Guest guest Posted January 7, 2006 Report Share Posted January 7, 2006 Dear Brett,How long have you had Still's? I have had RA since I was 11, now I am 32. I guess I had Still's but I was not dx until 3 years go when I thought my RA was going haywire after surgery. I found out that Ra was my secondary disease and that Still's was my primary. When I was a kid my throat would hurt and I could not walk often. It was terrible ! In my 20's I did so many things because even though I still had RA, I did not get the sore throats or crippling pain as badly. I was doing well for quite a while. I guess what I am trying to say is that remissions do happen and so do wonderful surprises! I know I sound very cliche, but I wouldn't say it if I didn't experience it for myself. I love the quote from the song that quoted! Looking toward the stars is something we should all do. Hang in there, I know it is tuff to deal w/ pain and even overwhelming to deal w/ all of the surprises Still's offers. I have learned to distract myself w/ pleasant things as much as possible. I am rambling now so I will go before there is no Cyberspace left to send this email lol! Shar xxoo > Darv, I hope you wife is feeling better. I know what you mean > about people > not understanding what we deal with and yet how could they without > experiencing AOSD first hand. Sometimes I feel like a freak because > of the > looks I get from people. who cares! > > Take care, Brett > Feeling lousy! > > > > I am starting to get the idea what this disease is doing to me and how > aggressively it is attacking me. The last few days my wrists, > knees, and > lower back have been hurting a lot more and I have headaches > everyday now. > But what I think is bothering me the most is how easily I'm getting > fatigued > and out of breath. I went to the store today and just walking back > to my car > I had to sit and rest for a few minutes. I hope I don't sound like > I am > whiner but this disease sucks! Tomorrow is another day. A verse > from a song > I like has been stuck in my head today... All of us get lost in the > darkness > dreamers learn to steer by the stars, All of us do time in the gutter > dreamers turn to look at the cars. It helped to keep my mind off > things. > > Better days ahead for us all, Brett > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2006 Report Share Posted January 7, 2006 Sharon, I was dx around the middle of November, but looking back the dragon was buzzing around my head I think for several months before hand. For the most part I have dealt with this life change pretty well but since I have not had my first remission yet it is sometimes hard to see that light at the end of the tunnel. Be well, Brett Feeling lousy! > > > > I am starting to get the idea what this disease is doing to me and how > aggressively it is attacking me. The last few days my wrists, > knees, and > lower back have been hurting a lot more and I have headaches > everyday now. > But what I think is bothering me the most is how easily I'm getting > fatigued > and out of breath. I went to the store today and just walking back > to my car > I had to sit and rest for a few minutes. I hope I don't sound like > I am > whiner but this disease sucks! Tomorrow is another day. A verse > from a song > I like has been stuck in my head today... All of us get lost in the > darkness > dreamers learn to steer by the stars, All of us do time in the gutter > dreamers turn to look at the cars. It helped to keep my mind off > things. > > Better days ahead for us all, Brett > > Quote Link to comment Share on other sites More sharing options...
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