Guest guest Posted March 14, 2001 Report Share Posted March 14, 2001 >Side effects of Genetically Altered Food > >1) Your hot dog just fetched its own ketchup and relish. >2) You spot the tell-tale signs of a primitive central nervous >system in you Jell-O. >3) Chocchini: looks like zucchini, tastes like a Ding Dong. >4) The black-eyed peas on your fork just winked at you. >5) Every time you pour a glass of orange juice, your garage door >goes up. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2001 Report Share Posted November 12, 2001 Kay, Ask your doctor or your pharmacist about the possibility of side effects of the medications you are taking affecting your voice. Many medications, including a couple you listed, can cause dry mouth which would affect your throat, too. I have Sjogrens Syndrome which means that my saliva glands and tear ducts do not secrete enough saliva. I have great difficulty speaking for longer than a minute. Speaking causes the mouth and throat to dry out quickly. I've had to give up singing in the church choir, or even with the congregation. My voice box hurts all the time from the dryness which also makes my voice go down a couple of registers. The problem is most pronounced in the mornings. When taking any medication there will be side effects that have to be dealt with. For some of us the side effects may be worse than the disease symptoms or injuries we have to deal with. I know that I no longer take any NSAIDs (non-steroidal anti-inflammatory drugs) due to the possibility of liver and kidney damage. After taking Feldene for more than 12 years, the worst offender of kidney and liver damage, my doctors reccomended discontinuing all such medications when I turned 50 two years ago. They felt the chance of liver and kidney damage outweighed any benefits of continuing to take such medications. I have taken Vioxx 12.5 mg daily for three months. I didn't notice any improvement. However since discontinuing it about six weeks ago I have had increased symptoms. Whether than is just part of the Sjogrens and the Reactive Arthritis flaring up again or the Vioxx is not discernable. I will probably start taking the Vioxx again and see if the symptoms decrease. But I will continue to limit it to 12.5 mg. I am, however, very interested in the prospects of Enbrel injections. Ray in Virginia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2001 Report Share Posted November 12, 2001 hi kay! it's the migraine med.s that i'm sure can tighten your throat, but it's only temporary, not sure about anti-depressants. as for me, i feel like my voice has weakened due to pain. too much pain too long in my head and face!!! i know when i'm feeling real bad ,the vibration of my own voice causes more irritation to the head pain. seems like when i feel good, i still don't have the power behind my voice as i once did. maybe, since many of the drugs we are put on cause us to breath more shallow, we can do breathing exercises and increase as well as strengthen out lung capacity?....just a thought......hope you are well GBA! lynn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2001 Report Share Posted November 12, 2001 I too have noticed difficulty singing. Recently I went to a gathering of co-religionists where there was much singing, and while I could get some sound out, my voice both felt & sounded strangled and I could not carry a phrase. It was most distressing. I take celebrex, antivert, celexa, buspar, aciphex, allegra, diazide, flexaril [sp?] and exelon. At this time I have nothing for breakthrough pain. I have closed head brain trauma, post traumatic stress disorder, cochlear-vestibular hydrops, GERD, IBD, cervical disk syndrome, hepatitis C, diabetes 2, damaged disks between T12 & L5, rebuilt right knee, damaged tendons in both wrists & hands, chronic headaches [multitype], chronic pain syndrome, allergies and probably other stuff which I am not remembering because of the brain damage. My current major problems are balancing pain meds with digestive health & knowing when I am reacting badly to something. Three days on Naprosyn led to six months on Tagamet. About every six weeks to two months, I have a several day long bout of nausea, vomiting, cramping & diarrhea during which I have difficulty holding down sterile water-so I cannot take anything at all for a week or more while I wait to be able to digest food again. [someone suggested that I might have diabetic neuropathy in my digestive tract.] I cannot tolerate opiates, though the opioid synthetics are okay; I cannot tolerate nsaids except for the celebrex / vioxx type. Acetaminophen is not recommended for those of us who have liver disease. I am one of those people who read package inserts, so I know what the side effects of my meds are. Unfortunately the side effects are for the most part symptoms which I have most of the time any way from one or another of my conditions. That is how I went to internal bleeding from Naprosyn. I would have stopped taking it sooner if I had recognized what was happening as caused by the drug instead of a pre-existing condition. Any advice or information would be much appreciated. Aubergine AOL IM: ShadoCrone MSN MS: Shadow_Crone YM: shadowcrone ICQ#: 11443880 Wildly Insightful & Talented Crone with a Harley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2001 Report Share Posted November 12, 2001 um whats the gathering of the co-religionists? LiL Missy > >Reply-To: chronic_pain >To: " 'chronic_pain ' " <chronic_pain > >Subject: RE: side effects >Date: Mon, 12 Nov 2001 14:25:59 -0800 > >I too have noticed difficulty singing. Recently >I went to a gathering of co-religionists where >there was much singing, and while I could get >some sound out, my voice both felt & sounded >strangled and I could not carry a phrase. It was >most distressing. > >I take celebrex, antivert, celexa, buspar, >aciphex, allegra, diazide, flexaril [sp?] and >exelon. At this time I have nothing for >breakthrough pain. > >I have closed head brain trauma, post traumatic >stress disorder, cochlear-vestibular hydrops, >GERD, IBD, cervical disk syndrome, hepatitis C, >diabetes 2, damaged disks between T12 & L5, >rebuilt right knee, damaged tendons in both >wrists & hands, chronic headaches [multitype], >chronic pain syndrome, allergies and probably >other stuff which I am not remembering because of >the brain damage. > >My current major problems are balancing pain meds >with digestive health & knowing when I am >reacting badly to something. Three days on >Naprosyn led to six months on Tagamet. About >every six weeks to two months, I have a several >day long bout of nausea, vomiting, cramping & >diarrhea during which I have difficulty holding >down sterile water-so I cannot take anything at >all for a week or more while I wait to be able to >digest food again. [someone suggested that I >might have diabetic neuropathy in my digestive >tract.] I cannot tolerate opiates, though the >opioid synthetics are okay; I cannot tolerate >nsaids except for the celebrex / vioxx type. > Acetaminophen is not recommended for those of us >who have liver disease. I am one of those people >who read package inserts, so I know what the side >effects of my meds are. Unfortunately the side >effects are for the most part symptoms which I >have most of the time any way from one or another >of my conditions. That is how I went to internal >bleeding from Naprosyn. I would have stopped >taking it sooner if I had recognized what was >happening as caused by the drug instead of a >pre-existing condition. > >Any advice or information would be much >appreciated. > >Aubergine > >AOL IM: ShadoCrone >MSN MS: Shadow_Crone >YM: shadowcrone >ICQ#: 11443880 >Wildly Insightful & Talented Crone with a Harley > > > > _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2001 Report Share Posted November 12, 2001 The coming-together of people who share the same religion. I am an active member of my religion & am studying for the clergy. Mmmkay, here goes... I do not like to state my religion. I do not want to be reacted-to as a [fill in the blank], but as a person-on this list, as a person in pain. I have no interest in being sidetracked into issues of my religion, which has not one thing to do with my pain, though it does make it more difficult to deal with many doctors. If you insist on knowing just what religion I follow, I will tell you. But I will resent it heartily and will leave the list immediately. Aubergine, wondering if this too will be just another not-safe place for those who are not Judeo-Christian... AOL IM: ShadoCrone MSN MS: Shadow_Crone YM: shadowcrone ICQ#: 11443880 Wildly Insightful & Talented Crone with a Harley -----Original Message----- um whats the gathering of the co-religionists? LiL Missy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2001 Report Share Posted November 12, 2001 no not at all i was just curious actually im studying to be clergy myself but i will never ask you to state your religion i read some of your last post i am sort of new to this group it sounds like your in alot of pain my problems seems very small in comparison i hope i have not offended you in any way LiL Missy > >Reply-To: chronic_pain >To: " 'chronic_pain ' " <chronic_pain > >Subject: RE: side effects >Date: Mon, 12 Nov 2001 17:30:52 -0800 > >The coming-together of people who share the same >religion. I am an active member of my religion & >am studying for the clergy. > >Mmmkay, here goes... I do not like to state my >religion. I do not want to be reacted-to as a >[fill in the blank], but as a person-on this >list, as a person in pain. I have no interest in >being sidetracked into issues of my religion, >which has not one thing to do with my pain, >though it does make it more difficult to deal >with many doctors. > >If you insist on knowing just what religion I >follow, I will tell you. But I will resent it >heartily and will leave the list immediately. > >Aubergine, wondering if this too will be just >another not-safe place for those who are not >Judeo-Christian... > >AOL IM: ShadoCrone >MSN MS: Shadow_Crone >YM: shadowcrone >ICQ#: 11443880 >Wildly Insightful & Talented Crone with a Harley > > >-----Original Message----- > >um whats the gathering of the co-religionists? > >LiL Missy > > _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2001 Report Share Posted November 12, 2001 No harm, no foul. I may be a trifle sensitive, having had the problem before in other places, but I do not have any sort of problem with you. Have you found that your spiritual pursuits & religious discipline aid in pain control? I have. My worst times are at night, when the pain wakes me. During the day I use spiritual focus & contemplation along with physical & mental relaxation exercises to keep things in check. For many years, that was the only pain control I had. Unfortunately, all of those conscious skills go to sleep when I do, and I yoyo all night-up, down, up, down, with pain. Some times I think that it could be worse, I could be dead [which statistically I am, but that's another tale...]. Sometimes I think that it could be better, I could be dead. But I believe that the Divine must have a reason for keeping me here, so I keep on studying & fighting with the doctors. Aubergine AOL IM: ShadoCrone MSN MS: Shadow_Crone YM: shadowcrone ICQ#: 11443880 Wildly Insightful & Talented Crone with a Harley -----Original Message----- no not at all i was just curious actually im studying to be clergy myself but i will never ask you to state your religion i read some of your last post i am sort of new to this group it sounds like your in alot of pain my problems seems very small in comparison i hope i have not offended you in any way LiL Missy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2001 Report Share Posted November 12, 2001 If you're in central CA, how about Stanford or UC San Francisco? Carol Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2001 Report Share Posted November 12, 2001 yes i do find that my Spiritual pusuits aid in pain control meditating also helps me alot of relaxation tho sometime it get so bad and i cant concentrate those ar the really bad ones but i am allowed some meds to help with it, do you mind if i ask what you suffer from again i know it was a long post and why do they consider you statistically dead only if you dont mind i dont mean to offend at all you dont have to answer any questions LiL Missy > >Reply-To: chronic_pain >To: " 'chronic_pain ' " <chronic_pain > >Subject: RE: side effects >Date: Mon, 12 Nov 2001 18:41:26 -0800 > >No harm, no foul. > >I may be a trifle sensitive, having had the >problem before in other places, but I do not have >any sort of problem with you. > >Have you found that your spiritual pursuits & >religious discipline aid in pain control? I >have. My worst times are at night, when the pain >wakes me. During the day I use spiritual focus & >contemplation along with physical & mental >relaxation exercises to keep things in check. > For many years, that was the only pain control I >had. Unfortunately, all of those conscious >skills go to sleep when I do, and I yoyo all >night-up, down, up, down, with pain. > >Some times I think that it could be worse, I >could be dead [which statistically I am, but >that's another tale...]. Sometimes I think that >it could be better, I could be dead. But I >believe that the Divine must have a reason for >keeping me here, so I keep on studying & fighting >with the doctors. > >Aubergine > >AOL IM: ShadoCrone >MSN MS: Shadow_Crone >YM: shadowcrone >ICQ#: 11443880 >Wildly Insightful & Talented Crone with a Harley > > >-----Original Message----- > >no not at all i was just curious actually im >studying to be clergy myself >but i will never ask you to state your religion i >read some of your last >post i am sort of new to this group it sounds >like your in alot of pain >my problems seems very small in comparison i hope >i have not offended you in >any way > >LiL Missy > > > > _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2001 Report Share Posted November 12, 2001 When I took intro stats, one of the things that we did was to work up probabilities with multiple variables. Given the mortality rate for each condition / event & the number of them, the probability of my being alive is less than half a per cent- plus or minus the standard 3% deviation. The head-on collision which caused the brain damage ought to have done it, for example. I did the equivalent of hitting a brick wall at 90 mph. The investigating officer wanted to know where we had put the bodies; he had never seen an accident like it with no fatalities. Like you, I get frustrated when breakthrough pain or wake-up pain gets a grip. If it is just too much, as it often is, no amount of dark, quiet, imagery or relaxation will work without a serious chemical assist. I have spent enough time without breakthrough meds in fetal position crying in the dark to know. Mmmkay. I have closed head brain trauma, cochlear-vestibular hydrops [the combined form of Meniere's], chronic headache [multitype: migraine, cluster & tension], respiratory allergies [both seasonal & year-round], cervical disk syndrome, GERD, IBD, no gall bladder, Hepatitis C, Diabetes 2, micropolycystic ovaries, OA [spine, knees, hips], damaged tendons in both wrists & hands, rebuilt right knee, drug allergies [antibiotics, opiates], skin contact allergies [adhesive tape, certain insects & plants, etc], post-traumatic stress disorder [auto accidents, childhood abuse, being conscious during surgery], psoriasis, depression [exo, not endo], panic & anxiety, obsessive-compulsive disorder, suspected fibro [my neuro thinks that I have it in addition to the Hep C, which can cause the same type of pain symptoms], suspected mild Tourette's and other things which I do not remember unless the list is in front of me. And for what it's worth, I will be 53 in February & live in central California [minimum 2.5-3 hours of miserable driving from the high-powered & -priced specialists in Los Angeles]. I have pets & grandchildren. I garden when I can. Aubergine AOL IM: ShadoCrone MSN MS: Shadow_Crone YM: shadowcrone ICQ#: 11443880 Wildly Insightful & Talented Crone with a Harley -----Original Message----- yes i do find that my Spiritual pusuits aid in pain control meditating also helps me alot of relaxation tho sometime it get so bad and i cant concentrate those ar the really bad ones but i am allowed some meds to help with it, do you mind if i ask what you suffer from again i know it was a long post and why do they consider you statistically dead only if you dont mind i dont mean to offend at all you dont have to answer any questions LiL Missy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2001 Report Share Posted November 13, 2001 I was going to Sansum-Santa Barbara, which is only [!] a 3.5 hour trip, when I was diagnosed with the Hep C. Since the commute was a killer & I do not have the money for gas, meals & a hotel on top of the clinic every 3 months, that had to stop. I am only seeing doctors in my immediate area, and I cannot afford to pay *them*. Central California is huge. I am at the south end of the Central Valley 120 miles / 2.5 hours from Los Angeles. I do not suppose that any here know of pain resources in Bakersfield... Aubergine, with no income, fighting pain & the SSA AOL IM: ShadoCrone MSN MS: Shadow_Crone YM: shadowcrone ICQ#: 11443880 Wildly Insightful & Talented Crone with a Harley -----Original Message----- If you're in central CA, how about Stanford or UC San Francisco? Carol Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2005 Report Share Posted October 20, 2005 Thanks for that info. Treyce, it helps to know that I'm going through is a "normal" side effect and it should go away.Treyce d' wrote: I just spoke to my Minnesota doctor to see if I can get the rest of my lab results. However I mentioned my concern of side effects and he said (quote), “side effects are caused by your metabolism "speeding up" and will go away when your hormones level off which can be from 3 -6 weeks on average”. He then stated, “feeling hot, heart palpitations, sweating, etc.” so now I don’t feel quite so bad other than the fact I do not want to feel like that while I go to college although I think those would be better than the horrible brain fog I’m now having ! From: Texas_Thyroid_Groups [mailto:Texas_Thyroid_Groups ] On Behalf Of Treyce d'Sent: Thursday, October 20, 2005 10:58 AMTo: Texas_Thyroid_Groups Subject: RE: T3 vs. T3 / T4 So it is better to have both a T3 or T4. What is the difference between taking Armour only OR taking Cytomel AND Synthroid for example ? Because we have been looking at this problem, UNtreated, for 14 years the doctors want to treat it aggressively at the onset and then find which works. However the TCM doc said that the only way to see what works is to start with Cytomel only for about 3 months, test again, then depending upon those results ADD Synthroid for 3 months and test again. Does that sound right ? Sorry for all the questions but, after 14 years, I am ready to hit this head on ! Thanks for all of your help ! From: Texas_Thyroid_Groups [mailto:Texas_Thyroid_Groups ] On Behalf Of BetsySent: Thursday, October 20, 2005 10:51 AMTo: Texas_Thyroid_Groups Subject: Re: Cytomel vs. Cytomel AND Lev. I was taking cytomel only before my cancer diagnosis. If it hadn't been for that monkey wrench, I would have been asking for a change to add T4 in some format (probably Armour). Before taking anything, my Free T3 was very low and Free T4 was mid-range. After taking Cytomel only for about 2-3 months, my T3 was up (I forget where now), but T4 had dropped quite a bit. I read later that taking Cytomel only tends to do that to Free T4 levels. Betsy One (TCM) doctor told me to just use the Cytomel ONLY and nothing else and now that the regular doctor has prescribed Lev. And I'm reading about all these "side effects" you two are having (especially since I already have heart palpitation issues in the recent past), I'm wondering if I shouldn't take Cytomel ONLY ! Anyone tried Cytomel ? If so, please let me know your results ! Thanks !! Imelda Macias Yahoo! Music Unlimited - Access over 1 million songs. Try it free. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2006 Report Share Posted January 25, 2006 This last week have not been kind to me. My RD has suspected I've been suffering some side effects from the MTX so she lowered my dose to 15mg per week which I took on Saturday. I only got worse so I saw her this morning and my headache was so bad that I felt like I was going down for the count. I could see the look of concern on her face and she had me lay down for a few minutes. She decided that I should stop taking the MTX completely and start taking kineret. She also prescribed me fentanyl patches for the pain and it has helped a some. The impression I got from her was that the kineret seems to be the drug that helps still's patients the most. I hope for my sake it does work so I can get off the pred because it is making me go crazy! I have tremors now and I am so agitated all the time, I'm surprised I haven't been fired from work. LOL, LOL..... at least I'm breathing! Be well everybody, Brett Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2006 Report Share Posted January 26, 2006 Good luck Brett, When I took the mtx pill form I had excruciating headaches, when I switched to injections I had no side effects. Good luck on kineret, I have heard the same things about it and just started it before Xmas, I have not been on it long enough to know anything yet as I had to stop due too the site reactions and take a break. Lynn -- side effects This last week have not been kind to me. My RD has suspected I've been suffering some side effects from the MTX so she lowered my dose to 15mg per week which I took on Saturday. I only got worse so I saw her this morning and my headache was so bad that I felt like I was going down for the count. I could see the look of concern on her face and she had me lay down for a few minutes. She decided that I should stop taking the MTX completely and start taking kineret. She also prescribed me fentanyl patches for the pain and it has helped a some. The impression I got from her was that the kineret seems to be the drug that helps still's patients the most. I hope for my sake it does work so I can get off the pred because it is making me go crazy! I have tremors now and I am so agitated all the time, I'm surprised I haven't been fired from work. LOL, LOL..... at least I'm breathing! Be well everybody, Brett Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2006 Report Share Posted January 26, 2006 -Brett, Hey sorry to hear about your bad side effects from the MTX I had really bad side effects from it also, I could not get off the couch for 2 days after I took that crap, then my doc switched me to a weekly shot and I had a few side effects at first but now I feel no differant all after I take the shot ,I don't know if it finally kicked in or what, Also Ive been on Kineret for a month now and so far so good with that too. My doc did call this am an said all my blood levels are falling back in place, so you could maybe mention to your doc about the shot form of mtx if your not already on it. Good Luck! Hope you start feeling better soon. Rob -- > -- side effects > > This last week have not been kind to me. My RD has suspected I've been > suffering some side effects from the MTX so she lowered my dose to 15mg per > week which I took on Saturday. I only got worse so I saw her this morning > and my headache was so bad that I felt like I was going down for the count. > I could see the look of concern on her face and she had me lay down for a > few minutes. She decided that I should stop taking the MTX completely and > start taking kineret. She also prescribed me fentanyl patches for the pain > and it has helped a some. The impression I got from her was that the kineret > seems to be the drug that helps still's patients the most. I hope for my > sake it does work so I can get off the pred because it is making me go > crazy! I have tremors now and I am so agitated all the time, I'm surprised > I haven't been fired from work. LOL, LOL..... at least I'm breathing! > > Be well everybody, Brett > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2007 Report Share Posted January 22, 2007 They had to switch me from pills to the injection. The nausea is much better. I still have it sometimes, but not nearly as much. Jodi Braun wrote: Hi all, As you know, I went back on methotrexate and prednisone this past week. Boy, am I sick to my stomach! I know that years ago I was on the injection form of Methorexate but don't recall if that helped. Any thoughts on whether or not the injection form is better as far as stomach sickness and nausea? Thanks, Jodi Eagan, MN Visit me, your Kay Independent Beauty Consultant (10% of your order will be donated to the International Still's Disease Foundation) http://www.marykay.com/glmurphy --------------------------------- Don't be flakey. Get Yahoo! Mail for Mobile and always stay connected to friends. Quote Link to comment Share on other sites More sharing options...
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