Guest guest Posted October 4, 2007 Report Share Posted October 4, 2007 Wow! This is great! Hi everyone, Im le and like you catz, Im considering surgery in Feb 08 (when my 12 mths with private health will be up). All I think about is this surgery and how much Im looking forward to it/scared of it/unsure of it etc etc. Im DESPERATE to get in touch with both those that are also considering it and those who have had it done recently. I'd love to follow your journeys and the idea of taking this journey with someone going thru the same thing would be so great. Anyone interested? Are you all from Sydney? Anyone live on the North shore? Im from Cromer (near DeeWhy/Manly area). My email address is gabsangels@... Please contact me! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2007 Report Share Posted October 4, 2007 Welcome Catz, I'm sure you will get a lot of great unbias info from the group. Good idea to get as much info as you can before you decide to have or not to have the band. Great to have you part of the group..Ingrid > > Hi Everyone, > This is the first time I have ever done anything like this so I'm a > bit nervous! I am still at the considering the surgery option stage > (have a surgeon's appointment) and I'm trying to read as much about > the procedure as I can. Lap-banding sounds so good in theory but I > have read a lot of posts on the forums that make it sound really hard. > Just want to get some feedback.Thanks > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2007 Report Share Posted October 5, 2007 Thanks for the encouragement, Ingrid. Have a date in January but I'm just doing a bit more thinking as well, though I think I have decided to go ahead. I'll keep reading all the info. Thanks again > > > > Hi Everyone, > > This is the first time I have ever done anything like this so I'm a > > bit nervous! I am still at the considering the surgery option stage > > (have a surgeon's appointment) and I'm trying to read as much about > > the procedure as I can. Lap-banding sounds so good in theory but I > > have read a lot of posts on the forums that make it sound really hard. > > Just want to get some feedback.Thanks > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2007 Report Share Posted November 9, 2007 , Why did they not diagnose her as Autistic? If her speech is that delayed how did she " qualify " for PPD-NOS? " dlwyrick@... " wrote: Hi, my name is . My husband and I have a 7 yr. old daughter with autism - PDD-NOS on the books. She was diagnosed just before she turned 4. It was difficult to diagnose her because she wasn't " classic " I guess, and she was very social and verbal up until 13 mos. - after her immunizations. Then her speech went away and we were assured time and again that she just had a speech delay and we might have to start speech therapy, which we did when she turned 2. We really didn't see much progress until starting ABA therapy at age 5. This is when she started using one word at a time to express needs and wants. We were thrilled! She also potty trained just before turning 6. Although she is still significantly delayed in expressive language, her receptive language has improved greatly. We have tried B12 injections, Auditory Integration Therapy, Trace Minerals, L-Carnotine, Buspirone, Naltrexone, and are still using ABA therapy and Carnosine and Behavior Balance (DMG). What I would like to know is if any of your daughters have problems with yeast that you know of? We are concerned that she might have a problem with yeast overgrowth, but our pediatrician is skeptical. We have seen a DAN doctor in the past, but he is moving out of this area. I would also like to talk to anyone in the group who might have a daughter similar to ours. , mom to Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2007 Report Share Posted November 10, 2007 I don't know really. We always thought that anything under the ASD " umbrella " was " autism " , only aspergers meant you were verbal. was hard to diagnose because it was obvious that she wanted to communicate. She also has apraxia. We recently asked her psychiatrist how " severe " he considered her autism. He said that he would consider her mild if she were more verbal. She did go through a pretty severe spell though after her diagnosis. This is when the stimming really began, and didn't improve until we started fish oil supplement and ABA therapy. Then she began talking. She was placed in an inclusive kindergarten classroom with an aide all day. The aide was trained in ABA therapy and would pull 3x a day to an " ABA room " that we set up at the school. We have been very blessed with the school she attends. It is a very small, public school. The principal, therapists, and 's teachers have all been on board and have worked with us to make this a positive, successful placement for . We also see a DAN doctor who has helped us out with vitamins and minerals that meet her needs. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2008 Report Share Posted January 3, 2008 Welcome I just wanted to say that I LOVE your girls' names! Melody and Harmony...those are beautiful! Amnesty > > Hi everyone! > > I'm so thrilled to have found this group. I often feel like " we " are > the only girl in playgroups or other Autism gatherings. It's nice to > feel like part of a " girl " group! > > I am looking forward to getting to know some of you, and being able to > come here for a great resource! > > Happy New Year everyone! > > Lynn Shoop from Novato California > Mom to Melody (almost 3 and Autistic), Harmony (almost 2 and typical), > Robbie (11 and typical), and (19 and suspected Aspergers > Syndrome) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2008 Report Share Posted January 3, 2008 HI Lynn, Welcome! We are in California but in the southern realm. Where exactly is Novato? Rebekah mom to Serena HFA and three other NT children --- Lynn Shoop wrote: > Hi everyone! > > I'm so thrilled to have found this group. I often > feel like " we " are > the only girl in playgroups or other Autism > gatherings. It's nice to > feel like part of a " girl " group! > > I am looking forward to getting to know some of you, > and being able to > come here for a great resource! > > Happy New Year everyone! > > Lynn Shoop from Novato California > Mom to Melody (almost 3 and Autistic), Harmony > (almost 2 and typical), > Robbie (11 and typical), and (19 and > suspected Aspergers > Syndrome) > > ________________________________________________________________________________\ ____ Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2008 Report Share Posted January 3, 2008 Thanks Rebekah! Novato is about 30 minutes north of the Golden Gate Bridge in Marin County. Just North of Mount Tamalpais. Lynn Shoop www.mycmsite.com/lynnshoop Re: New to the Group HI Lynn, Welcome! We are in California but in the southern realm. Where exactly is Novato? Rebekah mom to Serena HFA and three other NT children --- Lynn Shoop < mikeandlynnshoop@... <mailto:mikeandlynnshoop%40aol.com> > wrote: > Hi everyone! > > I'm so thrilled to have found this group. I often > feel like " we " are > the only girl in playgroups or other Autism > gatherings. It's nice to > feel like part of a " girl " group! > > I am looking forward to getting to know some of you, > and being able to > come here for a great resource! > > Happy New Year everyone! > > Lynn Shoop from Novato California > Mom to Melody (almost 3 and Autistic), Harmony > (almost 2 and typical), > Robbie (11 and typical), and (19 and > suspected Aspergers > Syndrome) > > __________________________________________________________ Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ <http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2008 Report Share Posted January 3, 2008 Welcome to the group, Lynn!! I have 5 children ages 26, 19, 17, 15, & 13. 4 girls and one boy. (13) has autism and is affected mild-moderately. I hope you can get all the answers you are looking for here. Feel free to search the archives if you need something immediately. It has helped me on several occasions. Shanna (Tennessee) > > Hi everyone! > > I'm so thrilled to have found this group. I often feel like " we " are > the only girl in playgroups or other Autism gatherings. It's nice to > feel like part of a " girl " group! > > I am looking forward to getting to know some of you, and being able to > come here for a great resource! > > Happy New Year everyone! > > Lynn Shoop from Novato California > Mom to Melody (almost 3 and Autistic), Harmony (almost 2 and typical), > Robbie (11 and typical), and (19 and suspected Aspergers > Syndrome) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2008 Report Share Posted January 4, 2008 welcome to the group hope you find it as help ful as we have eric abbys dad (wife is pennie and were in michigan) **************Start the year off right. Easy ways to stay in shape. http://body.aol.com/fitness/winter-exercise?NCID=aolcmp00300000002489 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2008 Report Share Posted January 6, 2008 Welcome to the group, Lynn. Are you able to get much services living in Novato? I used to live in San & have a vague memory of having visited Novato, but not sure. How far away is Muir Woods from you & Sausalito? I haven't crossed the SF bridge in ages but do remember Sausalito & taking the ferry there. Is there an active ASA or autism groups in the SF area? It seems like there is more activity from the S. CA area but don't know if the N. CA area has much going on? I have a 26yo NT son, Jimmy, daughter in law, Lien & 2 grandkids living in Oakland. My mom & younger brother still live in San . Here in AZ, I have 2 daughters. Becky is 17, NT, senior in high school & is almost 16 (Leap Year) & has moderate autism. This is my favorite group. Marie > > Hi everyone! > > I'm so thrilled to have found this group. I often feel like " we " are > the only girl in playgroups or other Autism gatherings. It's nice to > feel like part of a " girl " group! > > I am looking forward to getting to know some of you, and being able to > come here for a great resource! > > Happy New Year everyone! > > Lynn Shoop from Novato California > Mom to Melody (almost 3 and Autistic), Harmony (almost 2 and typical), > Robbie (11 and typical), and (19 and suspected Aspergers > Syndrome) > > > > Autism_in_Girls-subscribe > ------------------------ > Autism_in_Girls-unsubscribe > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2011 Report Share Posted February 1, 2011 My name is and I am desperate to get some support because my 9 year old daughter is beginning to show more and more signs of OCD. she had mild symptoms that would go away for the past few years after school starts but this year it escalated and we began looking for therapy. We have been going to " play therapy " for a few months but I don't think it is helping much. When something gets better it is because my daughter decided to do something different and it doesn't always last. We are very stressed trying to figure out what the " rules " are each day and they are not consistent. The therapist says she will get over it when she chooses but all I see is the behaviors becomming permanent. Mostly she washes her hands a lot, can't go to bed without showering or come back out except to use the restroom after showering. She can't touch her toys without showering and she keeps many belongings separate like her school lunch from her backpack. Also different foods make her feel she is greasy so she cannot do homework after eating. She has ecema so all the washing is hurting her skin. If we try to change anything or put her in her room when she is acting out she becomes out of control like a wild animal and will literally claw her way out past us. Or she will have melt downs like a toddler. We never know how to handle any of this and are just told by the therapist to " be the parent " and that she should follow our rules but I cannot stand to see her hurting so I give in a lot. I also have anxiety/panic attacks and so this is very hard for me and it adding to my constant worrying. I would really love to find a face to face support group in Orange County for parents of kids with OCD if there is one? I have felt very alone dealing with this and I am overwelmed and cannot afford for myself to get therapy but we sacrafice for my daughter to go. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2011 Report Share Posted February 1, 2011 Thank you so much for your words of wisdom about parenting a child with OCD. There are days when my husband and I really feel like we are going to loose it, not knowing if we are being too tough or letting her get away with too much. The therapist gives me 5 minutes at the end of each session and she just tells me useless advice about how I am not being a firm parent and letting my daughter walk all over us. It's hard to find a good balance and I need to look into some books obviously and get a new therapist. I would like to know the best way to handle it when she acts out and we can't send her to her room to calm dawn because she can't go in there until she showers? She also has frequent melt downs when we are studying with her for tests. She was a straight A student for a few years and now 4th grade is really tough and her grades are slowly slipping. It seems like she can't concentrate well this year and we are teaching everything at home that she is not paying attention to at school. Is that common with OCD in kids? ________________________________ To: Sent: Tue, February 1, 2011 11:41:08 AM Subject: Re: New to the Group  Hi , I'm just peeking in at work, so only a minute, but had to welcome you! As I read I thought - first they need a therapist who is experienced in treating OCD. Your's does not, that's obvious. " Be the parent " just does not work with OCD. The therapy for OCD is Cognitive Behavioral Therapy (CBT), which actually is used with a lot of mental health issues (e.g., depression). But it has to be specific to OCD. Also with CBT they will do Exposure & Response (or ritual) Prevention (ERP). You can read more about this at the OCD Foundation website. Think it's: http://ocfoundation.org Briefly, a therapist will help make a list of the OCD problems and then your daughter will rank them in a hierarchy, like 1 causes the least anxiety/upset, 10 the most, etc. So then she will pick 1, 2, maybe 3 things from the low rank to try " bossing back " OCD and working on. The rest we parents just generally have to accommodate as the child isn't working on those OC behaviors. They can't tackle all the OC behaviors at once, so working on 2 or so helps. And sometimes after conquering one of the lower ones, some other behaviors may disappear or be easier to " boss back, " get rid of. She may start, for ex, by trying to delay washing her hands when she feels the need, see how long she can put it off before doing it; the idea is to take longer times and hopefully that anxiety/need-to feeling will go away; there's other ways to work on the same issue. It's hard work. OCD can be very controlling. It's not their fault. Generally you don't punish for OCD but you can set limits re behavior you will allow. Kids are going to get upset, temper, cry, etc, with OCD (along with frustration, hating it, maybe depressed...) but you can try to be understanding and limit behavior if it ends up with striking out at others, language they may use, throwing things...that sort of thing. Your daughter may like some books for children about OCD. The OCD Foundation website has some listed there, you can find others at & Noble or other online/local stores. Gotta go, but glad you found our group. My son, now 22, had his start around age 11.5 and this group was my best support through it all. (still is) single mom, 3 sons , 22, with OCD, dysgraphia, Aspergers > > My name is and I am desperate to get some support because my 9 year >old daughter is beginning to show more and more signs of OCD. she had mild >symptoms that would go away for the past few years after school starts but this >year it escalated and we began looking for therapy. We have been going to " play >therapy " for a few months but I don't think it is helping much. When something >gets better it is because my daughter decided to do something different >and it doesn't always last. We are very stressed trying to figure out what the > " rules " are each day and they are not consistent. The therapist says she will >get over it when she chooses but all I see is the behaviors becomming permanent. >Mostly she washes her hands a lot, can't go to bed without showering or come >back out except to use the restroom after showering. She can't touch her toys >without showering and she keeps many belongings separate like her school lunch >from her backpack. Also different foods make her feel she is greasy so she >cannot do homework after eating. She has ecema so all the washing is hurting her >skin. If we try to change anything or put her in her room when she is acting out >she becomes out of control like a wild animal and will literally claw her way >out past us. Or she will have melt downs like a toddler. We never know how to >handle any of this and are just told by the therapist to " be the parent " and >that she should follow Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2011 Report Share Posted February 1, 2011 Hi and welcome, Anxiety, OCD, and behavior problems.. Coupled with eczema.. This tells me that your daughter has a food sensitivity.. Most likely gluten. Has this been investigated? Misty ________________________________ To: Sent: Tue, February 1, 2011 1:18:47 PM Subject: New to the Group  My name is and I am desperate to get some support because my 9 year old daughter is beginning to show more and more signs of OCD. she had mild symptoms that would go away for the past few years after school starts but this year it escalated and we began looking for therapy. We have been going to " play therapy " for a few months but I don't think it is helping much. When something gets better it is because my daughter decided to do something different and it doesn't always last. We are very stressed trying to figure out what the " rules " are each day and they are not consistent. The therapist says she will get over it when she chooses but all I see is the behaviors becomming permanent. Mostly she washes her hands a lot, can't go to bed without showering or come back out except to use the restroom after showering. She can't touch her toys without showering and she keeps many belongings separate like her school lunch from her backpack. Also different foods make her feel she is greasy so she cannot do homework after eating. She has ecema so all the washing is hurting her skin. If we try to change anything or put her in her room when she is acting out she becomes out of control like a wild animal and will literally claw her way out past us. Or she will have melt downs like a toddler. We never know how to handle any of this and are just told by the therapist to " be the parent " and that she should follow our rules but I cannot stand to see her hurting so I give in a lot. I also have anxiety/panic attacks and so this is very hard for me and it adding to my constant worrying. I would really love to find a face to face support group in Orange County for parents of kids with OCD if there is one? I have felt very alone dealing with this and I am overwelmed and cannot afford for myself to get therapy but we sacrafice for my daughter to go. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2011 Report Share Posted February 1, 2011 , is there another room you can send her to other than her bedroom? Kitchen or another? How bad are her meltdowns where you want to send her from the room? Is it possible to sort of acknowledge you know she's upset due to her OCD and how frustrating it must be...and so on to get her to calm a bit and also lets her know you understand. That's if you know OCD triggered it. Often if you can pick out what triggers it, you may try to avoid them. Of course, with therapy you don't avoid what you're working on (exposure) but if it's " homework time " or some other time when you're not " doing OCD homework " then it can be better to avoid triggers, stress. I used to always want calm for homework, so didn't want something setting him off prior to our doing it (intentionally setting off or anything we could avoid). Is she having trouble reading any now? OCD can affect reading. It can often distract them, but it could also have them repeating things or doing some compulsion while trying to read.... It can affect being able to write too. It can affect a lot of things! I had to read to and do his writing for him for a while. We set up a 504 Plan at school for him and had accommodations for this, plus a few others, to help us (him, but me too, lol) while OCD was so bad. Kids can hold back OCD while at school, try to hide it, but it generally bursts forth once they're through the door at home. Have you noticed this with her? > I would like to know the best way to handle it when she acts out and we can't > send her to her room to calm dawn because she can't go in there until she > showers? She also has frequent melt downs when we are studying with her for > tests. She was a straight A student for a few years and now 4th grade is really Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2011 Report Share Posted February 1, 2011 if you have any suspicions you can always cut out the foods w/out even testing her. We did that and found an immediate difference w/in a week. He feels so much different/better that he is a better label reader than I am. He does not want that in his system at all.   Good luck w/it, it is a drag to have to cut foods out but it is so worth it if it makes things better...................................Larkellen Estate and Garage Sales Facebook Page www.estateandgaragesales.biz Subject: New to the Group To: Date: Tuesday, February 1, 2011, 1:18 PM My name is and I am desperate to get some support because my 9 year old daughter is beginning to show more and more signs of OCD. she had mild symptoms that would go away for the past few years after school starts but this year it escalated and we began looking for therapy. We have been going to " play therapy " for a few months but I don't think it is helping much. When something gets better it is because my daughter decided to do something different and it doesn't always last. We are very stressed trying to figure out what the " rules " are each day and they are not consistent. The therapist says she will get over it when she chooses but all I see is the behaviors becomming permanent. Mostly she washes her hands a lot, can't go to bed without showering or come back out except to use the restroom after showering. She can't touch her toys without showering and she keeps many belongings separate like her school lunch from her backpack. Also different foods make her feel she is greasy so she cannot do homework after eating. She has ecema so all the washing is hurting her skin. If we try to change anything or put her in her room when she is acting out she becomes out of control like a wild animal and will literally claw her way out past us. Or she will have melt downs like a toddler. We never know how to handle any of this and are just told by the therapist to " be the parent " and that she should follow our rules but I cannot stand to see her hurting so I give in a lot. I also have anxiety/panic attacks and so this is very hard for me and it adding to my constant worrying. I would really love to find a face to face support group in Orange County for parents of kids with OCD if there is one? I have felt very alone dealing with this and I am overwelmed and cannot afford for myself to get therapy but we sacrafice for my daughter to go. ------------------------------------ Our list archives feature may be accessed at: http://health.groups.yahoo.com/group// by scrolling down to the archives calendar . Our links may be accessed at http://health.groups.yahoo.com/group//links . Our files may be accessed at http://health.groups.yahoo.com/group//files . Our list advisors are Gail B. , Ed.D.(http://www.ocdawareness.com ), Tamar Chansky, Ph.D.( http://www.worrywisekids.org ), and Dan Geller, M.D. ( http://www.massgeneral.org/doctors/doctor.aspx?ID=18068 ). You may ask a question of any of these mental health professionals by inserting the words " Ask Dr.(insert name) " in the subject line of a post to the list. Our list moderators are Castle, Judy Chabot, BJ Closner, and Barb Nesrallah. You may contact the moderators at -owner . OCDKidsLoop membership may be accessed at http://health.groups.yahoo.com/group/ocdkidsloop/ . Our group and related groups are listed at http://health.groups.yahoo.com/group/ocdsupportgroups/links .. IOCDF treatment providers list may be viewed at http://www.ocfoundation.info/treatment-providers-list.php . NLM-NIH Drug Information Portal may be viewed at http://druginfo.nlm.nih.gov/drugportal/drugportal.jsp?APPLICATION_NAME=drugporta\ l . IOCDF recommended reading list may be accessed at http://www.ocfoundation.org/Books.aspx . IOCDF glossary of terms may be accessed at http://www.ocfoundation.org/glossary.aspx . IOCDF membership link may be accessed at http://www.ocfoundation.net/membership/ . Drugs.com pill identification wizard may be accessed at http://www.drugs.com/imprints.php . Mayo Clinic Drug and Herb Index may be accessed at http://www.mayoclinic.com/health/drug-information/DrugHerbIndex .Yahoo! Groups Links Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2011 Report Share Posted February 1, 2011 Yes, eliminating is the next best thing to testing .. But be aware that most of these food sensitivites trigger an IgG delayed onset response.. This means she may be reacting to something she ate a week ago! A food diary would help. I have one I made up (but never used) if anyone would like me to share it here. The basic idea of food elimination trials.. Is you eliminate all food allergens... dairy, gluten, soy, eggs, corn, and nuts.. Then challenge them one at a time to check for behavioral responses (and digestive issues if you have that). Cut out everything for at least a month before challenging. Most behaviors come from gluten, dairy, soy, and corn.. So I would do those over any others. My kids are fine with corn, but not the other three. Misty ________________________________ To: Sent: Tue, February 1, 2011 7:02:50 PM Subject: Re: New to the Group  if you have any suspicions you can always cut out the foods w/out even testing her. We did that and found an immediate difference w/in a week. He feels so much different/better that he is a better label reader than I am. He does not want that in his system at all.   Good luck w/it, it is a drag to have to cut foods out but it is so worth it if it makes things better...................................Larkellen Estate and Garage Sales Facebook Page www.estateandgaragesales.biz Subject: New to the Group To: Date: Tuesday, February 1, 2011, 1:18 PM My name is and I am desperate to get some support because my 9 year old daughter is beginning to show more and more signs of OCD. she had mild symptoms that would go away for the past few years after school starts but this year it escalated and we began looking for therapy. We have been going to " play therapy " for a few months but I don't think it is helping much. When something gets better it is because my daughter decided to do something different and it doesn't always last. We are very stressed trying to figure out what the " rules " are each day and they are not consistent. The therapist says she will get over it when she chooses but all I see is the behaviors becomming permanent. Mostly she washes her hands a lot, can't go to bed without showering or come back out except to use the restroom after showering. She can't touch her toys without showering and she keeps many belongings separate like her school lunch from her backpack. Also different foods make her feel she is greasy so she cannot do homework after eating. She has ecema so all the washing is hurting her skin. If we try to change anything or put her in her room when she is acting out she becomes out of control like a wild animal and will literally claw her way out past us. Or she will have melt downs like a toddler. We never know how to handle any of this and are just told by the therapist to " be the parent " and that she should follow our rules but I cannot stand to see her hurting so I give in a lot. I also have anxiety/panic attacks and so this is very hard for me and it adding to my constant worrying. I would really love to find a face to face support group in Orange County for parents of kids with OCD if there is one? I have felt very alone dealing with this and I am overwelmed and cannot afford for myself to get therapy but we sacrafice for my daughter to go. ------------------------------------ Our list archives feature may be accessed at: http://health.groups.yahoo.com/group// by scrolling down to the archives calendar . Our links may be accessed at http://health.groups.yahoo.com/group//links . Our files may be accessed at http://health.groups.yahoo.com/group//files . Our list advisors are Gail B. , Ed.D.(http://www.ocdawareness.com ), Tamar Chansky, Ph.D.( http://www.worrywisekids.org ), and Dan Geller, M.D. ( http://www.massgeneral.org/doctors/doctor.aspx?ID=18068 ). You may ask a question of any of these mental health professionals by inserting the words " Ask Dr.(insert name) " in the subject line of a post to the list. Our list moderators are Castle, Judy Chabot, BJ Closner, and Barb Nesrallah. You may contact the moderators at -owner . OCDKidsLoop membership may be accessed at http://health.groups.yahoo.com/group/ocdkidsloop/ . Our group and related groups are listed at http://health.groups.yahoo.com/group/ocdsupportgroups/links .. IOCDF treatment providers list may be viewed at http://www.ocfoundation.info/treatment-providers-list.php . NLM-NIH Drug Information Portal may be viewed at http://druginfo.nlm.nih.gov/drugportal/drugportal.jsp?APPLICATION_NAME=drugporta\ l .. IOCDF recommended reading list may be accessed at http://www.ocfoundation.org/Books.aspx . IOCDF glossary of terms may be accessed at http://www.ocfoundation.org/glossary.aspx . IOCDF membership link may be accessed at http://www.ocfoundation.net/membership/ . Drugs.com pill identification wizard may be accessed at http://www.drugs.com/imprints.php . Mayo Clinic Drug and Herb Index may be accessed at http://www.mayoclinic.com/health/drug-information/DrugHerbIndex .Yahoo! Groups Links Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2011 Report Share Posted February 1, 2011 Hi , I'm glad you found this group. Our local group, as you have found, is rather quiet. You've gotten some great ideas on diet changes and I hope that brings relief quickly. You can use this website to find local therapists who are familiar with OCD. http://www.ocfoundation.info/treatment-providers-list.php If you still want to get together, post on the other group and we can work something out. Beth > > My name is and I am desperate to get some support because my 9 year old daughter is beginning to show more and more signs of OCD. > I would really love to find a face to face support group in Orange County for parents of kids with OCD if there is one? I have felt very alone dealing with this and I am overwelmed and cannot afford for myself to get therapy but we sacrafice for my daughter to go. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2011 Report Share Posted February 2, 2011 Hi , I'm sorry to hear about the struggles that your daughter and you as well as your family is facing. My son is 9 with Tourettes, OCD, severe food allergies, and he has also been tested as having a gifted IQ. For us, the IQ also means he has a lot of anxiety and performance issues as well the sensitivities that come with OCD. This past year we were having a really hard time because the OCD was becoming a safety issue. He was chewing wood and now metal. Our fantastic neurologist put him on Fluvoxamine and recommended CBT therapy. After talking to the therapist, she recommended family therapy while using CBT for . She incorporates them together which is great because he has a younger brother who comes as well. She figures that it's best to deal with this as a family since it affects the whole family. It's also proven to be great for because he sees that he's getting support from the whole family and that he's not alone. It's also great for me because, without her knowing it (or maybe she's figured it out and hasn't said anything), but I suffer from depression and anxiety as well. I agree that you should get her tested for food allergies. In the meantime, if you already limit your diet you can limit hers as well. If you both limit the same things and you tell her you're doing this with her, it might help. With , he's had a hard time this past year because he just realized how different he is from most people. I'm sure that it doesn't help when you feel like you're that isolated. Good luck. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2011 Report Share Posted February 2, 2011 and can I add in that dyes are common and my son says he feels worse/more anxiety if he has dyes than corn products.................................Larkellen Estate and Garage Sales Facebook Page www.estateandgaragesales.biz Subject: New to the Group To: Date: Tuesday, February 1, 2011, 1:18 PM My name is and I am desperate to get some support because my 9 year old daughter is beginning to show more and more signs of OCD. she had mild symptoms that would go away for the past few years after school starts but this year it escalated and we began looking for therapy. We have been going to " play therapy " for a few months but I don't think it is helping much. When something gets better it is because my daughter decided to do something different and it doesn't always last. We are very stressed trying to figure out what the " rules " are each day and they are not consistent. The therapist says she will get over it when she chooses but all I see is the behaviors becomming permanent. Mostly she washes her hands a lot, can't go to bed without showering or come back out except to use the restroom after showering. She can't touch her toys without showering and she keeps many belongings separate like her school lunch from her backpack. Also different foods make her feel she is greasy so she cannot do homework after eating. She has ecema so all the washing is hurting her skin. If we try to change anything or put her in her room when she is acting out she becomes out of control like a wild animal and will literally claw her way out past us. Or she will have melt downs like a toddler. We never know how to handle any of this and are just told by the therapist to " be the parent " and that she should follow our rules but I cannot stand to see her hurting so I give in a lot. I also have anxiety/panic attacks and so this is very hard for me and it adding to my constant worrying. I would really love to find a face to face support group in Orange County for parents of kids with OCD if there is one? I have felt very alone dealing with this and I am overwelmed and cannot afford for myself to get therapy but we sacrafice for my daughter to go. ------------------------------------ Our list archives feature may be accessed at: http://health.groups.yahoo.com/group// by scrolling down to the archives calendar . Our links may be accessed at http://health.groups.yahoo.com/group//links . Our files may be accessed at http://health.groups.yahoo.com/group//files . Our list advisors are Gail B. , Ed.D.(http://www.ocdawareness.com ), Tamar Chansky, Ph.D.( http://www.worrywisekids.org ), and Dan Geller, M.D. ( http://www.massgeneral.org/doctors/doctor.aspx?ID=18068 ). You may ask a question of any of these mental health professionals by inserting the words " Ask Dr.(insert name) " in the subject line of a post to the list. Our list moderators are Castle, Judy Chabot, BJ Closner, and Barb Nesrallah. You may contact the moderators at -owner . OCDKidsLoop membership may be accessed at http://health.groups.yahoo.com/group/ocdkidsloop/ . Our group and related groups are listed at http://health.groups.yahoo.com/group/ocdsupportgroups/links .. IOCDF treatment providers list may be viewed at http://www.ocfoundation.info/treatment-providers-list.php . NLM-NIH Drug Information Portal may be viewed at http://druginfo.nlm.nih.gov/drugportal/drugportal.jsp?APPLICATION_NAME=drugporta\ l .. IOCDF recommended reading list may be accessed at http://www.ocfoundation.org/Books.aspx . IOCDF glossary of terms may be accessed at http://www.ocfoundation.org/glossary.aspx . IOCDF membership link may be accessed at http://www.ocfoundation.net/membership/ . Drugs.com pill identification wizard may be accessed at http://www.drugs.com/imprints.php . Mayo Clinic Drug and Herb Index may be accessed at http://www.mayoclinic.com/health/drug-information/DrugHerbIndex .Yahoo! Groups Links Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2011 Report Share Posted February 2, 2011 Yes we do send her to the kitchen when she gets out of control because the therapist made us feel like she was just acting out to get attention. I am feeling really guilty today because I called the play therapist last night made up an excuse why we cannot go tonight because I was too afraid to cancel completely with her. I want time to research this and I have to do things in small doses becuase I get anxiety too which makes me overwelmed and sometimes slows me down. She did not seem happy about me questioning her whether my daughter has OCD or not and was quick to say that in her opinion just has generalized anxiety becuase otherwise her behavior would be more consitent! Consistent? What does she call washing her hands constantly, having to shower every night(when she hated to shower a few months ago) and not being able to touch certain items to others, and not being able to go in her bedroom until after showering, or brush her own teeth, or put on her own shoes because of germs???I just feel this therapist(who is suspiciously easy to get in to see at a moments notice)just needs clients and doesn't have the training to diagnose or treat my child. This also depresses me because I feel it's my fault she hasn't got the help she really needs for months now. I will look into the allergy testing this week. We have TriCare and it is easy to get approved and the testing is covered, I just need to get brave. ________________________________ To: Sent: Tue, February 1, 2011 5:01:21 PM Subject: Re: New to the Group  , is there another room you can send her to other than her bedroom? Kitchen or another? How bad are her meltdowns where you want to send her from the room? Is it possible to sort of acknowledge you know she's upset due to her OCD and how frustrating it must be...and so on to get her to calm a bit and also lets her know you understand. That's if you know OCD triggered it. Often if you can pick out what triggers it, you may try to avoid them. Of course, with therapy you don't avoid what you're working on (exposure) but if it's " homework time " or some other time when you're not " doing OCD homework " then it can be better to avoid triggers, stress. I used to always want calm for homework, so didn't want something setting him off prior to our doing it (intentionally setting off or anything we could avoid). Is she having trouble reading any now? OCD can affect reading. It can often distract them, but it could also have them repeating things or doing some compulsion while trying to read.... It can affect being able to write too. It can affect a lot of things! I had to read to and do his writing for him for a while. We set up a 504 Plan at school for him and had accommodations for this, plus a few others, to help us (him, but me too, lol) while OCD was so bad. Kids can hold back OCD while at school, try to hide it, but it generally bursts forth once they're through the door at home. Have you noticed this with her? > I would like to know the best way to handle it when she acts out and we can't > send her to her room to calm dawn because she can't go in there until she > showers? She also has frequent melt downs when we are studying with her for > tests. She was a straight A student for a few years and now 4th grade is >really > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2011 Report Share Posted February 2, 2011 You have Tricare??? That's awesome! We are military and have Tricare as well. Great Plains Labs is Tricare covered. They paid 100% of our IgG food allergy testing. Let me know if you have questions.. GET BRAVE GIRL!!!!!! Misty ________________________________ To: Sent: Wed, February 2, 2011 10:03:33 AM Subject: Re: Re: New to the Group  Yes we do send her to the kitchen when she gets out of control because the therapist made us feel like she was just acting out to get attention. I am feeling really guilty today because I called the play therapist last night made up an excuse why we cannot go tonight because I was too afraid to cancel completely with her. I want time to research this and I have to do things in small doses becuase I get anxiety too which makes me overwelmed and sometimes slows me down. She did not seem happy about me questioning her whether my daughter has OCD or not and was quick to say that in her opinion just has generalized anxiety becuase otherwise her behavior would be more consitent! Consistent? What does she call washing her hands constantly, having to shower every night(when she hated to shower a few months ago) and not being able to touch certain items to others, and not being able to go in her bedroom until after showering, or brush her own teeth, or put on her own shoes because of germs???I just feel this therapist(who is suspiciously easy to get in to see at a moments notice)just needs clients and doesn't have the training to diagnose or treat my child. This also depresses me because I feel it's my fault she hasn't got the help she really needs for months now. I will look into the allergy testing this week. We have TriCare and it is easy to get approved and the testing is covered, I just need to get brave. ________________________________ To: Sent: Tue, February 1, 2011 5:01:21 PM Subject: Re: New to the Group  , is there another room you can send her to other than her bedroom? Kitchen or another? How bad are her meltdowns where you want to send her from the room? Is it possible to sort of acknowledge you know she's upset due to her OCD and how frustrating it must be...and so on to get her to calm a bit and also lets her know you understand. That's if you know OCD triggered it. Often if you can pick out what triggers it, you may try to avoid them. Of course, with therapy you don't avoid what you're working on (exposure) but if it's " homework time " or some other time when you're not " doing OCD homework " then it can be better to avoid triggers, stress. I used to always want calm for homework, so didn't want something setting him off prior to our doing it (intentionally setting off or anything we could avoid). Is she having trouble reading any now? OCD can affect reading. It can often distract them, but it could also have them repeating things or doing some compulsion while trying to read.... It can affect being able to write too. It can affect a lot of things! I had to read to and do his writing for him for a while. We set up a 504 Plan at school for him and had accommodations for this, plus a few others, to help us (him, but me too, lol) while OCD was so bad. Kids can hold back OCD while at school, try to hide it, but it generally bursts forth once they're through the door at home. Have you noticed this with her? > I would like to know the best way to handle it when she acts out and we can't > send her to her room to calm dawn because she can't go in there until she > showers? She also has frequent melt downs when we are studying with her for > tests. She was a straight A student for a few years and now 4th grade is >really > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2011 Report Share Posted February 2, 2011   Hi,   I agree with your comprehension of food sensitivity to OCD.  The IgG blood test is a good indicator for food intolerances that appear over            time symptoms that are not recognized at first.  Two books I have read that have helped understand how food relates to the brain is:            The Acid Aklaine Balance Diet by Felicia Drury Klimet.  I was able to get it through my library.             Eat Right for your Bloodtype Dr. J. D' Adamo.   Both books give me support about the physical component in the mental state of             OCD.   Thanks for sharing.   ________________________________ To: Sent: Tue, February 1, 2011 1:45:11 PM Subject: Re: New to the Group  Hi. I am wondering if you have looked into food allergies as exacerbating your daughter's symptoms.  The reason I ask is you said some foods make her feel " greasy " and the fact that she has eczema. .  W/my 12 yr old ds, he complained constantly of his forehead " itching " when he was feeling stress.  Since we have taken him off of all corn product and all dyes, he rarely complains of that and his anxiety is down but not gone. We still deal w/OCD every day but it is far less than when we started down this road. There could be other foods like dairy also that affect your daughter. It is a common allergen associated w/eczema.   Just some thoughts.  I am so sorry. I know OCD takes a toll on the whole family........................................Larkellen Estate and Garage Sales Facebook Page www.estateandgaragesales.biz Subject: New to the Group To: Date: Tuesday, February 1, 2011, 1:18 PM My name is and I am desperate to get some support because my 9 year old daughter is beginning to show more and more signs of OCD. she had mild symptoms that would go away for the past few years after school starts but this year it escalated and we began looking for therapy. We have been going to " play therapy " for a few months but I don't think it is helping much. When something gets better it is because my daughter decided to do something different and it doesn't always last. We are very stressed trying to figure out what the " rules " are each day and they are not consistent. The therapist says she will get over it when she chooses but all I see is the behaviors becomming permanent. Mostly she washes her hands a lot, can't go to bed without showering or come back out except to use the restroom after showering. She can't touch her toys without showering and she keeps many belongings separate like her school lunch from her backpack. Also different foods make her feel she is greasy so she cannot do homework after eating. She has ecema so all the washing is hurting her skin. If we try to change anything or put her in her room when she is acting out she becomes out of control like a wild animal and will literally claw her way out past us. Or she will have melt downs like a toddler. We never know how to handle any of this and are just told by the therapist to " be the parent " and that she should follow our rules but I cannot stand to see her hurting so I give in a lot. I also have anxiety/panic attacks and so this is very hard for me and it adding to my constant worrying. I would really love to find a face to face support group in Orange County for parents of kids with OCD if there is one? I have felt very alone dealing with this and I am overwelmed and cannot afford for myself to get therapy but we sacrafice for my daughter to go. ------------------------------------ Our list archives feature may be accessed at: http://health.groups.yahoo.com/group// by scrolling down to the archives calendar . Our links may be accessed at http://health.groups.yahoo.com/group//links . Our files may be accessed at http://health.groups.yahoo.com/group//files . Our list advisors are Gail B. , Ed.D.(http://www.ocdawareness.com ), Tamar Chansky, Ph.D.( http://www.worrywisekids.org ), and Dan Geller, M.D. ( http://www.massgeneral.org/doctors/doctor.aspx?ID=18068 ). You may ask a question of any of these mental health professionals by inserting the words " Ask Dr.(insert name) " in the subject line of a post to the list. Our list moderators are Castle, Judy Chabot, BJ Closner, and Barb Nesrallah. You may contact the moderators at -owner . OCDKidsLoop membership may be accessed at http://health.groups.yahoo.com/group/ocdkidsloop/ . Our group and related groups are listed at http://health.groups.yahoo.com/group/ocdsupportgroups/links .. IOCDF treatment providers list may be viewed at http://www.ocfoundation.info/treatment-providers-list.php . NLM-NIH Drug Information Portal may be viewed at http://druginfo.nlm.nih.gov/drugportal/drugportal.jsp?APPLICATION_NAME=drugporta\ l . IOCDF recommended reading list may be accessed at http://www.ocfoundation.org/Books.aspx . IOCDF glossary of terms may be accessed at http://www.ocfoundation.org/glossary.aspx . IOCDF membership link may be accessed at http://www.ocfoundation.net/membership/ . Drugs.com pill identification wizard may be accessed at http://www.drugs.com/imprints.php . Mayo Clinic Drug and Herb Index may be accessed at http://www.mayoclinic.com/health/drug-information/DrugHerbIndex .Yahoo! Groups Links Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2011 Report Share Posted February 2, 2011 Welcome to the group, . I see told you about CBT/ERP. We went to many therapists over the years, with our son (now 18), who tried many different things to treat his OCD (including play therapy). Nothing helped until we found a therapist who used CBT/ERP. There aren't a lot of therapists who truly understand OCD, so they can be hard to find. I don't know how close this therapist is to you, but others have recommended her in this group. And a friend of mine uses her for her daughter and really likes her. Hopefully she isn't too far away from you. If she is, she might be able to recommend someone closer to you. http://www.lrwalker.net/ From reading Dr. Wagner's book, the explosive fits of rage aren't OCD, but it seems they often go hand in hand with it. I found, when our son was young, and fearful of something, he would fight like he was fighting for his very life. There is a book some in here have talked about, called The Explosive Child. I wonder if you might find some helpful information in it to cope with her fits of rage. Once the OCD is more under control, the rage can subside, for some. Our son also has eczema. It was MUCH worse when he was younger. We " literally " held him down and had him allergy tested. Nothing came back as an allergy, no food, nothing in the environment, nothing. Since then, he's been tested a number of times more, yet the tests always come back as him not being allergic to anything. Yet, he reacts to things. I've come to the conclusion that he is sensitive to things, but not to the degree that it shows up as an allergy. I watched him closely, and if I noticed anything in particular that was setting him off, that was an obviously known allergen, I would eliminate that from his diet, to try to prevent reactions. There can be many parts to the puzzle of trying to figure out what is making your child sick, but the first line of treatment, recommended, by the experts in the field of OCD, is CBT/ERP (cognitive behavioral therapy / exposure and response prevention). Glad you found our group. BJ > > My name is and I am desperate to get some support because my 9 year old daughter is beginning to show more and more signs of OCD. she had mild symptoms that would go away for the past few years after school starts but this year it escalated and we began looking for therapy. We have been going to " play therapy " for a few months but I don't think it is helping much. When something gets better it is because my daughter decided to do something different and it doesn't always last. We are very stressed trying to figure out what the " rules " are each day and they are not consistent. The therapist says she will get over it when she chooses but all I see is the behaviors becomming permanent. Mostly she washes her hands a lot, can't go to bed without showering or come back out except to use the restroom after showering. She can't touch her toys without showering and she keeps many belongings separate like her school lunch from her backpack. Also different foods make her feel she is greasy so she cannot do homework after eating. She has ecema so all the washing is hurting her skin. If we try to change anything or put her in her room when she is acting out she becomes out of control like a wild animal and will literally claw her way out past us. Or she will have melt downs like a toddler. We never know how to handle any of this and are just told by the therapist to " be the parent " and that she should follow our rules but I cannot stand to see her hurting so I give in a lot. I also have anxiety/panic attacks and so this is very hard for me and it adding to my constant worrying. > I would really love to find a face to face support group in Orange County for parents of kids with OCD if there is one? I have felt very alone dealing with this and I am overwelmed and cannot afford for myself to get therapy but we sacrafice for my daughter to go. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2011 Report Share Posted February 2, 2011 BJ That therapist looks great but she is probably 1 - 1 1/2 hours from here but I think I will call and see if they have a referral to someone closer. I live a few miles south of Disneyland in Orange County. The trick is finding someone who takes Tricare.  It's not easy to find someone good who takes that because they get less money from the Ins but we pay $25 per appointment.  More and more she seems overwelmed easily and when we try to control her she is getting more and more angry and talking back. She is very smart and also gets overwelmed very quickly. She gets distracted a lot in class day dreaming or gets bored sometimes so she doesn't pay attention. Then at home she is very difficult to teach because she tunes us out, so it takes many hours to simply do what should be a few minutes. I am wondering if on top of OCD she may have ADD or something causing the frustration. She has had a rough life. Her biological father(my ex who I left and divorced 5 1/2 years ago) was verbally abusive to me and violent towards objects in our home and she witnessed that when she was little. That is where I developed my panic attacks and anxiety. I think I may suffer Post Traumatic Stress. I really believe he is bi polar and refuses to get help but that is another story. I am really thankful to have found this group because to be honest this is still very new to me and I am still really having trouble coming to terms with the fact that my little girl has a lot of issues to face and it breaks my heart to see her suffering. No one on this site has mentioned if there are any face to face meetings ever in this area? Does anyone know of any? It would just be great to get together once a month face to face to hear everyone share about how they survive through these challenges. ________________________________ To: Sent: Wed, February 2, 2011 12:23:09 PM Subject: Re: New to the Group  Welcome to the group, . I see told you about CBT/ERP. We went to many therapists over the years, with our son (now 18), who tried many different things to treat his OCD (including play therapy). Nothing helped until we found a therapist who used CBT/ERP. There aren't a lot of therapists who truly understand OCD, so they can be hard to find. I don't know how close this therapist is to you, but others have recommended her in this group. And a friend of mine uses her for her daughter and really likes her. Hopefully she isn't too far away from you. If she is, she might be able to recommend someone closer to you. http://www.lrwalker.net/ From reading Dr. Wagner's book, the explosive fits of rage aren't OCD, but it seems they often go hand in hand with it. I found, when our son was young, and fearful of something, he would fight like he was fighting for his very life. There is a book some in here have talked about, called The Explosive Child. I wonder if you might find some helpful information in it to cope with her fits of rage. Once the OCD is more under control, the rage can subside, for some. Our son also has eczema. It was MUCH worse when he was younger. We " literally " held him down and had him allergy tested. Nothing came back as an allergy, no food, nothing in the environment, nothing. Since then, he's been tested a number of times more, yet the tests always come back as him not being allergic to anything. Yet, he reacts to things. I've come to the conclusion that he is sensitive to things, but not to the degree that it shows up as an allergy. I watched him closely, and if I noticed anything in particular that was setting him off, that was an obviously known allergen, I would eliminate that from his diet, to try to prevent reactions. There can be many parts to the puzzle of trying to figure out what is making your child sick, but the first line of treatment, recommended, by the experts in the field of OCD, is CBT/ERP (cognitive behavioral therapy / exposure and response prevention). Glad you found our group. BJ > > My name is and I am desperate to get some support because my 9 year >old daughter is beginning to show more and more signs of OCD. she had mild >symptoms that would go away for the past few years after school starts but this >year it escalated and we began looking for therapy. We have been going to " play >therapy " for a few months but I don't think it is helping much. When something >gets better it is because my daughter decided to do something different >and it doesn't always last. We are very stressed trying to figure out what the > " rules " are each day and they are not consistent. The therapist says she will >get over it when she chooses but all I see is the behaviors becomming permanent. >Mostly she washes her hands a lot, can't go to bed without showering or come >back out except to use the restroom after showering. She can't touch her toys >without showering and she keeps many belongings separate like her school lunch >from her backpack. Also different foods make her feel she is greasy so she >cannot do homework after eating. She has ecema so all the washing is hurting her >skin. If we try to change anything or put her in her room when she is acting out >she becomes out of control like a wild animal and will literally claw her way >out past us. Or she will have melt downs like a toddler. We never know how to >handle any of this and are just told by the therapist to " be the parent " and >that she should follow our rules but I cannot stand to see her hurting so I give >in a lot. I also have anxiety/panic attacks and so this is very hard for me and >it adding to my constant worrying. > I would really love to find a face to face support group in Orange County for >parents of kids with OCD if there is one? I have felt very alone dealing with >this and I am overwelmed and cannot afford for myself to get therapy but we >sacrafice for my daughter to go. > Quote Link to comment Share on other sites More sharing options...
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