Guest guest Posted April 10, 2006 Report Share Posted April 10, 2006 Hello, I just started Kineret 5 days ago but am still on high dose of pred. so I don't know if I will truly feel the full of effect of the Kinerret until pred at reduced. I am tapering down but still on 30mg a day! Thus far I do feel better than I did a few weeks ago no real joint pain right now just battling the EVER so itchy rash & the effects of pred. Chris Joe Faulk wrote: Good morning all my stills friends.... Who out there takes Kineret? As soon as the Gods of Insurance deem me worthy enough to receive the benevolence of their coverage, I am going to begin the injections. I have tapered to 10 mgs of the dreaded prednisone daily and my rheumy doesn't want me to go any lower. I also take 200mg (the highest dosage) of Imuran daily. So now we'll through Kineret into the cocktail and see if that works. Rheumy says that if the Kineret doesn't work then we're going to try Rituxan. But that is a last ditch effort. So, if you take Kineret I'd like to hear your experiences, good or bad. Look forward to your responses and I truly, truly hope we all can one day beat this dragon and that you have a pain free day. You are my brothers and sisters, Joe --------------------------------- Blab-away for as little as 1¢/min. Make PC-to-Phone Calls using Yahoo! Messenger with Voice. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2006 Report Share Posted April 10, 2006 Hi Joe I have been on Kineret for nearly three years now and it has really made a difference for me. I started it after having a very serious infusion reaction to Remicade. I have been able to wean off Prednisone and Methotrexate, and currently use Arava and Kineret together. I have had the usual infection issues with a suppressed immune system, including a septic joint last fall that required surgery and 8 weeks of IV antibiotics 3x per day. I think it was to my benefit that I was on Kineret at the time, because I ended the daily injections as soon as I realized I had Staph infection in my blood. Because you take it every day, it leaves your system rather quickly. This allowed me to better fight the infection, and may very well have saved my life, or at least my knee. Doc says one more day of the knee being full of staph (22 " in circumference!) and I would have lost the joint...meaning a knee replacement at age 34. WHEW! All in all, I am very happy with the way Kineret seems to work for me. My rheumy agrees. I have been on Enbrel and Remicade before, but this seems to agree with my body better than anything else we have tried in the last 7 years. I hope the Insurance gods smile on you! Good Luck Stay Healthy Joe Faulk wrote: Good morning all my stills friends.... Who out there takes Kineret? As soon as the Gods of Insurance deem me worthy enough to receive the benevolence of their coverage, I am going to begin the injections. I have tapered to 10 mgs of the dreaded prednisone daily and my rheumy doesn't want me to go any lower. I also take 200mg (the highest dosage) of Imuran daily. So now we'll through Kineret into the cocktail and see if that works. Rheumy says that if the Kineret doesn't work then we're going to try Rituxan. But that is a last ditch effort. So, if you take Kineret I'd like to hear your experiences, good or bad. Look forward to your responses and I truly, truly hope we all can one day beat this dragon and that you have a pain free day. You are my brothers and sisters, Joe --------------------------------- Blab-away for as little as 1¢/min. Make PC-to-Phone Calls using Yahoo! Messenger with Voice. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2006 Report Share Posted April 13, 2006 Hi Joe, I have taken Kineret for about a year and a half now with great success. It took a few weeks to get into the system, but now that it has, I have much less symptoms - especially the fatigue. I occassionally will get a bruise from the shot, but that's about it for me. I know others have rashes sometimes. It does hurt a bit more than Enbrel to inject, but I'm used to it by now. I can tell when I barely prick if it's going to hurt in the spot I picked and will move it if it does. I can only inject in my lower abdomen - hurts way too much in the legs. Good luck and tell us how it goes! It took awhile for insurance to approve me, but they did. Their big concern was that I was so young to be taking a drug that they don't know much about the outcomes of. But I told the codgy doc at the insurance company that I know the risks and he is only supposed to say yes or no based upon the approved uses of that drug for my condition. Got it approved! I think it's worth it - heck I'd take Vioxx if they would release it again. Keep us updated! Houston Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2006 Report Share Posted April 14, 2006 Joe, I just finished my 2nd week on Kineret. It must be working, because earlier this week I didn't get up as early as I had been to set out the syringe and then give the shot an hour later. I was so stiff, I had to have help getting my joints moving again. I recommend to try and select a time of day where you can give the injection at approximately the same time. I can also tell you that I have had some injection site reactions. The reactions are mostly bruising and a recently a small rash. I am also on Methotrexate and Salsalate. Good Luck with the Kineret. Joe Faulk wrote: Good morning all my stills friends.... Who out there takes Kineret? As soon as the Gods of Insurance deem me worthy enough to receive the benevolence of their coverage, I am going to begin the injections. I have tapered to 10 mgs of the dreaded prednisone daily and my rheumy doesn't want me to go any lower. I also take 200mg (the highest dosage) of Imuran daily. So now we'll through Kineret into the cocktail and see if that works. Rheumy says that if the Kineret doesn't work then we're going to try Rituxan. But that is a last ditch effort. So, if you take Kineret I'd like to hear your experiences, good or bad. Look forward to your responses and I truly, truly hope we all can one day beat this dragon and that you have a pain free day. You are my brothers and sisters, Joe --------------------------------- Blab-away for as little as 1¢/min. Make PC-to-Phone Calls using Yahoo! Messenger with Voice. Quote Link to comment Share on other sites More sharing options...
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