Guest guest Posted December 1, 2006 Report Share Posted December 1, 2006 Liz and anyone else that has hemochromatosis: What DMARD's have you been able to take prescription-wise to help with your symptoms? I have a double gene mutation for HH but not yet considered " overloading " , yet my ferritin levels are on the higher side of normal. I'm having a hard time finding a drug that doesn't make my liver enzymes go all wacky. Also wondering if the HH is the cause for this disease or the 2 just decided to meet and greet separately within me....... The humorous side of me likes to think of the chicken vs. The egg debate......... Which one came first? Without the HH would I still have this disease? B. from Boston -- Re: Hi All I get most of the symptoms you listed..not anemia tho..too much iron runs i my family. I am a carrier for the disease hemochromocytosis. Anyway, I think being persistant should eventually work. What a world. Feel better ....Liz NJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2006 Report Share Posted December 1, 2006 I have Hemochromatosis (HH) and the Still's. As far as the chicken or the egg theory, HH is genetic, totally, and you have it from conception. My treatment for the Still's is Remicade, MTX & Pred, along w/various other drugs to take care of side effects of the aforementioned, lol... Every few months, my iron loads and I have to have a phlebotomy. They usually remove about a pint to a pint & a half. They tell me this will worsen for me when I hit menopause. My Dad has the full-blown HH as well. My mother was just a carrier & my two siblings are just carriers. Me & my dad joke about how we ended up with it and not the rest. When we have phlebotomies, we both have about a day to a day & a half of fatigue & achy joints. Just my input... Gail nottarealperson wrote: Liz and anyone else that has hemochromatosis: What DMARD's have you been able to take prescription-wise to help with your symptoms? I have a double gene mutation for HH but not yet considered " overloading " , yet my ferritin levels are on the higher side of normal. I'm having a hard time finding a drug that doesn't make my liver enzymes go all wacky. Also wondering if the HH is the cause for this disease or the 2 just decided to meet and greet separately within me....... The humorous side of me likes to think of the chicken vs. The egg debate......... Which one came first? Without the HH would I still have this disease? B. from Boston -- Re: Hi All I get most of the symptoms you listed..not anemia tho..too much iron runs i my family. I am a carrier for the disease hemochromocytosis. Anyway, I think being persistant should eventually work. What a world. Feel better ....Liz NJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2006 Report Share Posted December 4, 2006 Not to discourage you, but I've had the nose sores for 7 years. Yes, 7 years and they are not any better than they ever were. Nobody can figure out why i have them. I keep them lubed up wtih Carmex so that they don't get dry and hurt where i have to get them out or I can't breath. It's ridiculous. Houston > > Hi Faye > I still have the nose sores after 7 months sometimes I wonder if they will ever go away. > Take Care, > Chris > PS Sorry your here but glad you found this group they are great. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2006 Report Share Posted December 4, 2006 Not to discourage you, but I've had the nose sores for 7 years. Yes, 7 years and they are not any better than they ever were. Nobody can figure out why i have them. I keep them lubed up wtih Carmex so that they don't get dry and hurt where i have to get them out or I can't breath. It's ridiculous. Houston > > Hi Faye > I still have the nose sores after 7 months sometimes I wonder if they will ever go away. > Take Care, > Chris > PS Sorry your here but glad you found this group they are great. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2007 Report Share Posted November 6, 2007 Hi , Is there any chance that taking some fish oil or grape oil orally would help your problem. I reckon you now should consult with a naturapath, they can be absolutely brilliant at this sort of thing. Good work with the weight loss. I hope your skin starts to improve soon. But I would definately be going to the health food store and asking about some sort of supplement that puts oil back into your system... flaxseed oil is also very beneficial. Catch up soon, Mel Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2008 Report Share Posted January 19, 2008 congratulations Jen -- Hi all Hi Guys (and Juzzy and Danna!) I haven't posted here before. I was banded last Tuesday and really looking forward to my new life. I've been overweight since I was 16 - half of my life. I'm reclaiming 2008 as my year. I feel better everyday and really enjoy having other bandits to speak with. THanks for the group! Jen PLEASE NOTE: If you experience any problems with any surgeons, doctors or other health professionals and their Code Of Conduct at any stage of your band journey, the arena you need to discuss this will be within the privacy of their surgery or rooms, with them not us. This is not a forum to air any grievances or defame a professional persons' reputation in any way, even if they have upset you immensely. Some Doctors are members of this group and may well read what you have said about them, and anything defamatory you say could lead to legal action being taken against you by the professional discussed. This is also not a forum to defame or slander any member on this site. We are individuals with different opinions and need to respect each other and each other's opinion. This journey is about support for all of us. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2008 Report Share Posted February 24, 2008 Hi ,I agree that people should try to keep an open mind to alternatives in curing ailments. I am a nurse, who virtually got rid of all my asthma symptoms and medications using the Budwig Protocol, which is mostly used for cancer. If others choose to feed their mouths with sugar, white flour, processed foods, no exercise, no sunshine, stressful jobs...ect. It is their choice. Asthma medications are necessary under certain circumstances but I do not see many people drastically changing their diets/lifestyle to help alleviate many of their problems and reducing their need for medications. As a baby in 1963, my parents lived in NJersey. With severe asthma, the MD said to take me away from the pollution. My parents moved to NC (my parents made ME the priority not their jobs), and the asthma attacks stopped, and so did the medications. In 1997, I moved to NJersey with my husband....here comes the asthma again, the meds, ect. Since my husband wouldn't move, I had to take control of my own health after being thrown into the hospital a couple of times with severe attacks. I did my research, found the Budwig Protocol (which in itself is an anti-inflammatory diet by the way), started the diet in October of last year. Up to this date...my inhalers are getting old in my pocket and my Advair is no longer required. I gave my nebulizer away to my neighbor who is now beginning the protocol. The lesson here....Western Medicine is not always the answer. Keep an open mind folks. Just because there isn't a mountain of data on a protocol doesn't mean it isn't going to work for you.......It just means big Pharma has no interest in it...that's all. God Bless,SofiaIt doesn't take a rocket scientist to figure out how polluted our environments have become in many, many ways....the consequence is illness, which includes asthma. No Sue................................. I am not an idiot quack. I am a person who suffered for years with various illness' and without resolve from the American medical community. I will give them credit for settling down my breathing attacks when they occurred. As I recited before, I was on all the medications I mentioned. I could write my own scripts for that if I were allowed. I and my insurance company paid the medical community between 40 and 50,000 $$$$$$$'s overe the past ten years and I was left rushing to an emergency clinic every 4 - 6 weeks. Those are the facts I know nothing about you. You may be working as a doctor or nurse or as a pharmacist and may have been taught how to treat people using " western medicine'. That style is primaily through the use of drugs and is usually intended to treat symptoms and not the problem. Well, believe me I tried that route and got more ill each year. I expected to be attacked by some people when I posted my story. If you are ill and you wish to get better, do not close your mind. If you have been seeing doctors and running to hospitals and emergancy clinics on a regular basis, do not close your mind. If you have been living on toxic drugs /steroids and such, that even the doctors and pharmacists will tell you are not good for you take long term, do not close your mind. Fasting as a form of healing has been used on earth for 10's of thousands of years. Accounts of it have been recorded in the bible on numerous occasions. It is an effective way to self heal. It provides opportunity for your body to rest and redirect all its energy to cleansing our systems. If you Sue, had taken the time to have thoroughly read this web page >> http://www.falconblanco.com/health/fasting.htm that explains fasting and its benefits then you may be thinking differently than you presently do. It is what it is. Facts are facts. My personal experience speaks for itself. Using the doctors, hospitals, emergency clinics and drugs was not a way of healing. I healed myself, cured myself through detoxing my body as I did describe. I wrote my post in order to help those who are suffering as I had and who seek relief. You Sue, can choose to be in denial and may attack me as you have done but your denial and attacks only help continue the support scepticism in the minds of all who need resolution to their medical conditions. I do not expect everyone to accept my story. If one will, and they do what I did and heal themselves as I did, then taking the time I took to write " my story " was well worth my time. We each choose for ourselves I thank the nurse who directed me onto the right path. I am thankful I had an open mind. I am better. I has been amazing. Those are the facts, not delusional quackery. My kind regards to you, GeSue Walsh wrote: Just another idiot QUACK! Sue ----- Original Message ----- From: Long To: asthma Sent: Saturday, February 23, 2008 4:10 PM Subject: IMPORTANT>> HOW I CURED MYSELF My Story.......... For your health, trust me and please read all. This is a long post but it may be your salvation from ills. It was for me. Read on................... This may not work for everyone but it surely worked for me; AND, OMG did I need help! When I was about 34 (I am 56 now), I began coughing all the time. I went to a Pulmonary Specialist and he did some tests and told me I had adult onset asthma. He provided no treatment for the occasional cough. The next year, I went to work in a VERY smokey office and began coughing up mucus plugs all day long, everyday. 10 years later, I began to wheeze and put off seeing a doctor until I could stand it no longer. A Pulmonary Specialist, he did some testing, said I had COPD. I was having a terrible time of things and he gave me Advair and Singulair and Albuteral to use. As time past, I'd get worse and he would give me Cortisone shots, a Z-Pak, a Prednisone taper, along with the Advair and Singulair and Albuteral. In time, I was also using a nebulizer taking breathing treatments (Xopenex) 4 -6 times a day along with everything else. My visits to the Pulmonary Specialist became more and more frequent and at the last I was rushing to seek treatment every 4-6 weeks. And the treatment was always the same; Another Cortisone shot, a Z-Pak, a Prednisone taper, along with the Advair and Singulair and Albuteral and Xopenex. I was getting worse and worse. Also, I had never been, for as long as I could remember, able to breathe through my nose. About 10 years ago I went to an Ear Nose and Throat doctor and had a deviated septum repaired and at the same time he opened up all my sinus passages. Still I could not breathe. He gave me prescription nasal sprays that did nothing to help. I saw another Ear Nose and Throat doc. He performed laser surgery on me, burning the fatty tissue on the inside of my nose. That did not help. I spoke to the Pulmonary Doctor about it; He put me on more anti-biotics for it. No help. Also, about 5 years ago I started breaking out, mostly on my back and buttocks, wasn't pretty, I saw two family physicians for that and three Dermatologists. All had me on different anti-biotics, sometimes for months. Nothing helped. And within the last year I had noticed an infection developing under my two big toes. I was very unhealthy and after paying mega $$$$$$$'s over all those years to doctors, hospitals, emergency clinics, pharmacies and the like, I was not cured and hardly helped with any of my illness'. I was resigned to the idea of living a very unhealthy life and was thinking it would be much shorter than I wished. THEN....................................... I took a trip to Houston, TX and met a nurse. I was telling her about my problems. She had been a nurse for 30 years and told me to stay away from the doctors they were making me ill. She said she would help me get better. She said I needed to Detox my body. She said my system was full of toxins and poisons, my liver was probably all clogged up as well as other organs in my body that help filtrate we toxins we take it. She was very big into herbs and had me taking " Milk Thistle " for my liver right away. " Milk Thistle " keeps your liver clean. I took her advise and went to walmart and bought a detox product called " Whole Body Cleanse " . Here is the product >> http://www.enzy.com/go/EnzymaticTherapy/productDetail.aspx?alias=EnzymaticTherapy & tabalias=productDetail & partcode=08450 & sc=True .............I read the directions and then started detoxing. At the same time I changed my diet to fruits and vegetables, nuts and berrys and salads and I was drinking lots and lots of water. Within one week my skin problems started to disappear. I knew that hte detox product was working. I kept on my new diet that consisted of the nutritious foods previously mentioned and I have taken the Milk Thistle daily ever since. Also, I began looking on line for herbal products to take that would rebuild my immune system and my respiratory system as well. While doing so, I stumbled upon a website about " fasting " to heal your body. At this time, about three to four weeks had past since starting the new diet and the detoxing. Here is the website I stumbled upon >>> http://www.falconblanco.com/health/fasting.htm I read that web page, was a very easy to understand explanation about what happens during a fast and what one can expect from one. I trusted all that it said. It made sense to me and I decided to do a water fast. No food, just water. I fasted like that, no food, for 20 days. Everything that was printed on that website happened just exactly as was told. I had no hunger, no weakness (most of the time, read on), I had energy, and strength. On day two I became very sick. I felt as if I had the flu, was feeling weak, my nose started running, I blew it for two days straight, my tongue became coated with a white goo, I was coughing like crazy, mucus started coming out of my lungs like you would not believe, I had a mild headache. All this was explained as our body's reaction once we stop eating and the body turns to fat cells, tumors, abysses', intestinal build-up for fuel. All of the fore mentioned are full of toxins and poisons stored in our body throughout our years. As the body ate away all fat stores and other foreign matter inside of me, those toxins got released and would enter the blood stream causing all the sickness. Within one day the headache went away, two days the nose stopped running, and my strength came back. the flu feelings subsided, my tongue stayed white for a week as well as I coughed and coughed and coughed and coughed for a week to ten days. OMG, so much mucus coming up and out of my body; But, by day ten all that stopped, my wheezing became less and less and eventually stopped all together. I suddenly realized. My skin was clear, I had no coughing, no airway restriction, no mucus coming up, and....................... Suddenly, I could breathe through my nose! The infection under my toe nails was gone. All my ills, were CURED!!!!!!! I continued on with the water fast for 20 days before stopping. My diet of fruits and vegetables, nuts and berrys and salads and lots and lots of water continues on; However, I am at times eating other foods too but much less often than before and in smaller quantities. During this time, seven weeks had past, I weighed 255 lbs at the start and I weighed 215 at the end. That's a forty pound loss. It was just an incredible experience. I am no longer using the nebulizer 4-6 times a day, I am off the advair, singulair, prednisone, albuterol, Xopenex; nor am I on any anti-biotics. I take nothing. I joined the gym, get on the treadmill for 30 minutes at a 4 mile per hour walk, no coughing or wheezing nor tightness in my chest; Then follow that with a workout on 10 nautilus machines. I must say; it seriously seems as if I am truly cured. My suggestion to others is to try what I tried. READ that fasting page that I posted over and over and over again and trust what it says; Follow it to a T. But if you choose to water fast begin the way I did; First do the detox and change your diet for at least three weeks. I believe that had transitioned me to a point where at the start of the fast I did not suffer as badly as I would have otherwise done. I hope my experience helps others. Do not continue to suffer and do not listen to those docs who will tell you you cannot cure yourself. They did nothing for me except take my money and made me ill. Oh the advair, it will cause cataracts in your eyes. I had taken it so long my vision began to blurr. I went to the eye doctor and he found the start of a cataract in my one eye. Those medicines are bad for all to take. Here is another website on fasting>> http://www.notmilk.com/hs/casey.html I post this to help others. I was so sick and I know what others are suffering. God bless all of you Ge Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. Never miss a thing. Make Yahoo your homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2008 Report Share Posted March 10, 2008 I have the sleep apnea too. I had never thought of trying it during the daytime thoguh. It sounds promising and I think I am going to try it. I am interested in finding out what you think of a nebulizar. I have not had any real luck myself with anything over the counter other than Afrin on occassion. I do take Nasacort but I personally do not care for it because of bad Post Nasal Drip. Huffy I joined this group last week and have had asthma for about two decades or so. The bronchial mist sprayers work ok for the most part but I'm thinking of maybe getting or trying a nebulizer after some consults. I have sleep apnea and use the pap machine during the day sometimes but I'm thinking I may get some better day hours. Any good feedback would be appreciated. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2008 Report Share Posted March 10, 2008 I am using the CPap machine also.. I have had it for about 5 years now,, I also use mine during the day,, I don`t know how it works this way,, but if I am having trouble nreathing,, I just turn it on and put the mask on and breathe through it,, It seems to help some,, I have a lot of trouble when the barometric pressure is going down,, that makes my Fibro and RA hurt a lot worse too.. I say if the machine works for you,, use it,, nobody says you have to only use it at night, Hope everyone is doing ok,, Kathytripleeagle4 wrote: I joined this group last week and have had asthma for about two decades or so. The bronchial mist sprayers work ok for the most part but I'm thinking of maybe getting or trying a nebulizer after some consults. I have sleep apnea and use the pap machine during the day sometimes but I'm thinking I may get some better day hours. Any good feedback would be appreciated. Never miss a thing. Make Yahoo your homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2008 Report Share Posted March 12, 2008 Hi Tripleeagle4, Welcome to the group! Are you taking any supplements? Alana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2009 Report Share Posted August 18, 2009 Tracey. Glad to hear the aches and pains are going away. Once again I want to say how proud of you that I am that you made it through the treatment. You kept your wonderful spirit throughout treatment. You go girl. Love Janet "There are souls in this world that have the gift of finding joy everywhere and of leaving it behind them when they go" Frederick Faber To: Hepatitis_C_Central Sent: Tuesday, August 18, 2009 8:28:41 AMSubject: Hi All Hi All, Hope all is well with every one. Just wanted to let you know how I am doing since finishing my treatment. I am starting to feel better, the aches and pains are going away, and I feel like I have lots more energy. I still like to lay down and rest when I get home from work. My doctor wants me to have blood work done in two weeks again and then in 6 months. I'm keeping my fingers crossed that I stay svr. I had my ups and downs, good days and bad days with the treatment, and to me it was well worth going through 48 wks of pain and missery to have a chance of staying svr the rest of my life. , How many weeks do you have left? You should be getting very close to the finish line? I told you I would be waiting here for you and I am. Tracey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2009 Report Share Posted August 19, 2009 Hi Tracey, I'm in my 6th week of treatment and just got labs back,my load was 5 million and now 979.Doctor said it should have 0.What were your labs in the begining? pam Hi All Hi All, Hope all is well with every one. Just wanted to let you know how I am doing since finishing my treatment. I am starting to feel better, the aches and pains are going away, and I feel like I have lots more energy. I still like to lay down and rest when I get home from work. My doctor wants me to have blood work done in two weeks again and then in 6 months. I'm keeping my fingers crossed that I stay svr. I had my ups and downs, good days and bad days with the treatment, and to me it was well worth going through 48 wks of pain and missery to have a chance of staying svr the rest of my life. , How many weeks do you have left? You should be getting very close to the finish line? I told you I would be waiting here for you and I am. Tracey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2009 Report Share Posted August 21, 2009 Hi Pam, My viral load when I was diagnosed with Hep C was under 4 thousand ( was diagnosed in May of 08 and started treatment by Sept. 08), by week four of treatment I was undetectable. I have type 1A. I just completely finished treatment on Aug. 3, 09. My ALT's were a little high with my last bloodwork, that is why the doc wants me to have it checked in two weeks again and then in six months to make sure I am still svr. Tracey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2009 Report Share Posted August 21, 2009 Tracey, When your viral load went to undetectable did you feel any different? Or were any possitive effects completely masked by the treatment? Deborah > > Hi Pam, > >  My viral load when I was diagnosed with Hep C was under 4 thousand ( was diagnosed in May of 08 and started treatment by Sept. 08), by week four of treatment I was undetectable. I have type 1A. I just completely finished treatment on Aug. 3, 09. My ALT's were a little high with my last bloodwork, that is why the doc wants me to have it checked in two weeks again and then in six months to make sure I am still svr. > > Tracey > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2009 Report Share Posted August 25, 2009 When my viral load went to undetectable I did not feel any different cause of the side affects from the treatment. I feel much better now that the treatment is done. I have lots of energy. Tracey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2009 Report Share Posted August 25, 2009 thats great Tracey!!! Subject: Re: Hi AllTo: Hepatitis_C_Central Date: Tuesday, August 25, 2009, 7:49 AM When my viral load went to undetectable I did not feel any different cause of the side affects from the treatment. I feel much better now that the treatment is done. I have lots of energy. Tracey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2009 Report Share Posted August 25, 2009 Thats awesome Tracey!! I havent started treatment as of yet but I am finally going to see my new doctor on Friday ! whoo hooo ...lol From: Tracey Fenley <oct51966yahoo (DOT) com>Subject: [Hepatitis_C_ Central] Re: Hi AllTo: Hepatitis_C_ Central@yahoogro ups.comDate: Tuesday, August 25, 2009, 7:49 AM When my viral load went to undetectable I did not feel any different cause of the side affects from the treatment. I feel much better now that the treatment is done. I have lots of energy. Tracey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2009 Report Share Posted August 25, 2009 Dear Tracey, I am so glad to hear that also because I still feel like hell!! I am week 38 and I have 10 more weeks. I want to feel good so bad. This is the most hellish thing I have been through!! I have had to work everyday beause I am a single parent and grandparent. I think I will make it. I am glad you shared that!! Diane From: Tracey Fenley <oct51966yahoo (DOT) com>Subject: [Hepatitis_C_ Central] Re: Hi AllTo: Hepatitis_C_ Central@yahoogro ups.comDate: Tuesday, August 25, 2009, 7:49 AM When my viral load went to undetectable I did not feel any different cause of the side affects from the treatment. I feel much better now that the treatment is done. I have lots of energy. Tracey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2009 Report Share Posted August 25, 2009 Kris, You go with your bad self Take the right attitude with the treatment. You will do just great and put your mindset on that! Thinking of you! Kathy From: Tracey Fenley <oct51966yahoo (DOT) com>Subject: [Hepatitis_C_ Central] Re: Hi AllTo: Hepatitis_C_ Central@yahoogro ups.comDate: Tuesday, August 25, 2009, 7:49 AM When my viral load went to undetectable I did not feel any different cause of the side affects from the treatment. I feel much better now that the treatment is done. I have lots of energy. Tracey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2009 Report Share Posted August 25, 2009 Diane, wow, you've made it through 38, that is awesome, you will make it, just look, there's that light at the end of the tunnel! From: Tracey Fenley <oct51966yahoo (DOT) com>Subject: [Hepatitis_C_ Central] Re: Hi AllTo: Hepatitis_C_ Central@yahoogro ups.comDate: Tuesday, August 25, 2009, 7:49 AM When my viral load went to undetectable I did not feel any different cause of the side affects from the treatment. I feel much better now that the treatment is done. I have lots of energy. Tracey__________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 2009 Report Share Posted August 26, 2009 Thanks Tracey and congrats. My 8 th week of treatment and need some inspiration. pam Re: Hi All When my viral load went to undetectable I did not feel any different cause of the side affects from the treatment. I feel much better now that the treatment is done. I have lots of energy. Tracey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 2009 Report Share Posted August 26, 2009 You are doing great, Pam, one day at a time, hon.. Subject: Re: Re: Hi AllTo: Hepatitis_C_Central Date: Wednesday, August 26, 2009, 5:51 AM Thanks Tracey and congrats. My 8 th week of treatment and need some inspiration. pam [Hepatitis_C_ Central] Re: Hi All When my viral load went to undetectable I did not feel any different cause of the side affects from the treatment. I feel much better now that the treatment is done. I have lots of energy. Tracey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 2009 Report Share Posted August 26, 2009 hang in there hon,, you're gonna make it!!! Subject: Re: Re: Hi AllTo: Hepatitis_C_Central Date: Wednesday, August 26, 2009, 5:51 AM Thanks Tracey and congrats. My 8 th week of treatment and need some inspiration. pam [Hepatitis_C_ Central] Re: Hi All When my viral load went to undetectable I did not feel any different cause of the side affects from the treatment. I feel much better now that the treatment is done. I have lots of energy. Tracey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2011 Report Share Posted February 6, 2011 Welcome to the group, Jim. Do you prefer Jim, or drhat? I checked to see if you were included in the " bouncing members " list, and you aren't. Not sure what happened. Do you belong to any other Yahoo Groups? If so, do you have that problem there? Hoping it was just a glitch in the transmission. If it continues let one of us moderators know. Glad to have you with us. ) BJ Co-Moderator > > Hi everyone, > > I'm Jim from San Diego, and I just found out my email was bouncing. Whatever that means. > > I replied earlier to a post, but it wasn't posted, so I'll repost it here. I'm a ERP-wielding behavior therapist in San Diego, having treated mostly OCD for the past 19 years. I read that someone was suggesting EMDR for treating OCD. It reminds me that when all you have is a hammer, everything looks like a nail. I've heard all kinds of therapists trying all kinds of things for OCD, but that doesn't mean that they should. Even if they are certified for it. EMDR is great for treating trauma, but not for OCD. > > Research shows over and over that the only two things that are useful in treating OCD, for statistically large groups of people, are SSRI (or hybrid SNRIs) and ERP. > > That said, when you look for a therapist to treat OCD, always ask them what methods they use. If they don't say ERP, then move on to the next therapist. > > Also, when someone has the urge to tweeze eyebrows or hairs, that doesn't really sound like OCD (unless they are tweezing just because of perfectionism). It sounds more like Trichotillomania, or hair pulling. It requires a very different kind of behavioral therapy called Habit Reversal Therapy (ERP doesn't quite cut it for hair pulling). The same treatment is used for skin picking. Visit www.trich.org for more info on both. > > Hope that helps! > > Jim (aka drhat) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2011 Report Share Posted February 6, 2011 Hi Jim, So glad to have a professional on board! I'm going to be the first to ask your professional advice... I hold a local parent support group and the majority of parents who come have teens and older. Some of the biggest challenges many face is treatment refusal, lack of insight, and behavior challenges. I wonder if you might speak to any of these things, and offer any practical advice on coping. Look forward to your participation in our group. Warmly, Barb Nesrallah Co-Moderator Canada > > > > > Hi everyone, > > > > I'm Jim from San Diego, and I just found out my email was > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.