Guest guest Posted January 5, 2006 Report Share Posted January 5, 2006 Caroline, in my early years I had the weight loss from the Stills, massive and then around the second year I had symptoms of which you are describing. Ultimately they found it was the medications working way to hard on my stomache. Good luck with it and try to even drink a shake if you can or anything containing something more than water. I hope your doctors can figure it out. Smiles, appetite and nausea Hi to all and a Happy New Year. I was wondering how many suffer from decreased appetite and frequent nausea. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2006 Report Share Posted January 5, 2006 Sorry, Caroline, I'm experiencing the same thing. Since this pneumonia began I've lost over 5 lbs. at last check. I don't eat meat, but my husband does. He's my food motivator because our daughter suffered from anorexia and bulimia as a teen and I suffered from anorexia a couple of years ago and went into kidney failure as a result. He made me a beautiful salad a couple of nights ago and it was difficult to look at, much less eat. If your problem is nausea, there are medications to help with that. Talk to your doctor and tell him/her how you feel. You need to make sure to eat enough of the essential foods. Good luck and take care! Hugs, Barbara Gardner Ventura, CA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2006 Report Share Posted January 7, 2006 Thank you Barbara. I am really trying to eat little and often. Today I am just SO tired. Ah well, this too will pass. Congratulations on your lovely news! Love C2 > Sorry, Caroline, I'm experiencing the same thing. Since this > pneumonia began I've lost over 5 lbs. at last check. I don't eat > meat, but my husband does. He's my food motivator because our > daughter suffered from anorexia and bulimia as a teen and I > suffered from anorexia a couple of years ago and went into kidney > failure as a result. He made me a beautiful salad a couple of > nights ago and it was difficult to look at, much less eat. > > If your problem is nausea, there are medications to help with > that. Talk to your doctor and tell him/her how you feel. You need > to make sure to eat enough of the essential foods. Good luck and > take care! > Hugs, > Barbara Gardner > Ventura, CA > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2006 Report Share Posted January 7, 2006 C 1, C 2 here.. Wait, I think it's the other way around. LOL Boy, am I confused today. But I got one thing right. My doctors told me they don't want me having ANY more nausea and vomiting. I have to carry a prescription of Zofran in my purse. It's like Phenergan only it is way stronger and does not put you to sleep. I don't really need the way stronger but if I don't eat, my blood sugar crashes to 30's and 40's so we have to make sure I stay conscious enough to keep track of my glucose and eat. Zofran is what they give to people with VERY sensitive stomachs, .like those on Chemo. MTX is a chemo drug but we don't take nearly the dose cancer patients take. However, it does tend to give us some of the same symptoms as Chemo. If any of you are experiencing nausea or vomiting regularly call your doctor and address the issue. If your drugs make you particularly sick, speak with your doctor about trying something else. We have SO many options friends. Please don't suffer when you don't have to. I know, I know... sometimes it takes someone else to help us figure out we feel worse now than ever and that it could be the drugs. For me, it USUALLY is the drugs creating " new " or other issues. Pain and fatigue is Stills. New or unusual pain for me or anything else, my doctor wants to know right away. Maybe yours does too? Smiles, Caroline Empress of CUS > I was wondering how many suffer from decreased appetite and frequent > nausea. (Beautiful Southern Oregon, USA) We may not be able to change the direction of the wind, but we can adjust our sails. May you have enough happiness to make you kind, enough trials to make you strong, enough sorrow to keep you human, enough hope to make you happy. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2006 Report Share Posted January 7, 2006 Thank you I've had lots of tests on my stomach and they couldn't come up with any explanation. It comes and goes, sometimes lasting weeks, sometimes only days. Ah well. Someone said " You can't be too rich or to thin " so I'll keep working on the rich bit! Love C2 > Caroline, in my early years I had the weight loss from the Stills, > massive and then around the second year I had symptoms of which you > are describing. Ultimately they found it was the medications > working way to hard on my stomache. Good luck with it and try to > even drink a shake if you can or anything containing something more > than water. I hope your doctors can figure it out. > Smiles, > > > appetite and nausea > > > Hi to all and a Happy New Year. > > I was wondering how many suffer from decreased appetite and frequent > nausea. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2006 Report Share Posted January 7, 2006 Hi C1 (Yes you ARE C1!!) I think I will go back on anti nausea pills. I wanted to avoid yet more meds, but feeling sick all the time is not fun. I suspect I'm slipping into another flair as I just want to sleep all the time and I ache badly. Time to baton down the hatches for a while, I think. Thank you for your concern. Love C2 > C 1, C 2 here.. Wait, I think it's the other way around. LOL Boy, > am I confused today. But I got one thing right. My doctors told me > they don't want me having ANY more nausea and vomiting. I have to > carry a prescription of Zofran in my purse. It's like Phenergan > only it is way stronger and does not put you to sleep. I don't > really need the way stronger but if I don't eat, my blood sugar > crashes to 30's and 40's so we have to make sure I stay conscious > enough to keep track of my glucose and eat. Zofran is what they > give to people with VERY sensitive stomachs, .like those on Chemo. > MTX is a chemo drug but we don't take nearly the dose cancer > patients take. However, it does tend to give us some of the same > symptoms as Chemo. > > If any of you are experiencing nausea or vomiting regularly call > your doctor and address the issue. If your drugs make you > particularly sick, speak with your doctor about trying something > else. We have SO many options friends. Please don't suffer when you > don't have to. I know, I know... sometimes it takes someone else to > help us figure out we feel worse now than ever and that it could be > the drugs. For me, it USUALLY is the drugs creating " new " or other > issues. Pain and fatigue is Stills. New or unusual pain for me or > anything else, my doctor wants to know right away. Maybe yours does > too? > > Smiles, Caroline > Empress of CUS > > > > > I was wondering how many suffer from decreased appetite and frequent > > nausea. > > > (Beautiful Southern Oregon, USA) > > We may not be able to change the direction of the wind, but we can > adjust our sails. > > May you have enough happiness to make you kind, enough trials to > make you strong, enough sorrow to keep you human, enough hope to > make you happy. > > > > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2006 Report Share Posted January 7, 2006 Hi Caroline. I am sorry that you are still feeling poorly, I suppose you can't keep milk down as that has some goodness in it. It does seem to have gone on for a long time perhaps it may be as well to see your doc. next week as you suggest. I don't know about you, but I absolutely hate going to the docs. I do not know why they are not horrible or anything I just hate going, but sometimes you just have to. Anyway I hope you feel better soon and the doctor can help you. Take care Love Joan UK Re: appetite and nausea Thank you Barbara. I am really trying to eat little and often. Today I am just SO tired. Ah well, this too will pass. Congratulations on your lovely news! Love C2 > Sorry, Caroline, I'm experiencing the same thing. Since this > pneumonia began I've lost over 5 lbs. at last check. I don't eat > meat, but my husband does. He's my food motivator because our > daughter suffered from anorexia and bulimia as a teen and I > suffered from anorexia a couple of years ago and went into kidney > failure as a result. He made me a beautiful salad a couple of > nights ago and it was difficult to look at, much less eat. > > If your problem is nausea, there are medications to help with > that. Talk to your doctor and tell him/her how you feel. You need > to make sure to eat enough of the essential foods. Good luck and > take care! > Hugs, > Barbara Gardner > Ventura, CA > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2006 Report Share Posted January 7, 2006 Hi Joan I hate going to the doc as I somehow feel a fraud. That if only I really tried hard enough, I could somehow beat this. (I'm sure my school reports used to say " must try harder " .... they also said " must talk less " as well!) Ate some ice cream this evening. I feel sick, but it was worth it. Hope you're well. Love C2 > Hi Caroline. I am sorry that you are still feeling poorly, I > suppose you > can't keep milk down as that has some goodness in it. It does seem > to have > gone on for a long time perhaps it may be as well to see your doc. > next week > as you suggest. I don't know about you, but I absolutely hate > going to the > docs. I do not know why they are not horrible or anything I just hate > going, but sometimes you just have to. > > Anyway I hope you feel better soon and the doctor can help you. > > Take care > > Love Joan UK > Re: appetite and nausea > > > Thank you Barbara. I am really trying to eat little and often. Today > I am just SO tired. Ah well, this too will pass. > > Congratulations on your lovely news! > > Love > > C2 > > > > > > Sorry, Caroline, I'm experiencing the same thing. Since this > > pneumonia began I've lost over 5 lbs. at last check. I don't eat > > meat, but my husband does. He's my food motivator because our > > daughter suffered from anorexia and bulimia as a teen and I > > suffered from anorexia a couple of years ago and went into kidney > > failure as a result. He made me a beautiful salad a couple of > > nights ago and it was difficult to look at, much less eat. > > > > If your problem is nausea, there are medications to help with > > that. Talk to your doctor and tell him/her how you feel. You > need > > to make sure to eat enough of the essential foods. Good luck and > > take care! > > Hugs, > > Barbara Gardner > > Ventura, CA > > > > > > Quote Link to comment Share on other sites More sharing options...
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