Guest guest Posted December 3, 2010 Report Share Posted December 3, 2010 Tresse, I know just how you feel. I remember the last time Matt was in the hospital I was so afraid and so sad that his life was such a mess. I too find myself bitter - not just for the things he's never had, but also for the suffering he went through. I just can't recomcile the suffering of a child. Mental illness is so stigmatizing in our society and we have to face some of our own discomfort with such a diagnosis (we probably grew up carrying those ideas to some extent too). Parents like us are isolated and scrutinized and we have all these strong feelings about wanting to help our children and feeling helpless - is it any wonder we are looking for a " better " diagnosis? I guess I have to stop looking for reasons why things are the way they are - it takes too much energy and it doesn't solve anything. Sometimes it helps to make lists of accomplishments or jot down memories of happy times so that you can remind yourself that things will get better - they will. I'll be thinking of you Bonnie > > Bonnie, I have asked myself this question, yes. I only have 1 child, and it took > 4 surgeries to become pregnant with her. > When I see my beautiful daughter suffering and struggling and she is away in a > hospital instead of home in school going to the Homecoming Dance like her > friends I just about burst. I cry often, I try to remain hopeful but feel bitter > and sad. Why her? It is a grieving process, and then an acceptance of life as it > is now with OCD. For me, I grieved her childhood at the same time, since she was > diagnosed at age 12. > > I also have trouble giving up the quest to find a reason for her OCD. She has > had blood work done for PANDAS and PITAND and all negative, but she did text > positive for Lyme's. Does anyone else find this a battle? At what point do you > accept that it is OCD with no physiological base? > Tresse > > > > > Quote Link to comment Share on other sites More sharing options...
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