Guest guest Posted November 3, 2009 Report Share Posted November 3, 2009 Have you applied for Social Security Disability? That would give you a small income plus medicare insurance. Don't know if you're presently working? > > > > I have been reading this forum faithfully over the past 30 day or so. It was about then my Dr. told me I have the active Hep C virus in my blood stream. My lvl is about 650,000, so I know I will be seeking treatment. I find out tomorrow which genotype. My understanding is at time I will know more about I must proceed. I greatly apprecite the honest answers and encouragment that is put forth here by everyone. Someone has already said knowledge is power. The knowledge I have received my reading your posts has taken away some of the fear. Thanks and I will post a note as to how the appointment tomorrow turns out. Sharon > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2009 Report Share Posted November 4, 2009 I work part time about 30 hours a week. My Dr. recommended I sign up for Medicaid, as my income should allow me to qualify. He also suggested that SSI may not be necessary as I should be able to work my part time schedule. This would be my preference also as I like my job. I know there are so many unknowns at this point. The side effects and after effects of treatment seem to be so unique to each individual. I am not ruling out course of events at this time. Thanks for the suggestion and I am going to add contacting Social Security to my list just in case. > > > > > > I have been reading this forum faithfully over the past 30 day or so. It was about then my Dr. told me I have the active Hep C virus in my blood stream. My lvl is about 650,000, so I know I will be seeking treatment. I find out tomorrow which genotype. My understanding is at time I will know more about I must proceed. I greatly apprecite the honest answers and encouragment that is put forth here by everyone. Someone has already said knowledge is power. The knowledge I have received my reading your posts has taken away some of the fear. Thanks and I will post a note as to how the appointment tomorrow turns out. Sharon > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2009 Report Share Posted November 5, 2009 Sharon, Find out what medication that your doctor prefers to give you then let us know we will provide you the links for the compassionate care of the various drug companies, the drug companies have programs that cover the medication if you can not afford to pay them. Love Janet "There are souls in this world that have the gift of finding joy everywhere and of leaving it behind them when they go" Frederick Faber To: Hepatitis_C_Central Sent: Wed, November 4, 2009 7:00:03 AMSubject: Re: Introduction I work part time about 30 hours a week. My Dr. recommended I sign up for Medicaid, as my income should allow me to qualify. He also suggested that SSI may not be necessary as I should be able to work my part time schedule. This would be my preference also as I like my job. I know there are so many unknowns at this point. The side effects and after effects of treatment seem to be so unique to each individual. I am not ruling out course of events at this time. Thanks for the suggestion and I am going to add contacting Social Security to my list just in case.> > >> > > I have been reading this forum faithfully over the past 30 day or so. It was about then my Dr. told me I have the active Hep C virus in my blood stream. My lvl is about 650,000, so I know I will be seeking treatment. I find out tomorrow which genotype. My understanding is at time I will know more about I must proceed. I greatly apprecite the honest answers and encouragment that is put forth here by everyone. Someone has already said knowledge is power. The knowledge I have received my reading your posts has taken away some of the fear. Thanks and I will post a note as to how the appointment tomorrow turns out. Sharon> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2009 Report Share Posted November 5, 2009 He has written a script for Pegasys prefilled syringes and Copegus. I have contacted PPARx and they put me in touch with Peggassist Patient Program. They are sending me an application. The women I talked to was not sure of the income guidelines. I would be interested in that information or the advise of anyone who has experience with this program or any others that are out there. Thanks Janet and all. > > > > > > > > I have been reading this forum faithfully over the past 30 day or so. It was about then my Dr. told me I have the active Hep C virus in my blood stream. My lvl is about 650,000, so I know I will be seeking treatment. I find out tomorrow which genotype. My understanding is at time I will know more about I must proceed. I greatly apprecite the honest answers and encouragment that is put forth here by everyone. Someone has already said knowledge is power. The knowledge I have received my reading your posts has taken away some of the fear. Thanks and I will post a note as to how the appointment tomorrow turns out. Sharon > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 26, 2010 Report Share Posted December 26, 2010 Hi, I'm new to this group and just starting to learn about OCD. My son is 7 yes old but I could tell as early as 1 1/2 that he had high anxiety while on a beautiful family vacation he spent every second that I was not holding him screaming and in panic. The minute we came home he crawled from room to room w sheer pleasure and joy in his countenance. Many examples since then and several rituals popping up. He hasn't been diagnosed but a mother knows. My biggest dream for him is that he knows he is loved unconditionally, and thank God that we r all different.....I'm thankful that I have found this group, to learn more and for him to have a support group. It helps just knowing that there r other parents who understand what I am dealing w. Thanks for sharing! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2010 Report Share Posted December 27, 2010 Hi Bruce, I really like Chris's advice here. We did remove my daughter from school after 6th grade. I am not sure it was the right decision for her as she became more and more isolated (she also has aspergers). We are now going in the other direction with her going to vo tech and beginning to go to the high school for small amounts of time. The key is that we have an IEP and they will want to push her harder than I think she can go but are listening to us and to her. She sat in on the last IEP meeting and was pretty clear about what she thought she could handle and so her plan was shaped around her tolerance and her needs. At least for my daughter, if she is pushed too hard, she will shut down so it is a delicate balance. I would listen to your gut and also try to allow your daughter to have some input. I like Chris's idea of thinking in positive terms. We are also using homeopathy to help our daughter and it has been very good for her. Sandy ----- No virus found in this message. Checked by AVG - www.avg.com Version: 10.0.1170 / Virus Database: 426/3342 - Release Date: 12/27/10 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2010 Report Share Posted December 27, 2010 Hello and welcome to the group, Since you say you have not had a diagnosis of OCD yet for your child, you may want to go to www.ocfoundation.org to read about symptoms, diagnosis and treatment, if you have not found this already. They also have a good book list. My favorites for books are by Tamar Chansky, and Aureen Pinto Wagner (both have books for parents), and I understand " What to do when your brain gets stuck " to be very good for children, it has a workbook component too. Educating yourself about OCD and what you need to do to manage it is the best thing you can do. It is common that parents notice anxiety at a very young age with their children, along with various " quirks " , before a diagnosis is ever made. Our son had severe separation anxiety, and intense anxiety in general, lots of fears, sleep issues, along with rigid ways (all of which can just be common kid stuff). He was diagnosed with LD early on, and a lot of anxiety was attributed to this. We learned, after diagnosis, that he had counting and tapping and religious rituals periodically when he was younger, but there was nothing to see and we did not know. I can now look back and see lots of " just right " things from birth. I found that knowing others were dealing with similar issues, and that someone could understand how challenging it all could be, a big relief. Just knowing you are not alone can help a lot. Warmly, Barb Canada Son, 19, OCD, LD plus - doing well for over 2 years now. > > Hi, I'm new to this group and just starting to learn about OCD. My son is 7 yes old but I could tell as early as 1 1/2 that he had high anxiety while on a beautiful family vacation he spent every second that I was not holding him screaming and in panic. The minute we came home he crawled from room to room w sheer pleasure and joy in his countenance. Many examples since then and several rituals popping up. He hasn't been diagnosed but a mother knows. My biggest dream for him is that he knows he is loved unconditionally, and thank God that we r all different.....I'm thankful that I have found this group, to learn more and for him to have a support group. It helps just knowing that there r other parents who understand what I am dealing w. Thanks for sharing! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2010 Report Share Posted December 27, 2010 This sounds so familiar..our story almost to the last detail. My daughter , now 16, experienced the same thing for 3 years. By spring, the stress of being behind in every class after missing so much time from class put her in a home hospital situation each year. 504's, IEPs,....nothing helped. Finally i found a very small alternative school that was accommodated by our district. She is now in a classroom with 8 students per class - with one aid and counselor per class. She can get her anxieties addressed in the classroom without leaving and gets immediate help addressing and working though her OCD thoughts. You will have to insist the district look " outside the box " and come up with other solutions to accommodate your daughter. It is never easy but have faith that it can be done. Good luck! Sent from my iPad I would like to introduce myself to the group.My daughter, Karlie 11 years old, was diagnosed 4 years ago with OCD. Karlie sees a Psychologist for counseling and a Psychiatrist for medication. She takes 60mg Fluxotene daily, Concerta daily for ADHD and Clonazepam as needed for severe anxiety attacks. I am happy to answer any questions about Karlie's history but I don't want to make this e-mail too long for fear no one will read it. The biggest thing we are dealing with right now is keeping Karlie in her classes at school. This is her first year of middle school and we knew it would be more stressful than elementary. At the beginning of the school year she seemed to be holding it together pretty well but as time progressed her trips to the office, school nurse, school counselor and school psychologist increased and it became increasingly difficult for them to get her to return to class. Karlie tells me that she is afraid she is going to " lose it " in front of her classmates, friends and teachers. She then tells the teacher she doesn't feel good and needs to go to the nurse. She will then go to the nurse or the school counselor or the school psychologist or just sit in the office. My assessment is that she experiences a classic " Flight or Fight " response several times during the day at school. She is absolutely terrified of losing control and emotionally breaking down in class. She does this almost every day after school. It is heartbreaking as a parent to see the mental and emotional suffering of your child. Her mother (divorced) and I had a meeting with her teachers, school counselor, school psychologist, District Special Ed. representative, Principal and Vice Principal to set up an IEP. Her mother made the case that Karlie needs more " structure " , more consequences for her actions and less time spent outside of class. She believes that Karlie needs to be forced to go to class. Everyone in the room, except myself, agreed. I took the position that Karlie is terrified of losing control and being humiliated in front of classmates, friends and teachers. She then experiences " Fight or Flight " and runs to the office. To force her to return to class is forcing her to return to that which she finds terrifying. Karlie has threatened to run away and hurt herself. She tells me she thinks about killing herself. I dont think the school understands OCD and want to treat this as a typical case of a rebellious teenager. Just crack down and they will behave. I really thought an IEP would be developed that lessened Karlies stress at school and would then make it easier for her to concentrate on learning. To my dismay, a plan was developed to restrict Karlies use of the office as a sanctuary and insist she return to classes after a set amount of quiet time. What they learned from that, so far, is that Karlie has no problem saying " no " to an adult. I know that for OCD and atypical fears, the therapy is ERP. Karlie works with her psychologist on this. My concern is that her mother and the school are pushing too hard and Karlie needs less stress, not more. I have read some of the chats and see that some kids are in special needs schools. This was not discussed for Karlie. I dont know why. Can anyone give some insight, advice...anything Bruce Quote Link to comment Share on other sites More sharing options...
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