Guest guest Posted March 25, 2007 Report Share Posted March 25, 2007 Shanna, In the case of autism, we are generally talking about brain inflammation. Just as a fever is an inflammatory response to an illness, the brain inflammation is thought to be a response to environmental damage, such as that caused by heavy metals. > , As always, Thanks for the clarification. I had not heard > this before. What constitutes chronic inflammation? Is this a > certain part of the body or all over? > Shanna ('s mom, age 12, autism) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2007 Report Share Posted March 25, 2007 wow! My three year old was hospitalized for reaction to immunizations at 7mths. She has had recurrent high fevers up to 105.5 . I always thought this had an effect on her. She also had febrile seizures and non determined seizures. I am going to find out more about the brain inflammation issues. Perhaps I can find antohter way to help athena. cathylynn2 wrote: Shanna, In the case of autism, we are generally talking about brain inflammation. Just as a fever is an inflammatory response to an illness, the brain inflammation is thought to be a response to environmental damage, such as that caused by heavy metals. > , As always, Thanks for the clarification. I had not heard > this before. What constitutes chronic inflammation? Is this a > certain part of the body or all over? > Shanna ('s mom, age 12, autism) > --------------------------------- We won't tell. Get more on shows you hate to love (and love to hate): Yahoo! TV's Guilty Pleasures list. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2007 Report Share Posted March 25, 2007 Amber, welcome, I'm Debi mom to 3 girls 9, 7, and 4. My 7 yr-old Allie has autism. Debi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2007 Report Share Posted March 25, 2007 Amber, have you tried the bethanachol protocol Dr. Megson uses? Don't know if it would help, just got me thinking about her seizures & possibly an increase of acetyl choline helping. Debi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2007 Report Share Posted March 25, 2007 Hey , you read the Discovery mag? Just wondering if you know of anyone using the antibiotic regimen discussed. Also made me think of the articles about d-cycloserine that hit a few yrs ago. Debi > > Shanna, > > I'm sure Amber will clarify, but just FYI, the drug Actos has > recently been used off-label in autism because it has been shown to > be anti-inflammatory, reducing levels of C-reactive protein and IL-6, > which can be elevated in some autistic individuals. many autistic > children have chronic inflammation, so Actos is sometimes prescribed > to combat this. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2007 Report Share Posted March 25, 2007 Hey , you read the Discovery mag? Just wondering if you know of anyone using the antibiotic regimen discussed. Also made me think of the articles about d-cycloserine that hit a few yrs ago. Debi > > Shanna, > > I'm sure Amber will clarify, but just FYI, the drug Actos has > recently been used off-label in autism because it has been shown to > be anti-inflammatory, reducing levels of C-reactive protein and IL-6, > which can be elevated in some autistic individuals. many autistic > children have chronic inflammation, so Actos is sometimes prescribed > to combat this. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2007 Report Share Posted March 25, 2007 Yeah, I bought several copies. I don't know anyone using that protocol, but haven't really looked into it out here. I'll see what I can find out. > Hey , you read the Discovery mag? Just wondering if you know of > anyone using the antibiotic regimen discussed. Also made me think of > the articles about d-cycloserine that hit a few yrs ago. > > Debi > > >> >> Shanna, >> >> I'm sure Amber will clarify, but just FYI, the drug Actos has >> recently been used off-label in autism because it has been shown to >> be anti-inflammatory, reducing levels of C-reactive protein and IL-6, >> which can be elevated in some autistic individuals. many autistic >> children have chronic inflammation, so Actos is sometimes prescribed >> to combat this. >> >> >> > > > > Autism_in_Girls-subscribe > ------------------------ > Autism_in_Girls-unsubscribe > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2007 Report Share Posted March 25, 2007 Yeah, I bought several copies. I don't know anyone using that protocol, but haven't really looked into it out here. I'll see what I can find out. > Hey , you read the Discovery mag? Just wondering if you know of > anyone using the antibiotic regimen discussed. Also made me think of > the articles about d-cycloserine that hit a few yrs ago. > > Debi > > >> >> Shanna, >> >> I'm sure Amber will clarify, but just FYI, the drug Actos has >> recently been used off-label in autism because it has been shown to >> be anti-inflammatory, reducing levels of C-reactive protein and IL-6, >> which can be elevated in some autistic individuals. many autistic >> children have chronic inflammation, so Actos is sometimes prescribed >> to combat this. >> >> >> > > > > Autism_in_Girls-subscribe > ------------------------ > Autism_in_Girls-unsubscribe > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2007 Report Share Posted March 26, 2007 When you say your daughter gets IG infusions " because she obviously has an immune problem " , what exactly do you mean? Where does she get them at? What is in them? Has she been tested for an immune disease? If so where? What were the results? What kind of benefit have you seen from the infusions? Sorry to be so blunt but I just don't have the time to write more as I have a very involved little girl who is demanding almost all of my attention at the moment, but I would really like to learn more about your daughters treatments. Perhaps when she is asleep I can write more......... Thank-you, 's Mumma Re: New to group Thanks Esther. Wow, three kids on the spectrum. I would go crazy. morgan had a lot of ear problems. She's had three sets of tubes. That's why we do the IG infusions because she obviously has an immune problem. I had her hearing tested a long time ago and it was fine, but that was probably 5 years ago. It's hard to test anything on her because she won't sit still and be quiet. She makes plenty of noise, but it is more like humming and screaming. At times we've gotten mama and nana and dada, but they always seem to fade away. She is normal height for her age. The listening program I want to do is interesting, but like I said she won't wear the headphones. Do your kids do any kind of alternative or biomedical therapies? I understand about the school thing, I'm working on my masters degree and I'm going full time to get it over with. Thanks for the warm welcome. Amber > > > Hi, > > My name is Amber and I am mother to ,7, who is > > autistic and > > , 3 is is typical(we joke that he's too > > typical). 's > > story is different from most. She was born " normal " > > with no > > complications. She developed normally until 51/2 > > months when she > > started having seizures. We battled those and tried > > numerous drugs > > for a year. Finally we tried the Ketogenic diet > > which was our > > answer. She stopped having seizures at 17 months. > > She was labeled > > developmentally delayed. She walked at 3 and has > > never spoken a word > > to this day. We always said that she had autistic > > tendencies because > > she liked to do repetative things, but I cannot > > remember when this > > started. It wasn't until she started kindergarten > > and I spend some > > time around an autistic girl in her classroom that > > it dawned on me > > that along the way somewhere she had " become " > > autistic. Since then > > we've started the GFCF diet. We are still doing > > this, but we have > > started letting her cheat some because we've been > > doing it for 2 > > years and never really seen a change. We have also > > tried > > hyperbarics, but there isn't a chamber close enough > > to home to really > > give it a go. Our DAN doc has one, but that's 5 > > hours away. We do > > IG infusions everyother weekend. She takes > > nystatin, probiotics, > > DMG, cod liver oil, SuperNu Thera, Vitamin C, > > Calcium, Boron, > > Magnesium, Selenium, Zinc, and digestive enzymes. > > She also gets B12 > > shots and acetyl cistine creme. We have also > > started chelation with > > TDMSA. We are also trying to do Enlisten listening > > therapy, but so > > far she won't wear the headphones. As you can tell, > > life is crazy. > > I'm also a middle school English teacher, so just > > send me a straight > > jacket:) I just feel like I've lost precious time > > because was > > so old when she was diagnosed. I joined the group > > because most > > stories that you hear are about boys and our girls > > are different. > > is the most loving child you will ever meet. > > I'd love > > anyone's input and/or advice. Thanks > > Amber > > > > > > > > > > __________________________________________________________ ______________ > Need Mail bonding? > Go to the Yahoo! Mail Q & A for great tips from Yahoo! Answers users. > http://answers.yahoo.com/dir/?link=list & sid=396546091 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2007 Report Share Posted March 26, 2007 When you say your daughter gets IG infusions " because she obviously has an immune problem " , what exactly do you mean? Where does she get them at? What is in them? Has she been tested for an immune disease? If so where? What were the results? What kind of benefit have you seen from the infusions? Sorry to be so blunt but I just don't have the time to write more as I have a very involved little girl who is demanding almost all of my attention at the moment, but I would really like to learn more about your daughters treatments. Perhaps when she is asleep I can write more......... Thank-you, 's Mumma Re: New to group Thanks Esther. Wow, three kids on the spectrum. I would go crazy. morgan had a lot of ear problems. She's had three sets of tubes. That's why we do the IG infusions because she obviously has an immune problem. I had her hearing tested a long time ago and it was fine, but that was probably 5 years ago. It's hard to test anything on her because she won't sit still and be quiet. She makes plenty of noise, but it is more like humming and screaming. At times we've gotten mama and nana and dada, but they always seem to fade away. She is normal height for her age. The listening program I want to do is interesting, but like I said she won't wear the headphones. Do your kids do any kind of alternative or biomedical therapies? I understand about the school thing, I'm working on my masters degree and I'm going full time to get it over with. Thanks for the warm welcome. Amber > > > Hi, > > My name is Amber and I am mother to ,7, who is > > autistic and > > , 3 is is typical(we joke that he's too > > typical). 's > > story is different from most. She was born " normal " > > with no > > complications. She developed normally until 51/2 > > months when she > > started having seizures. We battled those and tried > > numerous drugs > > for a year. Finally we tried the Ketogenic diet > > which was our > > answer. She stopped having seizures at 17 months. > > She was labeled > > developmentally delayed. She walked at 3 and has > > never spoken a word > > to this day. We always said that she had autistic > > tendencies because > > she liked to do repetative things, but I cannot > > remember when this > > started. It wasn't until she started kindergarten > > and I spend some > > time around an autistic girl in her classroom that > > it dawned on me > > that along the way somewhere she had " become " > > autistic. Since then > > we've started the GFCF diet. We are still doing > > this, but we have > > started letting her cheat some because we've been > > doing it for 2 > > years and never really seen a change. We have also > > tried > > hyperbarics, but there isn't a chamber close enough > > to home to really > > give it a go. Our DAN doc has one, but that's 5 > > hours away. We do > > IG infusions everyother weekend. She takes > > nystatin, probiotics, > > DMG, cod liver oil, SuperNu Thera, Vitamin C, > > Calcium, Boron, > > Magnesium, Selenium, Zinc, and digestive enzymes. > > She also gets B12 > > shots and acetyl cistine creme. We have also > > started chelation with > > TDMSA. We are also trying to do Enlisten listening > > therapy, but so > > far she won't wear the headphones. As you can tell, > > life is crazy. > > I'm also a middle school English teacher, so just > > send me a straight > > jacket:) I just feel like I've lost precious time > > because was > > so old when she was diagnosed. I joined the group > > because most > > stories that you hear are about boys and our girls > > are different. > > is the most loving child you will ever meet. > > I'd love > > anyone's input and/or advice. Thanks > > Amber > > > > > > > > > > __________________________________________________________ ______________ > Need Mail bonding? > Go to the Yahoo! Mail Q & A for great tips from Yahoo! Answers users. > http://answers.yahoo.com/dir/?link=list & sid=396546091 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2007 Report Share Posted March 30, 2007 I'm Ohio. We live about 100 miles east of Columbus. I would guess you live around Cincinnati:) Joni --------------------------------- Food fight? Enjoy some healthy debate in the Yahoo! Answers Food & Drink Q & A. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2007 Report Share Posted March 30, 2007 I'm Ohio. We live about 100 miles east of Columbus. I would guess you live around Cincinnati:) Joni --------------------------------- Food fight? Enjoy some healthy debate in the Yahoo! Answers Food & Drink Q & A. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2007 Report Share Posted March 30, 2007 Joni, We are originally from Weirton/Wheeling WV area. Are you close? Deanna Re: new to group > I'm Ohio. We live about 100 miles east of Columbus. I would guess you live > around Cincinnati:) > Joni > > > > > --------------------------------- > Food fight? Enjoy some healthy debate > in the Yahoo! Answers Food & Drink Q & A. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2007 Report Share Posted March 30, 2007 Joni, We are originally from Weirton/Wheeling WV area. Are you close? Deanna Re: new to group > I'm Ohio. We live about 100 miles east of Columbus. I would guess you live > around Cincinnati:) > Joni > > > > > --------------------------------- > Food fight? Enjoy some healthy debate > in the Yahoo! Answers Food & Drink Q & A. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2007 Report Share Posted March 31, 2007 Hi, We live in Central Ohio. Please feel free to contact me off-list at pjordan831@... Pat J. > > Hi I was wondering is anyone from ohio in this group..I would love to > connect with someone near by to find out any resources or testimonials > regarding treatment in this area. thanks > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2007 Report Share Posted March 31, 2007 HI my name is of Sondra and I to live in Columbus areas of Ohio . I to ahve of dx of autism and mom to 4 kids with Aspergers syndrome, ages of 13-19. two are of girls two are of boys. some mildly affected some not. Been of married since 1986 and have one dog named libby who is of a full blooded english shepherd wich is similar to boarder collies, and I to ahve a sassy cat named " sassy pooh " she is of a onry cat but I to love her. I to found out allergic to them both but will not get rid of either now as I to love them too much. I to also love wild life and have of much squirrels that come to my yard and blue jays and cardninals navigate to my yard too. I to drive and have much skills and yet have much challenges in life too so I to feel am of balanced in that ways. I to also be of writer and speaker girl and love to do those two works the most. I to ahve no real friends but have many on line friends and yet while using the word friends still in true lack what it really means to ahve a friend and for that might have of them and not be aware that is what they are to be and sometimes think have of a firend to find out they wre not of a good friend but in a different role to me that is not what frienships are created from,so just confused by what is of a friend. Some i to people espeically spectrum peopls I find a conenct and interest of want to be with them in play or friendship ways but then told no because they are of opposite sex or younger or older and so not of a true equal in friendships and so because not ever feel lonely in life never really have a desire strong enougbh for me to pursue the seeking out of people for bonds of freindships. I to feel content but those around me see of this as a sad and work hard to get me to desire to build a friendship as they think this is a need for me and will make of me happier in life and yet i to see it as too complex and not a thing to make me happier inside but only to complicate and cause me a cosntant anxiety and fear of expectations to be among people that I to may not have an internal need to satisfy self in life with, I to now many do not understand this thinking in me but in all honesty this is my true inside thinking and yes aware that it is not of normal for most to have of this thinking and I to lack why my brain reacts and feels this ways inside of me and cant seem to change it or force it to be any other way. I to use to feel sad and a huge loss for not having friends because everyone told me that is why I was to be so sad all the time because I to had no friends and i to began to believe of those words to be fo true because to me smart people and professional people told of me this and so felt they were of right but over time learned that this migh be of true for most people but not true for me. I to often think of a time in life where can run away and not exist to others anymore but only exist in my own little space and world and want somuch to live by self near an ocean or water source and be to live of there alone by self for the rest of the living of me and be to have of my pets, plants/flowers and books. Be sourrounded by the things I to love and that makes of me feel a sense of self and happiness. I to now realized have went complete off the words here so will be done. I to be to just have a few lists in which i to be of more self to express of self on in my own truths and emotional expressions. Hre is one of them. On Ohio lists I to not post often there anymore unless somethings is of interest to me to post about. here I to be to feel a sense of connection and safe to be among many to be of self. Sondra In Autism_in_Girls , " cincimixed " wrote: > > Hi I was wondering is anyone from ohio in this group..I would love to > connect with someone near by to find out any resources or testimonials > regarding treatment in this area. thanks > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2007 Report Share Posted March 31, 2007 Hi, Welcome to the group! I was born and raised in Middletown, Ohio, but I'm in Texas now. Sorry, I would have been happy to get together! Sandi (Allie's Mom) Houston In a message dated 3/30/2007 10:23:45 A.M. Central Daylight Time, pdh620@... writes: Hi I was wondering is anyone from Ohio in this group..I would love to connect with someone near by to find out any resources or testimonials regarding treatment in this area. thanks ************************************** See what's free at http://www.aol.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2007 Report Share Posted April 1, 2007 In a message dated 3/31/07 7:57:17 PM Eastern Daylight Time, hfa2@... writes: here I to be to feel a sense of connection and safe to be among many to be of self. Sondra im so happy your comforatable here. i love your honesty. it is refreshing. eric abbys dad ************************************** See what's free at http://www.aol.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2010 Report Share Posted October 4, 2010 Hello all... I am new to this group! My 14 year old son has recently been diagnosed with GAD / OCD. It's like the OCD happened overnight!!! He went from a very fun, outgoing, happy kid to one who is now scared of so many things, including something happening to me, and very quiet and withdrawn. He is in counceling with an OCD specialist, but as a mom... I want it to go away as quickly as it started. I want my son back. It's very difficult to watch him want it to go away as well and feeling helpless as a mom because he feels so helpless. I find myself frustrated by the checking and rituals that he pits himself through each night. Any words of wisdom from the group may give me hope that we can beat this!!! Thanks!!! Sent from my iPod Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2011 Report Share Posted March 22, 2011 Sounds like a mixture of OCD, anxiety, rigidity, and sensory issues. Keep an eye on how he does socially over the next few years.. You may be dealing with something more than just OCD.. My kids were later diagnosed with Asperger's after having a similar presentation as your son around that age.. They were fairly social at that age and did well aside from the sensory and OCD issues.. As they got older, the social issues became more apparent. What are his food allergies? My kids also have allergies and sometimes it's all related. Misty ________________________________ To: Sent: Tue, March 22, 2011 4:06:51 PM Subject: New to group  Hi, My name is Corrine, and I am new to this group. I am the mother of two wonderful little boys. My oldest is 5 years old, and showing signs of OCD. He first exibited ocd type behaviors around the age of 3, we spoke with our pediatrician and looked into having him officially diagnosed and I just couldn't do it. When the behaviors continued I once again thought about having him diagnosed and at that time he was diagnosed with a food allergy and I decided to just handle that first and wait. He is now five. I think that not having him looked at as of now is partially because I am afraid that they will tell me that he is ocd, and partially because I don't want him to feel like their is something wrong with him. I just don't know what to do. He is in kindergarten this year and has friends and behaves himself. He is just a great kid! At the same time the little things he does are very concerning. I would love advice, I feel lost. This is a list of his most frequent behaviors, Hand washing, tags on clothing, tapping things a certain number of times, not wanting to be kissed, wiping his bottom a certain number of times after using the bathroom, not using the restroom in his kindergarten class because other children have touched it, he is very critical of himself, he is over serious, very responsible, he is always right on top of me whatever I am doing, won't he eat certain foods that are sticky, can not stand to be dirty, repeats directions, asks the same question over and over again, he erases his work in class over and over again. He will have to start all over again on anything even if it is just for fun if he makes any mistake. Are these things considered ocd? Should I have him evaluated? Thanks so much! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2011 Report Share Posted March 22, 2011 Hi Corrine, I just joined this group a few months ago when I decided to seek treatment for my 6 yr old son. He showed signs since 3 or 4 as well. But I had hoped he would outgrow it. I was wrong and it got worse this year right after Christmas.  He has a lot of the same symptoms you mentioned especially the tapping. We also didn't like the idea of treatment because it would make him feel their was something wrong. But I think he already knew that. He has a brother and can see he doesn't do the tapping like he does. So we took him to a clinical psychologist who treats young children for OCD. He has been there about 8 times now and we have seen a great improvement! He actually enjoys going because she sits on the floor and plays games with him. I don't think he sees her as a doctor. I told him she is kinda like a teacher that knows a lot about the worry monster and how to defeat him. We are now glad we took him and she has us down to only coming once a month. Good luck with your son, I hope you find the help you need. Jeannie New to group  Hi, My name is Corrine, and I am new to this group. I am the mother of two wonderful little boys. My oldest is 5 years old, and showing signs of OCD. He first exibited ocd type behaviors around the age of 3, we spoke with our pediatrician and looked into having him officially diagnosed and I just couldn't do it. When the behaviors continued I once again thought about having him diagnosed and at that time he was diagnosed with a food allergy and I decided to just handle that first and wait. He is now five. I think that not having him looked at as of now is partially because I am afraid that they will tell me that he is ocd, and partially because I don't want him to feel like their is something wrong with him. I just don't know what to do. He is in kindergarten this year and has friends and behaves himself. He is just a great kid! At the same time the little things he does are very concerning. I would love advice, I feel lost. This is a list of his most frequent behaviors, Hand washing, tags on clothing, tapping things a certain number of times, not wanting to be kissed, wiping his bottom a certain number of times after using the bathroom, not using the restroom in his kindergarten class because other children have touched it, he is very critical of himself, he is over serious, very responsible, he is always right on top of me whatever I am doing, won't he eat certain foods that are sticky, can not stand to be dirty, repeats directions, asks the same question over and over again, he erases his work in class over and over again. He will have to start all over again on anything even if it is just for fun if he makes any mistake. Are these things considered ocd? Should I have him evaluated? Thanks so much! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2011 Report Share Posted March 22, 2011 To you all with young children who have early signs of OCD... I have to say.. My now almost 8yr old daughter started out with just tapping and handwashing.. It quickly progressed and became out of control and severe.. Do not ignore OCD.. It will only get worse. Every child with OCD needs a proper diagnosis and proper treatment. OCD can become a life-consuming monster for the entire family.. I have children with Asperger's, ADHD, etc.. None of that compares to what OCD does to our family. OCD is the worst of all of them! Don't let it get out of control.. Get it diagnosed ASAP so that if it does suddenly get out of control, you don't have to wait on a psychologist's waiting list for months to finally get that diagnosis just so you can get treatment (which would include therapy AND meds in severe cases). Misty ________________________________ To: Sent: Tue, March 22, 2011 4:57:58 PM Subject: Re: New to group  Hi Corrine, I just joined this group a few months ago when I decided to seek treatment for my 6 yr old son. He showed signs since 3 or 4 as well. But I had hoped he would outgrow it. I was wrong and it got worse this year right after Christmas.  He has a lot of the same symptoms you mentioned especially the tapping. We also didn't like the idea of treatment because it would make him feel their was something wrong. But I think he already knew that. He has a brother and can see he doesn't do the tapping like he does. So we took him to a clinical psychologist who treats young children for OCD. He has been there about 8 times now and we have seen a great improvement! He actually enjoys going because she sits on the floor and plays games with him. I don't think he sees her as a doctor. I told him she is kinda like a teacher that knows a lot about the worry monster and how to defeat him. We are now glad we took him and she has us down to only coming once a month. Good luck with your son, I hope you find the help you need. Jeannie New to group  Hi, My name is Corrine, and I am new to this group. I am the mother of two wonderful little boys. My oldest is 5 years old, and showing signs of OCD. He first exibited ocd type behaviors around the age of 3, we spoke with our pediatrician and looked into having him officially diagnosed and I just couldn't do it. When the behaviors continued I once again thought about having him diagnosed and at that time he was diagnosed with a food allergy and I decided to just handle that first and wait. He is now five. I think that not having him looked at as of now is partially because I am afraid that they will tell me that he is ocd, and partially because I don't want him to feel like their is something wrong with him. I just don't know what to do. He is in kindergarten this year and has friends and behaves himself. He is just a great kid! At the same time the little things he does are very concerning. I would love advice, I feel lost. This is a list of his most frequent behaviors, Hand washing, tags on clothing, tapping things a certain number of times, not wanting to be kissed, wiping his bottom a certain number of times after using the bathroom, not using the restroom in his kindergarten class because other children have touched it, he is very critical of himself, he is over serious, very responsible, he is always right on top of me whatever I am doing, won't he eat certain foods that are sticky, can not stand to be dirty, repeats directions, asks the same question over and over again, he erases his work in class over and over again. He will have to start all over again on anything even if it is just for fun if he makes any mistake. Are these things considered ocd? Should I have him evaluated? Thanks so much! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2011 Report Share Posted March 22, 2011 Hi Corrine, welcome! I go along with what Misty wrote, sounds like OCD, maybe some sensory and other too. Oh, you reminded me of my OCD son (now 22) when he was that age. Would ask same questions over & over. His questions tended to be " will this give me cancer " and a lot of " how long will it take this to heal? " for cuts/scratches, or about some *feeling* in his body...but multiple times in the same hour. When his OCD really *hit* in 6th grade (all this new stuff 24/7) and I started reading more about OCD, I saw the term " reassurance questions " and realized that is what he did when younger. There are some great books for kids about OCD. You could start with that for him, to help him get the idea of OCD. Also some great books for parents! The OCD Foundation website has information, of course, about OCD and its treatment (with therapy and about medication that can be used). Many try just the therapy first, but, depending on severity and how well child is doing with therapy, can find medication is needed and beneficial. You mentioned a food allergy. Have you had him tested for any more? We had quite a bit of discussion here not long ago where many parents found their children improved with OC behaviors after identifying food/other allergies and removing them from their diet, etc. I would pursue getting him help now (whether you try on your own first or go straight for therapy/diagnosis) because I'm sure he gets frustrated, anxious with all this going on and, as he progresses in school, that workload will get more. I'm glad you found our group! single mom, 3 sons , 22, with OCD, dysgraphia and Aspergers > > Hi, My name is Corrine, and I am new to this group. I am the mother of two wonderful little boys. My oldest is 5 years old, and showing signs of OCD. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2011 Report Share Posted March 23, 2011 Corrine, I first noticed the OCD behaviors in my 7 yr old son at 2. It was all little things. If you moved his juice box a little, he had to stop eating & put it back where it belonged. He tended to stuff as much food as possible into his mouth. If you took a fry off his plate, he needed that one back. We weren't allowed to kiss him & he would wipe off the kisses if we did. I 'knew' he had OCD, but didn't know what could be done about it at that age, so I didn't do anything. At 3 1/2 he started going to a reverse mainstream day care program thru Early Intervention. (He has a speech disorder also & wasn't fitting in at the preschool he was in & I REALLY lucked out with a GREAT service coordinator who decided he was a flight risk, which made him eligible for center based services.) I still didn't do anything about getting an OCD diagnosis, letting his highly qualified special ed teachers do what they though best (they noticed his hoarding also). That school ( & the following one after they closed) did wonders with him & I decided to wait & see what would happen at a 'regular' Kindergarten. Aidan & I met with the K teacher & visited the school in March & I told her about his IEP & speech issues. When I met with his teacher the week before school started I gave her detailed info about his speech issues, his transitioning issues, & his meltdowns. She dealt with him very well, and so did the other kids. But at the 2nd report card conference, she told me about the meltdown he had one day because their were no orange chairs left at his table. That's when I decided it was definitely time to get the official diagnosis & have it documented. He officially has the OCD diagnosis, although there isn't anything on his IEP right now (it covers speech only). His teacher this year is GREAT! She got him on HER schedule & deals with him VERY well. My husband warns her if he seems 'off' in the morning. But he's only had a couple of meltdowns at school (the latest because he didn't have his lunch box on a 1/2 day). He also started karate last April, which I really think has helped him. At karate, you work on your instructor's schedule. Although I think it also helps that his instructor also works as a TSS. Definitely have him evaluated as soon as you can. First grade is so much more structured & strict & demanding. Do what you can to help make it a little easier for him. And know that you are DEFINITELY not alone in how you feel! I'm fairly new to this group too, but have found that it's comforting to really know that others have & are going through the same things! Good luck! Dani > > Hi, My name is Corrine, and I am new to this group. I am the mother of two wonderful little boys. My oldest is 5 years old, and showing signs of OCD. > > He first exibited ocd type behaviors around the age of 3, we spoke with our pediatrician and looked into having him officially diagnosed and I just couldn't do it. > > When the behaviors continued I once again thought about having him diagnosed and at that time he was diagnosed with a food allergy and I decided to just handle that first and wait. > > He is now five. I think that not having him looked at as of now is partially because I am afraid that they will tell me that he is ocd, and partially because I don't want him to feel like their is something wrong with him. I just don't know what to do. He is in kindergarten this year and has friends and behaves himself. He is just a great kid! At the same time the little things he does are very concerning. I would love advice, I feel lost. > > > This is a list of his most frequent behaviors, > > Hand washing, tags on clothing, tapping things a certain number of times, not wanting to be kissed, wiping his bottom a certain number of times after using the bathroom, not using the restroom in his kindergarten class because other children have touched it, he is very critical of himself, he is over serious, very responsible, he is always right on top of me whatever I am doing, won't he eat certain foods that are sticky, can not stand to be dirty, repeats directions, asks the same question over and over again, he erases his work in class over and over again. He will have to start all over again on anything even if it is just for fun if he makes any mistake. > > Are these things considered ocd? Should I have him evaluated? Thanks so much! > Quote Link to comment Share on other sites More sharing options...
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