dietician for your diabeties? i was just diagnosed a month

ago. Everything everyone was telling me to do was basically wrong. It is more

about eating good carbs throughout the day to keep your level where it is

suppose to be.

Vickie

Florentine Mason wrote:

Hey,

I am so frustrated. I can not even think of exercising. Every time I try to

exercise by walking on the treadmill or riding a bike for about 20 minutes to

1/2 hour, I end up in bed for about 3 days (sometimes more). I just found out

that I am diabetic and so I know that I must exercise but having CFS. and

Mercury toxicity makes it virtually impossible.

[Guest guest]

Hi Tina,

I totally understand about the weight stuff being a huge issue. I am

5'1 " and got up to 195 pounds but mostly due to a medication I had to

take. I lost all the weight I gained when I stopped the medication and

changed the way I was eating, but now have put some back on and am at

142. Some days it is the only thing I can think about and other days I

think it is a losing battle anyway so why not just eat what I want

(which is ice cream). As to exercise, I think that you are trying to do

too much all at once. I went to see an exercise MD and also my

naturopath. Between the two it was suggested I buy one of those foot

cycles you can find online or at some stores. There are different ones

and all you need is the metal kind with the tension knob, nothing fancy.

Anyway, I was told to do 1 minute of exercise a day for a week or two.

Then add another minute or just 30 seconds and do that for another week

or two. Otherwise they said I would just have a bad reaction to it.

They also gave me some therabands (different colored elastic type rubber

sheet things). The colors are different tensions. Anyway, I get

nauseous and dizzy standing up or even sitting and do best reclining or

laying down. So I am to tie the therabands to my foot board and do

assorted easy stretches. Again for no more than a minute at a time and

work up gradually with these as well. I have not started yet as I just

am feeling down and lazy and am a great procrastinator. But it is worth

it to try to build up in tiny increments and build up rather than fail

and just give up. I was also told to just do exercise three days a week

and only if it is a " good day " . If I am having a really bad day then no

exercise at all.

I was recommended earlier by my rheumatologist to do water exercise,

very gentle, for my fibro, but I had two issues with that. One I am

extremely temperature sensitive and the water was too cold for me and

caused severe pain in my hands. The other was that the class was 45

minutes long and by the time I got out I was so wiped out that I had to

rest before I could drive home. So, if I could find a warmer pool and

just do part of the class that might be an option down the road. For me

the whole deal of driving there, getting to the locker room, undressing,

showering, class, showering, changing, drying hair, getting back to the

car and then home was just too much for me. Except for the cold,

actually doing the exercise in the pool was actually fine. There are

water aerobics classes sponsored by the arthritis foundation at various

pools. The classes were very inexpensive where I went and the

" aerobics " part of it was really not there unless you wanted to do more.

Mostly it was stretching in the water and walking in the water and not

tons of that either.

Sandrea

Re: exercise

Hey,

I am so frustrated. I can not even think of exercising. Every time I try

to exercise by walking on the treadmill or riding a bike for about 20

minutes to 1/2 hour, I end up in bed for about 3 days (sometimes more).

I just found out that I am diabetic and so I know that I must exercise

but having CFS. and Mercury toxicity makes it virtually impossible.

I get so discouraged because before I was diagnosed with this illness I

was 98-102 lbs.

[Guest guest]

I exercise almost daily (and I say almost because there are just

some days I can't even get up. on those days - there is no exercise

lol) but I do REALLY light things. very low impact.

sometimes I just do stretching-type exercises. sometimes i'll just

sorta " dance " (well okay, I limp around to the beat lol)

I often fall over doing it. which is why sometimes its for 10

minutes. sometimes 30. but just doing something light, that you

enjoy, and to some really great music makes exercising not that bad.

start out slow. when I first became ill, all I could do was

literally raise each leg once - and that was it. and then the next

week - a little more.

just doing SOMETHING not only helps your body physically, but also

gives you a feeling of accomplishment

hope this helps - michele

> Hey,

> I am so frustrated. I can not even think of exercising. Every time

I try to exercise by walking on the treadmill or riding a bike for

about 20 minutes to 1/2 hour, I end up in bed for about 3 days

(sometimes more). I just found out that I am diabetic and so I know

that I must exercise but having CFS. and Mercury toxicity makes it

virtually impossible.

>

[Guest guest]

Tina, I read your posting (about being frustrated with your weight)

yesterday and thought about you most of last night. Then this morning

I read Sandrea's posting.......

I too feel your pain and frustration. I'm 5'3 " and have been thin and

active most of my life. My weight is now about 165 lbs and I hate it

because I believe physically it makes me feel worse than I did when my

weight was lower.

I have talked to my docs about it and they all say....eat healthy and

exercise as best you can. How many times have we all heard THAT??? I

have recently started to curb my calorie intake and cut out " treats " .

It is taking a lot of will power, but I'm determined to reach my goal.

(Which is 5 lbs at a time!) Wish me luck.....

Like Sandrea I have tried water exercise, and also like her, the cold

water made me feel terrible later. The classes weren't very demanding

(they were by the arthritis foundation), but they were to long and the

water was to cold. And finally, like Sandrea, the whole bit of driving,

dressing, etc, was more exhausting than the actual class.

I do want to say though that we are so much more than just our weight.

I know I am the same person whether I am thin or a little thicker. The

illnesses we all have, by necessity, have changed how we see ourselves,

what we are capable of doing, and how others see us too. However, we

are still wonderful, caring, funny people and sometimes we need to be

reminded that we are still loving and lovable. Please don't fall into

the trap of expecting yourself to be able to do what you used to do;

don't compare yourself today to yourself before the illness. It only

brings pain, frustration and sorrow. You are who you are TODAY, enjoy

that person, I'm sure she is very special.

Some of the other postings I have read seem to have really grasp the

most important step, and that is, to do a little bit whenever you can.

A minute or two here and there is better than not doing anything! They

have inspired me to do the same. Even if I can only walk around my

house and then maybe my yard, instead of around the block, I am going

to start today!

B

>

> Hi Tina,

> I totally understand about the weight stuff being a huge issue. I am

> 5'1 " and got up to 195 pounds but mostly due to a medication I had to

> take.

[Guest guest]

Tina,

I know how you feel. I can remember a time when I was so thin that I was

having a hard time finding clothes that fit. Now I seem to be growing

exponentially. I am consumed by the weight gain and the tires around my

middle. 1 1/2 yrs ago, I did Dahn Yoga (energy yoga) for 6 months and felt

great, then I had a bad relapse and kept blacking out and couldn't recover

from the exertion. So, I had to quit. I would love to know what others are

doing. I am 46 next week and really despairing and feel like I have skipped

middle age and gone right into old age.

English

Re: exercise

Hey,

I am so frustrated. I can not even think of exercising. Every time I try

to exercise by walking on the treadmill or riding a bike for about 20

minutes to 1/2 hour, I end up in bed for about 3 days (sometimes more). I

just found out that I am diabetic and so I know that I must exercise but

having CFS. and Mercury toxicity makes it virtually impossible.

I get so discouraged because before I was diagnosed with this illness I

was 98-102 lbs.

[Guest guest]

Right again and can relate,

I never got with the twiggy trend but always went with how I felt and

never saw the beauty of being extremely thin with bulging clavicals,

concave stomachs and boyish form. I feel my best at 175 or so and

I'm fluxuating between 195 and 200. Again, if I can get good days at

this weight...I'm happy! My sister was obcessed with weight and

actually wanted stomach surgery so badly that she taped coins to the

insides of her legs and anywhere else she could hide them upon weight

and they found them. She did not qualify for the surgery but they

said " you must want it bad! " by doing the coin thing so they went on

and falsely noted her weight and did surgery. She looks old and

undweight and wrinkled badly now. Sure taught me something.

>

> Hi Tina, Sandrea and all, well it is the getting ready that stops

me from

> doing many things. Oh how I long for a teleporter a la Star Trek!

That would

> help a lot.Getting ready is too much already but then healthies

often don't

> think of things like the walk from the parking lot, stairs etc.

that can be

> hard to impossible for me.

[Guest guest]

,

I do feel your pain and frustration over not being able to exercise. If I let

it those feelings can cause me the most emotional pain. My weight gain is

certainly due to my sedentary life style now because I eat much less than

anyone I know. I have a family history of large body size. In the past I was

able to control it with my biking and walking. A couple of years ago I finally

gave my bike away. I have often had to stand up to doctors and well meaning

people who want to tell me the solution to my problems is exercise. For me any

exertion will put me down very quickly. I get weak and light headed

immediately. For all of you like this know we can find peace in enjoying what

we can do and accepting what we cannot.

Gentle Hugs From,

Janet

Florentine Mason wrote:

,

I definitely can relate...I feel like I am 32 going on 92! It's sad when your

grandmother gets around better than you do and she is 91. (ha,ha) Friday night,

I went to bed at 9:30 and didn't wake up until 6:45 last night. I couldn't

believe that I lost a whole day (my day off). Then last night I was back in bed

at 11:00pm after only being awake for 4 hours. With how I feel, I just can't

even imagine exercising. It's so frustrating. The only thing I did last night

while I was awake was eat so yes,

[Guest guest]

I am quite concerned about how I look overweight, but the other piece of

it is that above a certain weight I am really physically uncomfortable.

I can lie down but when I sit and my weight sits on the rest of me it

literally is so uncomfortable that it is painful. I don't really travel

anywhere now, but when I did I was so uncomfortable during one plain

trip with the seat being small and having to sit up etc. So for me part

of it is body image, but part of it is that I can't physically adapt

somehow. And it also does increase my fatigue.

Sandrea

Re: exercise

Right again and can relate,

I never got with the twiggy trend but always went with how I felt and

never saw the beauty of being extremely thin with bulging clavicals,

concave stomachs and boyish form.

[Guest guest]

You go girl. You need to get yourself one of those fluffy padded seats

for your bike. Your poor bottom. Keep up the good work.

Mazz

Yoyo Aitcho wrote:

> Ladies, afterall the inspirational talk yesterday... something about

> 7km runs and 1 hour walks etc etc, I was feeling guilty so I just went

> for a bike ride.

>

> Mel I hear you - I HATE exercise also, but I don't have the guts to

> join a gym, not just yet maybe in another10 kgs or so will I have more

> confidence.

>

> The bike ride was so embarressing. I got on the bike (which I bout 2

> years ago and this is my second time on it) and the tyres were so flat

> I was sitting on the rims... My husband nearly pee'd himslef - JERK!!

>

> Anyway, went for the ride, had my IPOD in and I could hear myself

> huffing and puffing over the music!!! hahahaha such a fit soul I am!!

>

> having said that though, that was 10 minutes of exercise I otherwise

> would not have done so yay for me... My backside is killing me though.

> I think that if they want to encourage exercise why make the seats so

> uncomfortable???

>

> now I need a nap I think!

>

> Good luck Mel at the gym!

>

> Yolande xx

>

> ps - thanks for the kind words everyone!!

>

>

>

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[Guest guest]

I hate exercise as well but hey when i cant see the scales moving and

i have been eating all the right things i need to do it,

Its my 3rd week that i am a member of Contours and i go monday to

friday before work and kind of liking it i am getting used to it now

Hope the bike ridding gets easier

all the best

Jay

> > Ladies, afterall the inspirational talk yesterday... something

about

> > 7km runs and 1 hour walks etc etc, I was feeling guilty so I just

went

> > for a bike ride.

> >

> > Mel I hear you - I HATE exercise also, but I don't have the guts

to

> > join a gym, not just yet maybe in another10 kgs or so will I have

more

> > confidence.

> >

> > The bike ride was so embarressing. I got on the bike (which I

bout 2

> > years ago and this is my second time on it) and the tyres were so

flat

> > I was sitting on the rims... My husband nearly pee'd himslef -

JERK!!

> >

> > Anyway, went for the ride, had my IPOD in and I could hear myself

> > huffing and puffing over the music!!! hahahaha such a fit soul I

am!!

> >

> > having said that though, that was 10 minutes of exercise I

otherwise

> > would not have done so yay for me... My backside is killing me

though.

> > I think that if they want to encourage exercise why make the

seats so

> > uncomfortable???

> >

> > now I need a nap I think!

> >

> > Good luck Mel at the gym!

> >

> > Yolande xx

> >

> > ps - thanks for the kind words everyone!!

> >

> >

> >

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> >

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> > http://www.eset.com

>

[Guest guest]

Wow Jay, that 3 weeks has flown by! I'm really glad you're starting

to enjoy it. Keep up the good work.

I did my first lunges on Friday where I was able to get my back knee

to touch the floor. I did 20 of them - and felt it for days! But

it's a big NSV for me. As the scales aren't moving much - it's nice

to know I can do things with my body that I couldn't before.

So cheers to all you exercise bunnies! Keep it up!

Kate