Re: 8 year old daughter OCD

[Guest guest]

I am on long island too! Son is 14 with ocd since last august. Would love

to talk more to you. It does get better + is the toughest thing for us parents

but this group is awesome. I have been looking for help on this planet in long

island,ny parent/teen support groups are hard to locate comfort in knowing we

have each other. My son is on prozac 10 mg 1 1/2 years now and doing much

better.

Sent from my Verizon Wireless BlackBerry

8 year old daughter OCD

Hi everyone, I live on Long Island. I found out my daughter had ocd Aug of 2010.

We have been going crazy with it. Especially me. I never wanted to put her on

med. but I had no choice when things got so bad she could not even go to school.

She is now on Zoloft low does 62.5.we were trying to get to 75mg but her side

effects had been bad so we reduced it to the 62.5. I am also giving her vitamin

suppliments, & fish oil.I also just started a gluten free diet for her.I read

that gluten can have something to do with the brain and ocd. Does anyone have a

simular situation. I feel like I am the only one on this planet with a child

with ocd. It is very scary and lonely.

[Guest guest]

Hi , only a moment to reply now, but welcome! I sure understand about

feeling all alone. My son (now 22) had his OCD begin way back in 6th grade and

I think we were the only ones in the county (I'm sure we weren't!) and I worked

in the office at our local mental health agency. I think by the end of that

first year, I then knew more than any therapist there! Felt like I did.

I wanted to mention this one place that may be near to you that treats for OCD.

I'm bad on geography, lol. But if anywhere near you and you don't have anyone

yet, this would be a great place to take her for therapy, etc.:

http://westsuffolkpsych.homestead.com/

While at the site above, read through their articles, good info!

Gotta go,

>

> Hi everyone, I live on Long Island. I found out my daughter had ocd Aug of

2010. We have been going crazy with it. Especially me. I never wanted to put her

on med. but I had no choice when things got so bad she could not even go to

school. She is now on Zoloft low does 62.5.we were trying to get to 75mg but her

side effects had been bad so we reduced it to the 62.5. I am also giving her

vitamin suppliments, & fish oil.I also just started a gluten free diet for her.I

read that gluten can have something to do with the brain and ocd. Does anyone

have a simular situation. I feel like I am the only one on this planet with a

child with ocd. It is very scary and lonely.

>

>

>

>

>

>

[Guest guest]

thanks so much. I have my daughter in cbt therapy right now through kid esteem.

they are great over there.

Subject: Re: 8 year old daughter OCD

To:

Date: Tuesday, February 8, 2011, 8:28 PM

 

Hi , only a moment to reply now, but welcome! I sure understand about

feeling all alone. My son (now 22) had his OCD begin way back in 6th grade and I

think we were the only ones in the county (I'm sure we weren't!) and I worked in

the office at our local mental health agency. I think by the end of that first

year, I then knew more than any therapist there! Felt like I did.

I wanted to mention this one place that may be near to you that treats for OCD.

I'm bad on geography, lol. But if anywhere near you and you don't have anyone

yet, this would be a great place to take her for therapy, etc.:

http://westsuffolkpsych.homestead.com/

While at the site above, read through their articles, good info!

Gotta go,

>

> Hi everyone, I live on Long Island. I found out my daughter had ocd Aug of

2010. We have been going crazy with it. Especially me. I never wanted to put her

on med. but I had no choice when things got so bad she could not even go to

school. She is now on Zoloft low does 62.5.we were trying to get to 75mg but her

side effects had been bad so we reduced it to the 62.5. I am also giving her

vitamin suppliments, & fish oil.I also just started a gluten free diet for her.I

read that gluten can have something to do with the brain and ocd. Does anyone

have a simular situation. I feel like I am the only one on this planet with a

child with ocd. It is very scary and lonely.

>

>

>

>

>

>

[Guest guest]

that would be great.

Subject: Re: 8 year old daughter OCD

To:

Date: Tuesday, February 8, 2011, 8:15 PM

 

Just jumping in here - if you want to exchange phone #'s, I suggest you email

each other privately for that, just so they don't show to everyone. If you need

guidance to email privately, let us moderators know!

(Co-Moderator)

>

>

>

> Subject: Re: 8 year old daughter OCD

> To:

> Date: Tuesday, February 8, 2011, 6:55 PM

>

>

> I am on long island too! Son is 14 with ocd since last august. Would love

to talk more to you. It does get better + is the toughest thing for us parents

but this group is awesome. I have been looking for help on this planet in long

island,ny parent/teen support groups are hard to locate comfort in knowing we

have each other. My son is on prozac 10 mg 1 1/2 years now and doing much

better.

> Sent from my Verizon Wireless BlackBerry

>

> 8 year old daughter OCD

>

> Hi everyone, I live on Long Island. I found out my daughter had ocd Aug of

2010. We have been going crazy with it. Especially me. I never wanted to put her

on med. but I had no choice when things got so bad she could not even go to

school. She is now on Zoloft low does 62.5.we were trying to get to 75mg but her

side effects had been bad so we reduced it to the 62.5. I am also giving her

vitamin suppliments, & fish oil.I also just started a gluten free diet for her.I

read that gluten can have something to do with the brain and ocd. Does anyone

have a simular situation. I feel like I am the only one on this planet with a

child with ocd. It is very scary and lonely.

>

>

>

>      

>

>

[Guest guest]

Thanks chris you are always right on top of things here and I am happy for your

suggestion because I didn't know how to do that and I really am glad for another

long island parent. Regards,lynne

Sent from my Verizon Wireless BlackBerry

8 year old daughter OCD

>

> Hi everyone, I live on Long Island. I found out my daughter had ocd Aug of

2010. We have been going crazy with it. Especially me. I never wanted to put her

on med. but I had no choice when things got so bad she could not even go to

school. She is now on Zoloft low does 62.5.we were trying to get to 75mg but her

side effects had been bad so we reduced it to the 62.5. I am also giving her

vitamin suppliments, & fish oil.I also just started a gluten free diet for her.I

read that gluten can have something to do with the brain and ocd. Does anyone

have a simular situation. I feel like I am the only one on this planet with a

child with ocd. It is very scary and lonely.

>

>

>

>      

>

>

[Guest guest]

thanks for long island resource.lynne

Sent from my Verizon Wireless BlackBerry

Re: 8 year old daughter OCD

Hi , only a moment to reply now, but welcome! I sure understand about

feeling all alone. My son (now 22) had his OCD begin way back in 6th grade and

I think we were the only ones in the county (I'm sure we weren't!) and I worked

in the office at our local mental health agency. I think by the end of that

first year, I then knew more than any therapist there! Felt like I did.

I wanted to mention this one place that may be near to you that treats for OCD.

I'm bad on geography, lol. But if anywhere near you and you don't have anyone

yet, this would be a great place to take her for therapy, etc.:

http://westsuffolkpsych.homestead.com/

While at the site above, read through their articles, good info!

Gotta go,

>

> Hi everyone, I live on Long Island. I found out my daughter had ocd Aug of

2010. We have been going crazy with it. Especially me. I never wanted to put her

on med. but I had no choice when things got so bad she could not even go to

school. She is now on Zoloft low does 62.5.we were trying to get to 75mg but her

side effects had been bad so we reduced it to the 62.5. I am also giving her

vitamin suppliments, & fish oil.I also just started a gluten free diet for her.I

read that gluten can have something to do with the brain and ocd. Does anyone

have a simular situation. I feel like I am the only one on this planet with a

child with ocd. It is very scary and lonely.

>

>

>

>

>

>

[Guest guest]

Hey and Lynne, I just emailed you privately so look for it. (about how the

private emailing is, exchanging numbers....)

>

>

>

> Subject: Re: 8 year old daughter OCD

> To:

> Date: Tuesday, February 8, 2011, 8:15 PM

>

> Just jumping in here - if you want to exchange phone #'s, I suggest you email

each other privately for that, just so they don't show to everyone. If you need

guidance to email privately, let us moderators know!

>

>

> (Co-Moderator)

>

[Guest guest]

Thanks again

Sent from my Verizon Wireless BlackBerry

Re: 8 year old daughter OCD

> To:

> Date: Tuesday, February 8, 2011, 8:15 PM

>

> Just jumping in here - if you want to exchange phone #'s, I suggest you email

each other privately for that, just so they don't show to everyone. If you need

guidance to email privately, let us moderators know!

>

>

> (Co-Moderator)

>

[Guest guest]

Hi ,

Going gluten free saved us from all sorts of issues, including OCD.  We also

had

to do Zoloft, which was also a lifesaver for us.  I have 3 daughters with OCD..

One of them with severe OCD (almost 8yr old) .. My daughters had many signs of

gluten intolerance so we did testing for it, which revealed an

intolerance/sensitivity.  After removing gluten, we saw so many improvements in

so many areas.. It was really amazing.  One of my daughters stopped all signs

of

OCD without medication. 

I would recommend to you to also do casein free (and possibly even soy free) for

a while.. Casein proteins will continue to wreak havoc on your daughter's brain

until her gut is healed from gluten damage (if she does in fact have gluten

damage). 

Misty

 

________________________________

To:

Sent: Tue, February 8, 2011 9:19:39 AM

Subject: 8 year old daughter OCD

 

Hi everyone, I live on Long Island. I found out my daughter had ocd Aug of 2010.

We have been going crazy with it. Especially me. I never wanted to put her on

med. but I had no choice when things got so bad she could not even go to school.

She is now on Zoloft low does 62.5.we were trying to get to 75mg but her side

effects had been bad so we reduced it to the 62.5. I am also giving her vitamin

suppliments, & fish oil.I also just started a gluten free diet for her.I read

that gluten can have something to do with the brain and ocd. Does anyone have a

simular situation. I feel like I am the only one on this planet with a child

with ocd. It is very scary and lonely.

[Guest guest]

Thank you so much for that information. I did not have her tested for allergy of

gluten but just read about it. I thought is was worth a shot. I will try anthing

to avoid long term medication. I would like to get her off as soon as possible.

At this point in time it does not seem possible. I hope for the best. I am not

sure what caisen free is though. I will have to look in to it. So for she has

been doing gluten free for 4 days only and it has been very hard to substitute

her favorite foods. Also very expensive.But again it is worth every penny.

Subject: Re: 8 year old daughter OCD

To:

Date: Wednesday, February 9, 2011, 4:14 AM

 

Hi ,

Going gluten free saved us from all sorts of issues, including OCD.  We also

had

to do Zoloft, which was also a lifesaver for us.  I have 3 daughters with OCD..

One of them with severe OCD (almost 8yr old) .. My daughters had many signs of

gluten intolerance so we did testing for it, which revealed an

intolerance/sensitivity.  After removing gluten, we saw so many improvements in

so many areas.. It was really amazing.  One of my daughters stopped all signs

of

OCD without medication. 

I would recommend to you to also do casein free (and possibly even soy free) for

a while.. Casein proteins will continue to wreak havoc on your daughter's brain

until her gut is healed from gluten damage (if she does in fact have gluten

damage). 

Misty

 

________________________________

To:

Sent: Tue, February 8, 2011 9:19:39 AM

Subject: 8 year old daughter OCD

 

Hi everyone, I live on Long Island. I found out my daughter had ocd Aug of 2010.

We have been going crazy with it. Especially me. I never wanted to put her on

med. but I had no choice when things got so bad she could not even go to school.

She is now on Zoloft low does 62.5.we were trying to get to 75mg but her side

effects had been bad so we reduced it to the 62.5. I am also giving her vitamin

suppliments, & fish oil.I also just started a gluten free diet for her.I read

that gluten can have something to do with the brain and ocd. Does anyone have a

simular situation. I feel like I am the only one on this planet with a child

with ocd. It is very scary and lonely.

[Guest guest]

Hi

I can relate. My daughter just turned 9 but it wad about 9 months ago that it

became obvious that she had ocd.

We are still avoiding medication.

It hasn't been an easy journey.

It is scary and lonely.

I too felt like someone had taken my daughter as her personality seamed to

change so much. She too was very carefree...easy going...

Now she has so much anxiety. It is said to see part of her childhood taken from

her.

Snow used to be her favorite. We live in NC where we don't get much snow.

Now she has total meltdowns on snow days.

I wrote a blog about it.

slifejourney@...

We just did IgG testing (not the same that an alergist would do...that is IgA )

We see a Naturopathic Doctor.

Casein is a milk protein. It is also found in many dairy free alternatives (soy

and rice cheeses).

feel free to email me off list.

It helps me to connect with others esp with a daughter and one close to my

daughters age.

gmom23@...

Sent from my Verizon Wireless BlackBerry

8 year old daughter OCD

Hi everyone, I live on Long Island. I found out my daughter had ocd Aug of 2010.

We have been going crazy with it. Especially me. I never wanted to put her on

med. but I had no choice when things got so bad she could not even go to school.

She is now on Zoloft low does 62.5.we were trying to get to 75mg but her side

effects had been bad so we reduced it to the 62.5. I am also giving her vitamin

suppliments, & fish oil.I also just started a gluten free diet for her.I read

that gluten can have something to do with the brain and ocd. Does anyone have a

simular situation. I feel like I am the only one on this planet with a child

with ocd. It is very scary and lonely.

[Guest guest]

Welcome, .

OCD can be scary, and lonely. So many don't understand, (even if you try to

explain), the depth of what OCD really means.

Sometimes the very thing you fear is the very thing that helps.

What kind of side effects was she having? Just curious.

Has Zoloft been the only med she's tried? Sometimes different meds can have

different effects.

Has she been to a therapist who uses CBT/ERP (cognitive behavioral theapy /

exposure and response prevention) therapy? That is the recommended first line

of treatment for OCD.

Welcome to the group.

BJ

>

> Hi everyone, I live on Long Island. I found out my daughter had ocd Aug of

2010. We have been going crazy with it. Especially me. I never wanted to put her

on med. but I had no choice when things got so bad she could not even go to

school. She is now on Zoloft low does 62.5.we were trying to get to 75mg but her

side effects had been bad so we reduced it to the 62.5. I am also giving her

vitamin suppliments, & fish oil.I also just started a gluten free diet for her.I

read that gluten can have something to do with the brain and ocd. Does anyone

have a simular situation. I feel like I am the only one on this planet with a

child with ocd. It is very scary and lonely.

>

>

>

>

>

>

[Guest guest]

Hi, thanks for your response. I am going to try the gluten and casien diet and

see what happens. I would like to take her off med soon. When we hit 50mg of

zoloft I felt like I got my daughter back. She was happy again. Anxiety free. It

was amazing.They increased it from there and I started getting sick to my

stomach about the medication. So I will try the diet as well as fish oil,

probiotic , multivitamin and inositol supplements. I read that this is helpful

for ocd. A multivitamin without choline in it. Choline suppose to irritate ocd

and copper. Talk to you soon.

Subject: Re: 8 year old daughter OCD

To:

Date: Wednesday, February 9, 2011, 3:43 PM

Hi

I can relate. My daughter just turned 9 but it wad about 9 months ago that it

became obvious that she had ocd.

We are still avoiding medication.

It hasn't been an easy journey.

It is scary and lonely.

I too felt like someone had taken my daughter as her personality seamed to

change so much.  She too was very carefree...easy going...

Now she has so much anxiety. It is said to see part of her childhood taken from

her.

Snow used to be her favorite. We live in NC where we don't get much snow.

Now she has total meltdowns on snow days.

I wrote a blog about it.

slifejourney@...

We just did IgG testing (not the same that an alergist would do...that is IgA )

We see a Naturopathic Doctor.

Casein is a milk protein.  It is also found in many dairy free alternatives (soy

and rice cheeses).

feel free to email me off list.

It helps me to connect with others esp with a daughter and one close to my

daughters age.

gmom23@...

Sent from my Verizon Wireless BlackBerry

8 year old daughter OCD

Hi everyone, I live on Long Island. I found out my daughter had ocd Aug of 2010.

We have been going crazy with it. Especially me. I never wanted to put her on

med. but I had no choice when things got so bad she could not even go to school.

She is now on Zoloft low does 62.5.we were trying to get to 75mg but her side

effects had been bad so we reduced it to the 62.5. I am also giving her vitamin

suppliments, & fish oil.I also just started a gluten free diet for her.I read

that gluten can have something to do with the brain and ocd. Does anyone have a

simular situation. I feel like I am the only one on this planet with a child

with ocd. It is very scary and lonely.

     

[Guest guest]

My daughter in going for cbt therapy weekly for the past 2 months. That is

great. The medication area she has been on prozac for 1 week. I did not like how

she was reacting.She looked very irritated more than usual and tired. I switched

to zoloft and her personality turned around, She was in a great mood again for a

while. When they increased the med to 75mg I was sickened over it. I felt like

she was irritated more again. She was like she did not want to be in her own

skin. So I reduced in down again. Here I am now. I have her now on 60mg. I am

shaving it down until I get to 50 again. I am also changing her diet to gluten

free casien free. Maybe 1/2 casien free. I have to see how it goes. So far 4

days on gluten free diet.Thanks, talk to you soon

Subject: Re: 8 year old daughter OCD

To:

Date: Wednesday, February 9, 2011, 6:27 PM

 

Welcome, .

OCD can be scary, and lonely. So many don't understand, (even if you try to

explain), the depth of what OCD really means.

Sometimes the very thing you fear is the very thing that helps.

What kind of side effects was she having? Just curious.

Has Zoloft been the only med she's tried? Sometimes different meds can have

different effects.

Has she been to a therapist who uses CBT/ERP (cognitive behavioral theapy /

exposure and response prevention) therapy? That is the recommended first line of

treatment for OCD.

Welcome to the group.

BJ

>

> Hi everyone, I live on Long Island. I found out my daughter had ocd Aug of

2010. We have been going crazy with it. Especially me. I never wanted to put her

on med. but I had no choice when things got so bad she could not even go to

school. She is now on Zoloft low does 62.5.we were trying to get to 75mg but her

side effects had been bad so we reduced it to the 62.5. I am also giving her

vitamin suppliments, & fish oil.I also just started a gluten free diet for her.I

read that gluten can have something to do with the brain and ocd. Does anyone

have a simular situation. I feel like I am the only one on this planet with a

child with ocd. It is very scary and lonely.

>

>

>

>

>

>

[Guest guest]

So sorry she's had such a rough time, . Some have a hard time with the

meds. And some do best on a low dose of SSRI, despite OCD typically requiring

higher doses than prescribed for depression.

I'm glad to hear the CBT/ERP is going well. )

Let us know how the gluten free diet works for her.

Glad you found our group.

BJ

> >

> > Hi everyone, I live on Long Island. I found out my daughter had ocd Aug of

2010. We have been going crazy with it. Especially me. I never wanted to put her

on med. but I had no choice when things got so bad she could not even go to

school. She is now on Zoloft low does 62.5.we were trying to get to 75mg but her

side effects had been bad so we reduced it to the 62.5. I am also giving her

vitamin suppliments, & fish oil.I also just started a gluten free diet for her.I

read that gluten can have something to do with the brain and ocd. Does anyone

have a simular situation. I feel like I am the only one on this planet with a

child with ocd. It is very scary and lonely.

> >

> >

> >

> >

> >

> >

[Guest guest]

does anyone know if the naturopathic doctors really work?

Subject: Re: 8 year old daughter OCD

To:

Date: Wednesday, February 9, 2011, 3:43 PM

Hi

I can relate. My daughter just turned 9 but it wad about 9 months ago that it

became obvious that she had ocd.

We are still avoiding medication.

It hasn't been an easy journey.

It is scary and lonely.

I too felt like someone had taken my daughter as her personality seamed to

change so much.  She too was very carefree...easy going...

Now she has so much anxiety. It is said to see part of her childhood taken from

her.

Snow used to be her favorite. We live in NC where we don't get much snow.

Now she has total meltdowns on snow days.

I wrote a blog about it.

slifejourney@...

We just did IgG testing (not the same that an alergist would do...that is IgA )

We see a Naturopathic Doctor.

Casein is a milk protein.  It is also found in many dairy free alternatives (soy

and rice cheeses).

feel free to email me off list.

It helps me to connect with others esp with a daughter and one close to my

daughters age.

gmom23@...

Sent from my Verizon Wireless BlackBerry

8 year old daughter OCD

Hi everyone, I live on Long Island. I found out my daughter had ocd Aug of 2010.

We have been going crazy with it. Especially me. I never wanted to put her on

med. but I had no choice when things got so bad she could not even go to school.

She is now on Zoloft low does 62.5.we were trying to get to 75mg but her side

effects had been bad so we reduced it to the 62.5. I am also giving her vitamin

suppliments, & fish oil.I also just started a gluten free diet for her.I read

that gluten can have something to do with the brain and ocd. Does anyone have a

simular situation. I feel like I am the only one on this planet with a child

with ocd. It is very scary and lonely.

     

[Guest guest]

It depends on the doctor, but yes, they can be very helpful if you find the

right one.  Mainstream medicine tends to just put bandaids (meds) on

everything.. Naturopaths actually understand what causes or triggers certain

conditions and disorders and execute appropriate treatment plans to treat the

underlying cause..

An example would be fibromyalgia.. A mainstream doctor would prescribe meds,

refer to a fibro clinic or pain management clinic, etc. etc.. A naturopath would

try to figure out what is causing the fibromyalgia (celiac disease or other

autoimmune condition) and treat it with diet modification, supplements,

correcting any imbalances in the body, etc.  So there is real healing going on

instead of just a bandaid.

Misty

________________________________

To:

Sent: Thu, February 10, 2011 1:14:25 PM

Subject: Re: 8 year old daughter OCD

 

does anyone know if the naturopathic doctors really work?

Subject: Re: 8 year old daughter OCD

To:

Date: Wednesday, February 9, 2011, 3:43 PM

Hi

I can relate. My daughter just turned 9 but it wad about 9 months ago that it

became obvious that she had ocd.

We are still avoiding medication.

It hasn't been an easy journey.

It is scary and lonely.

I too felt like someone had taken my daughter as her personality seamed to

change so much.  She too was very carefree...easy going...

Now she has so much anxiety. It is said to see part of her childhood taken from

her.

Snow used to be her favorite. We live in NC where we don't get much snow.

Now she has total meltdowns on snow days.

I wrote a blog about it.

slifejourney@...

We just did IgG testing (not the same that an alergist would do...that is IgA )

We see a Naturopathic Doctor.

Casein is a milk protein.  It is also found in many dairy free alternatives

(soy

and rice cheeses).

feel free to email me off list.

It helps me to connect with others esp with a daughter and one close to my

daughters age.

gmom23@...

Sent from my Verizon Wireless BlackBerry

8 year old daughter OCD

Hi everyone, I live on Long Island. I found out my daughter had ocd Aug of 2010.

We have been going crazy with it. Especially me. I never wanted to put her on

med. but I had no choice when things got so bad she could not even go to school.

She is now on Zoloft low does 62.5.we were trying to get to 75mg but her side

effects had been bad so we reduced it to the 62.5. I am also giving her vitamin

suppliments, & fish oil.I also just started a gluten free diet for her.I read

that gluten can have something to do with the brain and ocd. Does anyone have a

simular situation. I feel like I am the only one on this planet with a child

with ocd. It is very scary and lonely.

     

[Guest guest]

Thank you

Subject: Re: 8 year old daughter OCD

To:

Date: Wednesday, February 9, 2011, 3:43 PM

Hi

I can relate. My daughter just turned 9 but it wad about 9 months ago that it

became obvious that she had ocd.

We are still avoiding medication.

It hasn't been an easy journey.

It is scary and lonely.

I too felt like someone had taken my daughter as her personality seamed to

change so much.  She too was very carefree...easy going...

Now she has so much anxiety. It is said to see part of her childhood taken from

her.

Snow used to be her favorite. We live in NC where we don't get much snow.

Now she has total meltdowns on snow days.

I wrote a blog about it.

slifejourney@...

We just did IgG testing (not the same that an alergist would do...that is IgA )

We see a Naturopathic Doctor.

Casein is a milk protein.  It is also found in many dairy free alternatives

(soy

and rice cheeses).

feel free to email me off list.

It helps me to connect with others esp with a daughter and one close to my

daughters age.

gmom23@...

Sent from my Verizon Wireless BlackBerry

8 year old daughter OCD

Hi everyone, I live on Long Island. I found out my daughter had ocd Aug of 2010.

We have been going crazy with it. Especially me. I never wanted to put her on

med. but I had no choice when things got so bad she could not even go to school.

She is now on Zoloft low does 62.5.we were trying to get to 75mg but her side

effects had been bad so we reduced it to the 62.5. I am also giving her vitamin

suppliments, & fish oil.I also just started a gluten free diet for her.I read

that gluten can have something to do with the brain and ocd. Does anyone have a

simular situation. I feel like I am the only one on this planet with a child

with ocd. It is very scary and lonely.