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Hey keep your head up girl! I am new in this group

but I have seen the pain that it causes loved ones.

He probably would not be anywhere else right now and

believes that no one else can do as good a job taking

care of both of you as he can. He loves you and as

much as it pains him to see both of you sick, he is

not going anywhere. Make the best of it for everyone,

go out and spend some time with him at the park or

doing something you both enjoy. Make the best of the

time everyone has left. Audra

--- Blondedolphin172@... wrote:

> Hi Stilligans,

> There has been alot going on in my life right

> now. First, I have been having alot of problems with

> my shoulder and had to have an MRI last week. The

> MRI showed evidence of avascular necrosis most

> likely from steroid use. It has been pretty painful.

> My brother , who was in the hospital last year

> with a temp of 109.2, is declining fast. is

> living with me and is total care. He is on

> tubefeedings and has many breakdowns. Over the past

> week he has run temp between 101- almost 103. He is

> running temps even after being on antibiotics for a

> while. When the body starts to shut down you run

> temps. is on hospice and has not been

> responsive over the past few days. I think it is

> because he has become so weak. It breakes my heart

> to see him suffer and I wish I could trade places

> with him. I am also going to NIH on October 24,2006

> to be part of a clinical study. My doctors felt I

> should go to NIH because of my reactions to TNF

> drugs and prednisone. I am not on any meds like

> remicade,MTX or prednisone. It has been rough being

> off those meds but it is better for my body. I have

> alot of pain but have no time to take care of

> myself. I went to the doctors yesterday because I

> started running a fever and I fund out I have

> pneumonia. My doctor laughed at me because I did not

> complain to her. I am taking pain meds eventhough I

> am uncomfortable but they help. I am on 2

> antibiotics and I hope they cure the pneumonia soon.

>

> Please keep my Dad in your prayers.. It has been

> so hard on my Dad to see two kids sick let alone one

> that is dying. My Dad has taken care off my brother

> since he was diagnosed 12 years ago. I try to be

> supportive but I am weak to so I do not think I am

> any help to my Dad. Thanks for letting me vent.. I

> hope all Stilligans have pain free days...

>

> Danni

>

________________________________________________________________________

> Check out the new AOL. Most comprehensive set of

> free safety and security tools, free access to

> millions of high-quality videos from across the web,

> free AOL Mail and more.

>

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________________________

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Danni,

I will keep you & your family in my thoughts & prayers.

Chris

Blondedolphin172@... wrote:

Hi Stilligans,

There has been alot going on in my life right now. First, I have been having

alot of problems with my shoulder and had to have an MRI last week. The MRI

showed evidence of avascular necrosis most likely from steroid use. It has been

pretty painful. My brother , who was in the hospital last year with a temp

of 109.2, is declining fast. is living with me and is total care. He is on

tubefeedings and has many breakdowns. Over the past week he has run temp between

101- almost 103. He is running temps even after being on antibiotics for a

while. When the body starts to shut down you run temps. is on hospice and

has not been responsive over the past few days. I think it is because he has

become so weak. It breakes my heart to see him suffer and I wish I could trade

places with him. I am also going to NIH on October 24,2006 to be part of a

clinical study. My doctors felt I should go to NIH because of my reactions to

TNF drugs and prednisone. I am not on any meds like

remicade,MTX or prednisone. It has been rough being off those meds but it is

better for my body. I have alot of pain but have no time to take care of myself.

I went to the doctors yesterday because I started running a fever and I fund out

I have pneumonia. My doctor laughed at me because I did not complain to her. I

am taking pain meds eventhough I am uncomfortable but they help. I am on 2

antibiotics and I hope they cure the pneumonia soon.

Please keep my Dad in your prayers.. It has been so hard on my Dad to see two

kids sick let alone one that is dying. My Dad has taken care off my brother

since he was diagnosed 12 years ago. I try to be supportive but I am weak to so

I do not think I am any help to my Dad. Thanks for letting me vent.. I hope all

Stilligans have pain free days...

Danni

__________________________________________________________

Check out the new AOL. Most comprehensive set of free safety and security tools,

free access to millions of high-quality videos from across the web, free AOL

Mail and more.

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In a message dated 9/30/2006 4:04:14 AM Eastern Daylight Time,

Blondedolphin172@... writes:

Please keep my Dad in your prayers.. It has been so hard on my Dad to see

two kids sick let alone one that is dying. My Dad has taken care off my

brother since he was diagnosed 12 years ago. I try to be supportive but I am

weak

to so I do not think I am any help to my Dad. Thanks for letting me vent.. I

hope all Stilligans have pain free days...

Danni

Dear Danni,

My prayers and thoughts are with you and your family.

feel good everyone - Carole in Hollywood FL

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  • 10 months later...

Home tomorrow, with lots of red dirt in my shoes and great memories. Did a great dinner last night out between the Olgas and the Rock... breathtaking. They give you a great story telling about the stars and what they meant to the Aboriginals and the explorers. Saw four shooting stars in the few hours we were there. Came back to the hotel and continued partying until the wee small hours with a great group of Americans and Sydney siders. Had a very sore head this morning for our Rock & Roll Harley ride around the rock... another great thing to do, bit chilly but fabulous.

Fly in tomorrow arvo. Bit of a bad news... Liam got king hit by a thug yesterday afternoon whilst out with his head doctor for a group game of rugby - he went to the loo and there was an unknown kid there with some mates and they whacked him in the face... thinks his nose is broken, but I am sure it will be fine. That child will be the end of me I think somedays.

Hope that you are all well... my band has been fairly well behaved, not brilliant... especially trying to get enough liquid in up north where it was in the mid 30's and a lot of hiking involved. Came a bit undone with some caesar salad yesterday, other than that, its been a good bandit. But why is it that sometimes a cold yummy cocktail can give you grief? The mystery of the band continues.

Catch you all tomorrow evening.

Mel

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