Re: Home from school now

[Guest guest]

Are you trying any nutrition?

I empathize with you so much.

My daughter also went to NYSPI in nyc. the program was okay. Not great

through.

I know I sound like a broken record but magesium deficiency is SO prevalent

and can cause SO many bad symptoms. There is a new magnesium spray, by

ancient minerals and a cream by Dr. shealy. I would try something like this ,

I have ocd and bad anxiety and my daughter also. these things have helped.

In a message dated 11/4/2010 11:31:32 A.M. Eastern Daylight Time,

bhamelburg@... writes:

On Tuesday, I was asked by the principal to take home from school.

He was not able to do any school work there even when given a prvate office

for the day and help from his para. He said he saw no point having him

there when he couldn't function. He also said that he didn't believe that his

school was right for . They were supposed to call me that afternoon

about options for his education and I have heard nothing since I took him

home.

He is now also on Depakote as it is still insisted that he has a bipolar

disorder. It was explaind that because 's anxiety and panic are so

random and episodic, that it is thought to be more instrinsic in nature and

so even though his disabling symptom is anxiety, it behaves the way a bipolar

illness does. SO I then asked why no mood stabilizer has helped. I got a

question mark in return. is agoraphobic and cries and panics when I

make him go even to the park or the doctor. He's miserable and suffering.

I am calling Columbia in NYC to try to get the child study team there to

see him. Our therapist is calling a psychiatrist she knows. I am going to

see our reg pdoc today and get a script for homebound instruction, and I am

going to look at therapeutic schools. I have sent a letter to the board of ed

because they are denying education to my son by sending him home with no

further plan for educating him.

Does anyone else have any ideas?

Bonnie

[Guest guest]

Bonnie, does your son go to public school? It's illegal for them to deny him

education. My friend sued out school district and won because they said they

didn't have room for her autistic son. I would recommend contacting an attorney

who specializes in special education law.

Steffanie

In a message dated 11/4/2010 11:31:32 A.M. Eastern Daylight Time,

bhamelburg@... writes:

On Tuesday, I was asked by the principal to take home from school.

He was not able to do any school work there even when given a prvate office

for the day and help from his para. He said he saw no point having him

there when he couldn't function. He also said that he didn't believe that his

school was right for . They were supposed to call me that afternoon

about options for his education and I have heard nothing since I took him

home.

He is now also on Depakote as it is still insisted that he has a bipolar

disorder. It was explaind that because 's anxiety and panic are so

random and episodic, that it is thought to be more instrinsic in nature and

so even though his disabling symptom is anxiety, it behaves the way a bipolar

illness does. SO I then asked why no mood stabilizer has helped. I got a

question mark in return. is agoraphobic and cries and panics when I

make him go even to the park or the doctor. He's miserable and suffering.

I am calling Columbia in NYC to try to get the child study team there to

see him. Our therapist is calling a psychiatrist she knows. I am going to

see our reg pdoc today and get a script for homebound instruction, and I am

going to look at therapeutic schools. I have sent a letter to the board of ed

because they are denying education to my son by sending him home with no

further plan for educating him.

Does anyone else have any ideas?

Bonnie

[Guest guest]

Bonnie, I'm sorry you & are in this situation!

About school - if the principal said their school isn't the right place for

, the school will have to pay for any other placement that is *right* if

there's a cost. I'd be looking at the therapeutic schools also and not worry

about any cost.

I'd also contact the principal, as you said you will, and ask what the school is

considering to meet Matt's needs, that since he said he didn't feel they could

meet them, what are they considering. If they are considering other options you

feel aren't any good, I'd have some in mind you feel will be good, etc. And

prepare to argue your choice, etc.

Keep us updated!!!

>

>

> Bonnie, does your son go to public school? It's illegal for them to deny him

education. My friend sued out school district and won because they said they

didn't have room for her autistic son. I would recommend contacting an attorney

who specializes in special education law.

>

> Steffanie

>

>

> In a message dated 11/4/2010 11:31:32 A.M. Eastern Daylight Time,

> bhamelburg@... writes:

>

> On Tuesday, I was asked by the principal to take home from school.

> He was not able to do any school work there even when given a prvate office

> for the day and help from his para. He said he saw no point having him

> there when he couldn't function. He also said that he didn't believe that his

> school was right for . They were supposed to call me that afternoon

> about options for his education and I have heard nothing since I took him

> home.

>

> He is now also on Depakote as it is still insisted that he has a bipolar

> disorder. It was explaind that because 's anxiety and panic are so

> random and episodic, that it is thought to be more instrinsic in nature and

> so even though his disabling symptom is anxiety, it behaves the way a bipolar

> illness does. SO I then asked why no mood stabilizer has helped. I got a

> question mark in return. is agoraphobic and cries and panics when I

> make him go even to the park or the doctor. He's miserable and suffering.

>

> I am calling Columbia in NYC to try to get the child study team there to

> see him. Our therapist is calling a psychiatrist she knows. I am going to

> see our reg pdoc today and get a script for homebound instruction, and I am

> going to look at therapeutic schools. I have sent a letter to the board of ed

> because they are denying education to my son by sending him home with no

> further plan for educating him.

>

> Does anyone else have any ideas?

>

> Bonnie

>

>

[Guest guest]

Bonnie,

No ideas for you at the moment, but I just wanted to let you and know

that I'm thinking of you and hoping for some improvement soon. I'm so sorry

that he and you are having such a tough time and that the school seems to be

just washing it's hands of the whole issue of how best to educate him.

(mom w/OCD, 10.5 yo dd w/OCD)

>

> Subject: Home from school now

> To:

> Date: Thursday, November 4, 2010, 10:48 AM

> On Tuesday, I was asked by the

> principal to take home from school.  He was not

> able to do any school work there even when given a prvate

> office for the day and help from his para.  He said he

> saw no point having him there when he couldn't

> function.  He also said that he didn't believe that his

> school was right for .  They were supposed to

> call me that afternoon about options for his education and I

> have heard nothing since I took him home. 

>

> He is now also on Depakote as it is still insisted that he

> has a bipolar disorder.  It was explaind that because

> 's anxiety and panic are so random and episodic, that

> it is thought to be more instrinsic in nature and so even

> though his disabling symptom is anxiety, it behaves the way

> a bipolar illness does.  SO I then asked why no mood

> stabilizer has helped.  I got a question mark in

> return.  is agoraphobic and cries and panics

> when I make him go even to the park or the doctor. 

> He's miserable and suffering.   

>

> I am calling Columbia in NYC to try to get the child study

> team there to see him.  Our therapist is calling a

> psychiatrist she knows.  I am going to see our reg pdoc

> today and get a script for homebound instruction, and I am

> going to look at therapeutic schools.  I have sent a

> letter to the board of ed because they are denying education

> to my son by sending him home with no further plan for

> educating him. 

>

> Does anyone else have any ideas?

>

> Bonnie

>

>

>

> ------------------------------------

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> .

[Guest guest]

Bonnie, I am trying to remember my dd's situation. She had very severe anxiety

as well as very active bipolar. I have never heard of what you are saying as the

explanation for why his anxiety is bipolar. I am not saying it isn't, I just

haven't heard of it that way. My dd's anxiety was always very active when she

was manic but so were other symptoms for her bipolar at the same time. She

couldn't attend school for 3 years and she was technically on homebound

instruction but that didn't work very well for her either. My dd was agorophobic

as well. When your son is at home, and doesn't have to go anywhere or do

anything, does he still have the severe anxiety symptoms? When my dd's was part

of her bipolar it didn't matter what else was going on throughout the day her

anxiety stayed as long as her bipolar wasn't under control ( day and night). Her

regular severe anxiety, when not manic, would take breaks sometimes during the

day if she didn't have to leave the house . Does that make sense? As far as

bipolar, have they tried other meds and combos as well? My dd needs multiple

mood stabilizers at once, (Lithium, Lamictal, and Geodon) to keep her bipolar in

check and also uses Neurontin for anxiety. I believe if your son's school can't

educate him they need to provide something. For my dd this was homebound which

still, as I said, didn't work great for her. I hope your son feels better soon.

Stormy

________________________________

To:

Sent: Thu, November 4, 2010 9:48:27 AM

Subject: Home from school now

He is now also on Depakote as it is still insisted that he has a bipolar

disorder. It was explaind that because 's anxiety and panic are so

random and episodic, that it is thought to be more instrinsic in nature and so

even though his disabling symptom is anxiety, it behaves the way a bipolar

illness does. SO I then asked why no mood stabilizer has helped. I got a

question mark in return. is agoraphobic and cries and panics when I

make him go even to the park or the doctor. He's miserable and suffering.

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[Guest guest]

I would called Emerson Dickman's office and if you like work with

their advocate social worker to get your son in a school as soon

as possible. My niece has been on home instruction since March last

year and now her high school wants her to switch to online course.

It all dragged out way too long without an advocate. Ask each expert you see to

put in writing that due to his disability he needs a therapuetic setting.

Emerson's office

is known for advocating without having to go to court. It seems your

son has struggled enough in public school. It will only get worse

keeping him at home. You can call stepping stone in Chatham asap

and get him into a partial day program and have his home instruction done there

if you like that idea better. I just called them about my niece. A few people I

know have said that insurance pays for

stepping stone services almost fully.

I am hoping and praying for your son. Email me if you want to talk on the phone.

Pam

>

> On Tuesday, I was asked by the principal to take home from school. He

was not able to do any school work there even when given a prvate office for the

day and help from his para. He said he saw no point having him there when he

couldn't function. He also said that he didn't believe that his school was

right for . They were supposed to call me that afternoon about options

for his education and I have heard nothing since I took him home.

>

> He is now also on Depakote as it is still insisted that he has a bipolar

disorder. It was explaind that because 's anxiety and panic are so

random and episodic, that it is thought to be more instrinsic in nature and so

even though his disabling symptom is anxiety, it behaves the way a bipolar

illness does. SO I then asked why no mood stabilizer has helped. I got a

question mark in return. is agoraphobic and cries and panics when I

make him go even to the park or the doctor. He's miserable and suffering.

>

> I am calling Columbia in NYC to try to get the child study team there to see

him. Our therapist is calling a psychiatrist she knows. I am going to see our

reg pdoc today and get a script for homebound instruction, and I am going to

look at therapeutic schools. I have sent a letter to the board of ed because

they are denying education to my son by sending him home with no further plan

for educating him.

>

> Does anyone else have any ideas?

>

> Bonnie

>

[Guest guest]

Bonnie about the diagnosis. It may be anxiety with neurological issues. Didn't

you tell us that had some issues with

executive function deficits. Or was that someone you knew. Kids

with any kind of neuropsychological issues are very sensitive

to medications (from reading info on Mass General web site on AS kids). The hope

is that the brain continues to develop into the

early 20's. And I am hoping he gets more stable. I know that

kids with neurological issues are so very overhwelmed from

being too overstimulated. We have a difficult time each year

around this time of year as homework increases, and there

are more activities for halloween and days off. It is all very

de-stabizing.

He may just not be responding to the medication for anxiety

in the way the doctors hope but I don't think he has bipolar

unless he has the bipolar symptoms of night terrors, manic

side, gradiose ideas etc. So much has been written on this

in the Juevenile Bipolar Foundation.

Pam

>

> On Tuesday, I was asked by the principal to take home from school. He

was not able to do any school work there even when given a prvate office for the

day and help from his para. He said he saw no point having him there when he

couldn't function. He also said that he didn't believe that his school was

right for . They were supposed to call me that afternoon about options

for his education and I have heard nothing since I took him home.

>

> He is now also on Depakote as it is still insisted that he has a bipolar

disorder. It was explaind that because 's anxiety and panic are so

random and episodic, that it is thought to be more instrinsic in nature and so

even though his disabling symptom is anxiety, it behaves the way a bipolar

illness does. SO I then asked why no mood stabilizer has helped. I got a

question mark in return. is agoraphobic and cries and panics when I

make him go even to the park or the doctor. He's miserable and suffering.

>

> I am calling Columbia in NYC to try to get the child study team there to see

him. Our therapist is calling a psychiatrist she knows. I am going to see our

reg pdoc today and get a script for homebound instruction, and I am going to

look at therapeutic schools. I have sent a letter to the board of ed because

they are denying education to my son by sending him home with no further plan

for educating him.

>

> Does anyone else have any ideas?

>

> Bonnie

>

[Guest guest]

Hi Bonnie,

I don't have any suggestions but just wanted to say I'm sorry to hear this about

. Poor kid! So hard to see them suffer so much.

We went through similar with our son. They thought bipolar and we tried Epival,

think that's similar to Depakote. It didn't help, and in fact our son seemed to

get worse after a couple months. My observation with ours was, the more

medication or higher dose the more it taxed the system and made everything

worse. Ours started to get better when medications were removed and we tapered

to a low dose of ssri. Not saying this is the case for you, just sharing our

experience with medication. Each kid is so individual on this, and the process

to discovering what works is not fun!

Ours was agoraphobic at times too. School, we tried a small private school at

various times, and he felt more comfortable in general, when he could go. He

wouldn't allow anyone in the house for homeschooling, when we considered it.

What said about episodic nature of OCD vs bipolar mania, which is

constant when present, makes sense as an indicator. We still see a seasonal

cycle to it, with the change in light. Think these kids are just that much more

sensitive to everything sometimes.

Good idea to try and get him seen at Columbia. Hope you can get him in quickly.

Seem to be quite a lot of studies ongoing when I checked at the ocfoundation

website. Spoke to someone at NIMH today, and they said they will consider

people on a case by case basis, and potentially pay travel costs.

Hugs to you! So lousy to be going through this.

Barb

>

> On Tuesday, I was asked by the principal to take home from school. He

was not able to do any school work there even when given a prvate office for the

day and help from his para. He said he saw no point having him there when he

couldn't function. He also said that he didn't believe that his school was

right for . They were supposed to call me that afternoon about options

for his education and I have heard nothing since I took him home.

>

> He is now also on Depakote as it is still insisted that he has a bipolar

disorder. It was explaind that because 's anxiety and panic are so

random and episodic, that it is thought to be more instrinsic in nature and so

even though his disabling symptom is anxiety, it behaves the way a bipolar

illness does. SO I then asked why no mood stabilizer has helped. I got a

question mark in return. is agoraphobic and cries and panics when I

make him go even to the park or the doctor. He's miserable and suffering.

>

> I am calling Columbia in NYC to try to get the child study team there to see

him. Our therapist is calling a psychiatrist she knows. I am going to see our

reg pdoc today and get a script for homebound instruction, and I am going to

look at therapeutic schools. I have sent a letter to the board of ed because

they are denying education to my son by sending him home with no further plan

for educating him.

>

> Does anyone else have any ideas?

>

> Bonnie

>

[Guest guest]

Can I have the link or number to that place in Chatham? I have been trying to

locate partial hosp programs

Thanks!

Bonnie

[Guest guest]

Thanks stormy - yes his anxiety occurs at times even while watching TV. There

is a certain amount always present and then it increases in " waves " .

Bonnie

[Guest guest]

Bonnie, is it possible that your son has akathisia? This can cause severe

anxiety symptoms. Antidepressants can trigger it. Stormy

________________________________

To:

Sent: Fri, November 5, 2010 9:27:46 AM

Subject: Re: Home from school now

Thanks stormy - yes his anxiety occurs at times even while watching TV. There

is a certain amount always present and then it increases in " waves " .

Bonnie

[Guest guest]

http://www.steppingforwardcounselingcenter.com/27101.html

Ooops it is called stepping forward

I hope they can help you with this.

Pam

>

> Can I have the link or number to that place in Chatham? I have been trying to

locate partial hosp programs

>

> Thanks!

> Bonnie

>

[Guest guest]

He gets akathisia from Seroquel in higher doses. In the past he was on Prozac

which helped a lot for a time and then later anxiety became a problem again and

they started treating him with Abilify and Ativan and his behavior became

explosive. This led to hospitalization and his so called bipolar diagnosis.

Bonnie

>

> Bonnie, is it possible that your son has akathisia? This can cause severe

> anxiety symptoms. Antidepressants can trigger it. Stormy

>

>

>

>

>

> ________________________________

>

> To:

> Sent: Fri, November 5, 2010 9:27:46 AM

> Subject: Re: Home from school now

>

>

> Thanks stormy - yes his anxiety occurs at times even while watching TV. There

> is a certain amount always present and then it increases in " waves " .

>

>

> Bonnie

>

>

>

>

>

>

>

>

[Guest guest]

Bonnie, Prozac was a disaster for my dd. Abilify caused her extreme anxiety,

irritability, etc. all 3 times she tried it. I know lots of people have had

problems with Abilify, bipolar or not. Stormy

________________________________

To:

Sent: Fri, November 5, 2010 3:24:29 PM

Subject: Re: Home from school now

He gets akathisia from Seroquel in higher doses. In the past he was on Prozac

which helped a lot for a time and then later anxiety became a problem again and

they started treating him with Abilify and Ativan and his behavior became

explosive. This led to hospitalization and his so called bipolar diagnosis.

Bonnie

>

> Bonnie, is it possible that your son has akathisia? This can cause severe

> anxiety symptoms. Antidepressants can trigger it. Stormy

>

>

>

>

>

> ________________________________

>

> To:

> Sent: Fri, November 5, 2010 9:27:46 AM

> Subject: Re: Home from school now

>

>

> Thanks stormy - yes his anxiety occurs at times even while watching TV. There

> is a certain amount always present and then it increases in " waves " .

>

>

> Bonnie

>

>

>

>

>

>

>

>

[Guest guest]

Bonnie,     Thank you for sharing.   I was curious as to the dose of

Seroquel

attributing to adathisia?    Since my son has it also and concerned about

                  side effects.     Thank you   

________________________________

To:

Sent: Fri, November 5, 2010 3:24:29 PM

Subject: Re: Home from school now

 

He gets akathisia from Seroquel in higher doses. In the past he was on Prozac

which helped a lot for a time and then later anxiety became a problem again and

they started treating him with Abilify and Ativan and his behavior became

explosive. This led to hospitalization and his so called bipolar diagnosis.

Bonnie

>

> Bonnie, is it possible that your son has akathisia? This can cause severe

> anxiety symptoms. Antidepressants can trigger it. Stormy

>

>

>

>

>

> ________________________________

>

> To:

> Sent: Fri, November 5, 2010 9:27:46 AM

> Subject: Re: Home from school now

>

>

> Thanks stormy - yes his anxiety occurs at times even while watching TV. There

> is a certain amount always present and then it increases in " waves " .

>

>

> Bonnie

>

>

>

>

>

>

>

>

[Guest guest]

It varies, but I don't give him more than 50-75mg per day - most of the time

25mg is the most I give him. It goes away when the dose is decreased, but I can

also see a withdrawal type of movement or tic-like movements a couple of weeks

after decreasing the dose

Bonnie

> >

> > Bonnie, is it possible that your son has akathisia? This can cause severe

> > anxiety symptoms. Antidepressants can trigger it. Stormy

> >

> >

> >

> >

> >

> > ________________________________

> > From: bhamelburg <bhamelburg@>

> > To:

> > Sent: Fri, November 5, 2010 9:27:46 AM

> > Subject: Re: Home from school now

> >

> >

> > Thanks stormy - yes his anxiety occurs at times even while watching TV.

There

> > is a certain amount always present and then it increases in " waves " .

> >

> >

> > Bonnie

> >

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

Those are really tiny doses of Seroquel. Children can go as high as 600 mg for

bipolar mania. Stormy

________________________________

To:

Sent: Fri, November 5, 2010 6:04:22 PM

Subject: Re: Home from school now

It varies, but I don't give him more than 50-75mg per day - most of the time

25mg is the most I give him. It goes away when the dose is decreased, but I can

also see a withdrawal type of movement or tic-like movements a couple of weeks

after decreasing the dose

Bonnie

[Guest guest]

Yes, but he has a lot of side effects with higher doses and it doesn't help his

symptoms as intended. He was once on as much as 200mg and he could not sit

still or sleep. Kids with tics, and other stereotypies or other movement

issues, some learning disabilities are more prone to the EPS/akathisia

associated with atypical antipsychotics than other kids.

Bonnie

>

> Those are really tiny doses of Seroquel. Children can go as high as 600 mg for

> bipolar mania. Stormy

>

>

>

>

> ________________________________

>

> To:

> Sent: Fri, November 5, 2010 6:04:22 PM

> Subject: Re: Home from school now

>

>

> It varies, but I don't give him more than 50-75mg per day - most of the time

> 25mg is the most I give him. It goes away when the dose is decreased, but I

can

> also see a withdrawal type of movement or tic-like movements a couple of weeks

> after decreasing the dose

>

> Bonnie

>

>

>

>

>