Tresse and Faith

[Guest guest]

Tresse--have you treated your daughter for Lyme? My son is being treated now for

Lyme and Bartonella ( another tick borne disease) and obviously didn't have the

right antibiotic combo becaue within 48 hours of an additional antibiotic, some

of his compulsions we have been seeing ( needing to fall down, walk with

crossing one leg over the other as if he is Irish step-dancing)have disappeared.

We finally consulted with a Lyme Literate MD. Our PANDAS doc was baffled that DS

wasn't getting better after 2 IVIG's and was getting worse. He had been dx'd

with Lyme, but had 3 months of abx for it.

It may be worth seeing a Lyme Literate MD ( LLMD) for a second look at your

daughter. Contact Lymedocs@... for a LLMD recommendation.

Best of luck to you. It does feel like a battle and we and our children are the

weary soldiers.

Terry

>

> Bonnie, I have asked myself this question, yes. I only have 1 child, and it

took

> 4 surgeries to become pregnant with her.

> When I see my beautiful daughter suffering and struggling and she is away in a

> hospital instead of home in school going to the Homecoming Dance like her

> friends I just about burst. I cry often, I try to remain hopeful but feel

bitter

> and sad. Why her? It is a grieving process, and then an acceptance of life as

it

> is now with OCD. For me, I grieved her childhood at the same time, since she

was

> diagnosed at age 12.

>

> I also have trouble giving up the quest to find a reason for her OCD. She has

> had blood work done for PANDAS and PITAND and all negative, but she did text

> positive for Lyme's. Does anyone else find this a battle? At what point do you

> accept that it is OCD with no physiological base?

> Tresse

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