New to group

[Guest guest]

Hi Jen!

My daughter's name is Daisy, lol.

My name is Amnesty, and in case I haven't mentioned since you've

joined, I'm an ABA consultant. I don't have a child of my own with

autism, but out of my 9 current clients, 4 of them are girls! They're

my " other " kids. My bio kids are Daisy, 3 months, and Rory, 3 years.

I'm glad you are handling Katelynn's diagnosis so well so far! Don't

be surprised if it hits you harder later, when things settle down

some. It happens, and that's ok too. Wow, 5 hours a day of school for

a just turned 3 year old, that's a lot! Does she still nap? Most of my

little kids only go 3-4 days, 3-4 hours, so that seems like such a

long day! Of course, my kids also are getting in home therapy, so it's

still a long day!

Welcome to the group. This is one of my favorites!

Amnesty

>

> Hello everyone...

> Been reading the posts for the last week. Looks like everyone here

> likes to enjoy themselves and I like that! I just joined this group

> and wanted to introduce myself. My daughter, Katelynn, just turned 3

> this week and was diagnosed with autism in October 2006. Relatively

> new, but I'm surprised how quickly I've been able to get used to it.

> Don't really have time to dwell on things I guess. She started school

> this week and goes every day for 5 hours. She is so smart and doing

> well so far. Language and social skills are her biggest problems -

> doesn't want to be near other children too much but LOVES adults so I

> know she has that ability in her for interaction. I don't really know

> anyone else that has an autistic daughter, there is only one other

> girl in her class, so I look forward to talking with you all about

> life with these beautiful little girls. Katelynn is our only child by

> the way.

> Oh, and out dog's name is Daisy - definatly ends with the " ie "

> sound.

> Jen

>

[Guest guest]

Welcome Jen!

We are glad to have you. We look forward to hearing more from you. What state

are you in to provide the 5 hours a day services? Who diagnosed your daughter

with Autism?

Shanna (mother to , 12 yr old, autism)

e_stull_1999 wrote:

welcome to the group

>

> Hello everyone...

> Been reading the posts for the last week. Looks like everyone

here

> likes to enjoy themselves and I like that! I just joined this

group

> and wanted to introduce myself. My daughter, Katelynn, just

turned 3

> this week and was diagnosed with autism in October 2006.

Relatively

> new, but I'm surprised how quickly I've been able to get used to

it.

> Don't really have time to dwell on things I guess. She started

school

> this week and goes every day for 5 hours. She is so smart and

doing

> well so far. Language and social skills are her biggest problems -

> doesn't want to be near other children too much but LOVES adults

so I

> know she has that ability in her for interaction. I don't really

know

> anyone else that has an autistic daughter, there is only one other

> girl in her class, so I look forward to talking with you all about

> life with these beautiful little girls. Katelynn is our only

child by

> the way.

> Oh, and out dog's name is Daisy - definatly ends with the " ie "

> sound.

> Jen

>

---------------------------------

Don't get soaked. Take a quick peak at the forecast

with theYahoo! Search weather shortcut.

[Guest guest]

Hi ,

I'm pretty quiet on this group, but it is a fun group! Welcome aboard! My

daughter is 6 in Kindergarten and was Diagnosed at age 3, she has come

a long way, but is still behind in her conversation skills. She is an only

child as well.

Crystal B

http://www.myspace.com/breger3

http://craftyrecord.blogspot.com/

http://bethpuzzle.blogspot.com/

407 total skeins of yarn (all types) to go

[Guest guest]

I loved your pictures, Crystal! Whew, you have your hands full! lol Thanks for

sharing with us.

Shanna (mom to , 12yr, autism)

Crystal Breger wrote:

Hi ,

I'm pretty quiet on this group, but it is a fun group! Welcome aboard! My

daughter is 6 in Kindergarten and was Diagnosed at age 3, she has come

a long way, but is still behind in her conversation skills. She is an only child

as well.

Crystal B

http://www.myspace.com/breger3

http://craftyrecord.blogspot.com/

http://bethpuzzle.blogspot.com/

407 total skeins of yarn (all types) to go

[Guest guest]

Thanks for checking them out!

Shanna Arnold wrote: I loved your pictures,

Crystal! Whew, you have your hands full! lol Thanks for sharing with us.

Shanna (mom to , 12yr, autism)

Crystal Breger wrote:

Hi ,

I'm pretty quiet on this group, but it is a fun group! Welcome aboard! My

daughter is 6 in Kindergarten and was Diagnosed at age 3, she has come

a long way, but is still behind in her conversation skills. She is an only child

as well.

Crystal B

http://www.myspace.com/breger3

http://craftyrecord.blogspot.com/

http://bethpuzzle.blogspot.com/

407 total skeins of yarn (all types) to go

[Guest guest]

We live in IL. Very happy about the 5 hours per day services through the

school district. My daughter was diagnosed at Loyola Univesity Hospital.

Quick question... How long, if at all, did your children cry when you

brought them to school? It's only week two, but it's getting worse. She

seems to be enjoying herself at school but how do I know that she doesn't

scream the whole time? Probably me just being paranoid, but it is horrible

when I drop her off.

Jen

>

>Reply-To: Autism_in_Girls

>To: Autism_in_Girls

>Subject: Re: Re: new to group

>Date: Sun, 28 Jan 2007 09:03:33 -0800 (PST)

>

>Welcome Jen!

> We are glad to have you. We look forward to hearing more from you. What

>state are you in to provide the 5 hours a day services? Who diagnosed your

>daughter with Autism?

> Shanna (mother to , 12 yr old, autism)

>

>e_stull_1999 wrote:

> welcome to the group

>

> >

> > Hello everyone...

> > Been reading the posts for the last week. Looks like everyone

>here

> > likes to enjoy themselves and I like that! I just joined this

>group

> > and wanted to introduce myself. My daughter, Katelynn, just

>turned 3

> > this week and was diagnosed with autism in October 2006.

>Relatively

> > new, but I'm surprised how quickly I've been able to get used to

>it.

> > Don't really have time to dwell on things I guess. She started

>school

> > this week and goes every day for 5 hours. She is so smart and

>doing

> > well so far. Language and social skills are her biggest problems -

>

> > doesn't want to be near other children too much but LOVES adults

>so I

> > know she has that ability in her for interaction. I don't really

>know

> > anyone else that has an autistic daughter, there is only one other

> > girl in her class, so I look forward to talking with you all about

> > life with these beautiful little girls. Katelynn is our only

>child by

> > the way.

> > Oh, and out dog's name is Daisy - definatly ends with the " ie "

> > sound.

> > Jen

> >

>

>

>

>

>

>

>---------------------------------

>Don't get soaked. Take a quick peak at the forecast

> with theYahoo! Search weather shortcut.

>

>

[Guest guest]

Welcome Jen and Katelynn!

My name is Missy. I have a 4.5 year old daughter named . She was

diagnosed with autism November 17,2005.

I also have a 18 month old son named Evan. So far he is not showing any signs of

autism.

My husbands name is Brent.

We live in PA.

We don't exactly have our own dog named daisy, she belongs to my inlaws but she

spends so much time here I like to think of her as my own. She is a boxer and

great with the kids.

Missy ('s mom)

new to group

Hello everyone...

Been reading the posts for the last week. Looks like everyone here

likes to enjoy themselves and I like that! I just joined this group

and wanted to introduce myself. My daughter, Katelynn, just turned 3

this week and was diagnosed with autism in October 2006. Relatively

new, but I'm surprised how quickly I've been able to get used to it.

Don't really have time to dwell on things I guess. She started school

this week and goes every day for 5 hours. She is so smart and doing

well so far. Language and social skills are her biggest problems -

doesn't want to be near other children too much but LOVES adults so I

know she has that ability in her for interaction. I don't really know

anyone else that has an autistic daughter, there is only one other

girl in her class, so I look forward to talking with you all about

life with these beautiful little girls. Katelynn is our only child by

the way.

Oh, and out dog's name is Daisy - definatly ends with the " ie "

sound.

Jen

------------------------------------------------------------------------------

No virus found in this incoming message.

Checked by AVG Free Edition.

Version: 7.1.410 / Virus Database: 268.17.12/653 - Release Date: 1/26/2007

[Guest guest]

Jen, What do you mean by 5 hours? Do you mean that she is in special education

for 5 hours? Is she getting one on one services or all the services in group?

Does she get speech, OT, or ABA therapy?

I think that the hardest thing is to see your child crying and not wanting to

go to school. Especiall with an autistic child, this is most difficult due to

them not being able to come home and tell you what is going on. I will tell you

that it gets better. Yes, my daughter did this and still has transition problems

after the weekend. But she is so used to school that I think it is a " routine "

for her now. Last month, I kept her home due to sickness and she asked me after

2 hours if she could go to school. I almost fell over!!!!!!!!!!! I could not

believe it. I actually took her an hour later and smiled all day long. I will

tell you this, there are desperate measures you could take but I suggest that

you get kids that know your child that are in neighboring classrooms or in the

same classroom to give you the scoop. Spies.....so to speak. Also, make friends

with the assistants and anyone else that will spill the beans.

Good luck.

Shanna (mom to , 12 yrs, autism)

Gazda wrote:

We live in IL. Very happy about the 5 hours per day services through the

school district. My daughter was diagnosed at Loyola Univesity Hospital.

Quick question... How long, if at all, did your children cry when you

brought them to school? It's only week two, but it's getting worse. She

seems to be enjoying herself at school but how do I know that she doesn't

scream the whole time? Probably me just being paranoid, but it is horrible

when I drop her off.

Jen

>From: Shanna Arnold

>Reply-To: Autism_in_Girls

>To: Autism_in_Girls

>Subject: Re: Re: new to group

>Date: Sun, 28 Jan 2007 09:03:33 -0800 (PST)

>

>Welcome Jen!

> We are glad to have you. We look forward to hearing more from you. What

>state are you in to provide the 5 hours a day services? Who diagnosed your

>daughter with Autism?

> Shanna (mother to , 12 yr old, autism)

>

>e_stull_1999 wrote:

> welcome to the group

>

> >

> > Hello everyone...

> > Been reading the posts for the last week. Looks like everyone

>here

> > likes to enjoy themselves and I like that! I just joined this

>group

> > and wanted to introduce myself. My daughter, Katelynn, just

>turned 3

> > this week and was diagnosed with autism in October 2006.

>Relatively

> > new, but I'm surprised how quickly I've been able to get used to

>it.

> > Don't really have time to dwell on things I guess. She started

>school

> > this week and goes every day for 5 hours. She is so smart and

>doing

> > well so far. Language and social skills are her biggest problems -

>

> > doesn't want to be near other children too much but LOVES adults

>so I

> > know she has that ability in her for interaction. I don't really

>know

> > anyone else that has an autistic daughter, there is only one other

> > girl in her class, so I look forward to talking with you all about

> > life with these beautiful little girls. Katelynn is our only

>child by

> > the way.

> > Oh, and out dog's name is Daisy - definatly ends with the " ie "

> > sound.

> > Jen

> >

>

>

>

>

>

>

>---------------------------------

>Don't get soaked. Take a quick peak at the forecast

> with theYahoo! Search weather shortcut.

>

>

[Guest guest]

Shanna,

Katelynn has actually gotten a little better with the crying! Of course,

the teacher is asking if we would like to put her on the bus in the morning

too to make it easier. I've agreed to do this because she seems to think

I'm going to turn down the street to go to her sitter's house and every time

we pass it she says " whee " like we are going somewhere fun. But, she did

say bye to me today through her tears. Good step, to say the least. And

even better is that after one week - she urinated a little on the potty. We

are SO VERY excited about that.

As far as her program, she attends for 5 hours a day in the autism

classroom. She gets group speech therapy and individual speech throughout

the week, as well as individual OT. The day is sectioned off where they do

story time and music time together, and then each child has a small work

station to do individual work. There are 6 children in the class and 4

adults - can't beat that ratio! We are not doing ABA with her as she has

responded well to doing a more emotionally based approach with a lot of

visuals. The teacher is telling me that she is doing well and thinks that

she should be able to move to an integrated classroom sooner than expected.

The only issue I have is that Katelynn is not that verbal - says about 30

words - and is unable to explain things to me. I would give anything to

have her come home and tell me everything she did that day, but I have to

trust the teachers. Maybe I'll look into getting that spy...

Jen

>

>Reply-To: Autism_in_Girls

>To: Autism_in_Girls

>Subject: Re: Re: new to group

>Date: Tue, 30 Jan 2007 04:16:05 -0800 (PST)

>

>Jen, What do you mean by 5 hours? Do you mean that she is in special

>education for 5 hours? Is she getting one on one services or all the

>services in group? Does she get speech, OT, or ABA therapy?

> I think that the hardest thing is to see your child crying and not

>wanting to go to school. Especiall with an autistic child, this is most

>difficult due to them not being able to come home and tell you what is

>going on. I will tell you that it gets better. Yes, my daughter did this

>and still has transition problems after the weekend. But she is so used to

>school that I think it is a " routine " for her now. Last month, I kept her

>home due to sickness and she asked me after 2 hours if she could go to

>school. I almost fell over!!!!!!!!!!! I could not believe it. I actually

>took her an hour later and smiled all day long. I will tell you this, there

>are desperate measures you could take but I suggest that you get kids that

>know your child that are in neighboring classrooms or in the same classroom

>to give you the scoop. Spies.....so to speak. Also, make friends with the

>assistants and anyone else that will spill the beans.

> Good luck.

> Shanna (mom to , 12 yrs, autism)

>

>

> Gazda wrote:

> We live in IL. Very happy about the 5 hours per day services through the

>school district. My daughter was diagnosed at Loyola Univesity Hospital.

>

>Quick question... How long, if at all, did your children cry when you

>brought them to school? It's only week two, but it's getting worse. She

>seems to be enjoying herself at school but how do I know that she doesn't

>scream the whole time? Probably me just being paranoid, but it is horrible

>when I drop her off.

>Jen

>

>

> >From: Shanna Arnold

> >Reply-To: Autism_in_Girls

> >To: Autism_in_Girls

> >Subject: Re: Re: new to group

> >Date: Sun, 28 Jan 2007 09:03:33 -0800 (PST)

> >

> >Welcome Jen!

> > We are glad to have you. We look forward to hearing more from you. What

> >state are you in to provide the 5 hours a day services? Who diagnosed

>your

> >daughter with Autism?

> > Shanna (mother to , 12 yr old, autism)

> >

> >e_stull_1999 wrote:

> > welcome to the group

> >

> > >

> > > Hello everyone...

> > > Been reading the posts for the last week. Looks like everyone

> >here

> > > likes to enjoy themselves and I like that! I just joined this

> >group

> > > and wanted to introduce myself. My daughter, Katelynn, just

> >turned 3

> > > this week and was diagnosed with autism in October 2006.

> >Relatively

> > > new, but I'm surprised how quickly I've been able to get used to

> >it.

> > > Don't really have time to dwell on things I guess. She started

> >school

> > > this week and goes every day for 5 hours. She is so smart and

> >doing

> > > well so far. Language and social skills are her biggest problems -

> >

> > > doesn't want to be near other children too much but LOVES adults

> >so I

> > > know she has that ability in her for interaction. I don't really

> >know

> > > anyone else that has an autistic daughter, there is only one other

> > > girl in her class, so I look forward to talking with you all about

> > > life with these beautiful little girls. Katelynn is our only

> >child by

> > > the way.

> > > Oh, and out dog's name is Daisy - definatly ends with the " ie "

> > > sound.

> > > Jen

> > >

> >

> >

> >

> >

> >

> >

> >---------------------------------

> >Don't get soaked. Take a quick peak at the forecast

> > with theYahoo! Search weather shortcut.

> >

> >

[Guest guest]

Jen,

It sounds like you are working hard to get Katelynn where she needs to be. I

wish you well. used to scream at 2 years old if we took a different road

in our town. She had learned a certain way to Mc's or somewhere else and

that was her way of telling me to take the same way. I didn't listen of course.

I paid for this with the tantrums but it helped her learn that there will be

different roads to get to the same place. After saying that, I realize that the

road you have chosen for Katelynn is the way you see towards your goal. I am

amazed that you are getting a lot of help where you are at her age. It is great

for her sake. And a spy may be necessary in your case.

Shanna

Gazda wrote:

Shanna,

Katelynn has actually gotten a little better with the crying! Of course,

the teacher is asking if we would like to put her on the bus in the morning

too to make it easier. I've agreed to do this because she seems to think

I'm going to turn down the street to go to her sitter's house and every time

we pass it she says " whee " like we are going somewhere fun. But, she did

say bye to me today through her tears. Good step, to say the least. And

even better is that after one week - she urinated a little on the potty. We

are SO VERY excited about that.

As far as her program, she attends for 5 hours a day in the autism

classroom. She gets group speech therapy and individual speech throughout

the week, as well as individual OT. The day is sectioned off where they do

story time and music time together, and then each child has a small work

station to do individual work. There are 6 children in the class and 4

adults - can't beat that ratio! We are not doing ABA with her as she has

responded well to doing a more emotionally based approach with a lot of

visuals. The teacher is telling me that she is doing well and thinks that

she should be able to move to an integrated classroom sooner than expected.

The only issue I have is that Katelynn is not that verbal - says about 30

words - and is unable to explain things to me. I would give anything to

have her come home and tell me everything she did that day, but I have to

trust the teachers. Maybe I'll look into getting that spy...

Jen

>From: Shanna Arnold

>Reply-To: Autism_in_Girls

>To: Autism_in_Girls

>Subject: Re: Re: new to group

>Date: Tue, 30 Jan 2007 04:16:05 -0800 (PST)

>

>Jen, What do you mean by 5 hours? Do you mean that she is in special

>education for 5 hours? Is she getting one on one services or all the

>services in group? Does she get speech, OT, or ABA therapy?

> I think that the hardest thing is to see your child crying and not

>wanting to go to school. Especiall with an autistic child, this is most

>difficult due to them not being able to come home and tell you what is

>going on. I will tell you that it gets better. Yes, my daughter did this

>and still has transition problems after the weekend. But she is so used to

>school that I think it is a " routine " for her now. Last month, I kept her

>home due to sickness and she asked me after 2 hours if she could go to

>school. I almost fell over!!!!!!!!!!! I could not believe it. I actually

>took her an hour later and smiled all day long. I will tell you this, there

>are desperate measures you could take but I suggest that you get kids that

>know your child that are in neighboring classrooms or in the same classroom

>to give you the scoop. Spies.....so to speak. Also, make friends with the

>assistants and anyone else that will spill the beans.

> Good luck.

> Shanna (mom to , 12 yrs, autism)

>

>

> Gazda wrote:

> We live in IL. Very happy about the 5 hours per day services through the

>school district. My daughter was diagnosed at Loyola Univesity Hospital.

>

>Quick question... How long, if at all, did your children cry when you

>brought them to school? It's only week two, but it's getting worse. She

>seems to be enjoying herself at school but how do I know that she doesn't

>scream the whole time? Probably me just being paranoid, but it is horrible

>when I drop her off.

>Jen

>

>

> >From: Shanna Arnold

> >Reply-To: Autism_in_Girls

> >To: Autism_in_Girls

> >Subject: Re: Re: new to group

> >Date: Sun, 28 Jan 2007 09:03:33 -0800 (PST)

> >

> >Welcome Jen!

> > We are glad to have you. We look forward to hearing more from you. What

> >state are you in to provide the 5 hours a day services? Who diagnosed

>your

> >daughter with Autism?

> > Shanna (mother to , 12 yr old, autism)

> >

> >e_stull_1999 wrote:

> > welcome to the group

> >

> > >

> > > Hello everyone...

> > > Been reading the posts for the last week. Looks like everyone

> >here

> > > likes to enjoy themselves and I like that! I just joined this

> >group

> > > and wanted to introduce myself. My daughter, Katelynn, just

> >turned 3

> > > this week and was diagnosed with autism in October 2006.

> >Relatively

> > > new, but I'm surprised how quickly I've been able to get used to

> >it.

> > > Don't really have time to dwell on things I guess. She started

> >school

> > > this week and goes every day for 5 hours. She is so smart and

> >doing

> > > well so far. Language and social skills are her biggest problems -

> >

> > > doesn't want to be near other children too much but LOVES adults

> >so I

> > > know she has that ability in her for interaction. I don't really

> >know

> > > anyone else that has an autistic daughter, there is only one other

> > > girl in her class, so I look forward to talking with you all about

> > > life with these beautiful little girls. Katelynn is our only

> >child by

> > > the way.

> > > Oh, and out dog's name is Daisy - definatly ends with the " ie "

> > > sound.

> > > Jen

> > >

> >

> >

> >

> >

> >

> >

> >---------------------------------

> >Don't get soaked. Take a quick peak at the forecast

> > with theYahoo! Search weather shortcut.

> >

> >

[Guest guest]

Hi Jen,

It's great to have you in the group!

And, hi to everyone else! I don't think I've emailed except once since

before Christmas. We went on vacation, drove from here to California and back,

to spend Christmas with my family. We hugely enjoyed a side trip to the Grand

Canyon on the way home, right up until I fell in the icy parking lot as we

were leaving and smashed my right wrist and hip! I got to spend half of New

Year's Day in the emergency room at Flagstaff, Arizona! Allie thinks it's

just too funny that I'd spent the whole day telling her to stop running on the

ice before she got herself killed, but I was the one who got hurt!

I have my brace off now, and finally feel like doing some typing, but I'm

telling you - everyone got chatty and I've had to wade through nearly 700

emails that piled up since Christmas! I'm down to my last 100, woo hoo!

Thank you for all the funny and interesting posts, everyone.

You have kept me cheery while I healed up!

Sandi (Allie's Mom)

Houston

[Guest guest]

Sandi, Welcome to the list. I am so sorry to hear about your ice skating

accident. I do hope you post more and fill us in on life with " Allie " . There is

another mom on the list here who has a daughter named Allie. How is Houston this

time of year? You all getting lots of cold weather (unusually)?

Shanna (mom to , 12yrs, autism)

D22@... wrote:

Hi Jen,

It's great to have you in the group!

And, hi to everyone else! I don't think I've emailed except once since

before Christmas. We went on vacation, drove from here to California and back,

to spend Christmas with my family. We hugely enjoyed a side trip to the Grand

Canyon on the way home, right up until I fell in the icy parking lot as we

were leaving and smashed my right wrist and hip! I got to spend half of New

Year's Day in the emergency room at Flagstaff, Arizona! Allie thinks it's

just too funny that I'd spent the whole day telling her to stop running on the

ice before she got herself killed, but I was the one who got hurt!

I have my brace off now, and finally feel like doing some typing, but I'm

telling you - everyone got chatty and I've had to wade through nearly 700

emails that piled up since Christmas! I'm down to my last 100, woo hoo!

Thank you for all the funny and interesting posts, everyone.

You have kept me cheery while I healed up!

Sandi (Allie's Mom)

Houston

[Guest guest]

Hi Amber,

Welcome to the group! Your story is a bit different

and I am sorry that you guys have still not found a

solution. Do you guys ever do any signing? How do you

communicate with ? Have they checked her ears? I

am sure they probably have, but these are the first

things that come to my mind. Does she make sounds at

all or babbling like it almost sounds like another

language, or is she mostly quiet?

I have three children with Autism. Their ages are girl

5.5 Chantelle, girl almost 4 , and boy almost 2

. I live in Oregon and my almost 4 year old

has just finally started taking. She is talking a lot

now and saying a ton of words, and it almost seems

overnight. She has some problems with her Gs and her

Ls but really other than that she can copy almost any

word. This is just so wonderful and thrilling for us,

but is just like her sister. And their brother does

not talk yet at all, just as they did. There are many

of other things that are not the same about all of

them, but in that aspect they seem to be alike.

This is just a theory, but I honestly believe that it

has to do more with my girls hearing than their autism

that they are unable to talk. I know that they have

autism for many other reasons. However, they have both

had ear troubles since they were babies and Chantelle,

my oldest child at one point was diagnosed as being

deaf. My brother had to have tubes in his ears and so

did my husband's brother. We asked the doctors about

their hearing and I have read and researched a lot

about it, and my theory, I guess is that my children

any way, have both started talking when they reached a

certain height. I was told by some specialists that

when babies and children are little, their ear canal

is flat or basically horizontal and that as they grow

it slants down and becomes more like a 45% angle. They

told me that this allows the fluid that often builds

up in a horizontal or flat ear canal as a baby and

toddler to drain out.

Both my children had a huge growth spurt and are very

tall for their age, and just after there growth spurt

they began talking just fine and all at once. Before

that it was like they were deaf when and if they

talked at all, which was not much, they mostly hummed

or tried to sing.

Anyhow, I do not know at all whether this is a

coincidence or anything that may be true, but the

reason I am telling you this, is because I am

wondering if your daughter is small or short for her

age. I am wondering whether or not her ears could have

anything to do with it.

Anyhow, changing the subject ... this group is really

great! everyone is very accepting and helpful and many

of us have been on here for years and many of us are

new and some people here are adults diagnosed with

Autism and many of us are adults who haven't been

diagnosed but believe we are at least on the spectrum

and most of us are also parents and we are all friends

to eachother and anyone who joins. So welcome!

Sometimes I post often and sometimes it is a long

while, and everybody is kinda like that. We share

personal stuff and autism stuff and crazy random stuff

and just whatever, so feel free to just make us your

family and ask or say almost anything.

Hopefully I will be writing here a little more often,

because I finally graduated from college after 9 years

of working at it. So feel free to ask questions, and

hope to see your name around often in my inbox

Esther

--- lamjbyrd wrote:

> Hi,

> My name is Amber and I am mother to ,7, who is

> autistic and

> , 3 is is typical(we joke that he's too

> typical). 's

> story is different from most. She was born " normal "

> with no

> complications. She developed normally until 51/2

> months when she

> started having seizures. We battled those and tried

> numerous drugs

> for a year. Finally we tried the Ketogenic diet

> which was our

> answer. She stopped having seizures at 17 months.

> She was labeled

> developmentally delayed. She walked at 3 and has

> never spoken a word

> to this day. We always said that she had autistic

> tendencies because

> she liked to do repetative things, but I cannot

> remember when this

> started. It wasn't until she started kindergarten

> and I spend some

> time around an autistic girl in her classroom that

> it dawned on me

> that along the way somewhere she had " become "

> autistic. Since then

> we've started the GFCF diet. We are still doing

> this, but we have

> started letting her cheat some because we've been

> doing it for 2

> years and never really seen a change. We have also

> tried

> hyperbarics, but there isn't a chamber close enough

> to home to really

> give it a go. Our DAN doc has one, but that's 5

> hours away. We do

> IG infusions everyother weekend. She takes

> nystatin, probiotics,

> DMG, cod liver oil, SuperNu Thera, Vitamin C,

> Calcium, Boron,

> Magnesium, Selenium, Zinc, and digestive enzymes.

> She also gets B12

> shots and acetyl cistine creme. We have also

> started chelation with

> TDMSA. We are also trying to do Enlisten listening

> therapy, but so

> far she won't wear the headphones. As you can tell,

> life is crazy.

> I'm also a middle school English teacher, so just

> send me a straight

> jacket:) I just feel like I've lost precious time

> because was

> so old when she was diagnosed. I joined the group

> because most

> stories that you hear are about boys and our girls

> are different.

> is the most loving child you will ever meet.

> I'd love

> anyone's input and/or advice. Thanks

> Amber

>

>

________________________________________________________________________________\

____

Need Mail bonding?

Go to the Yahoo! Mail Q & A for great tips from Yahoo! Answers users.

http://answers.yahoo.com/dir/?link=list & sid=396546091

[Guest guest]

Hi Amber, welcome to our group.

B/c my daughter is 15 now, when we got our diagnosis in IL, there wasn't

anything for us besides speech & OT locally. A Lovaas program was being

done an hour and a half away which we observed of a child whining & not

wanting to go to the table. Other than that there was nothing for us at

that time.

By the time we started anything, Kim must have been about 's age.

Even though my husband is now very active in autism, it took a couple of

years for him to actively get going. So...you are in a similar time line as

us, although Kim doesn't have seizures (knock on wood). Sounds like you are

doing a lot for your daughter already. GFCF doesn't work for all the kids,

although it does help a lot of them. If you find that when she cheats & you

see no negative effects, you might be one of the lucky ones that don't need

to continue that therapy.

You might want to check out Jim ' website at autism.asu.edu (no www).

He has a newcomer's summary of biomedical & research & conference info (for

Phoenix area & S. CA).

FYI for everyone: Jim has written a 20 pg summary of biomedical treatments

that is almost ready to be public. It will be on his website, but may also

be on National's & ARI.

Marie

>

> Hi,

> My name is Amber and I am mother to ,7, who is autistic and

> , 3 is is typical(we joke that he's too typical). 's

> story is different from most. She was born " normal " with no

> complications. She developed normally until 51/2 months when she

> started having seizures. We battled those and tried numerous drugs

> for a year. Finally we tried the Ketogenic diet which was our

> answer. She stopped having seizures at 17 months. She was labeled

> developmentally delayed. She walked at 3 and has never spoken a word

> to this day. We always said that she had autistic tendencies because

> she liked to do repetative things, but I cannot remember when this

> started. It wasn't until she started kindergarten and I spend some

> time around an autistic girl in her classroom that it dawned on me

> that along the way somewhere she had " become " autistic. Since then

> we've started the GFCF diet. We are still doing this, but we have

> started letting her cheat some because we've been doing it for 2

> years and never really seen a change. We have also tried

> hyperbarics, but there isn't a chamber close enough to home to really

> give it a go. Our DAN doc has one, but that's 5 hours away. We do

> IG infusions everyother weekend. She takes nystatin, probiotics,

> DMG, cod liver oil, SuperNu Thera, Vitamin C, Calcium, Boron,

> Magnesium, Selenium, Zinc, and digestive enzymes. She also gets B12

> shots and acetyl cistine creme. We have also started chelation with

> TDMSA. We are also trying to do Enlisten listening therapy, but so

> far she won't wear the headphones. As you can tell, life is crazy.

> I'm also a middle school English teacher, so just send me a straight

> jacket:) I just feel like I've lost precious time because was

> so old when she was diagnosed. I joined the group because most

> stories that you hear are about boys and our girls are different.

> is the most loving child you will ever meet. I'd love

> anyone's input and/or advice. Thanks

> Amber

>

>

>

> Autism_in_Girls-subscribe

> ------------------------

> Autism_in_Girls-unsubscribe

>

[Guest guest]

>

> Hopefully I will be writing here a little more often,

> because I finally graduated from college after 9 years

> of working at it. So feel free to ask questions, and

> hope to see your name around often in my inbox

> Esther

WOW! Congratulations Esther! That is great

Amnesty

>

[Guest guest]

Hi Amber, welcome to the group.

My name is Amnesty and I am an ABA consultant in CA. I'm also the mom

of two NT kids. Nice to meet you.

Amnesty

>

> Hi,

> My name is Amber and I am mother to ,7, who is autistic and

> , 3 is is typical(we joke that he's too typical). 's

> story is different from most. She was born " normal " with no

> complications. She developed normally until 51/2 months when she

> started having seizures. We battled those and tried numerous drugs

> for a year. Finally we tried the Ketogenic diet which was our

> answer. She stopped having seizures at 17 months. She was labeled

> developmentally delayed. She walked at 3 and has never spoken a word

> to this day. We always said that she had autistic tendencies because

> she liked to do repetative things, but I cannot remember when this

> started. It wasn't until she started kindergarten and I spend some

> time around an autistic girl in her classroom that it dawned on me

> that along the way somewhere she had " become " autistic. Since then

> we've started the GFCF diet. We are still doing this, but we have

> started letting her cheat some because we've been doing it for 2

> years and never really seen a change. We have also tried

> hyperbarics, but there isn't a chamber close enough to home to really

> give it a go. Our DAN doc has one, but that's 5 hours away. We do

> IG infusions everyother weekend. She takes nystatin, probiotics,

> DMG, cod liver oil, SuperNu Thera, Vitamin C, Calcium, Boron,

> Magnesium, Selenium, Zinc, and digestive enzymes. She also gets B12

> shots and acetyl cistine creme. We have also started chelation with

> TDMSA. We are also trying to do Enlisten listening therapy, but so

> far she won't wear the headphones. As you can tell, life is crazy.

> I'm also a middle school English teacher, so just send me a straight

> jacket:) I just feel like I've lost precious time because was

> so old when she was diagnosed. I joined the group because most

> stories that you hear are about boys and our girls are different.

> is the most loving child you will ever meet. I'd love

> anyone's input and/or advice. Thanks

> Amber

>

[Guest guest]

Thanks Esther. Wow, three kids on the spectrum. I would go crazy.

morgan had a lot of ear problems. She's had three sets of tubes.

That's why we do the IG infusions because she obviously has an immune

problem. I had her hearing tested a long time ago and it was fine,

but that was probably 5 years ago. It's hard to test anything on her

because she won't sit still and be quiet. She makes plenty of noise,

but it is more like humming and screaming. At times we've gotten

mama and nana and dada, but they always seem to fade away. She is

normal height for her age. The listening program I want to do is

interesting, but like I said she won't wear the headphones. Do your

kids do any kind of alternative or biomedical therapies? I

understand about the school thing, I'm working on my masters degree

and I'm going full time to get it over with. Thanks for the warm

welcome.

Amber

>

> > Hi,

> > My name is Amber and I am mother to ,7, who is

> > autistic and

> > , 3 is is typical(we joke that he's too

> > typical). 's

> > story is different from most. She was born " normal "

> > with no

> > complications. She developed normally until 51/2

> > months when she

> > started having seizures. We battled those and tried

> > numerous drugs

> > for a year. Finally we tried the Ketogenic diet

> > which was our

> > answer. She stopped having seizures at 17 months.

> > She was labeled

> > developmentally delayed. She walked at 3 and has

> > never spoken a word

> > to this day. We always said that she had autistic

> > tendencies because

> > she liked to do repetative things, but I cannot

> > remember when this

> > started. It wasn't until she started kindergarten

> > and I spend some

> > time around an autistic girl in her classroom that

> > it dawned on me

> > that along the way somewhere she had " become "

> > autistic. Since then

> > we've started the GFCF diet. We are still doing

> > this, but we have

> > started letting her cheat some because we've been

> > doing it for 2

> > years and never really seen a change. We have also

> > tried

> > hyperbarics, but there isn't a chamber close enough

> > to home to really

> > give it a go. Our DAN doc has one, but that's 5

> > hours away. We do

> > IG infusions everyother weekend. She takes

> > nystatin, probiotics,

> > DMG, cod liver oil, SuperNu Thera, Vitamin C,

> > Calcium, Boron,

> > Magnesium, Selenium, Zinc, and digestive enzymes.

> > She also gets B12

> > shots and acetyl cistine creme. We have also

> > started chelation with

> > TDMSA. We are also trying to do Enlisten listening

> > therapy, but so

> > far she won't wear the headphones. As you can tell,

> > life is crazy.

> > I'm also a middle school English teacher, so just

> > send me a straight

> > jacket:) I just feel like I've lost precious time

> > because was

> > so old when she was diagnosed. I joined the group

> > because most

> > stories that you hear are about boys and our girls

> > are different.

> > is the most loving child you will ever meet.

> > I'd love

> > anyone's input and/or advice. Thanks

> > Amber

> >

> >

>

>

>

>

>

>

______________________________________________________________________

______________

> Need Mail bonding?

> Go to the Yahoo! Mail Q & A for great tips from Yahoo! Answers users.

> http://answers.yahoo.com/dir/?link=list & sid=396546091

>

[Guest guest]

Welcome to the group, Amber! Looking forward to hearing more about .

Sounds to me like you have tried a lot of things. What do you think that you

have seen the most progress with?????????

Shanna ('s mom, age 12, autism)

lamjbyrd wrote:

Hi,

My name is Amber and I am mother to ,7, who is autistic and

, 3 is is typical(we joke that he's too typical). 's

story is different from most. She was born " normal " with no

complications. She developed normally until 51/2 months when she

started having seizures. We battled those and tried numerous drugs

for a year. Finally we tried the Ketogenic diet which was our

answer. She stopped having seizures at 17 months. She was labeled

developmentally delayed. She walked at 3 and has never spoken a word

to this day. We always said that she had autistic tendencies because

she liked to do repetative things, but I cannot remember when this

started. It wasn't until she started kindergarten and I spend some

time around an autistic girl in her classroom that it dawned on me

that along the way somewhere she had " become " autistic. Since then

we've started the GFCF diet. We are still doing this, but we have

started letting her cheat some because we've been doing it for 2

years and never really seen a change. We have also tried

hyperbarics, but there isn't a chamber close enough to home to really

give it a go. Our DAN doc has one, but that's 5 hours away. We do

IG infusions everyother weekend. She takes nystatin, probiotics,

DMG, cod liver oil, SuperNu Thera, Vitamin C, Calcium, Boron,

Magnesium, Selenium, Zinc, and digestive enzymes. She also gets B12

shots and acetyl cistine creme. We have also started chelation with

TDMSA. We are also trying to do Enlisten listening therapy, but so

far she won't wear the headphones. As you can tell, life is crazy.

I'm also a middle school English teacher, so just send me a straight

jacket:) I just feel like I've lost precious time because was

so old when she was diagnosed. I joined the group because most

stories that you hear are about boys and our girls are different.

is the most loving child you will ever meet. I'd love

anyone's input and/or advice. Thanks

Amber

---------------------------------

Expecting? Get great news right away with email Auto-Check.

Try the Yahoo! Mail Beta.

[Guest guest]

Congrats Esther on the graduation from college!!!!!!!!!!!!!!!!!! Whew, 9

years....you are a trooper & 3 autistic children! Celebrate, you deserve it!

Shanna

Esther wrote:

Hi Amber,

Welcome to the group! Your story is a bit different

and I am sorry that you guys have still not found a

solution. Do you guys ever do any signing? How do you

communicate with ? Have they checked her ears? I

am sure they probably have, but these are the first

things that come to my mind. Does she make sounds at

all or babbling like it almost sounds like another

language, or is she mostly quiet?

I have three children with Autism. Their ages are girl

5.5 Chantelle, girl almost 4 , and boy almost 2

. I live in Oregon and my almost 4 year old

has just finally started taking. She is talking a lot

now and saying a ton of words, and it almost seems

overnight. She has some problems with her Gs and her

Ls but really other than that she can copy almost any

word. This is just so wonderful and thrilling for us,

but is just like her sister. And their brother does

not talk yet at all, just as they did. There are many

of other things that are not the same about all of

them, but in that aspect they seem to be alike.

This is just a theory, but I honestly believe that it

has to do more with my girls hearing than their autism

that they are unable to talk. I know that they have

autism for many other reasons. However, they have both

had ear troubles since they were babies and Chantelle,

my oldest child at one point was diagnosed as being

deaf. My brother had to have tubes in his ears and so

did my husband's brother. We asked the doctors about

their hearing and I have read and researched a lot

about it, and my theory, I guess is that my children

any way, have both started talking when they reached a

certain height. I was told by some specialists that

when babies and children are little, their ear canal

is flat or basically horizontal and that as they grow

it slants down and becomes more like a 45% angle. They

told me that this allows the fluid that often builds

up in a horizontal or flat ear canal as a baby and

toddler to drain out.

Both my children had a huge growth spurt and are very

tall for their age, and just after there growth spurt

they began talking just fine and all at once. Before

that it was like they were deaf when and if they

talked at all, which was not much, they mostly hummed

or tried to sing.

Anyhow, I do not know at all whether this is a

coincidence or anything that may be true, but the

reason I am telling you this, is because I am

wondering if your daughter is small or short for her

age. I am wondering whether or not her ears could have

anything to do with it.

Anyhow, changing the subject ... this group is really

great! everyone is very accepting and helpful and many

of us have been on here for years and many of us are

new and some people here are adults diagnosed with

Autism and many of us are adults who haven't been

diagnosed but believe we are at least on the spectrum

and most of us are also parents and we are all friends

to eachother and anyone who joins. So welcome!

Sometimes I post often and sometimes it is a long

while, and everybody is kinda like that. We share

personal stuff and autism stuff and crazy random stuff

and just whatever, so feel free to just make us your

family and ask or say almost anything.

Hopefully I will be writing here a little more often,

because I finally graduated from college after 9 years

of working at it. So feel free to ask questions, and

hope to see your name around often in my inbox

Esther

--- lamjbyrd wrote:

> Hi,

> My name is Amber and I am mother to ,7, who is

> autistic and

> , 3 is is typical(we joke that he's too

> typical). 's

> story is different from most. She was born " normal "

> with no

> complications. She developed normally until 51/2

> months when she

> started having seizures. We battled those and tried

> numerous drugs

> for a year. Finally we tried the Ketogenic diet

> which was our

> answer. She stopped having seizures at 17 months.

> She was labeled

> developmentally delayed. She walked at 3 and has

> never spoken a word

> to this day. We always said that she had autistic

> tendencies because

> she liked to do repetative things, but I cannot

> remember when this

> started. It wasn't until she started kindergarten

> and I spend some

> time around an autistic girl in her classroom that

> it dawned on me

> that along the way somewhere she had " become "

> autistic. Since then

> we've started the GFCF diet. We are still doing

> this, but we have

> started letting her cheat some because we've been

> doing it for 2

> years and never really seen a change. We have also

> tried

> hyperbarics, but there isn't a chamber close enough

> to home to really

> give it a go. Our DAN doc has one, but that's 5

> hours away. We do

> IG infusions everyother weekend. She takes

> nystatin, probiotics,

> DMG, cod liver oil, SuperNu Thera, Vitamin C,

> Calcium, Boron,

> Magnesium, Selenium, Zinc, and digestive enzymes.

> She also gets B12

> shots and acetyl cistine creme. We have also

> started chelation with

> TDMSA. We are also trying to do Enlisten listening

> therapy, but so

> far she won't wear the headphones. As you can tell,

> life is crazy.

> I'm also a middle school English teacher, so just

> send me a straight

> jacket:) I just feel like I've lost precious time

> because was

> so old when she was diagnosed. I joined the group

> because most

> stories that you hear are about boys and our girls

> are different.

> is the most loving child you will ever meet.

> I'd love

> anyone's input and/or advice. Thanks

> Amber

>

>

__________________________________________________________

Need Mail bonding?

Go to the Yahoo! Mail Q & A for great tips from Yahoo! Answers users.

http://answers.yahoo.com/dir/?link=list & sid=396546091

---------------------------------

Bored stiff? Loosen up...

Download and play hundreds of games for free on Yahoo! Games.

[Guest guest]

Shanna,

I forgot that we were taking Actos(a diabetes drug). We saw some

difference with it. The infusions have definately kept her from

getting sick. The vitamins and suppplements help with her poops and

stuff, but nothing has drastically changed her behavior or increased

her skills. She has knowledge, but she just can't express it because

she can't talk. I think I'm going to get her evaluated for an

augmentative device to see if that helps. I'm just feeling

discouraged lately, but I'm soo terified that if I stop one thing

she'll regress and I'll be kicking myself.

Amber

> Hi,

> My name is Amber and I am mother to ,7, who is autistic and

> , 3 is is typical(we joke that he's too typical). 's

> story is different from most. She was born " normal " with no

> complications. She developed normally until 51/2 months when she

> started having seizures. We battled those and tried numerous drugs

> for a year. Finally we tried the Ketogenic diet which was our

> answer. She stopped having seizures at 17 months. She was labeled

> developmentally delayed. She walked at 3 and has never spoken a

word

> to this day. We always said that she had autistic tendencies

because

> she liked to do repetative things, but I cannot remember when this

> started. It wasn't until she started kindergarten and I spend some

> time around an autistic girl in her classroom that it dawned on me

> that along the way somewhere she had " become " autistic. Since then

> we've started the GFCF diet. We are still doing this, but we have

> started letting her cheat some because we've been doing it for 2

> years and never really seen a change. We have also tried

> hyperbarics, but there isn't a chamber close enough to home to

really

> give it a go. Our DAN doc has one, but that's 5 hours away. We do

> IG infusions everyother weekend. She takes nystatin, probiotics,

> DMG, cod liver oil, SuperNu Thera, Vitamin C, Calcium, Boron,

> Magnesium, Selenium, Zinc, and digestive enzymes. She also gets B12

> shots and acetyl cistine creme. We have also started chelation with

> TDMSA. We are also trying to do Enlisten listening therapy, but so

> far she won't wear the headphones. As you can tell, life is crazy.

> I'm also a middle school English teacher, so just send me a

straight

> jacket:) I just feel like I've lost precious time because

was

> so old when she was diagnosed. I joined the group because most

> stories that you hear are about boys and our girls are different.

> is the most loving child you will ever meet. I'd love

> anyone's input and/or advice. Thanks

> Amber

>

>

>

>

>

>

> ---------------------------------

> Expecting? Get great news right away with email Auto-Check.

> Try the Yahoo! Mail Beta.

>

>

[Guest guest]

Amnesty,

How convenient that you are an ABA consultant. I've been looking for

one. You don't travel to AL do you:) just kidding.

Amber

> >

> > Hi,

> > My name is Amber and I am mother to ,7, who is autistic and

> > , 3 is is typical(we joke that he's too typical).

's

> > story is different from most. She was born " normal " with no

> > complications. She developed normally until 51/2 months when she

> > started having seizures. We battled those and tried numerous

drugs

> > for a year. Finally we tried the Ketogenic diet which was our

> > answer. She stopped having seizures at 17 months. She was

labeled

> > developmentally delayed. She walked at 3 and has never spoken a

word

> > to this day. We always said that she had autistic tendencies

because

> > she liked to do repetative things, but I cannot remember when

this

> > started. It wasn't until she started kindergarten and I spend

some

> > time around an autistic girl in her classroom that it dawned on

me

> > that along the way somewhere she had " become " autistic. Since

then

> > we've started the GFCF diet. We are still doing this, but we have

> > started letting her cheat some because we've been doing it for 2

> > years and never really seen a change. We have also tried

> > hyperbarics, but there isn't a chamber close enough to home to

really

> > give it a go. Our DAN doc has one, but that's 5 hours away. We

do

> > IG infusions everyother weekend. She takes nystatin, probiotics,

> > DMG, cod liver oil, SuperNu Thera, Vitamin C, Calcium, Boron,

> > Magnesium, Selenium, Zinc, and digestive enzymes. She also gets

B12

> > shots and acetyl cistine creme. We have also started chelation

with

> > TDMSA. We are also trying to do Enlisten listening therapy, but

so

> > far she won't wear the headphones. As you can tell, life is

crazy.

> > I'm also a middle school English teacher, so just send me a

straight

> > jacket:) I just feel like I've lost precious time because

was

> > so old when she was diagnosed. I joined the group because most

> > stories that you hear are about boys and our girls are

different.

> > is the most loving child you will ever meet. I'd love

> > anyone's input and/or advice. Thanks

> > Amber

> >

>

[Guest guest]

Nope. Sorry. Where in AL though? I might be able to help...I used to

live/work in Atlanta, and I still know people there.

Amnesty

> > >

> > > Hi,

> > > My name is Amber and I am mother to ,7, who is autistic and

> > > , 3 is is typical(we joke that he's too typical).

> 's

> > > story is different from most. She was born " normal " with no

> > > complications. She developed normally until 51/2 months when she

> > > started having seizures. We battled those and tried numerous

> drugs

> > > for a year. Finally we tried the Ketogenic diet which was our

> > > answer. She stopped having seizures at 17 months. She was

> labeled

> > > developmentally delayed. She walked at 3 and has never spoken a

> word

> > > to this day. We always said that she had autistic tendencies

> because

> > > she liked to do repetative things, but I cannot remember when

> this

> > > started. It wasn't until she started kindergarten and I spend

> some

> > > time around an autistic girl in her classroom that it dawned on

> me

> > > that along the way somewhere she had " become " autistic. Since

> then

> > > we've started the GFCF diet. We are still doing this, but we have

> > > started letting her cheat some because we've been doing it for 2

> > > years and never really seen a change. We have also tried

> > > hyperbarics, but there isn't a chamber close enough to home to

> really

> > > give it a go. Our DAN doc has one, but that's 5 hours away. We

> do

> > > IG infusions everyother weekend. She takes nystatin, probiotics,

> > > DMG, cod liver oil, SuperNu Thera, Vitamin C, Calcium, Boron,

> > > Magnesium, Selenium, Zinc, and digestive enzymes. She also gets

> B12

> > > shots and acetyl cistine creme. We have also started chelation

> with

> > > TDMSA. We are also trying to do Enlisten listening therapy, but

> so

> > > far she won't wear the headphones. As you can tell, life is

> crazy.

> > > I'm also a middle school English teacher, so just send me a

> straight

> > > jacket:) I just feel like I've lost precious time because

> was

> > > so old when she was diagnosed. I joined the group because most

> > > stories that you hear are about boys and our girls are

> different.

> > > is the most loving child you will ever meet. I'd love

> > > anyone's input and/or advice. Thanks

> > > Amber

> > >

> >

>

[Guest guest]

Amber, So, let me get this straight. Your daughter is type 2 diabetic along with

autism? I am sure that there are other children that are, but you are the first

that I am hearing about with this condition combined. Did you notice that the

diets you did helped her diabetes? I am just curious. I have an 18 year old

with type 1 and my questions are warranted due to the fact that there may be a

genetic link (up til now, there is none).

I think you are looking into some really good stuff with the augmentative

devices. Let us all know how that goes. I bet there are some really good ones

out there that people on this group have for their children.

Is the Enlisten therapy like the AIT therapy? What state are you in? It is sad

that you have to drive 5 hours for a DAN doctor.

You are such an inspiration to us all in your endeavors to pursue the best for

. Keep on inspiring us all.

Shanna ('s mom, age 12, autism)

lamjbyrd wrote:

Shanna,

I forgot that we were taking Actos(a diabetes drug). We saw some

difference with it. The infusions have definately kept her from

getting sick. The vitamins and suppplements help with her poops and

stuff, but nothing has drastically changed her behavior or increased

her skills. She has knowledge, but she just can't express it because

she can't talk. I think I'm going to get her evaluated for an

augmentative device to see if that helps. I'm just feeling

discouraged lately, but I'm soo terified that if I stop one thing

she'll regress and I'll be kicking myself.

Amber

> Hi,

> My name is Amber and I am mother to ,7, who is autistic and

> , 3 is is typical(we joke that he's too typical). 's

> story is different from most. She was born " normal " with no

> complications. She developed normally until 51/2 months when she

> started having seizures. We battled those and tried numerous drugs

> for a year. Finally we tried the Ketogenic diet which was our

> answer. She stopped having seizures at 17 months. She was labeled

> developmentally delayed. She walked at 3 and has never spoken a

word

> to this day. We always said that she had autistic tendencies

because

> she liked to do repetative things, but I cannot remember when this

> started. It wasn't until she started kindergarten and I spend some

> time around an autistic girl in her classroom that it dawned on me

> that along the way somewhere she had " become " autistic. Since then

> we've started the GFCF diet. We are still doing this, but we have

> started letting her cheat some because we've been doing it for 2

> years and never really seen a change. We have also tried

> hyperbarics, but there isn't a chamber close enough to home to

really

> give it a go. Our DAN doc has one, but that's 5 hours away. We do

> IG infusions everyother weekend. She takes nystatin, probiotics,

> DMG, cod liver oil, SuperNu Thera, Vitamin C, Calcium, Boron,

> Magnesium, Selenium, Zinc, and digestive enzymes. She also gets B12

> shots and acetyl cistine creme. We have also started chelation with

> TDMSA. We are also trying to do Enlisten listening therapy, but so

> far she won't wear the headphones. As you can tell, life is crazy.

> I'm also a middle school English teacher, so just send me a

straight

> jacket:) I just feel like I've lost precious time because

was

> so old when she was diagnosed. I joined the group because most

> stories that you hear are about boys and our girls are different.

> is the most loving child you will ever meet. I'd love

> anyone's input and/or advice. Thanks

> Amber

>

>

>

>

>

>

> ---------------------------------

> Expecting? Get great news right away with email Auto-Check.

> Try the Yahoo! Mail Beta.

>

>

[Guest guest]

Shanna,

I'm sure Amber will clarify, but just FYI, the drug Actos has

recently been used off-label in autism because it has been shown to

be anti-inflammatory, reducing levels of C-reactive protein and IL-6,

which can be elevated in some autistic individuals. many autistic

children have chronic inflammation, so Actos is sometimes prescribed

to combat this.

> Amber, So, let me get this straight. Your daughter is type 2

> diabetic along with autism? I am sure that there are other children

> that are, but you are the first that I am hearing about with this

> condition combined. Did you notice that the diets you did helped

> her diabetes? I am just curious. I have an 18 year old with type 1

> and my questions are warranted due to the fact that there may be a

> genetic link (up til now, there is none).

> I think you are looking into some really good stuff with the

> augmentative devices. Let us all know how that goes. I bet there

> are some really good ones out there that people on this group have

> for their children.

> Is the Enlisten therapy like the AIT therapy? What state are you

> in? It is sad that you have to drive 5 hours for a DAN doctor.

> You are such an inspiration to us all in your endeavors to pursue

> the best for . Keep on inspiring us all.

> Shanna ('s mom, age 12, autism)

>

[Guest guest]

, As always, Thanks for the clarification. I had not heard this before.

What constitutes chronic inflammation? Is this a certain part of the body or all

over?

Shanna ('s mom, age 12, autism)

cathylynn2 wrote:

Shanna,

I'm sure Amber will clarify, but just FYI, the drug Actos has

recently been used off-label in autism because it has been shown to

be anti-inflammatory, reducing levels of C-reactive protein and IL-6,

which can be elevated in some autistic individuals. many autistic

children have chronic inflammation, so Actos is sometimes prescribed

to combat this.

> Amber, So, let me get this straight. Your daughter is type 2

> diabetic along with autism? I am sure that there are other children

> that are, but you are the first that I am hearing about with this

> condition combined. Did you notice that the diets you did helped

> her diabetes? I am just curious. I have an 18 year old with type 1

> and my questions are warranted due to the fact that there may be a

> genetic link (up til now, there is none).

> I think you are looking into some really good stuff with the

> augmentative devices. Let us all know how that goes. I bet there

> are some really good ones out there that people on this group have

> for their children.

> Is the Enlisten therapy like the AIT therapy? What state are you

> in? It is sad that you have to drive 5 hours for a DAN doctor.

> You are such an inspiration to us all in your endeavors to pursue

> the best for . Keep on inspiring us all.

> Shanna ('s mom, age 12, autism)

>

---------------------------------

Expecting? Get great news right away with email Auto-Check.

Try the Yahoo! Mail Beta.