Re: pandas testing, vasculitis

November 7, 2010

Tresse, I don't know much about this area, but I did understand that Lyme can be

a trigger for OCD. Did she have the OCD before the Lyme or after, or do you

know? I thought this even fell under the category of PANDAS, as an immune based

trigger?

I'm thinking you are already connected with the PANDAS sites for information?

Hopefully someone with more knowledge will respond. I know Judy, one of the

moderators, has a son with PANDAS who also has had Lyme, and more than once I

believe. She is busy with her son who is undergoing treatment at the moment, so

not available to answer on this. I'll try sending her your post, in case she

has time to respond though.

Warmly,

Barb

>

> My 14 yr old daughter with severe OCD had blood tests done and read by Dr.

> Triflletti last Jan. She tested negative for strep and immune issues so was

not

> diagnosed 'Pandas'. She is not responding to any psych meds and we have tried

5

> different ones. She was diagnosed with Lyme's last year and treated with

> antibiotic and OCD improved. Is there anyone whose child tested negative for

> Pandas but was treated with antibiotics anyway that helped OCD?

>

> My daughter also has random rashes on her legs that look like many mosquito

> bites and her Pediatrician diagnosed as vasculitis. I recently read that

> vasculitis can cross the blood brain barrier and cause brain inflammation and

I

> think this could be related to her OCD. Does anyone else's OCD children ever

get

> rashes like this (they don't blanch like a regular bite when you run your

finger

> over them and they go from red to purple before disappearing)?

> Tresse in NJ

>

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